2011 06 08 hpm tweetchat transcript

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2011 06 08 hpm tweetchat transcript

  1. 1. #hpmHealthcare Hashtag Twitter Transcript From: Wed Jun 08 18:00:00 PDT 2011 To: Wed Jun 08 19:00:00 PDT 2011 Customize transcript dates and layoutLearn more about #hpm at The Healthcare Hashtag Projecthollyby For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. #hpm Wed Jun 8 18:01:03 PDT 2011elderpages 15 year old girl who is terminal with cancer has made a bucket list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpm Wed Jun 8 18:01:09 PDT 2011jodyms Hello everyone, Im Jody Schoger and will be moderating tonights #HPM chat. Im a cancer survivor, co-survivor, writer and blogger. Wed Jun 8 18:01:10 PDT 2011jfclearywisc Hi, Joining #hpm from the basement. Major thunderstorms here in Madison, WI. Fingers crossed and praying. #hpm Wed Jun 8 18:01:25 PDT 2011jodyms Whos joining us for tonights discussion? Please introduce yourself. Its great to be connected with all of you again. #HPM Wed Jun 8 18:01:54 PDT 2011ctsinclair RT @hollyby: For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. "me too!" #hpm Wed Jun 8 18:01:55 PDT 2011equijada Hi all. Thanks for hosting @jodyms #hpm Wed Jun 8 18:02:13 PDT 2011hollyby @jfclearywisc Stay safe! #hpm Wed Jun 8 18:02:35 PDT 2011elderpages Nice to "see" you all. Im a hospice volunteer, research scientist, family caregiver and webmaster committed to community devt via Web #hpm Wed Jun 8 18:02:38 PDT 2011
  2. 2. MedicalMarcom I showed up an hour early! Now I know better. Joe Hage, #MedDevice founder, mktg comm for med companies. #HPM Wed Jun 8 18:02:52 PDT 2011jodyms @jfclearywisc @equijada @ctsinclair - greetings! #HPM Wed Jun 8 18:02:57 PDT 2011authordhallman #hpm - David here. lost my partner to pancreatic cancer 2 wks after diagnosis. Wed Jun 8 18:03:05 PDT 2011aliciabloom MSW, LSW from @VITASHospice & Palliative Care. #hpm consults, clinical education & program development. #hpm Wed Jun 8 18:03:28 PDT 2011equijada @authordhallman Hi David, welcome. #hpm Wed Jun 8 18:03:38 PDT 2011MedicalMarcom I am looking to meet a HPM professional with experience selling into #HPM orgs + figured yall would have recos? Wed Jun 8 18:03:57 PDT 2011hollyby Hello, Holly Yang. HPM doc from @SanDiegoHospice. Interests in international #palliative med, pt care, med ed, SoMe, communication #hpm Wed Jun 8 18:04:11 PDT 2011Freshwidow Supa, widow blogger, #HPM advocate and family member. Crazy hair. Thanks for hosting, @jodyms! Wed Jun 8 18:04:31 PDT 2011jodyms Welcome @authorhallman @aliciabloom @medicalmarcom #hpm Wed Jun 8 18:04:32 PDT 2011DrSnit @jodyms Hey cats! Longtime no see Jodycakes!! Muah!! #hpm Wed Jun 8 18:04:46 PDT 2011PracticalWisdom HI Im Lisa Trainer/Speaker/Creative Connector. Looking forward to @jodyms and the other leaders in #HPM Field #HPM Wed Jun 8 18:04:51 PDT 2011hollyby As always, all tweets are my own #hpm Wed Jun 8 18:05:08 PDT 2011drseisenberg Hi there! Steven Eisenberg. Medical oncologist. Lyrical Life guy. I co-write original songs with cancer and hospice patients. #hpm Wed Jun 8 18:05:21 PDT 2011PinkRibbonBlues #HPM Gayle here, medical sociologist, focus on breast cancer culture, industry, advocacy, and survivorship. Love @jodyms Wed Jun 8 18:05:24 PDT 2011
  3. 3. doctatum RT @doctatum Paul from Mo. Before the floods hit. On phone. Oops. #hpm Wed Jun 8 18:05:27 PDT 2011ctsinclair Intros: Hello, Christian Sinclair here, Palliative MD @KChospice, Editor @Pallimed, fan of @SportingKC and the new @LiveSTRONGPark #hpm Wed Jun 8 18:05:32 PDT 2011jodyms Ill asking #HPM questions tonight on behalf of the cancer survivor community. And Im sure if I misrepresent them well hear otherwise:) Wed Jun 8 18:05:32 PDT 2011jfclearywisc @MedicalMarcom PRobably not tonight given topic is "Abandonment-what patients really feel. Dont mean to abandon you :-) #hpm Wed Jun 8 18:05:41 PDT 2011jodyms @drsnit @hollyby @practicalwisdom Awesome to see you:) #hpm Wed Jun 8 18:06:00 PDT 2011uvmer Hi! Lurking in the shadows and might butt in. (: #HPM Wed Jun 8 18:06:10 PDT 2011MatthewsMichele <--#hospice, #hpm advocate, patient and community empowerment enthusiast! #hpm Wed Jun 8 18:06:11 PDT 2011revdoc RT @ctsinclair: RT @hollyby: For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. "me too!" #hpm Wed Jun 8 18:06:34 PDT 2011MedicalMarcom @jfclearywisc thanks. Ill stick around all the same + meet some new #HPM folks! Wed Jun 8 18:06:41 PDT 2011DrSnit Me 3 RT @ctsinclair RT @hollyby: For the next hour Ill be tweeting from the #hospice & #palliative medicine tweetchat. "me too" #hpm Wed Jun 8 18:06:47 PDT 2011ctsinclair @hollyby RE: Twwets are my own: Intersting take from @Doctor_V Should We Ditch Social Media Disclaimers? http://hpm.md/lzTW9G #hpm Wed Jun 8 18:06:47 PDT 2011PracticalWisdom Sorry are the floods close? RT @doctatum: RT @doctatum Paul from Mo. Before the floods hit. On phone. Oops. #HPM Wed Jun 8 18:06:58 PDT 2011MatthewsMichele <---oh and #socialmedia junkie! :-) #hpm Wed Jun 8 18:07:20 PDT 2011ctsinclair @uvmer Hi Nancy, I am sure we will lure you in with some good conversation! #hpm Wed Jun 8 18:07:25 PDT 2011
  4. 4. jodyms #HPM - Our topic tonight is what patients really fear: abandonment. Abandonment by doctors, friends, and family. Wed Jun 8 18:07:31 PDT 2011PracticalWisdom Thanks excited about tonight. RT @jodyms: @drsnit @hollyby @practicalwisdom Awesome to see you:) #HPM Wed Jun 8 18:07:42 PDT 2011revdoc Pam Harris MD @KCHospice, ordained minister #hpm Wed Jun 8 18:07:47 PDT 2011DrSnit RT @jodyms: Ill asking #HPM questions tonight on behalf of the cancer survivor community. And Im sure if I misrepresent them well hear otherwise:) Wed Jun 8 18:08:06 PDT 2011revdoc @revdoc @KCHospice Tweets are my own #hpm Wed Jun 8 18:08:14 PDT 2011RossJeanette Hi Im Jeanette Ross HPM doc associate Fellowship director @uthscsa in san Antonio passionate about teaching. Will lurk tonight #hpm Wed Jun 8 18:08:14 PDT 2011elderpages @jodyms I would like to hear more about some of those fears. Can you start with a few? #hpm Wed Jun 8 18:08:17 PDT 2011hollyby @ctsinclair Its part of my employers SoMe policy, I believe, so... I do it. #hpm Wed Jun 8 18:08:26 PDT 2011ctsinclair @PinkRibbonBlues Hi Gayle! Welcome to the chat! #hpm Wed Jun 8 18:08:33 PDT 2011uvmer @ctsinclair Most probably... (: Not the silent type. Thanks. #HPM Wed Jun 8 18:08:40 PDT 2011jodyms So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm Wed Jun 8 18:08:42 PDT 2011equijada RT @jodyms: Ill asking #HPM questions tonight on behalf of the cancer survivor community. And Im sure if I misrepresent them well hear otherwise:) Wed Jun 8 18:09:08 PDT 2011ctsinclair Just a tip if you do use cancer in your tweet feel free to hashtag it. Some people might be looking for that, and stumble here. #hpm Wed Jun 8 18:09:10 PDT 2011MatthewsMichele RT @jodyms: So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm
  5. 5. Wed Jun 8 18:09:11 PDT 2011hollyby RT @jodyms: So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm Wed Jun 8 18:09:13 PDT 2011JohnGirdwood @ctsinclair I love this #hpm thing so much, almost as much (maybe equally) as watching Tigers or BoSox vs Yankees! Wed Jun 8 18:09:28 PDT 2011ctsinclair RT @hollyby: @ctsinclair Its part of my employers SoMe policy, I believe, so... I do it. "good answer!" #hpm Wed Jun 8 18:09:31 PDT 2011jodyms RT @ctsinclair: Just a tip if you do use cancer in your tweet feel free to hashtag it. Some people might be looking for that, and stumble here. #hpm Wed Jun 8 18:09:34 PDT 2011jodyms @uvmer Nancy, you have a lot to add here. Im glad youve joined us. #hpm Wed Jun 8 18:09:59 PDT 2011andybaldwin @ctsinclair @kchospice @pallimed @sportingkc @hollyby @livestrongpark #hpm hi everyone! Dr. Baldwin here #AskDrAndy Wed Jun 8 18:10:00 PDT 2011Doctor_V And The Palliatives convene #hpm Wed Jun 8 18:10:19 PDT 2011elderpages Can you help by clarifying transition from what? Do you mean changing goals of care from curative to comfort? #hpm Wed Jun 8 18:10:26 PDT 2011hollyby @andybaldwin Hi Andy! Great to have you join us! #hpm Wed Jun 8 18:10:38 PDT 2011PracticalWisdom RT @jodyms: RT @ctsinclair: Just a tip if you do use cancer in tweet feel free 2 hashtag. # people might B looking4 & stumble here. #HPM Wed Jun 8 18:10:44 PDT 2011DrSnit RT @jodyms: So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm Wed Jun 8 18:10:45 PDT 2011ctsinclair T1 (Clarification) @jodyms Which we" did you have in mind with this question? We the chatters, we the social media-ists, etc? #hpm Wed Jun 8 18:10:50 PDT 2011elderpages RT @Doctor_V: And The Palliatives convene...T: Sounds like a backup band :-) #hpm Wed Jun 8 18:11:02 PDT 2011
  6. 6. JohnGirdwood I was called to HR before to clear up my use so... RT @hollyby: @ctsinclair Its part of my employers SoMe policy, so... I do it #hpm Wed Jun 8 18:11:06 PDT 2011aliciabloom early integration #palliative care brings supportive care throughout the continuum of illness, making it less of an abrupt transition #hpm Wed Jun 8 18:11:14 PDT 2011uvmer @jodyms Thanks Jody. (: #hpm Wed Jun 8 18:11:16 PDT 2011PracticalWisdom Are you going to join us tonight? That would be great RT @Doctor_V: And The Palliatives convene #HPM Wed Jun 8 18:11:17 PDT 2011jodyms @elderpages T1: Transition from curative to comfort and supportive. #hpm Wed Jun 8 18:11:21 PDT 2011DrSnit @jodyms Yes yes yes! so glad youre here @uvmer!! xo #hpm Wed Jun 8 18:11:26 PDT 2011ctsinclair T1: I think healing supportive care should come as part of the package regardless of goals #hpm Wed Jun 8 18:11:38 PDT 2011equijada t1 prior to working together, I have to be prepared to go into a place that is sacred, scary. Make sure Im in a good place #hpm Wed Jun 8 18:11:50 PDT 2011drseisenberg T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #hpm Wed Jun 8 18:11:59 PDT 2011DoctorFisher Hello Palliators #hpm Wed Jun 8 18:12:02 PDT 2011ctsinclair RT @aliciabloom: early integration #palliative care brings supportive care across continuum of illness, making less abrupt transition #hpm Wed Jun 8 18:12:07 PDT 2011PracticalWisdom RT @aliciabloom: early integration #palliative care brings supportive care throughout continuum illness, making it (-) an abrupt trans. #HPM Wed Jun 8 18:12:17 PDT 2011revdoc T1 IMHO we need better training, inservices, curriculum for non-HPM types so that referrals are made by usual MDs, nonthreatening #hpm Wed Jun 8 18:12:20 PDT 2011ctsinclair @aliciabloom Nice concise statement! #hpm Wed Jun 8 18:12:20 PDT 2011
  7. 7. PracticalWisdom RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #HPM Wed Jun 8 18:12:30 PDT 2011DoctorFisher RT @ctsinclair: T1: I think healing supportive care should come as part of the package regardless of goals #hpm Wed Jun 8 18:12:39 PDT 2011elderpages Guess Im in listening mode (questions mode). What would survivors like professionals to do to be more collaborative? #hpm Wed Jun 8 18:12:53 PDT 2011aliciabloom @ctsinclair thanks! im getting better at this 140 character thing ;) #hpm Wed Jun 8 18:12:55 PDT 2011PracticalWisdom RT @revdoc: T1 IMHO we need better training, inservices, curriculum for non-HPM types so referrals R made by usual MDs, nonthreatening #HPM Wed Jun 8 18:13:03 PDT 2011Doctor_V Lurking #hpm Wed Jun 8 18:13:13 PDT 2011PracticalWisdom RT @elderpages: Guess Im in listening mode (questions mode). What would survivors like professionals to do to be more collaborative? #HPM Wed Jun 8 18:13:17 PDT 2011thinkalot RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #hpm Wed Jun 8 18:13:29 PDT 2011jodyms @ctsinclair T1: Understand that the end of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. #hpm Wed Jun 8 18:13:43 PDT 2011ctsinclair T1: Important to address w/ psychology of the patient and the family, seen wide variety of adjustment to illness (some good, some bad) #hpm Wed Jun 8 18:13:47 PDT 2011hollyby T1: It should not feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure. #hpm Wed Jun 8 18:13:57 PDT 2011ihatebreastcanc @jodyms Katherine with bone-only MBC #hpm Wed Jun 8 18:14:10 PDT 2011drseisenberg Med oncs can become involved with a hospice. Continuity. #hpm Wed Jun 8 18:14:24 PDT 2011DrSnit Im always intrigued by how afraid and alone people (the patients, the caretakers sometimes even the docs) feel during treatment #hpm
  8. 8. Wed Jun 8 18:14:24 PDT 2011MatthewsMichele RT @elderpages: 15 year old girl who is terminal with cancer has made a bucket list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpm Wed Jun 8 18:14:25 PDT 2011ctsinclair @elderpages Yes I would like to here from #cancer survivors as well on this topic. #hpm Wed Jun 8 18:14:28 PDT 2011jodyms @PracticalWisdom @elderpages First we need to make connections between clinical #HPM and survivor communities. Bridge must be constructed. Wed Jun 8 18:14:41 PDT 2011equijada RT @jodyms: @ctsinclair T1: Understand that the end of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. #hpm Wed Jun 8 18:14:42 PDT 2011jodyms @ihatebreastcanc Thank you for joining us. #hpm Wed Jun 8 18:14:59 PDT 2011ctsinclair T1: the curious challenge is identifying transition points. All stakeholders may have different perceptions of timing. #hpm Wed Jun 8 18:14:59 PDT 2011PracticalWisdom RT @ctsinclair: T1: Imp.2 address w/ psychology of pt & family, seen wide variety of adjustment to illness (some good, some bad) #HPM Wed Jun 8 18:15:03 PDT 2011hollyby RT @ctsinclair: T1: the curious challenge is identifying transition points. All stakeholders may have different perceptions of timing. #hpm Wed Jun 8 18:15:28 PDT 2011elderpages RT @equijada: RT @jodyms: T1: End of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. #hpm Wed Jun 8 18:15:34 PDT 2011DrSnit @uvmer :) so glad youve joined the conversation. Your voice is necessary! xo #hpm Wed Jun 8 18:15:38 PDT 2011ctsinclair @ihatebreastcanc We really appreciate the perspective of patients and families in this chat. Glad you are here. #hpm Wed Jun 8 18:15:47 PDT 2011MatthewsMichele pls. rt @JohnAmussen: Im a marrow donor. heres 1 reason why. http://t.co/72Kubdy / #alicebucketlist” me too! www.marrow.org via @mswz #hpm Wed Jun 8 18:15:53 PDT 2011PracticalWisdom RT @jodyms: @PracticalWisdom @elderpages 1st we need 2 make connect Btween clinical #HPM/survivor commu. Bridge must be constructed. #HPM Wed Jun 8 18:15:57 PDT 2011
  9. 9. elderpages TI: I think part of collaboration is starting where "they/we" are. Families and patients not always on same page as each other. #hpm Wed Jun 8 18:16:20 PDT 2011authordhallman #hpm In Ontario, we benefitted from the coordinating agency that links the PC MDs, community nurses, homemakers for the family’s benefit Wed Jun 8 18:16:23 PDT 2011jfclearywisc In #cancer & other diseases, do we reduce sense of abandonment with clear definition of goals of care: cure, prolong, palliate #hpm Wed Jun 8 18:16:39 PDT 2011ctsinclair RT @hollyby: T1: Shouldnt feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure #hpm Wed Jun 8 18:16:50 PDT 2011JohnGirdwood Like your twitter name : ) RT @jodyms: @ihatebreastcanc Thank you for joining us. #hpm Wed Jun 8 18:17:00 PDT 2011equijada @jodyms how do cancer patients wish to transitioner? As a physician, I slowly push boundaries till I get resistance then back off #hpm Wed Jun 8 18:17:05 PDT 2011PracticalWisdom RT @elderpages: TI: Part of collaboration is starting where "they/we" R. Families/patients not always on same page as each other. #HPM Wed Jun 8 18:17:07 PDT 2011DrSnit @elderpages YES! And even when they ARE on the same page, EMOTIONS come up and people feel like a "failure" for having feelings #hpm Wed Jun 8 18:17:23 PDT 2011MatthewsMichele T1: End of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. via @jodyms #hpm Wed Jun 8 18:17:24 PDT 2011aliciabloom stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:17:25 PDT 2011uvmer As care giver to my partner w/a brain tumor, an early conversation & an advanced directive were key.Knew then the path I was to follow. #hpm Wed Jun 8 18:17:34 PDT 2011jfclearywisc RT @hollyby: T1: Shouldnt feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure #hpm Wed Jun 8 18:17:36 PDT 2011Freshwidow I disagree about transition points. @ctsinclair: As a #cancer widow, I wish we had some orientation to hospice/PM at dx... or earlier! #hpm Wed Jun 8 18:17:39 PDT 2011ctsinclair T1: I think the concept of navigator has been helpful in breast #cancer, wondering if applied more broadly? #hpm
  10. 10. applied more broadly? #hpm Wed Jun 8 18:17:47 PDT 2011PracticalWisdom RT @equijada: @jodyms how do cancer patients wish2 transitioner? As MD, I slowly push boundaries till I get resistance then back off #HPM Wed Jun 8 18:18:01 PDT 2011elderpages I love the work of Dr. David Casarret: Talk first about hopes and achievable goals. Strategize transition in context of achieving these #hpm Wed Jun 8 18:18:11 PDT 2011jodyms Elaborate - I like that RT @aliciabloom stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:18:12 PDT 2011MatthewsMichele @PracticalWisdom @elderpages how do we get them on the same page...is that not where the process should begin? #hpm Wed Jun 8 18:18:12 PDT 2011MatthewsMichele RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:18:18 PDT 2011ctsinclair @aliciabloom Got to talk to a nurse today about that. She was very receptive to having good language to describe the role of pall care #hpm Wed Jun 8 18:18:19 PDT 2011jfclearywisc @uvmer So how tough was that early conversation and did it take away hope? #hpm Wed Jun 8 18:18:30 PDT 2011Freshwidow I believe once you get the idea that there is a "transition" point, you are too delicate to ever start with most ppl. #hpm @ctsinclair Wed Jun 8 18:18:41 PDT 2011drseisenberg T1: Compassionate communication must be there from day 1. #hpm Wed Jun 8 18:18:45 PDT 2011ctsinclair @Freshwidow So glad you are here! Tell me more why you disagree about transition points. I think we are probably on the same page. #hpm Wed Jun 8 18:18:50 PDT 2011jodyms @freshwidow I agree completely from what Ive seen and experienced. #hpm Wed Jun 8 18:18:54 PDT 2011equijada RT @Freshwidow: I disagree about transition points. @ctsinclair: As a #cancer widow, I wish we had some orientation to hospice/PM at dx... or earlier! #hpm Wed Jun 8 18:18:54 PDT 2011revdoc T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm Wed Jun 8 18:19:00 PDT 2011
  11. 11. elderpages RT @MatthewsMichele: how do we get them on the same page...is that not where the process should begin?...T: "Whose" page is first? #hpm Wed Jun 8 18:19:17 PDT 2011Freshwidow With us, the disease was slow for a long time... it started to change v. quickly, then more quickly. NO time to adjust. #hpm @ctsinclair Wed Jun 8 18:19:33 PDT 2011elderpages RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?... T: As a former midwife, YES!!! #hpm Wed Jun 8 18:19:35 PDT 2011DrSnit RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm Wed Jun 8 18:19:39 PDT 2011ctsinclair @uvmer Was knowing the path helpful, even if you veered off the path? Like knowing when things were not as planned? #hpm Wed Jun 8 18:19:40 PDT 2011RossJeanette T1 healthcare providers should accept that palliative care can improve quality and length of life too. #HPM Wed Jun 8 18:19:43 PDT 2011PracticalWisdom Not sure there is a simple nor easy answer. G8 ?RT @MatthewsMichele: @PracticalWisdom @elderpages how do we get them on the same page. #HPM Wed Jun 8 18:19:47 PDT 2011aliciabloom if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm Wed Jun 8 18:19:51 PDT 2011ihatebreastcanc #cancer the word palliative is misunderstood. Some equate it with giving up or no hope. Need to clearly define for patient and family #hpm Wed Jun 8 18:19:58 PDT 2011jodyms EOL navigators, doulas? Those are interesting thoughts. #hpm Wed Jun 8 18:20:02 PDT 2011ctsinclair @revdoc There have been some doulas for EOL but I think they would avoid calling themselves Death Doulas. #hpm Wed Jun 8 18:20:07 PDT 2011EldrcareConsult Wait!!! Dont start yet!!! I am here now! :) #hpm Wed Jun 8 18:20:17 PDT 2011aliciabloom @ctsinclair language is critically important and a focus of the clinical education i do. #hpm Wed Jun 8 18:20:22 PDT 2011hollyby T1: Providers need to develop communication skills to address goals & what is important to the patient at diagnosis and revisit them #hpm
  12. 12. Wed Jun 8 18:20:27 PDT 2011MatthewsMichele @elderpages @MatthewsMichele the patients page...definitely the patients page. #hpm Wed Jun 8 18:20:29 PDT 2011PracticalWisdom RT @Freshwidow: With us, disease was slow 4 a long timeit started 2 change v. quickly/then quickly. NO time to adjust. #hpm @ctsinclair #HPM Wed Jun 8 18:20:35 PDT 2011westr RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm Wed Jun 8 18:20:35 PDT 2011Pallimed Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc Wed Jun 8 18:20:36 PDT 2011MatthewsMichele RT @aliciabloom: if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm Wed Jun 8 18:20:40 PDT 2011ctsinclair RT @jodyms: EOL navigators, doulas? Those are interesting thoughts. "but then we have the tough EOL/labeling issue" #hpm Wed Jun 8 18:21:00 PDT 2011PracticalWisdom So glad to see you. Always add value and kindness.RT @EldrcareConsult: Wait!!! Dont start yet!!! I am here now! :) #HPM Wed Jun 8 18:21:12 PDT 2011jodyms RT @westr: RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm Wed Jun 8 18:21:12 PDT 2011revdoc RT @ctsinclair: I think they avoid calling themselves Death Doulas. "Are we still that death avoidant? Its birth to different realm" #hpm Wed Jun 8 18:21:40 PDT 2011DrSnit @revdoc The idea of a "death doula" is powerful. But death, loss, & dying are so culturally centered, who would do it best? #hpm Wed Jun 8 18:21:46 PDT 2011EldrcareConsult The little one and I were out washing my truck..... :) #hpm Wed Jun 8 18:21:47 PDT 2011JoshGriffin RT @RossJeanette: T1 healthcare providers should accept that palliative care can improve quality and length of life too. #HPM Wed Jun 8 18:21:49 PDT 2011Freshwidow I hear this a LOT from my widows... and we often focus it (wrongly I think) on the excessive hope in disease communities #hpm @ctsinclair Wed Jun 8 18:21:53 PDT 2011
  13. 13. jodyms T2: You all agree on early discussion. Where/when does that take place? #hpm Wed Jun 8 18:21:56 PDT 2011jfclearywisc I talk to all patients with advanced disease about #hpm. They can choose not to have anticancertherapy. Hospice is important then. #hpm Wed Jun 8 18:21:57 PDT 2011PracticalWisdom Listening to needs 1st start.RT @westr: RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm #HPM Wed Jun 8 18:22:02 PDT 2011PinkRibbonBlues RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm Wed Jun 8 18:22:07 PDT 2011ctsinclair @Freshwidow The different trajectories of illness is often discussed by palliative teams. Some are gradual, others very erratic #hpm Wed Jun 8 18:22:15 PDT 2011elderpages See link on tipsheet for talking about hospice: Identify hopes first. http://bit.ly/m1wYsJ #hpm Wed Jun 8 18:22:16 PDT 2011jodyms @revdoc @ctsinclair We ARE death avoidant. How do we tell the truth in cultures where the truth is not to be told? #hpm Wed Jun 8 18:22:37 PDT 2011Freshwidow For me, hope for change is in the grassroots already active: disease communities MUST start to talk about "not every makes it." #hpm Wed Jun 8 18:22:42 PDT 2011vj_CR @PracticalWisdom hello Lisa! I´m I too late to jump in #hpm ?? Wed Jun 8 18:22:49 PDT 2011jodyms RT @jfclearywisc: I talk to all patients with advanced disease about #hpm. They can choose not to have anticancertherapy. Hospice is im ... Wed Jun 8 18:22:51 PDT 2011PinkRibbonBlues RT @Freshwidow @ctsinclair We often focus it (wrongly I think) on the excessive hope in disease communities #hpm Wed Jun 8 18:22:55 PDT 2011equijada @jodyms would it be helpful if a healthcare provider was identified from day one as the "non-abandoner" (obviously need better term) #hpm Wed Jun 8 18:23:21 PDT 2011ihatebreastcanc #cancer everybody wants to go to heaven but nobody wants to die. Denial is a powerful coping mechanism! #hpm Wed Jun 8 18:23:21 PDT 2011buffalogator RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and
  14. 14. buffalogator RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc Wed Jun 8 18:23:23 PDT 2011jodyms Agree! RT @Freshwidow I hear this a LOT from my widows... and we often focus it (wrongly I think) on excessive hope #hpm @ctsinclair Wed Jun 8 18:23:32 PDT 2011MatthewsMichele @vj_CR @PracticalWisdom my two cents...no way, jump in anytime! ;) #hpm Wed Jun 8 18:23:36 PDT 2011hollyby @jfclearywisc Some patients on hospice continue palliative chemo, dont necessarily have to d/c anticancer therapy. #hpm Wed Jun 8 18:23:39 PDT 2011drseisenberg I saw so many young patients today; new patients. Connection first. #hpm Wed Jun 8 18:23:46 PDT 2011ctsinclair @revdoc Yes we (culture) are death avoidant in terms of our own mortality. Most acknowledge death is inevitable, just not dying yet. #hpm Wed Jun 8 18:23:47 PDT 2011Freshwidow We widows OFTEN see this as a culture change issue across the board b/c of our isolation and perspective btwn 2 worlds #hpm. Wed Jun 8 18:23:54 PDT 2011PracticalWisdom @Jodyms is our leader 2 night sure she/we are glad you R hereRT @vj_CR: @PracticalWisdom hello Lisa! I´m I too late to jump in #hpm ?? #HPM Wed Jun 8 18:23:56 PDT 2011revdoc @jodyms @ctsinclair We learn to tell truth in the language of each culture; takes a lot of work and cultural sensitivity #hpm Wed Jun 8 18:24:09 PDT 2011ctsinclair RT @Freshwidow: hope for change is in the grassroots already active: disease communities MUST start to talk about "not every makes it." #hpm Wed Jun 8 18:24:13 PDT 2011vj_CR @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome! Wed Jun 8 18:24:17 PDT 2011jfclearywisc RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent: Yes it is informed consent so need it from diagnosis. #hpm Wed Jun 8 18:24:18 PDT 2011equijada @jodyms @Freshwidow I like what @jfclearywisc has been teaching about hope/hubris #hpm Wed Jun 8 18:24:30 PDT 2011ctsinclair RT @drseisenberg: I saw so many young patients today; new patients. Connection first. "Helps establish trust, and non-abandonment" #hpm Wed Jun 8 18:24:34 PDT 2011
  15. 15. DrSnit @Freshwidow People often take "hope" or make "meanings" in amazing ways during the illness process. How or should we even shift this? #hpm Wed Jun 8 18:24:46 PDT 2011elderpages RT @PinkRibbonBlues: We often focus it (wrongly I think) on the excessive hope...T: Hope has many faces. http://bit.ly/mUBNWI #hpm Wed Jun 8 18:24:49 PDT 2011VillageMemorial @ctsinclair What about collaborating w/friendly funeral directors? #hpm Wed Jun 8 18:24:53 PDT 2011ctsinclair RT @ihatebreastcanc: #cancer everybody wants to go to heaven but nobody wants to die. Denial is a powerful coping mechanism! #hpm Wed Jun 8 18:25:06 PDT 2011aliciabloom at time of diagnosis with an advanced illness there should be discussion about values, preferences and wishes. balance hope & reality. #hpm Wed Jun 8 18:25:08 PDT 2011jodyms Absolutely @equijada would it be helpful if a healthcare provider was idd frm day as one "non-abandoner" (obviously need better term) #hpm Wed Jun 8 18:25:14 PDT 2011MarksPhone Sorry had a senior day totally forgot #hpm Wed Jun 8 18:25:24 PDT 2011ctsinclair @ihatebreastcanc Important too, to recognize that denial as coping mechanism is not always negative can be helpful at times. #hpm Wed Jun 8 18:25:35 PDT 2011jfclearywisc @hollyby @jfclearywisc Not suggesting cant have chemo and hospice. Informed consent is reason for early Hospice discussion @diagnosis #hpm Wed Jun 8 18:25:36 PDT 2011EldrcareConsult @VillageMemorial @ctsinclair I have established some great relationships with funeral directors...they are great resources #hpm Wed Jun 8 18:25:48 PDT 2011revdoc RT @revdoc: @jodyms @ctsinclair lot of work & cultural sensitivity "also not a one time thing, reveal the truth over time as pt/fam tol #hpm Wed Jun 8 18:25:57 PDT 2011hollyby RT @aliciabloom: at time of dx w/ advanced illness there should be discussion abt values, preferences & wishes. balance hope & reality. #hpm Wed Jun 8 18:26:04 PDT 2011JohnGirdwood Great! Every step of the way RT @equijada: @jodyms helpful if healthcare provider identified from day 1: "non-abandoner" #hpm Wed Jun 8 18:26:24 PDT 2011VillageMemorial Does anyone have experience w/home monitoring distance care over internet?
  16. 16. VillageMemorial Does anyone have experience w/home monitoring distance care over internet? #hpm Wed Jun 8 18:26:27 PDT 2011ctsinclair @jodyms RE: Non-abandoner - we need more negatives in there. I am a non-anti- abandoning unavoider. ;-) #hpm Wed Jun 8 18:26:28 PDT 2011PracticalWisdom VAlentina is joining us from Argentina RT @vj_CR: @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome! #HPM Wed Jun 8 18:26:30 PDT 2011hollyby True. RT @jfclearywisc: @hollyby Not suggesting cant have chemo & hospice. Informed consent is reason for early Hospice discussion @ dx #hpm Wed Jun 8 18:26:40 PDT 2011jfclearywisc RT @equijada: @jodyms @Freshwidow I like what @jfclearywisc has been teaching about hope/hubris Thanks it is James Tulskys work!! #hpm Wed Jun 8 18:26:44 PDT 2011aliciabloom #palliative care discussions before LVAD surgery did not take away hope & was found to provide relief (mnt.to/3WDs) #hpm Wed Jun 8 18:26:51 PDT 2011Freshwidow I wonder if shrinks can offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro? Wed Jun 8 18:26:56 PDT 2011PracticalWisdom RT @EldrcareConsult: @VillageMemorial @ctsinclair I have established # great relationships w/ funeral directors they R great resources #HPM Wed Jun 8 18:27:05 PDT 2011jodyms @ctsinclair EOL facilitor doesnt work, either.....#hpm Wed Jun 8 18:27:09 PDT 2011drseisenberg I had to listen listen listen and then listen. Then gently talk about what we need to do next. #hpm Wed Jun 8 18:27:14 PDT 2011ctsinclair @jfclearywisc Would love health care to really focus on informed consent. So undervalued. Worlds biggest lie I have read the terms #hpm Wed Jun 8 18:27:27 PDT 2011Freshwidow Agree -- or earlier! RT @hollyby: RT @aliciabloom: at time of dx w/ advanced illness there should be discussion ..... #hpm Wed Jun 8 18:27:30 PDT 2011jodyms RT @aliciabloom: #palliative care discussions before LVAD surgery did not take away hope & was found to provide relief (mnt.to/3WDs) #hpm Wed Jun 8 18:27:31 PDT 2011jodyms RT @PracticalWisdom: VAlentina is joining us from Argentina RT @vj_CR: @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm ... Wed Jun 8 18:27:43 PDT 2011
  17. 17. Wed Jun 8 18:27:43 PDT 2011jodyms RT @Freshwidow: I wonder if shrinks can offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro? Wed Jun 8 18:27:53 PDT 2011ctsinclair RT @Freshwidow: Can shrinks offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro? cc @DrShock #hpm Wed Jun 8 18:27:59 PDT 2011elderpages @jfclearywisc Do you have link to some of James Tulskys work? #hpm Wed Jun 8 18:27:59 PDT 2011DrSnit Many fear if they dont have "hope" or a act a certain way during the illness process they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:28:13 PDT 2011uvmer @jfclearywisc Actually before initial surgery. Never spoke of it again. In the end ability to speak was gone, but knew what I had to do #hpm Wed Jun 8 18:28:29 PDT 2011aliciabloom @Freshwidow i believe #palliative care clinicians can help patients & families cope with catastrophic diagnosis. #hpm Wed Jun 8 18:28:29 PDT 2011VillageMemorial @aliciabloom Good points. Planning is vital. #hpm Wed Jun 8 18:28:32 PDT 2011PracticalWisdom Along w/ your songs!RT @drseisenberg: I had to listen listen listen and then listen. Then gently talk about what we need to do next. #HPM Wed Jun 8 18:28:34 PDT 2011jodyms RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during the illness process they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:28:34 PDT 2011Freshwidow Yes, one really must use holistic, positive language. Like SISTER/BROTHER... navigator. @jodyms: @ctsinclair #hpm Wed Jun 8 18:28:37 PDT 2011MatthewsMichele RT @aliciabloom: @Freshwidow i believe #palliative care clinicians can help patients & families cope with catastrophic diagnosis. #hpm Wed Jun 8 18:28:50 PDT 2011jfclearywisc RT @ctsinclair: @jfclearywisc Would love health care to really focus on informed consent. Bet u bought ur house w/o reading fineprint #hpm Wed Jun 8 18:28:51 PDT 2011HumpbacksRule #hpm Hi all, Late to the party, but lurking :) Ro here- Research nurse, hospice volunteer. Wed Jun 8 18:28:53 PDT 2011JohnGirdwood Huh? Confused RT @hollyby: @jfclearywisc patients on hospice continue palliative
  18. 18. JohnGirdwood Huh? Confused RT @hollyby: @jfclearywisc patients on hospice continue palliative chemo, dont necessarily d/c anticancer therapy. #hpm Wed Jun 8 18:28:57 PDT 2011Gregmogel wow. “@revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm” Wed Jun 8 18:29:05 PDT 2011jodyms At the cancer centers Ive seen the #HPM department is off and away....down a hall, on the top floor, set aside. Lets start there. Wed Jun 8 18:29:12 PDT 2011elderpages @aliciabloom has hope to trend on twitter! David Casarrets book Last Acts is all about what people choose to do in final weeks. #hpm Wed Jun 8 18:29:17 PDT 2011uvmer Sorry, my computer needs hospice! In slo-mo tonight. #hpm Wed Jun 8 18:29:21 PDT 2011equijada @DrSnit dont think dying has to be taught...just experienced. #hpm Wed Jun 8 18:29:24 PDT 2011JoshGriffin RT @ctsinclair: @jodyms RE: Non-abandoner - we need more negatives in there. I am a non-anti-abandoning unavoider. ;-) #hpm Wed Jun 8 18:29:38 PDT 2011TreatThePain RT @painpolicy: 15 year old girl w/ terminal cancer has made a bucket list. One of her wishes: to trend on Twitter. Plz give a RT #alicebucketlist #hpm Wed Jun 8 18:29:44 PDT 2011ctsinclair RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:29:50 PDT 2011hellen177 RT @uvmer: As care giver to my partner w/a brain tumor, an early conversation & an advanced directive were key.Knew then the path I was to follow. #hpm Wed Jun 8 18:29:50 PDT 2011hollyby @JohnGirdwood Which part? #hpm Wed Jun 8 18:29:54 PDT 2011ctsinclair @DrSnit I see many patients who deny symptoms because they dont want people to think anti-cancer treatments are failing. #hpm Wed Jun 8 18:30:16 PDT 2011joshgriffin RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:30:24 PDT 2011equijada “@jodyms: At the cancer centers Ive seen the #HPM department is off & away....down a hall, on the top floor, set aside..start there.” Amen Wed Jun 8 18:30:26 PDT 2011
  19. 19. vj_CR @DrSnit mmmm I don´t think you can be taught on how to die.... probably it´s part of the journey.... #hpm Wed Jun 8 18:30:39 PDT 2011MatthewsMichele I agree wholeheartedly! RT @equijada: @DrSnit dont think dying has to be taught...just experienced. #hpm Wed Jun 8 18:30:56 PDT 2011aliciabloom @elderpages absolutely-- lovely stories in the book. i have a signed copy:) worked with dr. casarret when i was at penn. #hpm Wed Jun 8 18:30:58 PDT 2011ctsinclair RT @uvmer: Sorry, my computer needs hospice! In slo-mo tonight. "Cmon computer, you can do it!" #hpm Wed Jun 8 18:30:58 PDT 2011DrSnit @equijada :) Thats like saying birth is natural- just go push sweetie. Death and illness are a process. We NEED EACH OTHER. #hpm Wed Jun 8 18:30:58 PDT 2011PinkRibbonBlues RT @DrSnit Many fear if they dont have "hope" or a act a certain way during the illness process they WILL be abandoned. #hpm Wed Jun 8 18:30:59 PDT 2011Freshwidow @aliciabloom But we resist when we are marshalling 100% to get thru 1st therapy, research.... etc. We create our disease mindset... #hpm Wed Jun 8 18:31:04 PDT 2011PracticalWisdom Wonder Why? RT @jodyms: all cancer centers Ive seen #HPM depar is off away.down a hall, on the top floor, set aside. Lets start there. #HPM Wed Jun 8 18:31:15 PDT 2011MarksPhone @ctsinclair well said and Ive seen that as well but I think it is a way for them to feel hope #hpm Wed Jun 8 18:31:16 PDT 2011jodyms RT @ctsinclair @DrSnit ..many patients who deny symptoms because they dont want people to think anti-cancer treatments are failing. #hpm Wed Jun 8 18:31:22 PDT 2011equijada @DrSnit @equijada true that. #hpm Wed Jun 8 18:31:33 PDT 2011revdoc @equijada @DrSnit But once U have the exper, U cant teach others except passively. We can teach "how to die well" w/ our global exps. #hpm Wed Jun 8 18:31:36 PDT 2011ctsinclair RT @equijada: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm Wed Jun 8 18:31:51 PDT 2011ihatebreastcanc RT @jodyms: RT @ctsinclair @DrSnit ..many patients who deny symptoms because
  20. 20. ihatebreastcanc RT @jodyms: RT @ctsinclair @DrSnit ..many patients who deny symptoms because they dont want people to think anti-cancer treatments are failing. #hpm Wed Jun 8 18:31:56 PDT 2011PracticalWisdom Both can be scary/PainfulRT @DrSnit: @equijadaThats like saying birth is natural- just go push sweetie. Death/illness are a process. #HPM Wed Jun 8 18:32:04 PDT 2011HumpbacksRule RT @ctsinclair: RT @equijada: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm Wed Jun 8 18:32:29 PDT 2011equijada @ctsinclair true #hpm Wed Jun 8 18:32:32 PDT 2011ctsinclair @MarksPhone Agreed, it is a complex phenomenon that has effects on the individual and the team around them #hpm Wed Jun 8 18:32:36 PDT 2011drseisenberg yep RT @jodyms @ctsinclair @DrSnit ..many patients who deny symptoms because they dont want people to think anti-cancer tx are failing. #hpm Wed Jun 8 18:32:40 PDT 2011jfclearywisc RT @ctsinclair: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm Wed Jun 8 18:32:42 PDT 2011vj_CR @jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot from the ones used in the states #hpm Wed Jun 8 18:32:58 PDT 2011VillageMemorial Anyone else attending this Fridays Statewide #Palliative Care Conference in Portland OR? #hpm Wed Jun 8 18:32:58 PDT 2011jodyms @PracticalWisdom @drsnit Both are SCARY. Control freaks like myself want to know: how does this work?? #hpm Wed Jun 8 18:33:04 PDT 2011MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. That is difficult #hpm Wed Jun 8 18:33:14 PDT 2011elderpages Wondering how patients are feeling abandoned and what they would like by way of support. #hpm Wed Jun 8 18:33:46 PDT 2011ctsinclair @jodyms Ha! At our hospital the palliative medicine department is on top floor down a...dead end. Never realized till you said that. #hpm Wed Jun 8 18:33:48 PDT 2011hollyby Im not sure that teaching dying is the right term, maybe guiding people through the process, since each persons path is different. #hpm
  21. 21. process, since each persons path is different. #hpm Wed Jun 8 18:33:53 PDT 2011PracticalWisdom Think need 4 All! RT @jodyms: @PracticalWisdom @drsnit Both are SCARY. Control freaks like myself want to know: how does this work?? #HPM Wed Jun 8 18:33:57 PDT 2011ctsinclair @vj_CR In what way are informed consents different? #hpm Wed Jun 8 18:34:04 PDT 2011MarksPhone Remember in our live we learn through experiences and reflect on them this is a different learning we may not have time to reflect #hpm Wed Jun 8 18:34:17 PDT 2011drseisenberg RT @MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. Difficult #hpm Wed Jun 8 18:34:21 PDT 2011ctsinclair @equijada And it is not so much telling them this is the way to die well, but here are how other families/patients coped well. #hpm Wed Jun 8 18:34:36 PDT 2011jodyms RT @drseisenberg: RT @MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. Difficult #hpm Wed Jun 8 18:34:40 PDT 2011joshgriffin RT @hollyby: Im not sure that teaching dying is the right term, maybe guiding people through the process, since each persons path is different. #hpm Wed Jun 8 18:34:46 PDT 2011PracticalWisdom @jodyms @PracticalWisdom @drsnit When people understand many times helps lower anxiety. This certainly is good for Body/Soul/Mind/Famiy #HPM Wed Jun 8 18:34:49 PDT 2011uvmer @ctsinclair Wicked scary!!! I wanted to be the caregiver through the entire process, and they were wonderful support givers. #hpm Wed Jun 8 18:34:49 PDT 2011ctsinclair @equijada The main theme to healthy coping with illness is adaptation. #hpm Wed Jun 8 18:35:05 PDT 2011Freshwidow I strongly disagree - Pt, family, etc, can B learn that death is one real outcome. / @vj_cr don´t think u can be taught how 2 die.. #hpm Wed Jun 8 18:35:06 PDT 2011elderpages RT @MarksPhone: Remember in our lives we learn thru experiences and reflect on them. This learning we may not have time to reflect #hpm Wed Jun 8 18:35:09 PDT 2011HumpbacksRule #hpm Dying is a lot of work for pt & caregiver. Talking, sharing & teaching are very important. Helps w the control freak to some degree. Wed Jun 8 18:35:09 PDT 2011
  22. 22. DrSnit Even knowing others have been through the process before & talking it through leaves breadcrumbs. This matters! #hpm Wed Jun 8 18:35:31 PDT 2011ctsinclair RT @MarksPhone: we learn through experiences and reflect on them; this is a different learning we may not have time to reflect #hpm Wed Jun 8 18:35:34 PDT 2011jodyms @ctsinclair @equiljada We cant ever forget the entire family context and the cultural context. #hpm Wed Jun 8 18:35:34 PDT 2011aliciabloom @Freshwidow hear that & yet believe if pts know what #palliative care is (enhances QoL & can improve survival) they would be receptive #hpm Wed Jun 8 18:35:44 PDT 2011jfclearywisc RT @vj_CR: @jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot "not just the forms, a true discussion!" #hpm Wed Jun 8 18:35:54 PDT 2011MarksPhone What action on reflection does one take when told terminal? That is the step that is critical to learn how to die. #hpm Wed Jun 8 18:36:05 PDT 2011PracticalWisdom Again also helps patient.RT @jodyms: @ctsinclair @equiljada We cant ever forget the entire family context and the cultural context. #HPM Wed Jun 8 18:36:14 PDT 2011drseisenberg RT @HumpbacksRule: #hpm Dying is a lot of work for pt & caregiver. Talking, sharing & teaching are very important. #hpm Wed Jun 8 18:36:17 PDT 2011ctsinclair RT @DesiChicInPA: @ctsinclair we have navis in neuroscience/brain malignancy, surgical oncology, lung and esophageal, geriatrics. #hpm Wed Jun 8 18:36:26 PDT 2011vj_CR @MarksPhone @ctsinclair sometimes patients accept the reality and their families don´t. Then they are the ones to be taught #hpm Wed Jun 8 18:36:28 PDT 2011uvmer Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm Wed Jun 8 18:36:33 PDT 2011Freshwidow NO. Dying is a family and community process. NOT just one experience. @drsnit -- / @equijada: dont think dying has to be taught... #hpm Wed Jun 8 18:36:45 PDT 2011vj_CR RT @hollyby: Im not sure that teaching dying is the right term, maybe guiding people through the process, since each persons path is different. #hpm Wed Jun 8 18:36:45 PDT 2011
  23. 23. ctsinclair @vj_CR So true #hpm Wed Jun 8 18:36:50 PDT 2011jfclearywisc RT @hollyby: Im not sure that teaching dying is the right term, "Doctor" = teacher (was that my Latin class?) #hpm Wed Jun 8 18:36:57 PDT 2011PracticalWisdom RT @vj_CR: @MarksPhone @ctsinclair sometimes patients accept the reality and their families don´t. Then they are the ones to be taught #HPM Wed Jun 8 18:37:04 PDT 2011revdoc We can demystify the mechanics of the dying process so that pts/fams are then free to concentrate on meaning/deal w/emotional cmpts #hpm Wed Jun 8 18:37:04 PDT 2011MarksPhone @vj_CR Great point how to balance family and pateint because that is journey they are on #hpm Wed Jun 8 18:37:11 PDT 2011elderpages RT @MarksPhone: What action on reflection does one take when told terminal? That is the step that is critical to learn how to die. #hpm Wed Jun 8 18:37:20 PDT 2011PracticalWisdom RT @MarksPhone: @vj_CR Great point how to balance family and pateint because that is journey they are on #HPM Wed Jun 8 18:37:33 PDT 2011ctsinclair @uvmer Was that how it was said talking to someone about end of life care? Being a palliative doc, always curious how HPM introduced #hpm Wed Jun 8 18:37:41 PDT 2011equijada RT @uvmer: Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm Wed Jun 8 18:37:46 PDT 2011jodyms Dying is a group experience, agree @ Freshwidow NO. Dying is a family and community process. NOT just one experience #hpm Wed Jun 8 18:37:48 PDT 2011drseisenberg What can med oncs do to support #cancer patients if treatments not working? #hpm Wed Jun 8 18:37:53 PDT 2011ctsinclair RT @revdoc: We can demystify the mechanics of the dying process so pts/fams are free to concentrate on meaning/deal w/emotional cmpts #hpm Wed Jun 8 18:38:02 PDT 2011revdoc Type slower--you guys are making me dizzy tonight! #hpm Wed Jun 8 18:38:05 PDT 2011PracticalWisdom @Freshwidow: What is one lesson you would like for us to hear from you tonight. This is a caring group and we are open to learning. #HPM Wed Jun 8 18:38:19 PDT 2011
  24. 24. Wed Jun 8 18:38:19 PDT 2011equijada @uvmer how was it introduced? #hpm Wed Jun 8 18:38:21 PDT 2011Freshwidow Absitively! RT @drsnit: Even knowing others have been through the process before & talking it through leaves breadcrumbs. This matters! #hpm Wed Jun 8 18:38:26 PDT 2011jfclearywisc Has anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Comes up over & over #hpm Wed Jun 8 18:38:34 PDT 2011elderpages RT @revdoc: We can demystify the mechanics of dying...T: Our webpage on "Last Few Days" is one of most visited! http://bit.ly/mfenFJ #hpm Wed Jun 8 18:38:35 PDT 2011HumpbacksRule #hpm I think every1 is different on when/where/how they are ready to discuss the process. Gotta start where the pt is. Wed Jun 8 18:38:38 PDT 2011jodyms @revdoc If youre dizzy - imagine me....I am crazed #hpm Wed Jun 8 18:38:43 PDT 2011VillageMemorial Dr. Erik Fromme always puts on a great talk at every #Palliative Care Conference. Looking forward to Fridays event in Portland. #pdx #hpm Wed Jun 8 18:38:51 PDT 2011revdoc @drseisenberg Either construct a palliative care plan for your pts (and know what youre doing) or consult HPM EARLY #hpm Wed Jun 8 18:39:00 PDT 2011jodyms YES @PracticalWisdom @Freshwidow: What is one lesson you would like for us to hear from you .. we are open to learning. #HPM Wed Jun 8 18:39:26 PDT 2011equijada @jfclearywisc interesting, I was just thinking that and how I used hope 10 years ago compared to now #hpm Wed Jun 8 18:39:36 PDT 2011ctsinclair RT @MarksPhone: What action on reflection does one take when told terminal? "I have seen as a time of immense growth" #hpm Wed Jun 8 18:39:40 PDT 2011Freshwidow But you are treating this as a RATIONAL factual problem. Its NOT. RT @aliciabloom: if pts know what #palliative is theyd B receptive #hpm Wed Jun 8 18:39:40 PDT 2011vj_CR @ctsinclair after I read the first ICF in english I was surprised to see how down to the facts it was #hpm Wed Jun 8 18:39:45 PDT 2011
  25. 25. elderpages RT @MarksPhone: @vj_CR Great point how to balance family and pateint because that is journey they are on #hpm Wed Jun 8 18:39:50 PDT 2011drseisenberg RT @HumpbacksRule: #hpm I think every1 is different on when/where/how they are ready 2 discuss process. Gotta start where the pt is. #hpm Wed Jun 8 18:39:55 PDT 2011JoshGriffin RT @jodyms: Dying is a group experience, agree @ Freshwidow NO. Dying is a family and community process. NOT just one experience #hpm Wed Jun 8 18:39:57 PDT 2011vj_CR RT @MarksPhone: Remember in our live we learn through experiences and reflect on them this is a different learning we may not have time to reflect #hpm Wed Jun 8 18:39:57 PDT 2011jodyms RT @drseisenberg: What can med oncs do to support #cancer patients if treatments not working? #hpm Wed Jun 8 18:40:05 PDT 2011ctsinclair RT @revdoc: Type slower--you guys are making me dizzy tonight! "thats because this chat is a rockin! Having a great time!" #hpm Wed Jun 8 18:40:18 PDT 2011MarksPhone @HumpbacksRule I totally agree where is the patient? w/o having studied it there is a tipping point in understanding which happens #hpm Wed Jun 8 18:40:33 PDT 2011equijada @VillageMemorial I heart Erik. Please send him my regards. #hpm Wed Jun 8 18:40:43 PDT 2011aliciabloom we educate patients & families about dying process to support acceptance & guide the experience. never forget every process is unique. #hpm Wed Jun 8 18:40:53 PDT 2011DrSnit @HumpbacksRule You and @Freshwidow are SO SO SO on tonight with your insight!!!! #hpm Wed Jun 8 18:40:53 PDT 2011PracticalWisdom @Freshwidow Would you like for us to learn one lesson? I"m sure we can slow down to listen. #HPM Wed Jun 8 18:41:09 PDT 2011jfclearywisc RT @drseisenberg: What can med oncs do to support #cancer patients if treatments not working? "Define goal of therapy early!!" #hpm Wed Jun 8 18:41:10 PDT 2011ctsinclair RT @jfclearywisc: Anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Comes up over & over "I have transcripts!" #hpm Wed Jun 8 18:41:14 PDT 2011authordhallman #hpm A lesson - coordinate well the various care services so family can focus on patient.
  26. 26. authordhallman patient. Wed Jun 8 18:41:15 PDT 2011DoctorFisher Just ordered "The Art of Dying" by my friend @mollrob looking forward to reading it #hpm Wed Jun 8 18:41:19 PDT 2011joshgriffin RT @ctsinclair: RT @revdoc: Type slower--you guys are making me dizzy tonight! "thats because this chat is a rockin! Having a great time!" #hpm Wed Jun 8 18:41:22 PDT 2011revdoc @drseisenberg Have a sx mgmt assessment and plan for every pt every visit--as important as what CTX does pt need #hpm Wed Jun 8 18:41:26 PDT 2011jodyms @drseisenberg My thought - patients/familys are afraid that their PCP & med onc will abandon them. Period. #hpm Very real. Wed Jun 8 18:41:32 PDT 2011ctsinclair RT @DrSnit: @HumpbacksRule You and @Freshwidow are SO SO SO on tonight with your insight!!!! "Seconded!" #hpm Wed Jun 8 18:41:36 PDT 2011elderpages RT @authordhallman: #hpm A lesson - coordinate well the various care services so family can focus on patient. #hpm Wed Jun 8 18:41:40 PDT 2011equijada @DrSnit @HumpbacksRule @Freshwidow I learn so much from you. #hpm Wed Jun 8 18:41:52 PDT 2011HumpbacksRule Thanks! >> @DrSnit @Freshwidow You and @Freshwidow are SO SO SO on tonight with your insight!!!! #hpm Wed Jun 8 18:41:56 PDT 2011vj_CR @MarksPhone balance when you are not sick is hard enough...... imagine when you are #hpm Wed Jun 8 18:41:57 PDT 2011PracticalWisdom Thank you for this lesson.RT @authordhallman: #hpm A lesson - coordinate well the various care services so family can focus on patient. #HPM Wed Jun 8 18:41:58 PDT 2011hellen177 RT @uvmer: Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm Wed Jun 8 18:41:58 PDT 2011MarksPhone @ctsinclair That is a great point how can we quantify it so we can understand it better #hpm Wed Jun 8 18:42:10 PDT 2011vj_CR RT @revdoc: Type slower--you guys are making me dizzy tonight! #hpm | hehe me too!!!! Wed Jun 8 18:42:24 PDT 2011
  27. 27. LJaneTn @jodyms #HPM fear is often the place where patients start. Wed Jun 8 18:42:26 PDT 2011drseisenberg RT @vj_CR: @MarksPhone balance when you are not sick is hard enough...... imagine when you are #hpm Wed Jun 8 18:42:38 PDT 2011PracticalWisdom Its one of the reasons I respect all of you. RT @equijada: @DrSnit @HumpbacksRule @Freshwidow I learn so much from you. #HPM Wed Jun 8 18:42:40 PDT 2011DrSnit @jodyms agreed! @drseisenberg Fear of abandonment and guilt is far bigger than fear of pain #hpm Wed Jun 8 18:42:43 PDT 2011jodyms We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc ..prevelance of the word "hope" Comes up over & over Wed Jun 8 18:42:44 PDT 2011drseisenberg RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. #hpm Wed Jun 8 18:42:51 PDT 2011uvmer @ctsinclair To us,knew prognosis was grim but there are always miracles out there.Once end of life care came up,hour glass was running #hpm Wed Jun 8 18:42:58 PDT 2011ctsinclair RT @revdoc: @drseisenberg Have a sx mgmt assessment and plan for every pt every visit--as important as what CTX does pt need "Yup!" #hpm Wed Jun 8 18:42:59 PDT 2011VillageMemorial We like to remember Kubler-Ross DABDA doesnt always happen in order. #hpm Wed Jun 8 18:43:10 PDT 2011equijada I think we need to have a journal club on hope/hubris. #hpm Wed Jun 8 18:43:24 PDT 2011ctsinclair @revdoc @drseisenberg But important to realize the oncologist may have enough to do with just focusing on the anti-cancer treatment #hpm Wed Jun 8 18:43:28 PDT 2011PracticalWisdom Profound~such an important Factor! RT @vj_CR: @MarksPhone balance when you are not sick is hard enough...... imagine when you are #HPM Wed Jun 8 18:43:30 PDT 2011aliciabloom sometimes we have to help patients & families reframe their hope. there are many kinds of healing. #hpm Wed Jun 8 18:43:33 PDT 2011DrSnit RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. Wed Jun 8 18:43:42 PDT 2011
  28. 28. Wed Jun 8 18:43:42 PDT 2011hollyby RT @jodyms: We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc ..prevelance of the word "hope" Comes up over & over #hpm Wed Jun 8 18:43:48 PDT 2011elderpages RT @equijada: I think we need to have a journal club on hope/hubris. #hpm Wed Jun 8 18:43:50 PDT 2011PracticalWisdom G8 Idea RT @equijada: I think we need to have a journal club on hope/hubris. #HPM Wed Jun 8 18:43:52 PDT 2011jodyms @drseisenberg @LJaneTn That is true and sounds good but it boils down to things like this: who helps and when? #hpm Wed Jun 8 18:44:18 PDT 2011jodyms EXCELLENT RT @PracticalWisdom G8 Idea RT @equijada: I think we need to have a journal club on hope/hubris. #HPM Wed Jun 8 18:44:39 PDT 2011ihatebreastcanc @drseisenberg #cancer Be honest, dont give false hope. Know patients grasp of his/her disease. Dont wail til very late for eol talk #hpm Wed Jun 8 18:44:40 PDT 2011hollyby RT @aliciabloom: sometimes we have to help patients & families reframe their hope. there are many kinds of healing. ...and miracles #hpm Wed Jun 8 18:44:41 PDT 2011elderpages RT @DrSnit: RT @LJaneTn: @jodyms #HPM fear is often the place where patients start....T: What helps move to acceptance/transcendence? #hpm Wed Jun 8 18:44:45 PDT 2011Pallimed Articles on miracles and spirituality/religion in health care from Pallimed http://hpm.md/k98Z6D cc@uvmer #hpm Wed Jun 8 18:44:45 PDT 2011jfclearywisc @uvmer @ctsinclair Miracles can come in many shapes and forms! "What do you mean by a miracle" is a teachable questions to residents #hpm Wed Jun 8 18:44:45 PDT 2011JohnGirdwood http://ow.ly/1tC6qX RT @ctsinclair: RT @jfclearywisc: Anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Wed Jun 8 18:44:48 PDT 2011PracticalWisdom RT @aliciabloom: sometimes we have to help patients & families reframe their hope. there are many kinds of healing. #HPM Wed Jun 8 18:44:52 PDT 2011DrSnit @VillageMemorial I like to remember that though I adore her, Kubler-Rosss DABDA doesnt happen for everyone and is culturally bound. #hpm Wed Jun 8 18:45:02 PDT 2011
  29. 29. "@revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?Satchwill #hpm">excellent idea! Wed Jun 8 18:45:08 PDT 2011aliciabloom @hollyby so true! #hpm Wed Jun 8 18:45:23 PDT 2011revdoc @ctsinclair @drseisenberg Then involve a dedicated HPM consultant in process before the active tx "fails" #hpm Wed Jun 8 18:45:27 PDT 2011uvmer @equijada At end of an office visit....kinda "oh, by the way, would you like to participate in an end of life discussion w/ some docs...#hpm Wed Jun 8 18:45:39 PDT 2011VillageMemorial Anyone in the group attending funeral of Dr. #Kevorkian this Friday? #hpm Wed Jun 8 18:45:41 PDT 2011Intlphysicians RT @fischmd: symptom science website: ECOG Symptom Outcomes and Practice Patterns (SOAPP) study, ecogsoapp.com, http://ow.ly/5dlKQ , #hpm Wed Jun 8 18:46:16 PDT 2011drseisenberg RT @revdoc: @ctsinclair @drseisenberg Then involve a dedicated HPM consultant in process before the active tx "fails" #hpm Wed Jun 8 18:46:16 PDT 2011LJaneTn @jodyms #HPM existential fear dominates- strikes at the heart of hope Wed Jun 8 18:46:18 PDT 2011jfclearywisc #alicebucketlist hit 1.43% of tweets for last 24 hours at 1730 CDT #hpm Wed Jun 8 18:46:22 PDT 2011aliciabloom we also need to be clear about what a "successful" treatment is-- patients often assume success = cure, which may not be the case. #hpm Wed Jun 8 18:46:23 PDT 2011uvmer @equijada Absolutely scared the shit out of us. Neither one of us could speak, and finally I said no thank you. #hpm Wed Jun 8 18:46:31 PDT 2011GroundSwellAus sorry Im chiming in late I just wanted to happy birthday pallimed #hpm Wed Jun 8 18:46:31 PDT 2011elderpages Dr. Casarret suggests talking first about deliverables of hospice (nurse visits, aide visits, SW). Once buy-in, then mention hospice. #hpm Wed Jun 8 18:46:43 PDT 2011equijada RT @uvmer: @equijada At end of an office visit....kinda "oh, by the way, would you like to participate in an end of life discussion w/ some docs...#hpm Wed Jun 8 18:46:46 PDT 2011
  30. 30. Wed Jun 8 18:46:46 PDT 2011drseisenberg RT @LJaneTn: @jodyms #HPM existential fear dominates- strikes at the heart of hope #hpm Wed Jun 8 18:46:49 PDT 2011HumpbacksRule #hpm @LJaneTn @jodyms Absolutely & sometimes fear looks like something else. Have to listen to pt>> fear is often the place where patients.. Wed Jun 8 18:46:53 PDT 2011MarksPhone Long ago in oncology pharma adriamycin nationally recognized oncologist said as did Jimmie Holland every cancer patient reacts diff #hpm Wed Jun 8 18:46:55 PDT 2011jodyms The things Im learning: Ive never heard of a #HPM consultant. Wed Jun 8 18:47:08 PDT 2011equijada @uvmer yes, I would not accept that either. #hpm Wed Jun 8 18:47:09 PDT 2011ihatebreastcanc RT @ctsinclair: RT @revdoc: We can demystify the mechanics of the dying process so pts/fams are free to concentrate on meaning/deal w/emotional cmpts #hpm Wed Jun 8 18:47:14 PDT 2011elderpages RT @aliciabloom: we need to define "successful" treatment is-- patients often assume success = cure, which may not be the case. #hpm Wed Jun 8 18:47:16 PDT 2011PracticalWisdom Wise RT @aliciabloom: we also need 2 B clear what a "successful" treatment is patients often assume success = cure may not be the case. #HPM Wed Jun 8 18:47:17 PDT 2011JohnGirdwood Good thought, im nearby RT @VillageMemorial: Anyone in the group attending funeral of Dr. #Kevorkian this Friday? #hpm Wed Jun 8 18:47:33 PDT 2011VillageMemorial @DrSnit Can you talk about the cultural differences of DABDA? #hpm Wed Jun 8 18:47:34 PDT 2011hollyby Yahoo! RT @GroundSwellAus: sorry Im chiming in late I just wanted to happy birthday pallimed #hpm Wed Jun 8 18:47:35 PDT 2011Freshwidow Absolutely. RT @drseisenberg: involve a dedicated HPM consultant in process before the active tx "fails" #hpm Wed Jun 8 18:47:37 PDT 2011Pallimed RT @GroundSwellAus: sorry Im chiming in late I just wanted to happy birthday pallimed #hpm "Hey thanks! 6 years of blogging!" Wed Jun 8 18:47:38 PDT 2011ihatebreastcanc RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way
  31. 31. ihatebreastcanc RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm Wed Jun 8 18:47:50 PDT 2011Gregmogel RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. Wed Jun 8 18:47:55 PDT 2011BCSisterhood @jodyms Loved one diequickly vs prolonged illness-shock of 1st way mind blowing & 2nd u have time to prepare. Lost husbands 2 each way. #hpm Wed Jun 8 18:48:09 PDT 2011drseisenberg RT @MarksPhone: Long ago nationally recognized oncologist said as did Jimmie Holland every cancer patient reacts diff #hpm Wed Jun 8 18:48:10 PDT 2011uvmer @equijada It was tough. #hpm Wed Jun 8 18:48:16 PDT 2011DrSnit @jodyms I get DMs all the time from patients in need of hospice and have NO IDEA where to go or how to deal with it. #hpm Wed Jun 8 18:48:16 PDT 2011ctsinclair RT @jodyms: The things Im learning: Ive never heard of a #HPM consultant. Really!? Im one! Seeing more patients ask for us." #hpm Wed Jun 8 18:48:23 PDT 2011revdoc @Pallimed Happy birthday! #hpm Wed Jun 8 18:48:26 PDT 2011PracticalWisdom Like the thought of analyzing Tweetchat afterward. Learned a great deal of ways I could improve/listen better as moderator after chat #HPM Wed Jun 8 18:48:34 PDT 2011vj_CR @Freshwidow sorry.... I forgot the #hpm .... I get your point..... just think teach is no the word.... Wed Jun 8 18:48:46 PDT 2011equijada @Gregmogel @LJaneTn @jodyms Fear. I personally have a lot of it. Im learning and growing. #hpm Wed Jun 8 18:48:50 PDT 2011DrSnit @VillageMemorial We are in a chat right now. Using the #hpm hastag. Will talk later. Thanks. Wed Jun 8 18:48:52 PDT 2011GroundSwellAus @Pallimed 6 years! wow! #hpm Wed Jun 8 18:48:56 PDT 2011HumpbacksRule Such a good point. @DrSnit @VillageMemorial I like to remember that though I adore her, Kubler-Rosss DABDA doesnt...#hpm Wed Jun 8 18:49:02 PDT 2011
  32. 32. RT @elderpages @aliciabloom we need to define "successful" treatment- patientsPinkRibbonBlues often assume success = cure, which may not be the case. #hpm Wed Jun 8 18:49:03 PDT 2011JohnGirdwood Volunteers too!!! RT @elderpages: Dr. Casarret suggests talking first about deliverables of hospice (nurse visits, aide visits, SW). #hpm Wed Jun 8 18:49:15 PDT 2011aliciabloom effective conversations re: #hospice dont start w/ word. cant drop the "h-bomb" right away. establish goals & determine needs 1st. #hpm Wed Jun 8 18:49:18 PDT 2011PracticalWisdom They trust U.RT @DrSnit: @jodyms I get DMs all the time from pts in need of hospice have NO IDEA where to go or how to deal with it. #HPM Wed Jun 8 18:49:18 PDT 2011jodyms My thought is if more survivors understand this - when were well - the mystery is easier to accept when it does happen #hpm Wed Jun 8 18:49:32 PDT 2011ctsinclair RT @DrSnit: I get DMs all the time from patients in need of #hospice & have NO IDEA where to go or how to deal with it. "wow!" really?" #hpm Wed Jun 8 18:49:40 PDT 2011uvmer @BCSisterhood Strongly disagree! Can not prepare for the loss of someone you have spent your whole adult life with, and watch them die. #hpm Wed Jun 8 18:49:55 PDT 2011elderpages RT @vj_CR: @Freshwidow I get your point..... just think teach is no the word.... T: Exploring? Sharing? #hpm Wed Jun 8 18:50:06 PDT 2011ctsinclair @DrSnit There are a ton of us in social media who can help you with your hospice referral challenge. I would love to tackle this. #hpm Wed Jun 8 18:50:15 PDT 2011jfclearywisc @ctsinclair @jodyms COnsultant=Attending in many commonwealth countries #hpm Wed Jun 8 18:50:31 PDT 2011hollyby @jodyms Ppl need to know we focus on whole person & symptom control, & may even help people complete symptom-causing curative therapy. #hpm Wed Jun 8 18:50:37 PDT 2011vj_CR @PracticalWisdom so true! #hpm and I think it´s part of the tweetchat point, trying to learn from it Wed Jun 8 18:50:39 PDT 2011DrSnit @ctsinclair YES PLEASE #HPM Wed Jun 8 18:50:43 PDT 2011revdoc @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with
  33. 33. revdoc @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:50:47 PDT 2011drseisenberg Every single one reacted sooooo differently today #hpm Wed Jun 8 18:51:00 PDT 2011jodyms Critical issue: T4: How do we share the #hpm mission to those in need of hospice? Dont we all have a responsibility? Wed Jun 8 18:51:04 PDT 2011elderpages RT @aliciabloom: effective conversations re: #hospice cant drop the "h-bomb" first. establish goals & determine needs 1st...T: YES! #hpm Wed Jun 8 18:51:13 PDT 2011ctsinclair @vj_CR so you dont have to forget the #hpm use http://Tweetchat.com/room/hpm #hpm Wed Jun 8 18:51:13 PDT 2011jodyms RT @ctsinclair: @DrSnit There are a ton of us in social media who can help you with your hospice referral challenge. I would love to tackle this. #hpm Wed Jun 8 18:51:18 PDT 2011MarksPhone if you look at #hcsmvac they are using a grass roots SM effort to increase flu vac rates in MO can we model that idea about hospice? #hpm Wed Jun 8 18:51:28 PDT 2011GroundSwellAus is there no "peak" org in the US that has a listing of all hospice? #hpm Wed Jun 8 18:51:28 PDT 2011jfclearywisc !!!@aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:51:35 PDT 2011equijada @DrSnit @ctsinclair let me know as well. #hpm Wed Jun 8 18:51:38 PDT 2011HumpbacksRule RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:51:46 PDT 2011ctsinclair RT @drseisenberg: Every single one reacted sooooo differently today "That can be emotionally draining." #hpm Wed Jun 8 18:51:53 PDT 2011mollrob RT @DoctorFisher Just ordered "The Art of Dying" by my friend @mollrob looking forward to reading it #hpm // Thanks Doc! Wed Jun 8 18:51:59 PDT 2011PracticalWisdom Continuous Learning.RT @vj_CR: @PracticalWisdom so true! #hpm and I think it´s part of the tweetchat point, trying to learn from it #HPM Wed Jun 8 18:52:05 PDT 2011
  34. 34. aliciabloom MT @ctsinclair: @DrSnit There are a ton of us in SoMe who can help w/ hospice referral challenge. I would love 2 tackle this. "me too!" #hpm Wed Jun 8 18:52:13 PDT 2011ctsinclair @MarksPhone Will need to look into #hcsmvac #hpm Wed Jun 8 18:52:15 PDT 2011jodyms Great points. I want to write about this @elderpages @aliciabloom: effective conversations re: #hospice..est. goal...t..T: YES! #hpm Wed Jun 8 18:52:23 PDT 2011VillageMemorial Any thoughts as to how male caregivers feel about being called doulas? Have heard word whisperer being thrown around. #hpm Wed Jun 8 18:52:26 PDT 2011authordhallman #hpm re T4: thats why I decided to publish "August Farewell", to promote PC education/options Wed Jun 8 18:52:39 PDT 2011vj_CR RT @MarksPhone: if you look at #hcsmvac they are using a grass roots SM effort to increase flu vac rates in MO can we model that idea about hospice? #hpm Wed Jun 8 18:52:52 PDT 2011equijada “@drseisenberg: Every single one reacted sooooo differently today #hpm” Many different pages. Part of the difficulty of transition. . Wed Jun 8 18:52:54 PDT 2011BCSisterhood @jodyms Yes, we all have a responsibility & as baby boomers age, we need to reach out & do what we can to help one another. #hpm Wed Jun 8 18:52:57 PDT 2011Pallimed Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:53:02 PDT 2011jodyms Ditto - we are all in this together:) @equijada @DrSnit @ctsinclair let me know as well. #hpm Wed Jun 8 18:53:08 PDT 2011jfclearywisc @GroundSwellAus Palliative Coalition. NHPCO, AAHPM, HPNA, CAPC and others. Given state power, no huge Federal peak body (jfclearyaus) #hpm Wed Jun 8 18:53:28 PDT 2011GroundSwellAus @Pallimed @DrSnit cheers #hpm Wed Jun 8 18:53:33 PDT 2011jodyms RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:53:59 PDT 2011joegormally RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice
  35. 35. joegormally RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm Wed Jun 8 18:54:03 PDT 2011VillageMemorial RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:54:12 PDT 2011vj_CR RT @ctsinclair: @vj_CR so you dont have to forget the #hpm use http://bit.ly/b1nePp #hpm || TY :) Wed Jun 8 18:54:15 PDT 2011hollyby @Pallimed @GroundSwellAus @DrSnit http://www.palliativedoctors.org/ #hpm Wed Jun 8 18:54:18 PDT 2011DrSnit RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit Wed Jun 8 18:54:20 PDT 2011doctatum Pulled away by patient issue. Looks like i missed great #hpm chat. Transcript coming? Wed Jun 8 18:54:35 PDT 2011PracticalWisdom RT @vj_CR:RT @MarksPhone: if U look #hcsmvac they R using grass roots SM effort 2 increase flu vac rates MO can we model idea hospice? #HPM Wed Jun 8 18:54:41 PDT 2011ctsinclair @vj_CR Also makes it easy to favorite, and reply and retweet! Love it! #hpm Wed Jun 8 18:54:48 PDT 2011jodyms What a lightning talk...so much to say about bridging needs of patients with understanding #hpm Wed Jun 8 18:54:52 PDT 2011joshgriffin RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm Wed Jun 8 18:54:53 PDT 2011equijada @uvmer Sucks. Sorry to hear it rolled that way. #hpm Wed Jun 8 18:55:00 PDT 2011elderpages Anyone know about Concerns Without Borders? They are doing grassroots palliative care in India. Website not real helpful :-( #hpm Wed Jun 8 18:55:01 PDT 2011MarksPhone This topic as a communication strategy needs to be considered by segment Terminal patient vs. not vs. family vs. way before death #hpm Wed Jun 8 18:55:06 PDT 2011GroundSwellAus @elderpages yes well! #hpm Wed Jun 8 18:55:26 PDT 2011
  36. 36. joegormally Im sorry I missed this chat now.. it looked like a great discussion #hpm Wed Jun 8 18:55:38 PDT 2011PracticalWisdom @vj_CR @MarksPhone @doctatum is a Mo MD. #HPM Wed Jun 8 18:55:49 PDT 2011jodyms Spot on RT MarksPhone This topic as a communication strategy needs to be considered by .... way before death #hpm Wed Jun 8 18:55:49 PDT 2011dspacl Sorry to be getting here late, mates #hpm Wed Jun 8 18:55:55 PDT 2011GroundSwellAus @elderpages what do you want to know? #hpm Wed Jun 8 18:56:04 PDT 2011vj_CR @ctsinclair thanks! makes it easier :) #hpm Wed Jun 8 18:56:05 PDT 2011DrSnit @hollyby thank you @Pallimed both ! #hpm Wed Jun 8 18:56:10 PDT 2011PracticalWisdom RT @jodyms: Spot on RT MarksPhone This topic as a communication strategy needs to be considered by .... way before death #HPM Wed Jun 8 18:56:16 PDT 2011jodyms We probably need to start wrapping up....loose thoughts, deep thoughts, take away from tonights #hpm discussion? Wed Jun 8 18:56:20 PDT 2011InpatientMed RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc Wed Jun 8 18:56:31 PDT 2011JoshGriffin RT @hollyby: @Pallimed @GroundSwellAus @DrSnit http://www.palliativedoctors.org/ #hpm Wed Jun 8 18:56:32 PDT 2011daitpcg RT @aliciabloom: effective conversations re: #hospice dont start w/ word. cant drop the "h-bomb" right away. establish goals & determine needs 1st. #hpm Wed Jun 8 18:56:34 PDT 2011MarksPhone Canadian oncologist told me that weve lost the understanding of death when we moved off the farm. it is not longer part of life 2day #hpm Wed Jun 8 18:56:41 PDT 2011ctsinclair RT @doctatum: Pulled away by patient issue. Looks like i missed great #hpm chat. Transcript coming? "Yes" #hpm Wed Jun 8 18:56:44 PDT 2011

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