Logistics for Webinar
You Must Call In ForAudio:
866-740-1260 access code 9870179#
Participants muted
Ask questions in cha...
Health Sciences
and the DMPTool
#dmptwebinar
FromFlickr–Username:phalinn
Lisa Federer | @lisafederer
University of Califor...
28 May Introduction to the DMPTool
4 June Learning about data management: Resources, tools, materials
18 June Customizing ...
Road Map
Goals of thisWebinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
R...
Webinar Goals
• Introduce requirements
relevant to health
sciences researchers
• Provide an overview of
info to include in...
Road Map
Goals of thisWebinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
R...
NIH Sharing Policies
• NIH Data Sharing Policy
• NIH Grants Policy
Statement (2.3.11.2.3
Access to Research
Data)
• For fu...
Data Sharing Policy - Applicability
• applicants seeking
>$500,000 in annual
direct costs
• applications submitted
after O...
Data Sharing Policy - Applicability
• applicants seeking
>$500,000 in annual
direct costs
• applications submitted
after O...
Data Sharing Policy - Applicability
• applicants seeking
>$500,000 in annual
direct costs
• applications submitted
after O...
Data Sharing Policy - Applicability
• applicants seeking
>$500,000 in annual
direct costs
• applications submitted
after O...
Components of the NIH Application
• Data Sharing Plan (or
explanation of why data
sharing is not possible)
• Budget/Budget...
Components of the NIH Application
• Data Sharing Plan (or
explanation of why data
sharing is not possible)
• Budget/Budget...
Road Map
Goals of thisWebinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
R...
NIH Guidance
Data Sharing Plan
• schedule for sharing
• data formats
• documentation and/or
analytic tools provided
with datasets
• dat...
Data Sharing Plan
• schedule for sharing
• data formats
• documentation and/or
analytic tools provided
with datasets
• dat...
Data Sharing Plan
• schedule for sharing
• data formats
• documentation and/or
analytic tools provided
with datasets
• dat...
Data Sharing Plan
• schedule for sharing
• data formats
• documentation and/or
analytic tools provided
with datasets
• dat...
Data Sharing Plan
• schedule for sharing
• data formats
• documentation and/or
analytic tools provided
with datasets
• dat...
Schedule for Sharing
• “timely fashion”
• release no later than
acceptance for
publication of main
findings
• for epidemio...
Schedule for Sharing
• “timely fashion”
• release no later than
acceptance for
publication of main
findings
• for epidemio...
Schedule for Sharing
• “timely fashion”
• release no later than
acceptance for
publication of main
findings
• for epidemio...
Data Formats
• proprietary vs. open
formats
• consider formats
required by archives
• rationale for why this
format was se...
Data Formats
• proprietary vs. open
formats
• consider formats
required by archives
• rationale for why this
format was se...
Data Formats
• proprietary vs. open
formats
• consider formats
required by archives
• rationale for why this
format was se...
Data Documentation
metadata schemas
FromFlickr–Username:Sarah0s
codebook
ImagefromCDC
FromFlickr–Username:deltaMike
analyt...
Data-sharingAgreements
• outline requirements
for ensuring privacy and
confidentiality
• stipulate provisions for
how shar...
Data-sharingAgreements
• outline requirements
for ensuring privacy and
confidentiality
• stipulate provisions for
how shar...
Data-sharingAgreements
• outline requirements
for ensuring privacy and
confidentiality
• stipulate provisions for
how shar...
Modes for Data SharingFromFlickr–Username:ichibod
FromWikimedia–Username:Dake
under the auspices of the PI in a data archi...
Budget and Budget Justification
• include request for
funds for
sharing/archiving
• PIs may need
assistance on
estimating ...
Budget and Budget Justification
• include request for
funds for
sharing/archiving
• PIs may need
assistance on
estimating ...
Road Map
Goals of thisWebinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
R...
Privacy of Human Subjects
• strip identifiers from
data
• indirect identifiers and
“deductive disclosure”
• restricted dat...
Privacy of Human Subjects
• strip identifiers from
data
• indirect identifiers and
“deductive disclosure”
• restricted dat...
Privacy of Human Subjects
• strip identifiers from
data
• indirect identifiers and
“deductive disclosure”
• restricted dat...
Privacy of Human Subjects
• strip identifiers from
data
• indirect identifiers and
“deductive disclosure”
• restricted dat...
Withholding Proprietary Data
• Small Business
Innovation Research
(SBIR) grantees = up to
4 years
• Private sector co-
fun...
Withholding Proprietary Data
• Small Business
Innovation Research
(SBIR) grantees = up to
4 years
• Private sector co-
fun...
Road Map
Goals of thisWebinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
R...
Creating a plan with the DMPTool
Road Map
Goals of thisWebinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
R...
Resources
• NIH Data Sharing Overview:
http://grants.nih.gov/grants/policy/data_sharing/
• NIH Data Sharing Policy and Imp...
blog.dmptool.org/
webinar-series
From Flickr by Jeff Keacher
Next week:
Digital Humanities & the
DMPTool
Presenter: Miriam...
blog.dmptool.org/webinar-series/
28 May Introduction to the DMPTool
4 June Learning about data management: Resources, tools, materials
18 June Customizing ...
Email
Twitter
Website
lmfederer@library.ucla.edu
@lisafederer
http://www.lisafederer.net
Questions?
DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)
DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)
DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)
DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)
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DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)

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Presentation by Lisa Federer (UCLA) on 16 July 2013 as part of the IMLS-sponsored DMPTool Webinar Series.
Description: This webinar will discuss the special needs of health sciences researchers and help you learn how to talk to researchers in the health and medical fields about their data management needs. We will cover NIH Data Sharing Policy and how to write a data management plan that meets NIH’s requirements. After viewing this webinar, participants will understand: who is required to submit a plan; specific information that should be included in a plan; how to use the DMPTool to write an NIH-specific DMP; and where to find additional resources for help.

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  • Bold, highlight, or change color of the webinar you are presentingput this at the beginning of your presentation
  • DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)

    1. 1. Logistics for Webinar You Must Call In ForAudio: 866-740-1260 access code 9870179# Participants muted Ask questions in chat any time 20 minutes for Q&A Recording & slides, schedule of webinars: blog.dmptool.org/webinar-series DMPToolWebinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS 16 July 2013
    2. 2. Health Sciences and the DMPTool #dmptwebinar FromFlickr–Username:phalinn Lisa Federer | @lisafederer University of California-LosAngeles, Louise M. Darling Biomedical Library DMPToolWebinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS 16 July 2013
    3. 3. 28 May Introduction to the DMPTool 4 June Learning about data management: Resources, tools, materials 18 June Customizing the DMPTool for your institution 25 June Environmental Scan:Who's important at your campus 9 July Promoting institutional services; EZID Outreach Made Simple! 16 July Health Sciences & DMPTool - Lisa Federer, UCLA 23 July Digital humanities and the DMPTool - Miriam Posner, UCLA 13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue How to give the data management sales pitch to various audiences Other tools and resources that work with/complement the DMPTool Beyond funder requirements: more extensive DMPs Case studies 1 – How librarians have successfully used the tool Case studies 2 – How librarians have successfully used the tool Outreach Kit Introduction Certification program introduction blog.dmptool.org/webinar-series
    4. 4. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
    5. 5. Webinar Goals • Introduce requirements relevant to health sciences researchers • Provide an overview of info to include in plans • Demonstrate how to use the DMPTool to support NIH • Point to resources for further help From Flickr– Username: AG Gilmore
    6. 6. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
    7. 7. NIH Sharing Policies • NIH Data Sharing Policy • NIH Grants Policy Statement (2.3.11.2.3 Access to Research Data) • For full list of NIH policies, see http://grants.nih.gov/gr ants/sharing.htm
    8. 8. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
    9. 9. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
    10. 10. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
    11. 11. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
    12. 12. Components of the NIH Application • Data Sharing Plan (or explanation of why data sharing is not possible) • Budget/Budget Justification • Background and Significance Section • Human Subjects Section From Flickr– Username: Raphael Moser
    13. 13. Components of the NIH Application • Data Sharing Plan (or explanation of why data sharing is not possible) • Budget/Budget Justification • Background and Significance Section • Human Subjects Section From Flickr– Username: Raphael Moser
    14. 14. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
    15. 15. NIH Guidance
    16. 16. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
    17. 17. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
    18. 18. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
    19. 19. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
    20. 20. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
    21. 21. Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
    22. 22. Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
    23. 23. Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
    24. 24. Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
    25. 25. Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
    26. 26. Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
    27. 27. Data Documentation metadata schemas FromFlickr–Username:Sarah0s codebook ImagefromCDC FromFlickr–Username:deltaMike analytic tools
    28. 28. Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
    29. 29. Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
    30. 30. Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
    31. 31. Modes for Data SharingFromFlickr–Username:ichibod FromWikimedia–Username:Dake under the auspices of the PI in a data archive FromFlickr–Username:NovartisAG in a data enclave FromFlickr–Username:loop_oh
    32. 32. Budget and Budget Justification • include request for funds for sharing/archiving • PIs may need assistance on estimating costs for data preparation and archiving From Flickr– Username: 401(K) 2013
    33. 33. Budget and Budget Justification • include request for funds for sharing/archiving • PIs may need assistance on estimating costs for data preparation and archiving From Flickr– Username: 401(K) 2013
    34. 34. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
    35. 35. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
    36. 36. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
    37. 37. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
    38. 38. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
    39. 39. Withholding Proprietary Data • Small Business Innovation Research (SBIR) grantees = up to 4 years • Private sector co- funding = 30-60 days From Flickr– Username: m thierry
    40. 40. Withholding Proprietary Data • Small Business Innovation Research (SBIR) grantees = up to 4 years • Private sector co- funding = 30-60 days From Flickr– Username: m thierry
    41. 41. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
    42. 42. Creating a plan with the DMPTool
    43. 43. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
    44. 44. Resources • NIH Data Sharing Overview: http://grants.nih.gov/grants/policy/data_sharing/ • NIH Data Sharing Policy and Implementation Guidance: http://grants.nih.gov/grants/policy/data_sharing/data_shari ng_guidance.htm • Full list of NIH sharing policies by Institute: http://www.nlm.nih.gov/NIHbmic/nih_data_sharing_policies .html • Example data sharing agreements from NCI: https://wiki.nci.nih.gov/display/DSIC/Data+Sharing+Agreem ents • Sample plan from NIH (Word doc): http://grants.nih.gov/grants/sharing_example_data_sharing _plan.doc
    45. 45. blog.dmptool.org/ webinar-series From Flickr by Jeff Keacher Next week: Digital Humanities & the DMPTool Presenter: Miriam Posner, UCLA Tuesday 23 July @ 10am PT
    46. 46. blog.dmptool.org/webinar-series/
    47. 47. 28 May Introduction to the DMPTool 4 June Learning about data management: Resources, tools, materials 18 June Customizing the DMPTool for your institution 25 June Environmental Scan:Who's important at your campus 9 July Promoting institutional services; EZID Outreach Made Simple! 16 July Health Sciences & DMPTool - Lisa Federer, UCLA 23 July Digital humanities and the DMPTool - Miriam Posner, UCLA 13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue How to give the data management sales pitch to various audiences Other tools and resources that work with/complement the DMPTool Beyond funder requirements: more extensive DMPs Case studies 1 – How librarians have successfully used the tool Case studies 2 – How librarians have successfully used the tool Outreach Kit Introduction Certification program introduction blog.dmptool.org/webinar-series
    48. 48. Email Twitter Website lmfederer@library.ucla.edu @lisafederer http://www.lisafederer.net Questions?
    1. A particular slide catching your eye?

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