Alzheimer's and Dementia Caregiver center

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  • The Alzheimer’s and Dementia Caregiver Center is our new online tool to help people living with Alzheimer's and caregivers make informed decisions when selecting a care provider for home-based or residential care
  • Alzheimer's Navigator is an advanced online tool designed for individuals with Alzheimer's disease, their families and caregivers. Alzheimer's Navigator creates customized and complete action plans, based on answers provided through short, online surveys.users complete a set of focused questions to receive a customized Action Plan detailing next steps and suggested resources to approach Alzheimer's. The website will be alz.org/alzheimersnavigator.
  • TURN IT OVER TO JANET
  • ALZConnectedis the first social networking community for people with Alzheimer's, their caregivers and others. Through this platform, users can connect and communicate, pose questions and offer solutions to dementia-related challenges, and create public and private groups organized around a dedicated topic. The website is alzconnected.org.Connect online with others facing Alzheimer's.
  • The Caregiver Center provides caregivers and families with complete online resources and information through our Alzheimer's and Dementia Caregiver Center, which features sections on early-stage, middle-stage and late-stage caregiving. 
  • Provides caregiving skills and practical advice.Basics of Alzheimer’s:overview of needed knowledge and tools to build an understanding of Alzheimer’s disease and related dementias so that participants will know what to expect, what they should learn and what to do next. It will also provide participants with an understanding of the benefits of early detection and tools for seeking the right diagnostic tests, doctors and treatment optionsKnow the 10 Signs: Provides awareness of the warning signs of Alzheimer's and the benefits of early detection and early diagnosis.LWA:
  • Program provides answers to the questions that arise in the Early, Middle and Late Stages of the disease. • Developing a care team• Legal and financial planning• Coping strategies• Care and treatment options• Communicating and connecting• Maximizing independence
  • This online program offers individual training in dementia care, from HealthCare Interactive, Inc., as well as individual certification by the Alzheimer's Association to recognize those who complete the program and demonstrate knowledge of quality dementia care practices. Both family members and professional care providers can benefit. Requirements/pricingIndividuals 18 years and older can qualify to take essentiALZ online certification exams upon successful completion of select CARES online dementia care training courses. Purchase and completion of the CARES ® Dementia BASICS™ and CARES® Dementia Advanced Care™ online training provides immediate access to the appropriate essentiALZ exam at no additional cost.essentiALZ: This certification can be earned after taking the approved prerequisite training, CARES® Dementia BasicsTM (4 hours of training) jointly developed by the Alzheimer's Association and HealthCare Interactive. Topics covered include the basics of Alzheimer's and dementia care, behavior, communication and person-centered care.essentialALZ advanced: This certification can be earned after taking the approved prerequisite training, CARES® Dementia Basics and Advanced TrainingTM (10 hours). The essentiALZ advanced certification exam covers  basics of Alzheimer's and dementia care, behavior, communication, person-centered care, eating well, recognizing pain, minimizing falls, wandering and minimizing the use of restraints.
  • Using Alzheimer’s Association TrialMatch® is easy.» Step 1: Access TrialMatch online at alz.org/trialmatch or by calling 800.272.3900. » Step 2: Complete a brief questionnaire, either online or over the phone, to create a profile.» Step 3: The Alzheimer’s Association will compare your unique profile to its comprehensive, continually updated clinical trial database.» Step 4: With your permission, a TrialMatchspecialist will contact you to provide a list of trials that match your specific eligibility and criteria. Specialists will not recommend any particular trial.Alzheimer’s related clinical trials include:Treatment trials- test new treatments or combinations of treatments.»Diagnostic studies- find new tests or procedures for diagnosing a disease or condition.»Prevention trials- investigate ways to prevent the onset of diseases.»Screening studies- test methods to identify diseases or conditions at the earliest stages.» Quality of life studies- explore different ways to improve quality of life for individuals who have a chronic illness, their caregivers and family members.
  • Work backward on the acronym to really help sell AEDAThis is an alliance – there are many companies involvedEarly Detection – this is a free and easy way to get to an issue that is impactful for many employeesAlzheimer’s – The Alzheimer’s Association is a trusted name that can provide this consistent service to an organizationFor employees in the workplace, the true value is in the promotion of Know the 10 SignsEmployees may not know their company is AEDA, but will know if they had an opportunity to take one of the Alzheimer’s Association coursesThat is very positive in how employees will recognize our brand and our program They will recall that are filling a need by providing this service
  • Member – Internal EducationChampion – External Education
  • Example of Tools
  • Companies can align their brand with the Alzheimer’s Association using the tools in the AEDA toolkit
  • Encourage company to register onlineWhen they take the initiative, they are more likely to follow through on the commitment to educateSigning up is easy
  • Share this link with companiesThis page provides easy links to education courses, forming walk teams, signing up for one day fundraising, making a donation, or finding a local chapter

Transcript

  • 1. Susana VargasAlzheimer’s Association
  • 2. Go to alz.orgWhat you’ll find on alz.org• Patients and caregiver tools andresources• Free online videos andeducational programs• Facts and figures aboutAlzheimers disease• Clinical Trials and scientificadvancements• MedicAlert+Safe Return andComfort Zone• Where to find our localchapters/programs• And much more
  • 3. Alzheimer’s and DementiaCaregiver Center.Instant access to theinformation YOU need!Online tools:• Alzheimer’s Navigator• ALZConnencted• Alzheimer’s andDementia CaregiverCenter• Dementia and DrivingResource Center
  • 4. Alzheimers Navigator™ is a FREE online tool designed specifically to help caregiver and people withdemencia evaluate their needs, execute action steps, and connect with local programs and services.Following a brief welcome survey, users complete a set of focused questions to receive a customizedaction plan detailing next steps and suggested resources.alz.org/alzheimersnavigator.
  • 5. Alzheimer’s Navigator TourComplete the Welcome SurveyEstimated time: 5 minutesAnswer focused surveysEstimated time: 5 minutesReceive a customized Action PlanImplement your plan with help from local resourcesAlzheimer’s Navigator can help you map out your future
  • 6. Why join ALZConnected?Home PagePost a personal update and read what your connectionshave to share.Message BoardsShare questions and opinions with a diverse community.SolutionsGet answers to your questions or support others by offeringsolutions to their challengesConnectionsGet connected with others like you. Review and acceptour suggested connections or invite your own.InboxSend private messages to your connections within a secure system.GroupsJoin public or private groups focused on a topic or shared experienceConnect with a community that offersAlzheimers support.ALZConnected.org
  • 7. Get advice from our caregiver communityCaregivers message board forum:How should my family handle suspected Alzheimer’s? HELP!Spouse or Partner Caregiver Forum:How do you do it?Younger-Onset AD or Other Dementia Forum:Teenagers dealing with a parent with EOAD
  • 8. CAREGIVER CENTER“ONE STOP SHOP”Get day-to-day help Behaviors Communication Activities Respite care Memory lossGet support Your local chapter Message boards Support groups Your health Care training Legal matters Care options Paying for care Safety Dementia & drivingPlan for the futureThe Caregiver Center provides caregivers and families with complete online resources and information throughour Alzheimers and Dementia Caregiver Center, which features sections on early-stage, middle-stage and late-stagecaregiving.
  • 9. Online TrainingFree E-learning WorkshopsTake the course in English – SpanishLearn the 10 Warning Signs of Alzheimersdisease, hear from people who have the disease, andfind out how to recognize the signs in yourself andothers.Learn about detection, causes, risk factors,stages and treatment of Alzheimers disease.
  • 10. The Living with Alzheimer’sFor CaregiversTopics covered will include: Developing a care team Legal and financial planning Coping strategies Care and treatment options Communicating and connecting Maximizing independenceLIVING WITH ALZHEIMER’S FOR CAREGIVERS(SPANISH COMING SOON!)
  • 11. Online care training and certificationBoth family members and professional careproviders can benefit from this programDo you provide care for someone with dementia or Alzheimers?The Alzheimer’s Association® essentiALZ® certification program is a convenient way forindividuals to be recognized for learning quality dementia care practices. Alzheimer’s and Dementia Understanding Behavior Communication Person-centered Care Alzheimer’s and Dementia Understanding Behavior Communication Person-centered Care Making a Connection Eating Well Recognizing Pain Minimizing Falls Rethinking Wandering Minimizing Restraints
  • 12. Alzheimer’s AssociationTrialMatch130+ reasons for hope.Alzheimer’s Association TrialMatch® provides access to more than130 promising pharmacological (drug) and non-pharmacological (non-drug) clinical studies being conducted at nearly 500 trials sites acrossthe country.Alzheimer’s related clinical trials include:» Treatment trials» Diagnostic studies» Prevention trials» Screening studies» Quality of life studiesI never had the ability to helpanyone with Alzheimer’s diseaseuntil I got the disease andparticipated in a clinical trial. Itwould be hard to overstate theimportance of getting involved.Ron GrantLiving with Alzheimer’s diseaseTrialMatch userAccess TrialMatch online at alz.org/trialmatch or by calling800.272.3900 – 7 a.m. – 8:30 p.m. CST, Monday - Friday
  • 13. Safety ServicesAlzheimers Association Comfort Zone® — Comfort Zone is a comprehensive web-based location management that helps family members or friends monitor a personwith dementia by receiving automated alerts throughout the day and night when aperson has travelled beyond a preset zone.Alzheimers Association Comfort Zone Check-In™ — Comfort Zone Check-In isa self-service web based location management service that helps families monitora person with dementia by scheduling each location request or finding theindividual when necessary using a web-based application.MedicAlert® + Alzheimers Association Safe Return® — Our 24-hour nationwideemergency response service for individuals with Alzheimers or related dementiawho wander or who have a medical emergency.Safety Education — Educate the public and professionals who may encounterpeople with dementia so that they know how to handle situations, such aswandering, safely and effectively.
  • 14. The Alzheimers AssociationComfort Zone® and Comfort Check-In®Comfort Zone® is a comprehensive web-based locationmanagement service. Families can remotely monitor a person withAlzheimer’s by receiving automated alerts throughout the day andnight when a person has travelled beyond a preset zone.Comfort Zone Check-In® is a self-service web based locationmanagement service. Families can remotely monitor a personwith Alzheimer’s by conducting on-demand "Find Me" functionand receiving once daily scheduled location alertComfort Zone website or call 1.877.ALZ.4850GPS Location Management ServiceThe Alzheimers Association offers safety services that use GPS and cellular technology.Comfort Zone® and Comfort Check-In® can help you manage a persons location. Comfort Zone includes MedicAlert +Safe Return.Comfort Zone Check-In website
  • 15. MedicAlert® + Alzheimers Association Safe Return®NecklaceBraceletBracelet BackSTAYING SAFE24-hour nationwide emergency response service forindividuals with Alzheimers or a related dementia whowander or have a medical emergency.JOIN NOW!Online: medicalert.org/safereturnCall: 1.888.572.8566Mail: Complete and mail in the enrollment form.Enrollment Form: English | Spanish/Español | ChineseCompleted enrollment form and photos can be mailed to:MedicAlert + Alzheimers Association Safe Return2323 Colorado Blvd.Turlock, CA 95380Fax: Registration form to 1.800.863.3429
  • 16. Support groups are regularly scheduled in-person or virtual gatheringsof persons with Alzheimers, family, friends or caregivers.Groups can have social, educational and/or support components andare facilitated by trained individuals.Caregiver Support GroupGet the emotional support you need
  • 17. The Alzheimer’s Association’s TelephoneCaregiver Support Group is design to:• Provide emotional, educational and socialsupport for caregivers through regularlyscheduled meetings• Help participants develop methods and skills tosolve problems• Encourage caregivers to maintain their ownpersonal, physical and emotional health, as wellas optimally care for the person with dementiaCall 1.800.272.3900 for more information aboutjoining the telephone support group.
  • 18. Who Can Join?Alzheimer’s has no boundariesAll companies and organization are invited to participate• Communications• Care Industry• Health Agencies• Government Agencies• Hospitals• Pharmaceutical• Membership Organizations• Law Firms• Manufacturing• Insurance• Retail• Sales• Transportation• Utilities• Schools• Churches
  • 19. Over 1200Companies arealready signed on!
  • 20. • Internal education• Educate your employees by:─ Providing information on yourintranet,─ Including information in youremployee newsletters, posters• Public promotion• Agreeing to educate your members, customersor even the public by:─ Donating media resources─ Providing information on your publicwebsite─ Hosting a community lunch and learn─ Sharing information in your retail outletsand conferences─ Cause marketing promotionChoose Level of Participation
  • 21. Easy to Sign-Up via Webwww.alz.org/AEDA
  • 22. Visit:www.alz.org/makeadifferenceTake Action!
  • 23. JOIN US IN THE FIGHT AGAINTSALZHEIMER’SForm a Walk to End Alzheimer’s TeamSaturday, September 28, 2013Unite in a movement to reclaim the future for millions. Form a team for Walkto End Alzheimers, the nations largest event to raise awareness and fundsfor Alzheimers are, support and research.
  • 24. Questions?THANK YOU!