Meeting the Needs ofChildren and FamiliesAlexa Callitsis
Introduction to Scenario #13• This case study deals with Adele, a three year old girl with acquiredbrain injury• Adele developed this injury at 15 months old when her babysittershook her which resulted in Shaken Baby Syndrome• Adele has difficulty with gross and fine motor skills and shows somespeech and cognitive delays1• Adele and her mother have moved to Toronto and are looking forservices in the Toronto area1 Scenario #13 handout
What is Acquired Brain Injury?• Acquired brain injury (ABI) is damage to the brain which can becaused by falls, car accidents, assault, and a sport- related injury2• Shaken Baby Syndrome is one of the causes ABI2"Definition". Toronto abi Network.17 03 13. <http://abinetwork.ca/definition>
What is Shaken Baby Syndrome?• Shaken baby syndrome (SBS), describes a set of injuries that happenwhen a child is violently shaken by an adult. These injuries caninclude bleeding around the brain, bleeding in the back of the eyes,and, most importantly, injury to the brain itself, both from directtrauma and from a lack of breathing that can occur after a baby isshaken, which leads to poor oxygen flow to the brain3• The outcome for infants who suffer brain damage from shaking caninclude a range of impairments seen over the course of the childslife, including cognitive deficits and behavioural problems.33 “Dream Online”. Children’s Hospital Boston. 17 03 13.<http://www.childrenshospital.org/dream/summer09/shaken_baby_syndrome_q_a.html>3 “Joint Statement on Shaken Baby Syndrome”. Paediatrics & Child Health. 11 01. 17 03 13.<http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2805972/>
Adele’s Needs• Since Adele has difficulty with gross and fine motor skills and showssome speech and cognitive delays, she is going to need some specialcare• These are going to include speech and language therapy,rehabilitation and special education• It is difficult to say if Adele will require care for the rest of her life orif she will recover to look after herself• Adele will have complex educational and child care needs as well asunique recreational and social needs. In her teen years , she willrequire specialized education programs and specialized job training44 J Milner, C Bungay, D Jellinek, D M B Hall. “Needs of disabled children and their families”. Department of CommunityPaediatrics, Children’s Hospital , Sheffield. 31 05 96. 17 03 13. <http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1511770/>
The Mother’s Needs• Raising a child that has disability can have great physical andemotional demands. There are also time and financial costs. It canincrease on stress and take a toll on mental and physical health.Decisions have to be made to find appropriate and affordable childcare, work and education/ training5• In addition Adele’s mother has to worry about chance of going into arelapse of her alcohol and drug abuse• As Adele’s mother is a full time student at Centennial College, shewill need to find resources that will require little money and havefull time care5 Nancy E. Reichman, Hope Corman, Kelly Noonan. “Impact of Child Disability in the Family”. Matern Child Health. 2008. 13 03 13.<http://www.medscape.com/viewarticle/581577_print>
Changes to Child Care Setting• Some changes I would make to my child care setting includetraining a staff to understand the needs of Adele, specifically withher difficulty with gross and fine motor skills and her speech andcognitive delays• Schedule meetings with Adele’s mom at times that will beconvenient to her on Adele’s progress• Encourage the other children to accept and respect differencesthrough story telling and posters. I want to ensure that no child isleft out• I will also make sure that the physical environment, equipment andmaterials are safe to ensure that Adele cannot get injured
Adventure Place6• Adventure Place has been assisting young children and their familiessince 1972. Their services are open to all families living in Toronto,North Quadrant, with children up to 12 years of age who areexperiencing difficulties in one or more of the following areas:•Development•Learning•Communication (Speech and Language)•Behaviour•Social and/or Emotional Functioning•Attention and/or Regulatory Functioning• These services are funded by the Ministry of Children and YouthServices and you need a referral from a doctor6 Adventure Place Child and Family Centre. 12 03 13. <http://www.adventureplace.ca/home>
Adventure Place• Their Mission is to provide comprehensive mental health, social,and developmental services dedicated to the well-being and successof children in their early years and to their families• Their Goals are• To reduce the impact of difficulties and special needs• To help children achieve their potential by building on theirstrengths and self-esteem• To increase parental knowledge, competence, and confidence• To reduce family stress
Adventure Place• The Day Program provides high quality, individualized educationand treatment programs for children aged four to seven who areexperiencing a range of difficulties and challenges. This early childdevelopment program offers assessment, diagnosis, treatment andeducation and operates in a school setting from September throughJune• Each year, approximately 40 children take part in the Day Program.Each classroom accommodates six children with two teachersworking intensively with children. Additional support staff includessocial workers, psychologists, speech and language pathologists, amusic therapist and an occupational therapist consultant• Adventure Place also offers a series of workshops designed to helpparents support the development of children• http://www.adventureplace.ca/home
Centennial Infant and Child Centre7• Centennial Infant and Child Centre is committed to the developmentand education of young children with developmental challenges. Theyfocus on the individual needs of each child and family through earlyintervention at home, in their integrated preschool and kindergartenprograms• They help children with special needs begin to learn strategies whichwill help them to develop and function as independently as possible insociety. They believe goals are best accomplished through anindividualized program. The preschool is enhanced with a one-to-oneadult/child ratio and with the inclusion of normally developingchildren. They work directly with families to lend emotional support• Children are placed on the Preschool Program’s waitlist by completingan Preschool Application Form7 Centennial Infant and Child and Centre. 12 03 13. <http://cicc.ca/>
Centennial Infant and Child Centre• Children entering the preschool program are between the ages of 21/2 and 4 years. The program runs weekday mornings fromSeptember to June. The preschool currently serves 32 children.Starting in September 2013, they are expanding Preschool to includean afternoon session• Each child has an individual program plan developed by theirprimary teacher and their parents in consultation with a grossmotor coordinator, occupational therapist and speech/languagepathologist. The program covers the developmental areas ofcognition, communication, self help skills, social, and motor skills
Centennial Infant and Child Centre• Tuition Fees• Preschool Morning Program: Current fee – $550.00 per month, for the2012-2013 school year• Preschool Morning Program: $575 per month, for the 2013-2014 schoolyear• Preschool Afternoon Program: $475 per month, for the 2013-2014 schoolyear• Subsidies are available through Toronto Children’s Services and Assistanceto children with severe disabilities from the Ontario Government• Transportation service is available for the preschool children sinceCentennial is only one of a limited number of specialized preschoolprograms in the city, and the children come from all over Toronto• http://cicc.ca/
Conclusion• Adele has special needs - she has difficulty with gross and finemotor skills and she has some speech and cognitive delays• Her mother also needs help as she is a single mother going to schoolfull time• The City of Toronto has numerous agencies that specialize indeveloping and educating children with special needs• Many of these agencies are funded through the government andsubsidies and funding for low income families are available
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