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  • 1. Involving people who use services Rocket science?
  • 2. What layers of involvement?
    • Individual – people being involved in decisions which affect their own lives
    • Organisational – people who use services having an influence over the service they use
    • Strategic – influencing legislation, policy and service design and development across services, at the highest levels
  • 3. People who use services…
    • Require those services for a reason
    • Are more than their need for a service
    • Are not simply defined by their needs
    • But usually continue to have those needs while participating
  • 4. men women gay straight young people older people sisters brothers mothers fathers husbands wives neighbours carers unwell well impaired lonely speaking signing walking wheeling happy seeing guided supported
  • 5. Working holistically
    • Recognising the real and valuable contribution that can come from genuinely involving the people who use services
    • Recognising and valuing and working with the differences of all of the unique individuals who are involved
  • 6. What’s the point?
    • Benefit to the system and service users generally by becoming more considered, more person-centred, more responsive and more effective
    • Benefit to the people who are involved – as part of recovery, redress, development and sometimes (gulp) therapy
  • 7. Tokenism and traps
    • Pick people who “fit in”
    • Don’t tell them who holds the power
    • Ignore their organisations and facilitate tame and “domestic” users
    • Avoid democracy and accountability
    • Timing
    • Duration
    • Location
  • 8.  
  • 9. People First (Scotland) The national independent self-advocacy organisation of people with learning difficulties in Scotland.
  • 10. People First (Scotland)
    • Became a company in 1989
    • Over 80 People First groups from the Borders up to the islands.
    • About 950 members
  • 11. How we run People First
    • Run by us, the members
    • Board of Directors
    • Staffing Committee
    • Chair’s Committee
    • Elections
  • 12. Local Groups
    • What local groups do
    • Women’s groups
    • Area-wide groups
    • Sit on local planning bodies and strategic groups
  • 13. National Work
    • We represent People First (Scotland) on:
    • SAYIG and working groups
    • Multi-agency Inspection Steering Group
    • QIS
    • Care Commission User and Carer group
    • Cross-party Learning Disability group
    • Scottish Parenting Network
    • User and Carer Panel of 21 st Century Social Work Review
    • SIAA Board
    • Mental Health Act Implementation group
  • 14. National work
    • Conferences
    • Consultations
    • Training
  • 15. International work
    • Conferences:
    • Canada
    • Alaska
    • London
    • Visits:
    • Wisconsin
    • Ireland
    • Germany
  • 16. People First Europe conference, Edinburgh 2005 International work
  • 17. Why People First is important
    • Change on 3 levels:
    • Individuals
    • The way we are treated and seen by others
    • Laws and policies