Social Technologies Power to Impact Collaborative Health

Social technologies power in in collaborative health policy and practicea collaborative seminar
Gonzalo Bacigalupe, EdD, MPH
Ikerbasque Research Professor
gonzalo.bacigalupe@deusto.es
bacigalupe.wordpress.com
Session # C4a
Oct. 22, 2010 - 3:30-5:00
Collaborative Family Healthcare Association 12th Annual Conference
October 21-23, 2010 Louisville, Kentucky U.S.A.

Faculty Disclosure
I have not had any relevant financial relationships during the past 12 months.

Need/Practice Gap & Supporting Resources
What is the scientific basis for this talk?
Systematic review of research and clinical literature
Peer review article by author: basis to justify need
An iterative analysis of e-Health sites
Expert review via open invitation to and participation by #CHSM #CHSMEU
Participation of collaborative health practitioners and researchers in ongoing model development

Objectives
Define the scope of collaborative health activities shaped by the use of social technologies;
Create a categorical classification of emergent communication, social media, & social technologies to evaluate their impact;
Discuss results of a systematic analysis of the literature on social networking technologies and its impact on patients, healthcare providers, and policy makers;
Evaluate critically the challenges & ways of approaching a task that questions professional and personal lives.

Expected Outcome
Acknowledge potential of social technologies ability to strengthen collaborative health practices.
Discuss criteria and categories of e-health tools in light of collaborative health care assumptions and goals.
Triangulate ongoing systematic qualitative research analysis via participation in checking for accuracy in development of model linking collaborative health and social technologies.

Social media / Social technologies
Highly accessible tools (ICTs) that allow you to connect with others via a diverse set of digital devices.
Tools allow not only to observe what others have produced but also to engage in the production of media.

Applications
Blogs: Frequent updates, invites dialogue, identity defined by blogger
Microblogs: Brief blog entries (i.e., 140 characters)
Podcasts: Audio/video downloadable to many digital devices
Wikis: Website designed for collaboration
Social Networks: Virtual communities; main purpose is social interaction
Web-Conferencing: Audio/video synchronic interaction
MUVE: Multi Users Virtual Environments

The conversation

Information
www.flickr.com/photos/bacigalupe/385042878/sizes/o/

The Information Revolution

e-Health Scope
E-Record: Unified clinical history
Electronic prescription
Telemedicine
E-Monitoring
Targeted Info
Bottom up Innovation
Interdisciplinary Sharing
Networks core
Transparent/collaborative clinical trials
e-Patient
…

Methodology
Sarasohn- Kahn’s (2009) report on how online and mobile tools help both doctors and patients manage chronic illnesses was a starting point for generating a draft list of e-Health tools.
Extensive search via Pubmed, Google Scholar, Google, and Twitter. Referenced works from retrieved articles were also used.
During data collection period, inclusion criteria refined to include variables that may inform power to foster collaboration: interoperability, viability, sustainability, scalability, number of hits.
Assessed if there were reports about the tools on LexisNexis (media), Pubmed (healthcare), Google Scholar (social sciences), and Google (business, market, general public)
For websites that required user accounts for access, we reviewed the self-reported number of users. We also joined sites to try their features.

Criteria for Inclusion
eHealth Core:
Is it main goal and focus healthcare?
Is it directed to patients and/or health care providers?
Is it recommended/approved by #hcsm experts?
Technical Access:
Does the site work?
Is it not under construction?
Is it platform neutral?
Has it have any activity in the last month?
Should we consider other criteria?

Tools: Collaborative Potential
Very Low: No interaction between creators and users
Low: Users able to comment on content but creators do not necessarily interact with audience
Moderate: Users able to interact without moderation
High: Intends that users interact with each other
Very High: Allows multiple stakeholders (patients, researchers, healthcare providers) to interact with each other using a variety of tools

Categories
Static Webpage (Web 1.0)
Information Exchange
Clinical Networks
e-Patient / e-Doc Networks
e-Patient Networks
Health Research Networks
eHealth Mobile Applications
Interactive Media
Primary Care e-Practices

Static Webpage (W1.0)
“Basic” WWW doesn’t allow visitors to modify content
http://scienceroll.com by BertalanMesko

http://runningahospital.blogspot.com by Paul Levy

http://thecarrot.com

Users able to add/edit WWW content and able to interact with one another
http://e-patients.net

InformationExchange
www.imedix.com

www.jopm.org

Clinical Networks
Health care providers can meet/interact with one another
www.doctrs.com

Clinical Networks
Health care providers can meet/interact with one another
www.simposier.com

Clinical Networks
Health care providers meet/interact/consult with one another
www.iconsinmed.org

e-Patient / e-Doctor Networks
Online health social network in which patients connect with other patients and receive consultation from health care providers
www.dailystrength.com

Online health social network in which patients connect with other patients and receive consultation from health care providers
http://ehealthforum.com

Online health social network in which patients can connect with other patients and receive consultation from health care providers
www.medhelp.org

E-Patient Networks
Patients or loved ones, often with same health conditions, can meet or interact with one another
www.patientslikeme.com

E-Patient Networks
www.disaboom.com

E-Patient Networks
www.experienceproject.com

E-Patient Networks
Consumers, often with same health conditions or loved ones with same health conditions, can meet or interact with one another
www.FacetoFacehealth.com

Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics
www.vivoweb.org

www.scientistsolutions.com

www.biomedexperts.com

www.intel.comhealthguide
www.healthhonors.com
www.zumelife.com
Cell phone applications or other mobile devices geared towards health management and/or prevention
29% of adults use their mobile phones to search for #health or #medical info

eHealthMobile Apps
http://www.intel.com/about/companyinfo/healthcare/products/index.htm

www.healthhonors.com

www.zumelife.com

Interactive Media
Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions better

Interactive Media
Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions better
http://av.vimeo.com/29223/421/1913254.mp4?token=1287633684_f8a9acd4201067bf8d30e2d076121af7

Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices
http://consumersonline.hmsa.com

http://hellohealth.com

HelloHealth Promotional

www.tplusmedical.com

www.Inrangesystems.com

www.healthvault.com

Collaborative Variables Criteria?
Communication direction
Audience
Author
Ownership? Profit/or not
Purpose
Source (clinical, personal, EBM)
Type of tool
Interoperability
Sustainability
Scalability
Access (cultural attention)

Future Research Steps
Survey of sites
Scoring
Scale development
Measuring actual impact

Rethinking the paradigm(s)
How could it change your practice?
What seems difficult to imagine?
What solutions emerge?
What challenges are ahead?

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