AIDS.gov and mobile at the ViiV Summit
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  • What is unique to us at AIDS.gov - Working across the HIV lots of effort around our policy blog - lobbying heavily to get old school community to teach them - Senior management don’t value new media or understand how citizens are using it to make decisions about their health care - eauraucrat obligation to learn
  • This data is also part of our toolkit. We use this to inform our work and to inform our colleagues…not you in the room…you’ve likely bought into the idea. But many of our colleagues have not. Use the data.
  • Legacy of activism and activity….lots of stakeholders involved in the process.
  • Mobile devices are personal and it doesn’t get more personal than health and with health it doesn’t get more personal than sexual health.
  • Mobile devices are personal and it doesn’t get more personal than health and with health it doesn’t get more personal than sexual health.
  • Mobile devices are personal and it doesn’t get more personal than health and with health it doesn’t get more personal than sexual health.
  • Mobile devices are personal and it doesn’t get more personal than health and with health it doesn’t get more personal than sexual health.
  • There is so much information on the internet, sometimes it is a challenge to find what services are available without specific direction. 1. Housing and Urban Development’s (HUD): Housing Opportunities for Persons with AIDS Program 2. Substance Abuse Mental Health Services Administration's (SAMHSA): Center for Mental Health Services 3. Health Resources and Services Administration (HRSA) 4. Center for Disease control and Prevention (CDC) 5. Office of Population Affairs (OPA) On each of these sites you can find a Health center Ryan White HIV/AIDS program HIV testing and counseling site Agencies that provide care for HIV/AIDS, hepatitis, STIs, tuberculosis Mental health services Substance abuse services Housing opportunities for persons with AIDS Family planning provider
  • Some are many layers deep in the agency’s hierarchy Finding agency websites is hard Not recognizable URLs
  • 10 months All of this information and resources pre-existed. AIDS.gov facilitated a conversation between the five agencies. Presented to the Federal HIV/AIDS Web Council in April 2009 Representatives of each of these agencies 1. Built relationships with the various agencies - brought everyone together at the beginning. Identified who at each agency was best able to provide the technical feedback and assistance we needed. (challenge) 2. Communicated directly with the technical teams, either in-agency or contractors, became essential to the success of the Locator. Once they knew the technical specifics - better communicate programmatic issues: budget and staff time Maintaining the relationships with both program folks and technical has been key - corrections or other inquiries from individuals using the Locator. 3. Technical magic Format data  
  • Launched in February 2010
  • Through the locator, we’re able to reach each owner of data to correct and update HUD, CDC, SAMHSA, HRSA, OPA Responsive government Positive response Blog post about the experience Build trust for AIDS.gov project
  • The original concept was to have the locator on the AIDS.gov website. Increased availability Widgets extended the reach beyond the AIDS.gov website and beyond the HIV/AIDS community. Widgets - small application that you can embed in a social network, blog, or website.
  • Received around 28,000 visits/searches since it first launched Widget – how many people loaded a page with the widget National HIV Testing Day – 1,000 searches we created a special look for the locator widgets Asked partners to place the widget on their web sites. loaded ~1.6 million times (Meaningless: of those 1.6 million loads 2000 real searches) Doesn’t even mean eyeballs (below the fold) Measured by interactions on the widget and Google analytics on locator.aids.gov
  • Studies in Austrailia, Kenya, Virgina, Boston, etc.. The SMS reminder programme started in late 2008 at a large Australian sexual health clinic. SMS reminders were recommended 3–6 monthly for MSM considered high-risk based on self-reported sexual behaviour. The evaluation compared HIV negative MSM who had a HIV/STI test between 1 January and 31 August 2010 and received a SMS reminder (SMS group) with those tested in the same time period (comparison group) and pre-SMS period (pre-SMS group, 1 January 2008 and 31 August 2008) who did not receive the SMS. HIV/STI re-testing rates were measured within 9 months for each group. Baseline characteristics were compared between study groups and multivariate logistic regression used to assess the association between SMS and re-testing and control for any imbalances in the study groups. Results There were 714 HIV negative MSM in the SMS group, 1084 in the comparison group and 1753 in the pre-SMS group. In the SMS group, 64% were re-tested within 9 months compared to 30% in the comparison group (p<0.001). After adjusting for baseline differences, re-testing was 4.4 times more likely (95% CI 3.5 to 5.5) in the SMS group than the comparison group and 3.1 times more likely (95% CI 2.5 to 3.8) than the pre-SMS group. Conclusion SMS reminders increased HIV/STI re-testing among HIV negative MSM. SMS offers a cheap, efficient system to increase HIV/STI re-testing in a busy clinical setting.

AIDS.gov and mobile at the ViiV Summit AIDS.gov and mobile at the ViiV Summit Presentation Transcript

  • AIDS.gov and Mobile Context, Content, and Container Miguel Gomez Director, AIDS.gov ViiV Summit September 30, 2011
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  • “ Mobile Access 2010” Pew Internet and American Life 46 African Americans 51 Hispanics/ Latinos 33 Whites % of people who use their phone to go online
  • I’m bored I’m local I’m social I’m multitasking
  • 30 years ago this year
  • Mobile in 1981
  • Mobile in 2011
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  • Your top health searches, asked and answered, October 2010 http://www.cnn.com/2010/HEALTH/10/21/top.health.searches.answered/index.html
    • Of the top 5 health searches on mobile Yahoo, 3 were sexual health related
    • Pregnancy
    • STDs
    • Herpes
  • 17% The number of mobile users who land on How you get HIV or AIDS (making it the most viewed page)   Mobile users are coming to us for what they see as our most important content and are bypassing the home page altogether, it seems. .
  • AIDS.gov mobile site
  • Real searches on AIDS.gov AIDS.gov analytics 6,16,2011 Desktop Mobile
    • can you get hiv from oral
    • can you get aids from shaking hands
    • coworker has hiv
    • aids vaccine
    • how many people get hiv a year
    • when was aids testing introduced
    • do you get aids by 69
    • can u have a healthy baby and be hiv positive
    • effects of media on hiv/aids
    • can i catch hiv from pre com during oral sex
    • using meth will it effect your heptic c
    • do you have to tell people you have aids
  • Sample Mobile Search AIDS.gov AIDS.gov analytics 6,16,2011 Search Terms Time on Site Aids and aging populations 12 minutes Can I get hiv/aids by… How do I get hiv/aids… Numerous variations averaging over 5 minutes on the site Information on hiv 5 minutes treatmentstepsforhiv 16 minutes
  • SMS and KNOWIT Private/Personal
  • Diffused Resources
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  • Relationships Clear communication Technical magic The Process
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  • The Locator
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  • locator.AIDS.gov ANYWHERE Web to Widget
  • HIV/AIDS Service Locator
  • Return on Investment Data Source: Mashable – Aaron Maxwell
  • 28,000 Searches
  • Widget on 270 Websites
  • SMS – Prevention and Treatment
  • Accessibility
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  • blog.AIDS.gov twitter.com/AIDSgov facebook.com/AIDSgov myspace.com/AIDSgov flickr.com/AIDSgov youtube.com/AIDSgov foursquare.com/AIDSgov http://m.AIDS.gov http://locator.AIDS.gov Stay Connected