Identity Online: Implications for Healthcare

Identity Online: implications for healthcare Adriana Lukas VRM Labs @ Future of Health Technology Summit MIT Faculty Club 21 September 2008

My identity journey

From sabotaged identity

through inclusive identity

to my own identity

Why identity?
self-determination
impact

What is identity?

Systemic view
governments
centralised systems
privacy
rights of individual
bureaucracy

philosophy
psychology
meaning of life
“ who am I?”
Individual view

Off-line

We are what our papers say we are

System centric
third-party driven
centralised
read-only
static

hierarchy
objects are directly linked to immediate superiors or to subordinates, no direct links to peers
Hierarchy

Online

We are what we say we are geriatric1927 = 79 year old Peter

And how others see us and relate to us

Individual centric
self-driven
distributed
read-write
dynamic

Network
heterarchy: each element shares same horizontal position of power and authority, playing theoretically equal role

Consume Create produce distribute
People formerly known as audience

Environment Technology Individual

Structural development

Technological development

Identity development

User-driven phenomena social web, P2P, Web 2.0 Structure Enabler Driver

Healthcare

Tools of medicine

Communities PatientsLikeMe

Patients Grandfather builds Web browser for autistic boy

patient-driven healthcare Communities Medicine Patients

The wisdom of crowds does not resist expert opinion - only dependence on a single expert opinion. The Wisdom of Patients: Health care meets online social media

Networked healthcare

Google Health Microsoft Health Vault Indivo health/Dossia Sugarstats

Relationships

Applications
extended knowledge
shared expertise
distributed
focused where needed

Individual/patient as a platform

VRM Labs
www.vrmlabs.net
www.themineproject.org
[email_address]

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Identity Online: Implications for Healthcare

by Adriana Lukas

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