Beyond an Apple a Day: Providing Consumer Health Information at Your Library National Network of Libraries of Medicine http://nnlm.gov (800) 338-7657

Agenda Health information needs of patrons Challenges of providing CH services Planning a consumer health service Collection Development Consumer Health on the Internet The Reference Interview Ethics Outreach

Health information needs of patrons

Challenges of providing CH services

Planning a consumer health service

Collection Development

Consumer Health on the Internet

The Reference Interview

Ethics

Outreach

Consumer Health – then and now… 1972 – Patient Bill of Rights 2002 – Pew Internet and American Life 2006 – “Googling for a diagnosis” [BMJ] 2006 – Pew Internet and American Life Only one quarter of online health seekers said they always or usually check the source and date of health information online!

1972 – Patient Bill of Rights

2002 – Pew Internet and American Life

2006 – “Googling for a diagnosis” [BMJ]

2006 – Pew Internet and American Life

Only one quarter of online health seekers said they always or usually check the source and date of health information online!

Realities of health care today Patients are now asked to make decisions about their own disease process. Most patients do not have the tools to make these kinds of decisions Libraries can help!

Patients are now asked to make decisions about their own disease process.

Most patients do not have the tools to make these kinds of decisions

Libraries can help!

A rose is a rose… “ A high degree of intelligence, tact, imagination, and resourcefulness coupled with such a background of education, professional training, and experience will enable the medical librarian to administer a library efficiently and to assist readers in the use of the bibliographic and other materials of his collection.” Lucretia McClure quotes Judity W. Hunt from the first edition of A Handbook of Medical Library Practice (1943) Source: McClure, L. A rose is a rose. JMLA 91(2) April 2003.

“ A high degree of intelligence, tact, imagination, and resourcefulness coupled with such a background of education, professional training, and experience will enable the medical librarian to administer a library efficiently and to assist readers in the use of the bibliographic and other materials of his collection.”

Lucretia McClure quotes Judity W. Hunt from the first edition of A Handbook of Medical Library Practice (1943)

Source: McClure, L. A rose is a rose. JMLA 91(2) April 2003.

Health Literacy The ability to read, understand and act on health information [Pfizer 2002] The degree to which individuals have the capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions [Healthy People 2010]

The ability to read, understand and act on health information [Pfizer 2002]

The degree to which individuals have the capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions [Healthy People 2010]

Discussion What are your thoughts on health literacy and how it impacts the individual and society?

What are your thoughts on health literacy and how it impacts the individual and society?

Why is health literacy so critical? Essential life skill Public health imperative Essential part of social capital Critical economic issue Source: “Navigating Health: The Role of Health Literacy”, Kickbusch

Essential life skill

Public health imperative

Essential part of social capital

Critical economic issue

Source: “Navigating Health: The Role of Health Literacy”, Kickbusch

Resources for health literacy MedlinePlus – Easy to read easy to read resources and a how to write easy to read page Ask Me 3, Partnership for Clear Health Communication 1. What is my main problem? 2. What do I need to do? 3. Why is it important for me to do this?

MedlinePlus – Easy to read

easy to read resources and a how to write easy to read page

Ask Me 3, Partnership for Clear Health Communication

1. What is my main problem?

2. What do I need to do?

3. Why is it important for me to do this?

ACTIVITY Take 10 minutes to discuss with a partner or a group, some examples of consumer health questions. We wrap up this activity with a discussion of your examples together as a class.

Take 10 minutes to discuss with a partner or a group, some examples of consumer health questions.

We wrap up this activity with a discussion of your examples together as a class.

Challenges of the reference interview in the context of health information Not being familiar with the resources Medical terminology Knowing how much to ask Using open ended questions Being aware of body language Not offering personal experiences Others?

Not being familiar with the resources

Medical terminology

Knowing how much to ask

Using open ended questions

Being aware of body language

Not offering personal experiences

Others?

The Reference Interview … in the context of health information Be empathetic Be an active listener Use open ended questions Respect privacy / confidentiality Be prepared for emotions Be aware of body language Do not be afraid to refer the patron back to his/her health care provider

… in the context of health information

Be empathetic

Be an active listener

Use open ended questions

Respect privacy / confidentiality

Be prepared for emotions

Be aware of body language

Do not be afraid to refer the patron back to his/her health care provider

Disclaimers “Materials in the Resource Center represent the opinions of the authors and are intended as a complement, not a substitute for the advice of your healthcare providers.”

“Materials in the Resource Center represent the opinions of the authors and are intended as a complement, not a substitute for the advice of your healthcare providers.”

Ethical Guidelines Privacy / Confidentiality Know the limits of your collection Do not interpret medical information Use a disclaimer or caution statement

Privacy / Confidentiality

Know the limits of your collection

Do not interpret medical information

Use a disclaimer or caution statement

The Librarian is In: Facing Modern Consumer Health Issues in the Public Library Let’s take a few minutes to listen to best practices for common health reference interview.

Facing Modern Consumer Health Issues in the Public Library

Let’s take a few minutes to listen to best practices for common health reference interview.

Planning the service Needs assessment DRG’s Leapfrog Health grades Analyze the demographics of your community CDC Faststats Kaiser State Health Facts Public Library Geographic Database

Needs assessment

DRG’s

Leapfrog

Health grades

Analyze the demographics of your community

CDC Faststats

Kaiser State Health Facts

Public Library Geographic Database

The many considerations of planning a new consumer health service Salaries, Internet access, computers, software, technology, books, medical texts, journals, newsletters, videos, databases, brochures, free research, free printing, telephone reference, office supplies, library supplies, fax supplies, programming, ILL, professional memberships, security services, maintenance So many things to think about…

Salaries, Internet access, computers, software, technology, books, medical texts, journals, newsletters, videos, databases, brochures, free research, free printing, telephone reference, office supplies, library supplies, fax supplies, programming, ILL, professional memberships, security services, maintenance

So many things to think about…

Collection Development Book lists on CAPHIS UCONN Healthnet Toronto Public Library

Book lists on CAPHIS

UCONN Healthnet

Toronto Public Library

Journals, Videos … Let’s take a look at the collection development guides for journals and videos provided in your handout.

Let’s take a look at the collection development guides for journals and videos provided in your handout.

Consumer Health on the Internet The ABC’s of evaluation Accuracy Authority Bias Currency Coverage And, user friendliness

The ABC’s of evaluation

Accuracy

Authority

Bias

Currency

Coverage

And, user friendliness

Web sites you can trust… MedlinePlus NIH Senior Health Clinical Trials NCCAM National Library of Medicine

MedlinePlus

NIH Senior Health

Clinical Trials

NCCAM

National Library of Medicine

More… American Heart Association National Cancer Institute Dirline Drug Digest Family Doctor Health News in Review

American Heart Association

National Cancer Institute

Dirline

Drug Digest

Family Doctor

Health News in Review

Hands on Exercises Please turn to page 12 of your handout. Try the hands on exercises. Recommended answers can be found on page 13.

Please turn to page 12 of your handout. Try the hands on exercises. Recommended answers can be found on page 13.

Collaboration / Partnerships Your local hospital librarian Your local hospital administration Community Based Organizations NN/LM MLA local chapters CAPHIS

Your local hospital librarian

Your local hospital administration

Community Based Organizations

NN/LM

MLA local chapters

CAPHIS

Marketing Group activity: Get together in groups of 2 or 3 and come up with a couple of good marketing ideas to share. We will discuss them as a group.

Group activity: Get together in groups of 2 or 3 and come up with a couple of good marketing ideas to share.

We will discuss them as a group.

Resources for further information… CAPHIS OERC The Challenge of Providing Consumer Health Information Services in Public Libraries

CAPHIS

OERC

The Challenge of Providing Consumer Health Information Services in Public Libraries

Wrapping up… Think of the three most important take home messages from today’s presentation. Would someone like to share with the class?

Think of the three most important take home messages from today’s presentation.

Would someone like to share with the class?

Thank you! Contact information: http://nnlm.gov (800) 338-7657 Course developed by Michelle Eberle and Terri Ottosen This project is supported under contract #N01-LM-6-3508 with the NN/LM New England Region and contract # N01-LM-6-3502 with the Southeastern Atlantic Region from the National Library of Medicine.

Contact information:

http://nnlm.gov

(800) 338-7657

Course developed by Michelle Eberle and Terri Ottosen

This project is supported under contract #N01-LM-6-3508 with the NN/LM New England Region and contract # N01-LM-6-3502 with the Southeastern Atlantic Region from the National Library of Medicine.