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Social Technologies Power to Impact Collaborative Health

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  •   it opens up the possibility for clinicians, researchers, and the public at large to engage in conversation, share information, analyze it collaboratively, and interact more efficiently. Social media tools are also interoperable, live in the “cloud”, and for the most part are not attached to a particular device or software; all of which means that we do not need to have one specific device to interact with others. What is the impact of these social technologies on individuals and families? Phone texting, Facebook, Twitter, LinkedIn, MySpace, and an innumerous set of technologies have become part of the lives of individuals and families. They offer new ways of connecting and disconnecting, posing challenges for clinicians who need to learn of new cultural mores and attend in new ways to privacy and confidentiality issues. These digital technologies introduce new ways of relating to others and all assessment about their goodness and/or negative consequences require a bit of humility and curiosity. I explore in this presentation some of the questions we may ask as psychologists in relation to how some of these technologies introduce changes in the ways we relate, how we define intimacy, friendship, and what we need to know as we embark in clinical work with the born digital generation as digital immigrants’ knowledge seems not comprehensive to understand the changes introduced by these technologies.
  • It use to flow from one direction
  • http://www.youtube.com/watch?v=-4CV05HyAbM

Social Technologies Power to Impact Collaborative Health Social Technologies Power to Impact Collaborative Health Presentation Transcript

  • Social technologies power in in collaborative health policy and practicea collaborative seminar
    Gonzalo Bacigalupe, EdD, MPH
    Ikerbasque Research Professor
    gonzalo.bacigalupe@deusto.es
    bacigalupe.wordpress.com
    Session # C4a
    Oct. 22, 2010 - 3:30-5:00
    Collaborative Family Healthcare Association 12th Annual Conference
    October 21-23, 2010 Louisville, Kentucky U.S.A.
  • Faculty Disclosure
    I have not had any relevant financial relationships during the past 12 months.
  • Need/Practice Gap & Supporting Resources
    What is the scientific basis for this talk?
    Systematic review of research and clinical literature
    Peer review article by author: basis to justify need
    An iterative analysis of e-Health sites
    Expert review via open invitation to and participation by #CHSM #CHSMEU
    Participation of collaborative health practitioners and researchers in ongoing model development
  • Objectives
    Define the scope of collaborative health activities shaped by the use of social technologies;
    Create a categorical classification of emergent communication, social media, & social technologies to evaluate their impact;
    Discuss results of a systematic analysis of the literature on social networking technologies and its impact on patients, healthcare providers, and policy makers;
    Evaluate critically the challenges & ways of approaching a task that questions professional and personal lives.
  • Expected Outcome
    Acknowledge potential of social technologies ability to strengthen collaborative health practices.
    Discuss criteria and categories of e-health tools in light of collaborative health care assumptions and goals.
    Triangulate ongoing systematic qualitative research analysis via participation in checking for accuracy in development of model linking collaborative health and social technologies.
  • Social media / Social technologies
    Highly accessible tools (ICTs) that allow you to connect with others via a diverse set of digital devices.
    Tools allow not only to observe what others have produced but also to engage in the production of media.
  • Applications
    Blogs: Frequent updates, invites dialogue, identity defined by blogger
    Microblogs: Brief blog entries (i.e., 140 characters)
    Podcasts: Audio/video downloadable to many digital devices
    Wikis: Website designed for collaboration
    Social Networks: Virtual communities; main purpose is social interaction
    Web-Conferencing: Audio/video synchronic interaction
    MUVE: Multi Users Virtual Environments
  • The conversation
  • Information
    www.flickr.com/photos/bacigalupe/385042878/sizes/o/
  • The Information Revolution
  • e-Health Scope
    E-Record: Unified clinical history
    Electronic prescription
    Telemedicine
    E-Monitoring
    Targeted Info
    Bottom up Innovation
    Interdisciplinary Sharing
    Networks core
    Transparent/collaborative clinical trials
    e-Patient

  • Why?
  • Why?
  • Why?
  • Methodology
    Sarasohn- Kahn’s (2009) report on how online and mobile tools help both doctors and patients manage chronic illnesses was a starting point for generating a draft list of e-Health tools.
    Extensive search via Pubmed, Google Scholar, Google, and Twitter. Referenced works from retrieved articles were also used.
    During data collection period, inclusion criteria refined to include variables that may inform power to foster collaboration: interoperability, viability, sustainability, scalability, number of hits.
    Assessed if there were reports about the tools on LexisNexis (media), Pubmed (healthcare), Google Scholar (social sciences), and Google (business, market, general public)
    For websites that required user accounts for access, we reviewed the self-reported number of users. We also joined sites to try their features.
  • Criteria for Inclusion
    eHealth Core:
    Is it main goal and focus healthcare?
    Is it directed to patients and/or health care providers?
    Is it recommended/approved by #hcsm experts?
    Technical Access:
    Does the site work?
    Is it not under construction?
    Is it platform neutral?
    Has it have any activity in the last month?
    Should we consider other criteria?
  • Tools: Collaborative Potential
    Very Low: No interaction between creators and users
    Low: Users able to comment on content but creators do not necessarily interact with audience
    Moderate: Users able to interact without moderation
    High: Intends that users interact with each other 
    Very High: Allows multiple stakeholders (patients, researchers, healthcare providers) to interact with each other using a variety of tools
  • Categories
    Static Webpage (Web 1.0)
    Information Exchange
    Clinical Networks
    e-Patient / e-Doc Networks
    e-Patient Networks
    • Health Research Networks
    • eHealth Mobile Applications
    • Interactive Media
    • Primary Care e-Practices
  • Static Webpage (W1.0)
    “Basic” WWW doesn’t allow visitors to modify content
    http://scienceroll.com by BertalanMesko
  • Static Webpage (W1.0)
    “Basic” WWW doesn’t allow visitors to modify content
    http://runningahospital.blogspot.com by Paul Levy
  • Static Webpage (W1.0)
    “Basic” WWW doesn’t allow visitors to modify content
    http://thecarrot.com
  • Information Exchange
    Users able to add/edit WWW content and able to interact with one another
    http://e-patients.net
  • InformationExchange
    Users able to add/edit WWW content and able to interact with one another
    www.imedix.com
  • Information Exchange
    Users able to add/edit WWW content and able to interact with one another
    www.jopm.org
  • Clinical Networks
    Health care providers can meet/interact with one another
    www.doctrs.com
  • Clinical Networks
    Health care providers can meet/interact with one another
    www.simposier.com
  • Clinical Networks
    Health care providers meet/interact/consult with one another
    www.iconsinmed.org
  • e-Patient / e-Doctor Networks
    Online health social network in which patients connect with other patients and receive consultation from health care providers
    www.dailystrength.com
  • e-Patient / e-Doctor Networks
    Online health social network in which patients connect with other patients and receive consultation from health care providers
    http://ehealthforum.com
  • e-Patient / e-Doctor Networks
    Online health social network in which patients can connect with other patients and receive consultation from health care providers
    www.medhelp.org
  • E-Patient Networks
    Patients or loved ones, often with same health conditions, can meet or interact with one another
    www.patientslikeme.com
  • E-Patient Networks
    Patients or loved ones, often with same health conditions, can meet or interact with one another
    www.disaboom.com
  • E-Patient Networks
    Patients or loved ones, often with same health conditions, can meet or interact with one another
    www.experienceproject.com
  • E-Patient Networks
    Consumers, often with same health conditions or loved ones with same health conditions, can meet or interact with one another
    www.FacetoFacehealth.com
  • Health Research Networks
    Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics
    www.vivoweb.org
  • Health Research Networks
    Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics
    www.scientistsolutions.com
  • Health Research Networks
    Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics
    www.biomedexperts.com
  • eHealth Mobile Applications
    www.intel.comhealthguide
    www.healthhonors.com
    www.zumelife.com
    • Cell phone applications or other mobile devices geared towards health management and/or prevention
    29% of adults use their mobile phones to search for #health or #medical info
  • eHealthMobile Apps
    • Cell phone applications or other mobile devices geared towards health management and/or prevention
    http://www.intel.com/about/companyinfo/healthcare/products/index.htm
  • eHealth Mobile Applications
    • Cell phone applications or other mobile devices geared towards health management and/or prevention
    www.healthhonors.com
  • eHealth Mobile Applications
    • Cell phone applications or other mobile devices geared towards health management and/or prevention
    www.zumelife.com
  • Interactive Media
    • Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions better
  • Interactive Media
    • Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions better
    http://av.vimeo.com/29223/421/1913254.mp4?token=1287633684_f8a9acd4201067bf8d30e2d076121af7
  • Primary Care e-Practices
    Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices
    http://consumersonline.hmsa.com
  • Primary Care e-Practices
    Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices
    http://hellohealth.com
  • HelloHealth Promotional
  • Primary Care e-Practices
    Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices
    www.tplusmedical.com
  • Primary Care e-Practices
    Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices
    www.Inrangesystems.com
  • Primary Care e-Practices
    Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices
    www.healthvault.com
  • Collaborative Variables Criteria?
    Communication direction
    Audience
    Author
    Ownership? Profit/or not
    Purpose
    Source (clinical, personal, EBM)
    Type of tool
    Interoperability
    Sustainability
    Scalability
    Access (cultural attention)
  • Future Research Steps
    Survey of sites
    Scoring
    Scale development
    Measuring actual impact
  • Rethinking the paradigm(s)
    How could it change your practice?
    What seems difficult to imagine?
    What solutions emerge?
    What challenges are ahead?
  • Alternative Discourses