The role of the patient in improving quality

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Presentation by Paul Wicks of PatientsLikeMe at the UCLPartners Quality Forum, hosted by SEPT, on 14 June 2013.

Presentation by Paul Wicks of PatientsLikeMe at the UCLPartners Quality Forum, hosted by SEPT, on 14 June 2013.

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  • 1. The role of the patient in improving quality Paul Wicks, PhD.
  • 2. Engines Aerodynamicist Performance Strategists Testing Tyres Management Systems Dynamicist
  • 3. So how have you been in the last 6 months?
  • 4. Lewis Trevor Electronic Sensors Multiple, continuous, sophisticated Intermittent, cumbersome, outdated Iteration Continuous Glacial Systems modeling Experts Absent Purpose of the system Make an advertising billboard move around Live a meaningful life Rewards for a measured incremental improvement Keep your job Money, glory Rewards for winning Money, glory Keep your job Two Approaches to Quality Improvement
  • 5. PROMs / Outcomes Social Networking & conversations Provider Ratings Case Management PatientsLikeMe PatientsKnowBest HealthUnlocked GP Ratings App I Want Great Care Patient Opinion HealthTalk Online CPRD / GPRD Database
  • 6. “Where Can I Get The Best Care?”
  • 7. “How Do I Find a Patient Like Me?”
  • 8. What does good care look like? Wicks & Fountain (2012) Patient assessment of physician performance of epilepsy quality of care measures. Neurology Clinical Practice 2:335
  • 9. 23% - I have had fewer visits to the ER 28% - PatientsLikeMe gave me more and better control over my condition 59% -the site has given me a better understanding of my seizures 49% - recording my seizures helps me manage my condition 50% - PatientsLikeMe helped me understand side effects 2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life 30% - PatientsLikeMe helped me be more adherent One-third of respondents had no one in “the real world” with whom to discuss their epilepsy. After joining PatientsLikeMe, two-thirds reported a connection to at least one other person with epilepsy.
  • 10. 2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life
  • 11. Genetics EEG Telemetry Cognition Quality of Care Treatments Safety Carer Support Co-morbidities Strategy Systems Dynamicist
  • 12. “Technology makes things possible, people make things happen”
  • 13. The role of the patient in improving quality Paul Wicks, PhD.