Introducing
The Brain Tumour Charity
Elissa Coster
Children and Families Worker
The UK’ s
largest
brain
tumour
charity
Merger of three
charities:
• Brain Tumour UK
• Joseph Foote
Trust
• The Brain Tumou...
Support
and
Information
Service
The Support & Info Line
Support and Information Service
Support and Information
Service
Information
Informatio
n Days
around
the UK
“Quote can go
here”Research
< 2%
£2.5million every year
= largest dedicated
funder of brain
tumour research
“Quote can go
here”
Raising awareness
• Longer diagnosis times
in the UK
• More children dying
and suffering from severe
life-limiting disabil...
Professional
partnerships
• HeadSmart is run by a partnership between:
• Supported by many other organisations:
• Shortlis...
The campaign
• Public and professional awareness
• Promoted and funded by The Brain Tumour Charity
• Disseminated by:
• Th...
The resources
FREE mobile
symptoms guide
Text SMART to
81400
The impact
Average Symptom Interval
Pre-guideline
12-13 weeks
Pre HeadSmart launch
9.3 weeks
JUNE 2012
7.3 weeks
TODAY
6.9...
Our incredible fundraisers
and supporters
Thank you
Find out more:
www.thebraintumourcharity.o
rg
Contact us:
0808 800 0004
support@thebraintumourcharity.org
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Introducing The Brain Tumour Charity

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Presentation by Elissa Coster of The Brain Tumour Charity at the London Cancer Children, Teenager and Young Adults Study Day, held on 25 July 2013.

Published in: Health & Medicine
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Introducing The Brain Tumour Charity

  1. 1. Introducing The Brain Tumour Charity Elissa Coster Children and Families Worker
  2. 2. The UK’ s largest brain tumour charity Merger of three charities: • Brain Tumour UK • Joseph Foote Trust • The Brain Tumour Charity
  3. 3. Support and Information Service
  4. 4. The Support & Info Line
  5. 5. Support and Information Service
  6. 6. Support and Information Service
  7. 7. Information
  8. 8. Informatio n Days around the UK
  9. 9. “Quote can go here”Research < 2% £2.5million every year = largest dedicated funder of brain tumour research
  10. 10. “Quote can go here”
  11. 11. Raising awareness • Longer diagnosis times in the UK • More children dying and suffering from severe life-limiting disabilities • Based on research with professional support • Aim: Reduce average diagnosis time from 12-13 weeks to less than five headsmart.org.uk
  12. 12. Professional partnerships • HeadSmart is run by a partnership between: • Supported by many other organisations: • Shortlisted for BMJ award, highly commended by QiC:
  13. 13. The campaign • Public and professional awareness • Promoted and funded by The Brain Tumour Charity • Disseminated by: • The Charity • Community Champions & volunteers • We need more Community Champions in Scotland! • Clinical Champions in every paediatric neuro-oncology centre
  14. 14. The resources FREE mobile symptoms guide Text SMART to 81400
  15. 15. The impact Average Symptom Interval Pre-guideline 12-13 weeks Pre HeadSmart launch 9.3 weeks JUNE 2012 7.3 weeks TODAY 6.9 weeks
  16. 16. Our incredible fundraisers and supporters
  17. 17. Thank you Find out more: www.thebraintumourcharity.o rg Contact us: 0808 800 0004 support@thebraintumourcharity.org
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