Practice Development Manager
Living Well with Dementia:
A training programme for staff supporting people
with dementia at home
• What are we setting out to do?
• What have we based our ideas on?
• What is our proposal?
What are we setting out to do?
• To support staff to work in a reciprocal
partnership with people with dementia and
their families, contributing to meaningful
outcomes for them
• To motivate and equip staff as to how to
enable people with dementia to live life to
their full potential
• To enhance the confidence and competence
of staff in this supporting role
What have we based our ideas on?
Voices of the experts ...
‘Some of us need to be re-abled ... to re-learn
that they have the right and the ability, albeit
sometimes with your support, to be in charge,
as best they can be, of themselves. To be
responsible for their own actions’
Richard Taylor 2009
Voices of the experts ...
‘A reciprocal learning and teaching partnership
... work with us – so that we can continue to
Andrew is more stable because he is involved
and enabled – we take risks ...
Find staff who really care and are
Ann (wife and carer)
Philosophy and models of care
• Person centred ethics and care (Baldwin, 2008;
Brooker 2006; Kitwood, 1997)
• Relationship centred care (Nolan et al. 2008; 2006;
• Rights based care (Cross-Party Group on Alzheimer's
• Concepts of ‘Recovery’ (Martin, 2009; Gavan, 2011)
• Personal adaptation (Repper and Perkins 2003)
Relationship Centred Exchange Model
• Shaped by a
approach to care
‘In a climate of limited
resources, being clear about
what makes a difference to
people is more important than
ever’ (Cook and Miller, 2012).
• Scotland’s Dementia Strategy (Scottish Government,
• Dementia Strategy 2013-16 Proposition Paper
(Scottish Government, 2013)
• Promoting Excellence Skills and Knowledge
Framework (Scottish Government 2011)
• Standards of Care for Dementia in Scotland
(Scottish Government 2011)
• A diagnosis
• Be regarded as a unique individual
• Be treated with dignity and respect
have • Be as independent as possible
• Access treatment, care and support
• Have support from carers who are educated and supported
• End of life care that reflects my wishes
Dementia is a journey
End of Life
• Directed pre-course learning - Promoting Excellence
• Gathering of baseline data for evaluation/research
• Two days of taught content in a peer group setting
and one day half day in joint skilled/enhanced level
• Course work applied to practice
• Assessed components
• Post course evaluation – immediate and longer term
‘I have dementia but it does
not define me. My action and
hopes and dreams define me’
The Training team
• Barbara Sharp: Practice Development Manager,
Alzheimer Scotland and Research Fellow, Alzheimer
Scotland Centre for Policy and Practice
• Margaret Brown: Senior Lecturer, Institute for the
Health and Well-being of Older People, University
of West of Scotland (UWS)
• Alexandra Simpson: Consultant, Alzheimer Scotland
• Dr. Karen Watchmen: Lecturer, Alzheimer Scotland
Centre for Policy and Practice, UWS
• Sandra Shafii: AHP dementia consultant
Making sure no-one goes through
dementia on their own
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