Rare Disease Video Portal Carlos Luis Sánchez Bocanegra Luis FernándezLuque
Index 0.1. Rare Disease 0.2. RD Video portal 0.3. Analysis & Deployment 0.4. Results & conclusions
Who Rare Disease Any disease affecting fewer than 200,000 are considered rare. There are nearly 7,000 such diseases affect...
Needs Rare Disease <ul><li>Affordability </li></ul><ul><li>Access to specialist </li></ul><ul><li>Access to therapies </li...
Rare Disease Video Portal (RD Video) Rare Disease Video Portal (RD Video Portal) is a Portal web were display all possible...
Index 0.1. Rare Disease 0.2. RD Video portal 0.3. Analysis & Deployment 0.4. Results & conclusions
RD Video Portal Popular views
RD Video Portal Top rated
RD Video Portal Glossary
RD Video Portal Glossary
RD Video Portal Video display
RD Video Portal Search engine
Index 0.1. Rare Disease 0.2. RD Video portal 0.3. Analysis & Deployment 0.4. Results & conclusions
Youtube API Analysis & deployment <ul><li>Youtube had near 100 millions videos on 2006, now in 2011 nobody can know this. ...
Youtube API Analysis & deployment Youtube open it access through Youtube API, there we can recollect all metadata for expl...
Drupal CMS Analysis & deployment Drupal is a Content Management System is recommended for most new websites. A large numbe...
Crawling videos Analysis & deployment <ul><ul><li>Get 379 vídeos  </li></ul></ul><ul><ul><li>From 12 channles of Youtube <...
Infrastructures Analysis & deployment We use Taskfreak project managment and subversion for control of version.
Infrastructures Analysis & deployment We use dokuwiki knowledge management.
Index 0.1. Rare Disease 0.2. RD Video portal 0.2. Analysis & Deployment 0.4. Results & conclusions
Results & conclusions <ul><ul><li>Strength </li></ul></ul><ul><ul><ul><li>The crawling take no more than 30 seconds to rec...
 
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Rare Diseases Video Portal (RD Videos)

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Rare Diseases Video Portal (RD Videos)

  1. 1. Rare Disease Video Portal Carlos Luis Sánchez Bocanegra Luis FernándezLuque
  2. 2. Index 0.1. Rare Disease 0.2. RD Video portal 0.3. Analysis & Deployment 0.4. Results & conclusions
  3. 3. Who Rare Disease Any disease affecting fewer than 200,000 are considered rare. There are nearly 7,000 such diseases affecting nearly 30 million affected persons. We also think that here represent all patients and families affected by rare diseases. We can find patient-driven alliance of patient organisations representing more than 469 rare diseases patient organisations in over 45 countries.
  4. 4. Needs Rare Disease <ul><li>Affordability </li></ul><ul><li>Access to specialist </li></ul><ul><li>Access to therapies </li></ul><ul><li>Comparative Effectiveness research </li></ul><ul><li>General recognition of rare disease </li></ul><ul><li>Some of this needs can be resolved by joining this families and patients together and promote the communication, Youtube help in this way to find this needs. </li></ul>
  5. 5. Rare Disease Video Portal (RD Video) Rare Disease Video Portal (RD Video Portal) is a Portal web were display all possible and existed videos using Youtube API.
  6. 6. Index 0.1. Rare Disease 0.2. RD Video portal 0.3. Analysis & Deployment 0.4. Results & conclusions
  7. 7. RD Video Portal Popular views
  8. 8. RD Video Portal Top rated
  9. 9. RD Video Portal Glossary
  10. 10. RD Video Portal Glossary
  11. 11. RD Video Portal Video display
  12. 12. RD Video Portal Search engine
  13. 13. Index 0.1. Rare Disease 0.2. RD Video portal 0.3. Analysis & Deployment 0.4. Results & conclusions
  14. 14. Youtube API Analysis & deployment <ul><li>Youtube had near 100 millions videos on 2006, now in 2011 nobody can know this. YouTube serves 100m videos each day. </li></ul><ul><li>As of February 2011, YouTube has 490 million unique users worldwide per month, </li></ul><ul><li>Estimated 92 billion page views each month. </li></ul><ul><li>We spend around 2.9 billion hours on YouTube in a month — over 325,000 years. </li></ul>
  15. 15. Youtube API Analysis & deployment Youtube open it access through Youtube API, there we can recollect all metadata for exploring videos an mix with other platforms
  16. 16. Drupal CMS Analysis & deployment Drupal is a Content Management System is recommended for most new websites. A large number of modules and themes are already available for it. Its adaptability and great numbers of modules give to developers big flexibility for create adapted frameworks for deploying with a minimal efford.
  17. 17. Crawling videos Analysis & deployment <ul><ul><li>Get 379 vídeos </li></ul></ul><ul><ul><li>From 12 channles of Youtube </li></ul></ul><ul><ul><li>AlbinismUK </li></ul></ul><ul><ul><li>CCFFadmin </li></ul></ul><ul><ul><li>CysticFibrosisUSA </li></ul></ul><ul><ul><li>Eurordis </li></ul></ul><ul><ul><li>HFHealthcare </li></ul></ul><ul><ul><li>MoreThanHemophilia </li></ul></ul><ul><ul><li>NHFvideo </li></ul></ul><ul><ul><li>NOAHAlbinism </li></ul></ul><ul><ul><li>ParentProjectMD </li></ul></ul><ul><ul><li>Rarediseaseday </li></ul></ul><ul><ul><li>Raredisorders </li></ul></ul><ul><ul><li>WFHcommunications </li></ul></ul>
  18. 18. Infrastructures Analysis & deployment We use Taskfreak project managment and subversion for control of version.
  19. 19. Infrastructures Analysis & deployment We use dokuwiki knowledge management.
  20. 20. Index 0.1. Rare Disease 0.2. RD Video portal 0.2. Analysis & Deployment 0.4. Results & conclusions
  21. 21. Results & conclusions <ul><ul><li>Strength </li></ul></ul><ul><ul><ul><li>The crawling take no more than 30 seconds to recover the channles. </li></ul></ul></ul><ul><ul><ul><li>Drupal flexibility make more easy the adaptation of RD Videos -> Commodities on Drupal. </li></ul></ul></ul><ul><ul><ul><li>Ajax objects in some modules of drupal make the portal confortable -> usability. </li></ul></ul></ul><ul><ul><li>Weakness </li></ul></ul><ul><ul><ul><li>PHP languages need to improve for a real MVC framework. </li></ul></ul></ul><ul><ul><ul><li>Drupal has a complex way for a obsolete objects. </li></ul></ul></ul><ul><ul><ul><li>Drupal will need to promote on 7 versión. </li></ul></ul></ul><ul><ul><ul><li>Complete accesibility: not only video html compliance. </li></ul></ul></ul><ul><ul><ul><li>Better design. </li></ul></ul></ul>

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