E-­‐health	  is	  empowered	  health	    Prof	  dr	  Jan	  A.M.	  Kremer,	  Radboud	  University	  Nijmegen	  Medical	  Ce...
InspiraMon	  
InspiraMon	  1:	  	  Pa$ents	    •  Gynaecologist	  (1996)	    •  ReproducMve	  Medicine	    •  IVF	  team	  Nijmegen	    ...
InspiraMon	  2:	  	  Clay	  Shirky	  •  The	  power	  of	  organizing	  without	     organizaMons	  •  Spectacular	  devel...
InspiraMon	  3:	  	  Prince	  •  The	  ArMst	  Formerly	  Known	  As	     Prince	  (TAFKAP)	  •  PaMent	  comes	  from	  t...
Heyendael	  Castle,	  2001	  
What	  do	  you	  think	  of	  our	  IVF	  care?	  
Patientcentredness
From	  paradigm	  shic	  to	  dream	  
PaMent-­‐centredness	    •  Being	  respec]ul	  of	  and	  responsive	  to	  	  individual	  paMent	       preferences,	  ...
PaMent-­‐centredness	  research	  in	  Nijmegen	      •    Stress	  and	  IVF	  	     	          	     	  Chris	  Verhaak,...
Virtual	  IVF	  Clinic	  1.  General	  informaMon	  1.0	           interviews,	  educaMon	  leaflets,	  PDA	  	           	...
EvaluaMon	  Virtual	  IVF	  Clinic	     •    9	  years	  successful	     •    >	  4000	  paMents	  online,	  	     •    >	...
Next	  step:	  Health	  Social	  Networks	    •  We	  have	  organized	  Healthcare	  from	       the	  insMtuMon	  of	  t...
Connect	  paMents	  and	  professionals	    1.  Private	  health	  communiMes	        CommuniMes	  of	  a	  professional	 ...
Modern	  medicine	    The	  new	  doctor:	    •  from	  god	  to	  guide	    •  from	  host	  to	  guest	  (Don	  Berwick)...
E-­‐health	  is	  empowered	  health	    Prof	  dr	  Jan	  A.M.	  Kremer,	  Radboud	  University	  Nijmegen	  Medical	  Ce...
Reshape Academy 25/04/2012 Keynote E-Health is Empowered Health - Jan Kremer
Reshape Academy 25/04/2012 Keynote E-Health is Empowered Health - Jan Kremer
Reshape Academy 25/04/2012 Keynote E-Health is Empowered Health - Jan Kremer
Reshape Academy 25/04/2012 Keynote E-Health is Empowered Health - Jan Kremer
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Reshape Academy 25/04/2012 Keynote E-Health is Empowered Health - Jan Kremer

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Reshape Academy 25/04/2012 Keynote E-Health is Empowered Health - Jan Kremer

  1. 1. E-­‐health  is  empowered  health   Prof  dr  Jan  A.M.  Kremer,  Radboud  University  Nijmegen  Medical  Centre     Reshape  academy  25  april  2012     @JKNL  j.kremer@obgyn.umcn.nl
  2. 2. InspiraMon  
  3. 3. InspiraMon  1:    Pa$ents   •  Gynaecologist  (1996)   •  ReproducMve  Medicine   •  IVF  team  Nijmegen   •  1  of  6  couples   •  16.000  IVF  treatments   •  1  of  38  children  
  4. 4. InspiraMon  2:    Clay  Shirky  •  The  power  of  organizing  without   organizaMons  •  Spectacular  developments  of  internet   2.0    and  its  social  consequences    •  Web  2.0  is  a  pla]orm  of  virtual   communicaMon  &  parMcipaMon    •  Consumers  are  the  new  producers  in   agile  and  fluent  networks  
  5. 5. InspiraMon  3:    Prince  •  The  ArMst  Formerly  Known  As   Prince  (TAFKAP)  •  PaMent  comes  from  the  LaMn  word   Pa$en$a:  paMence,  suffering,  waiMng  •  The  Individual  Formerly  Known  As   PaMent  (TIFKAP)  
  6. 6. Heyendael  Castle,  2001  
  7. 7. What  do  you  think  of  our  IVF  care?  
  8. 8. Patientcentredness
  9. 9. From  paradigm  shic  to  dream  
  10. 10. PaMent-­‐centredness   •  Being  respec]ul  of  and  responsive  to    individual  paMent   preferences,  needs  and  values;  and  ensuring  that  paMent   values  guide  all  clinical  decisions.  (Ins$tute  of  Medicine,  2001)   •  One  of  the  dimensions  of  Quality  of  Care:   1.  Safety   4.  Timeliness   2.  Effec$veness   5.  Equity  of  access   3.  Efficiency   6.  Pa$ent  centeredness  
  11. 11. PaMent-­‐centredness  research  in  Nijmegen   •  Stress  and  IVF          Chris  Verhaak,  Jesper  Smeenk   •  Online  prevenMon  of  stress/anxiety  Angelique  van  Dongen   •  Shared  decision  making  in  SET/DET  Arno  van  Peperstraten   •  Guideline  implementaMon      Selma  Mourad   •  Guideline  development      Elvira  den  Breejen   •  PaMent  educaMon  via  wiki’s      Tom  van  de  Belt   •  PaMent-­‐centredness  quesMonnaire  NL  Inge  van  Empel   •  PaMent-­‐centredness  quesMonnaire  EU  Eline  Dancet   •  PaMent-­‐centredness  improvement  Dana  Huppelschoten   •  Virtual  IVF  Clinic        Wouter  Tuil   •  Health  CommuniMes        Annemijn  Aarts  
  12. 12. Virtual  IVF  Clinic  1.  General  informaMon  1.0   interviews,  educaMon  leaflets,  PDA      2.  Personal  Health  Record  (PHR)   test  results,  pictures,  lelers,  reports    3.  CommunicaMon   chat  and  forum  (P2D  &  P2P)  
  13. 13. EvaluaMon  Virtual  IVF  Clinic   •  9  years  successful   •  >  4000  paMents  online,     •  >  100.000  forum  items   •  PaMents  are  the  motor  of  this  innovaMon   •  More  trust,  less  complaints,  beler  culture   •  Less  consultaMons,  markeMng  benefits,  prizes    
  14. 14. Next  step:  Health  Social  Networks   •  We  have  organized  Healthcare  from   the  insMtuMon  of  the  provider   •  We  should  organize  Healthcare  from   the  network  of  the  paMent   •  MijnZorgNet  (MyCareNet):  the  social   network  of  Dutch  healthcare  
  15. 15. Connect  paMents  and  professionals   1.  Private  health  communiMes   CommuniMes  of  a  professional  team  with  their   paMents  (members-­‐only)       2.  Personal  health  communiMes   Community  of  the  paMent  (personal  informaMon   and  communicaMon  about  this  informaMon)    
  16. 16. Modern  medicine   The  new  doctor:   •  from  god  to  guide   •  from  host  to  guest  (Don  Berwick)     The  new  paMent:   •  from  passive  object  to  acMve  subject   •  from  paMent  to  person  (TIFKAP)   The Individual Formerly Known As Patient   The  new  healthcare  organizaMon:   •  from  beler/expensive,  to  simple/affordable   •  from  physical  centre  to  virtual  community  
  17. 17. E-­‐health  is  empowered  health   Prof  dr  Jan  A.M.  Kremer,  Radboud  University  Nijmegen  Medical  Centre     Reshape  academy  25  april  2012     @JKNL  j.kremer@obgyn.umcn.nl

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