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2011 05 25 hpm tweetchat transcript

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  • 1. #hpmHealthcare Hashtag Twitter Transcript From: Wed May 25 18:00:00 PDT 2011 To: Wed May 25 19:00:00 PDT 2011 Customize transcript dates and layoutLearn more about #hpm at The Healthcare Hashtag ProjectKaviraj2 RT @renee_berry: hey everyone, wont be able to make #hpm tonight, hope you have a great chat! Wed May 25 18:00:19 PDT 2011EOLnavigator We will be tweeting about hospice & palliative care topics relevant to caregivers for the next hour. #hpm Wed May 25 18:00:31 PDT 2011jfclearywisc Jim cleary from Madison WI #hpm Wed May 25 18:00:45 PDT 2011aliciabloom MSW, LSW focusing on #palliative care program development & increasing #hospice access through clinical education at @VITASHospice #hpm Wed May 25 18:01:43 PDT 2011MarksPhone Mark from NYC #hpm Wed May 25 18:01:43 PDT 2011EOLnavigator Hey there! @jfclearywisc, @Kaviraj2, @MeredithGould #hpm Wed May 25 18:01:56 PDT 2011dockj Kevin from Wilmington NC #hpm and family med Ed. Tweets are my own opinion. Wed May 25 18:02:35 PDT 2011EOLnavigator Hi! Glad you made it. @aliciabloom, @marksphone #hpm Wed May 25 18:02:36 PDT 2011doctatum Paul in Columbia MO (and another day with tornados just cleared out) #hpm Wed May 25 18:03:07 PDT 2011MarksPhone it was a real learning experience last week wanted to return and learn more #hpm
  • 2. MarksPhone Wed May 25 18:03:10 PDT 2011EOLnavigator Hi Kevin @dockj #hpm Wed May 25 18:03:13 PDT 2011dockj Next hour tweets tagged #hpm part of palliative medicine and hospice tweetchat Wed May 25 18:03:20 PDT 2011EOLnavigator Topic 1 coming soon.... #hpm Wed May 25 18:03:30 PDT 2011EOLnavigator Glad it was! RT @MarksPhone: it was a real learning experience last week wanted to return and learn more #hpm Wed May 25 18:03:46 PDT 2011revdoc Pam Harris, MD w/KC Hospice, ordained minister; joining HPM tweetchat; opinions are my own #hpm Wed May 25 18:03:47 PDT 2011KathyKastner health blogger, with (it seems increasing) interest in all things #hpm (hence recent post abt dying)http://tinyurl.com/3oqam2v Wed May 25 18:03:56 PDT 2011dockj @doctatum glad you are safe. Hope everyone there is OK. #hpm Wed May 25 18:04:07 PDT 2011EOLnavigator Hi @doctatum, @revdoc #hpm Wed May 25 18:04:12 PDT 2011EOLnavigator T1: As a caregiver, how do you define "suffering" & what influences your beliefs about suffering? #hpm Wed May 25 18:04:24 PDT 2011PracticalWisdom HI Lisa Speaker/Trainer Myers-Briggs/Leadership/Creativity/Presentation/Adult Educ. Morph the ho-hum into compelling. Curious/Connector #HPM Wed May 25 18:04:37 PDT 2011PracticalWisdom Yes, I forgot if you were close. Sorry for Mo folks! RT @dockj: @doctatum glad you are safe. Hope everyone there is OK. #HPM Wed May 25 18:05:22 PDT 2011EOLnavigator @practicalwisdom Glad you made it! #hpm Wed May 25 18:05:57 PDT 2011revdoc T1 Suffering is pain/fear/sadness w/o meaning #hpm Wed May 25 18:05:58 PDT 2011jfclearywisc Are we talking clinical or family caregivers? #hpm
  • 3. jfclearywisc Wed May 25 18:06:29 PDT 2011doctatum @PracticalWisdom @dockj @doctatum Thanks. RedCross doing a good job. More bad new in Sedalia today. #hpm Wed May 25 18:06:32 PDT 2011MarksPhone T1 Do we project what feel and believe, or as observers do we alter what we observe or do we apply society beliefs? #hpm Wed May 25 18:06:34 PDT 2011SheyontheBay Hello all - hospice/palliative nurse NY #hpm Wed May 25 18:06:43 PDT 2011aliciabloom suffering is: anything causing distress, multifaceted (physical, emotional, spiritual) and unique to the individual experiencing it #hpm Wed May 25 18:06:46 PDT 2011EOLnavigator Interesting. Why w/o meaning? RT @revdoc: T1 Suffering is pain/fear/sadness w/o meaning #hpm Wed May 25 18:06:49 PDT 2011GailZahtz Trying to participate in #HPM -my first love medical chat- yet its been hard to show-up lately. Intro- patient, care-giver, etc Wed May 25 18:07:04 PDT 2011PracticalWisdom So Sorry. RT @doctatum: @PracticalWisdom @dockj @doctatum Thanks. RedCross doing a good job. More bad new in Sedalia today. #HPM Wed May 25 18:07:19 PDT 2011EOLnavigator Our thoughts are with our friends affected by the tornado. Anyone here tonight? #hpm Wed May 25 18:07:20 PDT 2011PracticalWisdom RT @MarksPhone: T1 Do we project what feel and believe, or as observers do we alter what we observe or do we apply society beliefs? #HPM Wed May 25 18:07:30 PDT 2011SheyontheBay If theres meaning, does it mean theres no suffering? #hpm Wed May 25 18:07:38 PDT 2011EOLnavigator @GailZahtz Thanks for coming! #hpm Wed May 25 18:07:47 PDT 2011KathyKastner RT @aliciabloom: suffering is: anything causing distress, multifaceted (physical, emotional, spiritual) and unique to the individual experiencing it #hpm Wed May 25 18:07:51 PDT 2011PracticalWisdom @GailZahtz: So Glad you could come. #HPM Wed May 25 18:08:10 PDT 2011
  • 4. EOLnavigator @SheyontheBay Hey there! #hpm Wed May 25 18:08:14 PDT 2011GailZahtz T1- Suffering is only without meaning if we dont look for and find meaning in our pain and challenges #HPM Wed May 25 18:08:14 PDT 2011revdoc Going through pain or other adverse situations can be brave, redemptive, or a growth experience; w/o meaning, it is just cruel #hpm Wed May 25 18:08:16 PDT 2011GailZahtz @PracticalWisdom Thanks! I really miss you and everyone else. #HPM was my first home. Always in my heart, even if Im not here! Wed May 25 18:08:50 PDT 2011aliciabloom suffering can result not only from a disease, but its treatment and the impact it has on a persons life #hpm Wed May 25 18:09:04 PDT 2011SheyontheBay @revdoc But there/ still suffering, yes? #hpm Wed May 25 18:09:11 PDT 2011GailZahtz @EOLnavigator Thank you for the welcome. are you moderating #HPM Wed May 25 18:09:12 PDT 2011EOLnavigator RT @aliciabloom: suffering is: anything causing distress, multifaceted & unique 2 the individ experiencing it #hpm Wed May 25 18:09:22 PDT 2011revdoc Meaning does not erase all pain, but I think it takes things from the realm of suffering to other experiences #hpm Wed May 25 18:09:22 PDT 2011KathyKastner RT @aliciabloom: suffering can result not only from a disease, but its treatment and the impact it has on a persons life #hpm Wed May 25 18:09:38 PDT 2011EOLnavigator @GailZahtz Yes I am! #hpm Wed May 25 18:09:53 PDT 2011MeredithGould T1 Isnt suffering totally subjective? And dont we need to go with the definition of the person who claims to be suffering? #hpm Wed May 25 18:09:58 PDT 2011dockj RT @aliciabloom: suffering can result not only from a disease, but its treatment and the impact it has on a persons life #hpm Wed May 25 18:10:00 PDT 2011GailZahtz @revdoc We MUST give the pain and adversity meaning- otherwise it makes life unbearable. #HPM Wed May 25 18:10:15 PDT 2011
  • 5. KathyKastner #hpm For a family caregiver, I think suffering includes seeing/perceving loved one giving up. Wed May 25 18:10:15 PDT 2011EOLnavigator @GailZahtz Do you find it easy to know the source? #hpm Wed May 25 18:10:43 PDT 2011PracticalWisdom RT @MeredithGould: T1 Isnt suffering totally subjective? dont we need 2 go w/the definition of the person who claims to be suffering? #HPM Wed May 25 18:10:46 PDT 2011MeredithGould @SheyontheBay My standard line is "not all suffering is redemptive." #hpm Wed May 25 18:10:46 PDT 2011aliciabloom as clinicians, we should always ask patients about the sources of their suffering so that we can adequately address it & support them #hpm Wed May 25 18:10:48 PDT 2011SheyontheBay RT @MeredithGould: T1Isnt suffering totally subjective?dont we need to go with the definition of the person who claims to be suffering? #hpm Wed May 25 18:10:57 PDT 2011MarksPhone @MeredithGould I agree it is the person suffering who defines it but as with all language etc how is that communicated to the HCP? #hpm Wed May 25 18:11:00 PDT 2011EOLnavigator RT @aliciabloom: suffering can result not only from a disease, but its treatment and the impact it has on a persons life #hpm Wed May 25 18:11:24 PDT 2011EOLnavigator RT @revdoc: Meaning does not erase all pain, but I think it takes things from the realm of suffering to other experiences #hpm Wed May 25 18:11:40 PDT 2011GailZahtz @EOLnavigator To know the source for suffering? Some is easy- like a DX. Some hard, like emotional impact. #HPM Wed May 25 18:11:41 PDT 2011MarksPhone @EOLnavigator agree it is multi-deminisonal and each is treated differently #hpm Wed May 25 18:12:05 PDT 2011KathyKastner RT @MeredithGould: T1 Isnt suffering totally subjective? And dont we need to go with the definition of the person who claims to be suffering? #hpm Wed May 25 18:12:19 PDT 2011MeredithGould @MarksPhone We need to find out how the pt communicates, what language system, nonverbal signals, etc. #hpm Wed May 25 18:12:20 PDT 2011MarksPhone RT @GailZahtz: @EOLnavigator To know the source for suffering? Some is easy- like a DX. Some hard, like emotional impact. #HPM
  • 6. Wed May 25 18:12:27 PDT 2011PracticalWisdom T1: My Tweets are my own. Does anybody else want to Give this information? #HPM Wed May 25 18:12:29 PDT 2011EOLnavigator RT @MeredithGould +1: Isnt suffering totally subjective? dont we need 2 go w/the definition of the person who claims to be suffering? #hpm Wed May 25 18:12:29 PDT 2011KathyKastner RT @MeredithGould: @MarksPhone We need to find out how the pt communicates, what language system, nonverbal signals, etc. #hpm Wed May 25 18:12:46 PDT 2011GailZahtz @PracticalWisdom Yes, tweets are my own...trust me, with the fabulous groups I represent, each have their own very strong opinions! :) #HPM Wed May 25 18:13:27 PDT 2011dockj T2 suffering is what the patient experiences when they are in distress they cannot cope with. Regardless of the source. #hpm Wed May 25 18:13:30 PDT 2011EOLnavigator RT @aliciabloom: as clinicians, we always ask pts about the sources of suffering so that we can adequately address it & support them #hpm Wed May 25 18:13:31 PDT 2011KathyKastner @MeredithGould I think I need to tell you I love you (for your mind of course) #hpm Wed May 25 18:13:42 PDT 2011aliciabloom asking open ended questions ("what is distressing you?" "tell me what troubles you?") gives patients an opportunity to speak freely #hpm Wed May 25 18:13:50 PDT 2011PracticalWisdom RT @dockj: T2 suffering is what the patient experiences when they are in distress they cannot cope with. Regardless of the source. #HPM Wed May 25 18:14:01 PDT 2011SheyontheBay @EOLnavigator @revdoc It can take things to another realm, but if it doesnt, theres still suffering-be it physical, spiritual... #hpm Wed May 25 18:14:03 PDT 2011GLakesCaring RT @dockj: T2 suffering is what the patient experiences when they are in distress they cannot cope with. Regardless of the source. #hpm Wed May 25 18:14:04 PDT 2011KathyKastner RT @dockj: T2 suffering is what the patient experiences when they are in distress they cannot cope with. Regardless of the source. #hpm Wed May 25 18:14:18 PDT 2011dockj RT @aliciabloom: asking open ended questions ("what is distressing you?" "tell me what troubles you?") gives patients an opportunity to speak freely #hpm Wed May 25 18:14:23 PDT 2011
  • 7. EOLnavigator RT @KathyKastner: @MeredithGould I think I need to tell you I love you (for your mind of course) #hpm Wed May 25 18:14:30 PDT 2011MeredithGould Is there a T2? #hpm Wed May 25 18:14:35 PDT 2011GailZahtz T2 IMO opinion we need to add in peoples cultural perspective to the event and the relative suffering and communication of it. #HPM Wed May 25 18:14:41 PDT 2011PracticalWisdom RT @aliciabloom: asking open ended (?)s ("what is distressing U?" "tell me what troubles U?") gives patients an oppor. 2 speak freely #HPM Wed May 25 18:14:44 PDT 2011MeredithGould @KathyKastner So does that mean you do NOT love my hair, too? #hpm Wed May 25 18:15:00 PDT 2011EOLnavigator Suffering always spurs me to action as a clinician. #hpm Wed May 25 18:15:16 PDT 2011dockj Sorry mine was a miss answer. LoL should be T 1. #hpm Wed May 25 18:15:19 PDT 2011MarksPhone some patients want to put on a good face for the HCP show they are succeeding in tx and making progress while outside HC they hurt #hpm Wed May 25 18:15:20 PDT 2011KathyKastner I covet your hair. RT @MeredithGould: @KathyKastner So does that mean you do NOT love my hair, too? #hpm Wed May 25 18:15:29 PDT 2011dockj RT @EOLnavigator: Suffering always spurs me to action as a clinician. #hpm Wed May 25 18:15:43 PDT 2011EOLnavigator @MeredithGould No T2 yet....still on T1 #hpm Wed May 25 18:15:54 PDT 2011PracticalWisdom Yup, Not Blond. RT @KathyKastner: I covet your hair. RT @MeredithGould: @KathyKastner So does that mean you do NOT love my hair, too? #HPM Wed May 25 18:16:09 PDT 2011GailZahtz @dockj T2 I dont think that suffering is distress that someone cant cope with. I think that you may be coping- but its hard! #HPM Wed May 25 18:16:13 PDT 2011MeredithGould @EOLnavigator Ok, thanks. #hpm Wed May 25 18:16:21 PDT 2011
  • 8. EOLnavigator Do you think culture or religion influences suffering? #hpm Wed May 25 18:16:36 PDT 2011MeredithGould BTW, @bentleystewart has a great post at http://healthfaith.com today re: communicatng w/pts. #hpm Wed May 25 18:16:59 PDT 2011GailZahtz @MarksPhone In my experience, both hcps and outsiders WANT us to be strong, stoic, "brave" and that minimizes the reality of the pain #HPM Wed May 25 18:17:16 PDT 2011SheyontheBay @EOLnavigator Yes #hpm Wed May 25 18:17:27 PDT 2011KathyKastner A big yessrree bob to that RT @EOLnavigator: Do you think culture or religion influences suffering? #hpm Wed May 25 18:17:31 PDT 2011revdoc I think culture and religion can teach us patterns of coping, give us resources to stand up under adversity #hpm Wed May 25 18:17:55 PDT 2011EOLnavigator RT @dockj: T2 suffering is what the patient experiences when they are in distress they cannot cope with. Regardless of the source. #hpm Wed May 25 18:18:01 PDT 2011KathyKastner Nice! RT @revdoc: I think culture and religion can teach us patterns of coping, give us resources to stand up under adversity #hpm Wed May 25 18:18:16 PDT 2011aliciabloom "@EOLnavigator: Do u think culture/religion influences suffering?" yes. patient perception & values are impacted by culture & religion #hpm Wed May 25 18:18:36 PDT 2011hollyby Hello all! At Upaya this week, so only lurking tonight! Have a great chat! #hpm Wed May 25 18:18:41 PDT 2011GailZahtz @dockj What is coping? In the face of tragedy- its just getting up and dong the next right thing. May not be pretty or clean... #HPM Wed May 25 18:18:50 PDT 2011SusanCadell I was very pleased to present research about caregiving parents in peds #palliative care today @sickkids via @OTNtelemedicine #hpm #growth Wed May 25 18:19:00 PDT 2011MeredithGould Culture shapes the ways suffering is perceived and expressed, sure. #hpm Wed May 25 18:19:03 PDT 2011EOLnavigator @hollyby Thanks for coming! #hpm Wed May 25 18:19:04 PDT 2011
  • 9. revdoc Unfortunately, culture and religion can also provide NEGATIVE examples of coping #hpm Wed May 25 18:19:23 PDT 2011jfclearywisc I actually find the question "are you suffering?" to be very powerful and revealing. Or to ask it of family #hpm Wed May 25 18:19:45 PDT 2011GailZahtz @aliciabloom @EOLnavigator Yes, definitely said earlier, culture, religions, belief system completely impact what and how we suffer #HPM Wed May 25 18:19:47 PDT 2011dockj Culture/ religion give us constructs to help us decode suffering in the context of society, but it is still and individual experience. #hpm Wed May 25 18:20:02 PDT 2011PracticalWisdom Hey Meredith,“I’m hoping for a miracle soon. Quote in Blog RT@MeredithGould.@bentleystewart has a great post at http://healthfaith.com #HPM Wed May 25 18:20:14 PDT 2011EOLnavigator RT @GailZahtz +1What is coping? In the face of tragedy- its just getting up & doing the next right thing. May not be pretty or clean... #hpm Wed May 25 18:20:28 PDT 2011EOLnavigator Topic 2 coming in a jiffy..... #hpm Wed May 25 18:20:41 PDT 2011GailZahtz The book on the Hunan and their experience with medicine in the U.S. is a beautiful example of the impact of culture on getting care. #HPM Wed May 25 18:20:41 PDT 2011MarksPhone America is death phobic this is the over arching driver of this discussion we do not accept it therefore we dont want to mitigate it #hpm Wed May 25 18:20:47 PDT 2011MeredithGould RT @dockj: Culture/ religion give us constructs to help us decode suffering in the context of society, #hpm Wed May 25 18:21:00 PDT 2011jfclearywisc "What do you mean by a miracle?" #hpm Wed May 25 18:21:12 PDT 2011EOLnavigator RT @jfclearywisc: I actually find the question "are you suffering?" to be very powerful and revealing. Or to ask it of family #hpm Wed May 25 18:21:20 PDT 2011doctatum I think it reframes things for the family in conflctRT @jfclearywisc: the question "are you suffering?" = very powerful and revealing. #hpm Wed May 25 18:21:29 PDT 2011 culture and religion can be protective factors & sources of strength, but they can also
  • 10. culture and religion can be protective factors & sources of strength, but they can alsoaliciabloom create unique challenges and barriers #hpm Wed May 25 18:21:38 PDT 2011KathyKastner #hpm Religion caused my best pal great suffering when she felt babys death was gods punishment Wed May 25 18:21:46 PDT 2011EOLnavigator T2: How does your perspective on suffering affect how you care for someone who is terminally ill? #hpm Wed May 25 18:21:53 PDT 2011revdoc @EOLnavigator @GailZahtz Up and dressed is a fine goal if that is the only place you can be at the time #hpm Wed May 25 18:22:08 PDT 2011dockj RT @MarksPhone: America is death phobic this is the over arching driver of this discussion we do not accept it therefore we dont want to mitigate it #hpm Wed May 25 18:22:32 PDT 2011DrSnit #hpm oh hai! Been watching hockey. Now Im here!!! How goes cats? Xx missed you! Wed May 25 18:22:35 PDT 2011GailZahtz @MeredithGould @dockj @revdoc The real question isnt does culture/religion work- how does it work for the individual patient and family #HPM Wed May 25 18:22:43 PDT 2011DoctorFisher @jfclearywisc Or even better "In what way are you suffering?" gives patient the open door to talk #hpm Wed May 25 18:22:45 PDT 2011PracticalWisdom Sigh, how terrible.RT @KathyKastner: #hpm Religion caused my best pal great suffering when she felt babys death was gods punishment #HPM Wed May 25 18:22:51 PDT 2011EOLnavigator @aliciabloom Irish Catholic (my background) always equate suffering with payment for sins! #hpm Wed May 25 18:22:52 PDT 2011GLakesCaring RT @EOLnavigator: T2: How does your perspective on suffering affect how you care for someone who is terminally ill? #hpm Wed May 25 18:22:53 PDT 2011EOLnavigator @DrSnit Hai there to you too! #hpm Wed May 25 18:23:12 PDT 2011PracticalWisdom So Glad you are Here. Like Superman but GirlRT @DrSnit: #hpm oh hai! Been watching hockey. Now Im here!!! How goes cats? Xx missed you! #HPM Wed May 25 18:23:20 PDT 2011MarksPhone T2 my vision or the caregivers vision will effect the patient if the patient allows it and then the battle of wills begins #hpm Wed May 25 18:23:24 PDT 2011
  • 11. SheyontheBay RT @GailZahtz: The real question isnt does culture/religion work-how does it work for the individual patient and family #hpm Wed May 25 18:23:27 PDT 2011MeredithGould T2 Takes a lot of consciousness to not project/superimpose ones own stuff onto patients & caregivers. #hpm Wed May 25 18:23:47 PDT 2011GailZahtz @revdoc @EOLnavigator Succeeding 51% of the time- especially during trauma- is 100% success. #HPM Wed May 25 18:23:55 PDT 2011DoctorFisher Hi just arrived #hpm Wed May 25 18:24:00 PDT 2011EOLnavigator RT @doctorfisher: @jfclearywisc Or even better "In what way are you suffering?" gives patient the open door to talk #hpm Wed May 25 18:24:05 PDT 2011KathyKastner RT @MeredithGould: T2 Takes a lot of consciousness to not project/superimpose ones own stuff onto patients & caregivers. #hpm Wed May 25 18:24:16 PDT 2011aliciabloom @EOLnavigator im part italian catholic and part eastern european jew-- i hear you! #hpm Wed May 25 18:24:20 PDT 2011revdoc @GailZahtz @revdoc @EOLnavigator Amen, sister! #hpm Wed May 25 18:24:30 PDT 2011EOLnavigator @PracticalWisdom @KathyKastner So sorry! That happens alot. Makes you suffer too. #hpm Wed May 25 18:24:44 PDT 2011MeredithGould @aliciabloom We should talk! #hpm Wed May 25 18:24:51 PDT 2011DoctorFisher @MeredithGould agree, try not to project, yet my patients find it comforting when I share what gives me hope #hpm Wed May 25 18:25:05 PDT 2011PracticalWisdom Welcome, so glad you come tonight. RT @doctorfisher: Hi just arrived #HPM Wed May 25 18:25:12 PDT 2011SheyontheBay @EOLnavigator @aliciabloom i heard suffering bought time off in purgatory, now theres no more purgatory->what to do withmy suffering? #hpm Wed May 25 18:25:20 PDT 2011KathyKastner Basta. Oy. RT @aliciabloom: @EOLnavigator im part italian catholic and part eastern european jew-- i hear you! #hpm
  • 12. european jew-- i hear you! #hpm Wed May 25 18:25:32 PDT 2011revdoc T2 risk that caregivers push pt to find meaning pt is not ready to investigate; caregivers are successful if pt finds "closure" #hpm Wed May 25 18:25:46 PDT 2011MeredithGould @doctorfisher Right and thats not projecting, thats sharing! #hpm Wed May 25 18:25:51 PDT 2011DrSnit Belief in punishment or Suffering certainly changes both caregiver & patient EOL / illness experiences. #hpm Wed May 25 18:26:01 PDT 2011GailZahtz Also, neither the outsider nor the person "suffering" knows which even will cause the most pain. We need to be gentle in judgment. #HPM Wed May 25 18:26:09 PDT 2011EOLnavigator @doctorfisher Thanks for making it! #hpm Wed May 25 18:26:12 PDT 2011doctorfisher @PracticalWisdom thanks its always great to be here #hpm Wed May 25 18:26:30 PDT 2011EOLnavigator RT @doctorfisher: @MeredithGould agree, try not to project, yet my patients find it comforting when I share what gives me hope #hpm Wed May 25 18:26:36 PDT 2011MeredithGould @aliciabloom Oy vey, Maria...as my mother would say. #hpm Wed May 25 18:26:51 PDT 2011aliciabloom @MeredithGould love it! #hpm Wed May 25 18:27:14 PDT 2011EOLnavigator I find, when I can identify with pt.s suffering & they realize we have common understanding, their suffering decreases. #hpm Wed May 25 18:27:15 PDT 2011RossJeanette Hi all Im joining in late. Ill lurk u til I can figure out what we are talking about #HPM Wed May 25 18:27:37 PDT 2011doctorfisher @MeredithGould yes and I think sharing my own views makes me more human plus if we disagree, its on the table #hpm Wed May 25 18:27:38 PDT 2011EOLnavigator Hope is definitely an important part of relief from suffering. #hpm Wed May 25 18:27:56 PDT 2011DrSnit @MeredithGould yes. Also to not be offended or annoyed by seemingly outlandish beliefs. Oy. "what did you do to make god mad?" #hpm
  • 13. beliefs. Oy. "what did you do to make god mad?" #hpm Wed May 25 18:28:04 PDT 2011doctorfisher RT @EOLnavigator: I find, when I can identify with pt.s suffering & they realize we have common understanding, their suffering decreases. #hpm Wed May 25 18:28:07 PDT 2011EOLnavigator @RossJeanette Glad you made it! #hpm Wed May 25 18:28:13 PDT 2011GailZahtz @EOLnavigator I think the key with connecting and identifying with others suffering is validating their own perceptions of it. #HPM Wed May 25 18:28:18 PDT 2011MeredithGould @RossJeanette Were talking about suffering. LOL. #hpm Wed May 25 18:28:21 PDT 2011dockj I think the concept of total pain which accounts for all sources of suffering is a useful construct. #hpm Wed May 25 18:28:29 PDT 2011aliciabloom what we perceive as suffering should be left outside the patients room, so that we can fully understand their unique suffering #hpm Wed May 25 18:28:29 PDT 2011DoctorFisher RT @EOLnavigator: Hope is definitely an important part of relief from suffering. #hpm Wed May 25 18:28:34 PDT 2011EOLnavigator @rossjeanette "Suffering" #hpm Wed May 25 18:28:37 PDT 2011MeredithGould RT @dockj: I think the concept of total pain which accounts for all sources of suffering is a useful construct. #hpm Wed May 25 18:29:07 PDT 2011dockj Physical/family dysfunction / relationships/ religious/ cultural. #hpm Wed May 25 18:29:15 PDT 2011doctorfisher RT @GailZahtz: @EOLnavigator I think the key with connecting and identifying with others suffering is validating their own perceptions of it. #HPM Wed May 25 18:29:21 PDT 2011EOLnavigator RT @DrSnit: @MeredithGould yes. Also 2 not be offended or annoyed by outlandish beliefs. Oy. "what did you do 2 make god mad?" #hpm Wed May 25 18:29:24 PDT 2011MeredithGould @dockj Total pain as in physical, mental and spiritual, right? #hpm Wed May 25 18:29:25 PDT 2011MeredithGould And, gee, what the heck...also total pain as in familial?1? #hpm
  • 14. MeredithGould And, gee, what the heck...also total pain as in familial?1? #hpm Wed May 25 18:30:20 PDT 2011dockj Any or all can be the biggest source of suffering at any one time #hpm Wed May 25 18:30:22 PDT 2011KathyKastner #hpm I know this is a serious discussion, but 2nite Im suffering cuz I have piles of reading for QA committee meeting in the am. Wed May 25 18:30:27 PDT 2011EOLnavigator RT @DrSnit: Belief in punishment or Suffering certainly changes both caregiver & patient EOL / illness experiences. #hpm Wed May 25 18:30:32 PDT 2011aliciabloom hope is important, but often hope = cure, which isnt always reality. sometimes we need to help patients/families reframe hope. #hpm Wed May 25 18:30:43 PDT 2011revdoc Should we question pts about distress we see in them even if they do not report they are suffering? #hpm Wed May 25 18:30:54 PDT 2011GailZahtz No offense, but making fun of other peoples beliefs (which may seem silly or destructive to you) is the exact opposite of support #HPM Wed May 25 18:31:04 PDT 2011PracticalWisdom MD told Wife/Patient Dont ask a (?) right now if U dont want truth. Arc of Life & Love, Unbent by Treatment http://nyti.ms/kJ7Sr2 #HPM Wed May 25 18:31:10 PDT 2011doctorfisher RT @aliciabloom: hope is important, but often hope = cure, which isnt always reality. sometimes we need to help patients/families reframe hope. #hpm Wed May 25 18:31:20 PDT 2011EOLnavigator @aliciabloom Do you think that you have to have suffered yourself to understand someone elses suffering? #hpm Wed May 25 18:31:23 PDT 2011GailZahtz @revdoc Absolutely, may people suffer the most in silence, and wont discuss or heal if not directly asked. #HPM Wed May 25 18:31:54 PDT 2011PracticalWisdom RT @GailZahtz: Making fun of other peoples beliefs (which may seem silly or destructive to you) is the exact opposite of support #HPM Wed May 25 18:31:57 PDT 2011SheyontheBay @aliciabloom often to facilitate change in what they are hoping for...a peaceful passing, instead of cure #hpm Wed May 25 18:31:59 PDT 2011KathyKastner RT @SheyontheBay: @aliciabloom often to facilitate change in what they are hoping for...a peaceful passing, instead of cure #hpm Wed May 25 18:32:17 PDT 2011
  • 15. MeredithGould @EOLnavigator Great question. Probably everyone suffers but some have denial so thick they dont cop to it. #hpm Wed May 25 18:32:21 PDT 2011GailZahtz @PracticalWisdom Thanks Lisa! #HPM Wed May 25 18:32:41 PDT 2011MarksPhone I wonder, do HCP have the wear with all to identify all the issues surrounding the patient and family and navigate a path? #hpm Wed May 25 18:32:53 PDT 2011DoctorFisher @aliciabloom Yes, I never let my patients "give up hope", I help them shift their hope to realistic goals #hpm Wed May 25 18:32:55 PDT 2011GailZahtz @DoctorFisher For some reason, we havent crossed paths. Nice to meet you, and get to know you, and hope to meet again :) #HPM Wed May 25 18:33:10 PDT 2011KathyKastner Yep. My hubRT @MeredithGould: @EOLnavigator Great Q. Probably everyone suffers but some have denial so thick they dont cop to it. #hpm Wed May 25 18:33:17 PDT 2011RossJeanette The physical suffering may be "easier" to identify. #HPM Wed May 25 18:33:26 PDT 2011EOLnavigator Sometimes they dont know RT @revdoc: Should we question pts about distress we C in them even if they do not report they are suffering? #hpm Wed May 25 18:33:28 PDT 2011GailZahtz @DoctorFisher @aliciabloom Is there an appropriate time and place when a patient is entitled to give up hope? Question, not sure. #HPM Wed May 25 18:33:47 PDT 2011KathyKastner How wonderful of you RT @DoctorFisher: @aliciabloom I never let my pts "give up hope", I help them shift their hope 2 realistic goals #hpm Wed May 25 18:34:00 PDT 2011aliciabloom @EOLnavigator think suffering is something we all experience in life, regardless of the source. its part of being human. #hpm Wed May 25 18:34:09 PDT 2011DoctorFisher @GailZahtz You as well! #hpm Wed May 25 18:34:10 PDT 2011EldrcareConsult Hey guys so sorry i am late! #hpm Wed May 25 18:34:10 PDT 2011revdoc @EOLnavigator @revdoc But is that my deciding the pt is suffering? #hpm Wed May 25 18:34:25 PDT 2011
  • 16. EOLnavigator @EldrcareConsult Hey there! We are talking about suffering #hpm Wed May 25 18:34:39 PDT 2011EOLnavigator RT @doctorfisher: @aliciabloom Yes, I never let my patients "give up hope", I help them shift their hope to realistic goals #hpm Wed May 25 18:35:04 PDT 2011MeredithGould Great post about hope and communicating w/pts: http://bit.ly/lHaS1l #hpm Wed May 25 18:35:04 PDT 2011KathyKastner Good Q. RT @revdoc: @EOLnavigator @revdoc But is that my deciding the pt is suffering? #hpm Wed May 25 18:35:06 PDT 2011EOLnavigator RT @RossJeanette: The physical suffering may be "easier" to identify. #hpm Wed May 25 18:35:10 PDT 2011DrSnit @GailZahtz have you ever watched a mother ask her daughter what she did to anger god? It is hard to deal with their needs fully #hpm Wed May 25 18:35:35 PDT 2011MeredithGould RT @DrSnit: Belief in punishment or Suffering certainly changes both caregiver & patient EOL / illness experiences. #hpm Wed May 25 18:35:40 PDT 2011EOLnavigator RT @KathyKastner RT @MeredithGould Probably everyone suffers but some have denial so thick they dont cop to it. #hpm Wed May 25 18:35:44 PDT 2011PracticalWisdom Great To See You. RT @EldrcareConsult: Hey guys so sorry i am late! #HPM Wed May 25 18:35:59 PDT 2011aliciabloom @GailZahtz- i agree with @DoctorFisher in that we have to help people find hope & meaning all the time, even if it means reframing it. #hpm Wed May 25 18:36:13 PDT 2011doctorfisher @GailZahtz sure, we need to let patients grieve loss. But I dont want to leave them hopeless so must offer some form of help #hpm Wed May 25 18:36:47 PDT 2011whole_patients RT @MeredithGould: Great post about hope and communicating w/pts: http://bit.ly/lHaS1l #hpm Wed May 25 18:36:53 PDT 2011KathyKastner Is it only #hpm-ers who are trained to re-frame? Wed May 25 18:36:58 PDT 2011EOLnavigator Never! Hope to die well. RT @GailZahtz: @DoctorFisher @aliciabloom Is there an
  • 17. EOLnavigator Never! Hope to die well. RT @GailZahtz: @DoctorFisher @aliciabloom Is there an appropriate time & place when a pt can give up hope? #hpm Wed May 25 18:36:59 PDT 2011GailZahtz @DrSnit Ive been told that either in this life or a former life I did something that Im doing "teshuvah" for. (need to go to a 2nd..) #HPM Wed May 25 18:37:12 PDT 2011MarksPhone http://bit.ly/jt92nj Jimmie Holland the Human Side of Cancer #hpm Wed May 25 18:37:15 PDT 2011MeredithGould RT @KathyKastner: Is it only #hpm-ers who are trained to re-frame?<--my guess is yes Wed May 25 18:37:23 PDT 2011EOLnavigator Ur only frame of reference tho RT @KathyKastner: Good Q. RT @revdoc: @EOLnavigator @revdoc But is that my deciding the pt is suffering? #hpm Wed May 25 18:38:05 PDT 2011GailZahtz @DrSnit On one hand, very hard to hear, process, benefit. On another, my personal belief system from where it comes, helps me cope. #HPM Wed May 25 18:38:17 PDT 2011EOLnavigator Topic 3 is almost upon us.... #hpm Wed May 25 18:38:19 PDT 2011revdoc @MeredithGould @KathyKastner Reframing not a big part of my medical education... #hpm Wed May 25 18:38:24 PDT 2011jfclearywisc Said it b4; Tulsky (Hope or Hubris, JPM) Hope=trust. However bad, things will work out. #hpm Wed May 25 18:38:32 PDT 2011DoctorFisher @KathyKastner I was trained to re-frame during #geriatrics fellowship #hpm Wed May 25 18:38:42 PDT 2011EOLnavigator Different topic...weve suffered enough! #hpm Wed May 25 18:38:59 PDT 2011MeredithGould @revdoc Because its too "soft" and not "science," right? #hpm Wed May 25 18:39:01 PDT 2011MeredithGould @EOLnavigator LOLOL...good one #hpm Wed May 25 18:39:09 PDT 2011GailZahtz @DrSnit I want to strangle people who say "its all for the best" or "were not given more than we can handle" others benefit from that #HPM Wed May 25 18:39:19 PDT 2011revdoc @MeredithGould @revdoc Yep #hpm
  • 18. revdoc @MeredithGould @revdoc Yep #hpm Wed May 25 18:39:30 PDT 2011KathyKastner I have pondered hope and false hope http://tinyurl.com/3yzvexh #hpm Wed May 25 18:39:35 PDT 2011KathyKastner Ha! RT @EOLnavigator: Different topic...weve suffered enough! #hpm Wed May 25 18:39:57 PDT 2011PracticalWisdom RT @KathyKastner: Ha! RT @EOLnavigator: Different topic...weve suffered enough! #HPM Wed May 25 18:40:25 PDT 2011aliciabloom i often feel like #hospice & #palliative care is as much an art as it is a science #hpm Wed May 25 18:40:30 PDT 2011EOLnavigator T3: When you search for information about end of life care online, what kind of information are you looking for & do you find it? #hpm Wed May 25 18:40:48 PDT 2011DrSnit @GailZahtz not the same as watching it as a provider but you get it from an advocacy perspective. #hpm Wed May 25 18:40:54 PDT 2011KathyKastner Hope and aging.Gr8 combo RT @DoctorFisher: @KathyKastner I was trained to re- frame during #geriatrics fellowship #hpm Wed May 25 18:41:06 PDT 2011GailZahtz @aliciabloom @DoctorFisher @EOLnavigator Studies show that outcomes of same surgeries affected by hope. #HPM Wed May 25 18:41:07 PDT 2011PracticalWisdom Great Truth 2 That. Thank you! RT @aliciabloom: i often feel like #hospice & #palliative care is as much an art as it is a science #HPM Wed May 25 18:41:11 PDT 2011revdoc @aliciabloom Absolutely! #hpm Wed May 25 18:41:12 PDT 2011dockj RT @aliciabloom: i often feel like #hospice & #palliative care is as much an art as it is a science #hpm Wed May 25 18:41:19 PDT 2011DrSnit RT @EOLnavigator: T3: When you search for information about end of life care online, what kind of information are you looking for & do you find it? #hpm Wed May 25 18:41:25 PDT 2011MarksPhone Finding it is one thing, wanting to know what it says is another there is a gap in acquiring this knowledge to the problem at hand #hpm Wed May 25 18:42:00 PDT 2011
  • 19. Wed May 25 18:42:00 PDT 2011revdoc T3 More research is being done, but too much old literature was anecdotal; Im looking for best practices #hpm Wed May 25 18:42:14 PDT 2011EOLnavigator It makes me feel defeated when I hear that. RT @GailZahtz: @DrSnit #hpm Wed May 25 18:42:21 PDT 2011dockj RT @EOLnavigator: T3: When you search for information about end of life care online, what kind of information are you looking for & do you find it? #hpm Wed May 25 18:42:22 PDT 2011DebErupts RT @aliciabloom I often feel like #hospice & #palliative care is as much an art as it is a science #hpm | Absolutely Wed May 25 18:42:34 PDT 2011MeredithGould @MarksPhone Brilliant...wanted to RT but it was too long. :-( #hpm Wed May 25 18:42:39 PDT 2011dockj RT @revdoc: T3 More research is being done, but too much old literature was anecdotal; Im looking for best practices #hpm Wed May 25 18:42:42 PDT 2011EOLnavigator RT @PracticalWisdom: Great Truth 2 That. RT @aliciabloom: i often feel like #hospice & #palliative care is as much art as it is science #hpm Wed May 25 18:43:00 PDT 2011GLakesCaring RT @EOLnavigator: T3: When you search for info about end of life care online, what kind of info are you looking for & do you find it? #hpm Wed May 25 18:43:13 PDT 2011EOLnavigator RT @dockj: RT @revdoc: T3 More research is being done, but too much old literature was anecdotal; Im looking for best practices #hpm Wed May 25 18:43:28 PDT 2011dockj I spend more time hard searching NLM for #hpm questions than any other clinical questions I have. Wed May 25 18:43:50 PDT 2011GailZahtz @DrSnit @EOLnavigator The juggle is for pt, caregiver, provider, family, allowing some kind of freedom of perspective allowing dignity #HPM Wed May 25 18:44:02 PDT 2011PracticalWisdom RT @MarksPhone: Finding it is 1thing, wanting 2 know what it says is another. A gap in acquiring this knowledge to the problem at hand #HPM Wed May 25 18:44:17 PDT 2011EOLnavigator Best practices in EOL care is pandoras box IMO! #hpm Wed May 25 18:44:28 PDT 2011
  • 20. dockj RT @EOLnavigator: Best practices in EOL care is pandoras box IMO! #hpm Wed May 25 18:45:26 PDT 2011PracticalWisdom @MarksPhone: Sincerely think/Feel you are one of the sharpest Crayons in the Box. #HPM Wed May 25 18:45:37 PDT 2011MarksPhone the real issue is getting the seeking of a this knowledge to want to apply it. In a death phobic society we want to survial DFS etc #hpm Wed May 25 18:45:38 PDT 2011GailZahtz We should be allowed to rage, or find irrational comfort, or even to control our hope if that empowers us, yes? #HPM @EOLnavigator @DrSnit Wed May 25 18:45:41 PDT 2011revdoc @EOLnavigator We can use good information to help find most effective, least toxic, cost-effective regimens though #hpm Wed May 25 18:45:42 PDT 2011DoctorFisher T3 sometimes my search is less about info and more about finding people with similar mission (like you fine people) #hpm Wed May 25 18:45:47 PDT 2011DrSnit There is too much separation between provider, patient, caregiver and "what next" in palliative and hospice care right now. #hpm Wed May 25 18:45:47 PDT 2011MeredithGould RT @DrSnit: There is too much separation between provider, patient, caregiver and "what next" in palliative and hospice care right now. #hpm Wed May 25 18:45:56 PDT 2011KathyKastner Arent best practices situational in eol care?RT @EOLnavigator: Best practices in EOL care is pandoras box IMO! #hpm Wed May 25 18:46:04 PDT 2011EOLnavigator Ive noticed that alot of healthcare sites really shy away from EOL care topics #hpm Wed May 25 18:46:09 PDT 2011aliciabloom political discourse about end of life care is frustrating ("death panels" "rationing"). fosters fear & creates barriers for patients #hpm Wed May 25 18:46:12 PDT 2011GailZahtz Agree! MT @DrSnit: Too much separation between provider, patient, caregiver and "what next" in palliative and hospice care right now. #hpm Wed May 25 18:46:21 PDT 2011PracticalWisdom RT @doctorfisher: T3 sometimes my search is less about info and more about finding people with similar mission (like you fine people) #HPM Wed May 25 18:46:28 PDT 2011dockj The problems with research in #hpm that good outcomes = bad outcomes for most medical research.
  • 21. Wed May 25 18:46:38 PDT 2011KathyKastner RT @GailZahtz: We should be allowed to rage, or find irrational comfort, or even to control our hope if that empowers us, yes? #HPM @EOL ... Wed May 25 18:46:54 PDT 2011MarksPhone The edu issue at hand is changing the learners desire to uptake knowledge and apply, we dont know what the learners need to know #hpm Wed May 25 18:46:59 PDT 2011EOLnavigator RT @revdoc: @EOLnavigator We can use good information to help find most effective, least toxic, cost-effective regimens though #hpm Wed May 25 18:47:02 PDT 2011GLakesCaring T3: Trick is to find info that doesnt "scare" people away from using HPM. #hpm Wed May 25 18:47:05 PDT 2011doctatum could you say more?RT @DrSnit: too much separation between provider, patient, caregiver and "what next" in palliative and hospice care #hpm Wed May 25 18:47:18 PDT 2011GailZahtz IMO Palliative physicians, caregivers and providers are the most COURAGEOUS because they cant cure. #HPM Wed May 25 18:47:29 PDT 2011MeredithGould RT @GailZahtz: IMO Palliative physicians, caregivers and providers are the most COURAGEOUS because they cant cure. #HPM Wed May 25 18:47:46 PDT 2011dockj Even in the best of circumstances, there has to be subjectivity in most EOL research. #hpm Wed May 25 18:48:03 PDT 2011EOLnavigator TY. RT @doctorfisher: T3 sometimes my search is less about info & more about finding people with similar mission (like you fine people) #hpm Wed May 25 18:48:05 PDT 2011KathyKastner How about this http://tinyurl.com/4uphd7c @GLakesCaring: T3: Trick is to find info that doesnt "scare" people away from using HPM. #hpm Wed May 25 18:48:07 PDT 2011PracticalWisdom T3: @doctorfisher Do you tell other MDs about finding people with similar mission? I think so few really understand the beneifts #HPM Wed May 25 18:48:12 PDT 2011EOLnavigator Precisely! RT @KathyKastner: Arent best practices situational in eol care? Best practices in EOL care is pandoras box IMO! #hpm Wed May 25 18:48:44 PDT 2011aliciabloom RT @GailZahtz: IMO Palliative physicians, caregivers and providers are the most COURAGEOUS because they cant cure. #hpm Wed May 25 18:48:45 PDT 2011
  • 22. DrSnit Yes! RT @GailZahtz: IMO Palliative physicians, caregivers and providers are the most COURAGEOUS because they cant cure. #HPM Wed May 25 18:48:47 PDT 2011MeredithGould @dockj Theres subjectivity in all research -- we just pretend there isnt. #hpm Wed May 25 18:49:03 PDT 2011MarksPhone @GLakesCaring Thats the point what do learners want I believe a need assessment to understand caregivers and patients is critical #hpm Wed May 25 18:49:04 PDT 2011PracticalWisdom RT @DrSnit: Yes! RT @GailZahtz: IMO Palliative physicians, caregivers and providers are the most COURAGEOUS because they cant cure. #HPM Wed May 25 18:49:20 PDT 2011KathyKastner And practice, too, no? RT @dockj: Even in the best of circumstances, there has to be subjectivity in most EOL research. #hpm Wed May 25 18:49:24 PDT 2011EOLnavigator @MarksPhone Thats why I asked the Q. I see alot of what we think people want to know! #hpm Wed May 25 18:49:32 PDT 2011GailZahtz T3: Especially in palliative information, it needs to have many formats and messages so that people can access it within their way. #HPM Wed May 25 18:49:58 PDT 2011EOLnavigator RT @GLakesCaring: T3: Trick is to find info that doesnt "scare" people away from using HPM. #hpm Wed May 25 18:49:59 PDT 2011revdoc I dont know about the rest of you...my treatment plans are ALWAYS the best! ;) #hpm Wed May 25 18:50:09 PDT 2011SheyontheBay RT @KathyKastner: Arent best practices situational in eol care? Best practices in EOL care is pandoras box IMO! #hpm Wed May 25 18:50:21 PDT 2011dockj @KathyKastner yes. #hpm Wed May 25 18:50:31 PDT 2011PracticalWisdom Could you clarify RT @EOLnavigator: @MarksPhone Thats why I asked the Q. I see alot of what we think people want to know! #HPM Wed May 25 18:50:37 PDT 2011MarksPhone EOL research should be paired with a study of knowledge translation How can what we learn in EOL be up took (LOL) better #hpm Wed May 25 18:50:49 PDT 2011EOLnavigator @GailZahtz The value is in the relief of suffering & improvement in QOL without cure.
  • 23. EOLnavigator @GailZahtz The value is in the relief of suffering & improvement in QOL without cure. #hpm Wed May 25 18:50:53 PDT 2011TAFORU RT @DrSnit: There is too much separation between provider, patient, caregiver and "what next" in palliative and hospice care right now. #hpm Wed May 25 18:51:02 PDT 2011MeredithGould Re: research methods & subjectivity, read @SusannahFox post: http://bit.ly/jHrnH4 #HPM Wed May 25 18:51:13 PDT 2011Tanrita24 RT @DrSnit: There is too much separation between provider, patient, caregiver and "what next" in palliative and hospice care right now. #hpm Wed May 25 18:51:36 PDT 2011DrSnit p value of what? RT @MeredithGould: @dockj Theres subjectivity in all research -- we just pretend there isnt. #hpm Wed May 25 18:51:46 PDT 2011MeredithGould @colleen_young Was just recommending folks at the #HPM chapt read that article. #hcsmca #hcsmeu Wed May 25 18:51:53 PDT 2011SheyontheBay VERY cautious about sites I choose 4 research. Like with most "disease-specific" sites, can b fraught with misinformation #hpm Wed May 25 18:52:18 PDT 2011KathyKastner Truth be told..RT @MeredithGould: @dockj Theres subjectivity in all research -- we just pretend there isnt. #hpm Wed May 25 18:52:27 PDT 2011doctorfisher T3 lots of subjective research in social sciences and even #psych, can #hpm learn from them? Wed May 25 18:53:02 PDT 2011GailZahtz Palliate: to ease (as a disease) without curing. Websters Dictionary. Ive always loved that. TO EASE- our goal. #HPM Wed May 25 18:53:11 PDT 2011EOLnavigator @PracticalWisdom @marksphone The edu issue is that we dont know what the learners need to know.asked Q to C if the info found is good #hpm Wed May 25 18:53:39 PDT 2011AliveHospice A must-read for #nurses, especially those who work in #pediatrics: http://bit.ly/iCdJC2 #hpm Wed May 25 18:54:04 PDT 2011SheyontheBay @GailZahtz And dis-ease = not at ease #hpm Wed May 25 18:54:23 PDT 2011doctorfisher @GailZahtz I like that- we take the dis out of disease! #hpm Wed May 25 18:54:32 PDT 2011
  • 24. EOLnavigator Agree & its scary! RT @MeredithGould: @dockj Theres subjectivity in all research -- we just pretend there isnt. #hpm Wed May 25 18:54:38 PDT 2011dockj RT @doctorfisher: T3 lots of subjective research in social sciences and even #psych, can #hpm learn from them? Wed May 25 18:54:51 PDT 2011MeredithGould @DoctorFisher Subjective research, aka, qualitative research used to be essential sociology & anthropology #hpm Wed May 25 18:54:54 PDT 2011EOLnavigator I can tell! RT @revdoc: I dont know about the rest of you...my treatment plans are ALWAYS the best! ;) #hpm Wed May 25 18:55:24 PDT 2011GailZahtz @DoctorFisher @SheyontheBay Yes, were easing the pain for others, we arent taking it away, cant cure it, shouldnt minimize it. #HPM Wed May 25 18:55:31 PDT 2011MarksPhone Knowledge translation is the scientific study of methods for closing the knowledge- to-practice gap what is gap for pateints and HCP? #hpm Wed May 25 18:55:55 PDT 2011MeredithGould Factoid about me: exquisitely well trained in qualitative methods! Can do & understand quantitative stuff but not under its thrall #hpm Wed May 25 18:56:20 PDT 2011SheyontheBay @MeredithGould @DoctorFisher Cant really do controlled studies in EOL care. Not ethical! #hpm Wed May 25 18:56:35 PDT 2011rebeccatrocki RT @MeredithGould: Factoid about me: exquisitely well trained in qualitative methods! Can do & understand quantitative stuff but not under its thrall #hpm Wed May 25 18:56:44 PDT 2011GailZahtz @MarksPhone Gap for patients on HCP? That 10 point "pain scale" Funny, yet true! #HPM Wed May 25 18:56:46 PDT 2011EOLnavigator Thank you all for sharing your thoughts. Any final words of wisdom? #hpm Wed May 25 18:56:52 PDT 2011MeredithGould @SheyontheBay @DoctorFisher Even if you could, why would you? Makes NO sense given the research questions. #hpm Wed May 25 18:57:14 PDT 2011revdoc @MarksPhone What do I have? What are my options? What are risks/benefits? Best and worst case? #hpm Wed May 25 18:57:14 PDT 2011
  • 25. MarksPhone @EOLnavigator we can apply priciples of adult to identify problems to be solved #hpm Wed May 25 18:57:19 PDT 2011GailZahtz Final thoughts- validate others pain and suffering, support them how they need, ease and comfort how individually works. #HPM Wed May 25 18:57:51 PDT 2011KathyKastner #hpm we (non hcp) need to know more about dying as well as eol options (hence my post, she said encouragingly)http://tinyurl.com/26k4kpm Wed May 25 18:58:40 PDT 2011GailZahtz Rockin Thanks to "classic" and new people from #HPM. Congratz and thanks @EOLnavigator for doing a great job moderating! Love to all :) Wed May 25 18:58:40 PDT 2011PracticalWisdom @EOLnavigator @marksphone and I R Adult Educators. We believe in the importance of a Need Assessment & Androgogy. Its in our Blood. #HPM Wed May 25 18:58:45 PDT 2011revdoc "How are you suffering?" is a very powerful tool #hpm Wed May 25 18:58:52 PDT 2011EOLnavigator RT @MarksPhone: @EOLnavigator we can apply priciples of adult to identify problems to be solved #hpm Wed May 25 18:58:58 PDT 2011Lux_Seeker RT @KimberlySMoore: Musical Analgesia: Using Music for #Pain http://bit.ly/kFvLSZ #musictherapy #hpm #cancer Wed May 25 18:59:04 PDT 2011pamojamo RT @AliveHospice: A must-read for #nurses, especially those who work in #pediatrics: http://bit.ly/iCdJC2 #hpm Wed May 25 18:59:07 PDT 2011KathyKastner RT @EOLnavigator: RT @MarksPhone: @EOLnavigator we can apply priciples of adult to identify problems to be solved #hpm Wed May 25 18:59:15 PDT 2011DrSnit You cats rock my socks! Thanks for all the amazing insight tonight! Great moderating! #HPM Wed May 25 18:59:16 PDT 2011EOLnavigator RT @GailZahtz: Final thoughts- validate others pain and suffering, support them how they need, ease and comfort how individually works. #hpm Wed May 25 18:59:16 PDT 2011MeredithGould Final thoughts: Listen carefully with care & caring. Be present. Dont get hung up on the so-called science of care delivery. #hpm Wed May 25 18:59:25 PDT 2011
  • 26. KathyKastner RT @MeredithGould: Final thoughts: Listen carefully with care & caring. Be present. Dont get hung up on the so-called science of care delivery. #hpm Wed May 25 18:59:37 PDT 2011EOLnavigator RT @KathyKastner: #hpm we (non hcp) need to know more about dying as well as eol options (hence my post) http://tinyurl.com/26k4kpm #hpm Wed May 25 18:59:38 PDT 2011MarksPhone Obviously I am not being clear here this is not about the obvious but the issues that impede patients family & HPC from knowledge #hpm Wed May 25 18:59:38 PDT 2011