Identity Online: implications for healthcare Adriana Lukas VRM Labs @ Future of Health Technology Summit MIT Faculty Club 21 September 2008

My identity journey

From sabotaged identity

through inclusive identity

to my own identity

Why identity? self-determination impact

self-determination

impact

What is identity?

Systemic view governments centralised systems privacy rights of individual bureaucracy

governments

centralised systems

privacy

rights of individual

bureaucracy

philosophy psychology meaning of life “ who am I?” Individual view

philosophy

psychology

meaning of life

“ who am I?”

Off-line

We are what our papers say we are

System centric third-party driven centralised read-only static

third-party driven

centralised

read-only

static

hierarchy objects are directly linked to immediate superiors or to subordinates, no direct links to peers Hierarchy

objects are directly linked to immediate superiors or to subordinates, no direct links to peers

Online

We are what we say we are geriatric1927 = 79 year old Peter

And how others see us and relate to us

Individual centric self-driven distributed read-write dynamic

self-driven

distributed

read-write

dynamic

Network heterarchy: each element shares same horizontal position of power and authority, playing theoretically equal role

heterarchy: each element shares same horizontal position of power and authority, playing theoretically equal role

Consume Create produce distribute People formerly known as audience

People formerly known as audience

Environment Technology Individual

Structural development

Technological development

Technological development

Identity development

User-driven phenomena social web, P2P, Web 2.0 Structure Enabler Driver

Healthcare

Tools of medicine

Communities PatientsLikeMe

Patients Grandfather builds Web browser for autistic boy

patient-driven healthcare Communities Medicine Patients

The wisdom of crowds does not resist expert opinion - only dependence on a single expert opinion. The Wisdom of Patients: Health care meets online social media

Networked healthcare

Google Health Microsoft Health Vault Indivo health/Dossia Sugarstats

Data

Relationships

Applications extended knowledge shared expertise distributed focused where needed

extended knowledge

shared expertise

distributed

focused where needed

Individual/patient as a platform

VRM Labs www.vrmlabs.net www.themineproject.org [email_address]

www.vrmlabs.net

www.themineproject.org

[email_address]