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Dementia Awareness Initiatives 280514

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Raising Awareness of Dementia, prepared by the Thames Valley Knowledge Team. This document will be of interest to those wishing the raise the awareness of dementia amongst non-specialist health and …

Raising Awareness of Dementia, prepared by the Thames Valley Knowledge Team. This document will be of interest to those wishing the raise the awareness of dementia amongst non-specialist health and social care staff. The document describes projects taking place across the South of England and provides links to existing on-line resources that may be of use.

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  • 1. 1 Raising Awareness of Dementia For Health and Social Care Staff May 2014
  • 2. 2 Introduction. Raising the awareness of and knowledge and expertise relating to dementia amongst non-specialist health and social care staff is both a national and local priority. This document has been prepared by the Thames Valley Knowledge Team. Its purpose is to support this agenda by sharing information about initiatives that focus on increasing dementia awareness amongst professional health and social care staff (both private and public sectors) and by drawing attention to existing on-line resources that might be utilised locally There are two distinct sections: Section 1 (pages 3-15) Summaries of some projects taking place in the south of England where the focus has been on raising dementia awareness and expertise. Summaries are deliberately brief with just enough information for the reader to assess whether obtaining further information would be of value to them. Lead names are provided where possible so that, where a summary resonates with the reader, contact can be made and the possibility of sharing practice can then be explored. Section 2 (pages 16- 20) 1. A series of links to resources that can be accessed on line and available to both organisations and individuals that could enhance the knowledge and practice of those caring for people living with dementia. Using this document This document is intended to be read on-screen by a reader with internet access and as much as is possible is populated with hyper-links that allow the reader to click through to obtain more detailed information. (all links checked and live on the date of publication).
  • 3. 3 Section 1 South of England Projects that focus on delivering benefits through raising awareness of dementia and up-skilling non-specialist staff The project The aim of this project is to improve the quality and consistency of domiciliary care delivered to people affected by dementia. By ensuring that domiciliary staff are adequately trained in dementia better outcomes for people affected by dementia will be achieved. The focus will be on domiciliary care staff delivering care using a relationship and person centred approach. A project worker will link with domiciliary care agencies in the three local authorities to establish current training provision, identify training needs through a training needs analysis and to identify how these might be met. In addition they will arrange for dementia awareness workshops to be delivered to a number of agency staff (i.e. Managers and Senior Carers) who would then act as “champions” to raise awareness of dementia and of the benefit of training to other staff. Dementia champions within the domiciliary care agencies will help promote an agency led dementia training blueprint for moving forward and ultimately a blueprint of excellence that can be shared throughout the South of England. The training needs analysis will be aggregated and made known to the CCGs and Local Authorities as part of their responsibility for market development. Currently both Health and Social care offer low cost training around dementia but there is a variable take up within domiciliary care agencies. This aggregated analysis would both enable health and social care to tailor these courses based on local need and to more target those agencies who wish to become market leaders. Contacts for further information julie.eden@reading.gov.uk Alain.Wilkes@wokingham.gov.uk Training Domiciliary Care Workers – Berkshire West Confederation
  • 4. 4 The aim of this project is to establish a care home in-reach team which will work alongside providers to improve the quality of care delivered to people with dementia living in residential care homes and nursing homes across West Berkshire. The team will improve the health, well-being and independence of residents with dementia and provide professional guidance and motivation to care home staff. The team will comprise two experienced and credible nurses in each of the three local authority areas working in 3-4 homes per locality. There would be one RGN and one RMN in each locality. The team will provide proactive specialist assessments for each resident with dementia, reviewing their mental health and physical health needs and their care plans. Team members will spend a high proportion of their time in the homes working alongside staff, reviewing residents, modeling good practice, supporting staff dealing with difficult situations and introducing new tools to assist with the effective management of long term conditions. They will provide support to carers of the residents and involve residents and their relatives in anticipatory planning for end of life care. Formal training sessions may be delivered but it is envisaged that much of the learning will come about through observation and the adoption of new ways of working. Staff will be trained to recognize the early signs of deterioration and advised about measures that can prevent the further worsening of the condition. Psycho- social strategies for managing behaviours that are considered challenging would be introduced and modelled. Progress update In May the team started working with the first 6 homes spread across the West of Berkshire. In August they moved on to another 6 homes but will maintain contact with the first homes in order to continue to give support and training. The team has reviewed the mental and physical health of all the residents and given advice re: care and management of their needs. They have linked with family members to ensure they are involved with decisions especially where the resident is no longer able to make decisions for themselves. Working with the managers and care home staff, training needs have been identified and appropriate training delivered. The team has built strong links with partner agencies and colleagues who also work in the homes. This includes GPs, community geriatricians, district nurses, CPNs and local authority staff. Work around End of Life care plans was always part of the team’s objectives. They have now identified a need for advance care plans as well. It is hoped these will help reduce the number of unplanned admissions. Contact for further information Dr Helen Single, Head of Older Peoples commissioning support - helen.single@berkshire.nhs.uk Care Home In-reach Team – Berkshire West Confederation
  • 5. 5 Introduction The aim is to adopt the Gnosall primary care based memory assessment approach (see below) to improve dementia diagnosis in harder to reach, particularly rural, communities in Buckinghamshire. A new primary care based memory assessment function will focus on providing:  Improved access for hard to reach groups  Assessment closer to home within familiar surroundings  Rapid referral for specialist diagnosis and advice  Post diagnosis support  Training for GP practice teams on identifying dementia  Increased awareness of dementia within wider community health teams and care providers The Gnosall service The award winning Gnosall dementia service is a primary care based older people’s mental health service that is designed to improve access, to speed diagnosis and improve care for patients with dementia. Based in a rural, primary care setting, outreach consultant-led clinics provide rapid diagnosis and cost-effective medical care. Anticipated outcomes  Diagnostic rates to reach 70% of anticipated prevalence by 2015  Time between suspicion and diagnosis to be reduced to 6 weeks  A reduction in general hospital bed days for people with dementia (informed by Whole System Partnership modeling)  County wide uptake of the Bucks primary care dementia protocol  Reduced use of antipsychotic medication Contact for further information Ojalae Jenkins, Joint Commissioning Manager - ojenkins@buckscc.gov.uk Closer to Home Memory Assessment – Buckinghamshire
  • 6. 6  More opportunities for people with dementia to remain living in their own home for longer through greater community support This is a collaborative project between primary and secondary care which will establish the role of primary care in the diagnosis and management of dementia. The drivers of the project are:  The need to improve diagnostic rates: the Prime Minister’s Challenge on Dementia requires CCGs to have a quantified ambition for diagnosis rates  The current pathway relies entirely on diagnosis within secondary care setting. There is an ambition to bring diagnostic capability closer to the patient and into primary care  There is a need to increase capacity and reduce waiting times for first time assessments in some localities. The project involves a collaborative model which increases the skill of GPs in diagnosing cases of dementia, thereby creating extra capacity at primary care level. This will release the secondary care capacity for the more complex diagnoses and follow-up thereby maximising the benefit of this specialist service. A jointly agreed protocol will be developed between primary and secondary care outlining the criteria for :-  the diagnosis of appropriate cases in primary care  identifying cases appropriate for referral to secondary care. Because diagnosis should be a gateway to support services, it also requires the identification of equivalent support services in primary care to those available in secondary care memory clinics. Expected Outcomes  A primary and secondary care jointly agreed protocol (and algorithm) as above.  Increased rate of timely diagnosis and with corresponding support plans.  Those people deemed appropriate for primary care diagnosis will receive the same quality of diagnosis and follow up in their familiar primary care setting as they would in secondary care.  Increased dementia awareness and on-the-job-learning for GPs and their staff.  New capacity for dementia diagnosis in Primary Care.  Maximisation of secondary care capacity for cases of appropriate complexity or diagnostic uncertainty Contact for further Information Fenella.Trevillion@oxfordshireccg.nhs.uk Collaborative Primary and Secondary Care Management – Oxfordshire
  • 7. 7 The aim of this project is to accelerate the pace of improvement in the pathway of care for people with dementia and their carers living by providing a programme of training and education for health and social care staff. Project Objectives  Better awareness amongst paid staff/professionals.  Increased identification and early diagnosis of people with dementia facilitating appropriate support at the right times and in the right places.  Develop a competent and sustainable workforce across sectors so people with dementia can have person-centred and dignified care wherever they are being cared for.  Effective treatment that enables people with dementia to remain independent and in the community for as long as possible.  For carers to feel supported in providing care for as long as they choose.  People with dementia live independently for as long as possible.  Reduction in crisis admission, delayed transfer of care and care home placements.  Improved quality of care in care homes. Anticipated outcomes  A competent workforce across statutory, independent and voluntary sectors delivering sensitive, appropriate and personalized care to people living with dementia.  Improved quality of care measured through care standards. Improved patient satisfaction.  Carers of people with dementia report feeling equipped to care and are adequately supported.  Reduced care home admissions and lengths of stay  Reduced admissions to secondary care services.  Reduction in anti-psychotic prescribing. Contact for further Information Fenella.Trevillion@oxfordshireccg.nhs.uk Creating a Sustainable Workforce – Oxfordshire
  • 8. 8 The aim of this project is to achieve excellence in end of life care for people with dementia living in nursing homes. This will be facilitated by a Specialist Palliative Care Clinical Nurse Specialist (SPC CNS) educating and supporting care home staff. The SPC CNS will also work in a ‘hands on’ in nursing homes to model good practice and mentor staff. Nursing home staff will be offered the opportunity for ‘hands on’ experience within the hospice in patient unit. The project will focus on experiential learning across the two care settings and the mentorship of nursing home staff in palliative care, focusing on needs assessment, symptom management and quality end of life care; as well as specific skill development identified by the individual practitioner / nursing home and mutually agreed with the hospice. Anticipated outcomes  Improved advanced care planning for all patients with dementia with opportunities for open conversations which allow patients and carers to communicate their preferences and wishes.  Improved assessment and management of palliative care needs of all patients with advanced dementia in care homes.  Improved recognition of pain, through use of dementia specific pain tools  Better deaths as evidenced through use LCP tools and audit of outcomes.  Improved carer and relative experience of the end stages of the illness.  Positive anticipatory grief work for carers.  Reducing the risk of complex bereavement.  Improved confidence in palliative care delivery by nursing home staff. Progress update This project made a significant difference to the care homes involved. It encouraged behavioural change and improved personalised hospice standard of care for people with dementia. The nurses and carers have reported positively on their experience and enhanced practice. This project has confirmed the need for specialist palliative care support and practice development in nursing homes. Even within the limited time frame available, significant improvements in the quality of end of life care for residents and the knowledge and confidence of staff was achieved. Contact for further Information Dr Nicola Decker: nicoladecker@nhs.net Achieving excellence in end of life care for people with dementia in Care homes in North Hampshire
  • 9. 9 The aim of this project is to enhance the skills of health and social care staff in Hampshire so they are better equipped to support people with dementia and their carers to achieve their care preferences to the very end of their lives. The project will provide training through a voluntary sector provider for GPs, Primary Health and Acute Hospital Staff and Care Home Staff . This will enable them to better identify care needs, initiate discussions, undertake advance care planning and share information amongst relevant teams so that people affected by dementia are cared for in their place of choice with the interventions they choose. The project will support the improvement of dementia care and ensure both patient and carer access to appropriate services. Deliverables The project will address the current inequality in service provision for people with dementia and will:  Adopt and adapt the National Council for Palliative Care (NCPC) evaluated model of GP training to be dementia specific  Include people with personal experience of dementia in the training sessions to motivate and educate staff The training will:  build on current communication skills training for health and social care staff and will be developed jointly with the End of Life Care Programme and North Hampshire End of Life Care Strategy Group ensuring an integrated approach building on, rather than replicating current achievements  Communicate the learning at all levels including feeding into national working groups as well as local networks  Ensure a good cross section of staff including 1 GP from each of the 22 GP practices (aimed at those who liaise with care homes as a priority), care home managers and clinical staff from acute elderly care and community services + a range of staff delivering care on the ground  Achieve and evaluate sustained behaviour change  Act as an evaluated model of good practice to be replicated in other CCG areas Progress update The scheme has involved the implementation of a variety of training methods to develop dementia specific communication skills and embed core principles of good end of life care. This has included working with the National Council of Palliative Care with workshops based in GP surgeries. This has enabled GPs a chance to discuss and work through many of the challenges and obstacles in delivering excellent care for Dementia patients. Contact for further Information Dr Nicola Decker: nicoladecker@nhs.net Dementia: From difficult conversations to better outcomes - North Hampshire
  • 10. 10 The project is using an evidence based methodology to improve the knowledge, attitude and competencies of front line health staff in the care of people with dementia. The project which aims to reach 20,000 front line staff working within the NHS and independent healthcare organisations across Southampton, Hampshire, Isle of Wight and Portsmouth (SHIP) will bring together commissioners/Clinical Commissioning Groups, providers, Skills for Health, Wessex Academic Health Science Network and the emerging Local Education and Training Board with the common aim of equipping and building confidence in the key workforce who care for people with dementia in a variety of health settings. The project builds on innovations developed and adopted in the Oxfordshire health community which has been working with Skills for Health by using national competency frameworks to address practice in the care of people with dementia. Also, work developed by the University of Worcester to develop Dementia Leadership Champions. By drawing on the learning from these areas we will be able to rapidly introduce our project, knowing that the approach has been tested elsewhere and thus the benefits to people living with dementia and their carers can be achieved more quickly. The project addresses the priority identified in the Dementia Challenge for driving improvements in health and care. In particular, the knowledge that will be built in front line staff should lead to earlier identification of symptoms and diagnosis. The training programme for front line staff will build on direct feedback from the Andover MIND Dementia Group on the issues people living with dementia and their carers face when admitted to hospital or other care settings. The project will improve care in hospitals and maximize the benefits for use of financial rewards to hospitals through CQUIN. The innovative approach to developing Dementia Leadership Champions will facilitate improvement in standards in care homes through the partnership with the NHS. Contact for further Information Dr Edward Wernick, GP, Dementia Lead, NHS North East Hampshire and Farnham CCG - e.wernick@nhs.net At scale adoption of skills in dementia care across Southampton, Hampshire, Isle of Wight and Portsmouth
  • 11. 11 This project will provide the capacity and expertise to maximise the effectiveness and extend the impact of the multi-disciplinary Community Care Teams in Fareham and Gosport. Older people often have inter-related complex difficulties requiring support and interventions for physical and mental health, and social care needs. The aim of the Integrated Community Care Team is to address this wide-ranging need. This project will ensure that mental health is fundamental to the delivery of integrated care in South Eastern Hampshire and to enable the coherent ‘joining-up’ of services to deliver comprehensive care. Deliverables The project will deliver:  Training and awareness raising about dementia skills for generic staff  Early detection and diagnosis in the community, linking with memory services and the new Dementia Advisor service (starting in October 2012);  Reducti0on in inappropriate use of antipsychotic medication  Enhanced end of life care, recognising the particular needs of people with dementia  Support for carers.  Services that are designed and delivered around individual needs;  Increased personal choice and control  Care and support that is delivered with dignity and respect.  support with advanced care planning and care towards the end of life for both the person with dementia and their carers; and  speedy and timely access to specialist mental health care and support.  Staff in the Community Care Teams and other related services, for example the voluntary agencies providing meals on wheels, will gain core skills in dementia care. Contact for further Information Victoria McDonald, NHS South East Hampshire CCG - victoria.mcdonald-woods@hampshire.nhs.uk Holistic care for people with dementia in Fareham and Gosport
  • 12. 12 This project will use enhanced training professional support for care home, community and primary care staff as a vehicle for ensuring that people living with dementia in Kent and Medway can remain in their usual place of residence, avoid unnecessary admission to hospital and not receive unnecessary anti-psychotic drugs. Deliverables  Training to care homes across Kent and Medway  Newcastle Model training recruit a band 7 registered metal health nurse to provide training to the Community Mental Health Teams .  Training to intermediate care teams recruit 3 clinical practitioners who will be embedded in intermediate care services to increase the competence of intermediate care/rapid response teams to support people at home, preventing crisis (including support for the carer)  Geriatrician outreach support will be targeted to those care homes or areas with the highest level of need. The role will include medication reviews and provision of urgent geriatric assessments. End of life issues will also be addressed as these areas are very often neglected in people with dementia, in particular advanced care plans, anticipatory care plans and palliative care. There will also be an opportunity to provide training to care home staff. Anticipated outcomes  People with dementia living in care homes will be treated with dignity and respect.  There will be reduction in anxiety for people with dementia and a reduction in the prescription of antipsychotic drugs.  Residential care home and community staff have the skills and values to work with people with dementia. They understand dementia; what can help alleviate distress; how to manage different behaviours and prevent crisis.  Staff know how to get expert advice, and are able to access help and advice when they need it.  Independence will be maintained for longer.  Leadership will be improved in care homes.  Staff will have greater job satisfaction. Contact for further Information Sue Gratton, Deputy Associate Director, Integrated Commissioning, NHS Kent and Medway - sue.gratton@eastcoastkent.nhs.uk Improving community care and reducing anti-psychotic prescribing in Kent and Medway
  • 13. 13 This project aims to increase awareness as well as improving the implementation of the Gold Standards Framework for Care Homes (GSFCH) in care homes where patients with dementia reside. Implementation of the GSFCH will support:  Reduction in repeated and inappropriate hospital admission at the end of life  Provide good quality end of life care, which puts the patient and their family and carer first.  Good patient outcomes in line with their needs and preferences about end of life care and choices around treatment and preferred place of death  Families and carers of patients with dementia when making difficult decisions about end of life care when under pressure, because these discussions will already have taken place with the patient at an earlier time and will be recorded and referred to when necessary Deliverables Development of a training package, delivered by a fully qualified and competent EOLC Dementia Facilitator. The guidance and resource pack will include a DVD, and an online After Death Analysis (ADA) audit tool. The process will begin with 4 interactive workshops, using a variety of teaching methods to implement the key GSF standards into practice, monitored and supported by the GSFCH national team. Subsequently, after 6 to 12 months care homes can register for GSFCH accreditation on the production of a portfolio. A facilitator will be key in providing support to the individual care homes to enable them to implement the GSFCH and assemble the required evidence of the development necessary to pass the accreditation inspection which will be conducted by the national GSFCH team. Anticipated outcomes Increased patient choice. Reduction in inappropriate admissions to hospital. Improved care planning, with better attention to, and anticipation of, end of life care needs and a structured system for offering bereavement support Increase in number of deaths in care homes as opposed to in the acute hospital setting. Contact for further Information Jane Berg, Project Lead and Head of Education, Princess Alice Hospice - janeberg@PAH.org.uk Improving end of life care for people living with dementia in Surrey Downs
  • 14. 14 This project will to provide a new pathway of care for people with dementia admitted to the Royal United Hospital Bath, which puts carers and patients in the ‘driving seat’, improving discharge and reducing unnecessary admissions in future. We have already introduced an innovative charter mark for our wards, and the National Dementia “CQUIN” 2012 aims to improve the identification of patients with dementia in hospital, to ensure that they are assessed and referred on. Our aim is to take these initiatives much further by ensuring it is embedded in a whole system pathway that incorporates innovations that have been shown to be effective. The project will redesign, implement and evaluate an innovative pathway of care based on best practice for patients admitted to (and discharged from) hospital with possible/definite dementia. There will be 5 elements: 1. The right staff and skills 7 days per week: including a coordinator, a mental health liaison service and rapid assessment teams 2. Clear monitored timeframes for assessment and intervention; i.e. day 1, day 2 etc 3. Best information and signposting for carers in hospital and then at home 4. Optimal therapeutic environment across our wards using e.g. care bundles (standardised optimal care) and technological solutions 5. Follow up pathways which are timely, robust, support carers and avoid readmission Objectives  To make sure there is a service every day of the year that gives the right care at the right time:  To agree detailed care plans with carers within 24 hours of admission  To make sure every ward provides excellent care using a “care bundle” to provide a safe environment, whichever ward the person goes to  To use new technologies that will help patients on wards and after discharge: such as “telecare”  To make sure the plan for discharge is clear and care in the community is there when it is needed Anticipated outcomes We will reduce unnecessary time in hospital, freeing up 8000 bed days per year We will involve carers every step of the way Carers will be reassured that the hospital is listening to their views By planning the discharge better, and by getting better support at home, there will be 50% fewer people readmitted to hospital Contact for further Information Dr Christopher Dyer, Consultant Geriatrician and Clinical Lead OPU, Royal United Hospital Bath NHS Trust - chris.dyer1@nhs.net Integrating hospital and community care pathways in Bath
  • 15. 15 This project will utilise a team of Dementia Learning Facilitators hosted by Devon Partnership NHS Trust to work with care homes to identify, train and support a care worker to be a Dementia Champion in their work place. They will be networked with other care home Dementia Champions to share learning with facilitated monthly meetings/teleconferences. There will also be a monthly team award and newsletter highlighting successful practice and an annual conference showcasing successful improvements made in the quality of care for people with dementia in local care homes participating in the scheme. The training and facilitation would be free for care homes. Over 6 weeks the Learning Facilitators will work alongside the Dementia Champions in a consultative way to help them develop leadership skills, develop clarity of staff roles and align their attitudes, behaviours and skills to best practice, improve person centred care and care planning and improve environments (all factors identified as key to the quality of care in research conducted by the SW Dementia Partnership in 2009, and in key research). The Learning Facilitator will use an educational programme, simple audit, change management theory and improvement and spread methodology to introduce, embed and sustain positive changes in dementia care and support the Dementia Champions throughout the project. The facilitated network meetings will help to sustain improvements and support the work of the Dementia Champions. Objectives and planned outcomes  To establish a cost effective and sustainable solution to improve the quality of life for people with dementia living in the large numbers of care homes in South Devon and Torbay  To improve the job satisfaction, confidence and knowledge of care home staff working with people with dementia and hence staff retention  To reduce antipsychotic prescribing for people with dementia living in care homes – National target  To reduce acute hospital admission for people with dementia living in care homes  Improved quality of life for people with dementia living in care homes – use dementia care mapping  Improved carer/family feedback – carer satisfaction questionnaire, semi-structured interviews/focus group  Improved satisfaction, confidence and knowledge of care home staff working with people with dementia  Reduced safeguarding incidents and falls  Reduced antipsychotic prescribing for people with dementia living in care homes  To reduce hospital admission rates for people with dementia living in care homes -  Reduction in referrals to Older People Mental Health Team from care homes Contact for further Information David Somerfield, Consultant Psychiatrist, Medical Director, Devon Partnership NHS Trust - d.somerfield@nhs.net The Torbay and South Devon dementia care home learning community
  • 16. 16 Section 2 On-line resources for raising dementia awareness Alzheimer’s Society Alzheimer's Society: Multimedia People with dementia, their partners, families and carers share stories about what it's like to live with dementia. Alzheimer's Society: Training courses The Alzheimer's Society has developed a training pathway which offers those working with people with dementia the opportunity to access training and education. Modules on the pathway range from basic dementia awareness through to higher lever study Brain Tour The Alzheimer’s Society UK has produced a series of nine videos, called the ‘dementia brain tour’. These give an accessible overview of how the brain works and the way it is affected by various types of dementia, including Alzheimer's disease, Poste-rior Cortical Atrophy, Vascular Dementia, Dementia with Lewy bodies and Fronto-Temporal Dementia. NHS England e-LfH: e-Dementia eLfH is a Department of Health Programme which provides free-of-charge training materials for the NHS workforce across the UK. This is an interactive e-learning resource to support the training of all health and social care staff in recognising, assessing and managing dementia, and in providing high-quality dementia care. It consists of ten sessions covering a wide range of issues relevant to dementia. To access the resource in full you will need to register with an NHS or equivalent email address. Health Education England: e-Learning for Healthcare – Dementia An online training resource aimed at ensuring all staff in the NHS and in social care can be dementia-aware. The e-learning sessions in dementia have been developed by e-Learning for Healthcare, part of Health Education England (HEE)
  • 17. 17 NHS Scotland NHS Education for Scotland NHS Education for Scotland (NES) has worked with Scotland Social Services Council (SSSC), Alzheimer's Scotland and the academic sector to produce material to support professional development of staff engaged in dementia care: Educational resources and guidance on mental health and learning disability: Dementia. NHS Education for Scotland (NES) and the Scottish Social Services Council (SSSC) (2012) Promoting excellence: Informed about dementia This DVD has been produced as an educational resource for the entire health and social services workforce in Scotland to support the implementation of the National Dementia Strategy. It demonstrates that staff are likely to interact with people with dementia in a wide variety of settings and are encouraged to recognise the rights and abilities of people with dementia. There are also "some simple steps they can take to apply this learning in a way that can make a huge difference in improving the experience of people with dementia and their families, friends and carers in health and social services". The DVD is in six chapters. NHS Education for Scotland (2012) Dementia skilled - improving practice This is a comprehensive learning resource which has been designed to be of use to a wide range of individuals and organisations. The learning resource has five modules: Understanding dementia; Promoting person and family centred care and community connections; Promoting health and well being; Meeting the needs of the person with dementia who is distressed and Supporting and protecting peoples rights. NHS Education for Scotland (2011): Acute care dementia learning resource An interactive on-line educational resource for staff working in the acute care environment to help identify and care for patients suffering with dementia. The resource is in five sections: coming into the ward; recognising and assessing care needs; the care experience; meeting the needs of the person who is distressed; and leaving the ward - transition. NHS Education for Scotland (2011) Dementia care in the emergency department An interactive on-line educational resource aimed at those working in the emergency department to recognise and provide appropriate care to meet the needs of those with dementia. The resource consists of four sections: initial contact; assessment; intervention; and resolution. Scottish Government (2011) Promoting excellence: a framework for all health and social services staff working with people with dementia, their families and carers This framework, developed by NHS Education for Scotland (NES) and the Scottish Social Services Council (SSSC), supplements existing frameworks and applies to all health and social services staff who have contact with, and provide support, care, treatment and services for people who have dementia, and their families and carers. It can be used as a learning tool and to identify individual skills and gaps in knowledge and as an organisational tool to ensure staff have the skills to meet the needs of people with dementia, their families and carers.
  • 18. 18 Skills for Care The publications offer a comprehensive framework for the social care workforce to provide consistent high quality social care and support which promotes the mental health and well-being of people who need care and support. The guide to good practice follows in the best traditions of work from the Foundation in providing practical support and solutions and is based on real life examples that have been developed by getting the views and experiences of people with care and support needs, carers, and people working in social care. The publications can be downloaded here: Common Core principles to support good mental health and wellbeing in adult social care & Principles to practice - implementing the common core principles Social Care Institute for Excellence Social Care Institute for Excellence: Dementia Gateway This gateway is aimed at health and social care practitioners who work with people with dementia in nursing, residential or domiciliary settings. It is organised into different sections which bring together written information, films, activities and e-learning. New sections are added on regular basis. SCIE E-learning (2011) Mental Capacity Act These e-learning resources bring together audio, video and interactive technology to explore many areas of the Mental Capacity Act such as assessing a person’s capacity to make their own day-to-day and more complex decisions and when best interests decisions need to be made. SCIE Social Care TV Social Care TV has a series of short films which can be used for awareness raising or as part of training modules. They use real situations to illustrate case studies. University Based Resources Bradford Dementia Group at the University of Bradford This multi-disciplinary and multi-professional group is committed to making a difference to policy and practice in dementia care, through excellence in research, education and training. Training is delivered through a variety of formats, including face-face short courses and a flexible range of accredited programmes delivered by distance learning. The Bradford Dementia Group has been sponsored by Yorkshire and Humber Strategic Health Authority to undertake development and evaluation of a sustainable model of workforce development for acute hospitals. The work focuses on the development of dementia champions who facilitate training at foundation level for all staff, and intermediate level for clinical staff. Materials have been developed that reflect the needs of staff working within an acute hospital setting and which focus on a person-centred approach to dementia care. This work will be evaluated using dementia care mapping, and the dementia champions training model will be offered to NHS organisations throughout the UK from 2013.
  • 19. 19 Dementia Services Development Centre, University of Stirling This centre provides comprehensive dementia education and training, consultancy and research services designed to support dementia care in a range of settings. The Centre’s flagship Iris Murdoch Building is a model for dementia friendly design. The Centre has also developed a practical resource The care of people with dementia in acute hospital settings: Evidence-based practice, innovation and collaboration. A resource pack for staff. For details see the Centre's catalogue of publications on acute care. The Centre also provides facilitator training for healthcare assistants and a range of courses relevant to staff working in hospital settings. Dementia Services Development Centre: Library and Information Service The Library and Information Service at the Centre has an extensive collection of dementia related material. Services include an online catalogue, dynamic links to current library holdings on a range of topics, a blog responding to recent enquiries as well as loan and document supply services. Also available is Dementia Now a free downloadable ejournal containing research information, web links and news stories. Each issue tackles a different topic relating to dementia care. Dementia Friendly Design - a virtual tour of dementia friendly hospital environments RCN accredited courses: Best practice in dementia care: a six part study course for health care assistants The Dementia Services Development Centre, University of Stirling. Best practice in dementia care: A six part study course for care home and day care staff The Dementia Services Development Centre, University of Stirling. University of Worcester: Association of Dementia Studies (ADS) The University of Worcester ADS staff have experience in developing care for people with dementia in hospitals. They have been engaged in research and development on an NHS West Midlands programme with the Royal Wolverhampton Hospitals NHS Trust in developing services of excellence in the acute hospital from 2009 to 2011. A range of courses are available up to degree level. The Association has developed, as part of a collaborative project, DVD assisted training on good communication between health care staff and people living with dementia and their families which includes a section on hospital care. For more information and details of how to obtain see Stand by me training resource. Improving Dementia Education and Awareness (IDEA - Nottingham University) IDEA is a free online resource aimed at improving the care and quality of life of people with dementia. Whether you are a care worker, carer, or health professional, IDEA provides quality resources about dementia. The website directs users to relevant online and face to face courses, and there are discussion areas which are open to everyone who registers.
  • 20. 20 Other Royal College of General Practitioners (RCGP): e-GP, e-Learning for General Practice - Dementia This e-learning resource has two modules, 'Memory Problems in Older People' and 'Care of People with Dementia'. They are written by experienced clinicians, and the e-learning uses case studies, animation and interactive exercises. Each session takes around 20 minutes to complete. Access to e-GP is available free to UK NHS General Practitioners, GP Specialty Trainees and GP educators. Dementia Partnerships The Dementia Partnerships website, sponsored originally by NHS South of England, is "a resource for people, partnerships and networks working to improve outcomes for people living with dementia". It aims to share local news and resources and learning on particular topics which include: commissioning; improving diagnosis and support after diagnosis; hospital care; better prescribing; workforce; the arts and dementia. One of the resources is a positive practice compendium which brings together a selection of developments and initiatives to improve the quality of dementia care in hospitals across the South West of England - see Positive practice compendium. Dementia Training Centre Offers a range of courses from face to face training programmes, tailored to the meet the needs of your organisation, free e-learning packages designed by experts, to a Master’s degree offering specialist dementia training. Hardwick CCG Has produced a Primary Care Dementia ‘Toolbox’ for use by GPs and practice nurses. The toolbox called ‘Dementia the view from Primary Care’ can be downloaded. Yorkshire Ambulance Service has published a guide for staff about caring for people with dementia. The Dementia Learning Resource for Ambulance staff gives basic information and sign-posts further reading. Thames Valley HIEC A suite of resources for those involved in Dementia Care. Sign-up to receive regular information digests and notice of news and events. This team produced this document

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