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TAXONOMIES AND MEANINGFUL METADATA TO CRACK THE CIPHER AND TELL THE STORY
alberta soranzo | @albertatrebla
UCLA Center for...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CC	
  Image	
  courtesy	
  of	
  prayitnophotography	
  on	
  flic...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CC	
  Image	
  courtesy	
  of	
  jczart	
  on	
  flickr.com
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
Health data provide information about the occurrence of
certain d...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
A massive volume of both structured and unstructured data
that is...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
825,300,000
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
BIG IMPACT
STORYTELLING WITH DATA
CC	
  Image	
  courtesy	
  of	
  clappstar	
  on	
  flickr.com
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
THE STORY
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
THE STORY
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
EUROSTAT
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
EUROSTAT
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
WHO
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
ESS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
ESS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
ESS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
ESS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
ESS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
ESS
THE AskCHIS WAY
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
EFFECT = AFFECT
HOW DID WE DO IT?
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
TAXONOMY
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
TAXONOMY
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
TERMINOLOGY
OPTIONS CHOICE
Benefit Package, Work Insurance,
Emplo...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
SYNONYMS/POLYHIERARCHY
MANAGED CARE DISABILITY
= =
Medicare, Heal...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
METADATA
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
METADATA
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
METADATA
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
METADATA
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONTENT MODEL
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
STRUCTURED CONTENT
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
STRUCTURED CONTENT
Variable Label
CHIS Data Source(s)
Age Groups
...
WHERE WE ARE GOING
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONCRETELY
WHAT (DELIVERABLES) HOW (USES) WHY (GOALS)
• Sitemap
•...
CHPR CHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
MORE (RE)SEARCH
CHPR AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONNECTIONS
CHPR AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONNECTIONS
CHPR AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONNECTIONS
CHPR AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONNECTIONS
CHPR AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONNECTIONS
CHPR AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONNECTIONS
CHPR AskCHIS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
CONNECTIONS
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
PRIORITIZE CONTENT
NEWSLETTER
SIGNUP
GLOBAL NAVIGATION AND SERVICE LINKS SEARCH
LOGO AND SLOGAN
MAIN NAVIGATION
CAROUSEL PHOTO
FEATURED PRODU...
NEWSLETTER
SIGNUP
GLOBAL NAVIGATION AND SERVICE LINKS SEARCH
LOGO AND SLOGAN
MAIN NAVIGATION
CAROUSEL PHOTO
FEATURED PRODU...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
NEWSLETTER
SIGNUP
GLOBAL NAVIGATION AND SERVICE LINKS SEARCH
CARO...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
NEWSLETTER
SIGNUP
GLOBAL NAVIGATION AND SERVICE LINKS SEARCH
CARO...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
NEWSLETTER
SIGNUP
GLOBAL NAVIGATION AND SERVICE LINKS SEARCH
CARO...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
NEWSLETTER
SIGNUP
GLOBAL NAVIGATION AND SERVICE LINKS SEARCH
CARO...
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
DESIGN
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
DESIGN
SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
DESIGN
alberta soranzo | @albertatrebla
albertasoranzo@gmail.com
UCLA Center for Health Policy Research
THANK YOU!
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The Secret Language of Data

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In December 2008 the European Parliament and the Council adopted a framework regulation for statistics concerning public health and health and safety at work. The magnitude of data collected this far is enormous, however none of the available databases—WHO, Health-EU or Eurostat, provides a usable interface that allows users to generate customized and easy to interpret health statistics. Additionally, it is virtually impossible to demonstrate the relationship between health topics and social or environmental factors to help contextualize data and substantiate correlation or prove causation.

This case study, drawn from direct professional experience, illustrates how correlation is discernible and actionable. And how employing taxonomies and metadata to improve navigation, browsing, search and discovery results in understanding and augmented awareness.

The California Health Interview Survey and its online statistical analysis query tool, AskCHIS, have managed to bridge the gap between the collection of large amounts of health and socioeconomic indicators and its meaningful visualization. The query tool, with its simple and intuitive interface, has effectively become a benchmark for health data statistical analysis tools that are usable across a variety of backgrounds and skills.

A rigorous taxonomy of variables, questionnaires and data dictionaries entries, in addition to meaningful metadata give the users the option to browse the full hierarchy of terms and categories or use keyword and phrases search. Supporting documentation—in the form of methodology papers, survey topics, questionnaires and data dictionaries, helps to contextualize research.

Talk presented at EuroIA in Edinburgh, Scotland on 9/28/2013.

Published in: Technology, Health & Medicine
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Transcript of "The Secret Language of Data"

  1. 1. TAXONOMIES AND MEANINGFUL METADATA TO CRACK THE CIPHER AND TELL THE STORY alberta soranzo | @albertatrebla UCLA Center for Health Policy Research EuroIA | Edinburgh, 26-28 September 2013 THE SECRET LANGUAGE OF DATA CC  Image  courtesy  of  Falco500  on  flickr.com
  2. 2. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CC  Image  courtesy  of  prayitnophotography  on  flickr.com
  3. 3. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CC  Image  courtesy  of  jczart  on  flickr.com
  4. 4. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla Health data provide information about the occurrence of certain diseases and health conditions. —http://www.health.ny.gov/environmental/public_health_tracking/about/glossary.htm HEALTH DATA
  5. 5. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla A massive volume of both structured and unstructured data that is so large that it's difficult to process using traditional database and software techniques. —http://www.webopedia.com BIG DATA
  6. 6. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
  7. 7. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla
  8. 8. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla 825,300,000
  9. 9. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla BIG IMPACT
  10. 10. STORYTELLING WITH DATA CC  Image  courtesy  of  clappstar  on  flickr.com
  11. 11. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla THE STORY
  12. 12. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla THE STORY
  13. 13. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla EUROSTAT
  14. 14. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla EUROSTAT
  15. 15. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla WHO
  16. 16. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  17. 17. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  18. 18. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  19. 19. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  20. 20. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  21. 21. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla ESS
  22. 22. THE AskCHIS WAY
  23. 23. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  24. 24. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  25. 25. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  26. 26. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  27. 27. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  28. 28. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  29. 29. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla AskCHIS
  30. 30. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla EFFECT = AFFECT
  31. 31. HOW DID WE DO IT?
  32. 32. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla TAXONOMY
  33. 33. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla TAXONOMY
  34. 34. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla TERMINOLOGY OPTIONS CHOICE Benefit Package, Work Insurance, Employee Insurance, Employee Health Plan Employment-based coverage Poor, Indigent, Impoverished, Below Federal Poverty Line Low-income Handicapped, Disabled, Blinds, Deaf Persons, Persons with disabilities
  35. 35. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla SYNONYMS/POLYHIERARCHY MANAGED CARE DISABILITY = = Medicare, Health Insurance, Comprehensive Medical Insurance, Group Medical Insurance, Health Plan, Medicaid, Medi-cal, Indian Health Services, Healthy Families Handicap, Deficit, Impairment, Mental Impairment, Physical Impairment, Health Problem, Functional Impairment, Incapacity, Ailment
  36. 36. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  37. 37. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  38. 38. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  39. 39. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla METADATA
  40. 40. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONTENT MODEL
  41. 41. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla STRUCTURED CONTENT
  42. 42. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla STRUCTURED CONTENT Variable Label CHIS Data Source(s) Age Groups Levels Description Restrictions Year
  43. 43. WHERE WE ARE GOING
  44. 44. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONCRETELY WHAT (DELIVERABLES) HOW (USES) WHY (GOALS) • Sitemap • Content Inventory • Wireframes • Controlled Vocabulary • Tags • Categories • Filters • URLs • Glossary • Navigation • Content strategy • Findability • Organization • Cross-channel Consistency • Governance • Understanding • Branding
  45. 45. CHPR CHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla MORE (RE)SEARCH
  46. 46. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  47. 47. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  48. 48. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  49. 49. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  50. 50. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  51. 51. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  52. 52. CHPR AskCHIS SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla CONNECTIONS
  53. 53. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla PRIORITIZE CONTENT
  54. 54. NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH LOGO AND SLOGAN MAIN NAVIGATION CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) ASK THE EXPERT (100 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) HEALTH CARE REFORM (100 WORDS MAX) SPOTLIGHT (100 WORDS MAX) PROGRAM 1 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla PRIORITIZE CONTENT
  55. 55. NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH LOGO AND SLOGAN MAIN NAVIGATION CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) ASK THE EXPERT (100 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) HEALTH CARE REFORM (100 WORDS MAX) SPOTLIGHT (100 WORDS MAX) PROGRAM 1 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) PROGRAM 2 (50 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla PRIORITIZE CONTENT
  56. 56. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  57. 57. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  58. 58. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  59. 59. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla NEWSLETTER SIGNUP GLOBAL NAVIGATION AND SERVICE LINKS SEARCH CAROUSEL PHOTO FEATURED PRODUCT 1 (3 WORDS MAX) FEATURED PRODUCT 2 (3 WORDS MAX) PUB SEARCH SLIDE TITLE (10 WORDS MAX) SLIDE TEASER (50 WORDS MAX) TOPIC CENTER (10 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CONTENT PRIORITY = FLEXIBILITY NAV SEARCH (SITE AND PUBS) SLIDE TEASER SHORT (10 WORDS MAX) FEATURED PRODUCT 1 (3 WORDS MAX) TOPIC CENTER (5 LINKS x 4 WORDS MAX) NEWS (5 LINKS x 10 WORDS MAX) CAROUSEL PHOTO THUMB FEATURED PRODUCT 2 (3 WORDS MAX)
  60. 60. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla DESIGN
  61. 61. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla DESIGN
  62. 62. SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla DESIGN
  63. 63. alberta soranzo | @albertatrebla albertasoranzo@gmail.com UCLA Center for Health Policy Research THANK YOU!
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