The LIFEspan (Living Independently andFully Engaged) Service Model            LIFESPAN   Growing Up   Transfer       Adult...
Growing Up Ready for Life.
Preparation for adulthood shouldstart early, be real and positive with  shared expectations and provide         hope for t...
The ultimate goal of care is to assist    children to participate fully in the    lives of their families and of their    ...
Growing up Ready framework provides a  coordinated pathway developed  through evidence based practice.Gall, Kingsnorth and...
Shared management is a   philosophical approach to transition   planning from childhood, an alliance   between children, f...
Shared Management Roles                 PROVIDER     PARENT/FAMILY       YOUTH               Major          Provides care ...
The role of the players in the alliance   change as the young person grows   up, leadership is gradually shifted (in   a p...
Shared management requires ashift in thinking to consistentlyfacilitate preparedness for adult life
Start to help prepare children and youth  for adult life by:•    Thinking about the future,•    Fostering independence and...
The Growing Up ReadyFramework  The Growing Up Ready framework  provides a coordinated pathway  developed through evidence ...
Timetable for Growing Up•    Starts early•    Outlines a progression     of skills targeted at age     appropriate times• ...
Life Skills are the problem solving & lifemanagement skills that an individual uses tofunction successfully.•  Experientia...
ANY ENCOUNTER CAN BECOME A SKILLBUILDING OPPORTUNITY!
Transitions Transition from childhood to adult life became increasingly recognizes as a major hurdle that few were well pr...
The LIFEspan modelThe LIFEspan model recognizes the value of:•  Partnerships with the client, family, and other   health c...
Transfer Services           LIFESPAN  Growing Up   Transfer      Adult    Ready                   Services               S...
Transfer Process Essentials•  A plan that is managed & has a definite  structure•  A family centered approach in collabora...
A shift in practice..The Chronic Care Model (Wagner, 1998) focuses on:•  Improved patient/client self management which aim...
Transition essentialsYouth are ready for   transition when:•  Professional Checklist   completed•  Personal/portable healt...
Formal Evaluation    “…transition models… need to be trialed and     evaluated in order to best inform how     resources ...
Lessons learned •  Network, network, network •  Make connections in adult sector even if    not perfect match (“start some...
SB care service model LIFEspan, Canada
SB care service model LIFEspan, Canada
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SB care service model LIFEspan, Canada

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“Adults, and now? Access to services and healthcare for youth and adults with Spina Bifida and Hydrocephalus”

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SB care service model LIFEspan, Canada

  1. 1. The LIFEspan (Living Independently andFully Engaged) Service Model LIFESPAN Growing Up Transfer Adult Ready Services Services Maxwell, J., Zee, J. & Healy, H.
  2. 2. Growing Up Ready for Life.
  3. 3. Preparation for adulthood shouldstart early, be real and positive with shared expectations and provide hope for the future. Kieckhefer, 2002 Reiss & Gibson, 2002
  4. 4. The ultimate goal of care is to assist children to participate fully in the lives of their families and of their community.King G. et al
  5. 5. Growing up Ready framework provides a coordinated pathway developed through evidence based practice.Gall, Kingsnorth and Healy, 2006
  6. 6. Shared management is a philosophical approach to transition planning from childhood, an alliance between children, families and service providers is essential to allow young people with disabilities to develop into independent healthy ,functioning adults.CM. Trahms 2004 Kieckhefer and Trahms 2000
  7. 7. Shared Management Roles PROVIDER PARENT/FAMILY YOUTH Major Provides care Receives care responsibility & knowledge source Supports Manages Participates TIME parents & youth Consults Supervises Manages Acts as Consults Supervises Resource(Kieckhefer,2002)
  8. 8. The role of the players in the alliance change as the young person grows up, leadership is gradually shifted (in a planned systematic and developmentally appropriate way) from the service provider and parents to the young person.Gall, Kingsnorth & Healy, 2006
  9. 9. Shared management requires ashift in thinking to consistentlyfacilitate preparedness for adult life
  10. 10. Start to help prepare children and youth for adult life by:•  Thinking about the future,•  Fostering independence and problem solving,•  Look for chances to practice and master skills,•  Planning for change and celebrating milestones. Reiss & Gibson, 2002
  11. 11. The Growing Up ReadyFramework The Growing Up Ready framework provides a coordinated pathway developed through evidence based practice.Gall, Kingsnorth & Healy, 2006
  12. 12. Timetable for Growing Up•  Starts early•  Outlines a progression of skills targeted at age appropriate times•  Voice of text shifts•  Poster & Pamphlet versions
  13. 13. Life Skills are the problem solving & lifemanagement skills that an individual uses tofunction successfully.•  Experiential learning provide real life opportunities•  Encourage calculated risk taking•  Promote problem solving skills•  Opportunity to make mistakes in a supportive environment and learn from themKingsnorth, Healy, Macarthur (2007)
  14. 14. ANY ENCOUNTER CAN BECOME A SKILLBUILDING OPPORTUNITY!
  15. 15. Transitions Transition from childhood to adult life became increasingly recognizes as a major hurdle that few were well prepared for.
  16. 16. The LIFEspan modelThe LIFEspan model recognizes the value of:•  Partnerships with the client, family, and other health care and community providers – increasing the capacity of the client, caregivers & the community•  Age-appropriate services that focus on Preparation for, Access to, Coordination of, and Continuity of service across the lifespan•  Developing and sharing expertise in the management of the chronic health care needs of persons with disabilities of childhood onset
  17. 17. Transfer Services LIFESPAN Growing Up Transfer Adult Ready Services Services Maxwell, J., Zee, J. & Healy, H.
  18. 18. Transfer Process Essentials•  A plan that is managed & has a definite structure•  A family centered approach in collaboration with professionals•  A documented clinical pathway•  Continuum of services support for youth and families•  Somewhere to go! (adult providers)
  19. 19. A shift in practice..The Chronic Care Model (Wagner, 1998) focuses on:•  Improved patient/client self management which aims to make the patients and their caregivers more knowledgeable about their conditions,•  Planned visits are needed to address prevention and health maintenance•  Strong links and partnerships with the community•  Care coordination between facilities, and at a client level•  Development of expertise•  The importance of improving the primary care for chronic conditions
  20. 20. Transition essentialsYouth are ready for transition when:•  Professional Checklist completed•  Personal/portable health record•  Family doctor in place•  Consent & guardianship•  Transfer of care
  21. 21. Formal Evaluation  “…transition models… need to be trialed and evaluated in order to best inform how resources need to be distributed.” (Steinbeck, Brodie,Towns, 2007)  ONF proposal – Evaluation of the LIFEspan model of linked care   Primary outcome: Continuity of care (remain linked to the healthcare system)   Secondary outcomes: improved health, wellness, participation, quality of life
  22. 22. Lessons learned •  Network, network, network •  Make connections in adult sector even if not perfect match (“start somewhere”) •  Make connections with primary care, acute care, rehab, and community providers •  Engaging and working with consumers •  Find local champions and experts •  Research & evaluation
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