www.scottishneurological.org.uk

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www.scottishneurological.org.uk

  1. 1. Neurological Health Service Standards The Voluntary Sector Perspective Icing on the Cake or Essential Ingredient?” Andy Wynd Chairman Neurological Alliance www.scottishneurological.org.uk of Scotland Scottish Charity Number SC O35198
  2. 2. “Providing a powerful voice to express the shared interests of people affected by neurological conditions in Scotland” www.scottishneurological.org.uk Scottish Charity Number SC O35198
  3. 3. There are an estimated one million people in Scotland living with a neurological condition that has a significant impact on their lives. The Neurological Alliance of Scotland is a forum of organisations and groups representing people affected by neurological conditions in Scotland.
  4. 4. Key Objectives Improvements in care Raising Awareness Influencing Policy
  5. 5. Why National Standards? – The quickest and most effective means of improving the quality of life for those affected by neurological conditions throughout Scotland
  6. 6. Our involvement in the process 2006 Neurological health services pre scoping report 2007 Services Review 2008 Draft Standards 2009 Clinical Standards published
  7. 7. Keeping the Patient at the Centre Not letting the data drown out the dream Focussing on real people and their journeys Asking patients for views and feedback Focus groups consultation, advocacy group meetings Membership of the Project Group and condition specific services groups
  8. 8. What difference should the standards make? Improvement in the patient experience A focus on the issues which matter most to patients
  9. 9. Some Examples ◦ Access to all aspects of neurological care irrespective of location ◦ Access to accurate and up to date information ◦ Patients with chronic conditions have a contact point for re entry to the service ◦ Patient feedback on an ongoing basis (and acting on this feedback) ◦ Designated private facilities in wards for discussions between staff patients and carers
  10. 10. Key successes Involvement from the start – Keeping the patient’s needs at the Centre Experiencing the growth and development of the standards from everyone’s perspective Working together to set a baseline and to develop realistic aspirations to improve services to make a real difference
  11. 11. Continuing challenges Creative ways of engagement and participation Making our systems, structures and processes work for patients Have we got the ingredients right?
  12. 12. Reflections on the future National Vision – Local Ownership Implementation – Shared values
  13. 13. Neurological Health Service Standards The Voluntary Sector Perspective Icing on the Cake or Essential Ingredient?” Andy Wynd Chairman Neurological Alliance www.scottishneurological.org.uk of Scotland Scottish Charity Number SC O35198

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