INDIAN SOCIAL WORK CONGRESS 2013             (23-25 February, 2013)University Conference Centre, University of DelhiImpact...
Impact of Vitiligo on The Quality of Life (QoL) of                      Vitiligo Patients1.   Introduction2.   Meaning3.  ...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsIntroduction:   – Vitiligo is an ac...
Impact of Vitiligo on The Quality of Life (QoL) of                  Vitiligo Patients      As some studies suggest, a sign...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsMeaning:-  – Vitiligo is a skin con...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo PatientsCharacteristics of Vitiligo:   – O...
Impact of Vitiligo on The Quality of Life (QoL) of                        Vitiligo PatientsInternational:World Vitiligo Da...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsVitiligo Associations:  •   Italian...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients• Research:  National Vitiligo Fou...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo PatientsForum Discussions (1,719)   – Cali...
Impact of Vitiligo on The Quality of Life (QoL) of                 Vitiligo Patients– Southwestern Ohio Vitiligo Friends– ...
Impact of Vitiligo on The Quality of Life (QoL) of                       Vitiligo Patients• International Groups (90)•   A...
Impact of Vitiligo on The Quality of Life (QoL) of                       Vitiligo Patients•   Delaware Vitiligo Support & ...
Impact of Vitiligo on The Quality of Life (QoL) of                       Vitiligo Patients•   Vitiligo Friends Group of Ba...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsQoL Issues Physical Disfigurement c...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsData Samples Specification:   – Gen...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsUse of Dermatology Life Quality Ind...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsDLQI Questions Categories  No      ...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsDLQI Answers Options and Associated...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsMeaning of DLQI Scores             ...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsInclusion criteria:   – Patients fr...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsExclusion criteria:   – Foreign (= ...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsData Analyses :   1.  Gender wise a...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsFindings:1) Overall Findings:2) Wit...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients1) Overall Findings:   –   Disease...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo Patients2) With Effects on Patients Life:  ...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients3) With Disease Duration:• 1-6 mon...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients• 7-12 months Disease Duration Ana...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients• 13-18 months Disease Duration An...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients• 19-24 months Disease Duration An...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients• 25-36 months Disease Duration An...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo Patients4)With Male and Female:• 20% male ...
Impact of Vitiligo on The Quality of Life (QoL) of                      Vitiligo Patients•   23% male that is 164 male vit...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo PatientsConsequences:        Vitiligo is t...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo PatientsPsychological consequences :    – ...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsFinancial loss to a vitiligo patien...
Impact of Vitiligo on The Quality of Life (QoL) of                    Vitiligo PatientsFamily  and  Interpersonal  Relatio...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo PatientsA Child Vitiligo Patient:   – Viti...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo PatientsConclusions:   With the help of th...
Impact of Vitiligo on The Quality of Life (QoL) of                     Vitiligo PatientsRecommendations:• The findings of ...
Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo                        Patients
Impact of Vitiligo on The Quality of Life (QoL) of                 Vitiligo Patients    Thank You
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Impact of Vitiligo on Day to Day life of Vitiligo Patients

  1. 1. INDIAN SOCIAL WORK CONGRESS 2013 (23-25 February, 2013)University Conference Centre, University of DelhiImpact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients By Dhirendra Patel MSW,MBA, Mcom,LLB
  2. 2. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients1. Introduction2. Meaning3. Characteristices of Vitiligo4. International Position5. Impact6. DLQI7. Analysis8. Conclusion9. Future Need
  3. 3. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsIntroduction: – Vitiligo is an acquired disease characterized by skin depigmentation, due to destruction or malfunction of melanocytes (cells that produce melanin). It is present worldwide, and its prevalence in different countries ranges from less than 0.1% to more than 8% of general population (1% in the United States and in Europe);thus, it can be estimated that approximately 100 million people in the world are affected. – Despite these data, worldwide awareness and knowledge of vitiligo are often rather inadequate, and several misconceptions prevent a correct approach to this disease:
  4. 4. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients As some studies suggest, a significant number of patients identifiesas possible causes poor medical care, personal behavior, diet, pollution,even “fate” or “evil eye”, and has doubts or wrong ideas aboutcontagiousness; Moreover, in many countries vitiligo is confused with leprosy. Evengeneral physicians sometimes contribute to misinformation, by tellingpatients that there is no cure and no treatment is effective and/orclassifying vitiligo as a purely aesthetic problem, not worth of research ortreatment. Although the disease does not produce direct physical impairment,it may considerably influence the psychological well-being of the patients.
  5. 5. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsMeaning:- – Vitiligo is a skin condition in which there is a loss of brown color (pigment) from areas of skin, resulting in irregular white patches that feel like normal skin. – Vitiligo is a common, acquired, discoloration of the skin, characterized by well- circumscribed ivory or chalky white macules which are flush to the skin surface. – Vitiligo is an important skin disease having major impact on quality of life of patients, many of whom feel distressed and stigmatized by their condition. Society greets vitiligo patients in much the same way as it does any one else who appears to be different. They are started at or subjected to whispered comments, antagonism, insult or isolation. The chronic nature of disease, long term treatment, lack of uniform effective therapy and unpredictable course of disease is usually very demoralizing for patients suffering from vitiligo. It is important to recognize and deal with psychological components of this disease to improve their quality of life and to obtain a better treatment response.
  6. 6. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsCharacteristics of Vitiligo: – Occurs in all global regions and ethnic groups with same frequency – Affects 0.5-1.0% of the population – Affects males & females equally – Approximately 100 million people in the world are affected. – Frequent in family units with 7% incidence – There are various types of vitiligo classified by physicians – There are multiple therapies with marginal success – Can result in severe psychological, social & sexual problems
  7. 7. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsInternational:World Vitiligo Day--- Every Year June 25. • First World Vitiligo Day (also defined as “Vitiligo Awareness Day” or “Vitiligo Purple Fun day”, from the color chosen as Vitiligo Awareness Color) was observed on June 25, 2011. The choice of June 25 as World Vitiligo Day is a memorial to the popular artist Michael Jackson, who suffered from vitiligo since 1986 until his death, occurred on June 25, 2009. •
  8. 8. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsVitiligo Associations: • Italian Vitiligo Society • Korean Vitiligo Association • Spanish Association of Vitiligo Patients • SSPV+ La Societe Suisse du Psoriasis et du Vitiligo • Vitiligo Society UK • Vitiligo Weblap(Hungarian) • AFB Association Francaise du Vitiligo • Deutscher Vitiligo-Bund e.V. (Germany)
  9. 9. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• Research: National Vitiligo Foundation, Inc. (NVFI) Support:• Vitiligo Support International (VSI)• Vitiligo Support and Awareness Foundation (VITSAF) Children:• American Vitiligo Research Foundation (AVRF)
  10. 10. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsForum Discussions (1,719) – California Support Group – 110 membersLatest Activity: Feb 2Trying to get everyone with vitiligo a little closer to each other... for that special shoulder to lean on =) – Texas Vitiligo Group – 99 membersLatest Activity: yesterday – A place to meet other people living in Texas for support. A place to tell your story, learn from others and support one another. – Vitiligo Support Group for Washington State – 30 membersLatest Activity: Oct 3, 2012Vitiligo Support Group for Washington State. The focus for this group is on effective treatment methods/options. Success Stories Welcome! – Vitiligo in Pennsylvania – 48 membersLatest Activity: Oct 26, 2012When u think there is no one in your area to talk to with the same problems,thoughts or questions... – London Vitiligo Support Group – 117 membersLatest Activity: Feb 6Support group for people living in Southeast UK.
  11. 11. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients– Southwestern Ohio Vitiligo Friends– 41 membersLatest Activity: Sep 1, 2012This is a group for people in the southwestern Ohio area (Dayton, Cincinnati, Hamilton, etc.) who have vitiligo or a friend/family member with the…– National Vitiligo Foundation Friends– 63 membersLatest Activity: Dec 24, 2012For people with an interest in sharing their skills, time, and passion to help the NVF achieve its goals.– Vitiligo Awareness– 206 membersLatest Activity: Jan 29Working to promote broader awareness of Vitiligo– Parents Corner– 131 membersLatest Activity: Feb 2Discussion group for parents of children with Vitiligo
  12. 12. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• International Groups (90)• African Americans with Vitiligo• 152 membersLatest Activity: Oct 26, 2012• African Americans with Vitiligo is dedicated to embracing and encouraging everyone suffering with Vitiligo.• UNIVERSAL VITILIGO NETWORK• 39 membersLatest Activity: Jan 14GO TO http://universalvitiligo.ning.com/• M.A.D. (Multiple Autoimmune Diseases)• 19 membersLatest Activity: Jan 21This is a group for those with multiple autoimmune diseases. Find people who deal with the same conditions, share treatments and support. Welcome.• Georgia support group• 15 membersLatest Activity: Sep 25, 2012• Canadian Vitiligo Friends• 9 membersLatest Activity: Jul 10, 2012• Support group for people living in Canada and locally in Waterloo region, Ontario. A place to tell your story, discuss effective treatment…
  13. 13. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• Delaware Vitiligo Support & Awareness• 23 membersLatest Activity: Feb 13Dover, Delaware Meetings, Workshops, Educate the communities, give support to others with Vitiligo.• Vitiligo...and then some!• 33 membersLatest Activity: May 21, 2011I know this site is for people w/ Vitiligo, but I made this group so everyone can learn more about each other beyond the Vitiligo as well. Feel free…• New York/Jersey Vitiligo• 71 membersLatest Activity: Dec 19, 2012New York/Jersey Vitiligo Group• Vitiligo in Louisiana• 9 membersLatest Activity: Jan 22For those of us in the Cajun/Creole state living with vitiligo!• California Support Group• 110 membersLatest Activity: Feb 2Trying to get everyone with vitiligo a little closer to each other... for that special shoulder to lean on =)• Texas Vitiligo Group• 99 membersLatest Activity: yesterday• A place to meet other people living in Texas for support. A place to tell your story, learn from others and support one another.• segmental,nonsegmental vitiligo (now &then)• 9 membersLatest Activity: Jan 3• disscussion regarding the topic only!
  14. 14. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• Vitiligo Friends Group of Bangladesh• 13 membersLatest Activity: Oct 4, 2012• LGBTQ - Vitiligo Support• 8 membersLatest Activity: Jan 10• This group was created as a safe place for all LGBTQ and our straight allies to come together and support those of us who have - or love someone…• Support Georgia• 2 membersLatest Activity: Sep 24, 2012• Helping each other with Vitiligo in the state of Georgia. Were all different, but yet were all the same.• south indian vitiligo friends• 7 membersLatest Activity: Dec 18, 2012• JustFlawed• 11 membersLatest Activity: Nov 10, 2012• Perfectly Flawed is a network for persons dealing with Vitiligo. We are dedicated to focusing on issues surrounding the disease. The goal is to…• SA• 3 membersLatest Activity: Aug 30, 2012
  15. 15. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsQoL Issues Physical Disfigurement can cause: – Discrimination – Poor treatment by: peers, teachers, friends, strangers, employers – Stares & rude comments – Strained social & sexual relationships – Low self-esteem – Feelings of inferiority – Stigmatization – Human Rights Violations
  16. 16. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsData Samples Specification: – Gender – Age Range – Disease Duration 1) Gender: (1250) – Male-------716 – Female----534 2) Age Range: – Minimum age 18 year – Maximum Age 60 year 3) Disease Duration: – Minimum Disease Duration 1 month – Maximum Disease duration-----36 months
  17. 17. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsUse of Dermatology Life Quality Index ( DLQI) – A copy of Dermatology Life Quality Index ( DLQI) given to each participants in the research. – All participants were given in depth understanding of DLQI. – Question in DLQI were asked on one to one bases by myself. – The data collection processes divided in 4 days were the organization was having their pre schedule medical camp.
  18. 18. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsDLQI Questions Categories No Question No Related Categories for questions 1 1 and 2 Symptoms and feelings Questions 2 3 and 4 Daily activities Questions 3 5 and 6 Leisure Questions 4 7 Work and School Question 5 8 and 9 Personal relationship Questions 6 10 Treatment Question
  19. 19. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsDLQI Answers Options and Associated Score No Scoring Criteria Score/Point 1 Very much 3 2 A lot 2 3 A little 1 4 Not at all 0 5 Not relevant 0 6 Question unanswered 0
  20. 20. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsMeaning of DLQI Scores Point No Meaning of Score 0-1 1 no effect at all on patients life 2-5 2 small effect on patients life 6-10 3 moderate effect on patients life 11-20 4 very large effect on patients life 21-30 5 extremely large effect on patients life
  21. 21. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsInclusion criteria: – Patients from following states and Union Teritories of India were part of respondent patients list. Daman and Diu, Delhi, Gujarat, Madhya Pradesh, Maharashtra, Rajasthan. – Adult patients above age of 18 years of either gender. – Patients with depigmentation due to vitiligo.
  22. 22. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsExclusion criteria: – Foreign (= not Indian) patients. – Children (<18). – Patients with depigmentation caused by chemicals, burns or other diseases. – Question Number 9 of DLQI was not asked as per the request from the organization.
  23. 23. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsData Analyses : 1. Gender wise analysis of Participants 2. Age Group and Gender wise Analyses of Data 3. Disease Duration and Male & Female Patients 4. Age and Disease Duration 5. Age, Gender and Disease Duration 6. Dermatology Life Quality Index (DLQI) Score and Male Vitiligo Patients only 7. Dermatology Life Quality Index (DLQI) Score and Female Vitiligo Patients only 8. Dermatology Life Quality Index (DLQI) Score for Male and Female Vitiligo Patients 9. Disease Duration and Dermatology Life Quality Index (DLQI) Score 10. Dermatology Life Quality Index (DLQI) Score and All Vitiligo Patients/ Respondents
  24. 24. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsFindings:1) Overall Findings:2) With Effects on Patients Life:3) With Disease Duration:4)With Male and Female:
  25. 25. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients1) Overall Findings: – Disease Duration and Effect on patients life is directly associated. – Effect is extremely large during first six month; it means society is not accepting people with vitiligo. – Even upto 12 month, the acceptance is not that much that’s why around 45% peoples response is that their life is very large to extremely large effect on their life. – 18% of respondents said that Vitiligo is having extremely large effect on their life. – 27% of respondents said that Vitiligo is having very large effect on their life. – 31% of respondents said that VItiligo is having moderate effect on their life. – 23% of respondents said that vitiligo is having small effect on their life. – Only 1% respondent said that Vitiligo is not having any effect on their life. – If we add 18% and 27% means 45% of respondent said that Vitiligo is having very large to extremely large effect on their life.
  26. 26. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients2) With Effects on Patients Life: – Extremely Large Effect on Patients Life----18% respondents said this. – Very Large Effect on Patients Life----------27% respondents said this – Moderate Effect on Patients Life----------31% respondents said this – Small Effect on Patients Life---------------23% respondents said this – No Effect on Patients Life------------1% respondent said this
  27. 27. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients3) With Disease Duration:• 1-6 month Disease Duraiton analyses – 77% respondent that is 193 vitiligo patients out of 250 respondent belong to 1-6 month disease duration gave 21-30 DLQI Score which means vitiligo is having extremely large effect on their life. – Remaining 23% that is 57 vitiligo patients out of 250 respondents belong to 1-6 month disease duration gave 11-20 DLQI Score which means vitiligo is having very large effect on patient’s life. – None of the respondent out of 250 respondents belongs to 1-6 month disease duration score between 6-10 DLQI Score. – None of the respondent out of 250 respondents belongs to 1-6 month disease duration score between 2-5 DLQI Score. – None of the respondent out of 250 respondents belongs to 1-6 month disease duration score between 0-1 DLQI Score.•
  28. 28. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• 7-12 months Disease Duration Analyses – 74% respondent that is 184 vitiligo patients out of 250 respondents belong to 7-12 month disease duration gave 11-20 DLQI score which means vitilgo is having very large effect on their life. – 16% respondent that is 40 vitiligo patients out of 250 respondent belong to 7-12 month disease duration gave 21-30 DLQI Score which means vitiligo is having extremely large effect on their life. – 10% respondent that is 26 vitiligo patients out of 250 respondent belong to 7-12 month disease duration gave 6-10 DLQI Score which means vitiligo is having moderate effect on their life. – None of the respondent out of 250 respondents belongs to 7-12 month disease duration score between 2-5 DLQI Score. – None of the respondent out of 250 respondents belongs to 7-12 month disease duration score between 0-1 DLQI Score.•
  29. 29. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• 13-18 months Disease Duration Analyses – 62% respondent that is 154 vitiligo patients out of 250 respondents belong to13-18 month disease duration gave 6-10 DLQI score which means vitilgo is having moderate effect on their life. – 31% respondent that is 78 vitiligo patients out of 250 respondents belong to 13-18 month disease duration gave 11-20 DLQI score which means vitilgo is having very large effect on their life. – 7% respondent that is 18 vitiligo patients out of 250 respondents belong to 13-18 month disease duration gave 2-5 DLQI Score which means vitiligo is having small effect on their life. – None of the respondent out of 250 respondents belongs to 13-18 month disease duration score between 21-30 DLQI Score. – None of the respondent out of 250 respondents belongs to 13-18 month disease duration score between 0-1 DLQI Score.
  30. 30. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• 19-24 months Disease Duration Analyses – 63% respondent that is 158 vitiligo patients out of 250 respondents belong to19-24 month disease duration gave 6-10 DLQI score which means vitilgo is having moderate effect on their life. – 30% respondent that is 76 vitiligo patients out of 250 respondents belong to 19-24 month disease duration gave 2-5 DLQI score which means vitilgo is having small effect on their life. – 6% respondent that is 16 vitiligo patients out of 250 respondents belong to 19-24 month disease duration gave 11-20 DLQI Score which means vitiligo is having very large effect on their life. – None of the respondent out of 250 respondents belongs to 19-24 month disease duration score between 21-30 DLQI Score. – None of the respondent out of 250 respondents belongs to 19-24 month disease duration score between 0-1 DLQI Score.•
  31. 31. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• 25-36 months Disease Duration Analyses – 75% respondent that is 188 vitiligo patients out of 250 respondents belong to25-36 month disease duration gave 2-5 DLQI score which means vitilgo is having small effect on their life. – 19% respondent that is 47 vitiligo patients out of 250 respondents belong to 25-36 month disease duration gave 6-10 DLQI score which means vitilgo is having moderate effect on their life. – 6% respondent that is 15 vitiligo patients out of 250 respondents belong to 25-36 month disease duration gave 0-1 DLQI Score which means vitiligo is having no effect at all on their life. – None of the respondent out of 250 respondents belongs to 25-36 month disease duration score between 11-20 DLQI Score. – None of the respondent out of 250 respondents belongs to 19-24 month disease duration score between 21-30 DLQI Score.
  32. 32. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients4)With Male and Female:• 20% male that is 145 male vitiligo patients gave 21-30 DLQI Score means vitiligo is having extremely large effect on their life.• 17% female that is 88 female vitiligo patients gave 21-30 DLQI Score means vitiligo is having extremely large effect on their life.• 27% male that is 190 male vitiligo patients gave 11-20 DLQI Score means vitiligo is having very large effect on their life.• 27% female that is 145 female vitiligo patients gave 11-20 DLQI Score means vitiligo is having very large effect on their life.• 29% male that is 209 male vitligo patients gave 6-10 DLQI Score means vitiligo is having moderate effect on their life.• 33% female that is 176 female vitligo patients gave 6-10 DLQI Score means vitiligo is having moderate effect on their life.
  33. 33. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients• 23% male that is 164 male vitiligo patients gave 2-5 DLQI Score means vitiligo is having small effect on their life.• 22% female that is 118 female vitiligo patients gave 2-5 DLQI Score means vitiligo is having small effect on their life.• Only 1% male that is 8 male vitiligo patients gave 0-1 DLQI Score means vitiligo is having no effect on their life.• Only 1% female that 7 female vitiligo patients gave 0-1 DLQI Score means vitiligo is having no effect on their life.• If we add 27% that is 190 male who gave 11-20 and 20% that is 143 male who gave 21-30, than we can say 47% male that is 333 male vitiligo patients out of 716 gave more than 11 DLQI Score it means 47% or 333 male vitiligo patient out of 716 said that, vitiligo is having large effect on their life.• If we add 27% that is 145 female who gave 11-20 and 17% that is 88 female who gave 21-30, than we can say 44% female that is 233 female vitiligo patients out of 534 gave more than 11 DLQI Score it means ,44% or 233 female vitiligo patients out of 534 said that, vitiligo is having large effect on their life.
  34. 34. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsConsequences: Vitiligo is thus an important skin disease having major impact on the quality of life of patients suffering from vitiligo. Appearance of skin can condition an individual self- image, and any pathological alteration can have psychological consequences. We can divide the consequences or problems faced by vitiligo patients in the following major categories. – Psychological consequences – Financial loss – A child vitiligo patient – family and interpersonal relations of patient
  35. 35. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsPsychological consequences : – Vitiligo Patients feel distressed and stigmatized by their condition. – They attract undue attention from the general public sometimes whispered comments, antagonism and ostrisisam. – The self image of the vitiligo patients drops considerably and may lead to depression. – These patients often develop negative feeling about it, which are reinforced by their experiences over a number of years. – Most patients of vitiligo report feelings of embarrassment, which can lead to a low self- esteem and social isolation. – Vitiligo lesions over face may be particularly embarrassing and the frustration of resistant lesions over exposed part of hands and feet can lead to anger and disillusionment. – Particularly in teenagers, mood disturbances including irritability and depression are common. – Patients with vitiligo are very sensitive to the way other perceives them and they will often withdraw, because they anticipate being rejected. – Sometimes, strangers and even close friends can make extremely hurtful and humiliating comments. 
  36. 36. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsFinancial loss to a vitiligo patients: – Patients with vitiligo often suffer financial loss because they often have to take time off work to attend hospital appointments and treatment is ongoing in many cases. – Vitiligo lesions over exposed sites can adversely affect a persons chances of getting a job at interview and so restrict career choices. – Sometime Vitiligo Patients use expensive cream, matterial to hide their patches
  37. 37. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsFamily  and  Interpersonal  Relations: – Vitiligo can also result in problems in interpersonal relations particularly as a result of depression and frustration. – Patients often feel that their family members are not supportive or lack understanding. – The chronic nature of disease, long term treatment, lack of uniform effective therapy and unpredictable course of disease is usually very demoralizing for patients suffering from vitiligo. Compliance for regular long term visits; side effects of immunosuppressive therapies, long term risk of photoaging and carcinogenesis with phototherapy are other limitations for vitiligo patients.
  38. 38. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsA Child Vitiligo Patient: – Vitiligo beginning in childhood can be associated with significant psychological trauma that may have long lasting effects on the personal self-esteem of these children. – Children with vitiligo usually avoid sport or restrict such activities. – Children often lose vital days from school. – Parents of children with vitiligo may have to take time off their work to regularly accompany them for hospital appointments. – Children with vitiligo deal with the disease well or be devastated by it, often depending on the attitude of their parents, siblings, relatives, teachers, friends, baby sitters etc.
  39. 39. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsConclusions: With the help of this research and its finding I recommend following – India is going towards 21st century but with the findings we can say that Vitiligo is having a very large to extra large effect on patients life. It means society still not accepting vitiligo patients or people with such cosmetic problems. – When disease is new, there are more problems face by vitiligo patients. – Disease Duration is directly associated with the impact on patients life it – New vitiligo disease extremely large effect on patients life. – More old vitiligo disease less impact on patients life.•
  40. 40. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo PatientsRecommendations:• The findings of this study present a unique in-depth analysis of  people living with vitiligo and suggest there is a need for  further research to explore cultural associations of  disfigurement and of adjustment to chronic skin conditions.  Furthermore, i suggest that in addition to individual  therapeutic interventions there may be a need for community  interventions aimed at dispelling myths and raising awareness  of sources of support and treatment.• It is also recommended that vitiligo  patients require  psychological treatment and counseling with the qualified  counselor.  In the first six month of the vitiligo disease patients  require psychological treatment other than medical  treatment. 
  41. 41. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients
  42. 42. Impact of Vitiligo on The Quality of Life (QoL) of Vitiligo Patients Thank You

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