SOCIAL TECHNOLOGIES
POWER IN IN
COLLABORATIVE HEALTH
POLICY AND PRACTICE
A COLLABORATIVE SEMINAR
Gonzalo Bacigalupe, EdD, ...
Faculty Disclosure
I have not had any relevant financial
relationships during the past 12 months.
Need/Practice Gap & Supporting
Resources
What is the scientific basis for this talk?
 Systematic review of research and c...
Objectives
 Define the scope of collaborative health activities
shaped by the use of social technologies;
 Create a cate...
Expected Outcome
 Acknowledge potential of
social technologies ability to
strengthen collaborative
health practices.
 Di...
Social media / Social technologies
 Highly accessible
tools (ICTs) that allow
you to connect with
others via a diverse
se...
Applications
 Blogs: Frequent updates, invites dialogue, identity
defined by blogger
 Microblogs: Brief blog entries (i....
The conversation
Information
www.flickr.com/photos/bacigalupe/385042878/sizes/o/
The Information Revolution
e-Health Scope
 E-Record: Unified clinical history
 Electronic prescription
 Telemedicine
 E-Monitoring
 Targeted Inf...
Why?
Why?
Why?
Methodology
 Sarasohn- Kahn’s (2009) report on how online and mobile
tools help both doctors and patients manage chronic
...
Criteria for Inclusion
 eHealth Core:
 Is it main goal and focus healthcare?
 Is it directed to patients and/or health ...
Tools: Collaborative Potential
 Very Low: No interaction between creators and
users
 Low: Users able to comment on conte...
Categories
 Static Webpage
(Web 1.0)
 Information
Exchange
 Clinical Networks
 e-Patient / e-Doc
Networks
 e-Patient
...
Static Webpage
(W1.0)
 “Basic” WWW
doesn’t allow
visitors to modify
content
http://scienceroll.com by Bertalan Mesko
Static Webpage
(W1.0)
 “Basic” WWW
doesn’t allow
visitors to modify
content
http://runningahospital.blogspot.com by Paul ...
Static Webpage
(W1.0)
 “Basic”
WWW
doesn’t
allow visitors
to modify
content
http://thecarrot.com
Information
Exchange
 Users able to
add/edit WWW
content and able to
interact with one
another
http://e-patients.net
Information
Exchange
 Users able
to add/edit
WWW
content and
able to
interact with
one another
www.imedix.com
Information
Exchange
 Users able to
add/edit WWW
content and able
to interact with
one another
www.jopm.org
Clinical
Networks
 Health
care
providers
can
meet/inte
ract with
one
another
www.doctrs.com
Clinical
Networks
 Health
care
providers
can
meet/inter
act with
one
another
www.simposier.com
Clinical Networks
 Health
care
providers
meet/inter
act/consul
t with one
another
www.iconsinmed.or
g
e-Patient / e-Doctor Networks
 Online health
social network
in which
patients
connect with
other patients
and receive
con...
e-Patient / e-Doctor Networks
 Online health
social network
in which
patients
connect with
other patients
and receive
con...
e-Patient / e-Doctor Networks
 Online health
social network in
which patients
can connect with
other patients
and receive...
E-Patient
Networks
 Patients
or loved
ones,
often with
same
health
condition
s, can
meet or
interact
with one
another
www...
E-Patient
Networks
 Patients
or loved
ones,
often with
same
health
condition
s, can
meet or
interact
with one
anotherwww....
E-Patient
Networks
 Patients or
loved ones,
often with
same health
conditions, can
meet or
interact with
one another
www....
E-Patient
Networks
 Consumer
s, often
with same
health
conditions
or loved
ones with
same
health
conditions,
can meet
or ...
Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connec...
Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connec...
Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connec...
eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
pre...
eHealth
Mobile Apps
 Cell phone
applications or other
mobile devices
geared towards health
management and/or
prevention
h...
eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
pre...
eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
pre...
Interactive Media
 Virtual
games that
allow users
to explore
health
management
with the
ultimate goal
of
encouraging
user...
Interactive Media
 Virtual games
that allow
users to
explore health
management
with the
ultimate goal
of
encouraging
user...
Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,...
Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,...
HelloHealth Promotional
Primary Care e-Practices
 Gives health
care
providers the
ability to
provide
services to
patients
remotely -
via the web,...
Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,...
Primary Care e-Practices
 Gives health
care
providers
the ability to
provide
services to
patients
remotely -
via the web,...
Collaborative Variables
Criteria?
 Communication direction
 Audience
 Author
 Ownership? Profit/or not
 Purpose
 Sou...
Future Research Steps
 Survey of sites
 Scoring
 Scale development
 Measuring actual impact
Rethinking the paradigm(s)
 How could it change your practice?
 What seems difficult to imagine?
 What solutions emerge...
Alternative Discourses
Critique Possibilities
Isolation Feelings of support
Overwhelming Informed
Wrong information Apomed...
Social Technologies Power to Impact Collaborative Health
Social Technologies Power to Impact Collaborative Health
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Social Technologies Power to Impact Collaborative Health

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  •  
    it opens up the possibility for clinicians, researchers, and the public at large to engage in conversation, share information, analyze it collaboratively, and interact more efficiently. Social media tools are also interoperable, live in the “cloud”, and for the most part are not attached to a particular device or software; all of which means that we do not need to have one specific device to interact with others. What is the impact of these social technologies on individuals and families? Phone texting, Facebook, Twitter, LinkedIn, MySpace, and an innumerous set of technologies have become part of the lives of individuals and families. They offer new ways of connecting and disconnecting, posing challenges for clinicians who need to learn of new cultural mores and attend in new ways to privacy and confidentiality issues. These digital technologies introduce new ways of relating to others and all assessment about their goodness and/or negative consequences require a bit of humility and curiosity. I explore in this presentation some of the questions we may ask as psychologists in relation to how some of these technologies introduce changes in the ways we relate, how we define intimacy, friendship, and what we need to know as we embark in clinical work with the born digital generation as digital immigrants’ knowledge seems not comprehensive to understand the changes introduced by these technologies.
  • It use to flow from one direction
  • http://www.youtube.com/watch?v=-4CV05HyAbM
  • Social Technologies Power to Impact Collaborative Health

    1. 1. SOCIAL TECHNOLOGIES POWER IN IN COLLABORATIVE HEALTH POLICY AND PRACTICE A COLLABORATIVE SEMINAR Gonzalo Bacigalupe, EdD, MPH Ikerbasque Research Professor gonzalo.bacigalupe@deusto.es bacigalupe.wordpress.c om Collaborative Family Healthcare Association 12th Annual Conference October 21-23, 2010 Louisville, Kentucky U.S.A. Session # C4a Oct. 22, 2010 - 3:30-5:00
    2. 2. Faculty Disclosure I have not had any relevant financial relationships during the past 12 months.
    3. 3. Need/Practice Gap & Supporting Resources What is the scientific basis for this talk?  Systematic review of research and clinical literature  Peer review article by author: basis to justify need  An iterative analysis of e-Health sites  Expert review via open invitation to and participation by #CHSM #CHSMEU  Participation of collaborative health
    4. 4. Objectives  Define the scope of collaborative health activities shaped by the use of social technologies;  Create a categorical classification of emergent communication, social media, & social technologies to evaluate their impact;  Discuss results of a systematic analysis of the literature on social networking technologies and its impact on patients, healthcare providers, and policy makers;  Evaluate critically the challenges & ways of approaching a task that questions professional and
    5. 5. Expected Outcome  Acknowledge potential of social technologies ability to strengthen collaborative health practices.  Discuss criteria and categories of e-health tools in light of collaborative health care assumptions and goals.  Triangulate ongoing systematic qualitative research analysis via participation in checking for accuracy in development of model linking collaborative health and social
    6. 6. Social media / Social technologies  Highly accessible tools (ICTs) that allow you to connect with others via a diverse set of digital devices.  Tools allow not only to observe what others have produced but also to engage in the production of media.
    7. 7. Applications  Blogs: Frequent updates, invites dialogue, identity defined by blogger  Microblogs: Brief blog entries (i.e., 140 characters)  Podcasts: Audio/video downloadable to many digital devices  Wikis: Website designed for collaboration  Social Networks: Virtual communities; main purpose is social interaction  Web-Conferencing: Audio/video synchronic interaction
    8. 8. The conversation
    9. 9. Information www.flickr.com/photos/bacigalupe/385042878/sizes/o/
    10. 10. The Information Revolution
    11. 11. e-Health Scope  E-Record: Unified clinical history  Electronic prescription  Telemedicine  E-Monitoring  Targeted Info  Bottom up Innovation  Interdisciplinary Sharing  Networks core  Transparent/collaborative clinical trials  e-Patient  …
    12. 12. Why?
    13. 13. Why?
    14. 14. Why?
    15. 15. Methodology  Sarasohn- Kahn’s (2009) report on how online and mobile tools help both doctors and patients manage chronic illnesses was a starting point for generating a draft list of e- Health tools.  Extensive search via Pubmed, Google Scholar, Google, and Twitter. Referenced works from retrieved articles were also used.  During data collection period, inclusion criteria refined to include variables that may inform power to foster collaboration: interoperability, viability, sustainability, scalability, number of hits.  Assessed if there were reports about the tools on LexisNexis (media), Pubmed (healthcare), Google Scholar (social sciences), and Google (business, market, general public)  For websites that required user accounts for access, we
    16. 16. Criteria for Inclusion  eHealth Core:  Is it main goal and focus healthcare?  Is it directed to patients and/or health care providers?  Is it recommended/approved by #hcsm experts?  Technical Access:  Does the site work?  Is it not under construction?  Is it platform neutral?  Has it have any activity in the last month?  Should we consider other criteria?
    17. 17. Tools: Collaborative Potential  Very Low: No interaction between creators and users  Low: Users able to comment on content but creators do not necessarily interact with audience  Moderate: Users able to interact without moderation  High: Intends that users interact with each other  Very High: Allows multiple stakeholders
    18. 18. Categories  Static Webpage (Web 1.0)  Information Exchange  Clinical Networks  e-Patient / e-Doc Networks  e-Patient Networks  Health Research Networks  eHealth Mobile Applications  Interactive Media  Primary Care e-Practices
    19. 19. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://scienceroll.com by Bertalan Mesko
    20. 20. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://runningahospital.blogspot.com by Paul Levy
    21. 21. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://thecarrot.com
    22. 22. Information Exchange  Users able to add/edit WWW content and able to interact with one another http://e-patients.net
    23. 23. Information Exchange  Users able to add/edit WWW content and able to interact with one another www.imedix.com
    24. 24. Information Exchange  Users able to add/edit WWW content and able to interact with one another www.jopm.org
    25. 25. Clinical Networks  Health care providers can meet/inte ract with one another www.doctrs.com
    26. 26. Clinical Networks  Health care providers can meet/inter act with one another www.simposier.com
    27. 27. Clinical Networks  Health care providers meet/inter act/consul t with one another www.iconsinmed.or g
    28. 28. e-Patient / e-Doctor Networks  Online health social network in which patients connect with other patients and receive consultation from health care providers www.dailystrength.com
    29. 29. e-Patient / e-Doctor Networks  Online health social network in which patients connect with other patients and receive consultation from health care providers http://ehealthforum.com
    30. 30. e-Patient / e-Doctor Networks  Online health social network in which patients can connect with other patients and receive consultation from health care providers www.medhelp.org
    31. 31. E-Patient Networks  Patients or loved ones, often with same health condition s, can meet or interact with one another www.patientslikeme.c om
    32. 32. E-Patient Networks  Patients or loved ones, often with same health condition s, can meet or interact with one anotherwww.disaboom.com
    33. 33. E-Patient Networks  Patients or loved ones, often with same health conditions, can meet or interact with one another www.experienceproject.c om
    34. 34. E-Patient Networks  Consumer s, often with same health conditions or loved ones with same health conditions, can meet or interact with one another www.FacetoFacehealth.com
    35. 35. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topicswww.vivoweb.org
    36. 36. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics www.scientistsolutions. com
    37. 37. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics www.biomedexperts.co m
    38. 38. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.intel.com healthguide www.healthhonors.com www.zumelife.com 29% of adults use their mobile phones to search for #health or #medical info
    39. 39. eHealth Mobile Apps  Cell phone applications or other mobile devices geared towards health management and/or prevention http://www.intel.com/about/companyinfo/healthcare/products/index.ht
    40. 40. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.healthhonors.com
    41. 41. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.zumelife.com
    42. 42. Interactive Media  Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions
    43. 43. Interactive Media  Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions better http://av.vimeo.com/29223/421/1913254.mp4?token=1287633684_f8a9acd4201067bf8d30e2d076121af7
    44. 44. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices http://consumersonline.hmsa
    45. 45. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices http://hellohealth.com
    46. 46. HelloHealth Promotional
    47. 47. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.tplusmedical.com
    48. 48. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.Inrangesystems.com
    49. 49. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.healthvault.co m
    50. 50. Collaborative Variables Criteria?  Communication direction  Audience  Author  Ownership? Profit/or not  Purpose  Source (clinical, personal, EBM)  Type of tool  Interoperability  Sustainability  Scalability  Access (cultural attention)
    51. 51. Future Research Steps  Survey of sites  Scoring  Scale development  Measuring actual impact
    52. 52. Rethinking the paradigm(s)  How could it change your practice?  What seems difficult to imagine?  What solutions emerge?  What challenges are ahead?
    53. 53. Alternative Discourses Critique Possibilities Isolation Feelings of support Overwhelming Informed Wrong information Apomediation + Info Available Lack of support Finding support Digital divide Digital availability Lack of confidentiality Transparency It’s only virtual It’s real Boundaries broken Learning opportunities Collaborative opportunities Translational research Clinical trials Tailoring intervention (long tail) Interdisciplinary exchange …

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