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Overview of the WHO Indicator and Measurement Registry (IMR) highlighting indicator harmonization functionality....

Overview of the WHO Indicator and Measurement Registry (IMR) highlighting indicator harmonization functionality.

Patrick Whitaker

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  • 1. WHO Indicator and Measurement Registry (IMR) SDMX-HD Summary Data Format Patrick Whitaker1| Health Care Informatics | May 9, 2012
  • 2. Definitions M&E – Monitoring and Evaluation Summary data – Data summarized from raw, e.g. clinical, data Indicator – An indicator quantifies and simplifies phenomena and helps us understand complex realities. Indicators are aggregates of raw and processed data but they can be further aggregated to form complex indices. International Institute for Sustainable Development (IISD) IMR – WHO Indicator and Measurement Registry SDMX – Statistical Data and Metadata Exchange(ISO/TS 17369:2005) SDMX-HD – WHO implementation of SDMX for the health domain 2| Health Care Informatics | May 9, 2012
  • 3. Human Nature? Content Systems Computers are dumb and precise. People are brilliant and less precise.3| Health Care Informatics | May 9, 2012
  • 4. Focus on Summary Data4| Health Care Informatics | May 9, 2012
  • 5. Issues Impacting Interoperability Multitude of guidelines documents. Insufficient metadata in indicator definitions. Competing organizational standards. Weak harmonization processes. Lack of a global repository for indicator (and clinical concept) definitions. Lack of a standard exchange format for summary data. 5| Health Care Informatics | May 9, 2012
  • 6. Focus of Presentation Message Format Content Reference ModelIndividual Data HIC HL7, XML SNOMED-CT, LOINC, ICD HL7 V3, ISO 13606 (OpenEHR) LIC CCR, CCD, HSR SNOMED-CT, LOINC, ICD HL7 V3, ISO 13606 (OpenEHR)Summary Data SDMX-HD IMR, SDMX MCV, ISO SDMX CCD HL7 CCR-based Clinical Document Architecture Continuity of Care Document CCR ASTM Continuity of Care Record (XML) DCM ISO Detailed Clinical Model HIC High Income Country HL7 Health Level Seven HSR Health Summary Record ICD WHO International Classification of Diseases ISO equal, International Organization for Standardization IMR WHO Indicator and Measurement Registry LIC Low Income Country LOINC Logical Observation Identifiers Names and Codes RIM Reference Information Model SDMX Statistical Data and Metadata Exchange SDMX MCV Metadata Common Vocabulary SDMX-HD WHO Statistical Data and Metadata Exchange – Health Domain SNOMED-CT Systematized Nomenclature of Medicine – Clinical Terms6| Health Care Informatics | May 9, 2012
  • 7. Problems  Varying indicator and measurement definitions. Solution: WHO Indicator and Measurement Registry (IMR) Interoperability of computer systems (summary data). Solution: SDMX-HD data exchange format7| Health Care Informatics | May 9, 2012
  • 8. Multitude of Guidelines Documents8| Health Care Informatics | May 9, 2012
  • 9. Inconsistent and Incomplete DefinitionsSource Indicator NameUNSD Men 15-24 years old with comprehensive correct knowledge of HIV/AIDS, percentage Percentage of young people aged 15–24 who both correctly identify ways of preventing the sexualUNAIDS transmission of HIV and who reject major misconceptions about HIV transmission Percentage of young women and men aged 15–24 who both correctly identify ways of preventing the sexualPEPFAR transmission of HIV and who reject major misconceptions about HIV transmission Percentage of young women and men aged 15–24 years who both correctly identify ways of preventing theGFATM sexual transmission of HIV and who reject the major misconceptions about HIV transmissionWHO Proportion of population aged 15-24 years with comprehensive correct knowledge of HIV/AIDS (%) Indicator Sources: UNSD mdgs.un.org/unsd/mdg/Metadata.aspx UNAIDS data.unaids.org/pub/manual/2009/jc1676_core_indicators_2009_en.pdf PEPFAR www.pepfar.gov/documents/organization/81097.pdf GFATM www.theglobalfund.org/en/me/guidelines_tools/?lang=en#toolkit WHO apps.who.int/gho/indicatorregistry/App_Main/browse_indicators.aspx 9| Health Care Informatics | May 9, 2012
  • 10. Metadata ViewsAll concepts canhave differentnames and values10 | Health Care Informatics | May 9, 2012
  • 11. IMR WHO Indicator and Measurement Registry11 | Health Care Informatics | May 9, 2012
  • 12. Indicator and Measurement Registry (IMR)  Definition, management, and harmonization of indicator definitions by WHO and partners.  Incorporation of international standards.  Human and computer readable definitions.  Global definition distribution.12 | Health Care Informatics | May 9, 2012
  • 13. 13 | Health Care Informatics | May 9, 2012
  • 14. Support for Cross-Domain Codelists
  • 15. Harmonization Establishment of processes to reconcile country and organizational differences in indicator definitions without duplication.17 | Health Care Informatics | May 9, 2012
  • 16. Programme-specific MetadataProgram-specific profile Name is an associated attribute, inherited from WHO Program-specific in this case. metadata
  • 17. Publishing Human and Computer-readable Indicator Definitions19 | Health Care Informatics | May 9, 2012
  • 18. Reports20 | Health Care Informatics | May 9, 2012
  • 19. 21 | Health Care Informatics | May 9, 2012
  • 20. SDMX-HD Statistical Data and Metadata Exchange – Health Domain22 | Health Care Informatics | May 9, 2012
  • 21. Summary Data Interoperability23 | Health Care Informatics | May 9, 2012
  • 22. SDMX History Evolved from work on GESMES/TS in Central Banking community. Developed in ISO Technical Committee (TC)154 - Processes, data elements and documents in commerce, industry and administration. Note that the version 1.0 of SDMX is ISO Technical Specification (TS) 17369. Current SDMX version is 2.1.24 | Health Care Informatics | May 9, 2012
  • 23. ISO/TS 17369:2005 Statistical data and metadata exchange (SDMX)SDMX 2.1 Technical Specification Section 1 – Framework. Introduces the documents and the content of the revised Version 2.1 Section 2 – Information Model. UML model and functional description, definition of classes, associations and attributes Section 3A – SDMX_ML. Specifies and documents the XML formats for describing structure, data, reference metadata, and interfaces to the registry Section 3B – SDMX-ML. XML schemas, samples, WADL and WSDL (update: 12 May 2011) Section 4 – SDMX-EDI. Specifies and documents the UN/EDIFACT format for describing structure and data. Section 5 – Registry Specification – Logical Interfaces. Provides the specification for the logical registry interfaces, including subscription/notification, registration of data and metadata, submission of structural metadata, and querying Section 6 – Technical Notes. Provides some technical information which may be useful for the implementation (this was called “Implementor’s Guide” in the 2.0 release) Section 7 – Web Services Guidelines. Provides guidelines for using SDMX standards to promote interoperability among SDMX web services25 | Health Care Informatics | May 9, 2012
  • 24.  Data exchange standard for summary data. Defines structure and content of data. Attributes – Common • Interoperability • Documentation – Custom • Local customization • Harmonization, i.e. support for current definition26 | Health Care Informatics | May 9, 2012
  • 25. XML27 | Health Care Informatics | May 9, 2012
  • 26. SDMX-HD Use Public Domain Applications M&E/Surveillance – DHIS2 – CRIS (planned) HR – iHRIS Clinical – OSHIP – OpenMRS Logistics – OpenLMIS Lab – OpenELIS28 | Health Care Informatics | May 9, 2012
  • 27. SDMX-HD Use Governments Implemented – Sierra Leone – India – Netherlands • National Institute for Public Health and the Environment (RIVM) • Netherlands Institute for Health Services Research (NIVEL) In process – Philippines Planned – Viet Nam – Fiji – Tonga – Thailand – Bangladesh – China – WHO Regional Offices29 | Health Care Informatics | May 9, 2012
  • 28. SDMX-HD Group
  • 29. Links WHO Indicator and Measurement Registry – Public: www.who.int/gho/indicatorregistry – Public with write access: extranet.who.int/IndicatorRegistry Request extranet account from: extranet.who.int/ads – Web Service www.who.int/gho/indicatorregistryservice SDMX: www.sdmx.org SDMX-HD: www.sdmx-hd.org31 | Health Care Informatics | May 9, 2012