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Patient Voices Network Forum: Consumer Health 2.0 Slideshow
 

Patient Voices Network Forum: Consumer Health 2.0 Slideshow

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"Consumer Health 2.0: Using social media to find and share health information." A presentation given to the Patient Voices Network Forum, "Voices in Action" on April 16, 2011.

"Consumer Health 2.0: Using social media to find and share health information." A presentation given to the Patient Voices Network Forum, "Voices in Action" on April 16, 2011.

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    Patient Voices Network Forum: Consumer Health 2.0 Slideshow Patient Voices Network Forum: Consumer Health 2.0 Slideshow Presentation Transcript

    • Using social media to find and share health information Consumer health 2.0 Elisheba Muturi, MLIS Daniel Hooker, MLIS Patient Voices Network Forum April 16, 2011
      • Daniel Hooker (@ danhooker )
        • Health librarian
        • Researcher, UBC eHealth Strategy Office
        • Interested in social media, health communication
      • Elisheba Muturi (@ shebamuturi )
        • Health librarian
        • Program Analyst, BC Ministry of Health Services
        • Interested in health literacy, patient activation
      WHO WE ARE April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • Introductions
      • ‘ ePatient ’ video (7 mins)
      • Group discussion (5-10 mins)
      • Talk on ‘consumer health’ and social media (20-25 mins)
      • Scenario exercise (20 min)
      • Wrap-up, questions
      Agenda for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • Find health information on the web
      • Encourage evaluation of health information found when using social media
      • Discover new consumer health websites, and social media of value to Canadians
      • See new ways of using the Internet to communicate and share information
      • Develop skills in using (Appreciate the value of?) websites and social media to stay informed
      Goals for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • Find health information on the web
      • Encourage evaluation of health information found when using social media
      • Discover new consumer health websites, and social media of value to Canadians
      • See new ways of using the Internet to communicate and share information
      • Develop skills in using websites and social media to stay informed and build a trusted patient network
      Goals for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • video April 16, 2011 Muturi, Hooker - Consumer Health 2.0 http://www.youtube.com/watch?v=9ebdGR3IZp8
      • A Tale of Two e-Patients – Dr. Val Jones (@ DrVal ) e-Patient Connections 2009
      • What did Megan, the patient who got better, do right? What were her obstacles?
      • Where did Julie, the patient who didn ’ t make it, go wrong? What could she have done differently?
      • What lessons do we learn from Megan and Julie ’ s cases?
      Video reflections April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • DEFINITIONS: Consumer Health Information April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • DEFINITIONS: Consumer Health 2.0 April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • DEFINITIONS: Health Literacy April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • HEALTH LITERACY IN BC Source : International Adult Literacy Skills Survey, 2003 - Compiled by CCL Health region Sub-optimal Proportion Northwest 61% Richmond 61% Okanagan 59% Thompson/Cariboo 58% Fraser South 58% Vancouver 56% Fraser East 55% British Columbia 54% North Vancouver Island 53% Fraser North 54% North Shore/Coast Garibaldi 53% Central Vancouver Island 50% East Kootenay 49% Kootenay/Boundary 48% South Vancouver Island 46% Northern Interior 45% Sub-optimal Proportion Aboriginal 66.3% +/-8.4% Non Aboriginal 53.2% +/-1.8% 56-65 years 60.0% Over 65 years 78.9% Non-Immigrant 45.9% Immigrant 71.9% Employed 44.8% Not employed 67.9%
      • Basic skills for understanding information
      • Interactive skills for personalizing and making sense of information
      • Reflective skills to apply information in context and think critically
      LEVELS OF health LITERACY SKILLS April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • Consumer health by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • 66% of internet users look online for information about a specific disease or medical problem .
      • 56% of internet users look online for information about a certain medical treatment or procedure .
      Consumer health by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • 60% of e-patients access user-generated content related to health
      • 20% of e-patients post or share content .
      • (Only) 3% of e-patients, say they or someone they know has been harmed by online information.
      Consumer health 2.0 by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • 95% (19 out of 20) of respondents to our pre-survey begin their searches on:
      what you said April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • Consider custom search engines April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • “ It is difficult to know where to turn and who to trust...
      • “ What is reputable any more? ”
      What you said April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • (E-)PATIENTS LIKE ME April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Patients know what other patients want to know ”
    • Consumer health 2.0: Patient Blogs April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • Consumer health 2.0: Patient Communities April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • Patient networks complement April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Electronic support communities appear to be best at what doctors are worst at and worst at what doctors are best at . ”
    • Consumer health 2.0: Health Organizations April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    •  
    •  
    • WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ The majority of participants posted only once, but of the 9% who posted three or more times, 30% were clearly promoting products , and 3% of the promotional posts contained inappropriate… therapeutic claims. ”
    • WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Several links to a ‘ Toothless Fish’ that eats skin and will cure your eczema. Seriously.”
    • WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0
    • What is reliable?
      • Authority
      • Complementarity
      • Confidentiality
      • Attribution
      April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • Justifiability
      • Transparency
      • Financial disclosure
      • Advertising
    • Can you trust consumer generated content? April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • Social media tools offer excellent opportunities for consumers to participate actively in their health , to learn and to contribute to key conversations.
      • Online communities are extremely valuable – they complement rather than replace relationships with health professionals.
      • Your participation in Consumer Health 2.0 doesn’t just benefit your health, it contributes to a network of informed, activated patients who can help others and help to change health care.
      Summary April 16, 2011 Muturi, Hooker - Consumer Health 2.0
      • Questions?
      • Elisheba Muturi - [email_address]
      • Daniel Hooker - [email_address]
      Thank you for sharing April 16, 2011 Muturi, Hooker - Consumer Health 2.0