Social networking tools for Health

Social Networking Tools Using Facebook, Ning, and More for Health

Agenda
10:30 - Speaker introductions
10:40 – Facebook for public health
11:20 - Ning as a social networking platform.
11:50 - Ning for public health.
12:20 - General Q&A
12:30 - Lunch

William Brown III
Doctoral Candidate in Public Health, UC Berkeley
Manager eCommunications:
Health Research for Action
Researcher:
Public Health Institute, Oakland
Psychology Dept., University of Utah
Contact info:
[email_address]
http://facebook.com/healthresearchforaction

Courtenay Stewart
Community Advocate, Ning.com
Board Member, Kids with Dreams
Contact Info
[email_address]
Ask Us!
http://help.ning.com
http://creators.ning.com
Twitter: @ningadvocacy

Manny Hernandez
Living with LADA (type 1.5 diabetes) since 2002
Founder: TuDiabetes,org and EsTuDiabetes.org
President: Diabetes Hands Foundation
Author: Ning For Dummies
Contact:
Email: [email_address]
Twitter: @askmanny
Blog: www.askmanny.com

Twitter hashtag
Use #SNT4Health to live-tweet during the workshop and share any afterthoughts.

Facebook for Public Health
Review Social Media trends, concepts, and Public Health opportunities
Highlight Health uses of Social Networking
Discuss how to build and maintain a social media presence
Share free online tools that can be used for health advocacy

Social Media

Social Networks

Social Media and Public Health Interventions
Why use Social Media?
Convenient
Reach large demographics
Cost effective
Time efficient
Confidential & Safe (w/privacy settings)
Youth friendly!

Social Media and Public Health Populations
Paraplegic, Quadriplegic; Diabetes; Cancer; HIV, Youth, Pregnancy
Internet Gap
Race, Able, Chronically Ill, SES, etc.
Significantly more likely to find information helpful
User generated

Hyper-targeting at massive scale
Demographic and psychographic targeting
Public Health Research
Cyber-ethnographic/anthropologic, Questionnaire, Observation, Analysis
Facebook over 200 million users
Growth Age 13-17 18-24 25- 34 35+ Pew Research Center (2009). Social Media and Young Adults: Sept. 12, 2009, from http://www.pewinternet.org/Reports/2010/Social-Media-and-Young-Adults/Part-3/2-Adults-and-social-networks.aspx?r=1

Facebook People
Identify your population
Assess audience or population Access
Evaluate a need

Facebook Tools
Identify helpful tools
Make use of social information sharing
Minimal restrictions
Online communication tools

Facebook Presence
Stand out, be appealing
Engage your audience in a meaningful way
Update status consistently but sparingly
3-4 per week

Facebook Users
Pay attention to your users
Likes/Trends
Issues/Problems
Groups/Pages

Designate point person
Setup what you can maintain

Potential impact of eHealth
Large scale and targeted health delivery
Promote health education and literacy
Reach more people
Potential for better and faster health outcomes
Cost effective
Decrease disparities (Cellular technologies)
But…
Needs more evaluation
Technology gaps and barriers

Ning: a social networking platform
Create a social network for anything
Getting started
Tools for your network
See it live

Ning: getting started

Voilà!

Forum
Open the conversation
Latest Activity
See what’s happening
Groups
Organize your members
Feature
Turn members into contributors

Ning Apps and widgets

community.wegohealth.com

Community.wegohealth.com

worldkidneyday.org

Ning for public health

Ning for patients (users, members)
You can connect with others like you.
… people you didn’t know before (difference with Facebook)
You become empowered with new information.
You can educate others (even your med team!)
http://flickr.com/photos/madfox/29367611/

Ning for providers (administrators)
New way to engage with constituents /patients :
Blogs, forums, videos
Foster and solidify offline connections:
Events, groups
Increased outreach possibilities:
Sharing mechanisms
Export member data

Community Management
Listen : to your members, on Social Media.
Reward : feature member content, feature members. Reward power users.
Engage : keep content fresh, give members reasons to return.
Offline : the social network can feed from the offline experience and create opportunities for face-to-face collaboration.
( TIP ) read http://amysampleward.org and follow @AmyRSWard
Building Stronger Online Communities w/o Losing your Sanity

Member Management
( TIP ) Moderated membership:
An additional anti-SPAM measure
Helps you keep your network centered on core topic
Allows you to know your members better through Registration Questions
Featuring members

Content Management
Content:
( TIP ) Featuring member-generated content
What member-generated content belongs in your network?

Develop Guidelines
You will need them in times of crisis.
… and enforce them!
TuDiabetes values (examples):
Community Support
Diversity & respect
http://www.flickr.com/photos/furnari/3484546075/

Network development, outreach
Through your members:
Invitations, badges, embeddable content
Through network RSS feeds
TwitterFeed feeding Twitter, FB page
Through bloggers
Through Twitter: ( TIP ) Hootsuite let’s you schedule tweets!
Through existing offline efforts

Managing your network, growth
There’s no auto-pilot
Recruit helpers: from among your members!
“ Economies of scale” and self-policing help
Administrators
Up to a few 100 members, 1 admin suffices
Harder to keep up for one person past 1,000 members
Outreach: about 1-5 hours per week

TuDiabetes
http://www.tudiabetes.org
Launched in March 2007
Mid-April 2009 (monthly stats):
14,200+ members
130,000 monthly visits (50% are from returning visitors)
675,000 monthly pageviews
5+ minutes average session (9:04 for returning visitors)
Lots to be learned from info in Google Analytics

Word in your Hand: video from member submissions
July 2007: Member published blog entry with word describing feeling about diabetes.
Oct. 2007: Through the forum , we collected 120+ photos .
Nov. 2007: We created a video (music also contributed by a member) for World Diabetes Day 2007.

TuAnalyze
Ning App to be launched late April 2010
Collaboration between Diabetes Hands Foundation & Children’s Hospital Boston
Mechanism for TuDiabetes members to:
Enter, track; and
Optionally share their Hemoglobin A1c data
Trending potential:
Healthier behaviors
Regional A1c averages

TuAnalyze Ning App

Data stored in Indivo PCHR

Ning App to enter, track, share A1c

A1c data Sharing Settings

Mapping aggregate A1c data

California Convergence
http://CaliforniaConvergence.ning.com
Coordinated by the Partnership for the Public's Health (PHI project)
45 organizations “working together to improve food and physical activity environments”
Mid-April 2009:
Nearly 600 members (100+ new members since start of 2010)
Policy streams communication hub
Conference to encourage site use

Public Health Policy meets Ning
Each button on the home page links to a Group page
Slideshows to share photos from events
Live blogging as events unfold

Questions???

Thank you!!
Enjoy lunch!

http://askmanny.com	19
http://www.reportingonhealth.org	9
http://www.slideshare.net	4

Social networking tools for Health

by Manny Hernandez

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