Brown trout beware

380 views
318 views

Published on

Published in: Health & Medicine
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
380
On SlideShare
0
From Embeds
0
Number of Embeds
0
Actions
Shares
0
Downloads
1
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

Brown trout beware

  1. 1. fightingskin disease Issue 37 February 2007 Brown trout beware – you are about to be targeted! I n March 2007 we see the end of an era as Peter Lapsley retires as the Skin Care Campaign Chief Executive after 10 busy years at the helm. In his dedication to the cause of people with skin disease he has taken a variety of different avenues to raise awareness of their needs and improve services for their care. This has included travelling up and down the country to support local groups when they experience problems with their dermatological service provision as well as contributing to education and teaching sessions for patients, carers and clinicians and presenting the skin disease patients’ perspective at UK and European dermatology conferences. Peter’s commitment to ensuring that dermatology patients have access to high quality care has been epitomised by his determination to support improved dermatology training of health care professionals. In this area he was instrumental in collaborating with the British Dermatological Nursing Group and the School of Nursing, University of Southampton, and in securing the initial funding to develop the dermatology course for primary care nurses that is now assured by Skills for Health. He has also been the patient representative working with the British Association of Dermatologists, Royal College of General Practitioners and Skills for Health to develop the dermatology curriculum for General Practitioners. Peter’s determination to ensure that the views of dermatology patients are heard, and contribute to health care strategy, has involved him in representing them in the Action on Dermatology programmes and subsequently on the Dermatology Workforce Group, as vice-chairman, as well as its competence framework sub-group. Additionally he is the patient representative on the Department of Health Care Closer to Home dermatology sub-group. As a firm supporter of patients being empowered to self-manage their skin condition he has worked actively with the PRODIGY team, pharmacists, dermatology nurses, primary care nurses and General Practitioners to promote necessary service provision and raise awareness of the dermatology patient pathway developed by the Dermatology Workforce Group. In fact the Primary Care Dermatology Society admitted him in 2006 as their only lay honorary member in recognition of his years of support, sharing of the same ideals of better patient care and his efforts that have led to a wider awareness of dermatology patients’ problems. Through his work with all the SCC team Peter feels that what we have developed is a unique model in the world of medicine, with an organisation run by patients for patients working in close partnership with clinicians, industry and the government for the improvement of services. This achievement is something of which Peter and all of us in SCC can be proud. Peter we wish you well as you continue with your writing interests as patient editor for the British Medical Journal and hope that now you can spend more time fishing for brown trout. Lynette Stone CBE Skin Care Campaign Chairman in this issue.. Page 2 Skin Care Campaign update: • Plus ca change Page 3 • Skin Care Cymru Page 4 The All Party Parliamentary Group on Skin: • Quarterly activity update • Summary of meeting with the Rt Hon Rosie Winterton MP Page 6 • Walk for Skin 2007 Page 7 Patient group focus: • Introducing the Birthmark Support Group Page 8 • The importance of providing a skin camouflage service Page 10 • Dermatology courses at University of Hertfordshire Page 11 News round up: • Vulval Pain Society workshops • SKIN shattered shelters II • Successful gene therapy trial gives hope to thousands in UK affected by genetic skin blistering condition • Ichthyosis Support Group celebrates 10th anniversary • Vulval Health Awareness month • Raynaud's Awareness month Page 15 Forthcoming Events
  2. 2. 2 campaignnews Skin Care Campaign update Peter Lapsley, Chief Executive, Skin Care Campaign 3 campaignnews For those who may not have seen it when it was circulated early in January, the Chairman wrote to all participants in the SCC as follows: Dear Colleagues As you all are aware Peter Lapsley will be retiring at the end of March 2007 after 10 years as Chief Executive of the Skin Care Campaign. Through his work with all the SCC team Peter feels that what we have developed is a unique model in the world of medicine, with an organisation run by patients for patients working in close partnership with clinicians, industry and the government for the improvement of services. This achievement is something of which Peter and all of us in SCC can be proud. I am pleased to announce that his successor, Andrew Langford, will be joining us as Chief Executive on 1 March 2007 to allow time for a handover from Peter. Andrew has 25 years’ experience in the statutory and voluntary healthcare sectors. After qualifying and working as a Registered Nurse he went on to read modern history at Oxford (BA Hons) and Huddersfield (MA). He has held various posts as a manager, consultant and executive director primarily in the health and public sectors. These include: • Management of the world’s first hospice specifically for people with AIDS Dementia/HIV Related Brain Impairment and developing specialist HRBI services in UK, USA, Canada, Australia, India, Thailand and France • Development of a national Aboriginal peer education programme for the Australian Aboriginal Commission • Researching, analysing and writing the pan-London Strategic Framework for Palliative Care He has previously been Chairman of OXAIDS and The Childhood Eye Cancer Trust and is now Chair of Witness, a charity that supports and advocates for people who have been abused by health or care workers. Andrew is married with a four year old daughter, Lillie, and with family members who have skin disease he has personal knowledge of the impact of skin disease on people’s lives. I am sure you will be pleased to welcome him as a new member of the SCC team. Best wishes Lynette Stone CBE Chairman Plus ca change… B y the time the May edition of SCC Campaign News is published, the Skin Care Campaign will be under new management. I shall hand over the baton with mixed emotions. The ten years I have spent running the Campaign have been stimulating, satisfying, fun and frustrating. The stimulation has come from the huge amount of very worthwhile work the SCC team has undertaken. The fun has come from working with so very many kind and supportive people, to all of whom I offer my warmest thanks. The satisfaction has come from the development of an unusually collaborative campaigning model, run by patients with the active involvement of clinicians, the industry and the government. The frustration has been caused chiefly by the extraordinarily slow pace of real change within the NHS and by the sense that one has so often been wading through treacle. The SCC has had considerable success in addressing this issue, but I remain astonished by the simplistic approach so many people take to the specialty. It translates into a range of difficulties for patients, including especially reluctance by the Department to provide proper channels of communication for dermatology; lack of Quality and Outcome Frameworks in the GP contract; undermining of secondary care services; and unnecessary and improper restrictions on treatment availability. There will long be a need for the SCC, working closely with the All Party Parliamentary Group on Skin, to spread the message that skin diseases and dermatology really do matter. Few if any of the problems facing the specialty will be easy to solve. But, with the new skills and talents Andrew Langford is bringing to the SCC, and with the able support of an excellent SCC Board, I am certain that they will be tackled energetically and effectively. I wish Andrew and the SCC the very best of good fortune. Peter Lapsley Skin Care Cymru an update by Paul Thomas S kin Care Cymru has been launched by a group of patients with the aim of being a strong voice for dermatology patients in Wales. Although we have been greatly helped by our counterparts in London and Edinburgh, we will be an independent and distinctively Welsh organisation. We aim to be an effective campaigner on all matters dermatological within the Principality. Following the devolution of health matters from Westminster to the Welsh Assembly in Cardiff Bay, we will take all relevant skin related issues to the Welsh Assembly Government and will seek to ensure that dermatology is no longer the poor relation of the NHS. In addition, we will campaign on all dermatological concerns affecting local Health Boards, seek to educate the general public about skin disease and its affects, both physical and psychological, and strive to raise the profile of skin care. In an increasingly competitive environment for NHS funds, it is vital that the Welsh Assembly is constantly reminded of the need to cater for a group of people who are significant, both in number and in terms of impact on their quality of life, but who are all too often pushed to the back of the queue when it comes to spending on research, treatment and consideration. We aim to address this by lobbying hard on behalf of skin care patients; the ideal would be to create a sub group of Assembly Members to act as a point of contact within the Assembly. Interest has already been expressed by influential individuals on a cross party basis and one of our immediate challenges is to take full advantage of the opportunities available. As there are very few patient organisations in the dermatology field that are specifically Welsh, we hope to act as a focal point for sufferers of all skin related diseases and, where appropriate, direct those with specific complaints to the relevant specialist support group. Close co-operation with such groups will be, we believe, to our mutual benefit, and contact has already been made with several of them. We see ourselves as an umbrella organisation for skin care patients in Wales; working with other organisations whose role will be separate and apart from ours. Leaflets and electronic communications inviting membership will be sent out for distribution to dermatology departments, GP surgeries and pharmacies in the near future. There will be no membership fee, in the expectation that we will be able to create a large “constituency” in this way. It is our intention to become incorporated early in the New Year. The directors will be drawn from the enthusiastic and widely experienced Steering Committee. Welcome support has already been forthcoming from many different directions, not least of which has been the encouragement and backing we have received from the medical profession in Wales, who recognise the need for a strong input from patients into the many problems which affect skin care here. By way of example, we have been campaigning on the issue of specially designated dermatology beds at the University Hospital of Wales in Cardiff. In conjunction with previous Chief Executives of that Health Board, a specialist unit was established with its own beds. The huge advantage of this arrangement was that those who required inpatient treatment (which is particularly messy and sensitive for many sufferers) could do so without the embarrassment of being in a general ward where all too often other patients are discomforted or even hostile due to ignorance of the nature of such conditions. The present regime however has decided to end this arrangement in order to save £60,000. The financial saving is, in the scale of things, paltry, but the impact on morale and effectiveness of treatment of often stress related conditions will be considerable. Another pressing issue is the lack of dermatology consultants across a large swathe of West and Mid Wales. For all the SCC’s successes – and there is a long list of them – there is much more work to be done. It is not for me to say how that work should be prioritised or approached; that is for the SCC Board and the new chief executive to decide. But some of the issues are immediate and inescapable. In particular, I believe we should remain very concerned about the impact of referral management schemes (RMS) on dermatology services. Whatever those introducing them may claim, they are driven solely by financial pressure. No doubt the government will find some means of restoring financial balance to NHS Trusts by the time the next general election looms. In the meantime, though, there is a real risk that RMS will do lasting damage to patients’ interests and to the specialist expertise that is so essential to a coherent, integrated, high quality dermatology service. It is important also to remain aware of the lack of understanding of the complexity of dermatology shown by Ministers, Department of Health officials, NHS managers and non-dermatological clinicians.
  3. 3. BAD and APPG will help to drive ahead the common agenda to achieve better and more accessible dermatology services for patients around the country. Summary of meeting with the Rt Hon Rosie Winterton MP A meeting took place with the Minister for Health Services, the Rt Hon Rosie Winterton MP, on the 4th December. This was the first opportunity for the Minister to respond formally to the findings of the Adequacy and Equity report, published by the All Party Parliamentary Group on Skin in March, since she assumed responsibility for dermatology services earlier in the year. The meeting was attended by Peter Lapsley, Chief Executive of the Skin Care Campaign and Dr Susan Burge, President of the British Association of Dermatologists. The All Party Group was represented by the Chairman, the Rt Hon Bruce George MP, and the administrative secretary, Katherine Clifford. The Minister was accompanied by her Parliamentary Private Secretary, Jim Devine MP, and an official from the Department. Prior to the meeting the SCC, BAD and APPGS agreed to highlight four key points with the Minister: the issue of GP training; the appointment of a clinical lead for dermatology in the DH; the implementation of referral management schemes by PCTs across the country; and the inclusion of chronic skin disease in the QOF review. The Minister began her response by welcoming the work of the three organisations and recognising the importance of raising awareness of issues such as dermatology. However, she then went on to speak at length about the difficulties in securing a separate National Service Framework (NSF) for Dermatology, and made it clear that she felt that dermatology services should be looked at as a component of long term conditions management, specifically by responding through pathways of care and organising services to apply across the board. She recognised the importance of early diagnosis and proper referral patterns, and also noted the work that the Department had already undertaken on the issue of dermatology through the Dermatology Workforce Group and the Care Closer to Home Workforce Group. Peter Lapsley explained that those present were not looking to achieve an NSF for dermatology, but that the work produced by the Dermatology Workforce Group effectively amounted to an NSF. Rosie Winterton said that steps had clearly been taken to move forward with services in the wider context of care pathways. Moving on to the specific areas of concern, Sue Burge highlighted the issue of GP training and, in particular, the fact that many GPs were not properly trained in dermatology. In some circumstances, patients believed that they were seeing a consultant dermatologist when in 4 5 campaignnewscampaignnews We hope to help address this problem in the near future. The provision of dedicated (in both senses) dermatology nurses and primary care providers is another area to which we will turn our attention. The question of biologic treatments is one which will inevitably be at the forefront of our minds in the coming years; these are very effective but expensive. There will no doubt be battles ahead to secure the maximum use of these remedies without compromising dermatological services in other respects. Our immediate goals are to appoint a suitably dynamic administrator/development officer to work around 10 hours a week, and to launch formally at the Assembly Building in Cardiff next summer. Post advertisements, we hope, will go out early in the New Year with a view to interviews and an appointment around March 2007. We think we have the potential to make a real impact in this field in Wales; the goodwill and enthusiasm we have already engendered and received is hugely encouraging. If the momentum that the Steering Committee has built up can be maintained, there is no doubt that we will be a very positive force on behalf of skin disease sufferers in Wales. Paul Thomas QC Chair, Skin Care Cymru The All Party Parliamentary Group on Skin (APPGS) Quarterly activity update A t the end of November, representatives from the Skin Care Campaign (SCC), the British Association of Dermatologists (BAD) and the All Party Parliamentary Group (APPG) came together for a day- long meeting. The purpose of this meeting was to identify the key issues affecting the provision of dermatology services throughout the country and to identify the areas in which the three organisations should focus their future collaborative activity. Those attending were delighted to be joined by Nick Evans, Director of Service Redesign at West Hertfordshire Hospitals NHS Trust, and Susan Maguire, Professional Officer at the British Dermatological Nursing Group. The SCC, BAD and APPG have clearly achieved a lot through collaborative action in the past. It was therefore felt that it was important to discuss what joint action needs to be taken in the future to tackle the obstacles that are preventing equitable and sustainable dermatology services from being achieved. Nick Evans was kind enough to give his unique perspective on dermatology services, having worked on the issue at both central and local levels. Nick was formerly the director of the Action on Dermatology programme at the Department of Health, before moving to his current post at West Hertfordshire Hospitals NHS Trust. He provided an insight into the problems facing Primary Care Trusts across the country, and the likely impacts that these would have on dermatology services. This assessment provided a useful starting point on which to base the discussions for the remainder of the meeting. Following Nick’s presentation, the group came together to discuss in more detail some of the issues raised. Five key areas were identified as being central to the effective provision of dermatology services, and on which future activity should be focused. These are: the inclusion of a dermatological component in the Quality and Outcomes Framework (QOF) Review of the GP Contract; the appointment of a clinical lead for dermatology within the Department of Health; utilising auditing tools, such as the annual health-check by the Healthcare Commission; achieving a coherent service design; and holding back the erosion of teaching and training pathways. In addition, a number of ‘sub-points’ were identified, which are individual issues of vital importance that all feed into the priority areas outlined above. These are: reviewing the role of patient groups in order to gain an accurate picture of service provision at ground-level; tackling the implementation by PCTs of referral management schemes, or ‘Tier 2 Clinical and Assessment Treatment Services’; assessing treatment availability and postcode prescribing; and ensuring that the SCC, BAD and APPG are seen to be working together in a unified campaign. Now that these issues have been agreed, the next step is to put the various campaigns into action. A small group comprising representatives of the organisations present at the meeting will meet shortly to plan the tactical response to addressing these concerns, although some action has already been taken by highlighting a number of the issues with the Minister in charge of dermatology, the Rt Hon Rosie Winterton MP. The All Party Group believes that this meeting was extremely useful in helping to focus its activities for the coming year and that this renewed focus from the SCC, fact they were seeing a GPwSI, who had been appointed by their PCT without necessarily having any specialist knowledge or training in dermatology. The Royal College of General Practitioners had devised an accreditation document for the appointment of GPwSIs, but assurance was needed that it would be put into action across the country when such appointments were made. Peter highlighted that around 70% of GPwSIs were not properly accredited. The Minister recognised the accreditation document drawn up by the RCGP and said that there were various mechanisms in place to ensure that it was adhered to, including the Healthcare Commission with whom the Department has regular dialogue. She also made reference to a DH consultation, launched last week, on the future regulation of health and adult social care in England. She added that patient organisations had an important role to play in finding out what was going on at ground level, and in helping to strengthen the local approach. She said that the DH was supportive of action to empower patients. On the appointment of a clinical lead for dermatology Sue explained that the Department had failed to take action on this, despite more than a year of discussions with the DCMO’s office. Moreover, she explained that at ground level there was potential breakdown in communication between primary and secondary care dermatology services and a voice within the DH was needed to bridge that divide. Peter explained that in a previous meeting with an official from the DH he had been told that the Department was unable to identify an individual to appoint to the post. Peter suggested that the BAD was asked to nominate someone for the post. Rosie Winterton questioned whether this would be a ‘czar’ position and said that the DH was trying not to create new systems at present, making clear that she felt that appointing such a figure might set a precedent for other health services to seek similar appointments. She suggested it might be worth trying to devise some sort of effective consultative process within the Department by identifying the leads of the various work strands that cut across dermatology services. Sue argued that this would not necessarily be a workable solution and highlighted the benefits of having just one person to act as the lynchpin between the Department, the service providers and patients. Peter then turned to the issue of referral management systems, explaining that these were damaging dermatology treatment provision by introducing an additional step in the patient pathway, reducing or removing patient choice and potentially leading to secondary care dermatology services becoming financially unviable. Furthermore, the issue was fuelling the escalating tensions between primary and secondary care services. The Minister pointed out that it was not necessary to refer all patients to secondary care. Peter acknowledged this point and agreed that in some circumstances unnecessary referrals were taking place, but that was often attributable to the lack of GP
  4. 4. Who We Are The Birthmark Support Group is a registered charity supporting those with birthmarks, their families and friends. It was established in December 1998 with the encouragement and support of the Birthmark Unit of Great Ormond Street Hospital for Sick Children. There are separate sections for adults (Face It Together) and teenagers (TeenTalk) with birthmarks. The Group is run entirely by a volunteer elected Committee and in April 2005, Esther Ranzen, CBE, agreed to take on the role of Patron. The current membership is in excess of 600. Our Aims • To provide support and information to anyone who has a birthmark and to support not only the person with the birthmark, but the whole family. 6 7 campaignnewscampaignnews training, which meant that doctors were unable to make a definitive diagnosis and therefore referred the patient to a secondary care specialist. The Minister said that the DH would undertake discussions with the Royal College on the accreditation issue. Sue highlighted the consultant-led triage system that was working well in Oxford, to which the Minister appeared fairly receptive. Sue raised concerns about the impact of the changes in the delivery of care on training (junior doctors) and teaching (medical students). The Royal Colleges share these concerns. Teaching and training rely on patients and if fewer patients are coming to hospitals, teaching and training must take place in intermediate or primary care. PCTs must ensure that services support training and teaching and the tariff should cover the costs incurred by these activities. The final point raised with the Minister was on the importance of including the management of chronic skin disease in the QOF review. Sue suggested atopic eczema in children as one possible consideration. The Minister asked whether an Expert Patients Programme would be a workable alternative. Peter explained that consideration had been given to the Expert Patients Programme by the Dermatology Workforce Group, but that it was not considered to be a workable solution. The Minister also asked whether it might be possible to take action through children’s centres. Peter explained that he had recently visited Denmark to examine their system for school- centred care, and that there may be some lessons to take from their experiences. For example, it may be possible to hold information evenings for parents and children to demonstrate how to apply topical treatments and manage conditions. This would require a specialist nurse or doctor to provide the demonstrations. The Minister acknowledged the ‘shopping list’ of issues raised at the meeting. She said that she had given her initial reactions, but that the she would come back with more detailed responses to the specific issues raised. The APPGS will, of course, provide further updates on the Minister’s responses as soon as these have been received. For further information about the All Party Group, or to obtain copies of the Group’s reports, please contact the Secretariat on 020 7368 3103. Put your best foot forward this May and help raise thousands of pounds for research into skin disease! 2 006 saw the first ever Walk for Skin, a series of eleven sponsored walks held around the UK organised by the British Skin Foundation. Over 3,000 people took part, including celebrities Sir Jimmy Savile and Ricky Tomlinson, raising a total of £160,000 for the British Skin Foundation and fourteen skin disease charities and support groups. This year’s event looks set to be even bigger and better with seventeen charities uniting in a bid to raise awareness of • Regents Park, London – 20 May • Lickey Hills Country Park, Birmingham – 20 May Sue Fretton and her seven-year-old daughter Georgia took part in the 2006 Walk for Skin. “Georgia had suffered with psoriasis for the past 15 months and was receiving UV light treatment. The two Specialist Dermatology Nurses who were looking after her told us about the walk and Georgia wanted to take part. We joined them on the day, along with some of their other patients, and it was lovely. Georgia raised a whopping £454 all on her own, 50% of which went to the Psoriasis Association.” Nina Goad of the British Skin Foundation, organisers of the event, hopes to see an even bigger turnout this year: “By joining the Walk for Skin and showing a united front in the fight against skin disease we can ease the suffering of the eight million people in the UK whose lives it affects. “Each and every walker makes a difference so pester friends, family and colleagues to not only sponsor you but also to take part on the day so we can raise even more money for vital skin research.” Joining the Walk for Skin couldn’t be easier – simply choose a venue and register free of charge, either online at www.walkforskin.org.uk or by phone on 0207 391 6341, from February 8th 2007. To register before February, call or email bsf@bad.org.uk. Once registered, entrants will receive a sponsor form, walkers’ pack and information about their chosen venue. Patient group focus Introducing the Birthmark Support Group the different conditions as well as vital funds for research and support services. Museums, country parks and stately homes are all playing host to this year’s events which will take place between May 13th and May 20th. All of the walks are between three and five miles long and none should take more than two hours to complete. The walks are designed with families in mind although not all of the walks are suitable for pushchairs. This year’s venues include: • Beamish, the North of England Open Air Museum, near Newcastle – 13 May • Wollaton Hall & Deer Park, Nottingham – 13 May • Bramham Park, near Leeds – 13 May • University of East Anglia, Norwich – 13 May • Belfast Castle, Belfast – 13 May • Beaulieu Motor Museum, near Southampton – 20 May • Cosmeston Lakes & County Park, near Cardiff – 20 May • Holyrood Park, Edinburgh – 20 May • Cheddar Gorge, Somerset – 20 May • Tatton Park, near Manchester – 20 May • Windsor Great Park, Thames Valley – 20 May • To ensure a better understanding amongst the medical profession of the types of birthmarks, possible complications and treatments, taking into account both the physical and psychological effects. • To aid research into the cause of birthmarks (so far unknown) and possible cures. • To raise general awareness and acceptance. • To ease the path through schools (nursery, primary and secondary) by educating both teachers and pupils and, where necessary, supporting the young people themselves Issues Faced • Lack of awareness/knowledge of birthmarks amongst the medical profession resulting in misinformation and, in some cases, serious complications (e.g. blindness) through wrong treatment being given. • Psychological impact on individuals with birthmarks and their families. • Lack of awareness amongst the general public – e.g. how to react/respond to someone with a visible difference. This often results in ill-informed comments (e.g. the parent asked to remove a child from nursery because his birthmark was upsetting other children) and bullying. • Little or no research into causes and treatment. • Profile of birthmarks in an image conscious society. • Invasive treatment of birthmarks abroad versus more conservative and reflective response in the UK (unless causing medical problems). • Lack of funding
  5. 5. campaignnews 8 9 campaignnews Key Activities to Support our Aims Telephone Helpline The helpline receives on average 15 – 20 calls per month. These calls are usually from parents of newborn babies who are concerned at the medical advice they have been given and want to speak to someone who has been in a similar situation to themselves. It is often found that the wrong medical diagnosis has been given and, although we do not offer any medical advice ourselves, we do refer on to Great Ormond Street Hospital as necessary. info@ birthmarksupportgroup.org.uk This email address is permanently manned and is transferable to ensure continuity of cover. The average number of e-mails received is between 10 –15 per month. Newsletter Our objective is to publish three newsletters per year – these are available either on-line or by post – and we encourage members to share their experiences within the newsletters. There is a separate newsletter produced for FIT (Face It Together) and TeenTalk. Website: www.birthmarksupportgroup.org.uk This contains up to date information about birthmarks and the Group’s activities. On average there are 32 visits per day. Information Leaflets Are available in hard copy or on the website. Fun Days In 2006 we hosted four Fun Days for members and their families at venues across the UK. There is no cost to attend and the emphasis is about meeting others in a similar situation and sharing information. Medical staff from the Birthmark Unit at GOSH and other Hospitals also attend these days. FIT (Face It Together) Adult Group FIT is run by adults with birthmarks for adults with birthmarks. Contact is usually by email (faceittogether@birthmarksupportgroup.org.uk) and through social gatherings. TeenTalk (for Teenagers) This age is a particularly sensitive time for any teenager let alone one with a birthmark. It is a time of great change: schools, friends, social activities. The group is aimed at those within the age range 11 – 21 and contact is through teentalk@birthmarksupportgroup.org.uk What Next for the Birthmark Support Group? Alongside our core objective of providing support to those with birthmarks and their families we have two major projects currently underway. 1. To further our aims of raising the awareness of birthmarks, their treatment and the potential for associated clinical and psychological problems, we are currently producing a DVD. This will be distributed to all GPs, paediatricians and secondary schools within the UK and it is hoped that this major project will be completed during the course of 2007. 2. There is very little coordinated research being undertaken worldwide into the causes and treatment of birthmarks and the BSG has been asked to lead an appeal to establish a National Centre for Birthmark Research at the Institute of Child Health. The feasibility of raising £1m for the initial funding of this project is currently under consideration. For further information BM The Birthmark Support Group London WC1N 3XX T: 0845 045 4700 The importance of providing a skin camouflage service By Elizabeth Allen of the British Association of Skin Camouflage The British Association of Skin Camouflage was formed in 1985 with four main objectives. These are to: Benefit people seeking help by providing a network of highly trained skin camouflage practitioners Actively promote a positive change towards those who have an altered image Support and train skin camouflage practitioners to the highest of standards Continue to provide up to date information on products and application techniques through our magazine, The Cover BASC is acknowledged as the leading training provider for medical professionals, make-up artists, therapists and beauty therapy tutors equipping them with the skills necessary to undertake clinical, media and salon practice. Training Initiatives, spanning four days, are held periodically and have a minimum of 33 hours CPD accreditation. The BASC Diploma is accepted for indemnity purposes by medical and industrial agencies. The training adopts a holistic approach and includes tutorials and practical workshop time. Approximately 150 sheets of hand out material and the BASC Product Information Manual are also issued to each trainee. Expert speakers cover the following subject areas: • the psychological aspects of living with scar tissue or a dermatosis • understanding skin colour and the colours in dermatosis and scarring • understanding skin, dermatosis and scars • how camouflage products work • mixing & matching the products • various methods of application • how to maintain the camouflage during wear • how to remove camouflage • how to obtain products available (MIMS & Non-MIMS) • empowering the patient • prosthesis & postiche management • decorative cosmetics applied over skin camouflage or worn as a distraction • setting up and promoting your camouflage service • understanding toiletries and how they interact with skin camouflage • appreciation of laser & IPL technology • understanding plastic surgery and dermatology terminology Each trainee receives a comprehensive Camouflage Working Kit (approximate rrp £225.00) which includes items from Covermark, Dermacolor, Keromask and Veil. Attendees also have the opportunity to work with other brands such as Jane Iredale. For further information on BASC and training opportunities please contact: Mary Thorp, BASC Secretariat: Telephone: 01625 871 129 Email: basc9@hotmail.com Post: P O Box 202, Macclesfield SK11 6FP Website: www.skin-camouflage.net The Association’s mission is to alleviate the physical, psychological and social effects that an ‘altered image’ can have on people’s lives by the simple application of specialist skin products. Although these cannot alter the texture of the skin, the immediate visual effect helps the patient to face the world with a new found confidence. Such an outcome can do much to improve general health and assist in a return to normal social activities and employment. Scarring, unwanted tattoos and non-infectious skin conditions (dermatoses) are the most common reasons for needing skin camouflage and can be broadly grouped into being: • Hypopigmented (when there is a loss of skin colour) • Hyperpigmented (when there are darker patches of skin) • Erythematic (when the skin becomes reddened) Those seeking help include men, women and children and the psychological benefit of using skin camouflage cannot be over-emphasised. Through this simple and cost-effective treatment confidence can be restored and self esteem raised. However, many people suffer in silence. Patients refrain from consulting their GP believing their condition will be dismissed as ‘cosmetic’ rather than ‘medical’ and that they will be branded ‘vain’. In fact, studies show that anxiety levels are higher in those with skin abnormalities and research has confirmed that up to a third of patients report they have suffered from “psychological distress” including: • unwarranted stares and comments • rejection and isolation • intrusive and inappropriate questioning • name-calling and verbal abuse Anyone can take advantage of the skin matching service provided by BASC trained professionals within the NHS and private practice. The role of the camouflage technician is to take the patient through a “skin match” process to identify the correct colour and product and then to demonstrate the skill of successful application, so that the patient gains maximum benefit from their skin camouflage. All products are designed to blend in with the surrounding skin colour, are water-resistant and have a sun protection factor. Skin camouflage is thinly applied using quick and simple techniques and can remain in place for 8-18 hours without the need to retouch. Most products used by BASC practitioners are available through the NHS and can also be prescribed at a doctor’s discretion. Alternatively the products can be ordered at local pharmacies or purchased direct from nominated distributors.
  6. 6. I find the days very insightful and the way I chair the day (with Fabia Brackenbury from the National Lichen Sclerosus Support Group) bears no relation to how I see patients and is on a much more personal level. Much of the day is spent listening and usually advising the women on treatments they should not use. I don’t necessarily have all the answers, but try to give common sense advice. For example, if a woman comes and says she has vulvodynia then acupuncture does not seem unreasonable. If someone who has vulval symptoms has not been diagnosed then she needs to see a doctor. If a couple are having problems with intercourse then advice on lubricants, dilators and sexual practice is discussed etc. Chairing the day is important so as to give a balanced view: for instance the small cancer risk in women with LS will not apply to women with vulvodynia. Also I stress the importance of not self-treating. All who have helped with the days have been terrific and we’ve had a fantastic response from the attendees. Workshop dates for 2007 are: Saturday 31st March 2007 - Glasgow Saturday 2nd June 2007 - Truro Saturday 1st September 2007 - Belfast Saturday 27th October 2007 - Nottingham For further information on the Vulval Pain Society and its workshops visit www.vulvalpainsociety.org SKIN shattered shelters II Digital prints and poetry, film and installations, banners and assemblages, these are a few of my favourite things! They also formed the basis for a unique multi-media exhibition 10 11 campaignnewscampaignnews Dermatology courses at University of Hertfordshire A n MSc Dermatology Skills and Treatment was developed a year ago at the University of Hertfordshire in response to national initiatives to shift dermatology from secondary to primary care. The programme and its individual modules are suitable for Practitioners with a Special interest in dermatology (PwSI), GPs, Nurse Specialists and Nurse Practitioners. The courses have been designed to be of interest to GP Commissioning groups and PCTs who wish to establish dermatology teams in practices. Recruitment has been robust particularly for the Skin Surgery Skills module which has been designed to develop and consolidate technical skills in performing minor skin surgery procedures. This type of academic, competency based course is likely to become increasingly popular in light of imminent recommendations by the Department of Heath about the need to raise training standards for Practitioners with a Special Interest in Dermatology prior to undertaking minor skin surgery. The MSc Dermatology Skills & Practice is part time over 2-5 years. Specialist modules typically require 5 days attendance at University as well as private study to complete the coursework. Shorter academic awards such as Postgraduate Diploma or Postgraduate Certificate are also available. However, modules can be studied on a stand-alone basis to suit practitioners who want to quickly update their dermatology skills. Some students have already taken up the option of transferring credits into this programme from dermatology courses previously studied so that they can ‘top up’ existing Postgraduate Diplomas/Certificates to an MSc and avoid repeating learning. Students who have completed the Skin Surgery Skills and Recognition and Management of Skin Lesions have evaluated these courses extremely positively and have particularly valued the mix of theoretical and practical sessions, the high quality of speakers and the level of tutorial support and access to electronic resources available at the University. The Skin Surgery Skills course commenced in April 2006. Student groups are inter-professional and offer the opportunity for doctors and specialist nurses to learn together. This was especially valued by practitioners completing the first course who felt that they learnt a lot about different models of care and different professional perspectives. Initial training is performed on simulated tissue models and provides a ‘safe’ environment to practice surgical skills such as infiltration of local anaesthetic, surgical procedures e.g. curettage, cautery, shave / ellipse excision, punch biopsy and suturing. Proficiency is developed during a period of supervised clinical practice & competency assessed using Direct Observational Procedure (DOPS) recommended by the British Association of Dermatologists. Students found this a nerve racking but extremely valuable experience. Recognition and Diagnosis of Skin Lesions started last October and comprised an equal mix of GP’s and Dermatology Nurse Specialists who are currently studying the epidemiology, aetiology and histopathology of commonly occurring benign & malignant skin lesions. These and sessions on diagnostic skills, practical treatment options, skin lesion care pathways medico - legal and other professional issues have proved very popular and rated as highly relevant for clinical practice. Proficiency is developed during a period of supervised clinical practice & competency assessed using an OSCE and 360 degree assessment using a similar approach to the skin surgery course. Chronic Skin Diseases is a newly developed course running for the first time in March 2007. It will be suitable for PwSI who want to consolidate their diagnostic skills and examine the best available evidence to support treatment of acne, eczema and psoriasis. Content will focus on genetic epidemiology, pathophysiology, patient examination, management options, national guidelines and psychosocial aspects of care. A series of single clinical update days on eczema, acne and psoriasis are planned for Spring 2007 for practitioners wanting to quickly update themselves. Course intakes are usually in February & October and fees for most modules are £750 with the exception of Skin Surgery Skills which is £850 due to the additional cost of equipment required for the practical sessions. For further information contact: Madeleine Flanagan Programme Leader MSc Dermatology Skills and Treatment Room 2F426 Health Research Building Faculty of Health and Human Sciences University of Hertfordshire College Lane Hatfield AL10 9AB Mobile: 07736 660584 Email: m.flanagan@herts.ac.uk News round up Vulval Pain Society Workshops By David Nunns, Consultant Gynaecologist at Nottingham City Hospital and Director of the Vulval Pain Society S ome of you might remember the newsletters the VPS used to distribute quarterly for women with vulval pain. It was our way of providing support to women with vulval problems. In the newsletter we would give advice on good skin care, explaining what vulvodynia and vestibulodynia (formerly known as vestibulitis) meant, and on pain management, etc. The format was simple and we also reported people’s first hand experiences of these problems. However, after 12 newsletters we ran out of steam and collated all the information onto the website and into the handbook (our main source of income.) After this we wondered what women with vulval problems needed apart from a cure. We did a survey of our members and found that women wanted to meet for an informal chat and share frustrations as well as ideas on coping with their problems and also find out about treatments both medical and holistic. Our response to these findings was to launch Vulval Pain Society workshops. Since 2000 we have held 17 workshops all around the country. Our biggest workshop was in Ipswich with 60 women and their partners and our smallest in Stoke with ten women. Our last workshop was in Manchester in November 2006. After we identify a venue we upload the details on to the website and advertise the day to women from the VPS database and write to different hospital clinics in gynaecology, dermatology and GUM. The local media is contacted but articles are rarely published. The media, however, can help on occasion. In Truro, the local radio station interviewed a local doctor on the morning of the workshop and a woman hearing it at home came straight down to see us to get information on the vulval pain she had had for four years! Women of all backgrounds and ages (and some partners) come. Most have vulvodynia and lichen sclerosus but, worryingly, many have not been formally diagnosed despite being seen in clinics. The format is very informal and we usually have a guest speaker, either a medical doctor or a complementary therapist. Everything possible involving vulval problems is discussed from coping mechanisms, sexual difficulties and acceptance of the problem to medical treatments and complementary therapies. By Artist, Rhonda Fenwick
  7. 7. cells from the patches of skin were grown in the laboratory, and correct copies of the laminin gene were inserted into the skin stem cells. The corrected skin cells containing the laminin gene were then grown into sheets of skin in the laboratory, until they were of a size suitable for forming skin grafts. The patient had badly affected areas of skin on the upper front part of his legs where the skin was extremely fragile, with non-healing wounds: these were the areas selected for grafting with corrected skin. The team removed the outer epidermal layer of the patient’s skin in these areas, and then grafted corrected skin onto four patches on one leg, and five patches on the other. Each patch was about 55 square centimetres, and a total skin area of 500 square centimetres was grafted. The patient’s skin in these grafted areas had completely healed after one week and, a year later, these corrected areas of skin look normal and remain strong: they do not blister or itch even after being rubbed hard, although surrounding areas of uncorrected skin still blister even without any friction applied. Small samples of skin taken from grafted skin several months, and at a year, after transplant were examined under the microscope. This showed that the skin looked normal, and that the outer epidermis was firmly attached to the underlying dermis layer of the skin. With these initial promising results, De Luca’s team plans to continue with a systematic, stepwise replacement of other areas of this patient’s skin over the next 2 to 3 years. This study shows for the first time that genetically corrected epidermal stem cells can be used to generate a functioning, self-renewing epidermis in patients, and the successful outcome of this clinical trial paves the way for gene therapy of other types of EB. DebRA UK manages research on behalf of an international consortium of national DebRA organisations with interests in furthering research. Although DebRA UK did not fund this particular piece of research, it is currently working with Professor de Luca in the context of another EB gene therapy project, funded by the EU. For further information on DebRA UK visit www.debra.org.uk * “Correction of junctional epidermolysis bullosa by transplantation of genetically modified epidermal stem cells” Nature Medicine Advance Online Publication; 19 November 2006. Ichthyosis Support Group Celebrates 10th Anniversary In 1994 when Pamelia Catlyn’s baby boy was born with ichthyosis, she was devastated to learn that there was no support organisation for families affected by this rare skin condition. With the help of John Harper, Consultant Dermatologist at Great Ormond Street Hospital, Pamelia gathered some families together, and in March 1997 the Ichthyosis Support Group was formed. Initial membership was just 5 families, and at the start of this 10th anniversary year, the Ichthyosis Support Group has grown to over 400 members. Ichthyosis is a term used to describe continual scaling of the skin. It comes from a Greek word “ichthys” which means fish although not all affected people have fish-like scales. The inherited forms of ichthyoses are usually evident at or soon after birth and they tend to persist throughout life although some types improve slightly with age. The scaling of ichthyosis affects most if not all areas of the skin and is fairly consistent over the years. This is in contrast to other skin disorders such as eczema and psoriasis where scaling affects limited areas of the skin and changes its pattern frequently. Normal skin forms a protective barrier between the body and its surrounding environment. The skin abnormalities associated with ichthyosis disrupt this barrier, making it more difficult for affected infants to control water loss, regulate body temperature and fight infections. Infants with ichthyosis tend to become dehydrated and some develop life-threatening infections during the newborn period. Sufferers face a lifetime of what can be a disfiguring disease with associated social and psychological implications. However, within these last 10 years there have been great advances in the identification of the genes that cause some types of ichthyosis, and currently scientists are investigating therapies for the identified genes. As for the group, having achieved charity status in 2000, it continues to support its members by way of quarterly newsletters, 0845 helpline, website, regional representatives and national and regional conferences and get-togethers. The group has over this period actively promoted media coverage to help raise awareness of the condition and of the charity. This includes features in local and national newspapers and a number of appearances by member families on various television programmes. By far the biggest impact was the screening in October 2005 of the documentary ‘My Skin Could Kill Me’, which featured two member families with Harlequin Ichthyosis, and which generated a surge of calls and emails to the group. Subsequently, the group awarded its first research grant of £5,000 in 2006 to the Harlequin Ichthyosis Trust and following the group’s recommendation, the British Skin Foundation granted an additional £10,000. On the 24th March 2007 the Ichthyosis Support Group will be staging its 10th anniversary National Day at the Holiday Inn Bloomsbury, London. This event will include a family conference followed by an evening of entertainment and a celebratory dinner. For more information regarding this and other upcoming events please refer to our website www.ichthyosis.org.uk. new sponsors to help with this development. The more that is known about psoriasis and the more I can do to dispel the myths surrounding it, the better. I would like to take this opportunity to thank the Psoriasis Association, the Skin Care Campaign and Curator of the gallery, Suzanne Stenning, all of which have been hugely supportive of my work and its role in raising awareness of Psoriasis amongst the public. Rhonda Fenwick www.rhondafenwick.co.uk Successful gene therapy trial gives hope to thousands in UK affected by genetic skin blistering condition. For the first time ever, researchers have used gene therapy to correct the genetic defect and effectively ‘cure’ areas of skin in a patient with EB (Epidermolysis Bullosa). The successful trial by Italian researchers has given hope to the 5,000 children and adults in the UK who live with this devastating and sometimes fatal condition in which the skin and internal linings blister at the slightest friction. And it has given fresh inspiration to staff and volunteers of the UK charity DebRA, which supports families affected by EB. John Dart, director of DebRA, said that although the pioneering work was in the very early stages, it was a very exciting development in the fight against EB. “This is one instance when the word breakthrough is not an exaggeration. This is proof of principle that gene therapy can work in the treatment of EB and it really does give hope to many families in the UK and across the world. It is now especially important that DebRA raises the money needed to commission research so that this treatment, developed by Italian researchers, can be explored and developed.” Epidermolysis Bullosa literally means ‘blistering breakdown of skin’, and this happens because the skin lacks one type of protein that normally helps to hold the two layers together. The protein is defective because the gene which encodes it is also faulty. The Italian team, led by Professor Michele de Luca at the University of Modena, has reported in the international journal Nature Medicine* that, by introducing a corrected copy of the gene into patches of badly affected skin of an EB patient, it has been possible to ‘cure’ these patches of skin: one year after treatment, the patches remain free of blisters, infections, and any inflammation or immune response. This work is the first proof-of-principle that a gene therapy might provide a solution to this otherwise incurable disease. The gene therapy approach developed by De Luca and his team involved removing small patches of skin from the palm of the hand of the patient, a 36-year-old man with a type of EB known as JEB, or junctional EB. In JEB, the protein which is defective is called laminin. Epidermal skin stem Campaign News 12 12 Campaign News 13 13 unveiled during Psoriasis Awareness Week, which ran from the 6-12 November 2006. The exhibition was held at the University of Northampton and was sponsored by the Psoriasis Association whose Head Office can also be found in the city. This is the third exhibition in which I’ve explored issues around psoriasis, skin and difference with the aim of raising awareness of the condition and increasing its public profile. I developed psoriasis at the age of six and use the arts as a vehicle to convey my experiences, and those of other people, to show what is involved in living with and managing a skin disorder that can affect every aspect of your life. The exhibition was very well received and generated a lot of media attention including newspaper articles and an interview on BBC Radio Northampton. In trying to understand psoriasis and how it has affected my life, working as an artist gives me the opportunity of dealing with it from another angle. The artworks are an expression of this exploration and are informed by emotional and psychological responses. They are also a response to society’s preoccupation with appearance and an age where the body has never been more present. Drawing upon my interests in spirituality and mythology - in particular Greek mythology, a passion of mine since childhood - I have created artworks that are a narrative for our time in an attempt to educate more people on the impact of skin disease and, ultimately, raise awareness of psoriasis through art. Affecting 2% of the population and with no known cure, Psoriasis continues to play a major role in families across the UK which is why I continue to develop and create new artworks as a way to highlight the physical and emotional impact of the condition. I hope to exhibit in as many places around the UK as possible and am currently looking for
  8. 8. Raynaud’s Awareness Month 2007 2007 is an exciting year for the Raynaud’s & Scleroderma Association as it celebrates 25 years of caring and sharing. This is a major milestone for the national charity and many activities have been organised throughout the year to mark the achievement. The Association hopes that Raynaud’s Awareness Month in February will pave the way for a successful year ahead in terms of awareness, fundraising, research and making a difference to the lives of people with these conditions. In the run up to the awareness campaign contact has been made with journalists on national and regional newspapers, radio and television programmes and magazines to encourage them to run a feature on Raynaud’s and Scleroderma during the month. Posters have also been distributed around the country to health centres, GP surgeries, hospitals, libraries - in fact anywhere they may be seen by the general public. The overall aim of the campaign is to gain maximum publicity and to spread the word. On 7th February Ann Winterton MP will host a Parliamentary Reception on behalf of the Raynaud’s & Scleroderma Association at the House of Commons. This 10th Anniversary celebration kicks off an ambitious year for the charity, with the main goals for 2007 being to increase funding into the research of ichthyosis, and to employ a full time administrator for the Ichthyosis Support Group. Vulval Health Awareness Month March is Vulval Health Awareness Month (VHAM)! This is the message of the Vulval Health Awareness Campaign that seeks to make women aware that not everything that itches in the genital area is thrush. Often more serious skin disorders are responsible for itching and are misdiagnosed or self-treated as thrush, delaying diagnosis and prolonging discomfort. Originated in 2000 for the Millennium, the campaign’s main information tool is the vulval self-examination leaflet. It gives women information on how to perform vulval self- examination and some idea of other conditions that can affect the vulva. The leaflet is available at www.vhac.org or by post from PO Box 5830, Lyme Regis, Dorset DT7 3PT. The campaign has been well received by medical professionals. It is supported by the British Society for the Study of Vulval Disease and the National Eczema Society, to name but a few. It is currently in the process of obtaining charitable status with Fabia Brackenbury (Founder of the National Lichen Sclerosus Support Group) and Professor Allan B MacLean of the Royal Free Hospital, Hampstead (past President of BSSVD and President-Elect of the International Society for the Study of Vulvovaginal Disease) being the main trustees. Vulval Health Awareness Month 2006 was highlighted on BBC Radio 4’s Woman’s Hour when Fabia Brackenbury and David Nunns (Gynaecologist and Director of the Vulval Pain Society and Co-founder of VHAM) were interviewed. As a result of this programme many women called the National Vulval Helpline (07765 947599) and were encouraged to seek a correct diagnosis for their symptoms. One woman was subsequently diagnosed with vulval cancer. In 2006 VHAC also encouraged women from various UK vulva support groups to take part in the British Skin Foundation’s ‘Walk for Skin’. Vital funds were raised for VHAC and it is hoped that those taking part in this year’s event will again support the campaign. Fabia Brackenbury Founder NLSSG and VHAC Honorary Member British Society for the Study of Vulval Disease Campaign News 14 14 Campaign News 15 15 Speakers include Professor Dame Carol Black, a world expert in the field, and Patron Nick Ross. Anne Mawdsley MBE who founded the Association in 1982 will also say a few words. The aim of the reception is to raise awareness of Raynaud’s and Scleroderma amongst MPs and to inform them about the utilisation of services for patients, the progress made over the last 25 years (particularly with advances in treatment) and what the charity hopes to achieve in the coming 25 years. In addition, the Association will hold its 6th Scleroderma Family Weekend from the 9-11 February at the Crowne Plaza Hotel in Chester. The annual event is aimed at families of a child under the age of 18 with Scleroderma. The weekend provides an ideal opportunity for parents to learn more about the condition from the medical profession, including the best coping strategies, as well as meeting other families in the same situation. Anne Mawdsley, Chief Executive and Founder of the Association, will also be launching her new book, ‘Scleroderma: The Inside Story’ during the Awareness month. The publication gives an overview of both Raynaud’s and Scleroderma with particular emphasis on the latter. The book discusses various aspects of the conditions including symptoms and treatment and includes a section on frequently asked questions. Campaign News readers can order a copy of the book by contacting the Association direct. Raynaud’s & Scleroderma Association 112 Crewe Road, Alsager, Cheshire, ST7 2JA Tel: 01270 872776 Email: info@raynauds.org.uk Web: www.raynauds.org.uk Forthcoming Events and Meetings - 2007 Raynaud’s & Scleroderma Association Raynaud’s Awareness Month(1) February XP Support Group Owl Patrol, St Katherine’s, Parmoor(2) 9-12 February BASC Chester(3) 23-26 February Vulval Health Awareness Campaign Vulval Health Awareness Month(4) March Primary Care Dermatology Society North & Midlands Meeting, Crowne Plaza, Liverpool (5) 2 March National Eczema Society Nurse training day, Bristol(6) 20 March Ichthyosis Support Group National Day (7) 24 March National Eczema Society Nurse training day, Preston(6) 27 March Vulval Pain Society Glasgow workshop(8) 31 March National Eczema Society Nurse training day, Southampton(6) 5 April Primary Care Dermatology Society 1st European Meeting, Barcelona (5) 27-29 April BASC Chester (3) 18-21 May Vulval Pain Society Truro workshop(8) 2 June Primary Care Dermatology Society South & West Meeting/AGM, Bristol(5) 9-10 June National Eczema Society Nurse training evening, Sheffield(6) 19 June XP Support Group Owl Patrol for Teenagers, St Katharine’s, Parmoor(2) 20-22 July BASC Chester (3) 31 August-3 September Vulval Pain Society Belfast workshop(8) 1 September XP Support Group Auction of Promises, St Katherine’s, Parmoor(2) 15 September Primary Care Dermatology Society South & East Meeting, London (5) 28 September Vulval Pain Society Nottingham workshop(8) 27 October Primary Care Dermatology Society Scottish Meeting (5) 10-11 November (1-8) For further details please see back page
  9. 9. (1) For further details contact the Raynaud’s & Scleroderma Association Tel: 01270 872776 (2) For further details please contact Sandra Webb at the XP Support Group T: 01494 890981 (3) For further details please contact Mary Thorp at the BASC T: 01625 871 129 (4) For further details visit www.vhac.org (5) For further details please contact Carol Singleton at the Primary Care Dermatology Society (PCDS) T: 01923 711678 or E: carol@pcds.org.uk (6) For further details please contact The National Eczema Society (NW) T: 01925 766 877 or E: jane.eczema@virgin.net (7) For further details visit www.ichthyosis.org.uk (8) For further details visit www.vulvalpainsociety.org Skin Care Campaign Board Members Lyn Stone CBE.....................................Chairman Nigel Scott/Marian Nicholson...............Herpes Viruses Association (Nigel - Vice-Chairman) Maureen Benbow................................ Tissue Viability Society Alison Bowser/Keith Dibble..................Acne Support Group Gladys Edwards/Ray Jobling.................Psoriasis Association Caroline Walker/Kim Fligelstone...........Scleroderma Society Jane Watts/Margaret Cox..................... National Eczema Society The Skin Care Campaign gratefully acknowledges the generous support of the following companies: • Astellas Pharma Ltd • Serono UK Ltd • Beiersdorf UK Ltd • Shire Pharmaceuticals Group plc • Dermal Laboratories Ltd • Stiefel Laboratories (UK) Ltd • Galderma (UK) Ltd • TyPharm Ltd • LEO Pharma • Wyeth UK • Reckitt Benckiser (UK) Ltd • 3M Health Care Ltd • Schering-Plough Ltd The Skin Care Campaign is an umbrella organisation representing the interests of all people with skin diseases in the UK. It is a subsidiary of the National Eczema Society, Registered Charity No. 1009671. It is a Company Limited by Guarantee. Registered in England No. 4181338. Registered Office: Hill House, Highgate Hill, London N19 5NA. © Skin Care Campaign 2007 ISSN 1747-0315www.skincarecampaign.org forthcomingevents Copy call The deadline for submissions to the May issue is Monday 2 April 2007. Please send news stories/articles/details of forthcoming events to Claire Moulds, Editor of Campaign News at claire.moulds@ntlworld.com If you’re unsure if a story’s suitable, need help pulling a news item together or have an idea for a larger article, please send the relevant details through to Claire for consideration.

×