0
Palliative Care & Hospice Care –
Attitude & Usage Trends Among
African American and Hispanic
Populations
Kristen Cox Santi...
FINDINGS
Challenge in levels of awareness, education, and trust
Overview of Palliative Care and
Hospice Care Knowledge and
Wants
Palliative Care Hospice Care
AA HS AA HS
Knowledge 22% 40...
4
* Suggests significant differences at 95% confidence level
Q1. Knowledge of
palliative care
(before hearing a
definition...
When should you or your loved
one receive palliative care?
50%
51%
64%
49%
54%
36%
38%
21%
42%
34%
8%
8%
5%
2%
6%
6%
3%
11...
When should you or your loved
one receive palliative care?
Loved one HS
Self HS
Loved one AA
Self AA
Total
51%
50%
60%
42%...
Palliative Care
• Low level of knowledge
• Opportunity to educate about the timing of PC
• Doctor/ caregiver as most trust...
Overview of Palliative Care and
Hospice Care Knowledge and
Wants
Palliative Care Hospice Care
AA HS AA HS
Knowledge 22% 40...
Cayenne Global, LLC 2009©
Overview of Hospice Care Knowledge/Attitudes
9
What do you think about hospice care?
* Suggests ...
10
* Suggests significant differences at 95 % confidence level
32% 28%
22% 27%
43% 44%
4% 2% At the time of
diagnosis
Duri...
Where do people prefer to die?
9% 8%
40% 40%
8% 8%
33% 41%
10% 3%
Hospital
Home
Outside of home in
a hospice setting
In an...
12
* Suggests significant differences at 95 % confidence level
49% 47%
14% 18%
10%
14%
24%
20%
3% 1%
Doctor
Nurse, physici...
87%
76%
82%
89%
Self cancer Loved one cancer
AA
(N=301)
(N=45) (N=256) (N=54) (N=245)
HS
(N=299)
81%
91%
86%
82%
Below Col...
14
* Suggests significant differences at 95% confidence level
58%
70%
75%
75%
78%
79%
79%
84%
86%
89%
88%
88%
59%
63%
73%
...
Hospice Care
• Not discussed early in the process
• Preference to die outside of a hospital
• Misinformation
• 21% of AA a...
Thank you
Kristen Cox Santiago
kcoxsantiago@c-changetogether.org
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Transcript of "Kristen santiago –attitude & usage trends among african american and hispanic populations"

  1. 1. Palliative Care & Hospice Care – Attitude & Usage Trends Among African American and Hispanic Populations Kristen Cox Santiago June 27, 2013
  2. 2. FINDINGS Challenge in levels of awareness, education, and trust
  3. 3. Overview of Palliative Care and Hospice Care Knowledge and Wants Palliative Care Hospice Care AA HS AA HS Knowledge 22% 40% 50% 56% Want 71% 81% 57% 68%
  4. 4. 4 * Suggests significant differences at 95% confidence level Q1. Knowledge of palliative care (before hearing a definition) Q2. how likely would you be to want palliative care? Q5. It is important that patients and their families be educated about palliative care Q6. Discussions with my doctor/ healthcare provider Q7. How comfortable are you discussing or recommending palliative care to a loved one? Q8. How comfortable are you asking your doctor or healthcare provider for palliative care? Top 2 (very knowledge/very likely/strongly agree/very comfortable) African- American (N=301) 22% 71% 80% 81% 69% 77% Hispanic (N=299) 40% 81% 85% 85% 79% 80% Total (N=600) 31% 76% 83% 83% 74% 79% Overview of Palliative Care Knowledge/Attitudes
  5. 5. When should you or your loved one receive palliative care? 50% 51% 64% 49% 54% 36% 38% 21% 42% 34% 8% 8% 5% 2% 6% 6% 3% 11% 6% 6% Female HS Male HS Female AA Male AA Total Starting at the beginning of treatment When really sick At the end of life Don't know/not sure (N=132) (N=169) (N=156) (N=143)
  6. 6. When should you or your loved one receive palliative care? Loved one HS Self HS Loved one AA Self AA Total 51% 50% 60% 42% 54% 38% 35% 29% 38% 34% 7% 13% 2% 11% 6% 5% 2% 9% 9% 6% Starting at the beginning of treatment When really sick At the end of life Don't know/not sure (N=45) (N=256) (N=54) (N=245) (N=600)
  7. 7. Palliative Care • Low level of knowledge • Opportunity to educate about the timing of PC • Doctor/ caregiver as most trusted source of information • People want to receive PC
  8. 8. Overview of Palliative Care and Hospice Care Knowledge and Wants Palliative Care Hospice Care AA HS AA HS Knowledge 22% 40% 50% 56% Want 71% 81% 57% 68%
  9. 9. Cayenne Global, LLC 2009© Overview of Hospice Care Knowledge/Attitudes 9 What do you think about hospice care? * Suggests significant differences at 95% confidence level Q10. Knowledge of hospice care (before hearing a definition) Q11. How likely would you be to consider hospice care? Q12. Increase quality of life Q13. Decrease length of life Q15. Patients receiving hospice care should also have the option to receive treatment Q16. It is important that patients and their families be educated about hospice care Top 2 (very knowledge/very likely/strongly agree/very comfortable) African- American (N=301) 50% 72% 55% 21% 83% 86% Hispanic (N=299) 56% 75% 70% 21% 87% 90% Total (N=600) 53% 74% 63% 21% 85% 88%
  10. 10. 10 * Suggests significant differences at 95 % confidence level 32% 28% 22% 27% 43% 44% 4% 2% At the time of diagnosis During serious illness When illness is considered terminal Don't know/not sure Hispanic (N=299) African-American (N=301) (C) (D) * Suggests significant differences at 90 % confidence level When should discussions about hospice care take place with seriously ill patients?
  11. 11. Where do people prefer to die? 9% 8% 40% 40% 8% 8% 33% 41% 10% 3% Hospital Home Outside of home in a hospice setting In any setting as long as you're surrounded by loved ones Don't know/Not sure Hispanic (N=299) African-American (N=301)
  12. 12. 12 * Suggests significant differences at 95 % confidence level 49% 47% 14% 18% 10% 14% 24% 20% 3% 1% Doctor Nurse, physician assistant Caregiver Close friend or relative Don't know/not sure Hispanic (N=299) African-American (N=301) * Suggests significant differences at 90 % confidence level Who would you trust more to discuss hospice care options with?
  13. 13. 87% 76% 82% 89% Self cancer Loved one cancer AA (N=301) (N=45) (N=256) (N=54) (N=245) HS (N=299) 81% 91% 86% 82% Below College College & Above (N=197) (N=103) (N=156) (N=142) AA (N=300) HS (N=298) 13 87% 87% 80% 86% Male Female AA (N=301) (N=132) (N=169) (N=156) (N=143) HS (N=299) (A) (B) (C) (D) (E) (F) (G) (H) (I) (J) (K) (L) Desire for concurrent care
  14. 14. 14 * Suggests significant differences at 95% confidence level 58% 70% 75% 75% 78% 79% 79% 84% 86% 89% 88% 88% 59% 63% 73% 78% 77% 84% 84% 84% 87% 87% 89% 90% 58% 66% 74% 76% 78% 82% 82% 84% 87% 88% 88% 89% Dying at home Saving an inheritance for my family Staying active (work, school, hobbies) Mobility Trying every therapy possible Ability to eat Spiritual peace Minimizing burden on my family Minimizing suffering Emotional well-being Minimizing pain Quality time with loved ones Total AA HS (N=600) (N=301) (N=299) (A) (B) (A) * Suggests significant differences at 90 % confidence level Important Factors
  15. 15. Hospice Care • Not discussed early in the process • Preference to die outside of a hospital • Misinformation • 21% of AA and HS believe that Hospice Care will decrease the length of life • More AA men than AA women believe HC will decrease length of life • Role of doctor/caregiver as key source of information • 2/3 of AA trust medical professionals (doctors, nurses, PAs) the most to discuss hospice options with
  16. 16. Thank you Kristen Cox Santiago kcoxsantiago@c-changetogether.org
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