Organising state level children consultation module march 2014
STATE LEVEL CONSULTATION
Adolescents living with and affected by HIV
Prepared by Jeyapaul Sunder Singh, Buds of Christ
for UNICEF and PWN+
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This module is developed by
Jeyapaul Sunder Singh, Buds of
Christ for PWN+ and UNICEF,
India to organise State Level
Consultation for Adolescents
living with HIV and affected by
HIV and AIDS in six target
states. State level
consultations were organised
from September to December
2013 in 5 states; Tamilnadu,
Nagaland and Uttar Pradesh.
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Facilitator Module for State levelFacilitator Module for State levelFacilitator Module for State levelFacilitator Module for State level
Consultation for Adolescents livingConsultation for Adolescents livingConsultation for Adolescents livingConsultation for Adolescents living
with or affected by HIV and AIDSwith or affected by HIV and AIDSwith or affected by HIV and AIDSwith or affected by HIV and AIDS
The consultation module has been prepared to facilitate that the voices of adolescents living
with and affected by HIV and AIDS are heard and are represented to the various
stakeholders. The consultation also encouraged the involvement of women living with HIV
as facilitators and training on the module was organised for the selected women prior to
every state consultation.
The module has been developed to fulfill the following Objectives:
To provide active and meaningful participation of adolescents in finding solutions to
their needs along with Govt officials in the implementation of 12th
five year plan
To highlight the needs and concerns faced by adolescents living with and affected by
To empower and enable adolescents living with and affected by HIV to effectively
present their recommendations in the implementation of 12th
five year plan.
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SESSION 1: Welcome and Introduction
TIME: 9:30 TO 10:00
OBJECTIVE: To enable participants understand the purpose of the consultation and their role in
A formal welcome to the participants will be made by the board member of Positive women
Network. The purpose of the consultation and the expected roles of the participants will be
presented through a power point by the key representative.
Representatives from State UNICEF office can share the purpose and importance of having this kind
SESSION 2: Getting to know one another
• know each other better
• Built trust among each other and enabling environment set by framing
1. Name Game and Setting Ground Rules using Balls
This is an introductory exercise to help the participants remember the names of each other better.
First each participant will express their name aloud and this will until all in the group have expressed
their name. Then the facilitator will start the activity by throwing the ball at the person opposite to
him/her and calling out the participant’s name. For e.g facilitator will call out the person, Rani and
throw the ball to Rani. Then Rani should throw the ball to the person opposite to her in the circle by
calling out the name. This will continue until all the names in the group are called out. The ball
should move around the group and return back to the facilitator.
Once all the group members have received and thrown the balls, now the facilitator will introduce
by saying, that some more balls will be thrown now, but each one should throw the ball only to the
same person that they threw the previous round. Rules need to be strictly followed to enable
success of this ball game.
As there will be many who will be missing out the ball, some would no throw to the same person
that they threw the previous time. Thus the facilitator says that success of any activity depends on
following the rules laid in the activity. Similarly success of this consultation is entirely based on
following what has been said here and actively participating and contributing to the overall success
of the consultation.
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The facilitator then can ask someone in the group to list the ground rules to be followed in the
2. Identifying similarities:
This activity encourages young people to interact with each other and find more about one another
• All the participants are asked to stand in a circle
• Then facilitator will ask the participants to pair up with anybody they want to know more in
the circle and identify three similarities, which can range from hobbies, likes, dislikes, food,
color etc. The facilitator instructs the participants that each pair will be given two minutes
and then at the word of CHANGE, they have to move to another person.
• Facilitator should instruct the group that they have to remember the person and the
similarity they have, as they need to share at the end of the activity
• This will continue, until each person identifies at least 3 different persons and identify the
similarities they have found in each of the three persons.
This may be confusing for few adolescents, but with encouragement it can help the group know
about each other better.
At the end, the facilitator will ask each participant to share the similarities they found in the group
3. Team building games:
This is to build the team strength. This is important to divide the group according to the age group.
13-15 years and 16-18 years is ideal.
Divide them into 4 groups and organize team building games-
Examples can be-
• Throwing balls into the basket
• Passing the ball with your over your head or between your legs
• Forming the longest line using things of the group members.
• Filling a bowl with dhal using a straw
Any two games can be organized to mingle with each other very well and build as a team
4. Hopes and fears
This is a good way to step back from the content of the process and allow participants to Share any
worries or misconceptions they might have brought with them.
• Participants are divided into small groups of 4-6 people and each group is given a piece of
• Each group is asked to write down any fears or concerns that they may have had before
coming. This should be done quickly (5 minutes). Each group is then asked to report back to
• The facilitator then has the opportunity to empathize and reassure the participants and give
any relevant information about the process that may previously have been unclear.
• The facilitator can then ask the question ‘What can I/We do to reduce your Concerns’.
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• This may lead onto a discussion of ground rules. The list of ground rules is written on a chart
and pasted on the wall.
TEA BREAK – 11:15 to 11:30
SESSION 3: our role in the consultation
• understand their role in the consultation
• Realize that personal experiences of the young people are the strong
backbone of the consultation.
Activity 1: Revising the objectives of the consultation
• Divide them into three groups and ask them to write the objectives of the consultation as
understood by them in their own local language and how do they see their
roles/participation in this training.
• Emphasize that their role and experiences are very crucial in the consultation.
Activity 2: Visualization/ River of life exercise:
• A visualization exercise will be present to the group, helping them to visualize the situation
in line with their own life.
• Divide the participants into smaller group of 5 and 6 members in each group.
• Give 5 cards to each participant
The facilitator starts the exercise asking all the participants to close their eyes. Allow few seconds to
observe all of them have closed their eyes and then tell them to take three deep breath. Tell the
participants in very soft tone to feel the breath and then tell them to think as the facilitator leads
I awake from bed, the sun-rays fall on my eyes, but still I want to sleep, but I hear a voice saying
wake–up it’s 7 am already, you are already late.
With much hesitation I get up from bed. The person offers me a tea and then I do the routine tasks
for the day. As I was eating my breakfast, they came and kept a big tablet and asked me to take it
after food. I was hesitant, but the person told me; to be strong I should take it, I took it with very
strong feelings. This was when I was 9 years old. Then I went to school, I sometimes feel faintish
and sometimes had vomiting sensation, but I did not understand why, but went along with my
lessons in school and enjoyed being there with my friends. After school hours I came back from
school, I had my dinner and took the tablet.
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This went on as a routine until I was 13 years old, when I realized what was affecting me. This was
the day when I learnt I had an infection for which there was no cure and the person who is taking
care of me told that I need not worry, as the tablets I take will keep me healthy. Though it was
good to hear, I found it difficult to take it when I had learnt that I have to live with an infection
life-long for which there was no cure.
Slowly this feeling started affecting me, I started becoming so conscious of the status. When I
wake up I sometimes when I think about my condition, it makes me feel……
When I have to swallow my tablet in the morning, I feel…..
When I go to school……when I think about my status I feel…….
When I play with my friends and sometimes wanted to share this secret which keeps me away
from them, I feel…….
When In science class my teacher talks on the subject of HIV, I feel
When my friends talk about relationships and future partners, I feel…..
When people in my neighborhood talk about HIV, I feel………
Now that I am here, I feel………
My fears, My feelings, My future, My questions, My life
• Allow few sec, and then tell the participants to slowly open their eyes; take deep breaths
and ask them to express 5 strong issues that come to their mind because of their condition.
Ask them to pen it down in the 5 cards that have been kept in front of them.
• Collect the cards within the smaller group.
• Give each group a chart, with the following heading, the group facilitator have to ask the
members to share the past challenges they faced in life and how did they overcome that
through the various support they accessed.
Then in their own group, the participants can list down the expressions under the following
Past challenges and fears Coping mechanisms and the support
This can then be presented by the group members to the larger group.
An ice-breaker can be done to help group relieve from the rigorous brain work.
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Knot Game –This game can be used to help participants understand that currently our situations and
experiences may look like we are knotted, but now supporting each other, we can try to unwind
ourselves and also be a support to others.
LUNCH BREAK – 1:00 to 2:00
SESSION 4: Free listing of Pressing issues using Scenarios
TIME: 2:00 TO 3:30
• Document the positive and challenging experiences of adolescents in various
programme areas and services (health care setting, education, community,
neighborhood, friends and relatives)
1. Scenario cards
2. Group work (4-5 groups)
1. My name is Ramu and I am 15 years old and HIV positive. I have been told my CD4 is low and
have to start my treatment immediately. Where should I go and how will they help me with
the treatment process? (ART Center)
2. My name is Seetha. I am 17 years old and living with HIV. I am living with my grandparents. I
am currently on ART treatment. I dropped out of school, because I could not perform well in
my academics. Now my grandparents who do not understand anything about HIV wants me
to get married and do not want the bride-groom family to know about my HIV status. I also
liked the groom very much, so if I need to get more information about this and make wise
decision, do you know where should I go? (ART Counseling - SRH)
3. My name is Rani and I am studying 9th
standard .As I am living with my widowed mother and
my mother is not able to manage the family with the income she earns. She wants me to
stop studying and go along with her to work, so that my younger sister and brother are
looked fine. Is there a possibility for me to do my studies, without burdening my family?
Friends if you know can you help me in this. (Incentives to Girls for Secondary Education)
4. My name is Meena, and I am 14 years old. I notice some physical changes in my body, like
hair growth under my arms, breast development etc. I have also attained puberty and I get
my monthly periods, but not very regular. My mother tells me to use cloth, but I have
discomfort using it. But because we do not have much money, my family cannot afford
buying napkins. Is there any support I can get to know why these changes happen to me? Is
it normal for girls like me? (ARSH Clinic – NRHM)
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5. My name is Suresh. I could not clear my 10th
exams and re-attempt was a failure. I want to
study further, but I find it very difficult to study the current syllabus pattern and have no
hopes that I could clear my 10th
exams. I am not able to go for work, because I am physically
weak. Is there any option or support for me friends? (Open Schools – NCVT)
6. My name is Rita, I am 15 years old. I trust you will help me out of this situation. My mother’s
brother touches in places I do not like, especially in my private areas. I find it very difficult
and sometimes when I think I feel ashamed. I am scared to share it to my mother as I know
she will not believe what I say. My uncle also threatens me not to say to my mother. Is there
any help I can get, do you know where I should approach on this matter? (Child line – ICPS)
7. Hi my name is Sakthi. I am 16 years old .My friend told me that HIV is an infection that can
spread through casual touch and can easily identify a person by his/her appearance. I know
that HIV does not spread like that, but it would be hard for me to share the fact as I have not
shared my affected status. How can I clarify my friend within school where we can get clear
and right information about HIV and AIDS? (AEP – School AIDS Awareness)
8. My name is Rosy. My parents have both died of HIV and AIDS. I am looked after by my
grandmother. She is very good but restricts me going out with my friends. My friends tell me
that this is the age to enjoy and should stop listening to my grandmother and do what I like. I
have a deep respect for my grandmother, so I do not want to do anything that will hurt her,
at the same time I do not want to let go of my friends. Is there any special programme or
classes that will help me handle such situations. I also want to know how to set goals for
life? Do you know of those sessions, is it handled in school, can you guide me on this?
(SABLA – Life Skills)
The larger group will go back to their smaller groups. Each group will be provided with two to three
scenario cards to write and share their positive and negative experiences in each scenario in a given
Positive Experiences Negative Experiences
Once the smaller groups complete these experiences listing on the chart.
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A quick role play can be done by each group enacting their experiences of the one scenario card (can
be video recorded and note down the dialogues presented to understand deeper real issues).
While the presentations are made for all the scenarios smaller group. The charts will be pasted on
The second group will further add on the experiences for the scenario under the same headings and
this follows for all the groups.
The experiences from adolescents for each scenario will be done every 2 minutes which will be done
by a facilitator at the call CHANGE, so that other group member’s ideas are brought out on the
TEA BREAK: 3:30 to 3:45
SESSION 5: Govt Department Services for Adolescents – A presentation
TIME: 3:45 TO 4:30
• Participants gain an understanding on the Various programmes and services
• Experiences are clubbed together to specific areas or programs (ex. Health
Dept, ministry of women and child ,NRHM, SACS etc)
1. A power point presentation is made by a lead facilitator and questions are asked if they have
2. A simplified version on the various programmes and schemes are given to the adolescents.
SESSION 6: Matching issues to the schemes and programmes
TIME: 4:30 TO 6:00
• Match the issues together to specific areas or programs (ex. Health Dept,
ministry of women and child, NRHM, SACS etc)
• Gaps are identified and Needs of adolescents are listed
Divide the groups according to the programmes and departments that provide the services. make it
as two walls for each department
STATE AIDS CONTROL SOCIETY
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Thank you Your kind attention please
Access to free ARV drugs -
(has motivated me to live
positively)(this is to be taken from
the positive experiences scenario
cards made by children)
Child/adolescent friendly treatment counseling is not
focused specifically for us (sometimes I am casual on
treatment particularly during my adolescent stage)
CD 4 Testing Facility (expression of a
child on this taken from scenario
Ask the participants, to list down the successes/benefits (can be shown in different colour) and the
negative they have received on one side of the wall. Flip charts for each program areas.
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Recap of the previous day followed by few energizers
SESSION 7: Converting emerging issues to Dream Tree
TIME: 9:30 TO 11:00
• Emerging issues that have been unaddressed in the existing programmes are
If there are other issues and concerns that are unaddressed and could not be matched with any
programmes from the scenario experiences and from 5 concerns and fear cards;
Make a separate chart as emerging issues and display it as dream tree exercise
Trunk: Unaddressed issues
Leaves: Recommendations for each issues
TEA BREAK - 11:00-11:15
SESSION 8: Displaying the work and rehearsing for Advocacy Event
TIME: 11:15 TO 1:00
• Be informed and well rehearsed on how to present their issues to relevant
• Presentation styles by each group are decided and rehearsed for the Advocacy event
• PowerPoint presentation on emerging core issues and recommendations are prepared and
an adolescent is prepared to share to the stakeholders
• Setting up the display of work done by adolescents
LUNCH BREAK – 1:00 to 2:00
SESSION 9: Advocacy Event with State Govt officials
TIME: 3:00 TO 5:00
• present their issues to relevant department officials
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• Govt officials and other stakeholders will respond to their issues
• Govt officials commit on certain policy level and program level changes
• Follow up action plan and pointers are prepared
1. Presentation of the 2 day state consultation process to participants and guests
2. Presentation by groups (Group presentation)
3. Responses from Govt Officials
4. Vote of Thanks followed by HIGH TEA
GROUP PHOTO SESSION