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DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)
 

DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)

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Presentation by Lisa Federer (UCLA) on 16 July 2013 as part of the IMLS-sponsored DMPTool Webinar Series. ...

Presentation by Lisa Federer (UCLA) on 16 July 2013 as part of the IMLS-sponsored DMPTool Webinar Series.
Description: This webinar will discuss the special needs of health sciences researchers and help you learn how to talk to researchers in the health and medical fields about their data management needs. We will cover NIH Data Sharing Policy and how to write a data management plan that meets NIH’s requirements. After viewing this webinar, participants will understand: who is required to submit a plan; specific information that should be included in a plan; how to use the DMPTool to write an NIH-specific DMP; and where to find additional resources for help.

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  • http://www.flickr.com/photos/ben_grey/4582294721/“Final research data are recorded factual material commonly accepted in the scientific community as necessary to document, support, and validate research findings. This does not mean summary statistics or tables; rather, it means the data on which summary statistics and tables are based. For most studies, final research data will be a computerized dataset.”
  • http://www.flickr.com/photos/ben_grey/4582294721/“Final research data are recorded factual material commonly accepted in the scientific community as necessary to document, support, and validate research findings. This does not mean summary statistics or tables; rather, it means the data on which summary statistics and tables are based. For most studies, final research data will be a computerized dataset.”
  • http://www.flickr.com/photos/ben_grey/4582294721/“Final research data are recorded factual material commonly accepted in the scientific community as necessary to document, support, and validate research findings. This does not mean summary statistics or tables; rather, it means the data on which summary statistics and tables are based. For most studies, final research data will be a computerized dataset.”
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DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer) DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer) Presentation Transcript

  • Logistics for Webinar You Must Call In ForAudio: 866-740-1260 access code 9870179# Participants muted Ask questions in chat any time 20 minutes for Q&A Recording & slides, schedule of webinars: blog.dmptool.org/webinar-series DMPToolWebinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS 16 July 2013
  • Health Sciences and the DMPTool #dmptwebinar FromFlickr–Username:phalinn Lisa Federer | @lisafederer University of California-LosAngeles, Louise M. Darling Biomedical Library DMPToolWebinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS 16 July 2013
  • 28 May Introduction to the DMPTool 4 June Learning about data management: Resources, tools, materials 18 June Customizing the DMPTool for your institution 25 June Environmental Scan:Who's important at your campus 9 July Promoting institutional services; EZID Outreach Made Simple! 16 July Health Sciences & DMPTool - Lisa Federer, UCLA 23 July Digital humanities and the DMPTool - Miriam Posner, UCLA 13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue How to give the data management sales pitch to various audiences Other tools and resources that work with/complement the DMPTool Beyond funder requirements: more extensive DMPs Case studies 1 – How librarians have successfully used the tool Case studies 2 – How librarians have successfully used the tool Outreach Kit Introduction Certification program introduction blog.dmptool.org/webinar-series
  • Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  • Webinar Goals • Introduce requirements relevant to health sciences researchers • Provide an overview of info to include in plans • Demonstrate how to use the DMPTool to support NIH • Point to resources for further help From Flickr– Username: AG Gilmore
  • Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  • NIH Sharing Policies • NIH Data Sharing Policy • NIH Grants Policy Statement (2.3.11.2.3 Access to Research Data) • For full list of NIH policies, see http://grants.nih.gov/gr ants/sharing.htm
  • Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  • Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  • Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  • Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  • Components of the NIH Application • Data Sharing Plan (or explanation of why data sharing is not possible) • Budget/Budget Justification • Background and Significance Section • Human Subjects Section From Flickr– Username: Raphael Moser
  • Components of the NIH Application • Data Sharing Plan (or explanation of why data sharing is not possible) • Budget/Budget Justification • Background and Significance Section • Human Subjects Section From Flickr– Username: Raphael Moser
  • Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  • NIH Guidance
  • Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  • Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  • Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  • Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  • Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  • Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
  • Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
  • Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
  • Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
  • Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
  • Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
  • Data Documentation metadata schemas FromFlickr–Username:Sarah0s codebook ImagefromCDC FromFlickr–Username:deltaMike analytic tools
  • Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
  • Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
  • Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
  • Modes for Data SharingFromFlickr–Username:ichibod FromWikimedia–Username:Dake under the auspices of the PI in a data archive FromFlickr–Username:NovartisAG in a data enclave FromFlickr–Username:loop_oh
  • Budget and Budget Justification • include request for funds for sharing/archiving • PIs may need assistance on estimating costs for data preparation and archiving From Flickr– Username: 401(K) 2013
  • Budget and Budget Justification • include request for funds for sharing/archiving • PIs may need assistance on estimating costs for data preparation and archiving From Flickr– Username: 401(K) 2013
  • Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  • Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  • Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  • Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  • Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  • Withholding Proprietary Data • Small Business Innovation Research (SBIR) grantees = up to 4 years • Private sector co- funding = 30-60 days From Flickr– Username: m thierry
  • Withholding Proprietary Data • Small Business Innovation Research (SBIR) grantees = up to 4 years • Private sector co- funding = 30-60 days From Flickr– Username: m thierry
  • Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  • Creating a plan with the DMPTool
  • Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  • Resources • NIH Data Sharing Overview: http://grants.nih.gov/grants/policy/data_sharing/ • NIH Data Sharing Policy and Implementation Guidance: http://grants.nih.gov/grants/policy/data_sharing/data_shari ng_guidance.htm • Full list of NIH sharing policies by Institute: http://www.nlm.nih.gov/NIHbmic/nih_data_sharing_policies .html • Example data sharing agreements from NCI: https://wiki.nci.nih.gov/display/DSIC/Data+Sharing+Agreem ents • Sample plan from NIH (Word doc): http://grants.nih.gov/grants/sharing_example_data_sharing _plan.doc
  • blog.dmptool.org/ webinar-series From Flickr by Jeff Keacher Next week: Digital Humanities & the DMPTool Presenter: Miriam Posner, UCLA Tuesday 23 July @ 10am PT
  • blog.dmptool.org/webinar-series/
  • 28 May Introduction to the DMPTool 4 June Learning about data management: Resources, tools, materials 18 June Customizing the DMPTool for your institution 25 June Environmental Scan:Who's important at your campus 9 July Promoting institutional services; EZID Outreach Made Simple! 16 July Health Sciences & DMPTool - Lisa Federer, UCLA 23 July Digital humanities and the DMPTool - Miriam Posner, UCLA 13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue How to give the data management sales pitch to various audiences Other tools and resources that work with/complement the DMPTool Beyond funder requirements: more extensive DMPs Case studies 1 – How librarians have successfully used the tool Case studies 2 – How librarians have successfully used the tool Outreach Kit Introduction Certification program introduction blog.dmptool.org/webinar-series
  • Email Twitter Website lmfederer@library.ucla.edu @lisafederer http://www.lisafederer.net Questions?