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The end-user at the centre of all AT developments
 

The end-user at the centre of all AT developments

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On 26 October 2011, PhoenixKM provided a keynote speech at ITAG 2011 (Interactive Technologies and Games: Education, Health and Disability 2011) event in Nottingham, UK, entitled "The end-user at the ...

On 26 October 2011, PhoenixKM provided a keynote speech at ITAG 2011 (Interactive Technologies and Games: Education, Health and Disability 2011) event in Nottingham, UK, entitled "The end-user at the centre of all AT developments".

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    The end-user at the centre of all AT developments The end-user at the centre of all AT developments Presentation Transcript

    • The end-user at the centre of all AT developments
    • Starting point• Assistive Technology (AT) is there to help end-users• BUT: even when barriers to obtain AT devices are overcome, users often abandon their devices: • Disregard for consumers preferences in technology selection, • Poor device performance, • Change in consumers functional abilities, • Unreliable devices, • Difficulty using devices, • Environmental barriers, and • Fear of technology.See Phillips & Zhao, 1993, Giltin, 1995; Phillps, 1993; Rogers & Holm, 1992. Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • What is going wrong?1.Get an understanding of the European AT market2.Look at some underlying problems as identified by recent research3.Some suggestions for improved end-user driven approaches Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • European AT market• A total EU population of 501 million*• An estimated 45 million people in the EU have a long-standing health problem or disability (LSHPD)*** http://epp.eurostat.ec.europa.eu, 1 July 2010** Data extracted from the 2002 EU Labour Force Survey (LFS) and the 2004 EU Statistics on Incomes and Living Conditions Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • European AT market• Disability rates in working population • Different definitions of “disability” (6- 30% between the Member States) Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • European AT market• Figures are from 2001, Eurostat Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • European AT market• People with disabilities - Facts • Lowest estimate, based on the extremes of currently defined disablement categories: • Around 74 Million persons in Europe alone • Other estimates that take into account: • People in the so-called hinterland between fully able bodied and the classically termed disabled, should considerably raise those numbers • Disability rates vary • Different disability definitions and classification • E.g. defining disability within the context of incapacity to work, as they do in Poland, while it is functionality in UK Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • European AT market• The population in need of AT will increase • Figures are from 2001, Eurostat Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • European AT marketAmersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • European AT marketAmersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Fragmented AT market with a complex buying process• EU AT industry is complex and characterised by: • a large number of products, • a large number of SMEs, • different service provider systems (public health systems, public social systems, private organisations and associations dedicated to the AT sector) that are used to get AT ICT products to the end-users with disabilities, • and different reimbursement schemes by national and local authorities. Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Fragmented AT market with a complex buying process• The variety of actors who participate – directly or indirectly – in the AT ICT industry GOVERNMENT & LEGAL ORGANISATIONS – European Commission – Government at various administrative levels: national, INFORMATION, SERVICE & regional, county and municipal. TRAINING FINANCING – Service delivery institutions ORGANISATIONS – Institutional users – Financing agencies (rehabilitation centre, hospital, school etc.) ASSISTIVE (public and private) – Social security systems – End-users TECHNOLOGY – Insurance organisations INDUSTRIAL MARKET PROFESSIONAL & USER ORGANISATIONS ORGANISATIONS – Manufacturers TECHNOLOGY-ORIENTED – Lobbyists – Dealers ORGANISATIONS – User organisations – Wholesalers – R&D organisations (rehabilitation & technology- oriented) – Universities – Standardisation organisations – Testing organisationsSource: Analysing and federating the European assistive technology ICT industry, Final Report, March 2009 Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Purchase of AT by end-users• The medical oriented model: • Starting point is the handicap where the physician initiates necessary procedures and must approve the need for listed and reimbursed AT based on medical arguments.• The social oriented model • Based upon national legislation and local and decentralised execution, and involves national/local agencies that coordinate the provision and funding of AT, often also after the person with disability is evaluated by a panel of medical experts (like in the medical oriented model) to define the degree of disability, and the access to subsidies.• The consumer oriented model: • The end-user has direct contact with a retailer in order to get his/her AT product (e.g. personal budget). Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Purchase of AT by end-users APPLS FOR VOICE SOFTWARE FOR ENVIRONMENTAL HEARING AIDS BRAILLE READERS COMMUNICATION COMMUNICATION CONTROL SYSTEMSAUSTRIA medical social social social socialBELGIUM medical social social social socialDENMARK social social social social socialFINLAND medical medical medical medical medicalFRANCE medical social consumer social + consumer social + consumerGERMANY medical social social social socialGREECE medical consumer consumer consumer consumerHUNGARY medical consumer consumer consumer consumerIRELAND medical + consumer medical + consumer medical + consumer medical + consumer medical + consumerITALY medical medical medical medical socialNETHERLANDS medical social social social socialPORTUGAL medical consumer medical + social social + consumer consumerSLOVAKIA medical social social social consumerSLOVENIA medical medical medical social + consumer social + consumerSPAIN medical * consumer social + consumer social + consumer socialSWEDEN medical medical medical medical medicalUK medical social social consumer social Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Purchase of AT by end-usersGérard Abramovici: Social Protection in Europe, Statistics in focus: Population and social conditions Theme 3 – 6/2004, p.1-8 Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Core drivers EU AT ICT industry• Knowledge of the disabled end-user• Knowledge of the diagnostician, prescriptor of product solutions• Knowledge of the rules and procedures of different national service provider systems in Europe, but also reimbursement schemes• Flexibility in product design to be able to serve different geographical markets Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Core barriers EU AT ICT industry• Lack of knowledge by the marketplace of the types of solutions available (i.e., not all possible AT ICT solutions are included in national service provider systems).• Cost and time needed to navigate the different national service provider systems in Europe in order to ensure compliance• Different interpretations of national service provider systems at the regional level (thereby fragmenting a national market into regional markets)• Lack of a coherent social policy for subsidising/reimbursing assistive technology products and the lack of coordination between the stakeholders involved.• High assistive technology ICT equipment prices (i.e., which result in lower overall sales volume). Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Where are we now?• AT ICT industry in the EU complex • Large number of products • Large number of small firms • Different service provider systems that are used to get AT ICT products to disabled end- users• Growing group of people in need of AT, young and old• Different policies in the EU countries, and regions Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Recent surveys/research identified barriers• Surveys and state of the art analysis conducted in 2009, 2010, 2011 • AEGIS project • Focus on understanding the satisfaction of people with AT usage • ACCESSIBLE project • Understanding the accessibility of EUs public web • ViPi project • Understanding the need for basic ICT skills training Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Recent surveys/research identified barriers• AT industry issues: • Local language versions of AT software are missing (English only). • Compatibility problems arise with AT (voice recognition and screen reader software) and hardware. • European research and innovation on AT is characterised as poor, caused mainly by the insufficient size and the fragmented nature of the national markets.• Policy issues: • Incoherent social policy for subsidising/reimbursing AT products. Some countries offer full refunds (e.g. Belgium) based on a reference list, while some cover nothing (e.g. Greece). • Lack of specialised agencies and staff to assist people with disabilities in making their choice. Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Recent surveys/research identified barriers• End-user issues: • Awareness • End-users are largely unaware of the available AT solutions (albeit that people with vision impairments seem to be very well informed about available AT). • AT that are easiest to obtain are also the ones most abandoned. • Non-use arises less frequently among people with repeated provision, compared with first-time users of AT. • Price • High purchasing costs for end users are reported as a major barrier for wider deployment by disability organisations, especially in those countries where no government support exists (e.g. Greece). • Prohibitive cost of specialist equipment for visually impaired people does create a barrier. Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Recent surveys/research identified barriers• End-user issues: • Mismatch between needs end user and offered AT • End users are not provided with the required AT, resulting in a high percentage (up to 30% in the USA) of obtained ATs being discarded within a year. • AT that is being offered does not satisfy the actual needs of the people with disabilities, hence their refusal to use them. • According to some survey, almost half of the end-users experience problems using AT. • This mismatch between the needs of the end users and the actual AT they are being offered can be directly linked to the poor assessment of consumer needs and preferences. Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Recent surveys/research identified barriers• End-user issues: • Lack of training: • Previous training that is needed to use AT (basic ICT skills training), and that requires a professional to train the user to manage and use these devices is often lacking . • Training is often followed for computer usage, but proves to fall short of expectations. Users therefore often rely on friends to help them out. • There is a lack of (local and accessible) dedicated training in AT products and their capabilities (e.g. for technical experts, but also for end- users), resulting in end users having AT they cannot use to a full extent, or in some cases not at all. Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Suggested measures to potentially curb the situation• Private AT industry: • Databases of available solutions • Detailed description of functionalities, pros and cons. • Enlisting free, open source alternatives per commercial solution. • Basic ICT skills train ahead of AT training. • The Lisbon Summit identified ICT skills as one of the new basic skills for a knowledge-based economy. • Increased awareness training for PwD Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Suggested measures to potentially curb the situation• Policy measures: • A new approach towards “lending” of AT instead of purchasing. • Unifying of social support models across EU member states. • Unified legislation vis-à-vis EU AT providers Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • User Involvement with …. the users1.Get of the pedestal and interact with end-users.2.Include them from the beginning. They will show pretty soon whether something works or not.3.Understand their needs, and also what they do not need. Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Understand the users• Who: • Ms. Anna Evangelinou, 30 years old, quadriplegic • Academic background in media and ICT, • Disability Now editor (magazine, website)• ICT background • AT specialist/expert user (HW/SW) • Web 2.0 pioneering at Disability Now• Challenges: • Accessible transportation means in Athens • Social security framework in Greece flawed Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Understand the users’ environment• Identified barriers in AT usage in Greece • Only 4 in 10 PwD aware of AT solutions that meet their accessibility needs in using ICT. • 11% of non-users of ICT with a disability believe that their disability prohibits them from using AT. • 9% indicates that there is no AT adapted to their needs. • Non-use of ICT attributed to lack of digital skills for 23% of non-users with a disability. • 45% of all participants with a disability believe that using ICT and AT requires a high level of digital skills. • Dwindling social support due to austerity measures in Greece Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • And don’t forget …(e)Inclusion stops where the beneficiarycannot understand or afford (ICTBased) solutions Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Forthcoming event• Final AEGIS Workshop and Conference “Accessibility reaching everywhere”, 28-30 November 2011 - Brussels, Belgium• Scope • Present the status of the ÆGIS project, notably the accessible OSS AT products – plenary meeting • Discuss AT policies and role of ÆGIS in policy (and industry) developments – plenary • Present research on accessible technology (parallel sessions/workshops – papers) • Showcase (OSS) AT projects (exhibition halls) • Highlight accessibility overall (airline industry, tourism, etc.)• Free entrance but registration required• Registration, call for papers, exhibitors  www.aegis-conference.eu Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Follow the news via AccessForAll.eu portalAmersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu
    • Contact detailsPhoenixKM BVBAAmersveldestraat 189, 8610 KortemarkBELGIUMwww. phoenixkm.euinfo@phoenixkm.euContact person: Mr. Karel Van Isacker Amersveldestraat 189, 8610 Kortemark - Belgium - www.PhoenixKM.eu – info@PhoenixKM.eu