Patient Voices Network Forum: Consumer Health 2.0 Slideshow

Using social media to find and share health information Consumer health 2.0 Elisheba Muturi, MLIS Daniel Hooker, MLIS Patient Voices Network Forum April 16, 2011

Daniel Hooker (@ danhooker )
Health librarian
Researcher, UBC eHealth Strategy Office
Interested in social media, health communication
Elisheba Muturi (@ shebamuturi )
Health librarian
Program Analyst, BC Ministry of Health Services
Interested in health literacy, patient activation
WHO WE ARE April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Introductions
‘ ePatient ’ video (7 mins)
Group discussion (5-10 mins)
Talk on ‘consumer health’ and social media (20-25 mins)
Scenario exercise (20 min)
Wrap-up, questions
Agenda for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Find health information on the web
Encourage evaluation of health information found when using social media
Discover new consumer health websites, and social media of value to Canadians
See new ways of using the Internet to communicate and share information
Develop skills in using (Appreciate the value of?) websites and social media to stay informed
Goals for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Find health information on the web
Encourage evaluation of health information found when using social media
Discover new consumer health websites, and social media of value to Canadians
See new ways of using the Internet to communicate and share information
Develop skills in using websites and social media to stay informed and build a trusted patient network
Goals for the day April 16, 2011 Muturi, Hooker - Consumer Health 2.0

video April 16, 2011 Muturi, Hooker - Consumer Health 2.0 http://www.youtube.com/watch?v=9ebdGR3IZp8

A Tale of Two e-Patients – Dr. Val Jones (@ DrVal ) e-Patient Connections 2009
What did Megan, the patient who got better, do right? What were her obstacles?
Where did Julie, the patient who didn ’ t make it, go wrong? What could she have done differently?
What lessons do we learn from Megan and Julie ’ s cases?
Video reflections April 16, 2011 Muturi, Hooker - Consumer Health 2.0

DEFINITIONS: Consumer Health Information April 16, 2011 Muturi, Hooker - Consumer Health 2.0

DEFINITIONS: Consumer Health 2.0 April 16, 2011 Muturi, Hooker - Consumer Health 2.0

DEFINITIONS: Health Literacy April 16, 2011 Muturi, Hooker - Consumer Health 2.0

HEALTH LITERACY IN BC Source : International Adult Literacy Skills Survey, 2003 - Compiled by CCL Health region Sub-optimal Proportion Northwest 61% Richmond 61% Okanagan 59% Thompson/Cariboo 58% Fraser South 58% Vancouver 56% Fraser East 55% British Columbia 54% North Vancouver Island 53% Fraser North 54% North Shore/Coast Garibaldi 53% Central Vancouver Island 50% East Kootenay 49% Kootenay/Boundary 48% South Vancouver Island 46% Northern Interior 45% Sub-optimal Proportion Aboriginal 66.3% +/-8.4% Non Aboriginal 53.2% +/-1.8% 56-65 years 60.0% Over 65 years 78.9% Non-Immigrant 45.9% Immigrant 71.9% Employed 44.8% Not employed 67.9%

Basic skills for understanding information
Interactive skills for personalizing and making sense of information
Reflective skills to apply information in context and think critically
LEVELS OF health LITERACY SKILLS April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Consumer health by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0

66% of internet users look online for information about a specific disease or medical problem .
56% of internet users look online for information about a certain medical treatment or procedure .
Consumer health by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0

60% of e-patients access user-generated content related to health
20% of e-patients post or share content .
(Only) 3% of e-patients, say they or someone they know has been harmed by online information.
Consumer health 2.0 by the numbers April 16, 2011 Muturi, Hooker - Consumer Health 2.0

95% (19 out of 20) of respondents to our pre-survey begin their searches on:
what you said April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Consider custom search engines April 16, 2011 Muturi, Hooker - Consumer Health 2.0

“ It is difficult to know where to turn and who to trust...
“ What is reputable any more? ”
What you said April 16, 2011 Muturi, Hooker - Consumer Health 2.0

(E-)PATIENTS LIKE ME April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Patients know what other patients want to know ”

Consumer health 2.0: Patient Blogs April 16, 2011 Muturi, Hooker - Consumer Health 2.0

April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Consumer health 2.0: Patient Communities April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Patient networks complement April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Electronic support communities appear to be best at what doctors are worst at and worst at what doctors are best at . ”

Consumer health 2.0: Health Organizations April 16, 2011 Muturi, Hooker - Consumer Health 2.0

WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ The majority of participants posted only once, but of the 9% who posted three or more times, 30% were clearly promoting products , and 3% of the promotional posts contained inappropriate… therapeutic claims. ”

WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0 “ Several links to a ‘ Toothless Fish’ that eats skin and will cure your eczema. Seriously.”

WHAT’S THE PROBLEM, THEN? April 16, 2011 Muturi, Hooker - Consumer Health 2.0

What is reliable?
Authority
Complementarity
Confidentiality
Attribution
Justifiability
Transparency
Financial disclosure
Advertising

Can you trust consumer generated content? April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Social media tools offer excellent opportunities for consumers to participate actively in their health , to learn and to contribute to key conversations.
Online communities are extremely valuable – they complement rather than replace relationships with health professionals.
Your participation in Consumer Health 2.0 doesn’t just benefit your health, it contributes to a network of informed, activated patients who can help others and help to change health care.
Summary April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Questions?
Elisheba Muturi - [email_address]
Daniel Hooker - [email_address]
Thank you for sharing April 16, 2011 Muturi, Hooker - Consumer Health 2.0

Patient Voices Network Forum: Consumer Health 2.0 Slideshow

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