Hospice and palliative tweetchat transcript 2010 08 25

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Tweetchat transcript for 8 25 2010 covering hospice and palliative medicine

Tweetchat transcript for 8 25 2010 covering hospice and palliative medicine

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  • 1. 8/25/2010 TweetChat - #hpm TweetChat # hpm Go » Add a Ustream video feed. Ustream channel URL: jodyms @ctsinclair @renee_berry @docj @mpalso @compandchoices @rebeccacaroe This is really important work & discussion. Thanks so much. #hpm -9:04 PM Aug 25th, 2010 dockj RT @ctsinclair: Closing Thought: Hospice &Pall Med has a lot of focus this summer but we must make a lasting good public impression #hpm -9:04 PM Aug 25th, 2010 ctsinclair Good night everyone! Feel free to stay after class and continue talking! #hpm -9:03 PM Aug 25th, 2010 renee_berry @dockj really??!! ... I think I could write about 'death panels' for a year! :) #hpm -9:03 PM Aug 25th, 2010 ctsinclair Closing Thought: Hospice &Palliative Medicine has a lot of public focus this summer but we must make a lasting good public impression #hpm - 9:03 PM Aug 25th, 2010 inhousehospice Good discussion tonight, all! Same time next week? ;) #hpm -9:03 PM Aug 25th, 2010 CompAndChoices As always @ctsinclair, thanks for hosting and for the great work you do. We appreciate you very much. #hpm -9:03 PM Aug 25th, 2010 renee_berry @mpalko I agree, I think there have been a few out there, I know @ctsinclair knows of some. (you might find Art Buchwald interesting) #hpm -9:03 PM Aug 25th, 2010 dockj I think the curse for most HPM blogs, is: What is controversial about what they post? Very few firestorms. #hpm -9:02 PM Aug 25th, 2010 ctsinclair @mpalko They are probably blogging on CaringBridge, Blogger and other sites. Not well publicized. Here are 2: http://bit.ly/9V4hK1 #hpm -9:02 PM Aug 25th, 2010 renee_berry & that's a thanks for everyone who participates in this because I honestly think it has a strong potential for meaningful impact! #hpm -9:02 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 1/21
  • 2. 8/25/2010 TweetChat - #hpm renee_berry More authentic dedicated #hospice & #palliative medicine professionals engaging in social media will create greater public awareness of #hpm -9:00 PM Aug 25th, 2010 mpalko @renee_berry wondering if those receiving #hospice care are blogging. That might shed a diffrent light on it for JQ Public #hpm -9:00 PM Aug 25th, 2010 CompAndChoices Facebook "like" button can cool commenting, but if you generate content that looks discussion, that helps a lot. #hpm -9:00 PM Aug 25th, 2010 dockj But it's a tweetchat last right to do last thoughts... #hpm -9:00 PM Aug 25th, 2010 ctsinclair (maybe I should rename 'last thoughts' for this group [grin]) #hpm - 8:59 PM Aug 25th, 2010 dockj Blogs must track Retweets, Likes #hpm -8:59 PM Aug 25th, 2010 ctsinclair OK, class got delayed a bit but I want to be respectful of everyone's time. Let's wrap up with last thoughts... #hpm -8:58 PM Aug 25th, 2010 dockj Since "like" showed up, comments are much less common #hpm -8:58 PM Aug 25th, 2010 chemosabe @ctsinclair that and tend to get alot of personal thoughts experience rather than fact, science and evidence #hpm -8:58 PM Aug 25th, 2010 ctsinclair RT @dockj: The dreaded FaceBook "like" button curse "Greatly diminishes commenting" #hpm -8:58 PM Aug 25th, 2010 ctsinclair @CompAndChoices Oh you were talking about @alivehospice and 2-3k hits? Was that blog or whole site? #hpm -8:58 PM Aug 25th, 2010 rebeccacaroe @CompAndChoices agreed. Definitely a need for end-of-life care blogging #hpm -8:58 PM Aug 25th, 2010 renee_berry @mpalko I think a lot of people enter hospice for very personal or specific reasons, this creates dedicated workers= insightful blogs #hpm - 8:58 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 2/21
  • 3. 8/25/2010 TweetChat - #hpm dockj The dreaded FaceBook "like" button curse #hpm -8:57 PM Aug 25th, 2010 ctsinclair @chemosabe forums tend to feel more 'niche and closed' to me compared to a blog. #hpm -8:57 PM Aug 25th, 2010 CompAndChoices @ctsinclair Bummer. Maybe there's someone doing end-of- life care blogging in-general that would be a good candidate? #hpm -8:57 PM Aug 25th, 2010 rebeccacaroe @CompAndChoices interesting still getting visitors and NO new content. Has long life. Seekers? #hpm -8:57 PM Aug 25th, 2010 ctsinclair RT @mpalko: @renee_berry I recently met a nurse who was leaving hospital-based pt care for #hospice She was SO excited about it. #hpm -8:56 PM Aug 25th, 2010 renee_berry I've been a long time blog lurker, only recently started commenting RT @ctsinclair @AliveHospice has very few comments on their blog? #hpm -8:56 PM Aug 25th, 2010 ctsinclair @CompAndChoices I have been trying to find hospiceguy but he no longer answers his email. #hpm -8:56 PM Aug 25th, 2010 LifeHealthDiary @edgery RT @CompAndChoices: A lot of people don't know what hospice is. Blogging could definitely introduce hospice to new audiences. #hpm -8:56 PM Aug 25th, 2010 jodyms @TWITTER?? in middle of #HPM chat. -8:56 PM Aug 25th, 2010 ctsinclair RT @LifeHealthDiary: #hpm just did web search for hospice blog - "@Pallimed list of hospice related blogs http://bit.ly/avJBWm"; #hpm -8:56 PM Aug 25th, 2010 mpalko @renee_berry I recently met a nurse who was leaving hospital-based pt care for #hospice She was SO excited about it. #Blogging #hpm -8:56 PM Aug 25th, 2010 CompAndChoices @ctsinclair looks like they're getting about 2-3k unique visitors a month according to Statsaholic. #hpm -8:55 PM Aug 25th, 2010 rebeccacaroe @chemosabe purpose of consumer forum different from blog purpose #hpm -8:55 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 3/21
  • 4. 8/25/2010 TweetChat - #hpm rebeccacaroe RT @SheyontheBay: @rebeccacaroe GREAT!! (and now youre the one doing the teaching!). blogging is my specialist subject of choice! #hpm -8:55 PM Aug 25th, 2010 chemosabe T3 hi new to this chat. There are plenty of consumer forums out there. Does this not acheive similar dis/information to an org blog? #hpm -8:55 PM Aug 25th, 2010 edgery RT @CompAndChoices: A lot of people don't know what hospice is. Blogging could definitely introduce hospice to new audiences. #hpm -8:55 PM Aug 25th, 2010 rebeccacaroe RT @SheyontheBay: WE could start the blog! - blogger of the week! #hpm -8:54 PM Aug 25th, 2010 renee_berry #cool #shoutout ! RT @ctsinclair: Best example of a #hospice org #blog @AliveHospice http://alivehospice.org/blog/ #hpm -8:54 PM Aug 25th, 2010 LifeHealthDiary #hpm just did web search for 'hospice blog' and V few - many started 2008/9 and not continued. why? -8:54 PM Aug 25th, 2010 CompAndChoices It would be good for a hospice blogger to become part of a #hcr group blog as well, to widen the audience even more. #hpm -8:54 PM Aug 25th, 2010 SheyontheBay @rebeccacaroe GREAT!! (and now you're the one doing the teaching!) #hpm -8:54 PM Aug 25th, 2010 ctsinclair RT @rebeccacaroe: Take a look http://www.hospiceblog.org/ "A once-great blog, sadly dormant for over a year" #hpm -8:54 PM Aug 25th, 2010 SheyontheBay WE could stat the blog! - blogger of the week! #hpm -8:53 PM Aug 25th, 2010 ctsinclair But @AliveHospice has very few comments on their blog? Wonder if they are getting hits, but everyone lurking, not commenting. #hpm -8:53 PM Aug 25th, 2010 renee_berry agree RT @CompAndChoices: A lot of people dont know what #hospice is. #Blogging could definitely introduce hospice to new audiences. #hpm -8:52 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 4/21
  • 5. 8/25/2010 TweetChat - #hpm rebeccacaroe Take a look http://www.hospiceblog.org/ #hpm -8:52 PM Aug 25th, 2010 ctsinclair Best example of a hospice org blog @AliveHospice http://alivehospice.org/blog/ #hpm -8:52 PM Aug 25th, 2010 renee_berry @rebeccacaroe agree!!! Wouldn't it be great to have a voice to the fact that Hospice is more than the common perception of 'depressing' #hpm -8:51 PM Aug 25th, 2010 ctsinclair Just kidding, it is working again. We'll keep tweeting until 9pm #hpm -8:51 PM Aug 25th, 2010 CompAndChoices A lot of people don't know what hospice is. Blogging could definitely introduce hospice to new audiences. #hpm -8:51 PM Aug 25th, 2010 rebeccacaroe @MeredithGould its back on line. Twitter problem #500 #hpm -8:50 PM Aug 25th, 2010 LifeHealthDiary @subatomicdoc @rebeccacaroe yes use blog to tell 'stories' about real life (with permission) #hpm #HIPAA -8:50 PM Aug 25th, 2010 BeverlySTho Late Hello :) T3- I think blogs from hospice organizations could be an awesome opportunity to show that comfortable deaths happen #hpm... -8:50 PM Aug 25th, 2010 CompAndChoices Should hospices blog? Absolutely. Explain hospice goals and services. Family testimonials, etc. #hpm -8:50 PM Aug 25th, 2010 ctsinclair Looks like Twitter was over-capacity. The rest of Tweetchat class will be outside. See you next week! #hpm -8:49 PM Aug 25th, 2010 dockj fail whale #hpm -8:49 PM Aug 25th, 2010 renee_berry internal server error for everyone I assume! :( #hpm -8:49 PM Aug 25th, 2010 rebeccacaroe @subatomicdoc write about the staff, interview family members, show photographs of hospice / garden / gifts. Play music, podcast #hpm -8:49 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 5/21
  • 6. 8/25/2010 TweetChat - #hpm MeredithGould Don't seem to be able to post to #HPM -8:49 PM Aug 25th, 2010 dockj RT @subatomicdoc: @ctsinclair T3: this is where I struggle as a clinician. How do you #blog and stay #HIPAA compliant? #hpm -8:49 PM Aug 25th, 2010 SheyontheBay @subatomicdoc HIPAA definition includes pt identifiers - no pics-no names-no locations, etc #hpm -8:49 PM Aug 25th, 2010 ctsinclair @subatomicdoc I don't blog about personal experiences. I generalize the situation as much as possible for @Pallimed #hpm -8:49 PM Aug 25th, 2010 CompAndChoices RT @renee_berry: Late Hello :) T3- I think blogs from hospice organizations could be an awesome opportunity to show that comfortable deaths happen #hpm -8:49 PM Aug 25th, 2010 renee_berry Late Hello :) T3- I think blogs from hospice organizations could be an awesome opportunity to show that comfortable deaths happen #hpm - 8:48 PM Aug 25th, 2010 subatomicdoc @ctsinclair T3: this is where I struggle as a clinician. How do you #blog and stay #HIPAA compliant? #hpm -8:44 PM Aug 25th, 2010 renee_berry RT @ctsinclair: Moving on to Topic #3: Should hospice organizations have blogs? And if so what should they write about? #hpm -8:44 PM Aug 25th, 2010 CompAndChoices Oops..forgetting #hpm. Sorry gang. -8:44 PM Aug 25th, 2010 rebeccacaroe @ctsinclair Purpose of hospice blog: to put human face to outside world by providing insight into daily life. DEFINITELY #hpm -8:44 PM Aug 25th, 2010 inhousehospice RT @dockj: more exposure=more opportunity to see peaceful death=more understanding #hpm -8:43 PM Aug 25th, 2010 dockj RT @ctsinclair: Moving on to Topic #3: Should hospice organizations have blogs? And if so what should they write about? #hpm -8:43 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 6/21
  • 7. 8/25/2010 TweetChat - #hpm LifeHealthDiary @SheyontheBay I'm thinking of PC Road Show ever thought of working online via patient groups? They have HUGE blog followinngs #hpm - 8:43 PM Aug 25th, 2010 dockj more exposure=more opportunity to see peaceful death=more understanding #hpm -8:43 PM Aug 25th, 2010 LifeHealthDiary RT @jodyms: Unfortunately medical ed often separates patient from real-life family context. Not one patient has cancer. Family does. #hpm -8:43 PM Aug 25th, 2010 jodyms RT @ctsinclair: @SheyontheBay A peaceful passing is a good advert, but like Woody Allen said (parphrase): 'I want to die peacefully, just not now." #hpm -8:42 PM Aug 25th, 2010 ctsinclair Moving on to Topic #3: Should hospice organizations have blogs? And if so what should they write about? #hpm -8:42 PM Aug 25th, 2010 CompAndChoices @jodyms Loved ones are the consumers, too. All involved need to be empowered to ask questions and get info. #hpm -8:42 PM Aug 25th, 2010 dockj RT @jodyms: Unfortunately medical ed often separates patient from real-life family context. Not one patient has cancer. Family does. #hpm -8:41 PM Aug 25th, 2010 CompAndChoices Peaceful death is optimum RT @SheyontheBay (I come from hospice perspective):witness of a peaceful passing is the best advertisement. #hpm -8:41 PM Aug 25th, 2010 subatomicdoc RT @jodyms: Unfortunately medical education often separates 'patient' from real-life 'family context. Not one 'patient' has cancer. Family does. #hpm -8:41 PM Aug 25th, 2010 ctsinclair RT @jodyms: Not one patient has cancer. Family does. "Life- threatening illness affects more than just patient, true" #hpm -8:41 PM Aug 25th, 2010 LifeHealthDiary join us now in Tweetchat #hpm http://is.gd/eDXje Hospice and Palliative Medicine weekly chat -8:41 PM Aug 25th, 2010 SheyontheBay I'm thinking of PC Road Show - in local libraries, PTAs - got a "gotcha" draw of a name??? :) #hpm -8:40 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 7/21
  • 8. 8/25/2010 TweetChat - #hpm ctsinclair RT @SheyontheBay: @ctsinclair Only if they know its available! Back to mainstream media...and OUTREACH before the crisis "Yes!" #hpm -8:40 PM Aug 25th, 2010 jodyms Unfortunately medical education often separates 'patient' from real- life 'family context. Not one 'patient' has cancer. Family does. #hpm -8:40 PM Aug 25th, 2010 ctsinclair @SheyontheBay A peaceful passing is a good advert, but like Woody Allen said (parphrase): 'I want to die peacefully, just not now." #hpm - 8:39 PM Aug 25th, 2010 SheyontheBay @ctsinclair Only if they know it's available! Back to mainstream media...and OUTREACH before the crisis #hpm -8:38 PM Aug 25th, 2010 inhousehospice RT @SheyontheBay: @rebeccacaroe: For hospital amins, early palliative care minimizes the revolving door of hospital admissions #hpm -8:38 PM Aug 25th, 2010 rebeccacaroe RT @SheyontheBay: @lifehealthdiary: For hospital amins, early palliative care minimizes the revolving door of hospital admissions #hpm -8:38 PM Aug 25th, 2010 jodyms So much funding based on cure but not enough understanding of QOL when cure & #PM not available for people NOW #hpm -8:38 PM Aug 25th, 2010 ctsinclair @SheyontheBay If that were true I would imagine palliative care taking off like wildfire and ebing demanded by pt/fam. My exp: not so. #hpm - 8:37 PM Aug 25th, 2010 SheyontheBay @rebeccacaroe: For hospital amins, early palliative care minimizes the revolving door of hospital admissions #hpm -8:37 PM Aug 25th, 2010 subatomicdoc RT @jodyms: Survivor understanding & survivor family understanding of #HPM? huge. Many misunderstanding. -8:37 PM Aug 25th, 2010 rebeccacaroe @SheyontheBay So, family involvement is key support tool? I am trying to improve our app and this is REALLY helpful #hpm -8:37 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 8/21
  • 9. 8/25/2010 TweetChat - #hpm dockj RT @ctsinclair: RT @jodyms: Survivor understanding & survivor family understanding of #HPM? huge. Many misunderstanding. "Good point" #hpm - 8:37 PM Aug 25th, 2010 MeredithGould RT @SheyontheBay: (I come from hospice perspective):witness of a peaceful passing is the best advertisement. #hpm - 8:37 PM Aug 25th, 2010 ctsinclair RT @jodyms: Survivor understanding & survivor family understanding of #HPM? huge. Many misunderstanding. "Good point" #hpm - 8:36 PM Aug 25th, 2010 SheyontheBay (I come from hospice perspective):witness of a peaceful passing is the best advertisement. #hpm -8:36 PM Aug 25th, 2010 ctsinclair @rebeccacaroe But the story from the media was all headlines and hyperbole. Google 'morphine cancer' and you see poor research #hpm -8:36 PM Aug 25th, 2010 rebeccacaroe @ctsinclair thx. Will read quickly #hpm -8:36 PM Aug 25th, 2010 jodyms Survivor understanding & survivor family understanding of #HPM? huge. Many misunderstanding. -8:35 PM Aug 25th, 2010 SheyontheBay Families who participate in care, decisions, etc and witness symptoms managed and Improved QOL tell everyone - so do those NOT happy #hpm -8:35 PM Aug 25th, 2010 dockj 10000 foot view from hospital admin does not equal troop view #hpm - 8:35 PM Aug 25th, 2010 ctsinclair @rebeccacaroe There was a story about morphine making #cancer worse that @geripalblog debunked http://bit.ly/b7ekzA #hpm -8:35 PM Aug 25th, 2010 dockj How that is provided in a context of payment and administration is what keeps our mission moving forward. #hpm -8:34 PM Aug 25th, 2010 ctsinclair RT @rebeccacaroe: @ctsinclair media attention is a poor measure of research success IMO 'but public opinion/awareness important' #hpm -8:34 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 9/21
  • 10. 8/25/2010 TweetChat - #hpm mcgaula RT @ctsinclair: RT @jodyms:Simple (seemingly) concept: when survivors eat, sleep, have pain managed, & anxiety lessened? QOL increases #hpm -8:33 PM Aug 25th, 2010 jodyms RT @dockj: Separate mission from margin. How we help each patient, one by one, is most important. #hpm -8:33 PM Aug 25th, 2010 ctsinclair RT @jodyms:Simple (seemingly) concept: when survivors eat, sleep, have pain managed, & anxiety lessened? QOL increases #hpm -8:33 PM Aug 25th, 2010 tymeyer RT @ctsinclair: Interesting though this study would't have had the media attention w/o improved survival piece (which was 2nd analysis) #hpm - 8:33 PM Aug 25th, 2010 rebeccacaroe @ctsinclair media attention is a poor measure of research success IMO #hpm -8:33 PM Aug 25th, 2010 dockj Separate mission from margin. How we help each patient, one by one, is most important. #hpm -8:33 PM Aug 25th, 2010 jodyms @ctsinclair @erinrbreedlove Simple (seemingly) concept: when survivors eat, sleep, have pain managed, & anxiety lessened? QOL increases #hpm -8:32 PM Aug 25th, 2010 rebeccacaroe @erinrbreedlove grin. Thanks. learning fast with you guys! #hpm -8:32 PM Aug 25th, 2010 subatomicdoc RT @rebeccacaroe: @ctsinclair Thanks. So collaboration around each patient is *essential* #hpm -8:32 PM Aug 25th, 2010 ctsinclair Interesting though t this study would not have had the media attention w/o improved survival piece (which was secondary analysis) #hpm - 8:32 PM Aug 25th, 2010 subatomicdoc RT @SheyontheBay: For #hpm workers, Hospital admins - focus on improved outcoms, pt/family satisfaction, reduced cost #hpm -8:31 PM Aug 25th, 2010 rebeccacaroe @SheyontheBay any proof for hospital admins that patient/family engagement with care process reduces costs / improves outcomes? #hpm -8:31 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 10/21
  • 11. 8/25/2010 TweetChat - #hpm ctsinclair RT @rebeccacaroe: @ctsinclair So collaboration around each patient is *essential* 'Palliative care does communication/collab well!' #hpm - 8:31 PM Aug 25th, 2010 erinrbreedlove @rebeccacaroe You hit the nail on the head. :) #hpm -8:31 PM Aug 25th, 2010 SheyontheBay For #hpm workers, Hospital admins - focus on improved outcoms, pt/family satisfaction, reduced cost #hpm -8:30 PM Aug 25th, 2010 rebeccacaroe @ctsinclair Thanks. So collaboration around each patient is *essential* #hpm -8:30 PM Aug 25th, 2010 ctsinclair RT @dockj: We all do what we do & that will not change what HPM is/does. Article served as wake up for some outsiders, then worth it. #hpm - 8:30 PM Aug 25th, 2010 rebeccacaroe RT @SheyontheBay: @rebeccacaroe : Were ALL learning! :) #hpm -8:29 PM Aug 25th, 2010 rebeccacaroe RT @dockj: We all do what we do, that will not change what HPM is/does. Article served as wake up for outsiders, then worth it. #hpm -8:29 PM Aug 25th, 2010 ctsinclair @rebeccacaroe Palliative care is usually a team approach pulling from one medical dept, but other disciplines #hpm -8:29 PM Aug 25th, 2010 SheyontheBay @rebeccacaroe : We're ALL learning! :) #hpm -8:29 PM Aug 25th, 2010 ctsinclair Here is the other one from @DiscoverMag http://bit.ly/dl1yAC (RE: Gawande writing style from NYT article) #hpm #hcsm -8:28 PM Aug 25th, 2010 erinrbreedlove RT @ctsinclair: RT @tymeyer: When I return to wk tmrw, will be focused on improved QOL & improvement in symptoms as opposed to survival #hpm -8:28 PM Aug 25th, 2010 rebeccacaroe is Palliative care delivered by one department or a range of individuals (excuse ignorance - learning) #hpm -8:28 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 11/21
  • 12. 8/25/2010 TweetChat - #hpm dockj We all do what we do, and that will not change what HPM is/does. Article served as wake up for some outsiders, then worth it. #hpm -8:27 PM Aug 25th, 2010 MeredithGould <--Late...thanks to yet another bunch o' hours w/Verizon. Where's the palliative care for THAT?!? #hpm -8:27 PM Aug 25th, 2010 SheyontheBay Think focus should be on main fears abut dying: abandonment, pain, air hunger, for patients and families - #hpm -8:27 PM Aug 25th, 2010 subatomicdoc RT @ctsinclair: RT @tymeyer: When I return to work tomorrow, will be focusing on improved QOL and improvement in symptoms as opposed to survival #hpm -8:27 PM Aug 25th, 2010 ctsinclair Found one of them from Wachter's World http://bit.ly/dky2vy (Gawande writing style) #hpm #hcsm -8:27 PM Aug 25th, 2010 sharingstrength Sorry to miss #hpm chat tonight. Too much work. (but exciting stuff) -8:27 PM Aug 25th, 2010 ctsinclair RT @tymeyer: When I return to work tomorrow, will be focusing on improved QOL and improvement in symptoms as opposed to survival #hpm - 8:26 PM Aug 25th, 2010 inhousehospice RT @dockj: T2b - Anything that strong to rattle the cage, you have to push the shock factor. "Good point" #hpm -8:26 PM Aug 25th, 2010 subatomicdoc @ctsinclair I'm in a smaller community hospital with interest in #hpm but nascent. This news is a good stimulus with motivated admins. -8:26 PM Aug 25th, 2010 erinrbreedlove T2: And because of that, I think the study sheds light on the fact that when pts are treated as ppl, they live longer and are happy #hpm - 8:26 PM Aug 25th, 2010 jodyms @ctsinclair I've got them starred. I'll go get them. #HPM -8:26 PM Aug 25th, 2010 dockj T2b - Anything that strong to rattle the cage, you have to push the shock factor. #hpm -8:25 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 12/21
  • 13. 8/25/2010 TweetChat - #hpm erinrbreedlove T2: Probably not, but PC is one of the most underappreciated yet effective specialties in medicine. Palliative care is about people. #hpm - 8:25 PM Aug 25th, 2010 tymeyer When I return to work tomorrow, will be focusing on improved QOL and improvement in symptoms as opposed to survival, esp with our Oncs #hpm -8:25 PM Aug 25th, 2010 inhousehospice T2b: True. We want to emphasize quality vs. quantity. But maybe that's not what people want to hear. #hpm -8:25 PM Aug 25th, 2010 ctsinclair @jodyms I have seen a couple articles deconstructing Gawande writing style. Will try and find links. #hpm -8:25 PM Aug 25th, 2010 SheyontheBay Getting good coverage inNY - mainstream mags, NYTimes #hpm -8:25 PM Aug 25th, 2010 ctsinclair @subatomicdoc How was it taken?Do you not have an active palliative care team now? Outpt/Inpt? #hpm -8:24 PM Aug 25th, 2010 subatomicdoc @erinrbreedlove I agree, just hypothesizing #hpm -8:24 PM Aug 25th, 2010 jodyms Both Gawande article & NEJM terrific teaching moments RT @ctsinclair Topic 2: Did NEJM study on early PC in LC get adequate attn? #hpm -8:24 PM Aug 25th, 2010 inhousehospice T2: Probably not. But we've all been posting everywhere: twitter, FB, website, linkedin, newsletter... Phew. It's gotten around. #hpm - 8:24 PM Aug 25th, 2010 ctsinclair @dockj Funny! #hpm -8:24 PM Aug 25th, 2010 dockj RT @erinrbreedlove: @ctsinclair Link, please? Missed it due to school! :( <- obviousy not!!! LOL #hpm -8:23 PM Aug 25th, 2010 ctsinclair @erinrbreedlove http://www.pallimed.org/2010/08/game- changer-early-palliative-care-for.html #hpm -8:23 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 13/21
  • 14. 8/25/2010 TweetChat - #hpm ctsinclair Topic 2b) Did the right message get out? Some are saying too much focus on survival gains could be hard to prove again, wrong message #hpm - 8:22 PM Aug 25th, 2010 subatomicdoc @ctsinclair I brought the NEJM article up with a hospital VP to review and implement #hpm -8:22 PM Aug 25th, 2010 dockj RT @ctsinclair: T 2: One week after the release of the @NEJM study about early PC in Lung Ca, did it get the attention it needed? #hpm -8:22 PM Aug 25th, 2010 erinrbreedlove @ctsinclair Link, please? Missed it due to school! :( #hpm - 8:21 PM Aug 25th, 2010 dockj T1 problem isn't proof of, it's disproving... #hpm -8:21 PM Aug 25th, 2010 ctsinclair OK Moving on to Topic 2: One week after the release of the @NEJM study about early PC in Lung Ca, did it get the attention it needed? #hpm -8:21 PM Aug 25th, 2010 inhousehospice RT @dockj: T1- the power of suggestion and the strong desire to believe makes any research with animal behavior shaky at best. #hpm -8:20 PM Aug 25th, 2010 erinrbreedlove @subatomicdoc It's possible, but to say that they are able to accurately predict death is a bit of a stretch right now, I think. #hpm -8:20 PM Aug 25th, 2010 dockj RT @ctsinclair: may be many cognitive biases at work with seeing Oscar predict. Looking at False Positives and False Negatives.... #hpm -8:20 PM Aug 25th, 2010 ctsinclair RT @dockj: T1- the power of suggestion and the strong desire to believe makes any research with animal behavior shaky at best. #hpm -8:20 PM Aug 25th, 2010 jodyms TY @ctsinclair @jodyms Hey Jody - Talking about the upcoming film about Oscar the Cat who predicts death in NH patients #hpm -8:19 PM Aug 25th, 2010 dockj T1- the power of suggestion and the strong desire to believe makes any research with animal behavior shaky at best. #hpm -8:19 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 14/21
  • 15. 8/25/2010 TweetChat - #hpm ctsinclair I suspect their may be many cognitive biases at work with 'seeing' Oscar predict. Looking at False Positives and False Negatives.... #hpm -8:19 PM Aug 25th, 2010 inhousehospice @tymeyer Congrats on the new baby! #hpm -8:18 PM Aug 25th, 2010 ctsinclair @subatomicdoc Or maybe animals are picking up on the human activity too? Patient, family, staff. #hpm -8:18 PM Aug 25th, 2010 ctsinclair Has anyone here read the book about Oscar? http://amzn.to/ccT59Z #hpm -8:17 PM Aug 25th, 2010 dockj RT @tymeyer: @ctsinclair Two weeks old tomorrow. Shes good, sleeping as well as could be expected< awww congrats daddy-o! #hpm -8:17 PM Aug 25th, 2010 subatomicdoc @erinrbreedlove Do you think there might be a death pheromone that certain animals might be able to smell? #hpm -8:17 PM Aug 25th, 2010 tymeyer @ctsinclair Two weeks old tomorrow. She's good, sleeping as well as could be expected #hpm -8:16 PM Aug 25th, 2010 ctsinclair @ctsinclair I think it would be reasonable to study Oscar. Shouldn't be hard to do with a little private grant. #hpm -8:16 PM Aug 25th, 2010 dockj T1- let's not forget we now have a CAM branch of NIH... #hpm -8:16 PM Aug 25th, 2010 subatomicdoc @tymeyer Hi Ty #hpm -8:16 PM Aug 25th, 2010 ctsinclair @tymeyer Welcome Ty, how's the new baby? #hpm -8:15 PM Aug 25th, 2010 subatomicdoc @dockj LOL. I doubt this would make the cutoff @NIH. Private funding makes sense. #hpm -8:15 PM Aug 25th, 2010 rebeccacaroe I have a question: in hospice / palliative care do you need to co-ordinate patient records with several care-givers not in 1 location? #hpm - 8:15 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 15/21
  • 16. 8/25/2010 TweetChat - #hpm jodyms Cover story of Time mag a few weeks ago --What do Animals think: http://www.time.com/time/health/article/0,8599,2008759,00.html #hpm -8:14 PM Aug 25th, 2010 ctsinclair RT @dockj: T1 if an octopus can call world cup 'Animals and prediction, the Greeks used to look at innards, now we r more humane!' #hpm -8:14 PM Aug 25th, 2010 tymeyer Hello All, Ty here from Victoria, TX. HPM doc #hpm -8:14 PM Aug 25th, 2010 inhousehospice @ctsinclair I think animals can sense changes in people. Sense death? Not so sure. It's worth looking into, yes. #hpm -8:14 PM Aug 25th, 2010 dockj RT @subatomicdoc: @ctsinclair Nothing wrong with studying it. The issue will be obtaining funding. #hpm #clinicaltrial<-if pvt funded. #hpm -8:14 PM Aug 25th, 2010 tymeyer RT @dockj: T1 if an octopus can call world cup games.... True #hpm -8:14 PM Aug 25th, 2010 erinrbreedlove @ctsinclair I don't think that animals can necessarily predict DEATH, but they may detect certain frequent symptoms. Study all you want #hpm -8:13 PM Aug 25th, 2010 subatomicdoc @ctsinclair Nothing wrong with studying it. The issue will be obtaining funding. #hpm #clinicaltrial -8:13 PM Aug 25th, 2010 ctsinclair @jodyms Hey Jody - Talking about the upcoming film about Oscar the Cat who predicts death in NH patients #hpm -8:13 PM Aug 25th, 2010 dockj T1 if an octopus can call world cup games.... #hpm -8:13 PM Aug 25th, 2010 ctsinclair RT @rebeccacaroe: In UK we call stories like Oscar that debut in August the "Silly Season" = no real news! "Good point, quite likely" #hpm -8:12 PM Aug 25th, 2010 jodyms Coming in to chat late #HPM -8:12 PM Aug 25th, 2010 ctsinclair Do you think animals have a sense about predicting the impending death of a person? Should we study it if docs are not always accurate? #hpm - 8:12 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 16/21
  • 17. 8/25/2010 TweetChat - #hpm rebeccacaroe In UK we call stories like Oscar that debut in August the "Silly Season" = no real news! #hpm #hpm -8:11 PM Aug 25th, 2010 bacigalupe RT @ctsinclair Topic #1: Oscar the death predicting cat is getting a film. http://bit.ly/bXdfiW Good idea or bad idea? #hpm -8:11 PM Aug 25th, 2010 ctsinclair For more background reading later on Oscar the Cat here is the @Pallimed post on the @NEJM article debut: http://bit.ly/cSRsfw #hpm - 8:10 PM Aug 25th, 2010 erinrbreedlove T1: Even the title's horribly inaccurate. Docs estimate TOD based on sx's and knowledge, but it's even off at times! #hpm -8:10 PM Aug 25th, 2010 rebeccacaroe yes, in NZ it it lunchtime - perfect for #tweetchat ting #hpm #hpm -8:10 PM Aug 25th, 2010 subatomicdoc Good idea but it's all in how they execute it. #hpm -8:09 PM Aug 25th, 2010 bacigalupe discovering #hpm @ctsinclair http://tweetchat.com/room/hpm with Twitter account to see stream http://slidesha.re/d4aVII #hpm -8:09 PM Aug 25th, 2010 rebeccacaroe I work for @lifeHealthDiary which is a personal health record #phr app. #hpm -8:09 PM Aug 25th, 2010 ctsinclair (Hat tip to @Hospicepharmacy for the Oscar the Cat in the Movies link) #hpm -8:09 PM Aug 25th, 2010 erinrbreedlove @rebeccacaroe Welcome! Delighted to have you...all the way from NZ?! Wow! #hpm -8:08 PM Aug 25th, 2010 ctsinclair @rebeccacaroe Welcome ,please tell us a little about yourself #hpm -8:08 PM Aug 25th, 2010 ctsinclair Topic #1: Oscar the death predicting cat is getting a film. http://bit.ly/bXdfiW Good idea or bad idea? #hpm -8:08 PM Aug 25th, 2010 dockj RT @rebeccacaroe: just joining for the first time- welcome! #hpm -8:08 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 17/21
  • 18. 8/25/2010 TweetChat - #hpm rebeccacaroe just joining for the first time #hpm -8:07 PM Aug 25th, 2010 ctsinclair Looks like we have a small group to start tonight, but same thing happened last week and then it exploded! #hpm -8:07 PM Aug 25th, 2010 HealthIsSocial RT @nickdawson: RT @ctsinclair: Welcome to #HPM tweetchat covering all thing hospice & palliative medicine w/ a little social media thrown in for fun. -8:06 PM Aug 25th, 2010 ctsinclair @subatomicdigg Thanks for digging this story btw: http://bit.ly/aDOXTp Got 242 diggs! #hpm -8:06 PM Aug 25th, 2010 nickdawson RT @ctsinclair: Welcome to #HPM tweetchat covering all thing hospice & palliative medicine w/ a little social media thrown in for fun. -8:05 PM Aug 25th, 2010 ctsinclair @subatomicdigg I was just messing around with logging in and having a heck of a time. Interface is much more clunky/slow #hpm -8:05 PM Aug 25th, 2010 inhousehospice @ctsinclair Not yet. We're filming another tomorrow and I'll be editing this weekend. Will let you know when they're up! :) #hpm -8:04 PM Aug 25th, 2010 subatomicdigg @ctsinclair Got it! Thanks, just adapting to @Digg's v4, possible demise #hpm -8:04 PM Aug 25th, 2010 ctsinclair Hi Ash, Matt and Erin! Ash did you get your video up today? #hpm - 8:03 PM Aug 25th, 2010 dockj Kevin- Family Med Residency Ed, HPM/Geri-LTC jack of many trades... #hpm -8:03 PM Aug 25th, 2010 subatomicdigg HI Matt Katz here #hpm -8:02 PM Aug 25th, 2010 ctsinclair @subatomicdoc Don't forget your #hpm tag (using Tweetchat helps) -8:02 PM Aug 25th, 2010 ctsinclair [Tweetchat Tip] join us at http://tweetchat.com/room/hpm with Twitter account to see the whole stream Howto: http://slidesha.re/d4aVII #hpm -8:02 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 18/21
  • 19. 8/25/2010 TweetChat - #hpm erinrbreedlove I'm Erin, a pre-medical student from GA heavily interested in pall med and social media! #hpm -8:01 PM Aug 25th, 2010 inhousehospice Hey, hey! It's Ash @ In-House Hospice & Palliative Care in MI and OH. #hpm -8:01 PM Aug 25th, 2010 ctsinclair Let's start with some introductions and see who is in the room tonight! #hpm -8:00 PM Aug 25th, 2010 ctsinclair Welcome to #HPM tweetchat covering all thing hospice and palliative medicine with a little social media thrown in for fun. #hcsm #hpm - 8:00 PM Aug 25th, 2010 mcgaula RT @ctsinclair: RT @SanDiegoHospice Leader talks about goals for the one of largest nonprofit #hospice in the country http://bit.ly/9rU1IE #palliative #hpm -7:34 PM Aug 25th, 2010 ctsinclair RT @SanDiegoHospice Leader talks about goals for the one of largest nonprofit #hospice in the country http://bit.ly/9rU1IE #palliative #hpm -7:33 PM Aug 25th, 2010 Pallimed Getting excited about #hpm Tweetchat come join us! in one hour at 8p CT #hospice #palliative #hcsm #RNchat -7:00 PM Aug 25th, 2010 DianeEMeier RT @CompAndChoices: Patientsusing POLST forms more likely to have wishes honored http://ow.ly/2uQ3r What's POLST? http://ow.ly/2uQ6A #hpm -6:55 PM Aug 25th, 2010 SheyontheBay RT @ctsinclair: RT @hospicepharmacy: Oscar the Death- Predicting Cat Gets His Own Movie http://bit.ly/bU3JrW #hospice #palliative #hpm 'really?' -6:38 PM Aug 25th, 2010 sharingstrength #hpm Tweetchat tonight 9pm EST! Come talk about #hospice and #palliative medicine topics How to: http://slidesha.re/9W47fF -5:58 PM Aug 25th, 2010 thaddeuspope @ctsinclair wish I could make it. Teaching EMTALA tonite #hpm #hospice #palliative -5:44 PM Aug 25th, 2010 CompAndChoices Patientsusing POLST forms more likely to have end-of-life wishes honored http://ow.ly/2uQ3r What's POLST? Go here: http://ow.ly/2uQ6A #hpm -5:30 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 19/21
  • 20. 8/25/2010 TweetChat - #hpm lprscp1 RT @ctsinclair: @haslingerppc Hope you can make it too, but family is important too 'hope to make it tonight to" #hpm -4:57 PM Aug 25th, 2010 lprscp1 RT @ctsinclair: @haslingerppc Hope you can make it too, but family is important too, will try and make it tonight #hpm -4:56 PM Aug 25th, 2010 lprscp1 RT @hospicepharmacy: missed in the Avastin debate: the importance of early #palliative intervention was ignored http://bit.ly/bOgznH #hpm -4:55 PM Aug 25th, 2010 lprscp1 looking for tweetchat tonight #hpm -4:54 PM Aug 25th, 2010 CompAndChoices Articulating the goals of hospice and educating the public about palliative care: http://ow.ly/2uPFe #hpm -4:31 PM Aug 25th, 2010 dikakid Kalo puasa jgn lupa SAyUR, Spy gak LAyAR dan LEyES di siang hari #HPM #mudah-mudahanadaygngerti #sawityowit @desta80s @vincentrompies -4:13 PM Aug 25th, 2010 AYHFamilycare RT @SanDiegoHospice Leader talks about goals for the one of largest nonprofit #hospices in the country http://bit.ly/9rU1IE #palliative #hpm -4:04 PM Aug 25th, 2010 PRProSanDiego RT @SanDiegoHospice: Leader talks about goals for the one of the largest nonprofit #hospices in the country (via @sdut) http://bit.ly/9rU1IE #palliative #hpm -4:01 PM Aug 25th, 2010 hospicepharmacy Archimedes Pharma sets up shop in Bedminster, seeks approval for nasal form of fentanyl http://bit.ly/bOj8oV #hpm #hospice -3:54 PM Aug 25th, 2010 hospicepharmacy What we missed in the Avastin debate: the importance of early #palliative intervention was ignored http://bit.ly/bOgznH #hpm -3:53 PM Aug 25th, 2010 hospicepharmacy Health Care Gap May Raise Rates of Colorectal Cancer Death in Blacks http://bit.ly/bkYXoV #hospice #cancer #hpm -3:53 PM Aug 25th, 2010 hospicepharmacy Accreditation Council for CME provides input for FDA’s REMS initiatives http://bit.ly/9JHPRC #hospice #hpm -3:52 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 20/21
  • 21. 8/25/2010 TweetChat - #hpm erinrbreedlove @ctsinclair Whoosh. Long day. Hoping to relax with #hpm chat tonight! ;) -3:40 PM Aug 25th, 2010 ctsinclair @haslingerppc Hope you can make it too, but family is important too #hpm -3:31 PM Aug 25th, 2010 ctsinclair Thx for the #hpm Tweetchat RT's @MatthewBrowning @FHShealth @hospicepharmacy @emarnold14 @KPNurseRecruit @haslingerppc @inhousehospice -3:30 PM Aug 25th, 2010 MeredithGould #hpm Tweetchat! Come talk about #hospice and #palliative medicine topics Wed @ 8pm CT How to: http://slidesha.re/9W47fF -3:23 PM Aug 25th, 2010 MatthewBrowning RT @ctsinclair: #hpm Tweetchat! Come talk about #hospice and #palliative medicine topics Wed @ 8pm CT How to: http://slidesha.re/9W47fF -3:20 PM Aug 25th, 2010 http://tweetchat.com/room/hpm 21/21