A New Approach to Younger Peoples Stroke Services A scoping exercise by  Phil Collis – Funded by Essex County Council  PHI...
Traditional Stroke Services <ul><li>25% of Strokes occur in people who are under 65. </li></ul><ul><li>Stroke Services are...
Younger Strokes <ul><li>As risk factors for stroke, such as obesity, diabetes and high blood pressure continue to rise, es...
Younger Stroke Review <ul><li>Review of services and issues for Young Stroke Survivors in S W Essex. </li></ul><ul><li>35 ...
Review of Findings  <ul><li>31 out of 35 expressed a desire to meet other ‘younger stroke survivors’ </li></ul><ul><li>How...
Review cont 2 <ul><li>34 out of 35 people stated with regard to exercise ‘the more, the sooner, the better’. </li></ul><ul...
Review cont 3 <ul><li>13 of the 35 who had communication difficulties stated that there was a strong lack of understanding...
Review cont 4 <ul><li>31 out of 35 stated that they were satisfied with the therapy they received as part of their rehabil...
Review cont 5 <ul><li>20 out of 35 said they were not explained properly what caused their stroke. </li></ul><ul><li>Secon...
Review cont 6 <ul><li>Other issues that were highlighted </li></ul><ul><li>Pain/Heaviness – explanations given by health p...
How can we change things to improve and develop younger stroke services? <ul><li>A central support unit that works with a ...
Younger Strokes Support Unit Services  <ul><li>Support to meet other younger strokes </li></ul><ul><li>Support to return t...
Support Unit services cont… <ul><li>Support with communication difficulties that inhibit community participation. </li></u...
How would a support unit make things better? <ul><li>Traditionally Stroke units do not have the resources or funding to pr...
Some quotes from younger strokes <ul><li>‘ because the speech is not clear they think your brain is not working’ </li></ul...
What next ? <ul><li>You don’t have to have ESP – but having it in place can save you money and improve peoples lives </li>...
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A new approach to younger peoples stroke services

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Small scoping exercise commissioned by Essex County Council.

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A new approach to younger peoples stroke services

  1. 1. A New Approach to Younger Peoples Stroke Services A scoping exercise by Phil Collis – Funded by Essex County Council PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  2. 2. Traditional Stroke Services <ul><li>25% of Strokes occur in people who are under 65. </li></ul><ul><li>Stroke Services are geared up for older people – true? </li></ul><ul><li>People who have strokes at a younger age have different needs and priorities on their road to recovery and quality of life? </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  3. 3. Younger Strokes <ul><li>As risk factors for stroke, such as obesity, diabetes and high blood pressure continue to rise, especially among adults of working age, and as the treatment for strokes improves, thus increasing survival rates for stroke improves, consequently the number of working age stroke survivors can be expected to rise. </li></ul><ul><li>The specific and complex needs of the younger stroke survivor have not received the full attention that they deserve. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  4. 4. Younger Stroke Review <ul><li>Review of services and issues for Young Stroke Survivors in S W Essex. </li></ul><ul><li>35 people participated (30m & 5f) </li></ul><ul><li>Geographical spread included, Brentwood, Basildon & Castle Point. </li></ul><ul><li>Review carried out on a one to one basis or telephone interview. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  5. 5. Review of Findings <ul><li>31 out of 35 expressed a desire to meet other ‘younger stroke survivors’ </li></ul><ul><li>However those who tend to have recovered well did not always want to be associated with a disability and chose not to attend existing groups, often with older people or people with higher needs. 12 mentioned that they would like to be considered as ‘peer’ support for others. All 35 noted how they would welcome a designated worker as a single point of contact and support. In particular with regard to ‘work’ as many felt discriminated against and stated that there was a lack of information for both them and potential employers on returning to work. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  6. 6. Review cont 2 <ul><li>34 out of 35 people stated with regard to exercise ‘the more, the sooner, the better’. </li></ul><ul><li>Many mentioned how swimming would be beneficial but that they did not have access whether because of disability or finance or both. Access to gyms was an issue as they felt that equipment was inappropriate and unsafe to use as well as issues around access and support to use equipment – many said that some kind of swimming or ‘soft’ exercise group would be ideal. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  7. 7. Review cont 3 <ul><li>13 of the 35 who had communication difficulties stated that there was a strong lack of understanding they received from others. </li></ul><ul><li>Feeling that they were treated as ‘stupid’ or ‘treated as a child’ – this was particularly prevalent with official bodies often because of long and complicated paperwork further complicated by physical difficulties. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  8. 8. Review cont 4 <ul><li>31 out of 35 stated that they were satisfied with the therapy they received as part of their rehabilitation after stroke. </li></ul><ul><li>Most however wanted it to continue for longer than it had and some said they were not explained why ongoing therapy would not benefit them any longer. Some stated that changes in therapy staff often meant they had to start all over again. Most struggled to keep doing their prescribed exercise once discharged from therapy. It was also said that sometimes equipment or aides that were prescribed were not explained adequately. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  9. 9. Review cont 5 <ul><li>20 out of 35 said they were not explained properly what caused their stroke. </li></ul><ul><li>Secondary prevention was not explained in a structured way – those that had received detailed information had or were making the appropriate life style changes i.e. smoking cessation etc. understanding causes of stroke seemed to improve compliance with treatment such as medication and life style changes. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  10. 10. Review cont 6 <ul><li>Other issues that were highlighted </li></ul><ul><li>Pain/Heaviness – explanations given by health professionals ‘ result from your stroke’ – ‘just need to learn to live with it’ </li></ul><ul><li>Transport – accessing transport – no support to get out ‘I live alone – I have to rely on my brother to come round. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  11. 11. How can we change things to improve and develop younger stroke services? <ul><li>A central support unit that works with a group of stroke units in a specific area. </li></ul><ul><li>A support unit that can work with referred younger strokes on a case work basis. </li></ul><ul><li>One to one support that can target and resolve specific issues. </li></ul><ul><li>Support that works across health, social and community services. </li></ul><ul><li>Support that provides a single point of contact for younger people with stroke their families and carers. </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  12. 12. Younger Strokes Support Unit Services <ul><li>Support to meet other younger strokes </li></ul><ul><li>Support to return to work </li></ul><ul><li>Support to improve and maintain emotional and mental health well being </li></ul><ul><li>Access to exercise, swimming etc. </li></ul><ul><li>Support with getting out and about, support with improving transport problems </li></ul><ul><li>Stroke prevention and awareness training </li></ul><ul><li>Flexible support for families/carers in addition to the young stroke survivor </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  13. 13. Support Unit services cont… <ul><li>Support with communication difficulties that inhibit community participation. </li></ul><ul><li>Networking and partnership working – across all sectors. </li></ul><ul><li>Information and signposting </li></ul><ul><li>Accessing social networks </li></ul><ul><li>Support to empower people on their road to recovery to achieve their aims. </li></ul><ul><li>THIS LIST IS NOT EXHAUSTIVE !!!! </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  14. 14. How would a support unit make things better? <ul><li>Traditionally Stroke units do not have the resources or funding to provide for the complex and specific needs of the younger stroke survivor following discharge. </li></ul><ul><li>With 75 % of strokes affecting those over 65 current provision focuses on the older stroke survivor. </li></ul><ul><li>Sharing financial resources across a group of stroke services that can refer to the support unit means that the younger stroke can expect case specific support. </li></ul><ul><li>Support unit could provide a ‘fast track’ support pathway. </li></ul><ul><li>Faster access to social and community resources etc. </li></ul><ul><li>AGAIN THIS LIST IS NOT EXHAUSTIVE! </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  15. 15. Some quotes from younger strokes <ul><li>‘ because the speech is not clear they think your brain is not working’ </li></ul><ul><li>‘ Offering me sheltered accommodation? How old do they think I am’? </li></ul><ul><li>‘ you have to try and help yourself but its not easy’ </li></ul><ul><li>‘ I didn’t know what a stroke was’? </li></ul><ul><li>‘ people talk to my wife as if I wasn’t there instead of talking me – its often insulting’ </li></ul><ul><li>‘ all I got was a sheet of paper with some pictures of exercises I could do – just wish I could go swimming like I used to – I loved swimming’ </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
  16. 16. What next ? <ul><li>You don’t have to have ESP – but having it in place can save you money and improve peoples lives </li></ul>PHIL COLLIS Tel:0785 285 6498 email: philipcollis@gmail.com
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