Presentation for  Little People of America Leadership mid-year meeting 2012 Feb,  2012 Please do not distribute this prese...
ABOUT US  <ul><li>Live in Saratoga, Calif. </li></ul><ul><ul><li>Near San Francisco </li></ul></ul><ul><li>Amer  </li></ul...
OUR INVOLVEMENT WITH LPA <ul><li>Events  </li></ul><ul><ul><li>Winter party </li></ul></ul><ul><ul><li>Annual conference <...
MEETING CONTEXT  <ul><li>Our motivation is our 3.5 yrs old son </li></ul><ul><li>Our goal is to start a dialogue </li></ul...
SYNERGY <ul><li>LPA’s Mission </li></ul><ul><ul><li>LPA is dedicated to improving the  quality of life  for people with dw...
LITTLE PEOPLE ARE IMPACTED BY  HEALTH ISSUES <ul><li>Sleep Apnea </li></ul><ul><li>Spinal Stenosis </li></ul><ul><ul><li>N...
ADDRESSING HEALTH CONCERNS ARE CENTRAL TO LPA AND QOL <ul><li>The LPA’s Medical Advisory Board provides a critical service...
AREAS OF HEALTH THAT CAN BENEFIT FROM RESEARCH <ul><li>Life Style  </li></ul><ul><ul><li>Recommended exercises and benefit...
HEALTH CONCERNS ARE SUCCESSFULLY ADDRESSED BY AFFECTED POPULATION Focused on healthy babies. Raised $187M in 2010. Spent $...
INTRODUCING GROWING STRONGER <ul><li>Growing Stronger (GS) is a non-profit project focused on raising funds to improve the...
HIGHLIGHTS ABOUT GS <ul><li>We are not focused on cosmetic issues like height </li></ul><ul><li>We want to partner with th...
HIGHLIGHTS ABOUT GS Article Jan, 2012 http://www.bloomberg.com/news/2012-01-23/biomarin-s-dwarfism-medicine-marks-growth-o...
WORKING MODEL <ul><li>Growing Stronger wants to work with the LPA Board and Medical Advisory Board </li></ul>Growing Stron...
CURRENT STATUS <ul><li>Identified leading researchers in early 2011 </li></ul><ul><ul><li>Supporting research led by Dr. H...
FUND RAISING PLAN <ul><li>Goal: Have 10,000 ambassadors each raising $1K/year from their local community </li></ul><ul><ul...
THANKS AND ACKNOWLEDGEMENT <ul><li>Growing Stronger has significantly evolved in its mission, scope and thinking since its...
NEXT STEPS <ul><ul><li>Growing Stronger to sponsor Dallas Convention 2012 </li></ul></ul><ul><ul><li>Schedule medical sess...
CONTACT  <ul><li>For more information please contact: </li></ul><ul><li>  Amer Haider, Munira Shamim </li></ul><ul><ul><li...
Upcoming SlideShare
Loading in …5
×

Growing Stronger to LPA board - Feb 18, 2012 v5

3,646 views

Published on

Website: http://www.growingstronger.org.

We presented these slides to the LPA board. We want to partner with the LPA to help increase awareness and determine where to direct funds.

Published in: Health & Medicine
0 Comments
1 Like
Statistics
Notes
  • Be the first to comment

No Downloads
Views
Total views
3,646
On SlideShare
0
From Embeds
0
Number of Embeds
2,182
Actions
Shares
0
Downloads
3
Comments
0
Likes
1
Embeds 0
No embeds

No notes for slide

Growing Stronger to LPA board - Feb 18, 2012 v5

  1. 1. Presentation for Little People of America Leadership mid-year meeting 2012 Feb, 2012 Please do not distribute this presentation widely www.growingstronger.org
  2. 2. ABOUT US <ul><li>Live in Saratoga, Calif. </li></ul><ul><ul><li>Near San Francisco </li></ul></ul><ul><li>Amer </li></ul><ul><ul><li>VP at Cavium (semiconductor company) </li></ul></ul><ul><ul><li>Masters Science, MBA from U of Illinois </li></ul></ul><ul><li>Munira </li></ul><ul><ul><li>Stay home mom </li></ul></ul><ul><ul><li>MA from UCLA, BA from Columbia University </li></ul></ul><ul><li>3 kids </li></ul>Haider Family: Amer, Munira, Meher (5), Ahmin (3), Belal (1)
  3. 3. OUR INVOLVEMENT WITH LPA <ul><li>Events </li></ul><ul><ul><li>Winter party </li></ul></ul><ul><ul><li>Annual conference </li></ul></ul><ul><ul><li>Looking forward to attending more social events and participating in DAAA in Dallas </li></ul></ul><ul><li>Activism </li></ul><ul><ul><li>Interested in helping increase awareness </li></ul></ul><ul><ul><li>Interested in helping battle use of derogatory terms </li></ul></ul><ul><ul><ul><li>Anti-bullying laws, ban use of m word by public funded institutions </li></ul></ul></ul>We look forward to being life long members of LPA and support its work
  4. 4. MEETING CONTEXT <ul><li>Our motivation is our 3.5 yrs old son </li></ul><ul><li>Our goal is to start a dialogue </li></ul><ul><ul><li>1-hour today will not be enough to answer all questions. We are available for follow-up at anytime </li></ul></ul><ul><li>We are new to the community but with the help of many we have some text book knowledge about the LPA’s history </li></ul><ul><ul><li>Correct us if we are wrong. We need your help to learn about the community </li></ul></ul><ul><li>Medical science improves the quality of our lives. We would like to help direct medical science to focus on issues critical to the community. </li></ul><ul><ul><li>We believe working with the LPA is important to understand the community’s priorities </li></ul></ul>
  5. 5. SYNERGY <ul><li>LPA’s Mission </li></ul><ul><ul><li>LPA is dedicated to improving the quality of life for people with dwarfism throughout their lives while celebrating with great pride Little People’s contribution to social diversity.  LPA strives to bring solutions and global awareness to the prominent issues affecting individuals of short stature and their families </li></ul></ul>We would like to improve quality of life (QoL) and enable solutions
  6. 6. LITTLE PEOPLE ARE IMPACTED BY HEALTH ISSUES <ul><li>Sleep Apnea </li></ul><ul><li>Spinal Stenosis </li></ul><ul><ul><li>Narrow Foramen Magnum, Generalized spinal stenosis </li></ul></ul><ul><li>Spine Curvature (back pain) </li></ul><ul><li>Bowlegs </li></ul>
  7. 7. ADDRESSING HEALTH CONCERNS ARE CENTRAL TO LPA AND QOL <ul><li>The LPA’s Medical Advisory Board provides a critical service to little people and LPA members </li></ul>Growing Stronger wants to raise funds to support research by the medical advisory board and others to enable them to improve QoL
  8. 8. AREAS OF HEALTH THAT CAN BENEFIT FROM RESEARCH <ul><li>Life Style </li></ul><ul><ul><li>Recommended exercises and benefits </li></ul></ul><ul><li>Nutrition </li></ul><ul><ul><li>Recommended wt. charts and benefits </li></ul></ul><ul><li>Physical Therapy </li></ul><ul><ul><li>Recommend stretches, best practices </li></ul></ul><ul><li>New minimal invasive surgical techniques </li></ul><ul><ul><li>eg. growth modulation </li></ul></ul><ul><li>Pharmacotherapy </li></ul>
  9. 9. HEALTH CONCERNS ARE SUCCESSFULLY ADDRESSED BY AFFECTED POPULATION Focused on healthy babies. Raised $187M in 2010. Spent $28M on research to prevent premature birth. Funded some Achondroplasia projects. Raised $297M in 2010. Invested $72M in research which includes 103 new grants to researchers in academic institutions. Supported 347 research projects in the US, Canada and 9 other countries Focused on breast cancer. Raised $400M in 2010. Invested $75M in research http://www.lls.org/content/nationalcontent/pdf/2010annualreport Examples of existing non-profits contributing to improve Quality of Life http://marchofdimes.com/downloads/2010AnnualReportFinancialSummary.pdf http://ww5.komen.org/uploadedFiles/SGKFTC_FY10AnnualReport.pdf Focused on Morquio. Funding Dr. Tomatsu. Have held fundraisers at LPA events Closest conceptual comparison to GS
  10. 10. INTRODUCING GROWING STRONGER <ul><li>Growing Stronger (GS) is a non-profit project focused on raising funds to improve the lives of little people through research </li></ul>Focused on dwarfism. With 10,000+ families in America we can raise $10M+/year. Raising $1000/year/family for health from walks, events, families, friends, school bake sales etc. is manageable and great for awareness. Our immediate goal is to raise $200K/year . Currently we have raised $490K for 3 yrs.
  11. 11. HIGHLIGHTS ABOUT GS <ul><li>We are not focused on cosmetic issues like height </li></ul><ul><li>We want to partner with the LPA to improve Quality of life for little people </li></ul><ul><li>We are nimble and adaptable </li></ul><ul><ul><li>We would love to hear your ideas and suggestions on how to serve the community better </li></ul></ul><ul><ul><li>Not exclusively representing achondroplasia but it is our initial focus. </li></ul></ul>
  12. 12. HIGHLIGHTS ABOUT GS Article Jan, 2012 http://www.bloomberg.com/news/2012-01-23/biomarin-s-dwarfism-medicine-marks-growth-of-400-000-rare-disease-drugs.html We agree that Dwarfism does not need to be treated. However related medical complications need to be addressed. We believe improvement in quality of life does not mean treatment
  13. 13. WORKING MODEL <ul><li>Growing Stronger wants to work with the LPA Board and Medical Advisory Board </li></ul>Growing Stronger raises $$ for research LPA’s MAB committee input Research Proposals GS funds approved research proposals Family, Friends Sponsorships Walk for Health LPA’s feedback on health priorities
  14. 14. CURRENT STATUS <ul><li>Identified leading researchers in early 2011 </li></ul><ul><ul><li>Supporting research led by Dr. Horton and Dr. Wilcox </li></ul></ul><ul><ul><li>Dr. Ain joined initial scientific advisory board in July 2011 </li></ul></ul><ul><ul><li>Growing Stronger wants to work with the LPA and MAB to establish a funded research strategy </li></ul></ul><ul><li>Current Fund </li></ul><ul><ul><li>Committed to spending $600K over 3 years with Dr. Horton and Dr. Wilcox. Currently raised $490K since March 2011 – Feb 2012 </li></ul></ul><ul><li>Roadmap </li></ul><ul><ul><li>Poll community for health priorities </li></ul></ul><ul><ul><li>Identify new researchers who need funding </li></ul></ul>
  15. 15. FUND RAISING PLAN <ul><li>Goal: Have 10,000 ambassadors each raising $1K/year from their local community </li></ul><ul><ul><li>Friends and family give for improving health related research </li></ul></ul><ul><ul><li>We have ambassadors in MA, NC, Brazil and the UK </li></ul></ul><ul><li>We will be doing a press launch with articles and joint media outreach with research centers </li></ul><ul><ul><li>We were recently covered in Bloomberg </li></ul></ul><ul><ul><li>PR with universities under works </li></ul></ul><ul><li>We are partnering with sporting events for fundraising </li></ul><ul><ul><li>Team Growing Stronger will have shirts like team-in-training </li></ul></ul>
  16. 16. THANKS AND ACKNOWLEDGEMENT <ul><li>Growing Stronger has significantly evolved in its mission, scope and thinking since its inception in early 2011. We would like to specially thank: </li></ul><ul><li>Doctors: Horton, Wilcox, Ain, Mackenzie, Hover-Fong, Bober </li></ul><ul><li>Leaders: Joe and Ginny Foos, Leah Smith, Erika Okenfuss, Bill Bradford, Lois Lamb, Gary Arnold, Joanna Campbell, Amy Andrews </li></ul><ul><li>35+ Family and Friends </li></ul>
  17. 17. NEXT STEPS <ul><ul><li>Growing Stronger to sponsor Dallas Convention 2012 </li></ul></ul><ul><ul><li>Schedule medical session for Growing Stronger </li></ul></ul><ul><ul><ul><li>MAB members will provide update on status of latest research </li></ul></ul></ul>
  18. 18. CONTACT <ul><li>For more information please contact: </li></ul><ul><li> Amer Haider, Munira Shamim </li></ul><ul><ul><li>Parents </li></ul></ul><ul><ul><li>email: [email_address] , [email_address] </li></ul></ul><ul><ul><li>cell: 408-234-0520, 408-828-3387 </li></ul></ul>

×