Transcript of "Traumatic Brain Injury & Social Media"
Rehab ContinuumThru Social MediaTryMunity.com
I Am• I Am Not a Medical Professional.• I am a Mother who is a caregiver of a Traumatic Brain Injury Survivor.• I am a person who lives with TBI every day, just like many of you.• I am Someone who has a story to share and I hope that after this presentation, you will have learned from my experience, and the experience of my Son, my husband and my family• I am Bernadette Coleman, CEO of Advice Interactive Group, a Internet Marketing Company & Co Founder of TryMunity and I am here today to tell you why Social Media Matters!
Disclaimer• Some of the slides you are about to see are very graphic. The story I am going to share with you today is a story of how social media helped with the care and rehab of My Son. Without these images it’s just a story. With these images it is a True Story of hope, hard work and recovery.• So let me begin…
Social Media & RecoveryWe started using Social Media from thebeginning:• To update on Mikes progress• Communication• To talk to other Survivors• To search for TBI information• To document his recovery• To search for resources/help
Hi Bernadette!How exciting! As a provider, my only thoughts are that TBI is not reallypublicized in media. We need more of an awareness regarding this frequentlyoccurring and devastating injury. Brain injury awareness month is nevermentioned. Yet we hear about breast cancer in October, heart disease inFebruary, etc.I am so glad to hear Mike is doing well. I would love to see him when he ishere in Orlando! I think about all of you every day!Also, I have been wanting to thank you for my nomination for Nurse of theYear. It was such a surprise and honor to be recognized. Thank you and Tomfor taking the time and submitting all those kind words.Good luck at your talk! Keep me posted and tell Mike I look forward to seeinghim soon!Suzanne
Common comments on TryMunity Hundreds of people who live with TBI have joined the site
Live Stream The Launch of Trymunity at Pate Rehab Launch Party
How Does TBI affect a Survivor?What happened to Mike:• Social activity is limited• World is limited to family & service providers• Reduced social support• Loss of meaningful friendships• Problems making new social connections• Loss of career• Loss of mobility and accessibility• Loss of independence
What happens?For Many TBI Survivors:• World Shrinks• High Risk for Anxiety• Causes Depression• Lack of Motivation• Increase Financial Stress & Burden
Mike’s New Social ConnectionsWhat Does Social Media Do?• Maintain & improves social support• Establish personal connections• Adds to current social network• Decreases social isolation• Improves community reintegration• Increases opportunities
What are the benefits?• A new practice of social interaction• Source of information and knowledge• Accessible at anytime of day• Not dependent on community programs• Do not have to reveal disability• Increases opportunities for income
What are the Problems He Faced?• Cyberspace is not universally accessible• Physical, cognitive and technological barriers• Problem is not lack of desire to use the internet, but lack of knowledge and access & training• Motor deficits using keyboard and mouse• Cognitive/language impairment• Challenging social interactions• Fatigue
What are the risks?• Privacy: loss of personal/financial data• Online predators (Girlfriend?)• Exposure to unknown people• Inappropriate social contact• Personal Difficulties• Understanding privacy settings• Logging in/out• Sharing personal information
Inappropriate Social ContactParticipants need to reflect and consider:We had to keep reminding him of the rules. – How well do I know this person? – Do I want to share this with this person? – Do I remember that if I post on their wall, the information is shown to all of my friends and their friends? – Be careful what you say – Be careful what you do
What are The Solutions?If Only…• Internet training for individuals with TBI:• Accessibility to the technology through places like the library• Coverage of tools by insurance• State programs
FacebookA Whole New World..• Facebook Social networking website 500 million users More than 70 languages• Interact with others,• share content with others,• play games
In summaryReconfirmed that persons with TBI havespecific barriers and challenges to usingonline social networks.• Essential starting points needed• basic computing skills• computer/internet access• basic social skills• education and support for the family by agencies to increase understanding of the Internet & Computers
Lets Take A TestGo To:http://www.freemobilepolls.comEnter Your Name1454
What is Advocacy?Advocacy is the art of persuasion –• Advocacy is about trying to influence outcomes — (including public-policy and resource allocation) that directly affect people’s lives.
What is Social Media?• “Social media are online communications in which individuals shift fluidly and flexibly between the role of audience and author.• To do this, they use social software that enables anyone (no technical skills needed) to post, comment on, share content and to form communities around shared interests.”
Advocacy and Social Media• “Social media are online communications in which individuals shift fluidly and flexibly between the role of audience and author.• To do this, they use social software that enables anyone (no technical skills needed) to post, comment on, share content and to form communities around shared interests.”
What’s a Hashtag?A Twitter hashtag is simply a keyword phrase, spelled outwithout spaces, with a pound sign (#) in front of it.For example, #BrainInjury and #TBI are both hashtags.What does a hashtag do?A Twitter hashtag ties the conversations of different users intoone stream, which you can find by searching the hastag inTwitter Searchhttps://twitter.com/search-home
What Can You Do?• If you are interested in promoting TBI awareness through social media…• CALL Bernadette Coleman• 469-269-0411• email@example.com• Tell everyone, Survivors, Family members and you! JOIN TryMunity.com
A particular slide catching your eye?
Clipping is a handy way to collect important slides you want to go back to later.