CUE's 10th Anniversary- Kay Dickersin

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CUE's 10th Anniversary- Kay Dickersin

  1. 1. Congratulations to CUE! CUE’s 10th anniversary: Celebrating our accomplishments, anticipating the next 10 years. CUE Annual Membership Meeting July 26, 2013
  2. 2. Thanks to our funders 2013-2015 R13 Conference Grant from the Agency for Healthcare Research and Quality (AHRQ), 2013 - 2015 2
  3. 3. Thanks to our Steering Committee Rebecca Burkholder – National Consumers League (outgoing co-chair) Lorraine Johnson – LymeDisease.org (co-chair) Ngina Lythcott – Black Women’s Health Imperative (incoming co-chair) Kim Bailey – National Partnership for Women & Families Terrie Cowley – TMJ Association Kate Ryan – National Women’s Health Network John Santa – Consumer Reports Barbara Warren – National Coalition for LGBT Health Bill Vaughan – National Committee to preserve Social Security to Preserve Social Security and Medicare
  4. 4. Thanks to Genie Han 4
  5. 5. Thanks and farewell to Nancy Fitton 5
  6. 6. Our first meeting, July 16-17, 2003 Sallie Bernard, SafeMinds Roger Bernier, CDC Katherine Browne, National Partnership for Women and Families Christine Brunswick, National Breast Cancer Coalition Rebecca Burkholder, National Consumers League Mark Davis, National Coalition for Lesbian, Gay, Bisexual and Transgender Health Joyce Dubow, AARP Trudy Lieberman, Consumer Reports Ngina Lythcott, National Black Women’s Health Project Marlene McCarthy, RI Breast Cancer Coalition Leyla McCurdy, National Environmental Education & Training Foundation Jim McNulty, NAMI Maryann Napoli, Center for Medical Consumers Cynthia Pearson, National Women’s Health Network Joy Simha, Young Survival Coalition Carlos Ugarti, National Council of La Raza Washington, DC
  7. 7. Our vision of uccess in 5 years
  8. 8. How is CUE doing? Findings from Roundtable discussions At CUE annual meeting, June, 2012 Why is your organization a member of CUE?  To learn about and promote evidence-based healthcare  To learn from, network, and join forces with other consumer advocacy organizations to influence health care reform
  9. 9. CUE Roundtable, 2012  How could CUE help you become more effective?  Educate the public about evidence-based healthcare  Increase membership involvement in CUE work  Draft a long-term plan  Increase training opportunities (topics):  Work with health professionals  How to establish authority  How to get involved in doing systematic reviews  Patient-reported outcomes
  10. 10. CUE’s next 10 years – One person’s vision  Learning is easy and freely available (see CUE website!)  CUE is the go-to consumer network for partnerships  CUE members are recognized as an group of knowledgeable, unconflicted representatives of the public and patients 10  Evidence is cool  Patients & providers ask about the evidence  Few gaps in the evidence for standard-of-care  Outcomes examined are important to patients and their caregivers  Open and free access to the research evidence is used by all for health care decision-making  Clinical research involves consumers and patients from the start
  11. 11. Welcome and thank you to all! 11 CUE Summit, Keystone Colorado 2010

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