Dr. to Dr.

Leading From the Future:From Doctor Strangelove to Doctor WhoBy Regina Holliday

In 1978, there was a little boy named Freddie who lived in Marylandand a little girl in Oklahoma named Regina.

Patient Reported Data is very important.

14 years later,Fred would meet Regina on stage in a scenic painting class atOklahoma State University. We would talk of Stephen King’s Dark Tower. We would fall in love.

You know it is true love when you sell your comic book collection to pay for the wedding.

Everything we ever wanted… Resolutions January 2008:1. Get Medical Insurance for the whole family 2. Get little Freddie into a special needs school 3. Fred gets a job in his field 4. Spend more time together as a family 5. Get a two bedroom apartment Freddie’s IEP Binder

In the fall of 2008, Fred becomes a professor at American UniversityAnd the family rediscovers the wonder of Doctor Who.

During the months ofJanuary, February and March of 2009,Fred was in constant pain.

On Friday March 13th, We went to the ER because Fred was in so much pain .We waited three hours before being sent home.

Fred was hospitalized on March 25th 2009 for the administration of tests.On March 27th, he was told while alone thathe had “tumors and growths.”He was scared and confused and did not understand.His oncologist left town for the next four days to a medicalconference and was not reachable by phone or email.

What was the diagnosis? What were the treatment options? Would he get a pain consult?

This is my husband’smedical record.I was told it would cost73 Cents per pageAnd we would have towait 21 days to get a copy.

“She must not have tried very hard to get the record….”Comparing access to an unpublished book byStephen Kingto accessing theElectronic Medical Recordwhile hospitalized.

“Go After Them, Regina.” April 18, 2009

After waiting for 5 days for a transferto another hospital for a second opinion,We were sent with an out of dateand incomplete medical recordand transfer summary.The new staff spent 6 hours trying tocobble together a current medical recordUsing a telephone and a fax machine.

This is thevital clinical informationfrom Fred’s electronic medical record.Presented in the style ofthe Nutrition Facts Label.Then painted on the wall ofPumpernickel’s Deli inWashington, DC.

Why did we get more help and answers fromSocial Media than from our local hospital ? I got on Twitter on May 3rd to find Christine Kraft and e-Patient Dave to talk to them about kidney cancer. Within one day were in email contact and then spoke on the phone. By ten o’clock May 4th 2009, I was talking on the phone with Dave’s Oncologist about my husband’s cancer.

On May 27th, I met group of amazing folks at a small Health 2.0 meeting.They asked, “ What was the worst thing that happened?”I responded, “Lack of access to the medical record.”

Freddied on June 17th, 2009

On June 23rd I began to paint the mural “73 Cents.”

Painting Advocacy meets Social Media

This is the painting 73 cents.This is the vital patient story, the social history , the sacred heart of Fred’sELECTRONIC MEDICAL RECORD.

On Tuesday, October 20th 2009 we dedicated the mural,“Where do we go from here?”

Change can be Scary.

The Bakery Circa 1980When was the last time you used aRotary Dial Phone?Or was cashiered at ahand crank cash register?

The Doctor’s Office circa 1980How much has the picture changed at your local Doctor’s office?

Which future will he lead?

Would HCAHPS scores matter more if they were presented as a child’s report card?

Facebook: a PHRwith Privacy Issues?In the seven months prior todiagnosis, 10.7% of FredHolliday’s Status PostsRelated aspects of hiscurrent medical condition…He visited his Doctor weekly for atwo month period prior tohospitalization.He went to two different ER’s in thetwo months before diagnosis.He exhibited all of the most commonsymptoms of Renal Cell Carcinoma...And he listed 5 of them on Facebook.

If a child’s toy can figure any item in the world in 20 questions,why can’t we have a Star Trek medical tricorder?

But here is the real meaning ofthe “I” in HIT.Isaac at his Doctor’s appointmentwith his EHR in his hands. The in HIT

Inside of every EMR there is a patient story,And sometimes it is told by Betty of Bellin Health.

On July 13, 2010 I had the honor of speaking before the assembled at HHS. I presented the patient voice within Meaningful Use.There was another Regina there that dayDoctor Regina Benjamin, Surgeon Generalpresented her very gripping reason she supportedElectronic Medical Records adoption in the united States.

On September 13th 2011, I met Regina once again.This was the launch of the Consumer e-Health Programat the Department ofHealth and Human Services.

A place for speakers and seekers to find each other.SpeakerLink.org

Welcome to the Walking Gallery.

“We are all stories in the end.”-The Doctor, from Doctor Who

http://www.scoop.it	763
http://reginaholliday.blogspot.com	760
http://healthtrain.blogspot.com	507
http://healthtrain.blogspot.co.uk	32
http://reginaholliday.blogspot.in	19
http://reginaholliday.blogspot.ca	18
http://healthtrain.blogspot.com.au	16
http://healthtrain.blogspot.in	16
http://reginaholliday.blogspot.co.uk	10
http://healthtrain.blogspot.ca	10
http://healthtrain.blogspot.it	9
http://healthtrain.blogspot.ch	6
http://reginaholliday.blogspot.com.au	6
http://www.reginaholliday.blogspot.com	5
http://reginaholliday.blogspot.fr	5
http://beforeitsnews.com	5
http://healthtrain.blogspot.tw	4
http://healthtrain.blogspot.mx	4
http://healthtrain.blogspot.co.nz	4
http://reginaholliday.blogspot.com.ar	4
http://healthtrain.blogspot.pt	3
http://galeslifethoughts.blogspot.com	3
http://galeslifethoughts.blogspot.ru	2
http://healthtrain.blogspot.com.br	2
http://healthtrain.blogspot.de	2
http://healthtrain.blogspot.com.es	2
http://healthtrain.blogspot.se	2
http://reginaholliday.blogspot.co.nz	2
http://reginaholliday.blogspot.jp	2
http://reginaholliday.blogspot.com.br	2
http://healthtrain.blogspot.jp	1
http://healthworkscollective.com	1
http://reginaholliday.blogspot.de	1
http://feeds.feedburner.com	1
http://healthtrain.blogspot.nl	1
http://healthtrain.blogspot.fi	1
http://healthtrain.blogspot.com.ar	1
http://core.traackr.com	1
http://reginaholliday.blogspot.se	1
http://healthtrain.blogspot.no	1
https://twimg0-a.akamaihd.net	1
http://healthtrain.blogspot.dk	1

Dr. to Dr.

by Regina Holliday

Accessibility

Categories

Upload Details

Usage Rights

42 Embeds 2,237

Statistics

Dr. to Dr. Presentation Transcript