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Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
Medicaid Buy In - North Dakota
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Medicaid Buy In - North Dakota

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  • 1. Passing the Family Opportunity Act in North Dakota Donene Feist Executive Director Family Voices – ND Edgeley, ND (pop. 562) HRSA/MCHB Partnership Meeting October 2007
  • 2. 1 st in the country FOA passed in ND, April 11, 2007 North Dakota Gov. John Hoeven signed SB 2326. Sponsor: State Senators Tim Mathern and Dick Dever. Elizabeth is the daughter of Roxanne Romanick, was involved in the legislation and was present at the ceremony. Photography by Shannon Wirrenga
  • 3. The Outcome: FOA in ND Financial Eligibility - 200% of the FPL NET (49,000 children >18*) Premiums - 5% of monthly Gross income Out of pocket expenses: child care costs, medical, taxes withheld, etc.) SAMPLE $ 41,300 Family of 4 (ave. ND annual income $53,323 **) $ 117 average estimated monthly premium Healthcare Benefits Analysis determines if current out-of-pocket expenses outweigh cost of buying into Medicaid. SOURCES: * 2007 Child Care in the State of: ND * * U.S. Census Bureau, CPS 2006 Annual Social and Economic Supplement
  • 4.  
  • 5. Nothing is Easy in ND <ul><li>70% of the 53 counties, are considered frontier </li></ul><ul><li>only 13 cities have a population over 6,000 </li></ul><ul><li>Population density 9.3 persons per square mile </li></ul><ul><li>US 79.6 persons per sq mile </li></ul><ul><li>Extreme weather 9 months of the year </li></ul><ul><li>Contributes to isolation and travel difficulties </li></ul><ul><li>Summer highs: 109 degrees heat indexes 125 degrees </li></ul><ul><li>Winter lows: - 43 degrees wind chills of -100 degrees </li></ul><ul><li>ND residents embrace the tradition of the </li></ul><ul><li>frontier spirit with great pride, dignity and passion . </li></ul>
  • 6. <ul><li>74% Lack access basic health services </li></ul><ul><li>SOURCE: Block Grant FY’2006 </li></ul><ul><li>4-6 hr drive to “urban” areas for health care </li></ul><ul><li>Bismarck (pop. 55,532) -- or -- Fargo (pop. 90,599) </li></ul><ul><li>Some go to the Twin-Cities in Minneapolis </li></ul><ul><li>SSI does not mean automatic Medicaid in ND </li></ul><ul><li>ND is a 209(b) state: CT, HI, IN, IL, MN, MO, ND, NH, OK, OH, VA) </li></ul><ul><li>Requires separate Medicaid application, different requirements. </li></ul>ND Issues & Needs
  • 7. 12.4% 19,651 / 12.8% nationally 6.8% age 0 - 5 14.3% age 6 - 11 15.3% age 12 - 17 14.7% male 10.0% females CYSHCN in ND Prevalence rates are not significantly different from the national rates by age and gender. Source: DRC, 2006
  • 8. <ul><li>5 American Indian Reservations </li></ul><ul><li>2 Air Force Bases </li></ul><ul><li>Religious communities -- Brethrens & Hutterites/German origin </li></ul><ul><li>Large transient migrant population - agriculture </li></ul><ul><li>Emerging immigrant population </li></ul><ul><li>Kurdish, Arabic, Somali, Bosnian, and Vietnamese </li></ul>Underserved/Culturally Diverse
  • 9. <ul><li>Labor Force working mothers - children ages 0-17 </li></ul><ul><li>81.2 % vs national 69.1% / 2 nd in the country (SD is #1) </li></ul><ul><li>ND Kids Count, 2006 </li></ul><ul><li>Families of CYSHCN </li></ul><ul><li>21.8% had to quit their job; not take a job or </li></ul><ul><li>greatly change their job due to child care for their child. </li></ul><ul><li>DRC 2001 </li></ul><ul><li>Poverty </li></ul><ul><li>24 % Children live in poor and near poor families </li></ul><ul><li>Over half of the ND 53 counties, Child poverty rate exceeds the </li></ul><ul><li>state average of 16.8 percent </li></ul><ul><li>ND KIDS COUNT 2006 </li></ul>ND Frontier Spirit: Proud & Stoic
  • 10. <ul><li>Parents who have CYSHCN said …………. </li></ul><ul><li>30% Employment was affected </li></ul><ul><li>most said they had given up a paying job, accepted a lower paying </li></ul><ul><li>job with more flexibility or fewer demands, or had not changed jobs </li></ul><ul><li>because the change leads to losing benefits. </li></ul><ul><li>60% missed one or more days of work </li></ul><ul><li>due to their child’s special health care need </li></ul><ul><li>50% they had no paid sick leave or family leave </li></ul>Impact on Family
  • 11. 31.0% have public insurance SCHIP is not adequate 12.9% have had no insurance in the last 12 months 19.1% needed special services, equipment or other 24.0% Families experience financial problems due to child’s health needs 22.0% Families not able to pay for financial costs for their child’s health care needs. - 66% paid out of pocket expenses. - 40% amount for out of pocket was a financial burden DRC: 2001 Why ND Needed FOA: Data on of CYSHCN
  • 12. Quick Stories - before FOA passes
  • 13. What Would it Take to Get FOA passed? <ul><li>Education – Getting others interested </li></ul><ul><li>(Family Leaders, Consumers, Families, Providers, Legislators, Media) </li></ul><ul><li>Partnerships – Joining forces </li></ul><ul><li>Department of Human Services ie: Medical Services Division, Children’s Special Health Services, North Dakota Disabilities Advocacy Consortium, Children’s Caucus, Family Voices of ND, Protection and Advocacy workgroup which included advocacy groups </li></ul><ul><li>Bill sponsors – B ipartisan/Senators Fischer, Lee and Mathern, Representative Price and Schneider </li></ul><ul><li>Department Buy-In: Medicaid had heard much about the FOA through many avenues and through interim legislative committee as did many of the legislators. Department of Human Services instrumental in OAR. Medical Needs Task Force met before session which helped get folks “on the same page” </li></ul><ul><li>Staying on the Radar – public, families, legislators </li></ul>
  • 14. Previous Legislation that Sets the Stage - 01 <ul><li>2003 Home & Community Based Services </li></ul><ul><li>HB 1148: Relating to personal care services for eligible medical assistance recipients who are residing in their own homes; and makes permanent the personal care option for individuals eligible for the Medicaid Program. </li></ul><ul><li>It required the department to submit a waiver that would permit disabled and elderly individuals to direct their own care. (Passed) </li></ul>
  • 15. Previous Legislation that Sets the Stage - 02 <ul><li>2005 </li></ul><ul><li>HCR 3054 : A concurrent resolution directing the Legislative Council to study state programs providing services to children with special health care needs to determine whether the programs are effective </li></ul><ul><li>2005 </li></ul><ul><li>Senate Bill No. 2395 . Bill created a program for children with Russell Silver Syndrome and directed the DHS to apply for a waiver to provide in-home services to children with extraordinary medical needs who otherwise require hospitalization or nursing facility care. </li></ul>
  • 16. Education & Information: Not Lobbying <ul><li>Making the Case using State Data </li></ul><ul><li>- Insurance - Chart Book, 2006, Catalyst Center </li></ul><ul><li>- National CSHCN Survey, 2001, Data Resource Center </li></ul><ul><li>- Needs Assessment for proposed waiver, Medical Needs Task Force, Dept. of Human Services/Private insurance 2006 </li></ul><ul><li>- Family Unmet Needs and Costs, FV-ND Survey, 2006 </li></ul>
  • 17. Education & Information: Not Lobbying <ul><li>Educating through Information – packets & emails </li></ul><ul><li>- Fact sheets (easy to read and understand one pagers) </li></ul><ul><li>- Family Stories (booklet w/pics, putting a face to the issue) </li></ul><ul><li>- Promotional materials (events, resources for addl info) </li></ul><ul><li>- Informational alerts (email, fast track, calls/visits to State House) </li></ul><ul><li>- Testimonies (organized and not duplicative) </li></ul>
  • 18. The Roller Coaster Ride: Ups & Downs <ul><li>December/ 2006 Governor OAR list </li></ul><ul><li>December 2006-January 2007 Bill sponsors </li></ul><ul><li>January 22 2007 Senate testimonies, media blitz </li></ul><ul><li>February 9, 2007 Passed in the Senate </li></ul><ul><li>February 2007-March 2007 House complicated </li></ul><ul><li>March 8, 2007 Bill in trouble </li></ul><ul><li>March 2007 Families rallied, sent letters, </li></ul><ul><li>made calls, walked halls </li></ul><ul><li>Jan-March 2007 Alert statewide/providers, families </li></ul><ul><li>March 29, 2007 The Vote </li></ul>
  • 19. Blood, Sweat & Tears: Winning & Compromising <ul><li>OUTCOME: Bill passed and signed , April 11, 2007 </li></ul><ul><li>- 200% of FPL (family leaders had hoped for 300 FPL) </li></ul><ul><li>$ for waiver in addition to the Medicaid Buy-In included in the FOA Bill </li></ul><ul><li>Monitoring Needed: Tracking of denials and income </li></ul><ul><li>Education & Outreach maximized thru Partnerships </li></ul><ul><li>On-going education - Grassroots/families </li></ul><ul><li>(about the program, application process and paperwork) </li></ul>
  • 20. Advice with Hindsight: Tips for Title V Leaders <ul><li>Consumer Leadership Organizations are Allies </li></ul><ul><li>Conduct Annual Needs Assessment </li></ul><ul><li>- checking the pulse at the community level (tracking intake calls/emails) </li></ul><ul><li>- Access to families at the Community Level </li></ul><ul><li>-Informed consumers are terrific allies (freedom of speech-no job jeopardy) </li></ul><ul><li>Keeping a Face to the Issue </li></ul><ul><li>- Short IMPACT stories with pictures </li></ul><ul><li>- Capture ROI (return on investment) model. ie. Families can pay taxes </li></ul>
  • 21. <ul><li>FTE may be needed </li></ul><ul><li>It takes time to hire and train staff meanwhile others carry the work load </li></ul><ul><li>Need to add new eligibility group so changes required to the state MMIS system </li></ul><ul><li>Multiple competing issues after a session can make implementation difficult, can mean some lag time. </li></ul><ul><li>Ongoing communication needs to transpire with family organizations and among staff before, during and after implementation to assure everything is working properly </li></ul>Other Implementation Considerations
  • 22. Quick Stories - FOA passes
  • 23. <ul><li>Family Voices of ND </li></ul><ul><li>Donene Feist </li></ul><ul><li>Executive Director </li></ul><ul><li>fvnd@drtel.net / www.fvnd.org </li></ul><ul><li>701-493-2634 </li></ul>

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