The Maldives has the highest incidence of Thalassemia in the world with acarrier rate of 18% of the population. The estimated prevalence is 16% in people from Cyprus, 1% in Thailand, and 3-8% in populations from Bangladesh, China, India, Malaysia and Pakistan. There are also prevalences in descendants of people from Latin America and Mediterranean countries (e.g. Greece, Italy, Portugal, Spain, and others). A very low prevalence has been reported from people in Northern Europe (0.1%) and Africa (0.9%), with those in North Africa having the highest prevalence. Ancient Egyptians suffered from Thalassemia with as many as 40% of studied predynastic and dynastic mummies with the genetic defect. Today, it is particularly common in populations of indigenous ethnic minorities of Upper Egypt such as the Beja, Hadendoa, Saiddi and also peoples of the Delta, Red Sea Hill Region and especially amongst the Siwans.
* Thalassemia describes a group of inherited disorders characterized by reduced or absent amounts of hemoglobin of the blood , the oxygen-carrying protein inside the red blood cells.
* fairly common blood disorder worldwide.* Thousands of infants with beta thalassemia are born each year.* Beta thalassemia occurs most frequently in people from Mediterranean countries, North Africa, the Middle East, India, Central Asia, and Southeast Asia.
* Regular monthly blood transfusion of blood* Iron chelating* Bone marrow transplant
It’s hard to know that your only little 2-year old son must be provided with bloodregularly…its harder to know that yourblood doesn’t match with his blood… andwe can’t even imagine the sorrow of howhard is to know beside all the difficultiesyou will face in finding blood your son hasan O- blood group… HOPE
1-Providing steady blood supply for Thalasemicpatients :* starting from three universities:University of Sulaimani,AUIS,Hawler medical Universities in Sulaimani and Hawler* Collecting students to become blood donors on a regular basis.
2-*Spreading awareness about Thalasemia,the patientsand their needs,* focusing on public education* Providing knowledge about the disease, and the impact of the proper treatment on improving the patients lives.* Encouraging tests to detect carrier genes of the disease.
3. Motivation for blood donation,* Clarifying the myths regarding blood donation.* Making blood donation a familiar good deed.