Alzheimer Scotland
Barbara Sharp
Practice Development Manager
Living Well with Dementia:
A training programme for staff supporting people
with dementia at home

• What are we setting o...
What are we setting out to do?
• To support staff to work in a reciprocal
partnership with people with dementia and
their ...
What have we based our ideas on?
Voices of the experts ...
‘Some of us need to be re-abled ... to re-learn
that they have ...
Voices of the experts ...
‘A reciprocal learning and teaching partnership
... work with us – so that we can continue to
co...
Philosophy and models of care
• Person centred ethics and care (Baldwin, 2008;
Brooker 2006; Kitwood, 1997)

• Relationshi...
Rights based care
Relationship Centred Exchange Model

Person with
dementia

Family

Support staff
Theoretical Framework
• Shaped by a
strong
commitment to
the personal
outcomes
approach to care

‘In a climate of limited
...
Policy frameworks
• Scotland’s Dementia Strategy (Scottish Government,
2010)

• Dementia Strategy 2013-16 Proposition Pape...
Key documents for practice
Dementia Standards
I

• A diagnosis
• Be regarded as a unique individual

• Be treated with dignity and respect
have • Be ...
Dementia is a journey
Keeping
Well,
Prevention
and
Finding out
its Dementia

Living Well
with
Dementia

Living Well
with
i...
The 5
pillars of
postdiagnostic
support
8 Pillars
Model
Approaches to learning
•
•
•
•
•
•
•

Appreciative enquiry
Confirmatory experience
Modelling experience
Interactive
Experi...
Structure
• Directed pre-course learning - Promoting Excellence
• Gathering of baseline data for evaluation/research
purpo...
Experiential Learning
‘I have dementia but it does
not define me. My action and
hopes and dreams define me’
The Training team
• Barbara Sharp: Practice Development Manager,
Alzheimer Scotland and Research Fellow, Alzheimer
Scotlan...
Making sure no-one goes through
dementia on their own

www.alzscot.org
Barbara Sharp, Reablement workshop nov 2013
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Barbara Sharp, Reablement workshop nov 2013

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Barbara Sharp, Reablement workshop nov 2013

  1. 1. Alzheimer Scotland Barbara Sharp Practice Development Manager
  2. 2. Living Well with Dementia: A training programme for staff supporting people with dementia at home • What are we setting out to do? • What have we based our ideas on? • What is our proposal?
  3. 3. What are we setting out to do? • To support staff to work in a reciprocal partnership with people with dementia and their families, contributing to meaningful outcomes for them • To motivate and equip staff as to how to enable people with dementia to live life to their full potential • To enhance the confidence and competence of staff in this supporting role
  4. 4. What have we based our ideas on? Voices of the experts ... ‘Some of us need to be re-abled ... to re-learn that they have the right and the ability, albeit sometimes with your support, to be in charge, as best they can be, of themselves. To be responsible for their own actions’ Richard Taylor 2009
  5. 5. Voices of the experts ... ‘A reciprocal learning and teaching partnership ... work with us – so that we can continue to cope ... Andrew is more stable because he is involved and enabled – we take risks ... Find staff who really care and are compassionate’ Ann (wife and carer)
  6. 6. Philosophy and models of care • Person centred ethics and care (Baldwin, 2008; Brooker 2006; Kitwood, 1997) • Relationship centred care (Nolan et al. 2008; 2006; 2003) • Rights based care (Cross-Party Group on Alzheimer's 2009) • Concepts of ‘Recovery’ (Martin, 2009; Gavan, 2011) • Personal adaptation (Repper and Perkins 2003)
  7. 7. Rights based care
  8. 8. Relationship Centred Exchange Model Person with dementia Family Support staff
  9. 9. Theoretical Framework • Shaped by a strong commitment to the personal outcomes approach to care ‘In a climate of limited resources, being clear about what makes a difference to people is more important than ever’ (Cook and Miller, 2012).
  10. 10. Policy frameworks • Scotland’s Dementia Strategy (Scottish Government, 2010) • Dementia Strategy 2013-16 Proposition Paper (Scottish Government, 2013) • Promoting Excellence Skills and Knowledge Framework (Scottish Government 2011) • Standards of Care for Dementia in Scotland (Scottish Government 2011)
  11. 11. Key documents for practice
  12. 12. Dementia Standards I • A diagnosis • Be regarded as a unique individual • Be treated with dignity and respect have • Be as independent as possible the • Included • Access treatment, care and support right • Have support from carers who are educated and supported • End of life care that reflects my wishes
  13. 13. Dementia is a journey Keeping Well, Prevention and Finding out its Dementia Living Well with Dementia Living Well with increasing help and support End of Life and Dying Well
  14. 14. The 5 pillars of postdiagnostic support
  15. 15. 8 Pillars Model
  16. 16. Approaches to learning • • • • • • • Appreciative enquiry Confirmatory experience Modelling experience Interactive Experiential Practically relevant Positive and involving
  17. 17. Structure • Directed pre-course learning - Promoting Excellence • Gathering of baseline data for evaluation/research purposes • Two days of taught content in a peer group setting and one day half day in joint skilled/enhanced level group • Course work applied to practice • Assessed components • Post course evaluation – immediate and longer term
  18. 18. Experiential Learning
  19. 19. ‘I have dementia but it does not define me. My action and hopes and dreams define me’
  20. 20. The Training team • Barbara Sharp: Practice Development Manager, Alzheimer Scotland and Research Fellow, Alzheimer Scotland Centre for Policy and Practice • Margaret Brown: Senior Lecturer, Institute for the Health and Well-being of Older People, University of West of Scotland (UWS) • Alexandra Simpson: Consultant, Alzheimer Scotland • Dr. Karen Watchmen: Lecturer, Alzheimer Scotland Centre for Policy and Practice, UWS • Sandra Shafii: AHP dementia consultant
  21. 21. Making sure no-one goes through dementia on their own www.alzscot.org
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