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Engaging with the epatient

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Introduction to Social Media for patient group leaders and members of the healthcare community

Introduction to Social Media for patient group leaders and members of the healthcare community

Published in: Education, Technology, Business

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  • 1. Engaging with the ePatient @cdebie
  • 2. Who is the ePatient?
    • The engaged/empowered patient is actively involved in the management of his/her treatment, healthcare environment and related decision-making
    • The ePatient relies primarily on the web for information
    • The ePatient researches not only treatment options, but also physicians, healthcare facilities, reimbursement policies, and other patients’ experiences with a disease or therapy
    http://www.sa-pathways.com/new-health-consumer/the-rise-of-the-empowered-patient
  • 3. European Consumers Seeking Health and Pharmaceutical Information, How Technology and Evolving Media Choices Are Shifting the Landscape, White paper, Manhattan Research, 2007 Total adult consumers population in 10 countries 325 million Patients with chronic and severe diseases search 20% more on line (*) (*)Pew Internet & American Life Project August 2006 Survey (N=2,928).
  • 4. Social Media consists of all the online tools and platforms that people use to share opinions, insights, and experiences with each other 1 The passing of information in an informal, person-to-person manner 2 is called word-of-mouth or Buzz Users can monitor and analyse the online buzz in relation to topics and products in real-time and across a broad range of social media channels 1. Wikipedia at www.wikipedia.com 2. “The Anatomy of Buzz” by Emanuel Rosen site: http://www.emanuel-rosen.com/ What is social media and why does it matter?
  • 5. The evolution of media Rob Halks http://www.slideshare.net/ARJHalk/social-media-and-pharma
  • 6. What are the tools? The conversation prism – Brian Solis and JESS3 www.conversationprism.com
  • 7. Who is using Social media? Pharma: 35 Brand-sponsored patient communities 35+ Branded YouTube channels 30+ Twitter accounts Patients: 63 Non-branded patient communities Facebook, Twitter, YouTube… Physicians 42 Healthcare professionals communities Twitter http://www.doseofdigital.com/healthcare-pharma-social-media-wiki/
  • 8. Success of a social media programme relies on:
    • Sharing – the conversation must be two way: as much listening as talking
    • Timeliness – respond to current issues, be informed, be aware of current trends
    • Originality - Bring something unique and of value
  • 9. What are epatients looking for?
    • Information about their condition and disease management
    • Information about available treatments (efficacy, side effects, etc.)
    • Who is the best healthcare provider for them
    • Real-life outcomes from “patients like me”
    • A direct connection with their / an experienced physician, 24/7 
    • http://www.sa-pathways.com/new-health-consumer/the-rise-of-the-empowered-patient
  • 10. But ALWAYS remember It’s about people It is NOT about technology
  • 11. How to engage in this new world? C C ommitment C onnection C ontent C ollaboration 4
  • 12. What can YOU use Social Media for?
    • Connect with patients / patient organisations around the world to
      • Advocate for changes in policy
      • Improve disease /treatment awareness among physicians
      • Collaborate / share experience
      • Get recognition as professional entities with expertise
      • … and more
  • 13. Thank You
    • C. De Bie (@cdebie) is a communication professional in the healthcare industry with a strong interest in the use of social media for collaboration. Her views do not necessarily reflect those of the company she works for.