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2011 06 08 hpm tweetchat transcript
 

2011 06 08 hpm tweetchat transcript

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    2011 06 08 hpm tweetchat transcript 2011 06 08 hpm tweetchat transcript Document Transcript

    • #hpmHealthcare Hashtag Twitter Transcript From: Wed Jun 08 18:00:00 PDT 2011 To: Wed Jun 08 19:00:00 PDT 2011 Customize transcript dates and layoutLearn more about #hpm at The Healthcare Hashtag Projecthollyby For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. #hpm Wed Jun 8 18:01:03 PDT 2011elderpages 15 year old girl who is terminal with cancer has made a bucket list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpm Wed Jun 8 18:01:09 PDT 2011jodyms Hello everyone, Im Jody Schoger and will be moderating tonights #HPM chat. Im a cancer survivor, co-survivor, writer and blogger. Wed Jun 8 18:01:10 PDT 2011jfclearywisc Hi, Joining #hpm from the basement. Major thunderstorms here in Madison, WI. Fingers crossed and praying. #hpm Wed Jun 8 18:01:25 PDT 2011jodyms Whos joining us for tonights discussion? Please introduce yourself. Its great to be connected with all of you again. #HPM Wed Jun 8 18:01:54 PDT 2011ctsinclair RT @hollyby: For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. "me too!" #hpm Wed Jun 8 18:01:55 PDT 2011equijada Hi all. Thanks for hosting @jodyms #hpm Wed Jun 8 18:02:13 PDT 2011hollyby @jfclearywisc Stay safe! #hpm Wed Jun 8 18:02:35 PDT 2011elderpages Nice to "see" you all. Im a hospice volunteer, research scientist, family caregiver and webmaster committed to community devt via Web #hpm Wed Jun 8 18:02:38 PDT 2011
    • MedicalMarcom I showed up an hour early! Now I know better. Joe Hage, #MedDevice founder, mktg comm for med companies. #HPM Wed Jun 8 18:02:52 PDT 2011jodyms @jfclearywisc @equijada @ctsinclair - greetings! #HPM Wed Jun 8 18:02:57 PDT 2011authordhallman #hpm - David here. lost my partner to pancreatic cancer 2 wks after diagnosis. Wed Jun 8 18:03:05 PDT 2011aliciabloom MSW, LSW from @VITASHospice & Palliative Care. #hpm consults, clinical education & program development. #hpm Wed Jun 8 18:03:28 PDT 2011equijada @authordhallman Hi David, welcome. #hpm Wed Jun 8 18:03:38 PDT 2011MedicalMarcom I am looking to meet a HPM professional with experience selling into #HPM orgs + figured yall would have recos? Wed Jun 8 18:03:57 PDT 2011hollyby Hello, Holly Yang. HPM doc from @SanDiegoHospice. Interests in international #palliative med, pt care, med ed, SoMe, communication #hpm Wed Jun 8 18:04:11 PDT 2011Freshwidow Supa, widow blogger, #HPM advocate and family member. Crazy hair. Thanks for hosting, @jodyms! Wed Jun 8 18:04:31 PDT 2011jodyms Welcome @authorhallman @aliciabloom @medicalmarcom #hpm Wed Jun 8 18:04:32 PDT 2011DrSnit @jodyms Hey cats! Longtime no see Jodycakes!! Muah!! #hpm Wed Jun 8 18:04:46 PDT 2011PracticalWisdom HI Im Lisa Trainer/Speaker/Creative Connector. Looking forward to @jodyms and the other leaders in #HPM Field #HPM Wed Jun 8 18:04:51 PDT 2011hollyby As always, all tweets are my own #hpm Wed Jun 8 18:05:08 PDT 2011drseisenberg Hi there! Steven Eisenberg. Medical oncologist. Lyrical Life guy. I co-write original songs with cancer and hospice patients. #hpm Wed Jun 8 18:05:21 PDT 2011PinkRibbonBlues #HPM Gayle here, medical sociologist, focus on breast cancer culture, industry, advocacy, and survivorship. Love @jodyms Wed Jun 8 18:05:24 PDT 2011
    • doctatum RT @doctatum Paul from Mo. Before the floods hit. On phone. Oops. #hpm Wed Jun 8 18:05:27 PDT 2011ctsinclair Intros: Hello, Christian Sinclair here, Palliative MD @KChospice, Editor @Pallimed, fan of @SportingKC and the new @LiveSTRONGPark #hpm Wed Jun 8 18:05:32 PDT 2011jodyms Ill asking #HPM questions tonight on behalf of the cancer survivor community. And Im sure if I misrepresent them well hear otherwise:) Wed Jun 8 18:05:32 PDT 2011jfclearywisc @MedicalMarcom PRobably not tonight given topic is "Abandonment-what patients really feel. Dont mean to abandon you :-) #hpm Wed Jun 8 18:05:41 PDT 2011jodyms @drsnit @hollyby @practicalwisdom Awesome to see you:) #hpm Wed Jun 8 18:06:00 PDT 2011uvmer Hi! Lurking in the shadows and might butt in. (: #HPM Wed Jun 8 18:06:10 PDT 2011MatthewsMichele <--#hospice, #hpm advocate, patient and community empowerment enthusiast! #hpm Wed Jun 8 18:06:11 PDT 2011revdoc RT @ctsinclair: RT @hollyby: For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. "me too!" #hpm Wed Jun 8 18:06:34 PDT 2011MedicalMarcom @jfclearywisc thanks. Ill stick around all the same + meet some new #HPM folks! Wed Jun 8 18:06:41 PDT 2011DrSnit Me 3 RT @ctsinclair RT @hollyby: For the next hour Ill be tweeting from the #hospice & #palliative medicine tweetchat. "me too" #hpm Wed Jun 8 18:06:47 PDT 2011ctsinclair @hollyby RE: Twwets are my own: Intersting take from @Doctor_V Should We Ditch Social Media Disclaimers? http://hpm.md/lzTW9G #hpm Wed Jun 8 18:06:47 PDT 2011PracticalWisdom Sorry are the floods close? RT @doctatum: RT @doctatum Paul from Mo. Before the floods hit. On phone. Oops. #HPM Wed Jun 8 18:06:58 PDT 2011MatthewsMichele <---oh and #socialmedia junkie! :-) #hpm Wed Jun 8 18:07:20 PDT 2011ctsinclair @uvmer Hi Nancy, I am sure we will lure you in with some good conversation! #hpm Wed Jun 8 18:07:25 PDT 2011
    • jodyms #HPM - Our topic tonight is what patients really fear: abandonment. Abandonment by doctors, friends, and family. Wed Jun 8 18:07:31 PDT 2011PracticalWisdom Thanks excited about tonight. RT @jodyms: @drsnit @hollyby @practicalwisdom Awesome to see you:) #HPM Wed Jun 8 18:07:42 PDT 2011revdoc Pam Harris MD @KCHospice, ordained minister #hpm Wed Jun 8 18:07:47 PDT 2011DrSnit RT @jodyms: Ill asking #HPM questions tonight on behalf of the cancer survivor community. And Im sure if I misrepresent them well hear otherwise:) Wed Jun 8 18:08:06 PDT 2011revdoc @revdoc @KCHospice Tweets are my own #hpm Wed Jun 8 18:08:14 PDT 2011RossJeanette Hi Im Jeanette Ross HPM doc associate Fellowship director @uthscsa in san Antonio passionate about teaching. Will lurk tonight #hpm Wed Jun 8 18:08:14 PDT 2011elderpages @jodyms I would like to hear more about some of those fears. Can you start with a few? #hpm Wed Jun 8 18:08:17 PDT 2011hollyby @ctsinclair Its part of my employers SoMe policy, I believe, so... I do it. #hpm Wed Jun 8 18:08:26 PDT 2011ctsinclair @PinkRibbonBlues Hi Gayle! Welcome to the chat! #hpm Wed Jun 8 18:08:33 PDT 2011uvmer @ctsinclair Most probably... (: Not the silent type. Thanks. #HPM Wed Jun 8 18:08:40 PDT 2011jodyms So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm Wed Jun 8 18:08:42 PDT 2011equijada RT @jodyms: Ill asking #HPM questions tonight on behalf of the cancer survivor community. And Im sure if I misrepresent them well hear otherwise:) Wed Jun 8 18:09:08 PDT 2011ctsinclair Just a tip if you do use cancer in your tweet feel free to hashtag it. Some people might be looking for that, and stumble here. #hpm Wed Jun 8 18:09:10 PDT 2011MatthewsMichele RT @jodyms: So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm
    • Wed Jun 8 18:09:11 PDT 2011hollyby RT @jodyms: So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm Wed Jun 8 18:09:13 PDT 2011JohnGirdwood @ctsinclair I love this #hpm thing so much, almost as much (maybe equally) as watching Tigers or BoSox vs Yankees! Wed Jun 8 18:09:28 PDT 2011ctsinclair RT @hollyby: @ctsinclair Its part of my employers SoMe policy, I believe, so... I do it. "good answer!" #hpm Wed Jun 8 18:09:31 PDT 2011jodyms RT @ctsinclair: Just a tip if you do use cancer in your tweet feel free to hashtag it. Some people might be looking for that, and stumble here. #hpm Wed Jun 8 18:09:34 PDT 2011jodyms @uvmer Nancy, you have a lot to add here. Im glad youve joined us. #hpm Wed Jun 8 18:09:59 PDT 2011andybaldwin @ctsinclair @kchospice @pallimed @sportingkc @hollyby @livestrongpark #hpm hi everyone! Dr. Baldwin here #AskDrAndy Wed Jun 8 18:10:00 PDT 2011Doctor_V And The Palliatives convene #hpm Wed Jun 8 18:10:19 PDT 2011elderpages Can you help by clarifying transition from what? Do you mean changing goals of care from curative to comfort? #hpm Wed Jun 8 18:10:26 PDT 2011hollyby @andybaldwin Hi Andy! Great to have you join us! #hpm Wed Jun 8 18:10:38 PDT 2011PracticalWisdom RT @jodyms: RT @ctsinclair: Just a tip if you do use cancer in tweet feel free 2 hashtag. # people might B looking4 & stumble here. #HPM Wed Jun 8 18:10:44 PDT 2011DrSnit RT @jodyms: So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm Wed Jun 8 18:10:45 PDT 2011ctsinclair T1 (Clarification) @jodyms Which we" did you have in mind with this question? We the chatters, we the social media-ists, etc? #hpm Wed Jun 8 18:10:50 PDT 2011elderpages RT @Doctor_V: And The Palliatives convene...T: Sounds like a backup band :-) #hpm Wed Jun 8 18:11:02 PDT 2011
    • JohnGirdwood I was called to HR before to clear up my use so... RT @hollyby: @ctsinclair Its part of my employers SoMe policy, so... I do it #hpm Wed Jun 8 18:11:06 PDT 2011aliciabloom early integration #palliative care brings supportive care throughout the continuum of illness, making it less of an abrupt transition #hpm Wed Jun 8 18:11:14 PDT 2011uvmer @jodyms Thanks Jody. (: #hpm Wed Jun 8 18:11:16 PDT 2011PracticalWisdom Are you going to join us tonight? That would be great RT @Doctor_V: And The Palliatives convene #HPM Wed Jun 8 18:11:17 PDT 2011jodyms @elderpages T1: Transition from curative to comfort and supportive. #hpm Wed Jun 8 18:11:21 PDT 2011DrSnit @jodyms Yes yes yes! so glad youre here @uvmer!! xo #hpm Wed Jun 8 18:11:26 PDT 2011ctsinclair T1: I think healing supportive care should come as part of the package regardless of goals #hpm Wed Jun 8 18:11:38 PDT 2011equijada t1 prior to working together, I have to be prepared to go into a place that is sacred, scary. Make sure Im in a good place #hpm Wed Jun 8 18:11:50 PDT 2011drseisenberg T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #hpm Wed Jun 8 18:11:59 PDT 2011DoctorFisher Hello Palliators #hpm Wed Jun 8 18:12:02 PDT 2011ctsinclair RT @aliciabloom: early integration #palliative care brings supportive care across continuum of illness, making less abrupt transition #hpm Wed Jun 8 18:12:07 PDT 2011PracticalWisdom RT @aliciabloom: early integration #palliative care brings supportive care throughout continuum illness, making it (-) an abrupt trans. #HPM Wed Jun 8 18:12:17 PDT 2011revdoc T1 IMHO we need better training, inservices, curriculum for non-HPM types so that referrals are made by usual MDs, nonthreatening #hpm Wed Jun 8 18:12:20 PDT 2011ctsinclair @aliciabloom Nice concise statement! #hpm Wed Jun 8 18:12:20 PDT 2011
    • PracticalWisdom RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #HPM Wed Jun 8 18:12:30 PDT 2011DoctorFisher RT @ctsinclair: T1: I think healing supportive care should come as part of the package regardless of goals #hpm Wed Jun 8 18:12:39 PDT 2011elderpages Guess Im in listening mode (questions mode). What would survivors like professionals to do to be more collaborative? #hpm Wed Jun 8 18:12:53 PDT 2011aliciabloom @ctsinclair thanks! im getting better at this 140 character thing ;) #hpm Wed Jun 8 18:12:55 PDT 2011PracticalWisdom RT @revdoc: T1 IMHO we need better training, inservices, curriculum for non-HPM types so referrals R made by usual MDs, nonthreatening #HPM Wed Jun 8 18:13:03 PDT 2011Doctor_V Lurking #hpm Wed Jun 8 18:13:13 PDT 2011PracticalWisdom RT @elderpages: Guess Im in listening mode (questions mode). What would survivors like professionals to do to be more collaborative? #HPM Wed Jun 8 18:13:17 PDT 2011thinkalot RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #hpm Wed Jun 8 18:13:29 PDT 2011jodyms @ctsinclair T1: Understand that the end of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. #hpm Wed Jun 8 18:13:43 PDT 2011ctsinclair T1: Important to address w/ psychology of the patient and the family, seen wide variety of adjustment to illness (some good, some bad) #hpm Wed Jun 8 18:13:47 PDT 2011hollyby T1: It should not feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure. #hpm Wed Jun 8 18:13:57 PDT 2011ihatebreastcanc @jodyms Katherine with bone-only MBC #hpm Wed Jun 8 18:14:10 PDT 2011drseisenberg Med oncs can become involved with a hospice. Continuity. #hpm Wed Jun 8 18:14:24 PDT 2011DrSnit Im always intrigued by how afraid and alone people (the patients, the caretakers sometimes even the docs) feel during treatment #hpm
    • Wed Jun 8 18:14:24 PDT 2011MatthewsMichele RT @elderpages: 15 year old girl who is terminal with cancer has made a bucket list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpm Wed Jun 8 18:14:25 PDT 2011ctsinclair @elderpages Yes I would like to here from #cancer survivors as well on this topic. #hpm Wed Jun 8 18:14:28 PDT 2011jodyms @PracticalWisdom @elderpages First we need to make connections between clinical #HPM and survivor communities. Bridge must be constructed. Wed Jun 8 18:14:41 PDT 2011equijada RT @jodyms: @ctsinclair T1: Understand that the end of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. #hpm Wed Jun 8 18:14:42 PDT 2011jodyms @ihatebreastcanc Thank you for joining us. #hpm Wed Jun 8 18:14:59 PDT 2011ctsinclair T1: the curious challenge is identifying transition points. All stakeholders may have different perceptions of timing. #hpm Wed Jun 8 18:14:59 PDT 2011PracticalWisdom RT @ctsinclair: T1: Imp.2 address w/ psychology of pt & family, seen wide variety of adjustment to illness (some good, some bad) #HPM Wed Jun 8 18:15:03 PDT 2011hollyby RT @ctsinclair: T1: the curious challenge is identifying transition points. All stakeholders may have different perceptions of timing. #hpm Wed Jun 8 18:15:28 PDT 2011elderpages RT @equijada: RT @jodyms: T1: End of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. #hpm Wed Jun 8 18:15:34 PDT 2011DrSnit @uvmer :) so glad youve joined the conversation. Your voice is necessary! xo #hpm Wed Jun 8 18:15:38 PDT 2011ctsinclair @ihatebreastcanc We really appreciate the perspective of patients and families in this chat. Glad you are here. #hpm Wed Jun 8 18:15:47 PDT 2011MatthewsMichele pls. rt @JohnAmussen: Im a marrow donor. heres 1 reason why. http://t.co/72Kubdy / #alicebucketlist” me too! www.marrow.org via @mswz #hpm Wed Jun 8 18:15:53 PDT 2011PracticalWisdom RT @jodyms: @PracticalWisdom @elderpages 1st we need 2 make connect Btween clinical #HPM/survivor commu. Bridge must be constructed. #HPM Wed Jun 8 18:15:57 PDT 2011
    • elderpages TI: I think part of collaboration is starting where "they/we" are. Families and patients not always on same page as each other. #hpm Wed Jun 8 18:16:20 PDT 2011authordhallman #hpm In Ontario, we benefitted from the coordinating agency that links the PC MDs, community nurses, homemakers for the family’s benefit Wed Jun 8 18:16:23 PDT 2011jfclearywisc In #cancer & other diseases, do we reduce sense of abandonment with clear definition of goals of care: cure, prolong, palliate #hpm Wed Jun 8 18:16:39 PDT 2011ctsinclair RT @hollyby: T1: Shouldnt feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure #hpm Wed Jun 8 18:16:50 PDT 2011JohnGirdwood Like your twitter name : ) RT @jodyms: @ihatebreastcanc Thank you for joining us. #hpm Wed Jun 8 18:17:00 PDT 2011equijada @jodyms how do cancer patients wish to transitioner? As a physician, I slowly push boundaries till I get resistance then back off #hpm Wed Jun 8 18:17:05 PDT 2011PracticalWisdom RT @elderpages: TI: Part of collaboration is starting where "they/we" R. Families/patients not always on same page as each other. #HPM Wed Jun 8 18:17:07 PDT 2011DrSnit @elderpages YES! And even when they ARE on the same page, EMOTIONS come up and people feel like a "failure" for having feelings #hpm Wed Jun 8 18:17:23 PDT 2011MatthewsMichele T1: End of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. via @jodyms #hpm Wed Jun 8 18:17:24 PDT 2011aliciabloom stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:17:25 PDT 2011uvmer As care giver to my partner w/a brain tumor, an early conversation & an advanced directive were key.Knew then the path I was to follow. #hpm Wed Jun 8 18:17:34 PDT 2011jfclearywisc RT @hollyby: T1: Shouldnt feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure #hpm Wed Jun 8 18:17:36 PDT 2011Freshwidow I disagree about transition points. @ctsinclair: As a #cancer widow, I wish we had some orientation to hospice/PM at dx... or earlier! #hpm Wed Jun 8 18:17:39 PDT 2011ctsinclair T1: I think the concept of navigator has been helpful in breast #cancer, wondering if applied more broadly? #hpm
    • applied more broadly? #hpm Wed Jun 8 18:17:47 PDT 2011PracticalWisdom RT @equijada: @jodyms how do cancer patients wish2 transitioner? As MD, I slowly push boundaries till I get resistance then back off #HPM Wed Jun 8 18:18:01 PDT 2011elderpages I love the work of Dr. David Casarret: Talk first about hopes and achievable goals. Strategize transition in context of achieving these #hpm Wed Jun 8 18:18:11 PDT 2011jodyms Elaborate - I like that RT @aliciabloom stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:18:12 PDT 2011MatthewsMichele @PracticalWisdom @elderpages how do we get them on the same page...is that not where the process should begin? #hpm Wed Jun 8 18:18:12 PDT 2011MatthewsMichele RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:18:18 PDT 2011ctsinclair @aliciabloom Got to talk to a nurse today about that. She was very receptive to having good language to describe the role of pall care #hpm Wed Jun 8 18:18:19 PDT 2011jfclearywisc @uvmer So how tough was that early conversation and did it take away hope? #hpm Wed Jun 8 18:18:30 PDT 2011Freshwidow I believe once you get the idea that there is a "transition" point, you are too delicate to ever start with most ppl. #hpm @ctsinclair Wed Jun 8 18:18:41 PDT 2011drseisenberg T1: Compassionate communication must be there from day 1. #hpm Wed Jun 8 18:18:45 PDT 2011ctsinclair @Freshwidow So glad you are here! Tell me more why you disagree about transition points. I think we are probably on the same page. #hpm Wed Jun 8 18:18:50 PDT 2011jodyms @freshwidow I agree completely from what Ive seen and experienced. #hpm Wed Jun 8 18:18:54 PDT 2011equijada RT @Freshwidow: I disagree about transition points. @ctsinclair: As a #cancer widow, I wish we had some orientation to hospice/PM at dx... or earlier! #hpm Wed Jun 8 18:18:54 PDT 2011revdoc T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm Wed Jun 8 18:19:00 PDT 2011
    • elderpages RT @MatthewsMichele: how do we get them on the same page...is that not where the process should begin?...T: "Whose" page is first? #hpm Wed Jun 8 18:19:17 PDT 2011Freshwidow With us, the disease was slow for a long time... it started to change v. quickly, then more quickly. NO time to adjust. #hpm @ctsinclair Wed Jun 8 18:19:33 PDT 2011elderpages RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?... T: As a former midwife, YES!!! #hpm Wed Jun 8 18:19:35 PDT 2011DrSnit RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm Wed Jun 8 18:19:39 PDT 2011ctsinclair @uvmer Was knowing the path helpful, even if you veered off the path? Like knowing when things were not as planned? #hpm Wed Jun 8 18:19:40 PDT 2011RossJeanette T1 healthcare providers should accept that palliative care can improve quality and length of life too. #HPM Wed Jun 8 18:19:43 PDT 2011PracticalWisdom Not sure there is a simple nor easy answer. G8 ?RT @MatthewsMichele: @PracticalWisdom @elderpages how do we get them on the same page. #HPM Wed Jun 8 18:19:47 PDT 2011aliciabloom if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm Wed Jun 8 18:19:51 PDT 2011ihatebreastcanc #cancer the word palliative is misunderstood. Some equate it with giving up or no hope. Need to clearly define for patient and family #hpm Wed Jun 8 18:19:58 PDT 2011jodyms EOL navigators, doulas? Those are interesting thoughts. #hpm Wed Jun 8 18:20:02 PDT 2011ctsinclair @revdoc There have been some doulas for EOL but I think they would avoid calling themselves Death Doulas. #hpm Wed Jun 8 18:20:07 PDT 2011EldrcareConsult Wait!!! Dont start yet!!! I am here now! :) #hpm Wed Jun 8 18:20:17 PDT 2011aliciabloom @ctsinclair language is critically important and a focus of the clinical education i do. #hpm Wed Jun 8 18:20:22 PDT 2011hollyby T1: Providers need to develop communication skills to address goals & what is important to the patient at diagnosis and revisit them #hpm
    • Wed Jun 8 18:20:27 PDT 2011MatthewsMichele @elderpages @MatthewsMichele the patients page...definitely the patients page. #hpm Wed Jun 8 18:20:29 PDT 2011PracticalWisdom RT @Freshwidow: With us, disease was slow 4 a long timeit started 2 change v. quickly/then quickly. NO time to adjust. #hpm @ctsinclair #HPM Wed Jun 8 18:20:35 PDT 2011westr RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm Wed Jun 8 18:20:35 PDT 2011Pallimed Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc Wed Jun 8 18:20:36 PDT 2011MatthewsMichele RT @aliciabloom: if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm Wed Jun 8 18:20:40 PDT 2011ctsinclair RT @jodyms: EOL navigators, doulas? Those are interesting thoughts. "but then we have the tough EOL/labeling issue" #hpm Wed Jun 8 18:21:00 PDT 2011PracticalWisdom So glad to see you. Always add value and kindness.RT @EldrcareConsult: Wait!!! Dont start yet!!! I am here now! :) #HPM Wed Jun 8 18:21:12 PDT 2011jodyms RT @westr: RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm Wed Jun 8 18:21:12 PDT 2011revdoc RT @ctsinclair: I think they avoid calling themselves Death Doulas. "Are we still that death avoidant? Its birth to different realm" #hpm Wed Jun 8 18:21:40 PDT 2011DrSnit @revdoc The idea of a "death doula" is powerful. But death, loss, & dying are so culturally centered, who would do it best? #hpm Wed Jun 8 18:21:46 PDT 2011EldrcareConsult The little one and I were out washing my truck..... :) #hpm Wed Jun 8 18:21:47 PDT 2011JoshGriffin RT @RossJeanette: T1 healthcare providers should accept that palliative care can improve quality and length of life too. #HPM Wed Jun 8 18:21:49 PDT 2011Freshwidow I hear this a LOT from my widows... and we often focus it (wrongly I think) on the excessive hope in disease communities #hpm @ctsinclair Wed Jun 8 18:21:53 PDT 2011
    • jodyms T2: You all agree on early discussion. Where/when does that take place? #hpm Wed Jun 8 18:21:56 PDT 2011jfclearywisc I talk to all patients with advanced disease about #hpm. They can choose not to have anticancertherapy. Hospice is important then. #hpm Wed Jun 8 18:21:57 PDT 2011PracticalWisdom Listening to needs 1st start.RT @westr: RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm #HPM Wed Jun 8 18:22:02 PDT 2011PinkRibbonBlues RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm Wed Jun 8 18:22:07 PDT 2011ctsinclair @Freshwidow The different trajectories of illness is often discussed by palliative teams. Some are gradual, others very erratic #hpm Wed Jun 8 18:22:15 PDT 2011elderpages See link on tipsheet for talking about hospice: Identify hopes first. http://bit.ly/m1wYsJ #hpm Wed Jun 8 18:22:16 PDT 2011jodyms @revdoc @ctsinclair We ARE death avoidant. How do we tell the truth in cultures where the truth is not to be told? #hpm Wed Jun 8 18:22:37 PDT 2011Freshwidow For me, hope for change is in the grassroots already active: disease communities MUST start to talk about "not every makes it." #hpm Wed Jun 8 18:22:42 PDT 2011vj_CR @PracticalWisdom hello Lisa! I´m I too late to jump in #hpm ?? Wed Jun 8 18:22:49 PDT 2011jodyms RT @jfclearywisc: I talk to all patients with advanced disease about #hpm. They can choose not to have anticancertherapy. Hospice is im ... Wed Jun 8 18:22:51 PDT 2011PinkRibbonBlues RT @Freshwidow @ctsinclair We often focus it (wrongly I think) on the excessive hope in disease communities #hpm Wed Jun 8 18:22:55 PDT 2011equijada @jodyms would it be helpful if a healthcare provider was identified from day one as the "non-abandoner" (obviously need better term) #hpm Wed Jun 8 18:23:21 PDT 2011ihatebreastcanc #cancer everybody wants to go to heaven but nobody wants to die. Denial is a powerful coping mechanism! #hpm Wed Jun 8 18:23:21 PDT 2011buffalogator RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and
    • buffalogator RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc Wed Jun 8 18:23:23 PDT 2011jodyms Agree! RT @Freshwidow I hear this a LOT from my widows... and we often focus it (wrongly I think) on excessive hope #hpm @ctsinclair Wed Jun 8 18:23:32 PDT 2011MatthewsMichele @vj_CR @PracticalWisdom my two cents...no way, jump in anytime! ;) #hpm Wed Jun 8 18:23:36 PDT 2011hollyby @jfclearywisc Some patients on hospice continue palliative chemo, dont necessarily have to d/c anticancer therapy. #hpm Wed Jun 8 18:23:39 PDT 2011drseisenberg I saw so many young patients today; new patients. Connection first. #hpm Wed Jun 8 18:23:46 PDT 2011ctsinclair @revdoc Yes we (culture) are death avoidant in terms of our own mortality. Most acknowledge death is inevitable, just not dying yet. #hpm Wed Jun 8 18:23:47 PDT 2011Freshwidow We widows OFTEN see this as a culture change issue across the board b/c of our isolation and perspective btwn 2 worlds #hpm. Wed Jun 8 18:23:54 PDT 2011PracticalWisdom @Jodyms is our leader 2 night sure she/we are glad you R hereRT @vj_CR: @PracticalWisdom hello Lisa! I´m I too late to jump in #hpm ?? #HPM Wed Jun 8 18:23:56 PDT 2011revdoc @jodyms @ctsinclair We learn to tell truth in the language of each culture; takes a lot of work and cultural sensitivity #hpm Wed Jun 8 18:24:09 PDT 2011ctsinclair RT @Freshwidow: hope for change is in the grassroots already active: disease communities MUST start to talk about "not every makes it." #hpm Wed Jun 8 18:24:13 PDT 2011vj_CR @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome! Wed Jun 8 18:24:17 PDT 2011jfclearywisc RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent: Yes it is informed consent so need it from diagnosis. #hpm Wed Jun 8 18:24:18 PDT 2011equijada @jodyms @Freshwidow I like what @jfclearywisc has been teaching about hope/hubris #hpm Wed Jun 8 18:24:30 PDT 2011ctsinclair RT @drseisenberg: I saw so many young patients today; new patients. Connection first. "Helps establish trust, and non-abandonment" #hpm Wed Jun 8 18:24:34 PDT 2011
    • DrSnit @Freshwidow People often take "hope" or make "meanings" in amazing ways during the illness process. How or should we even shift this? #hpm Wed Jun 8 18:24:46 PDT 2011elderpages RT @PinkRibbonBlues: We often focus it (wrongly I think) on the excessive hope...T: Hope has many faces. http://bit.ly/mUBNWI #hpm Wed Jun 8 18:24:49 PDT 2011VillageMemorial @ctsinclair What about collaborating w/friendly funeral directors? #hpm Wed Jun 8 18:24:53 PDT 2011ctsinclair RT @ihatebreastcanc: #cancer everybody wants to go to heaven but nobody wants to die. Denial is a powerful coping mechanism! #hpm Wed Jun 8 18:25:06 PDT 2011aliciabloom at time of diagnosis with an advanced illness there should be discussion about values, preferences and wishes. balance hope & reality. #hpm Wed Jun 8 18:25:08 PDT 2011jodyms Absolutely @equijada would it be helpful if a healthcare provider was idd frm day as one "non-abandoner" (obviously need better term) #hpm Wed Jun 8 18:25:14 PDT 2011MarksPhone Sorry had a senior day totally forgot #hpm Wed Jun 8 18:25:24 PDT 2011ctsinclair @ihatebreastcanc Important too, to recognize that denial as coping mechanism is not always negative can be helpful at times. #hpm Wed Jun 8 18:25:35 PDT 2011jfclearywisc @hollyby @jfclearywisc Not suggesting cant have chemo and hospice. Informed consent is reason for early Hospice discussion @diagnosis #hpm Wed Jun 8 18:25:36 PDT 2011EldrcareConsult @VillageMemorial @ctsinclair I have established some great relationships with funeral directors...they are great resources #hpm Wed Jun 8 18:25:48 PDT 2011revdoc RT @revdoc: @jodyms @ctsinclair lot of work & cultural sensitivity "also not a one time thing, reveal the truth over time as pt/fam tol #hpm Wed Jun 8 18:25:57 PDT 2011hollyby RT @aliciabloom: at time of dx w/ advanced illness there should be discussion abt values, preferences & wishes. balance hope & reality. #hpm Wed Jun 8 18:26:04 PDT 2011JohnGirdwood Great! Every step of the way RT @equijada: @jodyms helpful if healthcare provider identified from day 1: "non-abandoner" #hpm Wed Jun 8 18:26:24 PDT 2011VillageMemorial Does anyone have experience w/home monitoring distance care over internet?
    • VillageMemorial Does anyone have experience w/home monitoring distance care over internet? #hpm Wed Jun 8 18:26:27 PDT 2011ctsinclair @jodyms RE: Non-abandoner - we need more negatives in there. I am a non-anti- abandoning unavoider. ;-) #hpm Wed Jun 8 18:26:28 PDT 2011PracticalWisdom VAlentina is joining us from Argentina RT @vj_CR: @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome! #HPM Wed Jun 8 18:26:30 PDT 2011hollyby True. RT @jfclearywisc: @hollyby Not suggesting cant have chemo & hospice. Informed consent is reason for early Hospice discussion @ dx #hpm Wed Jun 8 18:26:40 PDT 2011jfclearywisc RT @equijada: @jodyms @Freshwidow I like what @jfclearywisc has been teaching about hope/hubris Thanks it is James Tulskys work!! #hpm Wed Jun 8 18:26:44 PDT 2011aliciabloom #palliative care discussions before LVAD surgery did not take away hope & was found to provide relief (mnt.to/3WDs) #hpm Wed Jun 8 18:26:51 PDT 2011Freshwidow I wonder if shrinks can offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro? Wed Jun 8 18:26:56 PDT 2011PracticalWisdom RT @EldrcareConsult: @VillageMemorial @ctsinclair I have established # great relationships w/ funeral directors they R great resources #HPM Wed Jun 8 18:27:05 PDT 2011jodyms @ctsinclair EOL facilitor doesnt work, either.....#hpm Wed Jun 8 18:27:09 PDT 2011drseisenberg I had to listen listen listen and then listen. Then gently talk about what we need to do next. #hpm Wed Jun 8 18:27:14 PDT 2011ctsinclair @jfclearywisc Would love health care to really focus on informed consent. So undervalued. Worlds biggest lie I have read the terms #hpm Wed Jun 8 18:27:27 PDT 2011Freshwidow Agree -- or earlier! RT @hollyby: RT @aliciabloom: at time of dx w/ advanced illness there should be discussion ..... #hpm Wed Jun 8 18:27:30 PDT 2011jodyms RT @aliciabloom: #palliative care discussions before LVAD surgery did not take away hope & was found to provide relief (mnt.to/3WDs) #hpm Wed Jun 8 18:27:31 PDT 2011jodyms RT @PracticalWisdom: VAlentina is joining us from Argentina RT @vj_CR: @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm ... Wed Jun 8 18:27:43 PDT 2011
    • Wed Jun 8 18:27:43 PDT 2011jodyms RT @Freshwidow: I wonder if shrinks can offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro? Wed Jun 8 18:27:53 PDT 2011ctsinclair RT @Freshwidow: Can shrinks offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro? cc @DrShock #hpm Wed Jun 8 18:27:59 PDT 2011elderpages @jfclearywisc Do you have link to some of James Tulskys work? #hpm Wed Jun 8 18:27:59 PDT 2011DrSnit Many fear if they dont have "hope" or a act a certain way during the illness process they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:28:13 PDT 2011uvmer @jfclearywisc Actually before initial surgery. Never spoke of it again. In the end ability to speak was gone, but knew what I had to do #hpm Wed Jun 8 18:28:29 PDT 2011aliciabloom @Freshwidow i believe #palliative care clinicians can help patients & families cope with catastrophic diagnosis. #hpm Wed Jun 8 18:28:29 PDT 2011VillageMemorial @aliciabloom Good points. Planning is vital. #hpm Wed Jun 8 18:28:32 PDT 2011PracticalWisdom Along w/ your songs!RT @drseisenberg: I had to listen listen listen and then listen. Then gently talk about what we need to do next. #HPM Wed Jun 8 18:28:34 PDT 2011jodyms RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during the illness process they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:28:34 PDT 2011Freshwidow Yes, one really must use holistic, positive language. Like SISTER/BROTHER... navigator. @jodyms: @ctsinclair #hpm Wed Jun 8 18:28:37 PDT 2011MatthewsMichele RT @aliciabloom: @Freshwidow i believe #palliative care clinicians can help patients & families cope with catastrophic diagnosis. #hpm Wed Jun 8 18:28:50 PDT 2011jfclearywisc RT @ctsinclair: @jfclearywisc Would love health care to really focus on informed consent. Bet u bought ur house w/o reading fineprint #hpm Wed Jun 8 18:28:51 PDT 2011HumpbacksRule #hpm Hi all, Late to the party, but lurking :) Ro here- Research nurse, hospice volunteer. Wed Jun 8 18:28:53 PDT 2011JohnGirdwood Huh? Confused RT @hollyby: @jfclearywisc patients on hospice continue palliative
    • JohnGirdwood Huh? Confused RT @hollyby: @jfclearywisc patients on hospice continue palliative chemo, dont necessarily d/c anticancer therapy. #hpm Wed Jun 8 18:28:57 PDT 2011Gregmogel wow. “@revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm” Wed Jun 8 18:29:05 PDT 2011jodyms At the cancer centers Ive seen the #HPM department is off and away....down a hall, on the top floor, set aside. Lets start there. Wed Jun 8 18:29:12 PDT 2011elderpages @aliciabloom has hope to trend on twitter! David Casarrets book Last Acts is all about what people choose to do in final weeks. #hpm Wed Jun 8 18:29:17 PDT 2011uvmer Sorry, my computer needs hospice! In slo-mo tonight. #hpm Wed Jun 8 18:29:21 PDT 2011equijada @DrSnit dont think dying has to be taught...just experienced. #hpm Wed Jun 8 18:29:24 PDT 2011JoshGriffin RT @ctsinclair: @jodyms RE: Non-abandoner - we need more negatives in there. I am a non-anti-abandoning unavoider. ;-) #hpm Wed Jun 8 18:29:38 PDT 2011TreatThePain RT @painpolicy: 15 year old girl w/ terminal cancer has made a bucket list. One of her wishes: to trend on Twitter. Plz give a RT #alicebucketlist #hpm Wed Jun 8 18:29:44 PDT 2011ctsinclair RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:29:50 PDT 2011hellen177 RT @uvmer: As care giver to my partner w/a brain tumor, an early conversation & an advanced directive were key.Knew then the path I was to follow. #hpm Wed Jun 8 18:29:50 PDT 2011hollyby @JohnGirdwood Which part? #hpm Wed Jun 8 18:29:54 PDT 2011ctsinclair @DrSnit I see many patients who deny symptoms because they dont want people to think anti-cancer treatments are failing. #hpm Wed Jun 8 18:30:16 PDT 2011joshgriffin RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:30:24 PDT 2011equijada “@jodyms: At the cancer centers Ive seen the #HPM department is off & away....down a hall, on the top floor, set aside..start there.” Amen Wed Jun 8 18:30:26 PDT 2011
    • vj_CR @DrSnit mmmm I don´t think you can be taught on how to die.... probably it´s part of the journey.... #hpm Wed Jun 8 18:30:39 PDT 2011MatthewsMichele I agree wholeheartedly! RT @equijada: @DrSnit dont think dying has to be taught...just experienced. #hpm Wed Jun 8 18:30:56 PDT 2011aliciabloom @elderpages absolutely-- lovely stories in the book. i have a signed copy:) worked with dr. casarret when i was at penn. #hpm Wed Jun 8 18:30:58 PDT 2011ctsinclair RT @uvmer: Sorry, my computer needs hospice! In slo-mo tonight. "Cmon computer, you can do it!" #hpm Wed Jun 8 18:30:58 PDT 2011DrSnit @equijada :) Thats like saying birth is natural- just go push sweetie. Death and illness are a process. We NEED EACH OTHER. #hpm Wed Jun 8 18:30:58 PDT 2011PinkRibbonBlues RT @DrSnit Many fear if they dont have "hope" or a act a certain way during the illness process they WILL be abandoned. #hpm Wed Jun 8 18:30:59 PDT 2011Freshwidow @aliciabloom But we resist when we are marshalling 100% to get thru 1st therapy, research.... etc. We create our disease mindset... #hpm Wed Jun 8 18:31:04 PDT 2011PracticalWisdom Wonder Why? RT @jodyms: all cancer centers Ive seen #HPM depar is off away.down a hall, on the top floor, set aside. Lets start there. #HPM Wed Jun 8 18:31:15 PDT 2011MarksPhone @ctsinclair well said and Ive seen that as well but I think it is a way for them to feel hope #hpm Wed Jun 8 18:31:16 PDT 2011jodyms RT @ctsinclair @DrSnit ..many patients who deny symptoms because they dont want people to think anti-cancer treatments are failing. #hpm Wed Jun 8 18:31:22 PDT 2011equijada @DrSnit @equijada true that. #hpm Wed Jun 8 18:31:33 PDT 2011revdoc @equijada @DrSnit But once U have the exper, U cant teach others except passively. We can teach "how to die well" w/ our global exps. #hpm Wed Jun 8 18:31:36 PDT 2011ctsinclair RT @equijada: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm Wed Jun 8 18:31:51 PDT 2011ihatebreastcanc RT @jodyms: RT @ctsinclair @DrSnit ..many patients who deny symptoms because
    • ihatebreastcanc RT @jodyms: RT @ctsinclair @DrSnit ..many patients who deny symptoms because they dont want people to think anti-cancer treatments are failing. #hpm Wed Jun 8 18:31:56 PDT 2011PracticalWisdom Both can be scary/PainfulRT @DrSnit: @equijadaThats like saying birth is natural- just go push sweetie. Death/illness are a process. #HPM Wed Jun 8 18:32:04 PDT 2011HumpbacksRule RT @ctsinclair: RT @equijada: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm Wed Jun 8 18:32:29 PDT 2011equijada @ctsinclair true #hpm Wed Jun 8 18:32:32 PDT 2011ctsinclair @MarksPhone Agreed, it is a complex phenomenon that has effects on the individual and the team around them #hpm Wed Jun 8 18:32:36 PDT 2011drseisenberg yep RT @jodyms @ctsinclair @DrSnit ..many patients who deny symptoms because they dont want people to think anti-cancer tx are failing. #hpm Wed Jun 8 18:32:40 PDT 2011jfclearywisc RT @ctsinclair: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm Wed Jun 8 18:32:42 PDT 2011vj_CR @jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot from the ones used in the states #hpm Wed Jun 8 18:32:58 PDT 2011VillageMemorial Anyone else attending this Fridays Statewide #Palliative Care Conference in Portland OR? #hpm Wed Jun 8 18:32:58 PDT 2011jodyms @PracticalWisdom @drsnit Both are SCARY. Control freaks like myself want to know: how does this work?? #hpm Wed Jun 8 18:33:04 PDT 2011MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. That is difficult #hpm Wed Jun 8 18:33:14 PDT 2011elderpages Wondering how patients are feeling abandoned and what they would like by way of support. #hpm Wed Jun 8 18:33:46 PDT 2011ctsinclair @jodyms Ha! At our hospital the palliative medicine department is on top floor down a...dead end. Never realized till you said that. #hpm Wed Jun 8 18:33:48 PDT 2011hollyby Im not sure that teaching dying is the right term, maybe guiding people through the process, since each persons path is different. #hpm
    • process, since each persons path is different. #hpm Wed Jun 8 18:33:53 PDT 2011PracticalWisdom Think need 4 All! RT @jodyms: @PracticalWisdom @drsnit Both are SCARY. Control freaks like myself want to know: how does this work?? #HPM Wed Jun 8 18:33:57 PDT 2011ctsinclair @vj_CR In what way are informed consents different? #hpm Wed Jun 8 18:34:04 PDT 2011MarksPhone Remember in our live we learn through experiences and reflect on them this is a different learning we may not have time to reflect #hpm Wed Jun 8 18:34:17 PDT 2011drseisenberg RT @MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. Difficult #hpm Wed Jun 8 18:34:21 PDT 2011ctsinclair @equijada And it is not so much telling them this is the way to die well, but here are how other families/patients coped well. #hpm Wed Jun 8 18:34:36 PDT 2011jodyms RT @drseisenberg: RT @MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. Difficult #hpm Wed Jun 8 18:34:40 PDT 2011joshgriffin RT @hollyby: Im not sure that teaching dying is the right term, maybe guiding people through the process, since each persons path is different. #hpm Wed Jun 8 18:34:46 PDT 2011PracticalWisdom @jodyms @PracticalWisdom @drsnit When people understand many times helps lower anxiety. This certainly is good for Body/Soul/Mind/Famiy #HPM Wed Jun 8 18:34:49 PDT 2011uvmer @ctsinclair Wicked scary!!! I wanted to be the caregiver through the entire process, and they were wonderful support givers. #hpm Wed Jun 8 18:34:49 PDT 2011ctsinclair @equijada The main theme to healthy coping with illness is adaptation. #hpm Wed Jun 8 18:35:05 PDT 2011Freshwidow I strongly disagree - Pt, family, etc, can B learn that death is one real outcome. / @vj_cr don´t think u can be taught how 2 die.. #hpm Wed Jun 8 18:35:06 PDT 2011elderpages RT @MarksPhone: Remember in our lives we learn thru experiences and reflect on them. This learning we may not have time to reflect #hpm Wed Jun 8 18:35:09 PDT 2011HumpbacksRule #hpm Dying is a lot of work for pt & caregiver. Talking, sharing & teaching are very important. Helps w the control freak to some degree. Wed Jun 8 18:35:09 PDT 2011
    • DrSnit Even knowing others have been through the process before & talking it through leaves breadcrumbs. This matters! #hpm Wed Jun 8 18:35:31 PDT 2011ctsinclair RT @MarksPhone: we learn through experiences and reflect on them; this is a different learning we may not have time to reflect #hpm Wed Jun 8 18:35:34 PDT 2011jodyms @ctsinclair @equiljada We cant ever forget the entire family context and the cultural context. #hpm Wed Jun 8 18:35:34 PDT 2011aliciabloom @Freshwidow hear that & yet believe if pts know what #palliative care is (enhances QoL & can improve survival) they would be receptive #hpm Wed Jun 8 18:35:44 PDT 2011jfclearywisc RT @vj_CR: @jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot "not just the forms, a true discussion!" #hpm Wed Jun 8 18:35:54 PDT 2011MarksPhone What action on reflection does one take when told terminal? That is the step that is critical to learn how to die. #hpm Wed Jun 8 18:36:05 PDT 2011PracticalWisdom Again also helps patient.RT @jodyms: @ctsinclair @equiljada We cant ever forget the entire family context and the cultural context. #HPM Wed Jun 8 18:36:14 PDT 2011drseisenberg RT @HumpbacksRule: #hpm Dying is a lot of work for pt & caregiver. Talking, sharing & teaching are very important. #hpm Wed Jun 8 18:36:17 PDT 2011ctsinclair RT @DesiChicInPA: @ctsinclair we have navis in neuroscience/brain malignancy, surgical oncology, lung and esophageal, geriatrics. #hpm Wed Jun 8 18:36:26 PDT 2011vj_CR @MarksPhone @ctsinclair sometimes patients accept the reality and their families don´t. Then they are the ones to be taught #hpm Wed Jun 8 18:36:28 PDT 2011uvmer Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm Wed Jun 8 18:36:33 PDT 2011Freshwidow NO. Dying is a family and community process. NOT just one experience. @drsnit -- / @equijada: dont think dying has to be taught... #hpm Wed Jun 8 18:36:45 PDT 2011vj_CR RT @hollyby: Im not sure that teaching dying is the right term, maybe guiding people through the process, since each persons path is different. #hpm Wed Jun 8 18:36:45 PDT 2011
    • ctsinclair @vj_CR So true #hpm Wed Jun 8 18:36:50 PDT 2011jfclearywisc RT @hollyby: Im not sure that teaching dying is the right term, "Doctor" = teacher (was that my Latin class?) #hpm Wed Jun 8 18:36:57 PDT 2011PracticalWisdom RT @vj_CR: @MarksPhone @ctsinclair sometimes patients accept the reality and their families don´t. Then they are the ones to be taught #HPM Wed Jun 8 18:37:04 PDT 2011revdoc We can demystify the mechanics of the dying process so that pts/fams are then free to concentrate on meaning/deal w/emotional cmpts #hpm Wed Jun 8 18:37:04 PDT 2011MarksPhone @vj_CR Great point how to balance family and pateint because that is journey they are on #hpm Wed Jun 8 18:37:11 PDT 2011elderpages RT @MarksPhone: What action on reflection does one take when told terminal? That is the step that is critical to learn how to die. #hpm Wed Jun 8 18:37:20 PDT 2011PracticalWisdom RT @MarksPhone: @vj_CR Great point how to balance family and pateint because that is journey they are on #HPM Wed Jun 8 18:37:33 PDT 2011ctsinclair @uvmer Was that how it was said talking to someone about end of life care? Being a palliative doc, always curious how HPM introduced #hpm Wed Jun 8 18:37:41 PDT 2011equijada RT @uvmer: Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm Wed Jun 8 18:37:46 PDT 2011jodyms Dying is a group experience, agree @ Freshwidow NO. Dying is a family and community process. NOT just one experience #hpm Wed Jun 8 18:37:48 PDT 2011drseisenberg What can med oncs do to support #cancer patients if treatments not working? #hpm Wed Jun 8 18:37:53 PDT 2011ctsinclair RT @revdoc: We can demystify the mechanics of the dying process so pts/fams are free to concentrate on meaning/deal w/emotional cmpts #hpm Wed Jun 8 18:38:02 PDT 2011revdoc Type slower--you guys are making me dizzy tonight! #hpm Wed Jun 8 18:38:05 PDT 2011PracticalWisdom @Freshwidow: What is one lesson you would like for us to hear from you tonight. This is a caring group and we are open to learning. #HPM Wed Jun 8 18:38:19 PDT 2011
    • Wed Jun 8 18:38:19 PDT 2011equijada @uvmer how was it introduced? #hpm Wed Jun 8 18:38:21 PDT 2011Freshwidow Absitively! RT @drsnit: Even knowing others have been through the process before & talking it through leaves breadcrumbs. This matters! #hpm Wed Jun 8 18:38:26 PDT 2011jfclearywisc Has anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Comes up over & over #hpm Wed Jun 8 18:38:34 PDT 2011elderpages RT @revdoc: We can demystify the mechanics of dying...T: Our webpage on "Last Few Days" is one of most visited! http://bit.ly/mfenFJ #hpm Wed Jun 8 18:38:35 PDT 2011HumpbacksRule #hpm I think every1 is different on when/where/how they are ready to discuss the process. Gotta start where the pt is. Wed Jun 8 18:38:38 PDT 2011jodyms @revdoc If youre dizzy - imagine me....I am crazed #hpm Wed Jun 8 18:38:43 PDT 2011VillageMemorial Dr. Erik Fromme always puts on a great talk at every #Palliative Care Conference. Looking forward to Fridays event in Portland. #pdx #hpm Wed Jun 8 18:38:51 PDT 2011revdoc @drseisenberg Either construct a palliative care plan for your pts (and know what youre doing) or consult HPM EARLY #hpm Wed Jun 8 18:39:00 PDT 2011jodyms YES @PracticalWisdom @Freshwidow: What is one lesson you would like for us to hear from you .. we are open to learning. #HPM Wed Jun 8 18:39:26 PDT 2011equijada @jfclearywisc interesting, I was just thinking that and how I used hope 10 years ago compared to now #hpm Wed Jun 8 18:39:36 PDT 2011ctsinclair RT @MarksPhone: What action on reflection does one take when told terminal? "I have seen as a time of immense growth" #hpm Wed Jun 8 18:39:40 PDT 2011Freshwidow But you are treating this as a RATIONAL factual problem. Its NOT. RT @aliciabloom: if pts know what #palliative is theyd B receptive #hpm Wed Jun 8 18:39:40 PDT 2011vj_CR @ctsinclair after I read the first ICF in english I was surprised to see how down to the facts it was #hpm Wed Jun 8 18:39:45 PDT 2011
    • elderpages RT @MarksPhone: @vj_CR Great point how to balance family and pateint because that is journey they are on #hpm Wed Jun 8 18:39:50 PDT 2011drseisenberg RT @HumpbacksRule: #hpm I think every1 is different on when/where/how they are ready 2 discuss process. Gotta start where the pt is. #hpm Wed Jun 8 18:39:55 PDT 2011JoshGriffin RT @jodyms: Dying is a group experience, agree @ Freshwidow NO. Dying is a family and community process. NOT just one experience #hpm Wed Jun 8 18:39:57 PDT 2011vj_CR RT @MarksPhone: Remember in our live we learn through experiences and reflect on them this is a different learning we may not have time to reflect #hpm Wed Jun 8 18:39:57 PDT 2011jodyms RT @drseisenberg: What can med oncs do to support #cancer patients if treatments not working? #hpm Wed Jun 8 18:40:05 PDT 2011ctsinclair RT @revdoc: Type slower--you guys are making me dizzy tonight! "thats because this chat is a rockin! Having a great time!" #hpm Wed Jun 8 18:40:18 PDT 2011MarksPhone @HumpbacksRule I totally agree where is the patient? w/o having studied it there is a tipping point in understanding which happens #hpm Wed Jun 8 18:40:33 PDT 2011equijada @VillageMemorial I heart Erik. Please send him my regards. #hpm Wed Jun 8 18:40:43 PDT 2011aliciabloom we educate patients & families about dying process to support acceptance & guide the experience. never forget every process is unique. #hpm Wed Jun 8 18:40:53 PDT 2011DrSnit @HumpbacksRule You and @Freshwidow are SO SO SO on tonight with your insight!!!! #hpm Wed Jun 8 18:40:53 PDT 2011PracticalWisdom @Freshwidow Would you like for us to learn one lesson? I"m sure we can slow down to listen. #HPM Wed Jun 8 18:41:09 PDT 2011jfclearywisc RT @drseisenberg: What can med oncs do to support #cancer patients if treatments not working? "Define goal of therapy early!!" #hpm Wed Jun 8 18:41:10 PDT 2011ctsinclair RT @jfclearywisc: Anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Comes up over & over "I have transcripts!" #hpm Wed Jun 8 18:41:14 PDT 2011authordhallman #hpm A lesson - coordinate well the various care services so family can focus on patient.
    • authordhallman patient. Wed Jun 8 18:41:15 PDT 2011DoctorFisher Just ordered "The Art of Dying" by my friend @mollrob looking forward to reading it #hpm Wed Jun 8 18:41:19 PDT 2011joshgriffin RT @ctsinclair: RT @revdoc: Type slower--you guys are making me dizzy tonight! "thats because this chat is a rockin! Having a great time!" #hpm Wed Jun 8 18:41:22 PDT 2011revdoc @drseisenberg Have a sx mgmt assessment and plan for every pt every visit--as important as what CTX does pt need #hpm Wed Jun 8 18:41:26 PDT 2011jodyms @drseisenberg My thought - patients/familys are afraid that their PCP & med onc will abandon them. Period. #hpm Very real. Wed Jun 8 18:41:32 PDT 2011ctsinclair RT @DrSnit: @HumpbacksRule You and @Freshwidow are SO SO SO on tonight with your insight!!!! "Seconded!" #hpm Wed Jun 8 18:41:36 PDT 2011elderpages RT @authordhallman: #hpm A lesson - coordinate well the various care services so family can focus on patient. #hpm Wed Jun 8 18:41:40 PDT 2011equijada @DrSnit @HumpbacksRule @Freshwidow I learn so much from you. #hpm Wed Jun 8 18:41:52 PDT 2011HumpbacksRule Thanks! >> @DrSnit @Freshwidow You and @Freshwidow are SO SO SO on tonight with your insight!!!! #hpm Wed Jun 8 18:41:56 PDT 2011vj_CR @MarksPhone balance when you are not sick is hard enough...... imagine when you are #hpm Wed Jun 8 18:41:57 PDT 2011PracticalWisdom Thank you for this lesson.RT @authordhallman: #hpm A lesson - coordinate well the various care services so family can focus on patient. #HPM Wed Jun 8 18:41:58 PDT 2011hellen177 RT @uvmer: Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm Wed Jun 8 18:41:58 PDT 2011MarksPhone @ctsinclair That is a great point how can we quantify it so we can understand it better #hpm Wed Jun 8 18:42:10 PDT 2011vj_CR RT @revdoc: Type slower--you guys are making me dizzy tonight! #hpm | hehe me too!!!! Wed Jun 8 18:42:24 PDT 2011
    • LJaneTn @jodyms #HPM fear is often the place where patients start. Wed Jun 8 18:42:26 PDT 2011drseisenberg RT @vj_CR: @MarksPhone balance when you are not sick is hard enough...... imagine when you are #hpm Wed Jun 8 18:42:38 PDT 2011PracticalWisdom Its one of the reasons I respect all of you. RT @equijada: @DrSnit @HumpbacksRule @Freshwidow I learn so much from you. #HPM Wed Jun 8 18:42:40 PDT 2011DrSnit @jodyms agreed! @drseisenberg Fear of abandonment and guilt is far bigger than fear of pain #hpm Wed Jun 8 18:42:43 PDT 2011jodyms We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc ..prevelance of the word "hope" Comes up over & over Wed Jun 8 18:42:44 PDT 2011drseisenberg RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. #hpm Wed Jun 8 18:42:51 PDT 2011uvmer @ctsinclair To us,knew prognosis was grim but there are always miracles out there.Once end of life care came up,hour glass was running #hpm Wed Jun 8 18:42:58 PDT 2011ctsinclair RT @revdoc: @drseisenberg Have a sx mgmt assessment and plan for every pt every visit--as important as what CTX does pt need "Yup!" #hpm Wed Jun 8 18:42:59 PDT 2011VillageMemorial We like to remember Kubler-Ross DABDA doesnt always happen in order. #hpm Wed Jun 8 18:43:10 PDT 2011equijada I think we need to have a journal club on hope/hubris. #hpm Wed Jun 8 18:43:24 PDT 2011ctsinclair @revdoc @drseisenberg But important to realize the oncologist may have enough to do with just focusing on the anti-cancer treatment #hpm Wed Jun 8 18:43:28 PDT 2011PracticalWisdom Profound~such an important Factor! RT @vj_CR: @MarksPhone balance when you are not sick is hard enough...... imagine when you are #HPM Wed Jun 8 18:43:30 PDT 2011aliciabloom sometimes we have to help patients & families reframe their hope. there are many kinds of healing. #hpm Wed Jun 8 18:43:33 PDT 2011DrSnit RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. Wed Jun 8 18:43:42 PDT 2011
    • Wed Jun 8 18:43:42 PDT 2011hollyby RT @jodyms: We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc ..prevelance of the word "hope" Comes up over & over #hpm Wed Jun 8 18:43:48 PDT 2011elderpages RT @equijada: I think we need to have a journal club on hope/hubris. #hpm Wed Jun 8 18:43:50 PDT 2011PracticalWisdom G8 Idea RT @equijada: I think we need to have a journal club on hope/hubris. #HPM Wed Jun 8 18:43:52 PDT 2011jodyms @drseisenberg @LJaneTn That is true and sounds good but it boils down to things like this: who helps and when? #hpm Wed Jun 8 18:44:18 PDT 2011jodyms EXCELLENT RT @PracticalWisdom G8 Idea RT @equijada: I think we need to have a journal club on hope/hubris. #HPM Wed Jun 8 18:44:39 PDT 2011ihatebreastcanc @drseisenberg #cancer Be honest, dont give false hope. Know patients grasp of his/her disease. Dont wail til very late for eol talk #hpm Wed Jun 8 18:44:40 PDT 2011hollyby RT @aliciabloom: sometimes we have to help patients & families reframe their hope. there are many kinds of healing. ...and miracles #hpm Wed Jun 8 18:44:41 PDT 2011elderpages RT @DrSnit: RT @LJaneTn: @jodyms #HPM fear is often the place where patients start....T: What helps move to acceptance/transcendence? #hpm Wed Jun 8 18:44:45 PDT 2011Pallimed Articles on miracles and spirituality/religion in health care from Pallimed http://hpm.md/k98Z6D cc@uvmer #hpm Wed Jun 8 18:44:45 PDT 2011jfclearywisc @uvmer @ctsinclair Miracles can come in many shapes and forms! "What do you mean by a miracle" is a teachable questions to residents #hpm Wed Jun 8 18:44:45 PDT 2011JohnGirdwood http://ow.ly/1tC6qX RT @ctsinclair: RT @jfclearywisc: Anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Wed Jun 8 18:44:48 PDT 2011PracticalWisdom RT @aliciabloom: sometimes we have to help patients & families reframe their hope. there are many kinds of healing. #HPM Wed Jun 8 18:44:52 PDT 2011DrSnit @VillageMemorial I like to remember that though I adore her, Kubler-Rosss DABDA doesnt happen for everyone and is culturally bound. #hpm Wed Jun 8 18:45:02 PDT 2011
    • "@revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?Satchwill #hpm">excellent idea! Wed Jun 8 18:45:08 PDT 2011aliciabloom @hollyby so true! #hpm Wed Jun 8 18:45:23 PDT 2011revdoc @ctsinclair @drseisenberg Then involve a dedicated HPM consultant in process before the active tx "fails" #hpm Wed Jun 8 18:45:27 PDT 2011uvmer @equijada At end of an office visit....kinda "oh, by the way, would you like to participate in an end of life discussion w/ some docs...#hpm Wed Jun 8 18:45:39 PDT 2011VillageMemorial Anyone in the group attending funeral of Dr. #Kevorkian this Friday? #hpm Wed Jun 8 18:45:41 PDT 2011Intlphysicians RT @fischmd: symptom science website: ECOG Symptom Outcomes and Practice Patterns (SOAPP) study, ecogsoapp.com, http://ow.ly/5dlKQ , #hpm Wed Jun 8 18:46:16 PDT 2011drseisenberg RT @revdoc: @ctsinclair @drseisenberg Then involve a dedicated HPM consultant in process before the active tx "fails" #hpm Wed Jun 8 18:46:16 PDT 2011LJaneTn @jodyms #HPM existential fear dominates- strikes at the heart of hope Wed Jun 8 18:46:18 PDT 2011jfclearywisc #alicebucketlist hit 1.43% of tweets for last 24 hours at 1730 CDT #hpm Wed Jun 8 18:46:22 PDT 2011aliciabloom we also need to be clear about what a "successful" treatment is-- patients often assume success = cure, which may not be the case. #hpm Wed Jun 8 18:46:23 PDT 2011uvmer @equijada Absolutely scared the shit out of us. Neither one of us could speak, and finally I said no thank you. #hpm Wed Jun 8 18:46:31 PDT 2011GroundSwellAus sorry Im chiming in late I just wanted to happy birthday pallimed #hpm Wed Jun 8 18:46:31 PDT 2011elderpages Dr. Casarret suggests talking first about deliverables of hospice (nurse visits, aide visits, SW). Once buy-in, then mention hospice. #hpm Wed Jun 8 18:46:43 PDT 2011equijada RT @uvmer: @equijada At end of an office visit....kinda "oh, by the way, would you like to participate in an end of life discussion w/ some docs...#hpm Wed Jun 8 18:46:46 PDT 2011
    • Wed Jun 8 18:46:46 PDT 2011drseisenberg RT @LJaneTn: @jodyms #HPM existential fear dominates- strikes at the heart of hope #hpm Wed Jun 8 18:46:49 PDT 2011HumpbacksRule #hpm @LJaneTn @jodyms Absolutely & sometimes fear looks like something else. Have to listen to pt>> fear is often the place where patients.. Wed Jun 8 18:46:53 PDT 2011MarksPhone Long ago in oncology pharma adriamycin nationally recognized oncologist said as did Jimmie Holland every cancer patient reacts diff #hpm Wed Jun 8 18:46:55 PDT 2011jodyms The things Im learning: Ive never heard of a #HPM consultant. Wed Jun 8 18:47:08 PDT 2011equijada @uvmer yes, I would not accept that either. #hpm Wed Jun 8 18:47:09 PDT 2011ihatebreastcanc RT @ctsinclair: RT @revdoc: We can demystify the mechanics of the dying process so pts/fams are free to concentrate on meaning/deal w/emotional cmpts #hpm Wed Jun 8 18:47:14 PDT 2011elderpages RT @aliciabloom: we need to define "successful" treatment is-- patients often assume success = cure, which may not be the case. #hpm Wed Jun 8 18:47:16 PDT 2011PracticalWisdom Wise RT @aliciabloom: we also need 2 B clear what a "successful" treatment is patients often assume success = cure may not be the case. #HPM Wed Jun 8 18:47:17 PDT 2011JohnGirdwood Good thought, im nearby RT @VillageMemorial: Anyone in the group attending funeral of Dr. #Kevorkian this Friday? #hpm Wed Jun 8 18:47:33 PDT 2011VillageMemorial @DrSnit Can you talk about the cultural differences of DABDA? #hpm Wed Jun 8 18:47:34 PDT 2011hollyby Yahoo! RT @GroundSwellAus: sorry Im chiming in late I just wanted to happy birthday pallimed #hpm Wed Jun 8 18:47:35 PDT 2011Freshwidow Absolutely. RT @drseisenberg: involve a dedicated HPM consultant in process before the active tx "fails" #hpm Wed Jun 8 18:47:37 PDT 2011Pallimed RT @GroundSwellAus: sorry Im chiming in late I just wanted to happy birthday pallimed #hpm "Hey thanks! 6 years of blogging!" Wed Jun 8 18:47:38 PDT 2011ihatebreastcanc RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way
    • ihatebreastcanc RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:47:50 PDT 2011Gregmogel RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. Wed Jun 8 18:47:55 PDT 2011BCSisterhood @jodyms Loved one diequickly vs prolonged illness-shock of 1st way mind blowing & 2nd u have time to prepare. Lost husbands 2 each way. #hpm Wed Jun 8 18:48:09 PDT 2011drseisenberg RT @MarksPhone: Long ago nationally recognized oncologist said as did Jimmie Holland every cancer patient reacts diff #hpm Wed Jun 8 18:48:10 PDT 2011uvmer @equijada It was tough. #hpm Wed Jun 8 18:48:16 PDT 2011DrSnit @jodyms I get DMs all the time from patients in need of hospice and have NO IDEA where to go or how to deal with it. #hpm Wed Jun 8 18:48:16 PDT 2011ctsinclair RT @jodyms: The things Im learning: Ive never heard of a #HPM consultant. Really!? Im one! Seeing more patients ask for us." #hpm Wed Jun 8 18:48:23 PDT 2011revdoc @Pallimed Happy birthday! #hpm Wed Jun 8 18:48:26 PDT 2011PracticalWisdom Like the thought of analyzing Tweetchat afterward. Learned a great deal of ways I could improve/listen better as moderator after chat #HPM Wed Jun 8 18:48:34 PDT 2011vj_CR @Freshwidow sorry.... I forgot the #hpm .... I get your point..... just think teach is no the word.... Wed Jun 8 18:48:46 PDT 2011equijada @Gregmogel @LJaneTn @jodyms Fear. I personally have a lot of it. Im learning and growing. #hpm Wed Jun 8 18:48:50 PDT 2011DrSnit @VillageMemorial We are in a chat right now. Using the #hpm hastag. Will talk later. Thanks. Wed Jun 8 18:48:52 PDT 2011GroundSwellAus @Pallimed 6 years! wow! #hpm Wed Jun 8 18:48:56 PDT 2011HumpbacksRule Such a good point. @DrSnit @VillageMemorial I like to remember that though I adore her, Kubler-Rosss DABDA doesnt...#hpm Wed Jun 8 18:49:02 PDT 2011
    • RT @elderpages @aliciabloom we need to define "successful" treatment- patientsPinkRibbonBlues often assume success = cure, which may not be the case. #hpm Wed Jun 8 18:49:03 PDT 2011JohnGirdwood Volunteers too!!! RT @elderpages: Dr. Casarret suggests talking first about deliverables of hospice (nurse visits, aide visits, SW). #hpm Wed Jun 8 18:49:15 PDT 2011aliciabloom effective conversations re: #hospice dont start w/ word. cant drop the "h-bomb" right away. establish goals & determine needs 1st. #hpm Wed Jun 8 18:49:18 PDT 2011PracticalWisdom They trust U.RT @DrSnit: @jodyms I get DMs all the time from pts in need of hospice have NO IDEA where to go or how to deal with it. #HPM Wed Jun 8 18:49:18 PDT 2011jodyms My thought is if more survivors understand this - when were well - the mystery is easier to accept when it does happen #hpm Wed Jun 8 18:49:32 PDT 2011ctsinclair RT @DrSnit: I get DMs all the time from patients in need of #hospice & have NO IDEA where to go or how to deal with it. "wow!" really?" #hpm Wed Jun 8 18:49:40 PDT 2011uvmer @BCSisterhood Strongly disagree! Can not prepare for the loss of someone you have spent your whole adult life with, and watch them die. #hpm Wed Jun 8 18:49:55 PDT 2011elderpages RT @vj_CR: @Freshwidow I get your point..... just think teach is no the word.... T: Exploring? Sharing? #hpm Wed Jun 8 18:50:06 PDT 2011ctsinclair @DrSnit There are a ton of us in social media who can help you with your hospice referral challenge. I would love to tackle this. #hpm Wed Jun 8 18:50:15 PDT 2011jfclearywisc @ctsinclair @jodyms COnsultant=Attending in many commonwealth countries #hpm Wed Jun 8 18:50:31 PDT 2011hollyby @jodyms Ppl need to know we focus on whole person & symptom control, & may even help people complete symptom-causing curative therapy. #hpm Wed Jun 8 18:50:37 PDT 2011vj_CR @PracticalWisdom so true! #hpm and I think it´s part of the tweetchat point, trying to learn from it Wed Jun 8 18:50:39 PDT 2011DrSnit @ctsinclair YES PLEASE #HPM Wed Jun 8 18:50:43 PDT 2011revdoc @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with
    • revdoc @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:50:47 PDT 2011drseisenberg Every single one reacted sooooo differently today #hpm Wed Jun 8 18:51:00 PDT 2011jodyms Critical issue: T4: How do we share the #hpm mission to those in need of hospice? Dont we all have a responsibility? Wed Jun 8 18:51:04 PDT 2011elderpages RT @aliciabloom: effective conversations re: #hospice cant drop the "h-bomb" first. establish goals & determine needs 1st...T: YES! #hpm Wed Jun 8 18:51:13 PDT 2011ctsinclair @vj_CR so you dont have to forget the #hpm use http://Tweetchat.com/room/hpm #hpm Wed Jun 8 18:51:13 PDT 2011jodyms RT @ctsinclair: @DrSnit There are a ton of us in social media who can help you with your hospice referral challenge. I would love to tackle this. #hpm Wed Jun 8 18:51:18 PDT 2011MarksPhone if you look at #hcsmvac they are using a grass roots SM effort to increase flu vac rates in MO can we model that idea about hospice? #hpm Wed Jun 8 18:51:28 PDT 2011GroundSwellAus is there no "peak" org in the US that has a listing of all hospice? #hpm Wed Jun 8 18:51:28 PDT 2011jfclearywisc !!!@aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:51:35 PDT 2011equijada @DrSnit @ctsinclair let me know as well. #hpm Wed Jun 8 18:51:38 PDT 2011HumpbacksRule RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:51:46 PDT 2011ctsinclair RT @drseisenberg: Every single one reacted sooooo differently today "That can be emotionally draining." #hpm Wed Jun 8 18:51:53 PDT 2011mollrob RT @DoctorFisher Just ordered "The Art of Dying" by my friend @mollrob looking forward to reading it #hpm // Thanks Doc! Wed Jun 8 18:51:59 PDT 2011PracticalWisdom Continuous Learning.RT @vj_CR: @PracticalWisdom so true! #hpm and I think it´s part of the tweetchat point, trying to learn from it #HPM Wed Jun 8 18:52:05 PDT 2011
    • aliciabloom MT @ctsinclair: @DrSnit There are a ton of us in SoMe who can help w/ hospice referral challenge. I would love 2 tackle this. "me too!" #hpm Wed Jun 8 18:52:13 PDT 2011ctsinclair @MarksPhone Will need to look into #hcsmvac #hpm Wed Jun 8 18:52:15 PDT 2011jodyms Great points. I want to write about this @elderpages @aliciabloom: effective conversations re: #hospice..est. goal...t..T: YES! #hpm Wed Jun 8 18:52:23 PDT 2011VillageMemorial Any thoughts as to how male caregivers feel about being called doulas? Have heard word whisperer being thrown around. #hpm Wed Jun 8 18:52:26 PDT 2011authordhallman #hpm re T4: thats why I decided to publish "August Farewell", to promote PC education/options Wed Jun 8 18:52:39 PDT 2011vj_CR RT @MarksPhone: if you look at #hcsmvac they are using a grass roots SM effort to increase flu vac rates in MO can we model that idea about hospice? #hpm Wed Jun 8 18:52:52 PDT 2011equijada “@drseisenberg: Every single one reacted sooooo differently today #hpm” Many different pages. Part of the difficulty of transition. . Wed Jun 8 18:52:54 PDT 2011BCSisterhood @jodyms Yes, we all have a responsibility & as baby boomers age, we need to reach out & do what we can to help one another. #hpm Wed Jun 8 18:52:57 PDT 2011Pallimed Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:53:02 PDT 2011jodyms Ditto - we are all in this together:) @equijada @DrSnit @ctsinclair let me know as well. #hpm Wed Jun 8 18:53:08 PDT 2011jfclearywisc @GroundSwellAus Palliative Coalition. NHPCO, AAHPM, HPNA, CAPC and others. Given state power, no huge Federal peak body (jfclearyaus) #hpm Wed Jun 8 18:53:28 PDT 2011GroundSwellAus @Pallimed @DrSnit cheers #hpm Wed Jun 8 18:53:33 PDT 2011jodyms RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:53:59 PDT 2011joegormally RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice
    • joegormally RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:54:03 PDT 2011VillageMemorial RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:54:12 PDT 2011vj_CR RT @ctsinclair: @vj_CR so you dont have to forget the #hpm use http://bit.ly/b1nePp #hpm || TY :) Wed Jun 8 18:54:15 PDT 2011hollyby @Pallimed @GroundSwellAus @DrSnit http://www.palliativedoctors.org/ #hpm Wed Jun 8 18:54:18 PDT 2011DrSnit RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:54:20 PDT 2011doctatum Pulled away by patient issue. Looks like i missed great #hpm chat. Transcript coming? Wed Jun 8 18:54:35 PDT 2011PracticalWisdom RT @vj_CR:RT @MarksPhone: if U look #hcsmvac they R using grass roots SM effort 2 increase flu vac rates MO can we model idea hospice? #HPM Wed Jun 8 18:54:41 PDT 2011ctsinclair @vj_CR Also makes it easy to favorite, and reply and retweet! Love it! #hpm Wed Jun 8 18:54:48 PDT 2011jodyms What a lightning talk...so much to say about bridging needs of patients with understanding #hpm Wed Jun 8 18:54:52 PDT 2011joshgriffin RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:54:53 PDT 2011equijada @uvmer Sucks. Sorry to hear it rolled that way. #hpm Wed Jun 8 18:55:00 PDT 2011elderpages Anyone know about Concerns Without Borders? They are doing grassroots palliative care in India. Website not real helpful :-( #hpm Wed Jun 8 18:55:01 PDT 2011MarksPhone This topic as a communication strategy needs to be considered by segment Terminal patient vs. not vs. family vs. way before death #hpm Wed Jun 8 18:55:06 PDT 2011GroundSwellAus @elderpages yes well! #hpm Wed Jun 8 18:55:26 PDT 2011
    • joegormally Im sorry I missed this chat now.. it looked like a great discussion #hpm Wed Jun 8 18:55:38 PDT 2011PracticalWisdom @vj_CR @MarksPhone @doctatum is a Mo MD. #HPM Wed Jun 8 18:55:49 PDT 2011jodyms Spot on RT MarksPhone This topic as a communication strategy needs to be considered by .... way before death #hpm Wed Jun 8 18:55:49 PDT 2011dspacl Sorry to be getting here late, mates #hpm Wed Jun 8 18:55:55 PDT 2011GroundSwellAus @elderpages what do you want to know? #hpm Wed Jun 8 18:56:04 PDT 2011vj_CR @ctsinclair thanks! makes it easier :) #hpm Wed Jun 8 18:56:05 PDT 2011DrSnit @hollyby thank you @Pallimed both ! #hpm Wed Jun 8 18:56:10 PDT 2011PracticalWisdom RT @jodyms: Spot on RT MarksPhone This topic as a communication strategy needs to be considered by .... way before death #HPM Wed Jun 8 18:56:16 PDT 2011jodyms We probably need to start wrapping up....loose thoughts, deep thoughts, take away from tonights #hpm discussion? Wed Jun 8 18:56:20 PDT 2011InpatientMed RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc Wed Jun 8 18:56:31 PDT 2011JoshGriffin RT @hollyby: @Pallimed @GroundSwellAus @DrSnit http://www.palliativedoctors.org/ #hpm Wed Jun 8 18:56:32 PDT 2011daitpcg RT @aliciabloom: effective conversations re: #hospice dont start w/ word. cant drop the "h-bomb" right away. establish goals & determine needs 1st. #hpm Wed Jun 8 18:56:34 PDT 2011MarksPhone Canadian oncologist told me that weve lost the understanding of death when we moved off the farm. it is not longer part of life 2day #hpm Wed Jun 8 18:56:41 PDT 2011ctsinclair RT @doctatum: Pulled away by patient issue. Looks like i missed great #hpm chat. Transcript coming? "Yes" #hpm Wed Jun 8 18:56:44 PDT 2011
    • Wed Jun 8 18:56:44 PDT 2011jfclearywisc @jodyms Well done!! #hpm Wed Jun 8 18:56:51 PDT 2011HumpbacksRule Yes! >@MarksPhone This topic as a communication strategy needs to be considered by segment Terminal patient vs. not vs. family vs. .... #hpm Wed Jun 8 18:56:54 PDT 2011elderpages RT @GroundSwellAus: @elderpages what do you want to know? T: Unable to find detailed description of activities. URL would be great! #hpm Wed Jun 8 18:56:56 PDT 2011ctsinclair RT @dspacl: Sorry to be getting here late, mates no problem, brother! #hpm Wed Jun 8 18:56:56 PDT 2011DrSnit @jodyms WOW! Thank you so so so much for the amazing topics tonight! Ive missed you so much!! xo #hpm Wed Jun 8 18:56:59 PDT 2011dspacl I have an idea to describe what we do in terms of the latest lexicon of #HCR #HPM Wed Jun 8 18:57:08 PDT 2011hollyby @jodyms Thanks so much Jody! Wonderful chat. Thanks to everyone for joining in with all your thoughts! #hpm Wed Jun 8 18:57:52 PDT 2011jodyms Wonderful message via @hollyby and others in #HPM: survivors, this is wholistic care...kind and gentle, delivered by incredible people. Wed Jun 8 18:57:52 PDT 2011dspacl Goal Oriented = Patient Centered = GO PC #hpm Wed Jun 8 18:57:53 PDT 2011PracticalWisdom Confetti Tweetchat Seems 2 me. Agree @Drsnit?RT @dspacl: I have an idea to describe what we do in terms of the latest lexicon of #HCR #HPM Wed Jun 8 18:57:53 PDT 2011ctsinclair @aliciabloom Never heard the term H-bomb I am stealing that one. With credit to you of course. #hpm Wed Jun 8 18:57:53 PDT 2011MarksPhone That is the issue we are so far removed from death that when we face it its in our grill We no longer grow up with farm animals dying #hpm Wed Jun 8 18:57:53 PDT 2011GroundSwellAus @elderpages http://concernwithoutborders.org/initiatives.htm #hpm Wed Jun 8 18:58:02 PDT 2011JohnGirdwood @hollyby hospice patient on chemotherapy? Not where Im at. Maybe I read it wrong... But at my hospice, no curative on primary dx #hpm
    • wrong... But at my hospice, no curative on primary dx #hpm Wed Jun 8 18:58:02 PDT 2011jodyms RT @MarksPhone: Canadian oncologist told me that weve lost the understanding of death when we moved off the farm. it is not longer part of life 2day #hpm Wed Jun 8 18:58:05 PDT 2011elderpages Did we get to actionable items concerning abandonement (and not abandoning?) #hpm Wed Jun 8 18:58:14 PDT 2011HumpbacksRule @jodyms #hpm Thank you so much! I always learn from this chat and tonight was wonderful. Great job! Wed Jun 8 18:58:21 PDT 2011ctsinclair RT @MarksPhone: Canadian oncologist told me that weve lost the understanding of death when we moved off the farm. have heard also #hpm Wed Jun 8 18:58:28 PDT 2011apjonas Pat Jonas, Family Doc, OH, lurking. I mention death to about 20% of my pts daily: allow them to hear the word from MD for conditioning #hpm Wed Jun 8 18:58:29 PDT 2011jodyms @DrSnit Thank you my friend. I wish I could have kept up with all your incredible #hpm thoughts & comments. Wed Jun 8 18:58:30 PDT 2011MarksPhone @JohnGirdwood it can be palliative? #hpm Wed Jun 8 18:58:41 PDT 2011PinkRibbonBlues RT Our culture avoids it. @MarksPhone weve lost the understanding of death when we moved off the farm. no longer part of life 2day #hpm Wed Jun 8 18:58:41 PDT 2011GroundSwellAus @elderpages have been to IPM in Kerala a coupld of times too! #hpm Wed Jun 8 18:58:45 PDT 2011ctsinclair RT @elderpages: Did we get to actionable items concerning abandonement (and not abandoning?) no, explore next time? #hpm Wed Jun 8 18:58:52 PDT 2011aliciabloom @ctsinclair gets people laughing when im lecturing. feel free to use it anytime! #hpm Wed Jun 8 18:58:54 PDT 2011dspacl Let me try that again! Goal Oriented + Patient Centered = GO PC #hpm Wed Jun 8 18:58:56 PDT 2011equijada @jodyms thanks for hosting. thanks! #hpm Wed Jun 8 18:58:59 PDT 2011
    • VillageMemorial Hope to see those of you heading to the Statewide #Palliative Care Conf. at the Oregon Convention Center this Fri. #hpm Wed Jun 8 18:59:03 PDT 2011vj_CR We should all do our best so that death is a tranquile journey surrounded by pple who care abt you #hpm Wed Jun 8 18:59:07 PDT 2011drseisenberg HPM = Humanity Providing Moments #hpm Wed Jun 8 18:59:15 PDT 2011jodyms We didnt & must @elderpages Did we get to actionable items concerning abandonement (and not abandoning?) #hpm Wed Jun 8 18:59:15 PDT 2011jfclearywisc RT @apjonas: Pat Jonas, Family Doc, OH, lurking. I mention death to about 20% of pts daily: allow them to hear the word "conditioning" #HPM Wed Jun 8 18:59:20 PDT 2011equijada @DrSnit @jodyms Snit - you rock my socks off *confetti* #hpm Wed Jun 8 18:59:22 PDT 2011elderpages RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC#hpm #hpm Wed Jun 8 18:59:24 PDT 2011PracticalWisdom @jodyms I think a great way to measure the success of a TweetChat is to see how many folks continue to stay engaged/learn/Listen A! 2 U #HPM Wed Jun 8 18:59:26 PDT 2011ctsinclair RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC "Nice!" #hpm Wed Jun 8 18:59:33 PDT 2011elderpages RT @drseisenberg: HPM = Humanity Providing Moments #hpm Wed Jun 8 18:59:37 PDT 2011PracticalWisdom Lovely thought RT @vj_CR: We should all do our best so that death is a tranquile journey surrounded by pple who care abt you #HPM Wed Jun 8 18:59:45 PDT 2011uvmer @equijada Thanks.Not sure of best way to handle it.The way I found out about palliative care/hospice, in the end, worked best for us/me #hpm Wed Jun 8 18:59:55 PDT 2011drseisenberg RT @equijada: @DrSnit @jodyms Snit - you rock my socks off *confetti* #hpm Wed Jun 8 18:59:58 PDT 2011