#WeAreNotWaiting
Howard Look
President, CEO and Founder, Tidepool
#WeAreNotWaiting
#WeAreNotWaiting
…for peace of mind that our children with
type 1 diabetes are safe.
!
…to allow PWDs to have a choice in ...
Who owns the data?
What data are we talking
about, anyway?
How is the data accessed?
How do we assess safety
and efficacy ?
Why is this all so important,
anyway?
Who owns the data?
Who owns the data?
“It’s my disease, it’s my data.”
What data are we talking
about, anyway?
Personal Health Data
Contextual Data
Diagnostic, Safety, Efficacy, Proprietary Data...
BG data
basal rate settings
insulin to carbohydrate ratios
insulin sensitivity factors
basal rate change events
bolus and ...
Contextual Data
location
activity tracker
meal information
calendar events
…
Device Identification Data
device ID
brand
model and revision
…
ISIG values
pump occlusion pressure
internal temperature
battery recharge cycles
internal error logs
Internal, Diagnostic,...
http://commons.wikimedia.org/wiki/Category:Crying_babies#mediaviewer/File:Waaah!.jpg
http://commons.wikimedia.org/wiki/File:The_ladder_of_life_is_full_of_splinters.jpg
!
!
!
!
!
!
!
Does the patient own their own health data?
!
!
!
!
!
!
Can patients donate and repurpose their data?
!
Does the patient own their own health data?
“Any data submitted through
[the service] shall be property
of [the service], and you
hereby waive all right, title and
in...
“Any data submitted by you through our
service is owned by you.

We are stewards of your data.
!
If you’d like to make you...
!
!
!
!
Cloud Services - machine accessible APIs?
Devices - documented protocol?
!
Can patients donate and repurpose their...
!
!
!
Devices - allow identification?
!
Cloud Services - machine accessible APIs?
Devices - documented protocol?
!
Can pati...
!
!
Data format/protocols complete and unambiguous?
!
Devices - allow identification?
!
Cloud Services - machine accessible...
!
Provide safety/efficacy/diagnostic data?
!
Data format/protocols complete and unambiguous?
!
Devices - allow identificatio...
Source code available for inspection?
!
Provide safety/efficacy/diagnostic data?
!
Data format/protocols complete and unamb...
A!
device
B!
device
C!
device
D!
cloud
E!
cloud
Open!
dev+cloud
Open Source? ✗ ✗ ✗ ✗ ✓ ✓
Safety and
Efficacy data? ✗ ✗ ✗ ✗ ...
#WeAreNotWaiting
Ben West
Let’s chat with an insulin pump
Meet Dario, the Personalized Smart Meter
#DIYPS	
  |	
  @DanaMLewis	
  &	
  @ScottLeibrand
• Real-­‐time	
  processing	
  of	
  BG,	
  insulin	
  on	
  
board,	
  ...
IN A BOLD NEW WAY
Galileo Cosmos™
EXPLORE YOUR DATA
Apps Hardware DoctorsEducation
INTEGRATED DIABETES HEALTHCARE
Nightscout
cloud
Watch Web  browser  “app”
CGM Remote monitoring for people wearing CGM:
CGM + USB Cable + Android + Datab...
• Ben West - Let’s chat with an insulin pump
• Dario, LabStyle Innovations - Oren Fuerst, David Edelman
• #DIYPS - Dana Le...
#WeAreNotWaiting - Call to Action by Howard Look @ the DiabetesMine D-Data ExChange June 2014
#WeAreNotWaiting - Call to Action by Howard Look @ the DiabetesMine D-Data ExChange June 2014
#WeAreNotWaiting - Call to Action by Howard Look @ the DiabetesMine D-Data ExChange June 2014
#WeAreNotWaiting - Call to Action by Howard Look @ the DiabetesMine D-Data ExChange June 2014
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#WeAreNotWaiting - Call to Action by Howard Look @ the DiabetesMine D-Data ExChange June 2014

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Howard Look, CEO of Tidepool, lays out the steps for device makers to achieve an open systems approach to diabetes care, at the June 2014 DiabetesMine D-Data ExChange event.

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#WeAreNotWaiting - Call to Action by Howard Look @ the DiabetesMine D-Data ExChange June 2014

  1. 1. #WeAreNotWaiting Howard Look President, CEO and Founder, Tidepool
  2. 2. #WeAreNotWaiting
  3. 3. #WeAreNotWaiting …for peace of mind that our children with type 1 diabetes are safe. ! …to allow PWDs to have a choice in how they see their own diabetes data. ! … to bring together the best and brightest minds from around the world to help make things better for PWDs.
  4. 4. Who owns the data? What data are we talking about, anyway? How is the data accessed? How do we assess safety and efficacy ?
  5. 5. Why is this all so important, anyway?
  6. 6. Who owns the data?
  7. 7. Who owns the data? “It’s my disease, it’s my data.”
  8. 8. What data are we talking about, anyway? Personal Health Data Contextual Data Diagnostic, Safety, Efficacy, Proprietary Data Device Identification Data
  9. 9. BG data basal rate settings insulin to carbohydrate ratios insulin sensitivity factors basal rate change events bolus and bolus wizard events settings change events … Personal Health Data
  10. 10. Contextual Data location activity tracker meal information calendar events …
  11. 11. Device Identification Data device ID brand model and revision …
  12. 12. ISIG values pump occlusion pressure internal temperature battery recharge cycles internal error logs Internal, Diagnostic,
 Safety, Efficacy Data
  13. 13. http://commons.wikimedia.org/wiki/Category:Crying_babies#mediaviewer/File:Waaah!.jpg
  14. 14. http://commons.wikimedia.org/wiki/File:The_ladder_of_life_is_full_of_splinters.jpg
  15. 15. ! ! ! ! ! ! ! Does the patient own their own health data?
  16. 16. ! ! ! ! ! ! Can patients donate and repurpose their data? ! Does the patient own their own health data?
  17. 17. “Any data submitted through [the service] shall be property of [the service], and you hereby waive all right, title and interest to the submitted data.”
  18. 18. “Any data submitted by you through our service is owned by you.
 We are stewards of your data. ! If you’d like to make your data accessible to someone else, or to different software,
 just let us know. ! If you’d like to donate your data to an anonymous research database,
 just let us know.”
  19. 19. ! ! ! ! Cloud Services - machine accessible APIs? Devices - documented protocol? ! Can patients donate and repurpose their data? ! Does the patient own their own health data?
  20. 20. ! ! ! Devices - allow identification? ! Cloud Services - machine accessible APIs? Devices - documented protocol? ! Can patients donate and repurpose their data? ! Does the patient own their own health data?
  21. 21. ! ! Data format/protocols complete and unambiguous? ! Devices - allow identification? ! Cloud Services - machine accessible APIs? Devices - documented protocol? ! Can patients donate and repurpose their data? ! Does the patient own their own health data?
  22. 22. ! Provide safety/efficacy/diagnostic data? ! Data format/protocols complete and unambiguous? ! Devices - allow identification? ! Cloud Services - machine accessible APIs? Devices - documented protocol? ! Can patients donate and repurpose their data? ! Does the patient own their own health data?
  23. 23. Source code available for inspection? ! Provide safety/efficacy/diagnostic data? ! Data format/protocols complete and unambiguous? ! Devices - allow identification? ! Cloud Services - machine accessible APIs? Devices - documented protocol? ! Can patients donate and repurpose their data? ! Does the patient own their own health data?
  24. 24. A! device B! device C! device D! cloud E! cloud Open! dev+cloud Open Source? ✗ ✗ ✗ ✗ ✓ ✓ Safety and Efficacy data? ✗ ✗ ✗ ✗ ✓ ✓ Protocol complete? ✓ ✗ ✓ ✗ ✓ ✓ Device ID OK? ✗ ✗ ✓ - - ✓ Accessible Cloud APIs? - ✗ ✓ ✓ ✓ ✓ Device protocol published? ✓ ✗ ✓ - - ✓ Donate and repurpose data? ✓ ✗ ✓ ✗ ✓ ✓ Patient owns health data? ✓ ✓ ✓ ✗ ✓ ✓
  25. 25. #WeAreNotWaiting
  26. 26. Ben West Let’s chat with an insulin pump
  27. 27. Meet Dario, the Personalized Smart Meter
  28. 28. #DIYPS  |  @DanaMLewis  &  @ScottLeibrand • Real-­‐time  processing  of  BG,  insulin  on   board,  carbohydrate  decay   ! • Customizable  alerts  based  on  CGM   Data  +  trends   ! • Real-­‐time  predictive  alerts  for   FUTURE  high/low  BGs  (hours  in   advance)   ! • Continually  updated   recommendations  for  insulin  (bolus   or  temp  basal)  +  carbs
  29. 29. IN A BOLD NEW WAY Galileo Cosmos™ EXPLORE YOUR DATA
  30. 30. Apps Hardware DoctorsEducation INTEGRATED DIABETES HEALTHCARE
  31. 31. Nightscout cloud Watch Web  browser  “app” CGM Remote monitoring for people wearing CGM: CGM + USB Cable + Android + Database + Cloud Server + App running on Glanceable Display = Safety and Peace of Mind
  32. 32. • Ben West - Let’s chat with an insulin pump • Dario, LabStyle Innovations - Oren Fuerst, David Edelman • #DIYPS - Dana Lewis, Scott Leibrandt • Gallileo Analytics - Anna McCollister-Slipp • Joslin HypoMap™ powered by Glooko™ - 
 Rick Altinger, Howard Wolpert • mySugr - Kyle Rose, Frank Westermann • Tidepool - Blip, Sonar, Nutshell, Sonar, Tidepool Platform • Nightscout - Lane Desborough, Jason Calabrese, Ross Naylor

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