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Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
Patient Voices Network Forum: Consumer Health 2.0 Slideshow
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Patient Voices Network Forum: Consumer Health 2.0 Slideshow

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"Consumer Health 2.0: Using social media to find and share health information." A presentation given to the Patient Voices Network Forum, "Voices in Action" on April 16, 2011.

"Consumer Health 2.0: Using social media to find and share health information." A presentation given to the Patient Voices Network Forum, "Voices in Action" on April 16, 2011.

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  • 1. Using social media to find and share health information Consumer health 2.0 Elisheba Muturi, MLIS Daniel Hooker, MLIS Patient Voices Network Forum April 16, 2011
  • 2. <ul><li>Daniel Hooker (@ danhooker ) </li></ul><ul><ul><li>Health librarian </li></ul></ul><ul><ul><li>Researcher, UBC eHealth Strategy Office </li></ul></ul><ul><ul><li>Interested in social media, health communication </li></ul></ul><ul><li>Elisheba Muturi (@ shebamuturi ) </li></ul><ul><ul><li>Health librarian </li></ul></ul><ul><ul><li>Program Analyst, BC Ministry of Health Services </li></ul></ul><ul><ul><li>Interested in health literacy, patient activation </li></ul></ul>WHO WE ARE April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 3. <ul><li>Introductions </li></ul><ul><li>‘ ePatient ’ video (7 mins) </li></ul><ul><li>Group discussion (5-10 mins) </li></ul><ul><li>Talk on ‘consumer health’ and social media (20-25 mins) </li></ul><ul><li>Scenario exercise (20 min) </li></ul><ul><li>Wrap-up, questions </li></ul>Agenda for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 4. <ul><li>Find health information on the web </li></ul><ul><li>Encourage evaluation of health information found when using social media </li></ul><ul><li>Discover new consumer health websites, and social media of value to Canadians </li></ul><ul><li>See new ways of using the Internet to communicate and share information </li></ul><ul><li>Develop skills in using (Appreciate the value of?) websites and social media to stay informed </li></ul>Goals for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 5. <ul><li>Find health information on the web </li></ul><ul><li>Encourage evaluation of health information found when using social media </li></ul><ul><li>Discover new consumer health websites, and social media of value to Canadians </li></ul><ul><li>See new ways of using the Internet to communicate and share information </li></ul><ul><li>Develop skills in using websites and social media to stay informed and build a trusted patient network </li></ul>Goals for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 6. video April 16, 2011 Muturi, Hooker - Consumer Health 2.0 http://www.youtube.com/watch?v=9ebdGR3IZp8
  • 7. <ul><li>A Tale of Two e-Patients – Dr. Val Jones (@ DrVal ) e-Patient Connections 2009 </li></ul><ul><li>What did Megan, the patient who got better, do right? What were her obstacles? </li></ul><ul><li>Where did Julie, the patient who didn ’ t make it, go wrong? What could she have done differently? </li></ul><ul><li>What lessons do we learn from Megan and Julie ’ s cases? </li></ul>Video reflections April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 8. DEFINITIONS: Consumer Health Information April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 9. DEFINITIONS: Consumer Health 2.0 April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 10. DEFINITIONS: Health Literacy April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 11. HEALTH LITERACY IN BC Source : International Adult Literacy Skills Survey, 2003 - Compiled by CCL Health region Sub-optimal Proportion Northwest 61% Richmond 61% Okanagan 59% Thompson/Cariboo 58% Fraser South 58% Vancouver 56% Fraser East 55% British Columbia 54% North Vancouver Island 53% Fraser North 54% North Shore/Coast Garibaldi 53% Central Vancouver Island 50% East Kootenay 49% Kootenay/Boundary 48% South Vancouver Island 46% Northern Interior 45% Sub-optimal Proportion Aboriginal 66.3% +/-8.4% Non Aboriginal 53.2% +/-1.8% 56-65 years 60.0% Over 65 years 78.9% Non-Immigrant 45.9% Immigrant 71.9% Employed 44.8% Not employed 67.9%
  • 12. <ul><li>Basic skills for understanding information </li></ul><ul><li>Interactive skills for personalizing and making sense of information </li></ul><ul><li>Reflective skills to apply information in context and think critically </li></ul>LEVELS OF health LITERACY SKILLS April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 13. Consumer health by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 14. <ul><li>66% of internet users look online for information about a specific disease or medical problem . </li></ul><ul><li>56% of internet users look online for information about a certain medical treatment or procedure . </li></ul>Consumer health by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 15. <ul><li>60% of e-patients access user-generated content related to health </li></ul><ul><li>20% of e-patients post or share content . </li></ul><ul><li>(Only) 3% of e-patients, say they or someone they know has been harmed by online information. </li></ul>Consumer health 2.0 by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 16. <ul><li>95% (19 out of 20) of respondents to our pre-survey begin their searches on: </li></ul>what you said April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 17. Consider custom search engines April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 18. <ul><li>“ It is difficult to know where to turn and who to trust... </li></ul><ul><li>“ What is reputable any more? ” </li></ul>What you said April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 19. (E-)PATIENTS LIKE ME April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Patients know what other patients want to know ”
  • 20. Consumer health 2.0: Patient Blogs April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 21. April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 22. Consumer health 2.0: Patient Communities April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 23. Patient networks complement April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Electronic support communities appear to be best at what doctors are worst at and worst at what doctors are best at . ”
  • 24. Consumer health 2.0: Health Organizations April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 25. April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 26. April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 27. &nbsp;
  • 28. &nbsp;
  • 29. WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ The majority of participants posted only once, but of the 9% who posted three or more times, 30% were clearly promoting products , and 3% of the promotional posts contained inappropriate… therapeutic claims. ”
  • 30. WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Several links to a ‘ Toothless Fish’ that eats skin and will cure your eczema. Seriously.”
  • 31. WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 32. What is reliable? <ul><li>Authority </li></ul><ul><li>Complementarity </li></ul><ul><li>Confidentiality </li></ul><ul><li>Attribution </li></ul>April 16, 2011 Muturi, Hooker - Consumer Health 2.0 <ul><li>Justifiability </li></ul><ul><li>Transparency </li></ul><ul><li>Financial disclosure </li></ul><ul><li>Advertising </li></ul>
  • 33. Can you trust consumer generated content? April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 34. <ul><li>Social media tools offer excellent opportunities for consumers to participate actively in their health , to learn and to contribute to key conversations. </li></ul><ul><li>Online communities are extremely valuable – they complement rather than replace relationships with health professionals. </li></ul><ul><li>Your participation in Consumer Health 2.0 doesn’t just benefit your health, it contributes to a network of informed, activated patients who can help others and help to change health care. </li></ul>Summary April 16, 2011 Muturi, Hooker - Consumer Health 2.0
  • 35. <ul><li>Questions? </li></ul><ul><li>Elisheba Muturi - [email_address] </li></ul><ul><li>Daniel Hooker - [email_address] </li></ul>Thank you for sharing April 16, 2011 Muturi, Hooker - Consumer Health 2.0

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