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    PedsQL ? Publications PedsQL ? Publications Document Transcript

    • www.pedsql.org PedsQL™ Publications Peer Reviewed Publications Varni, J.W., Limbers, C.A., Neighbors, K., Schulz, K., Lieu, J.E.C., Heffer, R.W., Tuzinkiewicz, K., Mangione-Smith, R., Zimmerman, J.J., & Alonso, E.M. (in press). The PedsQL™ Infant Scales: Feasibility, internal consistency reliability and validity in healthy and ill infants. Quality of Life Research. Limbers, C.A., Ripperger-Suhler, J., Boutton, K., Ransom, D., & Varni, J.W. (in press). A comparative analysis of health-related quality of life and family impact between children with ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL™. Journal of Attention Disorders. Weissberg-Benchell, J., Zielinski, T.E., Rodgers, S., Greenley, R.N., Askenazi, D., Goldstein, S.L., Fredericks, E.M., McDiarmid, S., Williams, L., Limbers, C.A., Tuzinkiewicz, K., Lerret, S., Alonso, E.M., & Varni, J.W. (2010). Pediatric health-related quality of life: Feasibility, reliability and validity of the PedsQL™ Transplant Module. American Journal of Transplantation, 10, 1677-1685. Davis, S.E., Hynan, L.S., Limbers, C.A., Andersen, C.M., Greene, M.C., Varni, J.W., & Iannaccone, S.T. (2010). The PedsQL™ in pediatric patients with Duchenne Muscular Dystrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Neuromuscular Module and Generic Core Scales. Journal of Clinical Neuromuscular Disease, 11, 97-109. Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2010). The PedsQL™ Multidimensional Fatigue Scale in pediatric obesity: Feasibility, reliability, and validity. International Journal of Pediatric Obesity, 5, 34-42. Seid, M., Limbers, C.A., Driscoll, K.A., Opipari-Arrigan, L.A., Gelhard, L.R, & Varni, J.W. (2010). Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ (PedsQL™) Generic Core Scales and Asthma Symptoms Scale in vulnerable children with asthma. Journal of Asthma, 47, 170-177. Newman, D.A., Limbers, C.A., & Varni, J.W. (2010). Factorial invariance of child self-report across English and Spanish language groups in a Hispanic population utilizing the PedsQL™ 4.0 Generic Core Scales. European Journal of Psychological Assessment, 26, 194-202. Iannaccone, S.T., Hynan, L.S., Morton, A., Buchanan, R., Limbers, C.A., & Varni, J.W. (2009). The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Neuromuscular Module. Neuromuscular Disorders, 19, 805-812. Limbers, C.A., Heffer, R.W., & Varni, J.W. (2009). Health-related quality of life and cognitive functioning from the perspective of parents of school-aged children with Asperger's Syndrome utilizing the PedsQL™. Journal of Autism and Developmental Disorders, 39, 1529-1541. Limbers, C.A., Newman, D.A., & Varni, J.W. (2009). Factorial invariance of child self-report across race/ethnicity groups: A multigroup confirmatory factor analysis approach utilizing the PedsQL™ 4.0 Generic Core Scales. Annals of Epidemiology, 19, 575-581. Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2009). The PedsQL™ Multidimensional Fatigue Scale in Type 1 diabetes: Feasibility, reliability, and validity. Pediatric Diabetes, 10, 321-328. Page 1 of 37
    • www.pedsql.org Varni, J.W., & Limbers, C.A. (2009). The PedsQL™ 4.0 Generic Core Scales young adult version: Feasibility, reliability and validity in a university student population. Journal of Health Psychology, 14, 611-622. Marcus, S.B., Strople, J.A., Neighbors, K., Weissberg-Benchell, J., Nelson, S.P., Limbers, C.A., Varni, J.W., & Alonso, E.M. (2009). Fatigue and health-related quality of life in pediatric inflammatory bowel disease. Clinical Gastroenterology and Hepatology, 7, 554-561. Steele, M.M., Steele, R.G., & Varni, J.W. (2009). Reliability and validity of the PedsQL™ Oral Health Scale: Measuring the relationship between child oral health and health-related quality of life. Children’s Health Care, 38, 228-224. Varni, J.W., & Limbers, C.A. (2009). The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56, 843-863. Varni, J.W., Limbers, C.A., & Newman, D.A. (2009). Using factor analysis to confirm the validity of children's self-reported health-related quality of life across different modes of administration. Clinical Trials: Journal of the Society for Clinical Trials, 6, 185-195. Varni, J.W., Limbers, C.A., Newman, D.A., & Seid, M. (2008). Longitudinal factorial invariance of the PedsQL™ 4.0 Generic Core Scales child self-report version: One year prospective evidence from the California State Children's Health Insurance Program (SCHIP). Quality of Life Research, 17, 1153-1162. Varni, J.W., Limbers, C.A., Burwinkle, T.M., Bryant, W.P., & Wilson, D.P. (2008). The ePedsQL™ in Type 1 and Type 2 diabetes: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Internet administration. Diabetes Care, 31, 672-677. Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report across age subgroups: A confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL™ 4.0 Generic Core Scales. Value in Health, 11, 659–668. Varni, J.W., & Limbers, C.A. (2008). The PedsQL™ Multidimensional Fatigue Scale in young adults: Feasibility, reliability and validity in a university student population. Quality of Life Research, 17, 105-114. Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report across healthy and chronic health condition groups: A confirmatory factor analysis utilizing the PedsQL™ 4.0 Generic Core Scales. Journal of Pediatric Psychology, 33, 630-639. Goldstein, S.L., Graham, N., Warady, B.A., Seikaly, M., McDonald, R., Burwinkle, T.M., Limbers, C.A., & Varni, J.W. (2008). Measuring health-related quality of life in children with ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of Life Inventory™ (PedsQL™). American Journal of Kidney Diseases, 51, 285-297. Uzark, K., Jones, K., Slusher, J., Limbers, C.A., Burwinkle, T.M., & Varni, J.W. (2008). Quality of life in children with heart disease as perceived by children and parents. Pediatrics, 121, e1060- e1067. Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report across socioeconomic status groups: A multigroup confirmatory factor analysis utilizing the PedsQL™ 4.0 Generic Core Scales. Journal of Behavioral Medicine, 31, 401-411. Varni, J.W., Limbers, C.A., & Newman, D.A. (2008). Factorial invariance of the PedsQL™ 4.0 Generic Core Scales child self-report across gender: A multigroup confirmatory factor analysis with 11,356 children ages 5 to 18. Applied Research in Quality of Life, 3, 137-148. Page 2 of 37
    • www.pedsql.org Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8,591 children across age subgroups with the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5:1, 1-13. Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Parent proxy-report of their children’s health-related quality of life: An analysis of 13,878 parents’ reliability and validity across age subgroups using the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5:2, 1-10. Palmer, S.N., Meeske, K.A., Katz, E.R., Burwinke, T.M., & Varni, J.W. (2007). The PedsQL™ Brain Tumor Module: Initial reliability and validity. Pediatric Blood and Cancer, 49, 287-293. Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5:43, 1-15. Varni, J.W., Burwinkle, T.M., & Seid, M. (2006). The PedsQL™ 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research, 15, 203-215. Varni, J.W., Burwinkle, T.M., Berrin, S.J., Sherman, S.A., Artavia, K., Malcarne, V.L., & Chambers, H.G. (2006). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module. Developmental Medicine and Child Neurology, 48, 442-449. Chan, K.S., Mangione-Smith, R., Burwinkle, T.M., Rosen, M., & Varni, J.W. (2005). The PedsQL™: Reliability and validity of the Short-Form Generic Core Scales and Asthma Module. Medical Care, 43, 256-265. Varni, J.W., Burwinkle, T. M., & Seid, M. (2005). The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ Measurement Model in 25,000 children. Expert Review of Pharmacoeconomics and Outcomes Research, 5, 705-719. Varni, J.W., Burwinkle, T.M., & Szer, I.S. (2004). The PedsQL™ Multidimensional Fatigue Scale in pediatric rheumatology: Reliability and validity. Journal of Rheumatology, 31, 2494-2500. Varni, J.W., Burwinkle, T.M., Rapoff, M.A., Kamps, J.L., & Olson, N. (2004). The PedsQL™ in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Asthma Module. Journal of Behavioral Medicine, 27, 297-318. Varni, J.W., Burwinkle, T.M., Seid, M., & Skarr, D. (2003). The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329-341. Varni, J.W., Burwinkle, T.M., Jacobs, J.R., Gottschalk, M., Kaufman, F., & Jones, K.L. (2003). The PedsQL™ in Type 1 and Type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Type 1 Diabetes Module. Diabetes Care, 26, 631-637. Uzark, K., Jones, K., Burwinkle, T.M., & Varni, J.W. (2003). The Pediatric Quality of Life Inventory™ in children with heart disease. Progress in Pediatric Cardiology, 18, 141-148. Varni, J.W., Burwinkle, T.M., Katz, E.R., Meeske, K., & Dickinson, P. (2002). The PedsQL™ in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94, 2090-2106. Page 3 of 37
    • www.pedsql.org Varni, J.W., Seid, M., Knight, T.S., Burwinkle, T.M., Brown, J., & Szer, I.S. (2002). The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46, 714-725. Varni, J.W., Seid, M., Knight, T.S., Uzark, K., & Szer, I.S. (2002). The PedsQL™ 4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making. Journal of Behavioral Medicine, 25, 175-193. Varni, J.W., Seid, M., & Kurtin, P.S. (2001). PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39, 800-812. Varni, J.W., Seid, M., & Rode, C.A. (1999). The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory™. Medical Care, 37, 126-139. Additional Publications Caocci, G., Efficace, F., Ciotti, F., Roncarolo, M.G., Vacca, A., Piras, E., Littera, R., Dawood Markous, R.S., Collins, G.S., Ciceri, F., Mandelli, F., Marktel, S., & La Nasa, G. (in press). Prospective assessment of health related quality of life in pediatric beta-thalassemia patients following hematopoietic stem cell transplantation.Biology of Blood and Marrow Transplantation. Stephen, M.D., Varni, J.W., Limbers, C.A., Yafi, M., Heptulla, R.A., Renukuntla, V.S., Bell, C.S., & Brosnan, P.G. (in press). Health-related quality of life and cognitive functioning in pediatric short stature: Comparison of growth hormone naive, growth hormone treated, and healthy samples. European Journal of Pediatrics. Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (in press). The assessment of fatigue in pediatric patients with short stature utilizing the PedsQL™ Multidimensional Fatigue Scale. The Endocrinologist. Marlais, M., Fishman, J.R., Köglmeier, J., Fell, J.M., & Rawat, D.J. (in press). Reduced quality of life in children with Gastro-oesophageal reflux disease. Acta Paediatrica. Amiri, P., Ardakani, E.M., Jalali-Farahani, S., Hosseinpanah, F., Varni, J.W., Ghofranipour, F., Montazeri, A., & Azizi, F. (in press). Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents. Quality of Life Research. Jafari, P., Ghanizadeh, A., Akhondzadeh, S., & Mohammadi, M.R. (in press). Health-related quality of life of Iranian children with attention deficit/hyperactivity disorder. Quality of Life Research. Wade, T.J., & Guo, J.J. (in press). Linking improvements in health-related quality of life to reductions in Medicaid costs among students who use school-based health centers. American Journal of Public Health. Du, R.Y., McGrath, C., Yiu, C.K., & King N.M. (in press). Health and oral health-related quality of life among preschool children with cerebral palsy. Quality of Life Research. Sung, L., Yanofsky, R., Klaassen, R.J., Dix, D., Pritchard, S., Winick, N., Alexander, S., & Klassen, A. (in press). Quality of life during active treatment for pediatric acute lymphoblastic leukemia. International Journal of Cancer. Dale, J.C., Cochran, C.J., Roy, L., Jernigan, E., & Buchanan, G.R. (in press). Health-related quality of life in children and adolescents with sickle cell disease. Journal of Pediatric Health Care. Page 4 of 37
    • www.pedsql.org Jia, Z., Shi, L., Cao, Y., Delancey, J., & Tian, W. (in press). Health-related quality of life of "left- behind children": A cross-sectional survey in rural China. Quality of Life Research. Kunz, J.H., Hommel, K.A., & Greenley, R.N. (in press). Health-related quality of life of youth with inflammatory bowel disease: A comparison with published data using the PedsQL 4.0 Generic Core Scales. Inflammatory Bowel Diseases. Banerjee, T., Pensi, T., & Banerjee, D. (in press). HRQoL in HIV-infected children using PedsQL 4.0 and comparison with uninfected children. Quality of Life Research. Kuhlthau, K., Orlich, F., Hall, T.A., Sikora, D., Kovacs, E.A., Delahaye, J., & Clemons, T.E. (2010). Health-related quality of life in children with Autism Spectrum Disorders: Results from the Autism Treatment Network. Journal of Autism and Developmental Disorders, 40, 721–729. Hao, Y., Tian, Q., Lu, Y., Chai, Y., & Rao, S. (in press). Psychometric properties of the Chinese version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Quality of Life Research. Dunaway, S., Montes, J., Montgomery, M., Battista, V., Koo, B., Marra, J., De Vivo, D.C., Hynan, L.S., Iannaccone, S.T., & Kaufmann P. (2010). Reliability of telephone administration of the PedsQL™ Generic Quality of Life Inventory™ and Neuromuscular Module™ in spinal muscular atrophy (SMA). Neuromuscular Disorders, 20, 162-165. Klaassen, R.J., Krahn, M., Gaboury, I., Hughes, J., Anderson, R., Grundy, P., Ali, S.K., Jardine, L., Abla, O., Silva, M., Barnard, D., & Cappelli M. (2010). Evaluating the ability to detect change of health-related quality of life in children with Hodgkin disease. Cancer, 116, 1608-1614. Klaassen, R.J., Barr, R.D., Hughes, J., Rogers, P., Anderson, R., Grundy, P., Ali, S.K., Yanofsky, R., Abla, O., Silva, M., Carret, A.S., & Cappelli, M. (2010). Nurses provide valuable proxy assessment of the health-related quality of life of children with Hodgkin disease. Cancer, 116, 1602-1607. Alonso, E.M., Limbers, C.A., Neighbors, K., Martz, K., Bucuvalas, J.C., Webb, T., & Varni, J.W. (2010). Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipients. Journal of Pediatrics, 156, 270-276. Ingerski, L.M., Modi, A.C., Hood, K.K., Pai, A.L., Zeller, M., Piazza-Waggoner, C., Driscoll, K.A., Rothenberg, M.E., Franciosi, J.F., & Hommel, K.A. (2010). Health-related quality of life across pediatric chronic conditions. Journal of Pediatrics, 156, 639-644. Mowry, E.M, Julian, L.J, Im-Wang, S., Chabas, D., Galvin, A.J., Strober, J.B., & Waubant, E. (2010). Health-related quality of life is reduced in pediatric multiple sclerosis. Pediatric Neurology, 43, 97-102. Dampier, C., Lieff, S., Lebeau, P., Rhee, S., McMurray, M., Rogers, Z., Smith-Whitley, K., & Wang, W. (2010). Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium. Pediatric Blood & Cancer, 55, 485-494. Langley, R.G., Paller, A.S., Hebert, A.A., Creamer, K., Weng, H.H., Jahreis, A., Globe, D., Patel, V., & Orlow, S.J. (in press). Patient-reported outcomes in pediatric patients with psoriasis undergoing etanercept treatment: 12-week results from a phase III randomized controlled trial. Journal of the American Academy of Dermatology. Baggott, C.R., Dodd, M., Kennedy, C., Marina, N., Matthay, K.K., Cooper, B., & Miaskowski C. (in press). An evaluation of the factors that affect the health-related quality of life of children following myelosuppressive chemotherapy. Supportive Care in Cancer. Page 5 of 37
    • www.pedsql.org Pogorzala, M., Styczynski, J., Kurylak, A., Debski, R., Wojtkiewicz, M., & Wysocki, M. (2010). Health-related quality of life among pediatric survivors of primary brain tumors and acute leukemia. Quality of Life Research, 19, 191–198. Roumelioti, M.E., Wentz, A., Schneider, M.F., Gerson, A.C., Hooper, S., Benfield, M., Warady, B.A., Furth, S.L., & Unruh, M.L. (2010). Sleep and fatigue symptoms in children and adolescents with CKD: A cross-sectional analysis from the Chronic Kidney Disease in Children (CKiD) Study. American Journal of Kidney Diseases, 55, 269-280. Gerson, A.C., Wentz, A., Abraham, A.G., Mendley, S.R., Hooper, S.R., Butler, R.W., Gipson, D.S., Lande, M.B., Shinnar, S., Moxey-Mims, M.M., Warady, B.A., & Furth S.L. (2010). Health- related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125, e349-57. Howard, K., Lo, E., Sheppard, S., Stargatt, R., & Davidson, A. (2010). Behavior and quality of life measures after anesthesia for tonsillectomy or ear tube insertion in children. Paediatric Anaesthesia, 20, 913-923. Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N., Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (2010). Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module. Health and Quality of Life Outcomes, 8:38, 1-14. de Wit, M., Delemarre-van de Waal, H.A., Bokma, J.A., Haasnoot, K., Houdijk, M.C., Gemke, R.J., & Snoek, F.J. (2010). Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: Benefits do not sustain in routine practice. Pediatric Diabetes, 11, 175-181. Lloyd, A., Swinburn, P., Boye, K.S., Curtis, B., Sarpong, E., Goldsmith, K., Bode, B., & Aronoff, S. (2010). A valuation of infusion therapy to preserve islet function in type 1 diabetes. Value in Health, 13, 636-642. Wen, G., McKean-Cowdin, R., Varma, R., Tarczy-Hornoch, K., Cotter, S.A., Borchert, M., & Azen. S. (in press). General health-related quality of life in preschool children with strabismus or amblyopia. Ophthalmology. McManus, B.M., Robert, S.A., Albanese, A., Sadek-Badawi, M., & Palta, M. (in press). Relationship between neighborhood disadvantage and social function of Wisconsin 2- and 3-year- olds born at very low birth weight. Archives of Pediatrics & Adolescent Medicine. Bray P., Bundy, A.C., Ryan, M.M., North, K.M., & Everett, A. (in press). Health-related quality of life in boys with Duchenne Muscular Dystrophy: Agreement between parents and their sons. Journal of Child Neurology. Schurman, J.V., Wu, Y.P., Grayson, P., & Friesen, C.A. (2010). Pilot study to assess the efficacy of biofeedback-assisted relaxation training as an adjunct treatment for pediatric functional dyspepsia associated with duodenal eosinophilia. Journal of Pediatric Psychology, 35, 837–847. Punpanich, W., Boon-Yasidhi, V., Chokephaibulkit, K., Prasitsuebsai, W., Chantbuddhiwet, U., Leowsrisook, P., Hays, R.D., & Detels, R. (in press). Health-related quality of life of Thai children with HIV infection: A comparison of the Thai Quality of Life in Children (ThQLC) with the Pediatric Quality of Life Inventory™ version 4.0 (PedsQL™ 4.0) Generic Core Scales. Quality of Life Research. McDonald, C.M., McDonald, D.A., Bagley, A.M., Sienko-Thomas, S., Buckon, C., Henricson, E., Nicorici, A., & Sussman, M.D. (in press). Relationship between clinical outcome measures Page 6 of 37
    • www.pedsql.org and parent proxy reports of health-related quality of life in ambulatory children with Duchenne Muscular Dystrophy. Journal of Child Neurology. Seid, M., Varni, J.W., Gidwani, P., Gelhard, L.R, & Slymen, D.J. (in press). Problem-solving skills training for vulnerable families of children with persistent asthma: Report of a randomized trial on health-related quality of life outcomes. Journal of Pediatric Psychology. Mano, K.E., Khan, K.A., Ladwig, R.J., & Weisman, S.J. (in press). The impact of pediatric chronic pain on parents' health-related quality of life and family functioning: Reliability and validity of the PedsQL 4.0 Family Impact Module. Journal of Pediatric Psychology. Xu, C., Jackson, M., Scuffham, P.A., Wootton, R., Simpson, P., Whitty, J., Wolfe, R., & Wainwright, C.E. (in press). A randomized controlled trial of an interactive voice response telephone system and specialist nurse support for childhood asthma management. Journal of Asthma. Kalyva, E., Malakonaki, E., Eiser, C., & Mamoulakis, D. (in press). Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): Self and parental perceptions. Pediatric Diabetes. Yang, X., Xiao, N., & Yan, J. (in press). The PedsQL™ in pediatric cerebral palsy: reliability and validity of the Chinese version Pediatric Quality of Life Inventory 4.0 Generic Core Scales and 3.0 Cerebral Palsy Module. Quality of Life Research. Moon, R.J., Sutton, T., Wilson, P.M., Kirkham, F.J., & Davies, J.H. (in press). Pituitary function at long-term follow up of childhood traumatic brain injury. Journal of Neurotrauma. Gorzkowski, J.A., Kelly, E.H., Klaas, S.J., & Vogel, L.C. (in press). Girls with spinal cord injury: Social and job-related participation and psychosocial outcomes. Rehabilitation Psychology. Boyle, S.E., Jones, G.L., & Walters, S.J. (in press). Physical activity, quality of life, weight status and diet in adolescents. Quality of Life Research. Clarke, S.A., Skinner, R., Guest, J., Darbyshire, P., Cooper, J., Shah, F., Roberts, I., & Eiser, C. (in press). Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK. Child: Care, Health and Development. Kobayashi, K., & Kamibeppu, K. (2010). Measuring quality of life in Japanese children: Development of the Japanese version of the PedsQL™. Pediatrics International, 52, 80-88. Natesan, P., Limbers, C.A., & Varni, J.W. (2010). Bayesian estimation of graded response multilevel models using Gibbs sampling: Formulation and illustration. Educational and Psychological Measurement, 70, 420–439. Lima, L., Guerra, M.P., & de Lemos, M.S. (2010). The psychological adjustment of children with asthma: Study of associated variables. Spanish Journal of Psychology, 13, 353-363. Irwin, D.E., Stucky, B.D., Thissen, D., DeWitt, E.M., Lai, J.S., Yeatts, K., Varni, J.W., & DeWalt, D.A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large- scale survey. Quality of Life Research, 19, 585-594. Kistler, K.D., Molleston, J., Unalp, A., Abrams, S.H., Behling, C., & Schwimmer, J.B. (in press). Symptoms and quality of life in obese children and adolescents with nonalcoholic fatty liver disease. Alimentary Pharmacology & Therapeutics. Thurston, S., Paul, L., Loney, P., Wong, M., & Browne, G. (in press). The quality of life of a multidiagnosis group of special needs children: Associations and costs. International Journal of Pediatrics. Page 7 of 37
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    • www.pedsql.org Macallister, W.S., Christodoulou, C., Troxell, R., Milazzo, M., Block, P., Preston, T.E., Bender, H.A., Belman, A., & Krupp, L.B. (2009). Fatigue and quality of life in pediatric multiple sclerosis. Multiple Sclerosis, 15, 1502-1508. Izquierdo, R., Morin, P.C., Bratt, K., Moreau, Z., Meyer, S., Ploutz-Snyder, R., Wade, M., & Weinstock, R.S. (2009). School-centered telemedicine for children with Type 1 diabetes mellitus. Journal of Pediatrics, 155, 374-379. Dodson, J.L., Cohn, S.E., Cox, C., Hmiel, P.S., Wood, E., Mattoo, T.K., Warady, B.A., & Furth, S.L. (2009). Urinary Incontinence in the CKiD cohort and health related quality of life. Journal of Urology, 182 (4 Suppl), 2007-2014. Petersen, S., Hägglöf, B.L., & Bergström, E.I. (2009). Impaired health-related quality of life in children with recurrent pain. Pediatrics, 124, e759-e767. Manlhiot, C., Knezevich, S., Radojewski, E., Cullen-Dean, G., Williams, W.G., & McCrindle, B.W. (in press). Functional health status of adolescents after the Fontan procedure: Comparison with their siblings. Canadian Journal of Cardiology. Montpetit, K., Hamdy, R.C., Dahan-Oliel, N., Zhang, X., & Narayanan, U.G. (2009). Measurement of health-related quality of life in children undergoing external fixator treatment for lower limb deformities. Journal of Pediatric Orthopedics, 29, 920-926. Gorton, G.E., Abel, M.F., Oeffinger, D.J., Bagley, A., Rogers, S.P., Damiano, D., Romness, M., & Tylkowski, C. (2009). A prospective cohort study of the effects of lower extremity orthopaedic surgery on outcome measures in ambulatory children with cerebral palsy. Journal of Pediatric Orthopedics, 29, 903-909. Hamdy R.C., Montpetit, K., Raney, E.M., Aiona, M.D., Fillman, R.R., MacKenzie, W., McCarthy, J., Chafetz, R.S., Thomas, S.S., Tamayo, C.M., Littleton, A.G., Ruck-Gibis, J., Takahashi, S.N., Rinaldi, M., Finley, G.A., Platt, R.W., & Dahan-Oliel, N. (2009). Botulinum toxin type A injection in alleviating postoperative pain and improving quality of life in lower extremity limb lengthening and deformity correction: A pilot study. Journal of Pediatric Orthopedics, 29, 427-434. Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams, A., Pollock-Barziv, S.M. (in press). Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatric Transplantation. Modi, A.C., King, A.S., Monahan, S.R., Koumoutsos, J.E., Morita, D.A., & Glauser, T.A. (2009). Even a single seizure negatively impacts pediatric health-related quality of life. Epilepsia, 50, 2110–2116. Feichtl, R.E., Rosenfeld, B., Tallamy, B., Cairo, M.S., & Sands, S.A. (in press). Concordance of quality of life assessments following pediatric hematopoietic stem cell transplantation. Psycho- Oncology. Damiano, D.L., Arnold, A.S., Steele, K.M., & Delp, S.L. (in press). Can strength training predictably improve gait kinematics? A pilot study on the effects of hip and knee extensor strengthening on lower-extremity alignment in cerebral palsy. Physical Therapy. Brandsema J.F., Stephens, D., Hartley, J., & Yoon, G. (2010). Intermediate-dose idebenone and quality of life in Friedreich ataxia. Pediatric Neurology, 42, 338-342. Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J.F. (in press). Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school-aged children with disabilities. Child: Care, Health and Development. Page 11 of 37
    • www.pedsql.org Hamiwka, L.A., Cantell, M., Crawford, S., & Clark, C. G. (2009). Physical activity and health related quality of life in children following kidney transplantation. Pediatric Transplantation, 13, 861-867. Petersen, S., Hagglof, B., Stenlund, H., & Bergstrom, E. (2009). Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Acta Paediatrica, 98, 1504-1512. Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams, A., & Pollock-Barziv, S.M. (in press). Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatric Transplantation. Marlais, M., Fishman, J.R., Rawat, D.J., & Haddad, M. (in press). Development and validation of a disease-specific quality-of-life measure for children with achalasia. European Journal of Pediatric Surgery. Goldstein, S.L., Rosburg, N.M., Warady, B.A., Seikaly, M., McDonald, R. Limbers, C.A., & Varni, J.W. (2009). Pediatric end stage renal disease health-related quality of life differs by modality: A PedsQL™ ESRD analysis. Pediatric Nephrology, 24, 1553-1560. Ringold, S., Wallace, C.A., & Rivara, F.P. (2009). Health-related quality of life, physical function, fatigue, and disease activity in children with established polyarticular juvenile idiopathic arthritis. Journal of Rheumatology, 36, 1330-1336. Hinds, P.S, Gattuso, J.S., Billups, C.A., West, N.K., Wu, J., Rivera, C., Quintana, J., Villarroel, M., Daw, N.C. (2009). Aggressive treatment of non-metastatic osteosarcoma improves health- related quality of life in children and adolescents. European Journal of Cancer, 45, 2007-2014. Hainsworth, K.R., Davies, W.H., Khan, K.A., & Weisman, S.J. (2009). Co-occurring chronic pain and obesity in children and adolescents: The impact on health-related quality of life. Clinical Journal of Pain, 25, 715-721. Brunner, H.I., Higgins, G.C., Wiers, K., Lapidus, S.K., Olson, J.C., Onel, K., Punaro, M., Ying, J., Klein-Gitelman, M.S., & Seid, M. (2009). Health-related quality of life and its relationship to patient disease course in childhood-onset systemic lupus erythematosus. Journal of Rheumatology, 36, 1536-1545. Anderson, C.J., Kelly, E.H., Klaas, S.J., Russell, H., Daharsh, E., & Vogel, L.C. (2009). Anxiety and depression in children and adolescents with spinal cord injuries. Developmental Medicine and Child Neurology, 51, 826–832. Quinlan, N.P., Kolotkin, R.L., Fuemmeler, B. F., & Costanzo, P.R. (2009). Psychosocial outcomes in a weight loss camp for overweight youth. International Journal of Pediatric Obesity, 4, 134-142. Owen, R., Sikich, L., Marcus, R.N., Corey-Lisle, P., Manos, G., McQuade, R.D., Carson, W.H., & Findling, R.L. (2009). Aripiprazole in the treatment of irritability in children and adolescents with autistic disorder. Pediatrics, 124, 1533–1540. Flores, G., Bridon, C., Torres, S., Perez, R., Walter, T., Brotanek, J., Lin, H., & Tomany-Korman, S. (2009). Improving asthma outcomes in minority children: A randomized, controlled trial of parent mentors. Pediatrics, 124, 1522–1532. van Tilburg, M. A. L., Chitkara, D.K., Palsson, O.S., Turner, M., Blois-Martin, N., Ulshen, M., & Whitehead, W.E. (2009). Audio-recorded guided imagery treatment reduces functional abdominal pain in children: A pilot study. Pediatrics, 124, e890–e897. Page 12 of 37
    • www.pedsql.org Penn, A., Lowis, S.P., Stevens, M.C.G., Hunt, L.P., Shortman, R.I., McCarter, R.J., Pauldhas, D., Curran, A.L., & Sharples, P.M. (2009). Family, demographic and illness-related determinants of HRQL in children with brain tumours in the first year after diagnosis. Pediatric Blood and Cancer, 53, 1092–1099. Barrera, M., & Schulte, F. (2009). Group social skills intervention program for survivors of childhood brain tumors. Journal of Pediatric Psychology, 34, 1108–1118. Marcus, R.N., Owen, R., Kamen, L., Manos, G., McQuade, R.D., Carson, W.H., & Aman, M.G. (2009). A placebo-controlled, fixed-dose study of Aripiprazole in children and adolescents with irritability associated with autistic disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 48, 1110-1119. Cotton, S., Humenay Roberts, Y., Tsevat, J., Britto, M.T., Succop, P., McGrady, M.E., & Yi, M.S. (in press). Mind-body complementary alternative medicine use and quality of life in adolescents with inflammatory bowel disease. Inflammatory Bowel Diseases. Mathers, M., Canterford, L., Olds, T., Hesketh, K., Ridley, K., & Wake, M. (in press). Electronic media use and adolescent health and well-being: Cross-sectional community study. Academic Pediatrics. Makay, B., Ünsal, E., Arslan, N. & Varni, J.W. (2009). Health-related quality of life of school- age children with familial Mediterranean fever. Clinical and Experimental Rheumatology, 27, (2 Suppl. 53), S96-101. Janssens, L., Gorter, J.W., Ketelaar, M., Kramer, W.L.M., & Holtslag, H.R. (in press). Long- term health-related quality of life in major pediatric trauma: A pilot study. European Journal of Trauma and Emergency Surgery. Thomas-Stonell, N.L., Oddson, B., Robertson, B., Rosenbaum, P.L. (in press). Development of the FOCUS (Focus on the Outcomes of Communication Under Six), a communication outcome measure for preschool children. Developmental Medicine and Child Neurology. Xin, B., Guo, L.T., Li, X.R., Shan, Y.H., Fang, H., Liu, K.Z., & Situ, M.J. (2009). Quality of life of children with attention deficit hyperactivity disorders. Sichuan Da Xue Xue Bao (Journal of Sichuan University), 40, 1091-5. (Article in Chinese) Xu, T., Wu, Z., Rou, K., Duan, S., & Wang, H. (in press). Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China. AIDS Care. Clarke, M.C., Chase, J.W., Gibb, S., Hutson, J.M., & Southwell, B.R. (2009). Improvement of quality of life in children with slow transit constipation after treatment with transcutaneous electrical stimulation. Journal of Pediatric Surgery, 44, 1268-1272. Lack, C.W., Storch, E.A., Keeley, M.L., Geffken, G.R., Ricketts, E.D., Murphy, T.K., & Goodman, W.K. (2009). Quality of life in children and adolescents with obsessive-compulsive disorder: Base rates, parent-child agreement, and clinical correlates. Social Psychiatry and Psychiatric Epidemiology, 44, 935–942. Moore, M.H., Mah, J.K., & Trute, B. (2009). Family-centered care and health-related quality of life of patients in pediatric neurosciences. Child: Care, Health, and Development, 35, 454-461. Tsiros, M.D., Olds, T., Buckley, J.D., Grimshaw, P., Brennan, L., Walkley, J., Hills, A.P., Howe, P.R., & Coates, A.M. (in press). Health-related quality of life in obese children and adolescents. International Journal of Obesity. Zeller, M.H., Modi, A.C., Noll, J.G., Long, J.D. & Inge, T.H. (2009). Psychosocial functioning improves following adolescent bariatric surgery. Obesity, 17, 985-990. Page 13 of 37
    • www.pedsql.org Wallander, J.L., Taylor, W.C., Grunbaum, J.A., Franklin, F.A., Harrison, G.G., Kelder, S.H., & Schuster, M.A. (in press). Weight status, quality of life, and self-concept in African American, Hispanic, and White fifth-grade children. Obesity. Sheffler, L.C., Hanley, C., Bagley, A., Molitor, F., & James, M.A. (2009). Comparison of self- reports and parent proxy-reports of function and quality of life of children with below-the-elbow deficiency. Journal of Bone and Joint Surgery, 91, 2852-2859. Driscoll, K.A., Killian, M. Johnson, S.B., Silverstein, J.H., & Deeb, L.C. (2009). Predictors of study completion and withdrawal in a randomized clinical trial of a pediatric diabetes adherence intervention. Contemporary Clinical Trials, 30, 212-220. Huang, I.C., Shenkman, E.A., Leite, W., Knapp, C.A., Thompson, L.A., & Revicki, D.A. (2009). Agreement was not found in adolescents’ quality of life rated by parents and adolescents. Journal of Clinical Epidemiology, 62, 337-346. Wake, M., Canterfored, L., Patton, G., Hesketh, K., Hardy, P., Williams, J., Waters, E., & Carlin, J. (in press). Comorbidities of overweight/obesity experienced in adolescents: Longitudinal study. Archives of Disease in Childhood. Gold, J.I., Mahrer, N.E., Yee, J., & Palermo, T.M. (2009). Pain, fatigue, and health-related quality of life in children and adolescents with chronic pain. Clinical Journal of Pain, 25, 407-412. Weissberg-Benchell, J., Nansel, T.R., Holmbeck, G.N., Chen, R., Anderson, B.J., Wysocki, T., & Laffel, L. (2009). Generic and diabetes-specific parent-child behaviors and quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 34, 977-988. Wysocki, T., Nansel, T.R., Holmbeck, G.N., Chen, R., Laffel, L., Anderson, B.J., & Weissberg- Benchell, J. (2009). Collaborative involvement of primary and secondary caregivers: Associations with youths' diabetes outcomes. Journal of Pediatric Psychology, 34, 869-881. Yackobovitch-Gavan, M., Nagelberg, N., Phillip, M., Ashkenazi-Hoffnung, L., Hershkovitz, E., & Shalitin, S. (2009). The influence of diet and/or exercise and parental compliance on health- related quality of life in obese children. Nutrition Research, 29, 397-404. Limond, J., Dorris, L., & McMillan, T.M. (2009). Quality of life in children with acquired brain injury: Parent perspectives 1-5 years after injury. Brain Injury, 23, 617-622. Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J.W. (2009). The Italian version of the PedsQL™ in children with rheumatic diseases. Clinical and Experimental Rheumatology, 27, 373-380. Jung, M., Hohne, A., Varni, J.W., Klingebiel, T., & Landenberger, M. (2009). The measurement of fatigue in pediatric oncology: The first German version of the PedsQL™ Multidimensional Fatigue Scale. Kinder- und Jugendmedizin, 9, 218-224. (German). Panepinto, J.A., Pajewski, N.M., Foerster, L.M., Sabnis, S., & Hoffmann, R.G. (2009). Impact of family income and sickle cell disease on the health-related quality of life of children. Quality of Life Research, 18, 5-13. Zeller, M.H., & Modi, A.C. (in press). Development and initial validation of an obesity-specific quality of life measure for children: Sizing me up. Obesity. Ewing, J.E., King, M.T., & Smith, N.F. (2009). Validation of modified forms of the PedsQL Generic Core Scales and Cancer Module scales for adolescents and young adults (AYA) with cancer or a blood disorder. Quality of Life Research, 18, 231-244. Page 14 of 37
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