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Rebecca opetsi

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  • 1.  INVOLVEVEMENT OF YOUTHS WITH SPINA BIFIDA AND HYDROCEPHALUS IN LIFELONG INTERDISCIPLINARY CARE 
  • 2. Introduc>on   Involvement of youth with Spina bifida and  hydrocephalus in lifelong interdisciplinary care  will ensure that:   Youths have power from within that will enable  them to coordinate well with other people in  society and   They can come up with new knowledge and ideas  (for their wellbeing) that will be maintained and  passed on from time to time. 
  • 3. Peer Programs and Supports Groups  Through peer programs, exchange  programs and support groups youths with  SB and HC can:  Discuss and get solutions to their  challenges  Such programs can enable young adults to  identify their role models, counselors and  mentors who can guide them. 
  • 4. Decision Making   For a long life interdisciplinary care youth should be  involved in decision making on matters that concern  them.   This can take up bottom up approach where ideas are  drawn from the youths and channeled up to the main  stakeholders who are involved in their care  
  • 5. Self Advocacy  Youths can be trained on self advocacy  tactics: through talking about their  condition in different context e.g social and  academic.   This will enable them to advocate and lobby  for their rights   Furthermore, the public will have enough  knowledge which will be for the wellbeing  of individuals with SB and HC 
  • 6. Rela>onships  Adolescents and young adult with SB  and HC should be trained on the type  of relationship that will promote  healthy development during transition  into adulthood. For example; school  related, disability related, work related,  personal e.t.c  
  • 7. Self care  For a sustainable interdisciplinary care  young adults can be taught on self care  for instance: bladder and bowel  management, grooming, keeping fit  through suitable exercises among  many other activities. 
  • 8. Sexuality  Youths with SB and HC should get factual  information about their sexuality and  reproductive issues. This includes:  Puberty: if precocious (early than usual)  Sexual functioning including fertility  And psychosexual development: social  interaction and self esteem 
  • 9. Conclusion  For the above factors to be achieved all  stakeholders  involved  in  matters  that  concern  spina  bifida  and  hydrocephalus  should  approach  the  cases in real and positive attitude since  transition  from  childhood  to  adulthood  is  crucial  to  every  individual’s development and growth. 
  • 10. References   Liptak G, (2003) Evidence Based Practice in Spina  bifida; Developing a research agenda. Washington DC.    Minnesota Department of Health, (2008)  Interdisciplinary Transition Conference. Minnesota    Presentation by: Rebecca Opetsi 

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