1. VISION: In Health Information TechnologyA presentation by Regina Holliday Who sees with equal eye, as God of all, A hero perish or a sparrow fall, Atoms or systems into ruin hurld, And now a bubble burst, and now a world. ~Alexander Pope
2. In medicine and in art a balancedperspective is necessary to reachscientific conclusions and aestheticbeauty.If you leave an element out of thepicture or lack balance in composition,The end result will be a poor.
3. Balance is important in paintings; as it is in work flows.
4. Patient Reported Data is very important.
5. The Holliday Family Christmas 2007
6. Everything we ever wanted… Resolutions January 2008:1. Get Medical Insurance for the whole family 2. Get little Freddie into a special needs school 3. Fred gets a job in his field 4. Spend more time together as a family 5. Get a two bedroom apartment Freddie’s IEP Binder
7. Fred was happy with his new job.But he was very tired,He went to the doctor and wasdiagnosed with hypertension.
8. During the months ofJanuary, Februaryand March of 2009,Fred was in constantpain.
9. On Friday March 13th, We went toa state of the art ER because Fred was in so much pain . We waited three hours before being sent home.
10. Fred was hospitalized on March 25th 2009 for the administration of tests.On March 27th, he was told while alone thathe had “tumors and growths.”He was scared and confused and did not understand.His oncologist left town for the next four days to a medicalconference and was not reachable by phone or email.
11. What was the diagnosis? What were the treatment options? Would he get a pain consult?
12. This is my husband’smedical record.I was told it would cost73 Cents per pageAnd we would have towait 21 days to get a copy.
13. “She must not have tried very hard to get the record….”Comparing access to an unpublished book byStephen Kingto accessing theElectronic Medical Recordwhile hospitalized.
14. “Go After Them, Regina.” April 18, 2009
15. This is thevital clinical informationfrom Fred’s electronic medical record.Presented in the style ofthe Nutrition Facts Label.Then painted on the wall ofPumpernickel’s Deli inWashington, DC.
16. I am trying to talk with Christine Kraft and epatientDave. Why did we get more help and answers from Social Media than from our local hospital ? Within one day were in email contact and then spoke on the phone. By ten o’clock May 4th 2009, I was talking on the phone with Dave’s oncologist about my husband’s cancer.
17. Going to Hospice
18. We fulfilled our final 2008 resolution on June 11th 2009.We moved into a two bedroom apartment so I could care for Fred in home hospice. He died six days later on June 17th, 2009
19. Painting Advocacy meets Social Media
20. This is the painting 73 cents. This is the vital patient story, the social history , the sacred heart ofFred’sELECTRONIC MEDICAL RECORD.
21. On Tuesday, October 20th 2009 we dedicated the mural, “Where do we go from here?”
22. Vision is more than seeing areflection of current practice;Vision is alsoseeing into the future, and helpingthe brightest ideas become reality.
23. Which HIT future will you CREATE?
24. Will it be adystopian future?Are we creating a future where patientsmust fight for data access using the toolsof mobile health?How will that data be organized? Will itbe in information silos without ease ofaccess?Are we compromising care delivery dueto delay and inefficient communication?
25. Will we create EMRsystems where doctorsfeel like fast food workers?Will they live a lifeclicking fields and data entry?
26. Will we create a system where thepatient feels divided?Where the concept of a medical homeis a fantasy due to fractured networks ofCommunication?
27. Will concepts like aBlue Button Download,be used as a torrent of information that drownsthe user?
28. We decide which future we want.
29. “This might sting a little bit…”Health Information Technology becomes part of hospital workflow.
30. WiFi allows every patient to access their portal in real-time while hospitalized.
31. This becomes the real meaning ofthe “I” in HIT. The in HIT
32. Why not have CDS (clinical decision support) for patients? If a child’s toy can figure any item in the world in 20 questions, whycan’t we have CPOEand CDS in every hospital and family practice?
33. Imagine a future where patients canaccess data from the devicesinside of their bodies.
34. Meaningful Use becomes a love story.
35. We can make a future where the symbol of a blue button,means open access, better health and ease of data transmission.We can open data sets and let brilliant minds work with patientsand providers to create the kind of apps that improve health outcomes.
36. You can take a negative and turnit into a POSITVE.It is a matter ofVISION.