Recruiting
Participants with
Low Literacy Skills
Angela Colter (@angelacolter)
UPA 2010
Munich
In the United States



   44       %
            %
of adults have low
   literacy skills
             2003 National Asses...
Rate of adults with low literacy skills
       Sweden     25%

   Netherlands    36%

      Germany     42%

      Austral...
People with low literacy
skills likely:
•   are older
•   have less education
•   work low-paying jobs
•   are ashamed of ...
Reading, like typing, is a skill
Do you have low
literacy skills?




          Sorry, you can’t ask that
Recruiting Process


 ➊
         ➋
        ➌
	   FIND	   SCREEN	   CONFIRM
NEVER
 tell participants you’re
looking for people with
    low literacy skills
FIND
Where to start
looking
•   Adult education
    programs
•   Friends of qualified
    participants
•   Public health clinics...
Adult Basic	
 	 Education	           ≠   Adult
                            Literacy
 7th grade & above          6th grade ...
Working with adult education
•   Find a program on proliteracy.org
•   Build relationships
•   Be respectful
•   Pay parti...
SCREEN
How confident are you
filling out medical forms
by yourself?
Extremely
Quite a lot
Somewhat
A little bit                    ...
CONFIRM
REALM
Rapid Estimate of Adult Literacy in Medicine
• Word recognition test                                                ...
Two incentives
•   One to qualify ($25)
•   One to participate ($25 + $75)
To sum up:
• Recruit from sources likely to
  include low lit users
• Screen for low lit characteristics
• Confirm literacy...
Q&A
Angela Colter
angelacolter.com/lowliteracy
acolter@gmail.com
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Recruiting Participants with Low Literacy Skills

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Nearly half of the adult population in the U.S. have low literacy skills. Including these participants in usability studies is important, but they are notoriously hard to recruit. Learn strategies for recruiting participants with poor reading skills and methods for estimating their reading level.

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Recruiting Participants with Low Literacy Skills

  1. 1. Recruiting Participants with Low Literacy Skills Angela Colter (@angelacolter) UPA 2010 Munich
  2. 2. In the United States 44 % % of adults have low literacy skills 2003 National Assessment of Adult Literacy
  3. 3. Rate of adults with low literacy skills Sweden 25% Netherlands 36% Germany 42% Australia 44% Switzerland 47% United Kingdom 50% Ireland 57% Hungary 67% Portugal 80% 1998 International Adult Literacy Survey (OECD)
  4. 4. People with low literacy skills likely: • are older • have less education • work low-paying jobs • are ashamed of their poor reading skills • hide their reading difficulties from others
  5. 5. Reading, like typing, is a skill
  6. 6. Do you have low literacy skills? Sorry, you can’t ask that
  7. 7. Recruiting Process ➊ ➋ ➌ FIND SCREEN CONFIRM
  8. 8. NEVER tell participants you’re looking for people with low literacy skills
  9. 9. FIND
  10. 10. Where to start looking • Adult education programs • Friends of qualified participants • Public health clinics • Ex-offender email lists Photo © 2008 Traci Paris
  11. 11. Adult Basic Education ≠ Adult Literacy 7th grade & above 6th grade & below Groups One-on-one Associated with Free-standing public schools/ volunteer community colleges May have to go No IRB through school’s institutional review board
  12. 12. Working with adult education • Find a program on proliteracy.org • Build relationships • Be respectful • Pay participants • Pay the literacy program
  13. 13. SCREEN
  14. 14. How confident are you filling out medical forms by yourself? Extremely Quite a lot Somewhat A little bit Predicts low literacy 83% of the time Not at all Wallace L, Rogers E, et al Screening items to identify patients with limited health literacy skills Journal of General Internal Medicine. 2006; 21: 874-877
  15. 15. CONFIRM
  16. 16. REALM Rapid Estimate of Adult Literacy in Medicine • Word recognition test fat flu fatigue pelvic allergic menstrual • Quick and easy to administer pill dose jaundice infection testicle colitis • Participant says each word out eye stress exercise behavior emergency medication loud. Scored on number smear prescription occupation pronounced correctly nerves germs notify gallbladder sexually alcoholism 61-66: not low lit meals calories irritation disease depression constipation 45-60: grade 7-8 cancer miscarriage gonorrhea 19-44: grade 4-6 caffeine pregnancy inflammatory 0-18: grade 3 or below attack arthritis diabetes kidney nutrition hepatitis • Doesn’t matter if they know hormones menopause antibiotics the word’s meaning herpes appendix diagnosis seizure abnormal potassium bowel syphilis anemia asthma hemorrhoids obesity Davis T, Long S, et al rectal nausea osteoporosis Rapid estimate of adult literacy in medicine: a shortened screening instrument Fam Med. 1993; 25: 391-395 incest directed impetigo
  17. 17. Two incentives • One to qualify ($25) • One to participate ($25 + $75)
  18. 18. To sum up: • Recruit from sources likely to include low lit users • Screen for low lit characteristics • Confirm literacy level in person • Pay separate incentives for confirmation and participation
  19. 19. Q&A Angela Colter angelacolter.com/lowliteracy acolter@gmail.com
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