When Art is no longer a Pretty Picture: Art for Advocacy

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This is a presentation showing the power of art, social media, crowd funding and activism in relation to forming health policy.

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When Art is no longer a Pretty Picture: Art for Advocacy

  1. 1. When Art is no longer aPrettyPicture:Art forAdvocacyA patient activist perspective by Regina Holliday
  2. 2. Art.That’s for kids, right?
  3. 3. Picture BooksBedtime StoriesFamily TelevisionDrawing, PaintingDancing, SingingChildren immerse themselves in art.They live art.They learn from art,and do not separate it from daily life.
  4. 4. Art can be “safe.”It can provide therapy for injured souls.It can be containedwithin waiting rooms and rolling art carts.Art can be pinned down upon a sheet of construction paperStatic,StillA waxwork of emotion.It can be a moment of process with no intent.Or it can be more.
  5. 5. Sometimes art is a cry for help,A plea for change,Or simply the statement:“I was here.”Regina, the child
  6. 6. Art can make clinical spaces “pretty.”But as any child can tell you,it can be dangerous to enter candy houses.Art can be used tomask the rottenapple or it can be usedtoreveal it.
  7. 7. Healthcare is not Rainbows and Butterflies.
  8. 8. Are you ready to jump?Are you ready to change the way you think about art within medicine?
  9. 9. Writingon theWall.(or what one widow cando with a borrowed ladderan available wall and$500.00 in paint.)
  10. 10. They can Write it on a Wall.How can an outsider artist,send a message to us all?
  11. 11. Painting Advocacy meetsSocial MediaStreet art is truly the first global art movement fueled by the Internet.–Marc and Sara Schiller, Wooster Collective, 2010
  12. 12. “The aim of art is to represent not theoutward appearance of things, but theirinward significance.” ~Aristotle
  13. 13. This is the painting 73 cents.This is the vital patient story, the social history , the sacred heart of Fred’sELECTRONIC MEDICAL RECORD.And this painting, like the internet,advocates 24 hours a dayand you cannot tell a wall to shut up.
  14. 14. “Shouldn’t Art stick to what it does best-the delivery of pleasure?And forget about being a Paintbrush warrior.Or, is it when the bombs are dropping we find out what art is really for?”-Power of Art by Simon Schama
  15. 15. Art Advocacy and its affect on health policyIn the institution or in governance
  16. 16. “During this hospital stay, how often was your pain well controlled?”Art can provide a face to cold clinical statistics.
  17. 17. Art can compare hard data to soft dataand apples to apples.
  18. 18. Prior legislation can inspire the artthat explains the future of health.ADACivil RightsOrphan Drug ActHIPAA
  19. 19. Meaningful Use in aDiner…..
  20. 20. Why not paint about the needfor better hygiene practices?
  21. 21. Sometimes “blowing a gasket” leads to the best kind of collaborative disruption.Crowd-funding exists to make the impossible possible….
  22. 22. Patient ScholarshipsYou can crowd fund Art Advocacy
  23. 23. Why can’t we ask Hallmarkto make hospice cards?Would that help us talkabout end of life?
  24. 24. You can use imagesto inspirebetter communication
  25. 25. #HospiceCardsBecome a reality
  26. 26. Join a Walking Wall of Patient StoriesThe Walking Gallery
  27. 27. Patients spend much of theirdays living inNegative space.Instead of being the subjectof attentionWe are often the space aroundThe image of medicine.The back groundThe prop
  28. 28. Street Art:The more stickers that are out there the more important it seems.The more important it seems, the more people want to know what it is.The more they ask they ask each other.It gains real power from perceived power.-Shepard Fairey
  29. 29. We can redefine expectations of the role of art in medicineat every hospital, clinic and conference.
  30. 30. Let Patients SpeakWe must encourage every committee,conference and hospital board,to actively recruit and include patientsin every aspect of the care process fromdesign to implementation to resolution.Invite patients and you will include artists,poets and writers in creating health policy.
  31. 31. Are you ready ? Art is what you make of it…You can choose the role of art in medicine.Choose wisely.@ReginaHolliday

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