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Ethics and Integrity in Data Use and Management Detailed Specifications

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Detailed specification for Ethics and Integrity in Data Use and Managemen

Detailed specification for Ethics and Integrity in Data Use and Managemen


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  • 1. Detailed Specifications Ethics and Integrity in Data Use and ManagementHIBB TITLE: Ethics and Integrity in Data Use and ManagementABSTRACT: This module defines basic concepts related to the ethics of data use, compares the ethics of usingclinical and research data, and reviews key ethical guidelines and regulations. The module explains why U.S.regulations are relevant for data managers outside the U.S. The module outlines how key ethics concepts affectdata retention, sharing, security, ownership, and analysis as well as publication of research results.LEARNING OBJECTIVES: Upon completion of this module, students will be able to identify core conceptsrelated to data ethics and integrity; identify pertinent data use guidelines and regulations; and describe goodpractices for data retention, sharing, security, and analysis.KEYWORD(S): bioethics; data integrity; data security; ethical principles; medical ethics; OpenMRS; PrivacyRule; protected health information (Keywords selected by HIBBs staff and listed in alphabetical order)LICENSE: Creative Commons Attribution Share Alike 3.0 UnportedLANGUAGE: EnglishCONTENT SUBMITTED BY: REACH-InformaticsAUTHOR(S): John E. Sidle, MD, MS; REACH-InformaticsDATE CONTENT CREATED: May 2010DATE HIBB CREATED: August 30, 2010VERSION NUMBER OF HIBB: Version 1.0DATE VERSION 1.0 HIBB REVISED: Not applicableFINANCIAL SUPPORT PROVIDED BY: National Institutes of Health, Fogarty International Center;Rockefeller FoundationTARGET AUDIENCE: Health care data managers, collectors and usersAVAILABLE FORMAT(S)/SIZE OF FILES: Microsoft PowerPoint 97-2003, 2.6 MB, 32 slides; audio only,MP3, 45.9 MB, 51:32 minutes; slides with audio, MP4, 12 MB, 50:15 minutes; smart phone MP4, 30.8 MB,50:15 minutesTECHNOLOGICAL REQUIREMENTS FOR USERS: Microsoft PowerPoint 97-2003; MP3 Playerapplication; Quicktime, DivX, VLC; smart phone E-mail: HIBBs@amia.org ♦ WWW.GHIP.NET
  • 2. Detailed Specifications: Ethics and Integrity in Data Use and Management 2DURATION OF THE MODULE: Video, audio and smart phone files: approximately 51 minutesLEVEL OF CONTENT: BasicPREREQUISITE KNOWLEDGE: NoneLINKS TO RELATED HIBBS MODULES: Data Quality: Missing DataSELF-ASSESSMENT: AvailableUSE OF HIBB IN TRAINING: Module used in 2-week training delivered by Regional East African Centerfor Health Informatics (REACH-Informatics) in Eldoret, Kenya, in May 2010. The Regional East African Centreof Health Informatics (REACH-Informatics) in Eldoret was established in 2009 with the aim of providing EastAfricans with short courses and practicum training to support the development, implementation, maintenance,evolution and use of EHRs.FEEDBACK ON USE: Not applicableADAPTATION OF HIBB: Not applicableAUXILIARY MATERIALS: References to journal articles and other resources E-mail: HIBBs@amia.org ♦ WWW.GHIP.NET