Social Networking Tools Using Facebook, Ning, and More for Health
Agenda <ul><li>10:30 - Speaker introductions </li></ul><ul><li>10:40 – Facebook for public health </li></ul><ul><li>11:20 ...
William Brown III <ul><li>Doctoral Candidate in Public Health, UC Berkeley </li></ul><ul><li>Manager eCommunications: </li...
Courtenay Stewart <ul><li>Community Advocate, Ning.com </li></ul><ul><li>Board Member, Kids with Dreams </li></ul><ul><li>...
Manny Hernandez <ul><li>Living with LADA (type 1.5 diabetes) since 2002 </li></ul><ul><li>Founder:  TuDiabetes,org  and  E...
Twitter hashtag <ul><li>Use  #SNT4Health  to live-tweet during the workshop and share any afterthoughts. </li></ul>
Facebook for Public Health <ul><li>Review Social Media trends, concepts, and Public Health opportunities  </li></ul><ul><l...
Social Media
Social Networks
Social Media and Public Health Interventions <ul><li>Why use Social Media? </li></ul><ul><ul><li>Convenient </li></ul></ul...
Social Media and Public Health Populations <ul><li>Paraplegic, Quadriplegic; Diabetes; Cancer; HIV, Youth, Pregnancy </li>...
Facebook for Public Health <ul><li>Hyper-targeting at massive scale </li></ul><ul><ul><li>Demographic and psychographic ta...
Facebook People <ul><li>Identify your population </li></ul><ul><ul><li>Assess audience or population Access </li></ul></ul...
Facebook Tools <ul><li>Identify helpful tools </li></ul><ul><ul><li>Make use of social information sharing </li></ul></ul>...
Facebook Presence <ul><li>Stand out, be appealing </li></ul><ul><ul><li>Engage your audience in a meaningful way </li></ul...
Facebook Users <ul><li>Pay attention to your users </li></ul><ul><ul><li>Likes/Trends </li></ul></ul><ul><ul><li>Issues/Pr...
Facebook for Public Health <ul><li>Designate point person </li></ul><ul><li>Setup what you can maintain </li></ul>
Facebook for Public Health <ul><li>Potential impact of eHealth </li></ul><ul><ul><li>Large scale and targeted health deliv...
Ning: a social networking platform <ul><li>Create a social network for anything </li></ul><ul><ul><li>Getting started </li...
Ning: getting started
Ning: getting started
Voilà!
Tools for your network <ul><li>Forum </li></ul><ul><ul><li>Open the conversation </li></ul></ul><ul><li>Latest Activity </...
Tools for your network <ul><li>Ning Apps and widgets </li></ul>
community.wegohealth.com
Community.wegohealth.com
worldkidneyday.org
Ning for public health
Ning for patients (users, members) <ul><li>You can connect with others like you. </li></ul><ul><li>…  people you didn’t kn...
Ning for providers (administrators) <ul><li>New way to engage with constituents /patients :  </li></ul><ul><ul><li>Blogs, ...
Community Management <ul><li>Listen : to your members, on Social Media. </li></ul><ul><li>Reward : feature member content,...
Member Management <ul><li>( TIP ) Moderated membership: </li></ul><ul><ul><li>An additional anti-SPAM measure </li></ul></...
Content Management <ul><li>Content: </li></ul><ul><ul><li>( TIP ) Featuring member-generated content </li></ul></ul><ul><u...
Develop Guidelines <ul><li>You will need them in times of crisis. </li></ul><ul><li>…  and enforce them! </li></ul><ul><li...
Network development, outreach <ul><li>Through your members: </li></ul><ul><ul><li>Invitations, badges, embeddable content ...
Managing your network, growth <ul><li>There’s no auto-pilot </li></ul><ul><li>Recruit helpers: from among your members! </...
TuDiabetes <ul><li>http://www.tudiabetes.org   </li></ul><ul><li>Launched in March 2007 </li></ul><ul><li>Mid-April 2009 (...
Word in your Hand: video from member submissions <ul><li>July 2007: Member published  blog entry  with word describing fee...
TuAnalyze <ul><li>Ning App to be launched late April 2010 </li></ul><ul><li>Collaboration between Diabetes Hands Foundatio...
TuAnalyze Ning App
Data stored in Indivo PCHR
Ning App to enter, track, share A1c
A1c data Sharing Settings
Mapping aggregate A1c data
California Convergence <ul><li>http://CaliforniaConvergence.ning.com </li></ul><ul><li>Coordinated by the Partnership for ...
Public Health Policy meets Ning <ul><li>Each button on the home page links to a  Group  page </li></ul><ul><li>Slideshows ...
Questions???
Thank you!! <ul><li>Enjoy lunch! </li></ul>
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Social networking tools for Health

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Using Facebook, Ning, and More for Health. Presentation by: Courtenay Stewart, William Brown III and Manny Hernandez.

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  • -set up in less than 5 minutes
  • -less is more! -16 features and counting -great way to customize for your audience
  • -in house developers and 3 rd party developers -other: donate button (paypal)
  • “ Helping health activists to help others” -WEGO Health asks top health activists to share their stories. Learn about their experiences, motivations and goals -members-&gt;contributers -intergrating with website/outside blogs -hlth activists, patients, etc -&gt;4000, #hits, funding
  • -network for one event -spread awareness -go viral with information -organize information -events scheduled in dif cities
  • Social networking tools for Health

    1. 1. Social Networking Tools Using Facebook, Ning, and More for Health
    2. 2. Agenda <ul><li>10:30 - Speaker introductions </li></ul><ul><li>10:40 – Facebook for public health </li></ul><ul><li>11:20 - Ning as a social networking platform. </li></ul><ul><li>11:50 - Ning for public health. </li></ul><ul><li>12:20 - General Q&A </li></ul><ul><li>12:30 - Lunch </li></ul>
    3. 3. William Brown III <ul><li>Doctoral Candidate in Public Health, UC Berkeley </li></ul><ul><li>Manager eCommunications: </li></ul><ul><ul><li>Health Research for Action </li></ul></ul><ul><li>Researcher: </li></ul><ul><ul><li>Public Health Institute, Oakland </li></ul></ul><ul><ul><li>Psychology Dept., University of Utah </li></ul></ul><ul><li>Contact info: </li></ul><ul><ul><li>[email_address] </li></ul></ul><ul><ul><li>http://facebook.com/healthresearchforaction </li></ul></ul>
    4. 4. Courtenay Stewart <ul><li>Community Advocate, Ning.com </li></ul><ul><li>Board Member, Kids with Dreams </li></ul><ul><li>Contact Info </li></ul><ul><ul><li>[email_address] </li></ul></ul><ul><li>Ask Us! </li></ul><ul><ul><li>http://help.ning.com </li></ul></ul><ul><ul><li>http://creators.ning.com </li></ul></ul><ul><ul><li>Twitter: @ningadvocacy </li></ul></ul>
    5. 5. Manny Hernandez <ul><li>Living with LADA (type 1.5 diabetes) since 2002 </li></ul><ul><li>Founder: TuDiabetes,org and EsTuDiabetes.org </li></ul><ul><li>President: Diabetes Hands Foundation </li></ul><ul><li>Author: Ning For Dummies </li></ul><ul><li>Contact: </li></ul><ul><ul><li>Email: [email_address] </li></ul></ul><ul><ul><li>Twitter: @askmanny </li></ul></ul><ul><ul><li>Blog: www.askmanny.com </li></ul></ul>
    6. 6. Twitter hashtag <ul><li>Use #SNT4Health to live-tweet during the workshop and share any afterthoughts. </li></ul>
    7. 7. Facebook for Public Health <ul><li>Review Social Media trends, concepts, and Public Health opportunities </li></ul><ul><li>Highlight Health uses of Social Networking </li></ul><ul><li>Discuss how to build and maintain a social media presence </li></ul><ul><li>Share free online tools that can be used for health advocacy </li></ul>
    8. 8. Social Media
    9. 9. Social Networks
    10. 10. Social Media and Public Health Interventions <ul><li>Why use Social Media? </li></ul><ul><ul><li>Convenient </li></ul></ul><ul><ul><li>Reach large demographics </li></ul></ul><ul><ul><li>Cost effective </li></ul></ul><ul><ul><li>Time efficient </li></ul></ul><ul><ul><li>Confidential & Safe (w/privacy settings) </li></ul></ul><ul><ul><li>Youth friendly! </li></ul></ul>
    11. 11. Social Media and Public Health Populations <ul><li>Paraplegic, Quadriplegic; Diabetes; Cancer; HIV, Youth, Pregnancy </li></ul><ul><li>Internet Gap </li></ul><ul><ul><li>Race, Able, Chronically Ill, SES, etc. </li></ul></ul><ul><li>Significantly more likely to find information helpful </li></ul><ul><li>User generated </li></ul>
    12. 12. Facebook for Public Health <ul><li>Hyper-targeting at massive scale </li></ul><ul><ul><li>Demographic and psychographic targeting </li></ul></ul><ul><li>Public Health Research </li></ul><ul><ul><li>Cyber-ethnographic/anthropologic, Questionnaire, Observation, Analysis </li></ul></ul><ul><li>Facebook over 200 million users </li></ul>Growth Age 13-17 18-24 25- 34 35+ Pew Research Center (2009). Social Media and Young Adults: Sept. 12, 2009, from http://www.pewinternet.org/Reports/2010/Social-Media-and-Young-Adults/Part-3/2-Adults-and-social-networks.aspx?r=1
    13. 13. Facebook People <ul><li>Identify your population </li></ul><ul><ul><li>Assess audience or population Access </li></ul></ul><ul><ul><li>Evaluate a need </li></ul></ul>
    14. 14. Facebook Tools <ul><li>Identify helpful tools </li></ul><ul><ul><li>Make use of social information sharing </li></ul></ul><ul><ul><ul><li>Minimal restrictions </li></ul></ul></ul><ul><li>Online communication tools </li></ul>
    15. 15. Facebook Presence <ul><li>Stand out, be appealing </li></ul><ul><ul><li>Engage your audience in a meaningful way </li></ul></ul><ul><ul><li>Update status consistently but sparingly </li></ul></ul><ul><ul><ul><li>3-4 per week </li></ul></ul></ul>
    16. 16. Facebook Users <ul><li>Pay attention to your users </li></ul><ul><ul><li>Likes/Trends </li></ul></ul><ul><ul><li>Issues/Problems </li></ul></ul><ul><li>Groups/Pages </li></ul>
    17. 17. Facebook for Public Health <ul><li>Designate point person </li></ul><ul><li>Setup what you can maintain </li></ul>
    18. 18. Facebook for Public Health <ul><li>Potential impact of eHealth </li></ul><ul><ul><li>Large scale and targeted health delivery </li></ul></ul><ul><ul><li>Promote health education and literacy </li></ul></ul><ul><ul><li>Reach more people </li></ul></ul><ul><ul><li>Potential for better and faster health outcomes </li></ul></ul><ul><ul><li>Cost effective </li></ul></ul><ul><ul><li>Decrease disparities (Cellular technologies) </li></ul></ul><ul><li>But… </li></ul><ul><ul><li>Needs more evaluation </li></ul></ul><ul><ul><li>Technology gaps and barriers </li></ul></ul>
    19. 19. Ning: a social networking platform <ul><li>Create a social network for anything </li></ul><ul><ul><li>Getting started </li></ul></ul><ul><ul><li>Tools for your network </li></ul></ul><ul><ul><li>See it live </li></ul></ul>
    20. 20. Ning: getting started
    21. 21. Ning: getting started
    22. 22. Voilà!
    23. 23. Tools for your network <ul><li>Forum </li></ul><ul><ul><li>Open the conversation </li></ul></ul><ul><li>Latest Activity </li></ul><ul><ul><li>See what’s happening </li></ul></ul><ul><li>Groups </li></ul><ul><ul><li>Organize your members </li></ul></ul><ul><li>Feature </li></ul><ul><ul><li>Turn members into contributors </li></ul></ul>
    24. 24. Tools for your network <ul><li>Ning Apps and widgets </li></ul>
    25. 25. community.wegohealth.com
    26. 26. Community.wegohealth.com
    27. 27. worldkidneyday.org
    28. 28. Ning for public health
    29. 29. Ning for patients (users, members) <ul><li>You can connect with others like you. </li></ul><ul><li>… people you didn’t know before (difference with Facebook) </li></ul><ul><li>You become empowered with new information. </li></ul><ul><li>You can educate others (even your med team!) </li></ul>http://flickr.com/photos/madfox/29367611/
    30. 30. Ning for providers (administrators) <ul><li>New way to engage with constituents /patients : </li></ul><ul><ul><li>Blogs, forums, videos </li></ul></ul><ul><li>Foster and solidify offline connections: </li></ul><ul><ul><li>Events, groups </li></ul></ul><ul><li>Increased outreach possibilities: </li></ul><ul><ul><li>Sharing mechanisms </li></ul></ul><ul><ul><li>Export member data </li></ul></ul>
    31. 31. Community Management <ul><li>Listen : to your members, on Social Media. </li></ul><ul><li>Reward : feature member content, feature members. Reward power users. </li></ul><ul><li>Engage : keep content fresh, give members reasons to return. </li></ul><ul><li>Offline : the social network can feed from the offline experience and create opportunities for face-to-face collaboration. </li></ul><ul><ul><li>( TIP ) read http://amysampleward.org and follow @AmyRSWard </li></ul></ul><ul><ul><li>Building Stronger Online Communities w/o Losing your Sanity </li></ul></ul>
    32. 32. Member Management <ul><li>( TIP ) Moderated membership: </li></ul><ul><ul><li>An additional anti-SPAM measure </li></ul></ul><ul><ul><li>Helps you keep your network centered on core topic </li></ul></ul><ul><ul><li>Allows you to know your members better through Registration Questions </li></ul></ul><ul><li>Featuring members </li></ul>
    33. 33. Content Management <ul><li>Content: </li></ul><ul><ul><li>( TIP ) Featuring member-generated content </li></ul></ul><ul><ul><li>What member-generated content belongs in your network? </li></ul></ul>
    34. 34. Develop Guidelines <ul><li>You will need them in times of crisis. </li></ul><ul><li>… and enforce them! </li></ul><ul><li>TuDiabetes values (examples): </li></ul><ul><ul><li>Community Support </li></ul></ul><ul><ul><li>Diversity & respect </li></ul></ul>http://www.flickr.com/photos/furnari/3484546075/
    35. 35. Network development, outreach <ul><li>Through your members: </li></ul><ul><ul><li>Invitations, badges, embeddable content </li></ul></ul><ul><li>Through network RSS feeds </li></ul><ul><ul><li>TwitterFeed feeding Twitter, FB page </li></ul></ul><ul><li>Through bloggers </li></ul><ul><li>Through Twitter: ( TIP ) Hootsuite let’s you schedule tweets! </li></ul><ul><li>Through existing offline efforts </li></ul>
    36. 36. Managing your network, growth <ul><li>There’s no auto-pilot </li></ul><ul><li>Recruit helpers: from among your members! </li></ul><ul><li>“ Economies of scale” and self-policing help </li></ul><ul><li>Administrators </li></ul><ul><ul><li>Up to a few 100 members, 1 admin suffices </li></ul></ul><ul><ul><li>Harder to keep up for one person past 1,000 members </li></ul></ul><ul><li>Outreach: about 1-5 hours per week </li></ul>
    37. 37. TuDiabetes <ul><li>http://www.tudiabetes.org </li></ul><ul><li>Launched in March 2007 </li></ul><ul><li>Mid-April 2009 (monthly stats): </li></ul><ul><ul><li>14,200+ members </li></ul></ul><ul><ul><li>130,000 monthly visits (50% are from returning visitors) </li></ul></ul><ul><ul><li>675,000 monthly pageviews </li></ul></ul><ul><ul><li>5+ minutes average session (9:04 for returning visitors) </li></ul></ul>Lots to be learned from info in Google Analytics
    38. 38. Word in your Hand: video from member submissions <ul><li>July 2007: Member published blog entry with word describing feeling about diabetes. </li></ul><ul><li>Oct. 2007: Through the forum , we collected 120+ photos . </li></ul><ul><li>Nov. 2007: We created a video (music also contributed by a member) for World Diabetes Day 2007. </li></ul>
    39. 39. TuAnalyze <ul><li>Ning App to be launched late April 2010 </li></ul><ul><li>Collaboration between Diabetes Hands Foundation & Children’s Hospital Boston </li></ul><ul><li>Mechanism for TuDiabetes members to: </li></ul><ul><ul><li>Enter, track; and </li></ul></ul><ul><ul><li>Optionally share their Hemoglobin A1c data </li></ul></ul><ul><li>Trending potential: </li></ul><ul><ul><li>Healthier behaviors </li></ul></ul><ul><ul><li>Regional A1c averages </li></ul></ul>
    40. 40. TuAnalyze Ning App
    41. 41. Data stored in Indivo PCHR
    42. 42. Ning App to enter, track, share A1c
    43. 43. A1c data Sharing Settings
    44. 44. Mapping aggregate A1c data
    45. 45. California Convergence <ul><li>http://CaliforniaConvergence.ning.com </li></ul><ul><li>Coordinated by the Partnership for the Public's Health (PHI project) </li></ul><ul><li>45 organizations “working together to improve food and physical activity environments” </li></ul><ul><li>Mid-April 2009: </li></ul><ul><ul><li>Nearly 600 members (100+ new members since start of 2010) </li></ul></ul><ul><ul><li>Policy streams communication hub </li></ul></ul><ul><ul><li>Conference to encourage site use </li></ul></ul>
    46. 46. Public Health Policy meets Ning <ul><li>Each button on the home page links to a Group page </li></ul><ul><li>Slideshows to share photos from events </li></ul><ul><li>Live blogging as events unfold </li></ul>
    47. 47. Questions???
    48. 48. Thank you!! <ul><li>Enjoy lunch! </li></ul>
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