Peer Navigation Program for people newly diagnosed with HIV
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Peer Navigation Program for people newly diagnosed with HIV

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Glen Bradford, BC PWA, presented at the 2010 Gay Men's Health Summit.

Glen Bradford, BC PWA, presented at the 2010 Gay Men's Health Summit.

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    Peer Navigation Program for people newly diagnosed with HIV Peer Navigation Program for people newly diagnosed with HIV Presentation Transcript

    • NEWLY DIAGNOSED SERVICES:
      • WORKSHOP SERIES
      • PEER NAVIGATORS
    • Background information about people newly diagnosed with HIV (ND/HIV)
      2
    • Models in diabetes and cancer based health care have been exploring supportive education bridges to...
      • fill the gap after getting a new diagnoses,
      • delay disease progression and
      • improve access to treatment and community based programs.
      BCPWA has two new models designed to address similar goals for people newly diagnosed with HIV.
      Year 1: Workshop Series for Gay Men
      Newly Diagnosed with HIV
      Year 2: Workshop Series for People
      Newly Diagnosed with HIV
      Year 3: Development of Peer Navigators
      3
    • 2 Overall Project Goals
      Educate people ND/HIV about the value of care and treatment.
      Prevent disease progression and transmission.
      • Stopping or reversing disease
      progression saves lives.
      • Engage people when they
      are highly infectious,
      depressed and at risk for
      transmitting the virus.
      Key influences:
      • Antiretrovirals are perceived as being
      asbad as HIV itself.
      • The healthcare system can be confusing
      and disempowering.
      • HIV Organizations can seem
      inaccessible.
      • Doctors lack the time to educate patients
      with basic HIV knowledge.
      4
    • Project Vision
      Promote HIV as a manageable chronic illness by...
      • Accurate
      • Demystify
      • Hopeful
      • Realistic
      providing the right information,
      • Non-clinical, accessible
      language
      • Relevant to the new cohort
      • Newly diagnosed with HIV
      • Information naïve and “triggered” to learn
      • Don’t know they are HIV+
      for a targeted group of people,
      • Safer sex talk during a crisis point is ineffective and
      insensitive. (partner notification and safer sex)
      • Where you are on the disease continuum
      when newly diagnosed is important.
      at the right time.
      5
    • Structure
      Peer Navigators
      Workshop Series
      • A series of three - one to one
      discussions designed to educate and
      empower.
      • People ND/HIV direct their
      own care and support needs.
      • Navigator assess needs and guides
      the process under which they gain
      knowledge and skills about their
      health.
      • A two day series of workshops
      designed to educate and empower.
      • More structured, less self directed.
      • Share and ask questions with others
      who are ND/HIV.
      • Decreases shame based isolation.
      • Both provide a safe and confidential space.
      6
    • Curriculum content is the same in both programs.
       
      • the new realities of living with HIV as an chronic illness – dispelling
      myths and misconceptions,
      • the basics of HIV disease – disease progression, transmission, sex and risk
      assessment,
      • treatment information – when to start treatment, medication options and how
      to manage side effects,
      • safer sex and other STIs – harm reduction ideas,
      • disclosure – strategies for meeting both the legal obligations and the
      personal challenges of sharing one’s HIV status with others,
      • navigating the complexities of self care strategies,
      • Doctors - finding appropriate HIV care in your community,
      understanding your blood work, and the importance of a “relationship”
      with your Doctor.
      7
    • Benefits of Newly Diagnosed Services
      • “Supportive education bridges” combine support and education initiatives.
      (Elements of peer counselling, treatment information, personalized wellness planning)
      • Building trust with a knowledgeable peer creates a trusting entry point and
      easier access into treatment and complementary programs
      and services within our agency and throughout HIV and non-HIV
      communities.
      8
      • Participant feedback indicated they feel more connected to a topic by a
      peer rather than by a “professional”.
      • Using inclusive language instead of jargon or medical terminology can
      make the topic more approachable and easier to understand.
      • Increases referrals between community partners - IDC, Social Workers,
      other ASOs, Public Health Nurses and Doctors.
      • Increasingly, an immediate response is preferred over asking people to
      wait until we have enough participants for a workshop.
      9
    • Lessons learned from Workshop
      Workshops in Vancouver:
      • Lag time between first contact and day one workshop is too long.
      • Committing to two full days is more intimidating than parcelling out
      information in portions.
      Workshops outside Vancouver:
      • Geographic isolation makeslogistics such as transportation, hotel and
      child care expenses more difficult to get people together over a
      weekend workshop.
      • HIV stigma in smaller communities is pervasive. Isolation does not
      mean anonymous. Potential participants are hyper sensitive to
      “group” events that out them as HIV+.
      • People active in their addiction or with severe mental health
      issues do not do well in a workshop environment.
      10
    • Lessons learned from Peer Navigators
      • Participants are lacking the benefits of sharing their story with more
      people in a similar situation.
      • Participant and peer navigator need to get to a “relatable and trusting”
      interaction with each other quickly, in order for “real” conversation to
      happen.
      • Paid staff in smaller communities use a one-to-one model using
      elements of a navigator skill set but may not be knowledgeable on
      newly diagnosed issues. Providing front line workers with current newly
      diagnosed information would be more helpful and economically
      responsible.
      11
    • Being HIV+ isn’t the only stigma, seeking help can be a stigma aw well.
      In Summary
      • Early HIV detection is important to prevent disease progression
      and HIV transmission.
      • HIV+ people that spiraloff the grid at point of diagnosis increase
      the likelihood of HIV transmission, disease progression and
      health care costs.
      • Educate that HIV as a manageable chronic illness for the third cohort
      while continuing to meet the care needs of previous cohorts.
      • HIV+ people are more likely to make healthy choices for themselves
      and others when given HIV information that is time sensitive, relatable,
      and relevant.
      • Community based newly diagnosed programming compliments formal
      health care systems.
      12