Panel: PCORI- Sue Sheridan

326 views

Published on

Published in: Health & Medicine, Business
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
326
On SlideShare
0
From Embeds
0
Number of Embeds
10
Actions
Shares
0
Downloads
2
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide
  • “Title Slide” format
  • WHAT makes us different?Patients, Caregivers and advocacy organizations can :I want to know which asthma management tool will help my child’s asthmaI want to know which blood glucose testing approach is best for me to manage my diabetesWhat systems based approach would help prevent injury from falls in the elderly?Which support group intervention is best for Latina breast cancer survivors and their caregivers?Reviewers - review criteria – patient centeredness and patient engagementDevelop and prioritize research questionsBecome a “patient partner” in PCORI funded proposals (not just subjects)Engagement Awards – “be the invitor”Ambassador Program – Become “Certified” in PCOR Science and position your self as a a patient partner Become a merit reviewerHelp disseminate research results
  • We at PCORI want to know what health care question or decision you may be facing. We want to hear from you. Your input can help us refine our research agenda. Whether you are a patient with a health condition, a caregiver for someone else, a health care professional who wants to improve care for your patients, or a researcher, we invite you to submit a question. In addition to questions about options faced by patients, we also are interested in questions that would help to improve health care delivery, address disparities in health care, or improve the communication of research findings. We will carefully consider each question and, along with patients and other stakeholders, determine which ones we will study as part of our portfolio of patient-centered research.
  • PCORI has named representatives of stakeholder groups from across the healthcare community to help advance our scientific and engagement work through the first the PCORI Advisory Panels. The Advisory Panel on Patient Engagement will advise PCORI on how to ensure it is patient-centered in all aspects of its work. The other panels correspond to three of PCORI’s National Priorities for Research: Assessment of Prevention, Diagnosis, and Treatment Options; Improving Healthcare Systems; and Addressing Disparities. These panels will help PCORI identify and prioritize research questions in their respective areas and provide ongoing feedback on evaluating and disseminating the resulting research.Patient and stakeholder reviewers assess the potential impact of the research and ensure that patients and stakeholders are well represented in the proposal and on the research team. PCORI provides training for individuals new to the merit review process. You can learn more and apply to be a reviewer through PCORI’s website.
  • WHAT IFSoon we’ll be announcing the winners of our inaugural innovation challenge to develop a patient/research “matching” system that will effectively connect potential partners interested in seeking funding from us for rigorous patient-centered outcomes research.We’ll also be announcing our first Engagement Awards which seek to build a patient-centered research community by helping patients and researchers to: Form or strengthen reciprocal relationships between researchers and non-research communities Support capacity building, co- learning, and the development of a sustainable infrastructure to facilitate “research done differently” Accelerate patient-centered proposal submission (or re-submission)
  • Panel: PCORI- Sue Sheridan

    1. 1. Patient Engagement in Research July 2013 1
    2. 2. PCORI Patient Engagement: Our Vision A large, diverse PCORI community established with broad reach into patient, caregiver and advocacy organization communities A large, diverse, well informed PCORI patient/caregiver community actively engaged in all aspects of the research process Have successfully created trust, legitimacy and uptake of PCORI research findings 2
    3. 3. “Research Done Differently” Patient engagement as a path to rigorous research Tell us what PCORI should study Help determine what we fund Tell us how we are doing Help us share research findings Engagement Partner in the conduct of research
    4. 4. Tell us what PCORI Should Study I want to know which blood glucose testing approach is best for me to manage my diabetes. Which support group intervention is best for Latina breast cancer survivors and their caregivers? What systems based approach would help prevent injury from falls in the elderly? I want to know which asthma management tool will help my child’s asthma Submit your questions: • online: www.pcori.org/questions • Workshops • Roundtables • Engagement Awards • Ambassador program
    5. 5. Help determine what we fund Advisory Panels & Working Groups PCORI Reviewers 5
    6. 6. Participate as a “Patient Partner” in PCORI funded research  Help determine what needs to be researched  Help write proposal  Participate as Co-PI  Define outcomes important to patients  Monitor the study conduct and progress  Help recruit participants  Disseminate research results  Co-author manuscript 6
    7. 7. Facilitating patient partnership in research Ambassadors Engagement Awards 7
    8. 8. 8 National Patient-Centered Clinical Research Network: Our Vision Steering Committee Scientific Advisory Board Special Expert Group Coordinating Center Staff

    ×