Ignorance and Misinformation Wreak              Havoc   HIV/AIDS in the Workplace in Québec              René Légaré      ...
Background• High rates of discrimination• Systemic problem• Difficult to have this issue acknowledged by  elected represen...
Objectives•       Test the hypothesis    –     PLWHIV face discrimination in gaining access to          and retaining empl...
Methodology• Two surveys:  – Telephone survey of 1054 Quebecers, margin of error    ± 3.02% (19 times out of 20)  – 111 bu...
Methodology• Structure of the telephone survey  –   Knows or does not know a PLWCEI  –   Level of knowledge about HIV  –  ...
Methodology• Online questionnaire  –   Hiring process  –   Management of group insurance  –   Knowledge about HIV  –   Dem...
Telephone Survey          Knew a PLWCEI or PLWHIV, or lives WCEI60,00%50,00%40,00%30,00%20,00%10,00% 0,00%         Knew PL...
Telephone Survey             Level of knowledge about HIV/AIDS8070605040302010 0     Said Could define HIV/AIDS     Define...
Telephone Survey                   Sources of information on HIV1098765     Health professionals        ASO               ...
Telephone Survey  Hiring questionnaire
Telephone Survey                       Hiring questionnaire     Fear  HonestyObligation             0    10          20   ...
Telephone Survey                Workplace environment100 9080706050                                               No40    ...
Telephone Survey                        Workplace environment504540353025                                                 ...
Telephone SurveyAttitude of others employees
Telephone Survey                    My own attitude1201008060                                              PLWCEI         ...
Telephone Survey• Hypothetical situations  – 42% would be concerned if they were to learn that a    co-worker with whom th...
Telephone survey• Hypothetical situations  – 44% felt it was important to know if they are working    with an HIV-positive...
Online Survey• Hiring process  – 58% of respondents stated that learning that a candidate had a    chronic disease would i...
Online Survey• Insurance premiums  – 33% state that their group insurance premiums increased due to    the presence of a P...
Online Survey•   Negative reactions to non-disclosure of the HIV-positive status of a    candidate (33%)     – “That infor...
Online Survey•   Accommodating reactions to non-disclosure of a candidate’s HIV-    positive status (33%)    – “It would d...
Online Survey•   The person living with HIV is responsible for the social perceptions    about HIV     – “I don’t know, bu...
Discussion• Level of knowledge when it comes to talking  about HIV in the workplace• Education curriculum of all health pr...
Conclusion• PLWHIV and PLWCEI may experience  discrimination in gaining access to and retaining  employment  – Systemic pr...
Acknowledgements• My colleagues  –   Stéphanie Claivaz-Loranger  –   Gayas Fadel  –   Mélina Bernier  –   Marianne Beaulie...
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Ignorance and misinformation wreak havoc canac2011

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Ignorance and misinformation wreak havoc canac2011

  1. 1. Ignorance and Misinformation Wreak Havoc HIV/AIDS in the Workplace in Québec René Légaré CANAC March 2011
  2. 2. Background• High rates of discrimination• Systemic problem• Difficult to have this issue acknowledged by elected representatives
  3. 3. Objectives• Test the hypothesis – PLWHIV face discrimination in gaining access to and retaining employment• Compare persons living with HIV (PLWHIV) to persons living with another chronic and episodic illness (PLWCEI)
  4. 4. Methodology• Two surveys: – Telephone survey of 1054 Quebecers, margin of error ± 3.02% (19 times out of 20) – 111 business decision-makers completed an online questionnaire, maximum margin of error ± 9.3% (19 times out of 20) • Non-random sample • Diversity of respondents enabled a representative portrait of business people to be drawn • More relevant responses because of the respondents’ interest
  5. 5. Methodology• Structure of the telephone survey – Knows or does not know a PLWCEI – Level of knowledge about HIV – Hiring/employment questionnaires – Workplace environnement • PLWCEI • PLWHIV – Hypothetical situations – Demographic profile
  6. 6. Methodology• Online questionnaire – Hiring process – Management of group insurance – Knowledge about HIV – Demographic profile
  7. 7. Telephone Survey Knew a PLWCEI or PLWHIV, or lives WCEI60,00%50,00%40,00%30,00%20,00%10,00% 0,00% Knew PLWCEI Knew PLWHIV Lives WCEI
  8. 8. Telephone Survey Level of knowledge about HIV/AIDS8070605040302010 0 Said Could define HIV/AIDS Defined them correctly
  9. 9. Telephone Survey Sources of information on HIV1098765 Health professionals ASO Government
  10. 10. Telephone Survey Hiring questionnaire
  11. 11. Telephone Survey Hiring questionnaire Fear HonestyObligation 0 10 20 30 40 50
  12. 12. Telephone Survey Workplace environment100 9080706050 No40 Yes302010 0 Works with PLWCEI Works with PLWHIV
  13. 13. Telephone Survey Workplace environment504540353025 PLWCEI20 PLWHIV151050 Self‐disclosure Gossip Medication Other
  14. 14. Telephone SurveyAttitude of others employees
  15. 15. Telephone Survey My own attitude1201008060 PLWCEI PLWHIV4020 0 Comfortable Uncomfortable
  16. 16. Telephone Survey• Hypothetical situations – 42% would be concerned if they were to learn that a co-worker with whom they have frequent dealings was HIV-positive – 16% would inform their co-workers
  17. 17. Telephone survey• Hypothetical situations – 44% felt it was important to know if they are working with an HIV-positive person • Reasons: – I have the right to know: 62% – I’m afraid of catching it: 29% – 78% said that their attitude would not change if they learned that they were working with a PLWHIV
  18. 18. Online Survey• Hiring process – 58% of respondents stated that learning that a candidate had a chronic disease would influence their decision whether or not to hire that person – 64% would feel uncomfortable around people with HIV/AIDS – 33% thought they would react negatively if they learned that an employee living with HIV/AIDS had not disclosed his/her status in a hiring questionnaire with a question about the subject – 40% would not hire a PLWHIV
  19. 19. Online Survey• Insurance premiums – 33% state that their group insurance premiums increased due to the presence of a PLWCEI or PLWHIV – 45% state that they knew details of claims made by employees • 24% knew the names of people taking medication – 77% said that they would try to learn the reasons justifying an increase in insurance premiums that would occur following the hiring of a new employee
  20. 20. Online Survey• Negative reactions to non-disclosure of the HIV-positive status of a candidate (33%) – “That information should be disclosed. [There would be a] loss of confidence in the employee.” – “Very upset!!! I would be sure to find out what kinds of recourse we have.” – “False statement at hiring –seriously weakened relationship of trust.” – “I would feel like I had been betrayed.” – “Whatever the disease, hiding information gives a very bad impression of the candidate, and in any case, the insurance company would demand such information.” – “In my opinion, it is a false declaration, which would be unpardonable in the framework of the work to be done in my department.”
  21. 21. Online Survey• Accommodating reactions to non-disclosure of a candidate’s HIV- positive status (33%) – “It would definitely be necessary to sit down with that employee to make him understand that honesty and transparency reign at our company. Afterward, it would be a good idea to set up an appropriate prevention process, given the employee’s medical condition. Once it has been established, we would also have to inform the employee of the process to make him aware of the possible implications and to determine whether he is comfortable with it. The objective would be to respect the employee with HIV/AIDS, while taking preventive measures to protect the other employees in the company.” – “If he were a high-quality candidate, I would take into consideration the stage of his disease. I would discuss the frequency of treatment with him and see whether it was incompatible with the work to be done.”
  22. 22. Online Survey• The person living with HIV is responsible for the social perceptions about HIV – “I don’t know, but that would probably tell me something about his level of integrity. But, it’s his private life and if it doesn’t negatively affect his tasks, he could function very well despite it.” – “If that person is serious and reasonable, she would disclose her status even if no one asked.” – “Makes no difference to me, since I wouldn’t ask a specific question about it. What counts for me is trustworthiness and integrity, so I would expect the candidate to be honest.” – “I would understand the situation and his fear, given the frequent prejudices against HIV/AIDS, but I would wonder—if he lied about that, did he also lie about other things.”
  23. 23. Discussion• Level of knowledge when it comes to talking about HIV in the workplace• Education curriculum of all health professionals• Employment or hiring questionnaires• Workplace environment• PLWHIV responsible for social perceptions
  24. 24. Conclusion• PLWHIV and PLWCEI may experience discrimination in gaining access to and retaining employment – Systemic problems• PLWHIV face more stigmatization in the population than PLWCEI• Ignorance and misinformation still quite high
  25. 25. Acknowledgements• My colleagues – Stéphanie Claivaz-Loranger – Gayas Fadel – Mélina Bernier – Marianne Beaulieu• Axiome Marketing• Bristol Myers-Squibb Canada – Unconditional funding

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