www.pedsql.org
PedsQL™ Publications
Peer Reviewed Publications
Varni, J.W., Limbers, C.A., Neighbors, K., Schulz, K., Lieu...
www.pedsql.org
Varni, J.W., & Limbers, C.A. (2009). The PedsQL™ 4.0 Generic Core Scales young adult
version: Feasibility, ...
www.pedsql.org
Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). How young can children reliably and
validly self-repo...
www.pedsql.org
Varni, J.W., Seid, M., Knight, T.S., Burwinkle, T.M., Brown, J., & Szer, I.S. (2002). The
PedsQL™ in pediat...
www.pedsql.org
Dale, J.C., Cochran, C.J., Roy, L., Jernigan, E., & Buchanan, G.R. (in press). Health-related
quality of li...
www.pedsql.org
Baggott, C.R., Dodd, M., Kennedy, C., Marina, N., Matthay, K.K., Cooper, B., & Miaskowski C.
(in press). An...
www.pedsql.org
McDonald, C.M., McDonald, D.A., Bagley, A.M., Sienko-Thomas, S., Buckon, C., Henricson,
E., Nicorici, A., &...
www.pedsql.org
Thurston, S., Paul, L., Loney, P., Wong, M., & Browne, G. (in press). The quality of life of a
multidiagnos...
www.pedsql.org
Pek, J.H., Chan, Y.H., Yeoh, A.E., Quah, T.C., Tan, P.L., & Aung. L. (2010). Health-related
quality of life...
www.pedsql.org
Bomba, M., Nacinovich, R., Oggiano, S., Cassani, M., Baushi, L., Bertulli, C., Longhi, D.,
Coppini, S., Par...
www.pedsql.org
Huang, I.C., Shenkman, E.A., Madden, V.L., Vadaparampil, S., Quinn, G., & Knapp, C.A.
(2010). Measuring qua...
www.pedsql.org
Brandsema J.F., Stephens, D., Hartley, J., & Yoon, G. (2010). Intermediate-dose idebenone and
quality of li...
www.pedsql.org
Flores, G., Bridon, C., Torres, S., Perez, R., Walter, T., Brotanek, J., Lin, H., & Tomany-Korman,
S. (2009...
www.pedsql.org
Moore, M.H., Mah, J.K., & Trute, B. (2009). Family-centered care and health-related quality of
life of pati...
www.pedsql.org
Panepinto, J.A., Pajewski, N.M., Foerster, L.M., Sabnis, S., & Hoffmann, R.G. (2009). Impact of
family inco...
www.pedsql.org
Sherifali, D., Ciliska, D., & O’Mara, L. (in press). Parenting children with diabetes: Exploring
parenting ...
www.pedsql.org
Crawford, J.M., Warne, G., Grover, S., Southwell, B.R., & Hutson, J.M. (2009). Results from a
pediatric sur...
www.pedsql.org
Wong, H.B., Machin, D., Tan, S.B., Wong, T.Y., & Saw, S.M. (in press). Visual impairment and
its impact on ...
www.pedsql.org
Panepinto, J.A., Pajewski, N.M., Foerster, L.M., & Hoffmann, R.G. (2008). The performance of
the PedsQL™ Ge...
www.pedsql.org
Felder-Puig, R., Baumgartner, M., Topf, R., Gadner, H., & Formann, A.K. (2008). Health-related
quality of l...
www.pedsql.org
Klatchoian, D.A., Len, C.A., Terreri, M.T., Silva, M., Itamoto, C., Ciconelli, R.M., Varni, J.W.,
& Hilário...
www.pedsql.org
McClellan, C.B., Schatz, J., Sanchez, C., & Roberts, C.W. (2008). Validity of the Pediatric
Quality of Life...
www.pedsql.org
Josie, K.L., Greenley, R.N., & Drotar, D. (2007). Health-related quality of life measures for
children with...
www.pedsql.org
Packman, W., Henderson, S.L., Mehta, I., Ronen, R. Danner, D., Chesterman, B., & Packman, S.
(2007). Psycho...
www.pedsql.org
Talarska, D., & Zgorzalewicz-Stachowiak, M. (2007). The influence of selected factors on the
quality of lif...
www.pedsql.org
deBeer, M., Hofsteenge, G.H., Koot, H., Hirasing, R., Delemarre-van de Waal, H., & Gemke, R.
(2007). Health...
www.pedsql.org
Sherman, S.A., Eisen, S., Burwinkle, T.M., & Varni, J.W. (2006). The PedsQL™ Present
Functioning Visual Ana...
www.pedsql.org
Youssef, N.N., Murphy, T.G., Langseder, A.L., & Rosh, J.R. (2006). Quality of life for children
with functi...
PedsQL ? Publications
PedsQL ? Publications
PedsQL ? Publications
PedsQL ? Publications
PedsQL ? Publications
PedsQL ? Publications
PedsQL ? Publications
PedsQL ? Publications
PedsQL ? Publications
Upcoming SlideShare
Loading in …5
×

PedsQL ? Publications

2,520 views

Published on

Published in: Health & Medicine
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
2,520
On SlideShare
0
From Embeds
0
Number of Embeds
1
Actions
Shares
0
Downloads
10
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

PedsQL ? Publications

  1. 1. www.pedsql.org PedsQL™ Publications Peer Reviewed Publications Varni, J.W., Limbers, C.A., Neighbors, K., Schulz, K., Lieu, J.E.C., Heffer, R.W., Tuzinkiewicz, K., Mangione-Smith, R., Zimmerman, J.J., & Alonso, E.M. (in press). The PedsQL™ Infant Scales: Feasibility, internal consistency reliability and validity in healthy and ill infants. Quality of Life Research. Limbers, C.A., Ripperger-Suhler, J., Boutton, K., Ransom, D., & Varni, J.W. (in press). A comparative analysis of health-related quality of life and family impact between children with ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL™. Journal of Attention Disorders. Weissberg-Benchell, J., Zielinski, T.E., Rodgers, S., Greenley, R.N., Askenazi, D., Goldstein, S.L., Fredericks, E.M., McDiarmid, S., Williams, L., Limbers, C.A., Tuzinkiewicz, K., Lerret, S., Alonso, E.M., & Varni, J.W. (2010). Pediatric health-related quality of life: Feasibility, reliability and validity of the PedsQL™ Transplant Module. American Journal of Transplantation, 10, 1677- 1685. Davis, S.E., Hynan, L.S., Limbers, C.A., Andersen, C.M., Greene, M.C., Varni, J.W., & Iannaccone, S.T. (2010). The PedsQL™ in pediatric patients with Duchenne Muscular Dystrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Neuromuscular Module and Generic Core Scales. Journal of Clinical Neuromuscular Disease, 11, 97-109. Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2010). The PedsQL™ Multidimensional Fatigue Scale in pediatric obesity: Feasibility, reliability, and validity. International Journal of Pediatric Obesity, 5, 34-42. Seid, M., Limbers, C.A., Driscoll, K.A., Opipari-Arrigan, L.A., Gelhard, L.R, & Varni, J.W. (2010). Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ (PedsQL™) Generic Core Scales and Asthma Symptoms Scale in vulnerable children with asthma. Journal of Asthma, 47, 170-177. Newman, D.A., Limbers, C.A., & Varni, J.W. (2010). Factorial invariance of child self-report across English and Spanish language groups in a Hispanic population utilizing the PedsQL™ 4.0 Generic Core Scales. European Journal of Psychological Assessment, 26, 194-202. Iannaccone, S.T., Hynan, L.S., Morton, A., Buchanan, R., Limbers, C.A., & Varni, J.W. (2009). The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Neuromuscular Module. Neuromuscular Disorders, 19, 805-812. Limbers, C.A., Heffer, R.W., & Varni, J.W. (2009). Health-related quality of life and cognitive functioning from the perspective of parents of school-aged children with Asperger's Syndrome utilizing the PedsQL™. Journal of Autism and Developmental Disorders, 39, 1529-1541. Limbers, C.A., Newman, D.A., & Varni, J.W. (2009). Factorial invariance of child self-report across race/ethnicity groups: A multigroup confirmatory factor analysis approach utilizing the PedsQL™ 4.0 Generic Core Scales. Annals of Epidemiology, 19, 575-581. Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2009). The PedsQL™ Multidimensional Fatigue Scale in Type 1 diabetes: Feasibility, reliability, and validity. Pediatric Diabetes, 10, 321-328. Page 1 of 37
  2. 2. www.pedsql.org Varni, J.W., & Limbers, C.A. (2009). The PedsQL™ 4.0 Generic Core Scales young adult version: Feasibility, reliability and validity in a university student population. Journal of Health Psychology, 14, 611-622. Marcus, S.B., Strople, J.A., Neighbors, K., Weissberg-Benchell, J., Nelson, S.P., Limbers, C.A., Varni, J.W., & Alonso, E.M. (2009). Fatigue and health-related quality of life in pediatric inflammatory bowel disease. Clinical Gastroenterology and Hepatology, 7, 554-561. Steele, M.M., Steele, R.G., & Varni, J.W. (2009). Reliability and validity of the PedsQL™ Oral Health Scale: Measuring the relationship between child oral health and health-related quality of life. Children’s Health Care, 38, 228-224. Varni, J.W., & Limbers, C.A. (2009). The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56, 843-863. Varni, J.W., Limbers, C.A., & Newman, D.A. (2009). Using factor analysis to confirm the validity of children's self-reported health-related quality of life across different modes of administration. Clinical Trials: Journal of the Society for Clinical Trials, 6, 185-195. Varni, J.W., Limbers, C.A., Newman, D.A., & Seid, M. (2008). Longitudinal factorial invariance of the PedsQL™ 4.0 Generic Core Scales child self-report version: One year prospective evidence from the California State Children's Health Insurance Program (SCHIP). Quality of Life Research, 17, 1153-1162. Varni, J.W., Limbers, C.A., Burwinkle, T.M., Bryant, W.P., & Wilson, D.P. (2008). The ePedsQL™ in Type 1 and Type 2 diabetes: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Internet administration. Diabetes Care, 31, 672-677. Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report across age subgroups: A confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL™ 4.0 Generic Core Scales. Value in Health, 11, 659–668. Varni, J.W., & Limbers, C.A. (2008). The PedsQL™ Multidimensional Fatigue Scale in young adults: Feasibility, reliability and validity in a university student population. Quality of Life Research, 17, 105-114. Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report across healthy and chronic health condition groups: A confirmatory factor analysis utilizing the PedsQL™ 4.0 Generic Core Scales. Journal of Pediatric Psychology, 33, 630-639. Goldstein, S.L., Graham, N., Warady, B.A., Seikaly, M., McDonald, R., Burwinkle, T.M., Limbers, C.A., & Varni, J.W. (2008). Measuring health-related quality of life in children with ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of Life Inventory™ (PedsQL™). American Journal of Kidney Diseases, 51, 285-297. Uzark, K., Jones, K., Slusher, J., Limbers, C.A., Burwinkle, T.M., & Varni, J.W. (2008). Quality of life in children with heart disease as perceived by children and parents. Pediatrics, 121, e1060- e1067. Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report across socioeconomic status groups: A multigroup confirmatory factor analysis utilizing the PedsQL™ 4.0 Generic Core Scales. Journal of Behavioral Medicine, 31, 401-411. Varni, J.W., Limbers, C.A., & Newman, D.A. (2008). Factorial invariance of the PedsQL™ 4.0 Generic Core Scales child self-report across gender: A multigroup confirmatory factor analysis with 11,356 children ages 5 to 18. Applied Research in Quality of Life, 3, 137-148. Page 2 of 37
  3. 3. www.pedsql.org Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8,591 children across age subgroups with the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5:1, 1-13. Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Parent proxy-report of their children’s health-related quality of life: An analysis of 13,878 parents’ reliability and validity across age subgroups using the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5:2, 1-10. Palmer, S.N., Meeske, K.A., Katz, E.R., Burwinke, T.M., & Varni, J.W. (2007). The PedsQL™ Brain Tumor Module: Initial reliability and validity. Pediatric Blood and Cancer, 49, 287-293. Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5:43, 1-15. Varni, J.W., Burwinkle, T.M., & Seid, M. (2006). The PedsQL™ 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research, 15, 203-215. Varni, J.W., Burwinkle, T.M., Berrin, S.J., Sherman, S.A., Artavia, K., Malcarne, V.L., & Chambers, H.G. (2006). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module. Developmental Medicine and Child Neurology, 48, 442-449. Chan, K.S., Mangione-Smith, R., Burwinkle, T.M., Rosen, M., & Varni, J.W. (2005). The PedsQL™: Reliability and validity of the Short-Form Generic Core Scales and Asthma Module. Medical Care, 43, 256-265. Varni, J.W., Burwinkle, T. M., & Seid, M. (2005). The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ Measurement Model in 25,000 children. Expert Review of Pharmacoeconomics and Outcomes Research, 5, 705-719. Varni, J.W., Burwinkle, T.M., & Szer, I.S. (2004). The PedsQL™ Multidimensional Fatigue Scale in pediatric rheumatology: Reliability and validity. Journal of Rheumatology, 31, 2494- 2500. Varni, J.W., Burwinkle, T.M., Rapoff, M.A., Kamps, J.L., & Olson, N. (2004). The PedsQL™ in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Asthma Module. Journal of Behavioral Medicine, 27, 297-318. Varni, J.W., Burwinkle, T.M., Seid, M., & Skarr, D. (2003). The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329- 341. Varni, J.W., Burwinkle, T.M., Jacobs, J.R., Gottschalk, M., Kaufman, F., & Jones, K.L. (2003). The PedsQL™ in Type 1 and Type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Type 1 Diabetes Module. Diabetes Care, 26, 631-637. Uzark, K., Jones, K., Burwinkle, T.M., & Varni, J.W. (2003). The Pediatric Quality of Life Inventory™ in children with heart disease. Progress in Pediatric Cardiology, 18, 141-148. Varni, J.W., Burwinkle, T.M., Katz, E.R., Meeske, K., & Dickinson, P. (2002). The PedsQL™ in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94, 2090-2106. Page 3 of 37
  4. 4. www.pedsql.org Varni, J.W., Seid, M., Knight, T.S., Burwinkle, T.M., Brown, J., & Szer, I.S. (2002). The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46, 714-725. Varni, J.W., Seid, M., Knight, T.S., Uzark, K., & Szer, I.S. (2002). The PedsQL™ 4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making. Journal of Behavioral Medicine, 25, 175-193. Varni, J.W., Seid, M., & Kurtin, P.S. (2001). PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39, 800-812. Varni, J.W., Seid, M., & Rode, C.A. (1999). The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory™. Medical Care, 37, 126-139. Additional Publications Caocci, G., Efficace, F., Ciotti, F., Roncarolo, M.G., Vacca, A., Piras, E., Littera, R., Dawood Markous, R.S., Collins, G.S., Ciceri, F., Mandelli, F., Marktel, S., & La Nasa, G. (in press). Prospective assessment of health related quality of life in pediatric beta-thalassemia patients following hematopoietic stem cell transplantation.Biology of Blood and Marrow Transplantation. Stephen, M.D., Varni, J.W., Limbers, C.A., Yafi, M., Heptulla, R.A., Renukuntla, V.S., Bell, C.S., & Brosnan, P.G. (in press). Health-related quality of life and cognitive functioning in pediatric short stature: Comparison of growth hormone naive, growth hormone treated, and healthy samples. European Journal of Pediatrics. Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (in press). The assessment of fatigue in pediatric patients with short stature utilizing the PedsQL™ Multidimensional Fatigue Scale. The Endocrinologist. Marlais, M., Fishman, J.R., Köglmeier, J., Fell, J.M., & Rawat, D.J. (in press). Reduced quality of life in children with Gastro-oesophageal reflux disease. Acta Paediatrica. Amiri, P., Ardakani, E.M., Jalali-Farahani, S., Hosseinpanah, F., Varni, J.W., Ghofranipour, F., Montazeri, A., & Azizi, F. (in press). Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents. Quality of Life Research. Jafari, P., Ghanizadeh, A., Akhondzadeh, S., & Mohammadi, M.R. (in press). Health-related quality of life of Iranian children with attention deficit/hyperactivity disorder. Quality of Life Research. Wade, T.J., & Guo, J.J. (in press). Linking improvements in health-related quality of life to reductions in Medicaid costs among students who use school-based health centers. American Journal of Public Health. Du, R.Y., McGrath, C., Yiu, C.K., & King N.M. (in press). Health and oral health-related quality of life among preschool children with cerebral palsy. Quality of Life Research. Sung, L., Yanofsky, R., Klaassen, R.J., Dix, D., Pritchard, S., Winick, N., Alexander, S., & Klassen, A. (in press). Quality of life during active treatment for pediatric acute lymphoblastic leukemia. International Journal of Cancer. Page 4 of 37
  5. 5. www.pedsql.org Dale, J.C., Cochran, C.J., Roy, L., Jernigan, E., & Buchanan, G.R. (in press). Health-related quality of life in children and adolescents with sickle cell disease. Journal of Pediatric Health Care. Jia, Z., Shi, L., Cao, Y., Delancey, J., & Tian, W. (in press). Health-related quality of life of "left- behind children": A cross-sectional survey in rural China. Quality of Life Research. Kunz, J.H., Hommel, K.A., & Greenley, R.N. (in press). Health-related quality of life of youth with inflammatory bowel disease: A comparison with published data using the PedsQL 4.0 Generic Core Scales. Inflammatory Bowel Diseases. Banerjee, T., Pensi, T., & Banerjee, D. (in press). HRQoL in HIV-infected children using PedsQL 4.0 and comparison with uninfected children. Quality of Life Research. Kuhlthau, K., Orlich, F., Hall, T.A., Sikora, D., Kovacs, E.A., Delahaye, J., & Clemons, T.E. (2010). Health-related quality of life in children with Autism Spectrum Disorders: Results from the Autism Treatment Network. Journal of Autism and Developmental Disorders, 40, 721–729. Hao, Y., Tian, Q., Lu, Y., Chai, Y., & Rao, S. (in press). Psychometric properties of the Chinese version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Quality of Life Research. Dunaway, S., Montes, J., Montgomery, M., Battista, V., Koo, B., Marra, J., De Vivo, D.C., Hynan, L.S., Iannaccone, S.T., & Kaufmann P. (2010). Reliability of telephone administration of the PedsQL™ Generic Quality of Life Inventory™ and Neuromuscular Module™ in spinal muscular atrophy (SMA). Neuromuscular Disorders, 20, 162-165. Klaassen, R.J., Krahn, M., Gaboury, I., Hughes, J., Anderson, R., Grundy, P., Ali, S.K., Jardine, L., Abla, O., Silva, M., Barnard, D., & Cappelli M. (2010). Evaluating the ability to detect change of health-related quality of life in children with Hodgkin disease. Cancer, 116, 1608-1614. Klaassen, R.J., Barr, R.D., Hughes, J., Rogers, P., Anderson, R., Grundy, P., Ali, S.K., Yanofsky, R., Abla, O., Silva, M., Carret, A.S., & Cappelli, M. (2010). Nurses provide valuable proxy assessment of the health-related quality of life of children with Hodgkin disease. Cancer, 116, 1602-1607. Alonso, E.M., Limbers, C.A., Neighbors, K., Martz, K., Bucuvalas, J.C., Webb, T., & Varni, J.W. (2010). Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipients. Journal of Pediatrics, 156, 270-276. Ingerski, L.M., Modi, A.C., Hood, K.K., Pai, A.L., Zeller, M., Piazza-Waggoner, C., Driscoll, K.A., Rothenberg, M.E., Franciosi, J.F., & Hommel, K.A. (2010). Health-related quality of life across pediatric chronic conditions. Journal of Pediatrics, 156, 639-644. Mowry, E.M, Julian, L.J, Im-Wang, S., Chabas, D., Galvin, A.J., Strober, J.B., & Waubant, E. (2010). Health-related quality of life is reduced in pediatric multiple sclerosis. Pediatric Neurology, 43, 97-102. Dampier, C., Lieff, S., Lebeau, P., Rhee, S., McMurray, M., Rogers, Z., Smith-Whitley, K., & Wang, W. (2010). Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium. Pediatric Blood & Cancer, 55, 485-494. Langley, R.G., Paller, A.S., Hebert, A.A., Creamer, K., Weng, H.H., Jahreis, A., Globe, D., Patel, V., & Orlow, S.J. (in press). Patient-reported outcomes in pediatric patients with psoriasis undergoing etanercept treatment: 12-week results from a phase III randomized controlled trial. Journal of the American Academy of Dermatology. Page 5 of 37
  6. 6. www.pedsql.org Baggott, C.R., Dodd, M., Kennedy, C., Marina, N., Matthay, K.K., Cooper, B., & Miaskowski C. (in press). An evaluation of the factors that affect the health-related quality of life of children following myelosuppressive chemotherapy. Supportive Care in Cancer. Pogorzala, M., Styczynski, J., Kurylak, A., Debski, R., Wojtkiewicz, M., & Wysocki, M. (2010). Health-related quality of life among pediatric survivors of primary brain tumors and acute leukemia. Quality of Life Research, 19, 191–198. Roumelioti, M.E., Wentz, A., Schneider, M.F., Gerson, A.C., Hooper, S., Benfield, M., Warady, B.A., Furth, S.L., & Unruh, M.L. (2010). Sleep and fatigue symptoms in children and adolescents with CKD: A cross-sectional analysis from the Chronic Kidney Disease in Children (CKiD) Study. American Journal of Kidney Diseases, 55, 269-280. Gerson, A.C., Wentz, A., Abraham, A.G., Mendley, S.R., Hooper, S.R., Butler, R.W., Gipson, D.S., Lande, M.B., Shinnar, S., Moxey-Mims, M.M., Warady, B.A., & Furth S.L. (2010). Health- related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125, e349-57. Howard, K., Lo, E., Sheppard, S., Stargatt, R., & Davidson, A. (2010). Behavior and quality of life measures after anesthesia for tonsillectomy or ear tube insertion in children. Paediatric Anaesthesia, 20, 913-923. Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N., Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (2010). Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module. Health and Quality of Life Outcomes, 8:38, 1-14. de Wit, M., Delemarre-van de Waal, H.A., Bokma, J.A., Haasnoot, K., Houdijk, M.C., Gemke, R.J., & Snoek, F.J. (2010). Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: Benefits do not sustain in routine practice. Pediatric Diabetes, 11, 175-181. Lloyd, A., Swinburn, P., Boye, K.S., Curtis, B., Sarpong, E., Goldsmith, K., Bode, B., & Aronoff, S. (2010). A valuation of infusion therapy to preserve islet function in type 1 diabetes. Value in Health, 13, 636-642. Wen, G., McKean-Cowdin, R., Varma, R., Tarczy-Hornoch, K., Cotter, S.A., Borchert, M., & Azen. S. (in press). General health-related quality of life in preschool children with strabismus or amblyopia. Ophthalmology. McManus, B.M., Robert, S.A., Albanese, A., Sadek-Badawi, M., & Palta, M. (in press). Relationship between neighborhood disadvantage and social function of Wisconsin 2- and 3-year- olds born at very low birth weight. Archives of Pediatrics & Adolescent Medicine. Bray P., Bundy, A.C., Ryan, M.M., North, K.M., & Everett, A. (in press). Health-related quality of life in boys with Duchenne Muscular Dystrophy: Agreement between parents and their sons. Journal of Child Neurology. Schurman, J.V., Wu, Y.P., Grayson, P., & Friesen, C.A. (2010). Pilot study to assess the efficacy of biofeedback-assisted relaxation training as an adjunct treatment for pediatric functional dyspepsia associated with duodenal eosinophilia. Journal of Pediatric Psychology, 35, 837–847. Punpanich, W., Boon-Yasidhi, V., Chokephaibulkit, K., Prasitsuebsai, W., Chantbuddhiwet, U., Leowsrisook, P., Hays, R.D., & Detels, R. (in press). Health-related quality of life of Thai children with HIV infection: A comparison of the Thai Quality of Life in Children (ThQLC) with the Pediatric Quality of Life Inventory™ version 4.0 (PedsQL™ 4.0) Generic Core Scales. Quality of Life Research. Page 6 of 37
  7. 7. www.pedsql.org McDonald, C.M., McDonald, D.A., Bagley, A.M., Sienko-Thomas, S., Buckon, C., Henricson, E., Nicorici, A., & Sussman, M.D. (in press). Relationship between clinical outcome measures and parent proxy reports of health-related quality of life in ambulatory children with Duchenne Muscular Dystrophy. Journal of Child Neurology. Seid, M., Varni, J.W., Gidwani, P., Gelhard, L.R, & Slymen, D.J. (in press). Problem-solving skills training for vulnerable families of children with persistent asthma: Report of a randomized trial on health-related quality of life outcomes. Journal of Pediatric Psychology. Mano, K.E., Khan, K.A., Ladwig, R.J., & Weisman, S.J. (in press). The impact of pediatric chronic pain on parents' health-related quality of life and family functioning: Reliability and validity of the PedsQL 4.0 Family Impact Module. Journal of Pediatric Psychology. Xu, C., Jackson, M., Scuffham, P.A., Wootton, R., Simpson, P., Whitty, J., Wolfe, R., & Wainwright, C.E. (in press). A randomized controlled trial of an interactive voice response telephone system and specialist nurse support for childhood asthma management. Journal of Asthma. Kalyva, E., Malakonaki, E., Eiser, C., & Mamoulakis, D. (in press). Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): Self and parental perceptions. Pediatric Diabetes. Yang, X., Xiao, N., & Yan, J. (in press). The PedsQL™ in pediatric cerebral palsy: reliability and validity of the Chinese version Pediatric Quality of Life Inventory 4.0 Generic Core Scales and 3.0 Cerebral Palsy Module. Quality of Life Research. Moon, R.J., Sutton, T., Wilson, P.M., Kirkham, F.J., & Davies, J.H. (in press). Pituitary function at long-term follow up of childhood traumatic brain injury. Journal of Neurotrauma. Gorzkowski, J.A., Kelly, E.H., Klaas, S.J., & Vogel, L.C. (in press). Girls with spinal cord injury: Social and job-related participation and psychosocial outcomes. Rehabilitation Psychology. Boyle, S.E., Jones, G.L., & Walters, S.J. (in press). Physical activity, quality of life, weight status and diet in adolescents. Quality of Life Research. Clarke, S.A., Skinner, R., Guest, J., Darbyshire, P., Cooper, J., Shah, F., Roberts, I., & Eiser, C. (in press). Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK. Child: Care, Health and Development. Kobayashi, K., & Kamibeppu, K. (2010). Measuring quality of life in Japanese children: Development of the Japanese version of the PedsQL™. Pediatrics International, 52, 80-88. Natesan, P., Limbers, C.A., & Varni, J.W. (2010). Bayesian estimation of graded response multilevel models using Gibbs sampling: Formulation and illustration. Educational and Psychological Measurement, 70, 420–439. Lima, L., Guerra, M.P., & de Lemos, M.S. (2010). The psychological adjustment of children with asthma: Study of associated variables. Spanish Journal of Psychology, 13, 353-363. Irwin, D.E., Stucky, B.D., Thissen, D., DeWitt, E.M., Lai, J.S., Yeatts, K., Varni, J.W., & DeWalt, D.A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large- scale survey. Quality of Life Research, 19, 585-594. Kistler, K.D., Molleston, J., Unalp, A., Abrams, S.H., Behling, C., & Schwimmer, J.B. (in press). Symptoms and quality of life in obese children and adolescents with nonalcoholic fatty liver disease. Alimentary Pharmacology & Therapeutics. Page 7 of 37
  8. 8. www.pedsql.org Thurston, S., Paul, L., Loney, P., Wong, M., & Browne, G. (in press). The quality of life of a multidiagnosis group of special needs children: Associations and costs. International Journal of Pediatrics. Berkes, A., Pataki, I., Kiss, M., Kemény, C., Kardos, L., Varni, J.W., & Mogyorósy, G. (2010). Measuring health-related quality of life in Hungarian children with heart disease: Psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales and the Cardiac Module. Health and Quality of Life Outcomes, 8:14, 1-12. Malone, L.A., & Vogtle, L.K. (in press). Pain and fatigue consistency in adults with cerebral palsy. Disability and Rehabilitation. Kernick, D., Reinhold, D., Campbell, J.L. (in press). Impact of headache on young people in a school population. British Journal of General Practice. O'Neil, M.E., Shewokis, P.A., Falkenstein, K.K., Delago, C.W., Smith, S.A., Vaughn, N., & Costigan, T.E. (in press). Psychosocial factors and health perceptions in parents and children who are overweight or obese. Obesity. Moorthy, L.N., Peterson, M.G., Hassett, A., Baratelli, M., & Lehman, T.J. (in press). Impact of lupus on school attendance and performance. Lupus. Svavarsdottir, E.K., Burkhart, P.V., Rayens, M.K., Orlygsdottir, B., & Oakley, M.G. (in press). Icelandic and United States families of adolescents with asthma: predictors of health-related quality of life from the parents' perspective. Journal of Clinical Nursing. Ostbye, T., Malhotra, R., Wong, H.B., Tan. S.B., & Saw, S.M. (in press). The effect of body mass on health-related quality of life among Singaporean adolescents: Results from the SCORM study. Quality of Life Research. Das, S., Mukherjee, A., Lodha, R., & Vatsa, M. (in press). Quality of life and psychosocial functioning of HIV infected children. Indian Journal of Pediatrics. Cummings, A.J., Knibb, R.C., Erlewyn-Lajeunesse, M., King, R.M., Roberts, G., & Lucas, J.S. (in press). Management of nut allergy influences quality of life and anxiety in children and their mothers. Pediatric Allergy and Immunology. Noyes, J.P., Williams, A., Allen, D., Brocklehurst, P., Carter, C., Gregory, J.W., Jackson, C., Lewis, M., Lowes, L., Russell, I.T., Rycroft-Malone, J., Sharp, J., Samuels, M., Tudor Edwards, R., & Whitaker, R. (in press). Evidence into practice: evaluating a child-centred intervention for diabetes medicine management The EPIC Project. BMC Pediatrics. Xu, T., Wu, Z., Yan, Z., Rou, K., & Duan, S. (2010). Measuring health-related quality of life in children living in HIV/AIDS-affected families in rural areas in Yunnan, China: Preliminary reliability and validity of the Chinese version of PedsQL 4.0 Generic Core Scales. Journal of Acquired Immune Deficiency Syndromes, 53, Suppl 1:S111-115. Holterman, A.X., Browne, A., Tussing, L., Gomez, S., Phipps, A., Browne, N., Stahl, C., & Holterman, M.J. (2010). A prospective trial for laparoscopic adjustable gastric banding in morbidly obese adolescents: An interim report of weight loss, metabolic and quality of life outcomes. Journal of Pediatric Surgery, 45, 74-79. Soyupek, F., Aktepe, E., Savas, S., & Askin, A. (in press). Do the self-concept and quality of life decrease in CP patients? Focusing on the predictors of self-concept and quality of life. Disability and Rehabilitation. Page 8 of 37
  9. 9. www.pedsql.org Pek, J.H., Chan, Y.H., Yeoh, A.E., Quah, T.C., Tan, P.L., & Aung. L. (2010). Health-related quality of life in children with cancer undergoing treatment: A first look at the Singapore experience. Annals of the Academy of Medicine, Singapore, 39, 43-6. Laaksonen, C.B., Aromaa, M.E., Asanti, R.E., Heinonen, O.J., Koivusilta, L.K., Koski, P.J., Suominen, S.B., Vahlberg, T.J., & Salanterä, S. (in press). The change of child self-assessed and parent proxy-assessed Health Related Quality of Life (HRQL) in early adolescence (age 10-12). Scandinavian Journal of Public Health. Paulsen, E.K., Friedman, L.S., Myers, L.M., & Lynch, D.R. (2010). Health-related quality of life in children with Friedreich ataxia. Pediatric Neurology, 42, 335-337. McCarty, R.L., Weber, W.J., Loots, B., Breuner, C.C., Vander Stoep, A., Manhart, L., & Pihoker, C. (in press). Complementary and alternative medicine use and quality of life in pediatric diabetes. Journal of Alternative and Complementary Medicine. Norris, J.M., Moules, N., Pelletier, G., & Culos-Reed, S.N. (in press). Families of young pediatric cancer survivors: A cross-sectional survey examining physical activity behavior and health- related quality of life. Journal of Pediatric Oncology Nursing. Areemit, R.S., Katzman, D.K., Pinhas, L., & Kaufman, M. (in press). The experience of siblings of adolescents with eating disorders. Journal of Adolescent Health. Berkes, A., Varni, J.W., Pataki, I., Kardos, L., Kemény, C., & Mogyorósy, G. (2010). Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory. European Journal of Pediatrics, 169, 333–347. Tahirović, E., Begić, H., Nurkić, M., Tahirović, H., & Varni, J.W. (2010). Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina? European Journal of Pediatrics, 169, 349–353. Looman W.S., Thurmes, A.K., & O'Conner-Von, S.K. (2010) Quality of life among children with velocardiofacial syndrome. Cleft Palate-Craniofacial Journal, 47, 273-283. Knapp, C.A., Madden, V.L., Curtis, C.M., Sloyer, P., & Shenkman, E.A. (2010). Family support in pediatric palliative care: How are families impacted by their children’s illnesses? Journal of Palliative Medicine, 13, 1-6. Thavorncharoensap, M., Torcharus, K., Nuchprayoon, I., Riewpaiboon, A., Indaratna, K., & Ubol, B.O. (2010). Factors affecting health-related quality of life in Thai children with thalassemia. BMC Blood Disorders, 10:1, 1-10. Xu, T., Wu, Z., Rou, K., Duan, S., & Wang, H. (2010). Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China. AIDS Care, 22, 390-396. Rivas, M.B.V., & Gómez-Maqueo, M.E.L (2010). Psychometric properties of the Paediatric Life Quality Inventory, versión 4.0, in Mexican adolescents. Psicología y Salud, 20, 5-12. Postans, N., Wright, P., Bromwich, W., Wilkinson, I., Farmer, S.E., & Swain, I. (2010). The combined effect of dynamic splinting and neuromuscular electrical stimulation in reducing wrist and elbow contractures in six children with cerebral palsy. Prosthetics and Orthotics International, 34, 10-19. Simons, L., Logan, D., Chastain, L., & Stein, M. (2010). The relation of social functioning to school impairment among adolescents with chronic pain. Clinical Journal of Pain, 26, 16-22. Erickson, S.J., Montague, E.Q., & Gerstle, M.A. (2010). Health-related quality of life in children with moderate-to-severe traumatic brain injury. Developmental Neurorehabilitation, 13,175-81. Page 9 of 37
  10. 10. www.pedsql.org Bomba, M., Nacinovich, R., Oggiano, S., Cassani, M., Baushi, L., Bertulli, C., Longhi, D., Coppini, S., Parrinello, G., Plebani, A., & Badolato R. (2010). Poor health-related quality of life and abnormal psychosocial adjustment in Italian children with perinatal HIV infection receiving highly active antiretroviral treatment. AIDS Care, 22, 858-865. Boles, R.E., Scharf, C.S., & Stark, L.J. (2010). Developing a treatment program for obesity in preschool-age children: Preliminary data. Children’s Health Care, 39, 34–58. Lyon, M.E., Garvie, P.A., Briggs, L., He, J., Malow, R., D’Angelo, L.J., & McCarter, R. (2010). Is it safe? Talking to teens with HIV/AIDS about death and dying: A 3-month evaluation of Family Centered Advance Care (FACE) planning – Anxiety, depression, quality of life HIV/AIDS - Research and Palliative Care, 2, 27–37. Modi, A.C., Lim, C.S., Driscoll, K.A., Piazza-Waggoner, C., Quittner, A.L., & Wooldridge, J. (2010). Changes in pediatric health-related quality of life in cystic fibrosis after IV antibiotic treatment for pulmonary exacerbations. Journal of Clinical Psychology in Medical Settings, 17, 49–55. Chandra, A., Lara-Cinisomo, S., Jaycox, L.H., Tanielian, T., Burns, R.M., Ruder, T., & Han, B. (2010). Children on the homefront: The experience of children from military families. Pediatrics, 125, 16-25. Klatchoian, D.A., Len, C.A., Terreri, M.T., & Hilário, M.O. (2010). Quality of life among children from São Paulo, Brazil: The impact of demographic, family and socioeconomic variables. Cadernos de Saúde Pública, 26, 631-636. Poeta, L.S., Duarte, Mde. F., & Giuliano, Ide. C. (2010). Health-related quality of life of obese children. Revista da Associação Médica Brasileira, 56, 168-172. D.S., Ollis, S., Thomas, N.E., & Baker. J.S. (2010). The influence of a high intensity physical activity intervention on a selection of health related outcomes: an ecological approach. BMC Public Health, 10:8. Lee, G.H., McGrath, C., Yiu, C.K., & King, N.M. (in press). A comparison of a generic and oral health-specific measure in assessing the impact of early childhood caries on quality of life. Community Dentistry and Oral Epidemiology. Dinomais, M., Gambart, G., Bruneau, A., Bontoux, L., Deries, X., Tessiot, C., & Richard, I. (2010). Social functioning and self-esteem in young people with disabilities participating in adapted competitive sport. Neuropediatrics, 41, 49-54. Becker, E., & Dusing, S. (2010). Participation is possible: A case report of integration into a community performing arts program. Physiotherapy Theory and Practice, 26, 275-280. Hatt, S.R., Leske, D.A., & Holmes, J.M. (in press). Comparison of quality-of-life instruments in childhood intermittent exotropia. Journal of the American Association for Pediatric Ophthalmology and Strabismus. Tahirović, E., Begić, H., Sutović, A., & Tahirović H. (2010). Impact of the family socioeconomic status on health related quality of life in children operated on for congenital heart defects. (Article in Croatian). Acta Medica Croatica, 64, 9-16. Krishna, Y.R., Yachha, S.K., Srivastava, A., Negi, D., Lal, R., & Poddar, U. (2010). Quality of life in children managed for extrahepatic portal venous obstruction. Journal of Pediatric Gastroenterology and Nutrition, 50, 531-536. Page 10 of 37
  11. 11. www.pedsql.org Huang, I.C., Shenkman, E.A., Madden, V.L., Vadaparampil, S., Quinn, G., & Knapp, C.A. (2010). Measuring quality of life in pediatric palliative care: Challenges and potential solutions. Palliative Medicine, 24, 175–182. Huang, I.C., Thompson, L.A., Chi, Y.Y., Knapp, C.A., Revicki, D.A., Seid, M., & Shenkman, E.A. (2009). The linkage between pediatric quality of life and health conditions: Establishing clinically meaningful cutoff scores for the PedsQL™. Value in Health, 12, 773-781. Macallister, W.S., Christodoulou, C., Troxell, R., Milazzo, M., Block, P., Preston, T.E., Bender, H.A., Belman, A., & Krupp, L.B. (2009). Fatigue and quality of life in pediatric multiple sclerosis. Multiple Sclerosis, 15, 1502-1508. Izquierdo, R., Morin, P.C., Bratt, K., Moreau, Z., Meyer, S., Ploutz-Snyder, R., Wade, M., & Weinstock, R.S. (2009). School-centered telemedicine for children with Type 1 diabetes mellitus. Journal of Pediatrics, 155, 374-379. Dodson, J.L., Cohn, S.E., Cox, C., Hmiel, P.S., Wood, E., Mattoo, T.K., Warady, B.A., & Furth, S.L. (2009). Urinary Incontinence in the CKiD cohort and health related quality of life. Journal of Urology, 182 (4 Suppl), 2007-2014. Petersen, S., Hägglöf, B.L., & Bergström, E.I. (2009). Impaired health-related quality of life in children with recurrent pain. Pediatrics, 124, e759-e767. Manlhiot, C., Knezevich, S., Radojewski, E., Cullen-Dean, G., Williams, W.G., & McCrindle, B.W. (in press). Functional health status of adolescents after the Fontan procedure: Comparison with their siblings. Canadian Journal of Cardiology. Montpetit, K., Hamdy, R.C., Dahan-Oliel, N., Zhang, X., & Narayanan, U.G. (2009). Measurement of health-related quality of life in children undergoing external fixator treatment for lower limb deformities. Journal of Pediatric Orthopedics, 29, 920-926. Gorton, G.E., Abel, M.F., Oeffinger, D.J., Bagley, A., Rogers, S.P., Damiano, D., Romness, M., & Tylkowski, C. (2009). A prospective cohort study of the effects of lower extremity orthopaedic surgery on outcome measures in ambulatory children with cerebral palsy. Journal of Pediatric Orthopedics, 29, 903-909. Hamdy R.C., Montpetit, K., Raney, E.M., Aiona, M.D., Fillman, R.R., MacKenzie, W., McCarthy, J., Chafetz, R.S., Thomas, S.S., Tamayo, C.M., Littleton, A.G., Ruck-Gibis, J., Takahashi, S.N., Rinaldi, M., Finley, G.A., Platt, R.W., & Dahan-Oliel, N. (2009). Botulinum toxin type A injection in alleviating postoperative pain and improving quality of life in lower extremity limb lengthening and deformity correction: A pilot study. Journal of Pediatric Orthopedics, 29, 427-434. Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams, A., Pollock-Barziv, S.M. (in press). Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatric Transplantation. Modi, A.C., King, A.S., Monahan, S.R., Koumoutsos, J.E., Morita, D.A., & Glauser, T.A. (2009). Even a single seizure negatively impacts pediatric health-related quality of life. Epilepsia, 50, 2110–2116. Feichtl, R.E., Rosenfeld, B., Tallamy, B., Cairo, M.S., & Sands, S.A. (in press). Concordance of quality of life assessments following pediatric hematopoietic stem cell transplantation. Psycho- Oncology. Damiano, D.L., Arnold, A.S., Steele, K.M., & Delp, S.L. (in press). Can strength training predictably improve gait kinematics? A pilot study on the effects of hip and knee extensor strengthening on lower-extremity alignment in cerebral palsy. Physical Therapy. Page 11 of 37
  12. 12. www.pedsql.org Brandsema J.F., Stephens, D., Hartley, J., & Yoon, G. (2010). Intermediate-dose idebenone and quality of life in Friedreich ataxia. Pediatric Neurology, 42, 338-342. Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J.F. (in press). Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school-aged children with disabilities. Child: Care, Health and Development. Hamiwka, L.A., Cantell, M., Crawford, S., & Clark, C. G. (2009). Physical activity and health related quality of life in children following kidney transplantation. Pediatric Transplantation, 13, 861-867. Petersen, S., Hagglof, B., Stenlund, H., & Bergstrom, E. (2009). Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Acta Paediatrica, 98, 1504-1512. Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams, A., & Pollock-Barziv, S.M. (in press). Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatric Transplantation. Marlais, M., Fishman, J.R., Rawat, D.J., & Haddad, M. (in press). Development and validation of a disease-specific quality-of-life measure for children with achalasia. European Journal of Pediatric Surgery. Goldstein, S.L., Rosburg, N.M., Warady, B.A., Seikaly, M., McDonald, R. Limbers, C.A., & Varni, J.W. (2009). Pediatric end stage renal disease health-related quality of life differs by modality: A PedsQL™ ESRD analysis. Pediatric Nephrology, 24, 1553-1560. Ringold, S., Wallace, C.A., & Rivara, F.P. (2009). Health-related quality of life, physical function, fatigue, and disease activity in children with established polyarticular juvenile idiopathic arthritis. Journal of Rheumatology, 36, 1330-1336. Hinds, P.S, Gattuso, J.S., Billups, C.A., West, N.K., Wu, J., Rivera, C., Quintana, J., Villarroel, M., Daw, N.C. (2009). Aggressive treatment of non-metastatic osteosarcoma improves health- related quality of life in children and adolescents. European Journal of Cancer, 45, 2007-2014. Hainsworth, K.R., Davies, W.H., Khan, K.A., & Weisman, S.J. (2009). Co-occurring chronic pain and obesity in children and adolescents: The impact on health-related quality of life. Clinical Journal of Pain, 25, 715-721. Brunner, H.I., Higgins, G.C., Wiers, K., Lapidus, S.K., Olson, J.C., Onel, K., Punaro, M., Ying, J., Klein-Gitelman, M.S., & Seid, M. (2009). Health-related quality of life and its relationship to patient disease course in childhood-onset systemic lupus erythematosus. Journal of Rheumatology, 36, 1536-1545. Anderson, C.J., Kelly, E.H., Klaas, S.J., Russell, H., Daharsh, E., & Vogel, L.C. (2009). Anxiety and depression in children and adolescents with spinal cord injuries. Developmental Medicine and Child Neurology, 51, 826–832. Quinlan, N.P., Kolotkin, R.L., Fuemmeler, B. F., & Costanzo, P.R. (2009). Psychosocial outcomes in a weight loss camp for overweight youth. International Journal of Pediatric Obesity, 4, 134-142. Owen, R., Sikich, L., Marcus, R.N., Corey-Lisle, P., Manos, G., McQuade, R.D., Carson, W.H., & Findling, R.L. (2009). Aripiprazole in the treatment of irritability in children and adolescents with autistic disorder. Pediatrics, 124, 1533–1540. Page 12 of 37
  13. 13. www.pedsql.org Flores, G., Bridon, C., Torres, S., Perez, R., Walter, T., Brotanek, J., Lin, H., & Tomany-Korman, S. (2009). Improving asthma outcomes in minority children: A randomized, controlled trial of parent mentors. Pediatrics, 124, 1522–1532. van Tilburg, M. A. L., Chitkara, D.K., Palsson, O.S., Turner, M., Blois-Martin, N., Ulshen, M., & Whitehead, W.E. (2009). Audio-recorded guided imagery treatment reduces functional abdominal pain in children: A pilot study. Pediatrics, 124, e890–e897. Penn, A., Lowis, S.P., Stevens, M.C.G., Hunt, L.P., Shortman, R.I., McCarter, R.J., Pauldhas, D., Curran, A.L., & Sharples, P.M. (2009). Family, demographic and illness-related determinants of HRQL in children with brain tumours in the first year after diagnosis. Pediatric Blood and Cancer, 53, 1092–1099. Barrera, M., & Schulte, F. (2009). Group social skills intervention program for survivors of childhood brain tumors. Journal of Pediatric Psychology, 34, 1108–1118. Marcus, R.N., Owen, R., Kamen, L., Manos, G., McQuade, R.D., Carson, W.H., & Aman, M.G. (2009). A placebo-controlled, fixed-dose study of Aripiprazole in children and adolescents with irritability associated with autistic disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 48, 1110-1119. Cotton, S., Humenay Roberts, Y., Tsevat, J., Britto, M.T., Succop, P., McGrady, M.E., & Yi, M.S. (in press). Mind-body complementary alternative medicine use and quality of life in adolescents with inflammatory bowel disease. Inflammatory Bowel Diseases. Mathers, M., Canterford, L., Olds, T., Hesketh, K., Ridley, K., & Wake, M. (in press). Electronic media use and adolescent health and well-being: Cross-sectional community study. Academic Pediatrics. Makay, B., Ünsal, E., Arslan, N. & Varni, J.W. (2009). Health-related quality of life of school- age children with familial Mediterranean fever. Clinical and Experimental Rheumatology, 27, (2 Suppl. 53), S96-101. Janssens, L., Gorter, J.W., Ketelaar, M., Kramer, W.L.M., & Holtslag, H.R. (in press). Long- term health-related quality of life in major pediatric trauma: A pilot study. European Journal of Trauma and Emergency Surgery. Thomas-Stonell, N.L., Oddson, B., Robertson, B., Rosenbaum, P.L. (in press). Development of the FOCUS (Focus on the Outcomes of Communication Under Six), a communication outcome measure for preschool children. Developmental Medicine and Child Neurology. Xin, B., Guo, L.T., Li, X.R., Shan, Y.H., Fang, H., Liu, K.Z., & Situ, M.J. (2009). Quality of life of children with attention deficit hyperactivity disorders. Sichuan Da Xue Xue Bao (Journal of Sichuan University), 40, 1091-5. (Article in Chinese) Xu, T., Wu, Z., Rou, K., Duan, S., & Wang, H. (in press). Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China. AIDS Care. Clarke, M.C., Chase, J.W., Gibb, S., Hutson, J.M., & Southwell, B.R. (2009). Improvement of quality of life in children with slow transit constipation after treatment with transcutaneous electrical stimulation. Journal of Pediatric Surgery, 44, 1268-1272. Lack, C.W., Storch, E.A., Keeley, M.L., Geffken, G.R., Ricketts, E.D., Murphy, T.K., & Goodman, W.K. (2009). Quality of life in children and adolescents with obsessive-compulsive disorder: Base rates, parent-child agreement, and clinical correlates. Social Psychiatry and Psychiatric Epidemiology, 44, 935–942. Page 13 of 37
  14. 14. www.pedsql.org Moore, M.H., Mah, J.K., & Trute, B. (2009). Family-centered care and health-related quality of life of patients in pediatric neurosciences. Child: Care, Health, and Development, 35, 454-461. Tsiros, M.D., Olds, T., Buckley, J.D., Grimshaw, P., Brennan, L., Walkley, J., Hills, A.P., Howe, P.R., & Coates, A.M. (in press). Health-related quality of life in obese children and adolescents. International Journal of Obesity. Zeller, M.H., Modi, A.C., Noll, J.G., Long, J.D. & Inge, T.H. (2009). Psychosocial functioning improves following adolescent bariatric surgery. Obesity, 17, 985-990. Wallander, J.L., Taylor, W.C., Grunbaum, J.A., Franklin, F.A., Harrison, G.G., Kelder, S.H., & Schuster, M.A. (in press). Weight status, quality of life, and self-concept in African American, Hispanic, and White fifth-grade children. Obesity. Sheffler, L.C., Hanley, C., Bagley, A., Molitor, F., & James, M.A. (2009). Comparison of self- reports and parent proxy-reports of function and quality of life of children with below-the-elbow deficiency. Journal of Bone and Joint Surgery, 91, 2852-2859. Driscoll, K.A., Killian, M. Johnson, S.B., Silverstein, J.H., & Deeb, L.C. (2009). Predictors of study completion and withdrawal in a randomized clinical trial of a pediatric diabetes adherence intervention. Contemporary Clinical Trials, 30, 212-220. Huang, I.C., Shenkman, E.A., Leite, W., Knapp, C.A., Thompson, L.A., & Revicki, D.A. (2009). Agreement was not found in adolescents’ quality of life rated by parents and adolescents. Journal of Clinical Epidemiology, 62, 337-346. Wake, M., Canterfored, L., Patton, G., Hesketh, K., Hardy, P., Williams, J., Waters, E., & Carlin, J. (in press). Comorbidities of overweight/obesity experienced in adolescents: Longitudinal study. Archives of Disease in Childhood. Gold, J.I., Mahrer, N.E., Yee, J., & Palermo, T.M. (2009). Pain, fatigue, and health-related quality of life in children and adolescents with chronic pain. Clinical Journal of Pain, 25, 407- 412. Weissberg-Benchell, J., Nansel, T.R., Holmbeck, G.N., Chen, R., Anderson, B.J., Wysocki, T., & Laffel, L. (2009). Generic and diabetes-specific parent-child behaviors and quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 34, 977-988. Wysocki, T., Nansel, T.R., Holmbeck, G.N., Chen, R., Laffel, L., Anderson, B.J., & Weissberg- Benchell, J. (2009). Collaborative involvement of primary and secondary caregivers: Associations with youths' diabetes outcomes. Journal of Pediatric Psychology, 34, 869-881. Yackobovitch-Gavan, M., Nagelberg, N., Phillip, M., Ashkenazi-Hoffnung, L., Hershkovitz, E., & Shalitin, S. (2009). The influence of diet and/or exercise and parental compliance on health- related quality of life in obese children. Nutrition Research, 29, 397-404. Limond, J., Dorris, L., & McMillan, T.M. (2009). Quality of life in children with acquired brain injury: Parent perspectives 1-5 years after injury. Brain Injury, 23, 617-622. Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J.W. (2009). The Italian version of the PedsQL™ in children with rheumatic diseases. Clinical and Experimental Rheumatology, 27, 373-380. Jung, M., Hohne, A., Varni, J.W., Klingebiel, T., & Landenberger, M. (2009). The measurement of fatigue in pediatric oncology: The first German version of the PedsQL™ Multidimensional Fatigue Scale. Kinder- und Jugendmedizin, 9, 218-224. (German). Page 14 of 37
  15. 15. www.pedsql.org Panepinto, J.A., Pajewski, N.M., Foerster, L.M., Sabnis, S., & Hoffmann, R.G. (2009). Impact of family income and sickle cell disease on the health-related quality of life of children. Quality of Life Research, 18, 5-13. Zeller, M.H., & Modi, A.C. (in press). Development and initial validation of an obesity-specific quality of life measure for children: Sizing me up. Obesity. Ewing, J.E., King, M.T., & Smith, N.F. (2009). Validation of modified forms of the PedsQL Generic Core Scales and Cancer Module scales for adolescents and young adults (AYA) with cancer or a blood disorder. Quality of Life Research, 18, 231-244. Mistry, R.D., Stevens, M.W., & Gorelick, M.H. (2009). Health-related quality of life for pediatric emergency department febrile illnesses: An evaluation of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 7:5, 1-9. Conlon, N.P., Breatnach, C., O’Hare, B.P., Mannion, D.W., & Lyons, B.J. (2009). Health-related quality of life after prolonged pediatric intensive care unit stay. Pediatric Critical Care Medicine, 10, 41-44. Miró, J., Castarlenas, E., & Huguet, A. (2009). Evidence for the use of a numerical rating scale to assess the intensity of pediatric pain. European Journal of Pain, 13, 1089–1095. Engelen, V., Haentjens, M.M., Detmar, S.B., Koopman, H.M., & Grootenhuis, M.A. (2009). Health related quality of life of Dutch children: Psychometric properties of the PedsQL in the Netherlands. BMC Pediatrics, 9:68, 1-8. Penn, A., Lowis, S.P., Stevens, M.C., Hunt, L.P., Shortman, R.I., McCarter, R.J., Pauldhas, D., Curran, A.L., & Sharples, P.M. (2009). Family, demographic and illness-related determinants of HRQL in children with brain tumours in the first year after diagnosis. Pediatric Blood and Cancer, 17, 1092-1099. Nansel, T.R., Anderson, B.J., Laffel, L.M.B., Simons-Morton, B.G., Weissberg-Benchell, J., Wysocki, T., Iannotti, R.J., Holmbeck, G.N., Hood, K.K., & Lochrie, A.S. (2009). A multisite trial of a clinic-integrated intervention for promoting family management of pediatric type 1 diabetes: Feasibility and design. Pediatric Diabetes, 10, 105-115. Saps, M., Seshadri, R., Sztainberg, M., Schaffer, G., Marshall, B.M., & Di Lorenzo, C. (2009). A prospective school-based study of abdominal pain and other common somatic complaints in children. Journal of Pediatrics, 154, 322-326. Tsiros, M.D., Olds, T., Buckley, J.D., Grimshaw, P., Brennan, L. Walkley, J., Hills, A.P., Howe, P.R.C., & Coates, A.M. (2009). Health-related quality of life in obese children and adolescents. International Journal of Obesity, 33, 387-400. Lau, J.T., Yu, X.N., Chu., Y., Shing, M.M., Wong, E.M., Leung, T.F., Li, C.K., Fok, T.F., & Mak, W.W. (2010). Validation of the Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) Cancer Module. Journal of Pediatric Psychology, 35, 99-109. Klassen, A., Klaassen, R.J., Dix, D., Pritchard, S., Yanofsky, R., & Sung, L. (in press). Caregiving demands in parents of children with cancer: Psychometric validation of the care of my child with cancer questionnaire. Journal of Pediatric Nursing. Haley, S.M., Fragala-Pinkham, M.A., Dumas, H.M., Ni, P., Gorton, G.E., Watson, K., Montpetit, K., Bilodeau, N., Hambleton, R.K., & Tucker, C.A. (in press). Evaluation of an item bank for a computerized adaptive test of activity in children with cerebral palsy. Physical Therapy. Mannix, M.M., Feldman, J.M., & Moody, K. (in press). Optimism and health-related quality of life in adolescents with cancer. Child: Care, Health and Development. Page 15 of 37
  16. 16. www.pedsql.org Sherifali, D., Ciliska, D., & O’Mara, L. (in press). Parenting children with diabetes: Exploring parenting styles on children living with type 1 diabetes mellitus. The Diabetes Educator. Cotton, S., Kudel, I., Roberts, Y.H., Pallerla, H., Tsevat, J., Succop, P., & Yi, M.S. (in press). Spiritual well-being and mental health outcomes in adolescents with or without inflammatory bowel disease. Journal of Adolescent Health. Young, N.L., Varni, J.W., Snider, L., McCormick, A., Sawatzky, B., Scott, M., King, G., Hetherington, R., Sear, E., & Nicholas, D. (2009). The Internet is valid and reliable for child- report: An example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL). Journal of Clinical Epidemiology, 62, 314-320. Aitken, M.E., McCarthy, M.L., Slomine, B.S., Ding, R., Durbin, D.R., Jaffe, K.M., Paidas, C.N., Dorsch, A.M., Christensen, J.R., & Mackenzie, E.J. (2009). Family burden after traumatic brain injury in children. Pediatrics, 123, 199-206. Seid, M., Opipari, L., Huange, B., Brunner, H.I., & Lovell, D.J. (2009). Disease control and health-related quality of life in juvenile idiopathic arthritis. Arthritis and Rheumatism, 61, 393- 399. Storch, E.A., Keeley, M., Merlo, L.J., Amant, J.B., Jacob, M., Storch, J.F., Spencer, C., & Byrne, B.J. (2009). Psychosocial functioning in youth with Barth Syndrome. Children’s Health Care, 38, 137-156. Panepinto, J.A., Hoffmann, R.G., & Pajewski, N.M. (2009). A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease. Health and Quality of Life Outcomes, 7:32 1-11. Dieruf, K., Burtner, P.A., Provost, B., Phillips, J., Bernitsky-Beddingfield, A, & Sullivan, K.J. (2009). A pilot study of quality of life in children with cerebral palsy after intensive body weight- supported treadmill training. Pediatric Physical Therapy, 21, 45-52. Brothers, J.A., McBride, M.G., Marino, B.S., Tomlinson, R.S., Seliem, M.A., Pampaloni, M.H., Gaynor, J.W., Spray, T.L., & Paridon, S.M. (2009). Exercise performance and quality of life following surgical repair of anomalous aortic origin of a coronary artery in the pediatric population. Journal of Thoracic and Cardiovascular Surgery, 137, 380-384. Modi, A.C., Guilfoyle, S.M., & Zeller, M.H. (2009). Impaired health-related quality of life in caregivers of youth seeking obesity treatment. Journal of Pediatric Psychology, 34, 147-155. Yi, M.S., Britto, M.T., Sherman, S.N., Moyer, M.S., Cotton, S., Kotagal, U.R., Canfield, D., Putman, F.W., Carlton-Ford, S., & Tsevat, J. (2009). Health values in adolescents with or without inflammatory bowel disease. Journal of Pediatrics, 154, 527-534. Seid, M., Opipari-Arrigan, L.A., Gelhard, L.R, Varni, J.W. & Driscoll, K.A. (2009). Barriers to Care Questionnaire: Reliability, validity, and responsiveness to change among parents of children with asthma. Academic Pediatrics, 9 106-113. Ramchandren, S., Leonard, M., Mody, R.J., Donohue, J.E., Moyer, J., Hutchinson, R., & Gurney, J.G. (2009). Peripheral neuropathy in survivors of childhood acute lymphoblastic leukemia. Journal of the Peripheral Nervous System, 14, 184-189. Dietz, F.R., Tyler, M.C., Leary, K.S., & Damiano, P.C. (2009). Evaluation of a disease-specific instrument for idiopathic clubfoot outcome. Clinical Orthopaedics and Related Research, 467, 1256-1262. Page 16 of 37
  17. 17. www.pedsql.org Crawford, J.M., Warne, G., Grover, S., Southwell, B.R., & Hutson, J.M. (2009). Results from a pediatric surgerical centre justify early intervention in disorders of sex development. Journal of Pediatric Surgery, 44, 413-416. Kilanowski, J.F. (2009. Health-related quality of life in two itinerant samples: Carnival and migrant farm worker children. Pediatric Nursing, 35, 149-53. Dhoundiyal, M., & Venkatesh, R. (2009). The psychological world of adolescence: A comparative evaluation between rural and urban girls. Indian Journal of Psychological Medicine, 31, 35-38. Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J.F. (2009). Development of the Assistance to Participate Scale (APS) for children's play and leisure activities. Child: Care, Health and Development, 35, 738-45. Kunkel, N., Oliveira, W.F., & Peres, M.A. (2009). Overweight and health-related quality of life in adolescents of Florianopolis, Southern Brazil. Revista de saúde pública (in Portuguese). Nansel, T.R., Weisberg-Benchell, J., Wysocki, T., Laffel, L. & Anderson, B. (2008). Quality of life in children with Type 1 diabetes: A comparison of general and disease-specific measures and support for a unitary diabetes quality of life construct. Diabetic Medicine, 25, 1316-1323. Naughton, M.J., Ruggiero, A.M., Lawrence, J.M., Imperatore, G., Klingensmith, G.J. Waitzfelder, B., McKeown, R.E., Standiford, D.A., Liese, A.D., & Loots, B. (2008). Health- related quality of life of children and adolescents with type 1 or type 2 diabetes mellitus: SEARCH for Diabetes In Youth Study. Archives of Pediatrics and Adolescent Medicine, 162, 649-657. Nuboer, R., Borsboom, G.J., Zoethout, J.A., Koot, H.M., & Bruining, J. (2008). Effects of insulin pump vs. injection treatment on quality of life and impact of disease in children with type1 diabetes mellitus in a randomized, prospective comparison. Pediatric Diabetes, 9, 291-296. Parekh, A.D., Thomas, J.C., Trusler, L., Ankerst, D.P., Deshpande, J.K., Adams, M.C., Pope, J.C., & Brock, J.W. (2008). Prospective evaluation of health related quality of life for pediatric patients with ureteropelvic junction obstruction. Journal of Urology, 180, 2171-2176. Sung, L., Klaassen, R.J., Dix, D., Pritchard, S., Yanofsky, R., Dzolganovski, B., Almeida, R., & Klassen, A. (2009). Identification of paediatric cancer patients with poor quality of life. British Journal of Cancer, 100, 82-88. Modi, A.C., & Zeller, M.H. (in press). Validation of a parent-proxy, obesity-specific quality of life measure: Sizing them up. Obesity. Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J.W. (2009). The Italian version of the PedsQL™ in children with rheumatic diseases. Clinical and Experimental Rheumatology, 27, 373-380. Tessier, S., Vuillemin, A., Lemelle, J.-L., & Brianc, S. (2009). Psychometric properties of the French Pediatric Quality of Life Inventory Version 4.0 (PedsQL™ 4.0) generic core scales (French). Revue Européenne de Psychologie Appliquée, 59, 291–300. Sitaresmi, M.N., Mostert, S., Gundy, C.M., Sutaryo, S., & Veerman, A. J. P. (in press). Health- related quality of life asssessment in Indonesian childhood acute lymphoblastic leukemia. Health and Quality of Life Outcomes. King, R.M., Knibb, R.C., & Hourihane, J.O. (in press). Impact of peanut allergy on quality of life, stress and anxiety in the family. Allergy. Page 17 of 37
  18. 18. www.pedsql.org Wong, H.B., Machin, D., Tan, S.B., Wong, T.Y., & Saw, S.M. (in press). Visual impairment and its impact on health-related quality of life. American Journal of Ophthalmology. Hsieh, R.L., Huang, H.Y., Lin, M.I., Wu, C.W., & Lee, W.C. (2009). Quality of life, health satisfaction and family impact on caregivers of children with developmental delays. Child: Care, Health and Development,35, 243–249. Janssens, L., Gorter, J.W., Ketelaar, M., Kramer, W. L, & Holtslag, H.R. (in press). Long-term health-related quality of life in major pediatric trauma: A pilot study. European Journal of Trauma and Emergency Surgery. Seid, M., Opipari-Arrigan, L., Gelhard, L.R., Varni, J.W., & Driscoll, K. (2009). Barriers to Care Questionnaire: Reliability, validity, and responsiveness to change among parents of children with asthma Academic Pediatrics, 9, 106–113. Wang, M., Wu, L. Zheng, Y., Zhang, Q., & Li, C. (2009). The Chinese QOLIE-AD-48.: Translation, validity, and reliability. Epilepsy and Behavior, 14, 476-480. Majnemer, A., Shevell, M., Law. M., Poulin, C., & Rosenbaum, P. (2008). Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy. Quality of Life, 17, 1163-1171. Modi, A.C., Loux, T.J., Bell, S.K., Harmon, C.M., Inge, T.H., & Zeller, M.H. (in press). Weight- specific health-related quality of life in adolescents with extreme obesity. Obesity, Davis, E., Davies, B., Waters, E., & Priest, N. (2008). The relationship between proxy reported health-related quality of life and parental distress: Gender differences. Child: Care, Health and Development, 34, 830-837. Hinds, P.S., Billups, C.A., Cao, X., Gattuso, J.S., Burghen, E., West, N., Rubnitz, J.E., & Daw, N.C. (in press). Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia. European Journal of Oncology Nursing. Emmanouilidou, E., Galli-Tsinopoulou, A., Karavatos, A. & Nousia-Arvanitakis, S. (in press). Quality of life of children and adolescents with diabetes of Northern Greek origin. Hippokratia. Palta, M., & Sadek-Badawi, M. (2008). PedsQL™ relates to function and behavior in very low and normal birth weight 2- and 3-year-olds from a regional cohort. Quality of Life Research, 17, 691-700. Greenley, R.N., Josie, K.L. & Drotar, D. (2008). Self-reported quality of life among inner-city youth with asthma. An empirical examination of the PedsQL™ 3.0 Asthma Module. Annals of Allergy, Asthma and Immunology, 100, 106-111. Banks, B.A., Barrowman, N.J., & Klaassen, R. (2008). Health-related quality of life: Changes in children undergoing chemotherapy. Journal of Pediatric Hematology/Oncology, 30, 292-297. Parekh, A.D., Thomas, J.C., Trusler, L., Ankerst, D.P., Deshpande, J.K., Adams, M.C., Pope J.C., & Brock, J.W. (2008). Prospective evaluation of health related quality of life for pediatric patients with ureteropelvic junction obstruction. Journal of Urology, 180, 2171-2175. de Wit, M., de Waal, H.A., Alle Bokma, J., Haasnoot, K., Houdijk, M.C., Gemke, R.J., & Snoek, F.J. (2008). Monitoring and discussing health related quality of life in adolescents with type 1 diabetes improves psychosocial well-being: A randomized controlled trial. Diabetes Care, 31, 1521–1526. Page 18 of 37
  19. 19. www.pedsql.org Panepinto, J.A., Pajewski, N.M., Foerster, L.M., & Hoffmann, R.G. (2008). The performance of the PedsQL™ Generic Core Scales in children with sickle cell disease. Journal of Pediatric Hematology/Oncology, 30, 666-673. Reinfjell, T., Hjemdal, O., Aune, T., Vikan, A., & Diseth, T.H. (2008). The Pediatric Quality of Life Inventory™ (PedsQL™) 4.0 as an assessment measure for depressive symptoms: A correlational study with young adolescents. Nordic Journal of Psychiatry, 62, 279-286. Huguet, A., & Miro, J. (2008). The severity of chronic pediatric pain: An epidemiological study. Journal of Pain, 9, 226-236. Wade, T.J., Mansour, M.E., Line, K., Huentelman, T., & Keller, K.N. (2008). Improvements in health-related quality of life among school-based health center users in elementary and middle school. Ambulatory Pediatrics, 8, 241-249. Hommel, K.A., Davis, C.M., & Baldassano, R.N. (2008). Medication adherence and quality of life in pediatric inflammatory bowel disease. Journal of Pediatric Psychology, 33, 867–874. Yackobovitch-Gavan, M., Nagelberg, N., Demol, S., Phillip, M., & Shalitin, S. (2008). Influence of weight-loss diets with different macronutrient compositions on health-related quality of life in obese youth. Appetite, 51 697-703. Russo, R.N., Goodwin, E.J., Miller, M.D., Haan, E.A., Connell, T.M., & Crotty, M. (in press). Self-esteem, self-concept, and quality of life in children with hemiplegic cerebral palsy. Journal of Pediatrics, . Mah, J.K., Thannhauser, J.E., Kolski, H., & Dewey, D. (2008). Parental stress and quality of life in children with neuromuscular disease. Pediatric Neurology, 39,102-107. Cheuk, D.K., Mok, A.S., Lee, A.C., Chiang, A.K., Ha, S.Y., Lau, Y.L., & Chan, G.C. (in press). Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT. Bone Marrow Transplantation. Allan, C.L., Flett, B., & Dean, H.J. (2008). Quality of life in First Nation youth with type 2 diabetes. Maternal and Child Health Journal, 12, Suppl 1, 103-109. Redman, T.A., Finn, J.C., Bremner, A.P., & Valentine, J. (in press). Effect of upper limb botulinum toxin-A therapy on health-related quality of life in children with hemiplegic cerebral palsy. Journal of Paediatrics and Child Health. Matziou, V., Perdikaris, P., Feloni, D., Moshovi, M., Tsoumakas, K., & Merkouris, A. (in press). Cancer in childhood. Children’s and parents’ aspects for quality of life. European Journal of Oncology Nursing. Soresina, A., Nacinovich, R., Bomba, M., Cassani, M., Molinaro, A. et al. (in press). The quality of life of children and adolescents with x-linked Agammaglobulinemia. Journal of Clinical Immunology. Veleminsky, M, & Buresova, G. (in press). Health related quality of life of children and adolescents with Type 1 diabetes. Neuro Endocrinology Letter. Gkoltsiou, K., Dimitrakaki, C., Tzavara, C., Papaevangelou, V., Varni, J.W., Tountas, Y. (2008). Measuring health-related quality of life in Greek children: Psychometric properties of the Greek version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales. Quality of Life Research, 17, 299-305. Kook, S.H., & Varni, J.W. (2008). Validation of the Korean version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales in school children and adolescents using the Rasch model. Health and Quality of Life Outcomes, 6:41,1-15. Page 19 of 37
  20. 20. www.pedsql.org Felder-Puig, R., Baumgartner, M., Topf, R., Gadner, H., & Formann, A.K. (2008). Health-related quality of life in Austrian elementary school children. Medical Care, 46, 432-439. Felder-Puig, R., Topf, R., Gadner, H., & Formann, A.K. (2008). Measuring health-related quality of life in children from different perspectives using the Pediatric Quality of Life Inventory™ (PedsQL™) and teachers’ ratings. Journal of Public Health, 16, 317-325. Janssens, L. Gorter, J.W., Ketelaar, M., Kramer, W.L., Holtslag, H.R. (2008). Health-related quality of life measures for long-term follow-up in children after major trauma. Quality of Life Research, 17, 701-713. Wood, L.J., Sherman, E., Hamiwka, L.D., Blackman, M., & Wirrel. E. (2008). Depression, anxiety, and quality of life in siblings of children with intractable epilepsy. Epilepsy and Behavior, 13, 144-148. Penn, A., Lowis, S.P., Hunt, L.P., Shortman, R.I., Stevens, M.C., McCarter, R.L., Curran, A.L., & Sharpies, P.M. (2008). Health related quality of life in the first year after diagnosis in children with brain tumors compared with matched healthy controls: A prospective longitudinal study. European Journal of Cancer, 44, 1243-1252. Laaksonen, C., Aromaa, M., Heinonen, O.J., Koivusilta, L., Koski, P., Suominen, S., Vahlberg, T., Salantera, S. (2008). Health related quality of life in 10-year-old schoolchildren. Quality of Life Research, 17, 1049-1054. Russo, R.N., Miller, M.D., Haan, F., Cameron, I.D., & Crotty, M. (2008). Pain characteristics and their association with quality of life and self-concept in children with hemiplegic cerebral palsy. Clinical Journal of Pain, 24, 335-342. Maher, C.A., Olds, T., Williams, M.T., & Lane, A.E. (2008). Self-reported quality of life in adolescents with cerebral palsy. Physical and Occupational Therapy in Pediatrics, 28, 41-57. Scarpelli, A.C., Paiva, S.M., Pordeus, I.A., Varni, J.W., Viegas, C.M., & Allison, P.J. (2008). The Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: Reliability and validity of the Brazilian version. Health and Quality of Life Outcomes, 6:35, 1-8. Feldman, D., Swaine, B., Gosselin, J., Meshefedjian, G., & Grilli, L. (2008). Is waiting for rehabilitation services associated with changes in function and quality of life in children with physical disabilities? Physical and Occupational Therapy in Pediatrics, 28, 291-304. Calvert, S., Miller, H.E., Curran, A., Hameed, B., McCarter, R., Edwards, R.J., Hunt, L., & Sharples, P.M. (2008). The King’s outcome scale for childhood head injury and injury severity and outcome measures in children with traumatic brain injury. Developmental Medicine and Child Neurology, . Roizen, M., Rodriguez, S., Bauer, G., Medin, G., Bevilacqua, S., Varni, J.W., & Dussel, V. (2008). Initial validation of the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in children and adolescents with chronic diseases: Acceptability and comprehensibility in low-income settings. Health and Quality of Life Outcomes, 6:59, 1-15. Sung, V., Hiscock, H., Sciberras, E., & Efron, D. (2008). Sleep problems in children with attention-deficit/hyperactivity disorder: Prevalence and the effect on the child and family. Archives of Pediatrics & Adolescent Medicine, 162, 336-342. Limbers, C.A., Turner, E., & Varni, J.W. (2008). Promoting healthy lifestyles: Behavior modification and motivational interviewing in the treatment of childhood obesity. Journal of Clinical Lipidology, 2, 169-178. Page 20 of 37
  21. 21. www.pedsql.org Klatchoian, D.A., Len, C.A., Terreri, M.T., Silva, M., Itamoto, C., Ciconelli, R.M., Varni, J.W., & Hilário, M.O.E. (2008). Quality of life of children and adolescents from Sao Paulo: Reliability and validity of the Brazilian version of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales. Jornal de Pediatria (Brazilian Journal of Pediatrics), 84, 308-315. Vetter, T.R. (2008). A clinical profile of a cohort of patients referred to an anesthesiology-based pediatric chronic pain medicine program. Anesthesia and Analgesia, 106, 786-794. Clarke, M.C., Chow, C.S., Chase, J.W., Gibb, S., Hutson, J.M., & Southwell, B.R. (2008). Quality of life in children with slow transit constipation. Journal of Pediatric Surgery, 43, 320- 324. De Bolle, M., De Clercq, B., De Fruyt, F., & Benoit, Y. (2008). Self and parental perspectives on quality of life in children with cancer. Journal of Psychosocial Oncology, 26, 35-47. Lampard, A.M., Byrne, S.M., Zubrick, S.R., & Davis, E.A. (2008). Parents’ concern about their children’s weight. International Journal of Pediatric Obesity, 3, 84-92. Langer, M.M., Hill, C.D., Thissen, D., Burwinkle, T.M., Varni, J.W., & DeWalt, D.A. (2008). Item response theory detected differential item functioning between healthy and ill children in quality-of-life measures. Journal of Clinical Epidemiology, 61, 268-276. Perrin, J.M., Kuhlthau, K., Chughtai, A., Romm, D. Kirschener, B.S., Ferry G.D., Cohen, S.A., Gold, B.D., Heyman, M.B., Baldassano, R.N., & Winter, H.S. (2008). Measuring quality of life in pediatric patients with inflammatory bowel disease: Psychometric and clinical characteristics. Journal of Pediatric Gastroenterology and Nutrition, 46, 164-171. Carno, M.A., Ellis, E., Anson, E., Kraus, R., Black, J., Short, R., & Connolly, H.V. (2008). Symptoms of sleep apnea and polysomnography as predictors of poor quality of life in overweight children and adolescents. Journal of Pediatric Psychology, 33, 269-278. Uneri, O.S., Agaoglu, B., Coskun, A., & Memik, N.C. (2008). Validity and reliability of Pediatric Quality of Life Inventory for 2- to 4-year-old and 5- to 7-year-old Turkish children. Quality of Life Research, 17, 307-315. Scarpelli, A.C., Paiva, S.M., Pordeus, I.A., Ramos-Jorge, M.L., Varni, J.W., & Allison, P.J. (2008). Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory™ (PedsQL™) Cancer Module Scale. Health and Quality of Life Outcomes, 6:7, 1-11. Huguet, A., & Miro, J. (2008). Development and psychometric evaluation of a Catalan self- and interviewer-administered version of the Pediatric Quality of Life Inventory™ Version 4.0. Journal of Pediatric Psychology, 33, 63-79. Upton, P., Lawford, J., & Eiser, C. (2008). Parent-child agreement across child health-related quality of life instruments: A review of the literature. Quality of Life Research, 17, 895-913. de Vries, M.A., van Litsenburg, R.R., Huisman, J., Grootenhuis, M.A., Versluys, B.A., Kaspers, G.J., & Gemke, R.J. (2008) Effects of dexamethasone on quality of life in children with acute lymphoblastic leukaemia: A prospective observational study. Health and Quality of Life Outcomes. Chen, Y.M., He, L.P., Mai, J.C., Hao, Y.T., Xiong, L.H., Chen, W.Q., & Wu, J.N. (2008). Validity and reliability of Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in Chinese children and adolescents (article in Chinese). Zhonghua Liu Xing Bing Xue Za Zhi, 29, 560-563. Page 21 of 37
  22. 22. www.pedsql.org McClellan, C.B., Schatz, J., Sanchez, C., & Roberts, C.W. (2008). Validity of the Pediatric Quality of Life Inventory for youth with sickle cell disease. Journal of Pediatric Psychology, 33, 1153-1162. Newcombe, P.A., Sheffield, J.K., Juniper, E.F., Marchant, J.M., Halsted, R.A., Masters, I.B., & Chang, A.B. (2008). Development of a parent-proxy quality of life chronic cough-specific questionnaire: Clinical impact vs. psychometric evaluations. Chest, 133, 386-395. Lau, L., Stuurman, K., & Weitzman, S. (2008). Skeletal langerhans cell histiocytosis in children: Permanent consequences and health-related quality of life in long-term survivors. Pediatric Blood and Cancer, 50, 607-612. Oeffinger, D., Bagley, A., Rogers, S., Gorton, G., Kryscio, R., Abel, M., Damiano, D., Barnes, D., & Tylkowski, C. (2008). Outcome tools used for ambulatory children with cerebral palsy: Responsiveness and minimum clinically important differences. Developmental Medicine and Child Neurology, 50, 918-925. Winner, P. (2008) Pediatric headache. Current Opinion in Neurology, 21, 316-322. Chiang, Y.C., Hinds, P.S., Yeh, C.H., & Yang, C.P. (2008). Development and psychometric testing of a Chinese version of the fatigue scale-children in Taiwan. Journal of Clinical Nursing, 17, 1201-1210. Chen, X., Origasa, H., Ichida, F., Kamibeppu, K., & Varni, J.W. (2007). Reliability and validity of the Pediatric Quality of Life Inventory™ (PedsQL™) Short Form 15 Generic Core Scales in Japan. Quality of Life Research, 16, 1239-1249. Fullerton, G., Tyler, C., Johnston, C.A., Vincent, J.P., Harris, G.E., & Foreyt, J.P. (2007). Quality of life in Mexican-American children following a weight management program. Obesity, 15, 2553-2556. Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Power, M., Duer, W., Auquier, P., Cloetta, B., Czemy, L., Mazur, J., Czimbalmos, A., Tountas, Y., Hagquist, C., & Kilreo, J. (2008). The Kidscreen-52 quality of life measure for children and adolescents. Psychometric results from a cross-sectional survey in 13 European countries. Value in Health, 11, 645-658. Reinfjell, T., Lofstad, G.E., Veenstra, M., Vikan, A., & Diseth, T.H. (2007). Health-related quality of life and intellectual functioning in children in remission from acute lymphoblastic leukaemia. Acta Paediatrica, 96, 1280-1285. Hill, C.D., Edwards, M.C., Thissen, D., Langer, M.M., Wirth, R.J., Burwinkle, T.M., & Varni, J.W. (2007). Practical issues in the application of item response theory: A demonstration using items from the Pediatric Quality of Life Inventory™ (PedsQL™) 4.0 Generic Core Scales. Medical Care, 45, S39-S47. Hutchings, H.A., Upton, P., Cheung, W.Y., Maddocks, A., Eiser, C., Williams, J.G., Russell, I.T., Jackson, S., & Jenney, M.E.M. (2008). Development of a parent version of the Manchester- Minneapolis quality of life survey for use by parents and carers of UK children. Health and Quality of Life Outcomes, 6:19. Cuomo, A.V., Gamradt, S.C., Kim, C.O., Pirpiris, M., Gates, P.E., McCarthy, J.J. & Otsuka, N.Y. (2007). Health-related quality of life outcomes improve after multilevel surgery in ambulatory children with cerebral palsy. Journal of Pediatric Orthopaedics, 27, 653-657. Gurney, J.G., Tersak, J.M., Ness, K.K., Landier, W., Matthay, K.K., & Schmidt, M.L. (2007). Hearing loss, quality of life, and academic problems in long-term neuroblastoma survivors: A report from the Children’s Oncology Group. Pediatrics, 120, e1229-e1236. Page 22 of 37
  23. 23. www.pedsql.org Josie, K.L., Greenley, R.N., & Drotar, D. (2007). Health-related quality of life measures for children with asthma: Reliability and validity of the Children’s Health Survey for Asthma and the Pediatric Quality of Life Inventory 3.0 Asthma Module. Annals of Allergy, Asthma and Immunology, 98, 218-224. Holterman, A.X., Browne, A., Dillard, B.E., Tussing, L., Gorodner, V., Stahl, C., Browne, N., Labott, S., Herdegen, J., Guzman, G., Rink, A., Nwaffo, I., Galvani, C., Horgan, S., & Holterman, M. (2007). Short-term outcome in the first 10 morbidly obese adolescent patients in the FDA-approved trial for Laparoscopic adjustable gastric banding. Journal of Pediatric Gastroenterology and Nutrition, 45, 465-473. Varni, J.W., Burwinkle, T.M., Limbers, C.A., & Szer, I.S. (2007). The PedsQL™ as a patient- reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains. Health and Quality of Life Outcomes, 5:9, 1-12. Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Literature review: Health-related quality of life measurement in pediatric oncology: Hearing the voices of the children. Journal of Pediatric Psychology, 32, 1151-1163. Vetter, T.R. (2007). A primer on health-related quality of life in chronic pain medicine. Anesthesia and Analgesia, 104, 703-718. Majnemer, A., Shevell, M., Rosenbaum, P., Law. M., & Poulin, C. (2007). Determinants of life quality in school-age children with cerebral palsy. Journal of Pediatrics, 151, 470-475. Laplant, M.M., Adams, B.S., Haftel, H.M., & Chervin, R.D. (in press). Insomnia and quality of life in children referred for limb pain. Journal of Rheumatology. Bitsko, M.J., Stern, M., Dillon, R., Russell, E.C., & Laver, J. (in press). Happiness and time perspective as potential mediators of quality of life and depression in adolescent cancer. Pediatric Blood and Cancer. Abresch, R.T., McDonald, D.A., Widman, L.M., McGinnis, K., & Hickey, K.J. (2007). Impact of spinal cord dysfunction and obesity on the health-related quality of life of children and adolescents. Journal of Spinal Cord Medicine, 30, S112-S118. Janicke, D.M., Marciel, K.K., Ingerski, L.M., Novoa, W., Lowry, K.W., Sallinen, B.J., & Silverstein, J.H. (2007). Impact of psychosocial factors on quality of life in overweight youth. Obesity, 15, 1799-1807. Murphy, H.R., Wadham, C. Rayman, G., & Skinner, T.C. (in press). Approaches to integrating paediatric diabetes care and structured education: Experiences from the Families, Adolescents, and Children’s Teamwork Study (FACTS). Diabetes Medicine, . Storch, E.A., Merlo, L.J., Lack, C., Milsom, V.A., Geffken, G.R., Goodman, W.K., & Murphy, T.K. (2007). Quality of life in youth with Tourette’s Syndrome and chronic tic disorder. Journal of Clinical Child and Adolescent Psychology, 36, 217-227. Damiano, P.C., Tyler, M.C., Romitti, P.A., Momany, E.T., Jones, M.P., Canady, J.W., Karnell, M.P., & Murray, J.C. (2007). Health-related quality of life among preadolescent children with oral clefts: The mother’s perspective. Pediatrics, 120, e283-e290. Cakin Memik, N., Agaoglu, B., Coskun, A.S., Uneri, O., & Karakaya, I.(2007) The validity and reliability of the Turkish Pediatric Quality of Life Inventory for children 13-18 years old. Turk Psikiyatri Derg (Turkish Journal of Psychiatry), 18, 353-363. Page 23 of 37
  24. 24. www.pedsql.org Packman, W., Henderson, S.L., Mehta, I., Ronen, R. Danner, D., Chesterman, B., & Packman, S. (2007). Psychosocial issues in families affected by maple syrup urine disease. Journal of Genetic Counseling, . Chung, P.J., Garfield, C.F., Elliott, M.N., Carey, C., Eriksson, C., & Schuster, M.A. (2007). Need for and use of family leave among parents of children with special health care needs. Pediatrics, 119, e1047-e1055. Hankins, J., Hinds, P., Day, S., Carroll, Y., Li, C.S., Garvie, P., & Wang, W. (2007). Therapy preferences and decision-making among patients with severe sickle cell anemia and their families. Pediatric Blood and Cancer, 48, 705-710. Hiscock, H., Canterford, L., Ukoumunne, O.C., & Wake, M. (2007). Adverse associations of sleep problems in Australian preschoolers: National population study. Pediatrics, 119, 865-93. Berrin, S.J., Malcarne, V.L., Varni, J.W., Burwinkle, T.M., Sherman, S.A., Artavia, K., & Chambers, H.G. (2007). Pain, fatigue, and school functioning in children with cerebral palsy: A path-analytic model. Journal of Pediatric Psychology, 32, 330-337. Laaksonen, C., Aromaa, M., Heinonen, O.J., Suominen, S., & Salantera, S. (2007). Pediatric health-related quality of life instrument for primary school children: Cross-cultural validation. Journal of Advanced Nursing, 59, 542-550. Ingerski, L.M., Janicke, D.M., & Silverstein, J.H. (2007). Quality of life in overweight youth: The role of multiple informants and perceived social support. Journal of Pediatric Psychology, 32, 869-874. Hughes, A.R., Farewell, K., Harris, D., & Reilly, J.J. (2007). Quality of life in a clinical sample of obese children. International Journal of Obesity, 31, 39-44. Makari, J., Zaborskis, A., Labanauskas, L., & Rageliene, L. (2007). The quality of life of children suffering from oncologic diseases in Lithuania. Medicina, 43, 726-735. Lai, J.S., Cella, D., Kupst, M.J., Holm, S., Kelly, M.E., & Bode, R.K. (2007). Measuring fatigue for children with cancer: Development and validation of the Pediatric Functional Assessment of Chronic Illness Therapy-Fatigue (pedsFACIT-F). Journal of Pediatric Hematology/Oncology, 29, 471-479. de Wit, M., Delemarre-van de Waal, H.A., Pouwer, F., Gemke, R.J., & Snoek, F.J. (2007). Monitoring health-related quality of life in adolescents with diabetes: A review of measures. Archives of Disease in Childhood, 92, 434-439. Tyler, C., Johnston, C.A., Fullerton, G., & Foreyt, J.P. (2007). Reduced quality of life in very overweight Mexican American adolescents. Journal of Adolescent Health, 40, 366-368. Klaassen, R.J., Blanchette, V.S., Barnard, D., Wakefield, C.D., Curtis, C., Bradley, C.S., Neufeld, E.J., Buchanan, G.R., Silva, M.P., Chan, A.K., & Young, N.L. (2007). Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: The Kids’ ITP Tools. Pediatrics, 150, 510-515. Flores, A., Alessandrini, E.A., Mattheuse-Kairys, M., Mistry, R., Fiks, A.G., & Kazak, A. (2007). Health related quality of life after an acute illness in emergency department (ED) and primary care (PC) settings. Pediatric Emergency Care, 23, 765-766. Young, H.K., Lowe, A., Fitzgerald, D.A., Seton, C., Waters, K.A., Kenny, E., Hynan, L.S., Iannaccone, S.T., North, K.N., & Ryan, M.M. (2007). Outcome of noninvasive ventilation in children with neuromuscular disease. Neurology, 68, 198-201. Page 24 of 37
  25. 25. www.pedsql.org Talarska, D., & Zgorzalewicz-Stachowiak, M. (2007). The influence of selected factors on the quality of life of children with headaches. Advances Medical Science, 52, Suppl. 1, 123-125. Wong, B.L., Hynan, L.S., & Iannaccone, S.T. (2007). A randomized, placebo-controlled trial of creatine in children with spinal muscular atrophy. Journal of Clinical Neuromuscular Disease, 8, 101-110. Ravens-Sieberer, U., Auquier, P., Erhart, M., Gosch, A., Rajmil, L., Bruil, J., Power, M., Duer, W., Cloetta, B., Czemy, L., Mazur, J., Czimbalmos, A., Tountas, Y., Hagquist, C., & Kilroe, J. (2007). The Kidscreen-27 quality of life measure for children and adolescents: Psychometric results from a cross-cultural survey in 13 European countries. Quality of Life Research, . Robitail, S., Ravens-Sieberer, U., Simeoni, M.C., Rajmil, L., Bruil, J., Power, M., Duer, W., Cloetta, B., Czemy, L., Mazure, J., Czimbalmos, A., Tountas, Y., Hagquist, C., Kilroe, J., & Auquier, P. (2007). Testing the structural and cross-cultural validity of the Kidscreen-27 quality of life questionnaire. Quality of Life Research, . Simenoni, M.C., Schmidt, S., Muehlan, H., Debensason, D., & Bullinger, M. (2007). Field testing of a European quality of life instrument for children and adolescents with chronic conditions: The 37-item Disabkids chronic generic module. Quality of Life Research, 16, 881-893. Oeffinger, D., Gorton, G., Bagley, A., Nicholson, D., Barnes, D., Calmes, J., Abel, M., Damiano, D., Kryscio, R., Rogers, S. & Tylkowski, C. (2007). Outcome assessments in children with cerebral palsy. Part I: descriptive characteristics of GMFCS levels I to III. Developmental Medicine and Child Neurology, 49, 172-180. Russo, R.N., Crotty, M., Miller, M.D., Murchland, S., Flett, P., & Haan, E. (2007). Upper-limb botulinum toxin A injection and occupational therapy in children with hemiplegic cerebral palsy identified from a population register: A single-blind, randomized, controlled trial. Pediatrics, 119, e1149-1158. Chak, M.H., Rahi, J.S., & Bccig, B.C. (2007). The quality of life of children with congenital cataract: Findings of the British Congenital Cataract Study. British Journal of Ophthalmology, . Stern, M., Mazzero, S.E., Gerke, C.K., Porter, J.S., Bean, M.K., & Laver, J.H. (2007). Gender, ethnicity, psychosocial factors, and quality of life among severely overweight, treatment-seeking adolescents. Journal of Pediatric Psychology, 32, 90-94. Hutchings, H.A., Upton, P., Cheung, W.Y., Maddocks, A., Eiser, C., Williams, J., Russell, I., Jackson, S., & Jenny, M. (in press). Adaptation of the Manchester-Minneapolis quality of life survey for use in the UK population. Archives of Disease in Childhood. Hainsworth, K.R., Davies, W.H., Khan, K.A., & Weisman, S.J. (in press). Development and preliminary validation of the child activity limitations questionnaire: Flexible and efficient assessment of pain-related functional disability. Journal of Pain. Dowie, R., Mistry, H., Young, T.A., Weatherburn, G.C., Gardiner, H.M., Rigby, M., Rowlinson, G.V., & Franklin R.C. (2007). Telemedicine in pediatric and perinatal cardiology: Economic evaluation of a service in English hospitals. International Journal of Technology Assessment in Health Care, 23, 116-125. Bagley, A.M., Gorton, G., Oeffinger, D., Barnes, D., Calmes, J., Nicholson, D., Damiano, D., Abel, M., Kryscio, R., Rogers, S., & Tylkowski, C. (2007). Outcomes assessments in children with cerebral palsy. Part II: discriminatory ability of outcome tools. Developmental Medicine and Child Neurology, 49, 181-186. Page 25 of 37
  26. 26. www.pedsql.org deBeer, M., Hofsteenge, G.H., Koot, H., Hirasing, R., Delemarre-van de Waal, H., & Gemke, R. (2007). Health-related quality of life in obese adolescents is decreased and inversely related to BMI. Acta Paediatrica, . Beijen, S.W., Snik, A.F., & Mylanus, E.A. (2007). Sound localization ability of young children with bilateral cochlear implants. Otology and Neurotology, 28, 479-485. Barr, L., Thibeault, S.L., Muntz, H., & de Serres, L. (2007). Quality of life in children with velopharyngeal insufficiency. Archives of Otolaryngology and Head and Neck Surgery, 133, 224-229. Brosig, C.L., Mussatto, K.A., Kuhn, E.M., & Tweddell, J.S. (2007). Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatric Cardiology, 28, 255-262. Sullivan, E., Barnes, D., Linton, J.L., Calmes, J., Damiano, D., Oeffinger, D., Bagley, A.M., Gorton, G., Nicholson, D., Rogers, S., & Tylkowski, C. (2007). Relationships among functional outcomes measures used for assessing children with ambulatory CP. Developmental Medicine and Child Neurology, 49, 338-344. Oladeji, O., Johnston, T.E., Smith, B.T., Mulcahey, M.J., Betz, R.R., & Lauer, R.T. (2007). Quality of life in children with spinal cord injury. Pediatric Physical Therapy, 19, 296-300. Chiu, M.C., Ng, C.F., Lee, L.P., Lai, W.M., & Lau, S.C. (2007). Automated peritoneal dialysis in children and adolescents – benefits: A survey of patients and parents on health-related quality of life. Peritoneal Dialysis International, 27, S138-S142. Varni, J.W., Lane, M.M., Burwinkle, T.M., Fontaine, E.N., Youssef, N.N., Schwimmer, J.B., Pardee, P.E., Pohl, J.F., & Easley, D.J. (2006). Health-related quality of life in pediatric patients with irritable bowel syndrome: A comparative analysis. Journal of Developmental and Behavioral Pediatrics, 27, 451-458. Seid, M., Varni, J.W., Cummings, L., & Schonlau, M. (2006). The impact of realized access to care on health-related quality of life: A two-year prospective cohort study of children in the California State Children’s Health Insurance Program. Journal of Pediatrics, 149, 354-361. Razzouk, B.I., Hord, J.D., Hockenberry, M., Hinds, P.S., Feusner, J., Williams, D., & Rackoff, W.R. (2006). Double-blind, placebo-controlled study of quality of life, hematologic endpoints, and safety of weekly epoetin alfa in children with cancer receiving myelosuppressive chemotherapy. Journal of Clinical Oncology, 24, 3583-3589. Varni, J.W., & Burwinkle, T.M. (2006). The PedsQL™ as a patient-reported outcome in children and adolescents with Attention-Deficit/Hyperactivity Disorder. Health and Quality of Life Outcomes, 4(26), 1-10. Goldstein, S.L., Graham, N., Burwinkle, T.M., Warady, B., Farrah, R., & Varni, J.W. (2006). Health-related quality of life in pediatric patients with ESRD. Pediatric Nephrology, 21, 846-850. McCarthy, M.L., Mackenzie, E.J., Durbin, D.R., Aitken, M.E., Jaffe, K.M., Paidas, C.N., Slomine, B.S., Dorsch, A.M., Christensen, J.R., & Ding, R. (2006). Health-related quality of life during the first year after traumatic brain injury. Archives of Pediatrics and Adolescent Medicine, 160, 252-260. Connelly, M., & Rapoff, M.A. (2006). Assessing health-related quality of life in children with recurrent headache: Reliability and validity of the PedsQL™ 4.0 in a pediatric sample. Journal of Pediatric Psychology, 31, 698-702. Page 26 of 37
  27. 27. www.pedsql.org Sherman, S.A., Eisen, S., Burwinkle, T.M., & Varni, J.W. (2006). The PedsQL™ Present Functioning Visual Analogue Scales: Preliminary reliability and validity. Health and Quality of Life Outcomes, 4:75, 1-10. Oddson, B.E., Clancy, C.A., & McGrath, P.J. (2006). The role of pain in reduced quality of life and depressive symptomology in children with spina bifida. Clinical Journal of Pain, 22, 784-789. Hassan, K., Loar, R., Anderson, B.J., & Heptulla, R.A. (2006). The role of socioeconomic status, depression, quality of life, and glycemic control in type 1 diabetes mellitus. Journal of Pediatrics, 149, 526-531. Meeske, K.A., Patel, S.K., Palmer, S.N., Nelson, M.B., & Parow. A.M. (2006). Factors associated with health-related quality of life in pediatric cancer survivors. Pediatric Blood and Cancer, . Mah, J.K., Tough, S., Fung, T., Douglas-England, K., & Verhoef, M. (2006). Adolescent quality of life and satisfaction with care. Journal of Adolescent Health, 38, 607.e1-607.e7. Zeller, M.H., Roehrig., H.R., Modi, A.C., & Inge, T.H. (2006). Health-related quality of life and depressive symptoms in adolescents with extreme obesity presenting for bariatric surgery. Pediatrics, 117, 1155-1161. Felder-Puig, R., diGallo, A., Waldenmair, M., Norden, P., Winter, A., Gadner, H., & Topf, R. (2006). Health-related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation: Results of a longitudinal, multi-center study. Bone Marrow Transplantation, 38, 119-126. Hays, R.M., Valentine, J., Haynes, G., Geyer, J.R., Villareale, N., McKinstry, B., Varni, J.W., & Churchill, S.S. (2006). The Seattle Pediatric Palliative Care Project: Effects on family satisfaction and health-related quality of life. Journal of Palliative Medicine, 9, 716-728. Willis, C.D., Gabbe, B.J., Butt, W., & Cameron, P.A. (2006). Assessing outcomes in paediatric trauma populations. Injury, 37, 1185-1196. Cremeens, J., Eiser, C., & Blades, M. (2006). Factors influencing agreement between child self- report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health and Quality of Life Outcomes, 4:58. Valenzuela, J.M., Patino, A.M., McCullough, J., Ring, C., Sanchez, J., Eidson, M., Nemery, R., & Delamater, A.M. (2006). Insulin pump therapy and health-related quality of life in children and adolescents with Type 1 diabetes. Journal of Pediatric Psychology, 31, 650-660. Brunner, H.I., Taylor, J., Britto, M.T., Corcoran, M.S., Kramer, S.L., Melson, P.G., Kotagal, U.R., Graham, T.B., & Passo, M.H. (2006). Differences in disease outcomes between Medicaid and privately insured children: Possible health disparities in juvenile rheumatoid arthritis. Arthritis Care and Research, 55, 378-384. Thomas, C., Mitchell, P., O’Rourke, P., & Wainwright, C. (2006). Quality of life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland. Journal of Pediatrics, 148, 508-516. Ding, R., McCarthy, M.L., Houseknecht, E., Ziegfeld, S. Knight, V.M., Korehbandi, P., Parnell, D., & Klotz, P. (2006). The health-related quality of life of children with an extremity fracture: A one-year follow-up study. Journal of Pediatric Orthopedics, 26, 157-163. Pirpiris, M., Gates, P.E., McCarthy, J.J., D’Astous, J., Tylkowksi, C., Sanders, J.O., Dorey, F.J., Ostendorff, S., Robles, G., Caron, C., & Otsuka, N.Y. (2006). Function and well-being in ambulatory children with cerebral palsy. Journal of Pediatric Orthopaedics, 26, 119-124. Page 27 of 37
  28. 28. www.pedsql.org Youssef, N.N., Murphy, T.G., Langseder, A.L., & Rosh, J.R. (2006). Quality of life for children with functional abdominal pain: A comparison study of patients’ and parents’ perceptions. Pediatrics, 117, 54-59. Zeller, M.H., & Modi, A.C. (2006). Predictors of health-related quality of life in obese youth. Obesity Research, 14, 122-130. Parekh, A.D., Trusler, L.A., Pietsch, J.B., Byrne, D.W., DeMarco, R.T., Pope, J.C., Adams, M.C., Deshpande, J.K., & Brock, J.W. (2006). Prospective, longitudinal evaluation of health related quality of life in the pediatric spina bifida population undergoing reconstructive urological surgery. Journal of Urology, 176, 1878-1882. Riddle, R., Ryser, C.N., Morton, A.A., Sampson, J.D., Browne, R.H., Punaro, M.G., & Gatchel, R.J. (2006). The impact on health-related quality of life from non-steriodal anti-inflammatory drugs, methotrexate, or steroids in treatment for juvenile idiopathic arthritis. Journal of Pediatric Psychology, 31, 262-271. Wysocki, T. and The Diabetes Research in Children Network Study Group. (2006). Psychological aspects of continuous glucose monitoring in pediatric type 1 diabetes. Pediatric Diabetes, 7, 32-38. Kolotkin, R.L., Zeller, M., Modi, A.C. et al. (2006). Assessing weight-related quality of life in adolescents. Obesity, 14, 448-457. Pinhas-Hamiel, O., Singer, S., Pilpel, N., Fradkin, A., Modan, D., & Reichman, B. (2006). Health-related quality of life among children and adolescents: Associations with obesity. International Journal of Obesity, 30, 267-272. Slomine, B.S., McCarthy, M.L., Ding, R., Mackenzie, E.J., Jaffe, K.M., Aitken, M.E., Durbin, D.R., Christensen, J.R., Dorsch, A.M., & Paidas, C.N. (2006). Health care utilization and needs after pediatric traumatic brain injury. Pediatrics, . Rudolf, M., Christie, D., McElhone, S., Sahota, P., Dixey, R., Walker, J., & Wellings, C. (2006). WATCH IT: A community based programme for obese children and adolescents. Archives of Disease in Childhood, 91, 736-739. Grilli L., Feldman, D.E., Majnemer, A., Couture, M., Azoulay, L., & Swaine, B. (2006). Associations between a functional independence measure (WeeFIM) and the Pediatric Quality of Life Inventory (PedsQL 4.0) in young children with physical disabilities. Quality of Life Research, 15, 1023-1031. James, M.A., Bagley, A.M., Brasington, K., Lutz, C., McConnell, S., & Molitor, F. (2006). Impact of prostheses on function and quality of life for children with unilateral congenital below- the-elbow deficiency. Journal of Bone and Joint Surgery, 88, 2356-2365. Lau, K.M., Chow, S.M., & Lo, S.K. (2006). Parents’ perception of the quality of life of preschool children at risk or having developmental disabilities. Quality of Life Research, Ismail, A., Campbell, M.J., Mohd Ibrahim, H., & Jones, G.L. (2006). Health-related quality of life in Malaysian children with thalassemia. Health and Quality of Life Outcomes, 4(1):39. Favreau, A., Legendre, A., Bergoend, E. et al. (2006). Quality of life of patients with total cavopulmonary anastomosis. Arch Mal Coeur Vaiss, 99, 463-469. Reinfjell, T., Diseth, T.H., Veenstra, M., & Vikan, A. (2006). Measuring health-related quality of life in young adolescents: Reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health and Quality of Life Outcomes, 4:61. Page 28 of 37

×