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Schizophrenia: The Truth

Schizophrenia: The Truth






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    Schizophrenia: The Truth Schizophrenia: The Truth Presentation Transcript

    • The Truth About Schizophrenia Schizophrenia and Related Disorders Alliance of America (SARDAA) Linda Whitten Stalters Board of Directors
    • Schizophrenia and Related Disorders Alliance of America (SARDAA) Mission: Improve the lives of people with schizophrenia and related disorders by promoting hope and recovery through support programs, education and advocacy
    • Schizophrenia is NOT • A lack of will power or self-discipline • A result of poor parenting • A consequence of substance abuse • A Personality disorder • Being evil or possessed
    • Schizophrenia is a Physical Disease
    • Research Indications • Schizophrenia is a disorder of the neurochemicals that transmit messages between neurons in the brain and quantity of synapses • There are physical differences in the brain • There are differences in the cognitive processing of information • MRIs show significant changes in brain functioning for those with schizophrenia • Genetic markers that can increase a person's risk for schizophrenia
    • Brain Connectivity Synapse
    • Normal Schizophrenia Fewer synapses in schizophrenia
    • Enlarged Ventricles
    • Positive symptoms Cognitive Symptoms Hallucinations Working memory of Delusions Schizophrenia Selective attention Disordered thoughts Anosognosia Negative symptoms Avolition anhedonia anergia asociality Alogia
    • Abnormality Locations A Frontal B Lobe Temporal Negative Lobe symptoms Positive symptoms C D
    • 3-dimensional profile of gray matter loss in brains of teenagers with schizophrenia Greatest loss in the temporal and frontal brain regions that control memory, hearing, motor functions, and attention.
    • Genetic Risks General population 1% Sibling 5% Child with 1 parent w/schizophrenia 10% Dizygotic (Fraternal) co-twin 10% Child of 2 parents w/ schizophrenia 40% Monozygotic (Identical) co-twin 50%
    • Recovery Is Real
    • A Consumer’s Perspective “Recovery does not mean cure…” “…rather recovery is an attitude, a stance and a way of approaching the day’s challenges.” Patricia Deegan PhD (1996. pp.96-97)
    • Barriers To Recovery Stigma and discrimination “The stigma is harder to deal with than the illness itself.”
    • Barriers To Recovery Lack of Education Lack of Access to Effective Health Care Lack of Resources Lack of funding for Schizophrenia and related diseases Hopelessness and shame
    • Putting Things In Perspective • Schizophrenia: 3 million Americans • Multiple Sclerosis: 400,000 • Insulin-dependent Diabetes: 350,000 • Muscular Dystrophy: 35,000 • HIV/AIDS: 1.2 million • Two times more prevalent in the U.S. than Alzheimer’s Schizophrenia.com/CDC 2003
    • The Real Impact & Cost Schizophrenia accounts for more hospital stays than any other illness 2% of GNP, nearly $70 Billion in direct and indirect costs One of the 10 leading causes of disability in world (WHO)
    • Did You Know? Lifelong morbidity and increased mortality Individuals with a serious mental illness die, on average, 25 years earlier than other Americans Substance Abuse & Mental Health Administration (SAMHSA)
    • The Current Approach? Two of the largest mental health providers in the country today are Cook County and Los Angeles County jails – between two and four hundred thousand or more persons with mental illnesses are confined in U.S. jails and prisons
    • SARDAA Sponsors Hope Schizophrenics Anonymous Peer Support
    • Joanne Verbanic Founder of Schizophrenics Anonymous • 1970 diagnosed with paranoid schizophrenia • 1985 volunteer work with Mental Health Association in Michigan – Spokesperson at Mental Health conferences, universities, schools, clubs, TV, radio in an effort to educate the public – Founded Schizophrenics Anonymous in Michigan
    • “I have made a commitment to devote the rest of my life to helping other mentally ill…I will continue the endeavor as long as I live.” Joanne Verbanic
    • Schizophrenics Anonymous 2008 – More than130 groups meeting throughout 31 states, as well as Australia, Brazil, Mexico, and Venezuela.
    • Schizophrenics Anonymous (SA) • Voluntary • Consumer membership driven • No dues, governing bodies, or by-laws • Peer support providing empowerment in working toward recovery
    • Schizophrenics Anonymous “While most SA participants value the help they receive in professional settings, SA provides a unique type of help in dealing with schizophrenia that members do not receive from professionals or from other mental health organizations.” Salem, Reischl, & Randall, 2000 Michigan State University
    • Qualitative Findings Involvement in SA helps members: – Increase understanding of schizophrenia and how to cope with it. – Promotes change in self-esteem – Provides opportunities for participation in meaningful social roles. – Helps to combat feelings of loneliness and social isolation. Salem, Reischl, & Randall, 2000 Michigan State University
    • SARDAA Philosophy With treatment , support, public education and awareness every person with schizophrenia can have the opportunity to recover to their potential and live a full life in the community, free from stigma and discrimination.
    • What Can You Do? Contact us to learn how.
    • Schizophrenia and Related Disorders Alliance of America SARDAA PO Box 941222 Houston, Texas 77094-8222 www.sardaa.org Linda Whitten Stalters, MSN,APRN,BC,PMH,MTAPA,FAPA Board of Directors linda.stalters@sardaa.org (240) 423-9432
    • Schizophrenia Quiz 1. Schizophrenia is a way of describing a “split personality.” False. It is a disease with a physical cause, like cancer or heart disease.
    • 2. No one can recover from schizophrenia. False. With proper treatment and support, the majority of people do recover.
    • 3. Schizophrenia is a common mental illness. True. About 1% of the world’s population and about 3 million U.S. citizens have the disease.
    • 4. Schizophrenia most commonly begins in people over age 50. False. The onset of schizophrenia normally begins between the ages 15 and 25.
    • 5. Schizophrenia can be caused by bad upbringing, or personal or moral weakness. False. It is a disease with a physical cause.
    • 6. Schizophrenia can be diagnosed through a series of medical tests. False. There are, currently, no medical tests for schizophrenia but several tools are used by trained professionals to evaluate and diagnose the disorder.
    • 7. Approximately 1 of every 10 people with schizophrenia completes a suicide attempt. True. And about 20%-40% of people with schizophrenia attempt to commit suicide. Suicide is the number one cause of death for young people with schizophrenia.
    • 8. Like diabetes, schizophrenia has a genetic pattern. True. There is a hereditary tendency.
    • Hereditary Tendency Rates General population 1% Sibling 5% Child with 1 parent w/schizophrenia 10% Dizygotic (Fraternal) co-twin 10% Child of 2 parents w/ schizophrenia 40% Monozygotic (Identical) co-twin 50%
    • 9. People with schizophrenia are often violent. False: People with schizophrenia are no more likely to be violent than their neighbors. In fact they are the victims of murder 6 times the general population (Lancet, 2001)