1. Congratulations to CUE!
CUE’s 10th
anniversary:
Celebrating our accomplishments,
anticipating the next 10 years.
CUE Annual Membership Meeting
July 26, 2013

2. Thanks to our funders 2013-2015
R13 Conference Grant
from the Agency for Healthcare Research and Quality
(AHRQ), 2013 - 2015
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3. Thanks to our Steering Committee
Rebecca Burkholder – National Consumers League
(outgoing co-chair)
Lorraine Johnson – LymeDisease.org (co-chair)
Ngina Lythcott – Black Women’s Health Imperative
(incoming co-chair)
Kim Bailey – National Partnership for Women &
Families
Terrie Cowley – TMJ Association
Kate Ryan – National Women’s Health Network
John Santa – Consumer Reports
Barbara Warren – National Coalition for LGBT
Health
Bill Vaughan – National Committee to preserve
Social Security to Preserve Social Security and
Medicare

4. Thanks to Genie Han
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5. Thanks and farewell to Nancy Fitton
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6. Our first meeting, July 16-17, 2003
Sallie Bernard, SafeMinds
Roger Bernier, CDC
Katherine Browne, National Partnership
for Women and Families
Christine Brunswick, National Breast Cancer Coalition
Rebecca Burkholder, National Consumers League
Mark Davis, National Coalition for Lesbian, Gay, Bisexual
and Transgender Health
Joyce Dubow, AARP
Trudy Lieberman, Consumer Reports
Ngina Lythcott, National Black Women’s Health Project
Marlene McCarthy, RI Breast Cancer Coalition
Leyla McCurdy, National Environmental Education &
Training Foundation
Jim McNulty, NAMI
Maryann Napoli, Center for Medical Consumers
Cynthia Pearson, National Women’s Health Network
Joy Simha, Young Survival Coalition
Carlos Ugarti, National Council of La Raza
Washington, DC

7. Our vision of
uccess in 5
years

8. How is CUE doing?
Findings from Roundtable discussions
At CUE annual meeting, June, 2012
Why is your organization a member of CUE?
 To learn about and promote evidence-based
healthcare
 To learn from, network, and join forces with other
consumer advocacy organizations to influence
health care reform

9. CUE Roundtable, 2012
 How could CUE help you become more
effective?
 Educate the public about evidence-based
healthcare
 Increase membership involvement in CUE
work
 Draft a long-term plan
 Increase training opportunities (topics):
 Work with health professionals
 How to establish authority
 How to get involved in doing
systematic reviews
 Patient-reported outcomes

10. CUE’s next 10 years – One person’s vision
 Learning is easy and freely available
(see CUE website!)
 CUE is the go-to consumer network for
partnerships
 CUE members are recognized as an
group of knowledgeable, unconflicted
representatives of the public and
patients 10
 Evidence is cool
 Patients & providers ask about the evidence
 Few gaps in the evidence for standard-of-care
 Outcomes examined are important to patients and their
caregivers
 Open and free access to the research evidence is used by all
for health care decision-making
 Clinical research involves consumers and patients from the
start

11. Welcome and thank you to all!
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CUE Summit,
Keystone Colorado 2010