The Secret Language of Data

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In December 2008 the European Parliament and the Council adopted a framework regulation for statistics concerning public health and health and safety at work. The magnitude of data collected this far …

In December 2008 the European Parliament and the Council adopted a framework regulation for statistics concerning public health and health and safety at work. The magnitude of data collected this far is enormous, however none of the available databases—WHO, Health-EU or Eurostat, provides a usable interface that allows users to generate customized and easy to interpret health statistics. Additionally, it is virtually impossible to demonstrate the relationship between health topics and social or environmental factors to help contextualize data and substantiate correlation or prove causation.

This case study, drawn from direct professional experience, illustrates how correlation is discernible and actionable. And how employing taxonomies and metadata to improve navigation, browsing, search and discovery results in understanding and augmented awareness.

The California Health Interview Survey and its online statistical analysis query tool, AskCHIS, have managed to bridge the gap between the collection of large amounts of health and socioeconomic indicators and its meaningful visualization. The query tool, with its simple and intuitive interface, has effectively become a benchmark for health data statistical analysis tools that are usable across a variety of backgrounds and skills.

A rigorous taxonomy of variables, questionnaires and data dictionaries entries, in addition to meaningful metadata give the users the option to browse the full hierarchy of terms and categories or use keyword and phrases search. Supporting documentation—in the form of methodology papers, survey topics, questionnaires and data dictionaries, helps to contextualize research.

Talk presented at EuroIA in Edinburgh, Scotland on 9/28/2013.

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  • 1. TAXONOMIES AND MEANINGFUL METADATA TO CRACK THE CIPHER AND TELL THE STORY alberta soranzo | @albertatrebla UCLA Center for Health Policy Research EuroIA | Edinburgh, 26-28 September 2013 THE SECRET LANGUAGE OF DATA CC  Image  courtesy  of  Falco500  on  flickr.com
  • 2. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CC  Image  courtesy  of  prayitnophotography  on  flickr.com
  • 3. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CC  Image  courtesy  of  jczart  on  flickr.com
  • 4. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla Health data provide information about the occurrence of certain diseases and health conditions. —http://www.health.ny.gov/environmental/public_health_tracking/about/glossary.htm HEALTH DATA
  • 5. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla A massive volume of both structured and unstructured data that is so large that it's difficult to process using traditional database and software techniques. —http://www.webopedia.com BIG DATA
  • 6. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
  • 7. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
  • 8. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla 825,300,000
  • 9. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla BIG IMPACT
  • 10. STORYTELLING WITH DATA CC  Image  courtesy  of  clappstar  on  flickr.com
  • 11. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla THE STORY
  • 12. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla THE STORY
  • 13. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla EUROSTAT
  • 14. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla EUROSTAT
  • 15. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla WHO
  • 16. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  • 17. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  • 18. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  • 19. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  • 20. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  • 21. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  • 22. THE AskCHIS WAY
  • 23. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  • 24. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  • 25. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  • 26. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  • 27. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  • 28. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  • 29. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  • 30. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla EFFECT = AFFECT
  • 31. HOW DID WE DO IT?
  • 32. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla TAXONOMY
  • 33. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla TAXONOMY
  • 34. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla TERMINOLOGY OPTIONS CHOICE Benefit Package, Work Insurance, Employee Insurance, Employee Health Plan Employment-based coverage Poor, Indigent, Impoverished, Below Federal Poverty Line Low-income Handicapped, Disabled, Blinds, Deaf Persons, Persons with disabilities
  • 35. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla SYNONYMS/POLYHIERARCHY MANAGED CARE DISABILITY = = Medicare, Health Insurance, Comprehensive Medical Insurance, Group Medical Insurance, Health Plan, Medicaid, Medi-cal, Indian Health Services, Healthy Families Handicap, Deficit, Impairment, Mental Impairment, Physical Impairment, Health Problem, Functional Impairment, Incapacity, Ailment
  • 36. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  • 37. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  • 38. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  • 39. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  • 40. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONTENT MODEL
  • 41. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla STRUCTURED CONTENT
  • 42. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla STRUCTURED CONTENT Variable Label CHIS Data Source(s) Age Groups Levels Description Restrictions Year
  • 43. WHERE WE ARE GOING
  • 44. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONCRETELY WHAT (DELIVERABLES) HOW (USES) WHY (GOALS) • Sitemap • Content Inventory • Wireframes • Controlled Vocabulary • Tags • Categories • Filters • URLs • Glossary • Navigation • Content strategy • Findability • Organization • Cross-channel Consistency • Governance • Understanding • Branding
  • 45. CHPR CHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla MORE (RE)SEARCH
  • 46. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  • 47. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  • 48. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  • 49. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  • 50. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  • 51. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  • 52. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  • 53. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla PRIORITIZE CONTENT
  • 54. NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH LOGO AND SLOGAN MAIN NAVIGATION CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) ASK THE EXPERT (100 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) HEALTH CARE REFORM (100 WORDS MAX) SPOTLIGHT (100 WORDS MAX) PROGRAM 1 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla PRIORITIZE CONTENT
  • 55. NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH LOGO AND SLOGAN MAIN NAVIGATION CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) ASK THE EXPERT (100 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) HEALTH CARE REFORM (100 WORDS MAX) SPOTLIGHT (100 WORDS MAX) PROGRAM 1 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla PRIORITIZE CONTENT
  • 56. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  • 57. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  • 58. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  • 59. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  • 60. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla DESIGN
  • 61. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla DESIGN
  • 62. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla DESIGN
  • 63. alberta soranzo | @albertatrebla albertasoranzo@gmail.com UCLA Center for Health Policy Research THANK YOU!