Reflex sympathetic dystrophy, what is itPresentation Transcript
Reflex Sympathetic Dystrophy, what isit?
Reflex Sympathetic Dystrophy aka RSD is adisease caused by an injury (unusually minor)or surgery done due to an injury. Everyone hasa Reflex nerve. What occurs is when you areinjured your Reflex Nerve does not shut off.When someone gets hurt they feel pain, thansome burning as the healing process startsthe pain goes away as well as the burning.With RSD its a progressive disease of theAutonomic Nervous System. It involves thenerves, skin, muscles, blood vessels (causingconstriction and pain) as well as bones. Whenthe injury occurs instead of the symptomsgoing away the pain gets worst.
The burning sensation within the injury site is so bad youfeel like your on fire underneath the skin. The way toexplain the burning is if you have a cut and gasoline gets init, multiple by 10 dealing with this 7/24. Other RSDersdescribe the burning as a red hot poker being inserted intothe effect site. The sympathetic nerve does not shut off.RSD spreads as well in 75 % of people that have it. Manypeople with RSD develop full body RSD. This means when Ihit my R. tibia within a month RSD spread to my left leg.There is no cure for this disease. On the McGill PainIndex, Arthritis is 18, a fracture is 19, Cancer pain is26, Chronic pain is rated at 27, and RSD is rated at 42. Ithas the highest rating for pain. Anyone can get RSD. At thetime I was DX with it there were 7,000,000 report cases inthe US alone. This number has increase in the year 2000 toover 12,000,000 people in the US. Put this number togetherwith other countries and we are talking over 50,000,000with RSD.
Symptoms of RSD are: Constant chronic burning pain, present 24hours a day, 7 days a week, Inflammation in the form of Edema (Ihave Edema +2), discoloration of the skin called mottling. (When Ifirst got injured the site was purple within a few weeks I had purpleand pink mottling on both legs), you bruise extremely easy andrashes appear. I also get what they call RSD lesions. Spasms inblood vessels and muscles of the extremities. I call the spasmsGrippers. When they occur it feels like your muscles are crushingyour bones. My doctor also writes down Grippers. They cannot berubbed out or touched at the time they occur. I have found Zanaflexor Klonpin helps with the Grippers extremely well. Due to the painbeing so bad the air touching your skin hurts. I could not lay downon sheets. I have not worn pants since 1994. I go to doctors in zerodegree weather with shorts on. With all the pain comes Insomnia,Emotional Disturbance and of course depression.
Anyone can get RSD it seems to strike women morethan men, but each day I am meeting more men withRSD. The age group is 3 years of age to 103. What isimportant about all the above is if you have any ofthese symptoms its important to realize you are notcrazy, nor are you losing your mind. There is moreawareness of RSD today than there has been in years.There are many doctors that treat RSD. The besttreatment is with opiates. Its very important to keepthe pain under control. Its very important to stayactive as possible. Without pain meds. there is no wayof functioning. When you have RSD light bothers you,sound bothers you, clothing, sheets, a breeze, loudnoises or even vibrations can cause an extremeamount of increased pain to a RSDer.
Many RSDers were very active before being afflictedwith this disease. Extremely hard workers, always onthe go. I have RSD in both legs and upper body aswell. When you touch the skin its ice cold, yet whentested for pulse rates <knock on wood> all wasnormal. No one believes you in the beginning and youfind out that you must listen to your own body andtake what ever will help you.http://www.workerscompensationinsurance.com/articles/rsd_rebel.htm
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