Exploratory analysis on hemophilia in social media –Social essence of patient conversations: managing thedisease, and the ...
Patients’ conversations around hemophilia occur on leading social          networking platforms such as Twitter and Facebo...
Activities on Twitter – Conversations among patients of hemophilia US/UK© PharmARC Analytic Solutions Pvt. Ltd., 2011. All...
Hemophilia patients on Twitter tweet using a hashtag #hemophilia, or        “hemophilia”/“haemophilia”     Twitter hashtag...
No. of average daily tweets around #hemophilia is 28; monitoring        tweets for a couple of months will give us above 1...
Patient tweets around hemophilia (using #hemophilia) can be        categorized into various buckets such as awareness, eve...
Summary of various categories of tweets around # hemophilia        Patient/Social Support                                 ...
Summary of various categories of tweets around # hemophilia  Expression/Empathy/Sharing                                   ...
Summary of various categories of tweets around # hemophilia                  Awareness                                    ...
Social essence can be established from Twitter conversations for        hemophilic patients                               ...
Activities on Facebook – Conversations among patients of hemophiliaFrance/US/UK© PharmARC Analytic Solutions Pvt. Ltd., 20...
Qualitative analysis of patients’ comments on the French Facebook        group “Association Française des Hemophiles” reve...
Patients’ conversations on hemophilia-related French Facebook group        reveal concerns which are different for differe...
Patients’ conversations on hemophilia-related French Facebook group        reveal concerns which are different for differe...
Patients’ conversations on hemophilia-related French Facebook group        reveal concerns which are different for differe...
Patients’ conversations on hemophilia-related French Facebook group        reveal concerns which are different for differe...
Activities on YouTube – Hemophilia patient videos - Content overview andchallenges© PharmARC Analytic Solutions Pvt. Ltd.,...
Hemophilia related patient/caretaker videos on YouTube reveal        challenges faced by them in managing hemophilia      ...
Summary and findings from analysis – What are patients thinking? How do theymanage themselves? Unmet needs?© PharmARC Anal...
Conversations of hemophilic patients on leading social networks can be      categorized into three major areas of concern ...
Categorized examples of the “thoughts” of hemophilia patients around        the three areas: Disease, Cost Burden and Emot...
Categorized examples of the “thoughts” of hemophilia patients around        the three areas: Disease, Cost Burden and Emot...
Patients of hemophilia have specific ways of managing the disease, i.e.        prevention and treatment. Prevention includ...
Patients of hemophilia have specific ways of managing the disease i.e.        prevention and treatment. Treatment too, inc...
Various unmet needs can be identified from social media conversations        of hemophilic patients such as needs relating...
Various unmet needs can be identified from social media conversations        of hemophilic patients such as needs relating...
Online and offline opportunities for engaging hemophilia patient        communities        Workshops / Sponsorship        ...
Social media monitoring and analysis also reveals activities of        companies and patient sentiments around them       ...
Gaining more insights from patient conversations will need long-term         and continuous monitoring of various social n...
For further information on this document, please contact:         Tanmay Saraykar         Manager, Social Media Analytics ...
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Hemophilia - PharmARC Social Media Analytics Presentation

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This presentation offers a comprehensive overview of hemophilia patient conversations, derives social essence using qualitative analysis, identifies unmet needs and provides insights into hemophilia patients' usage of drugs and managing the disease.

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Hemophilia - PharmARC Social Media Analytics Presentation

  1. 1. Exploratory analysis on hemophilia in social media –Social essence of patient conversations: managing thedisease, and the unmet needsPharmARC Social Media Monitoring and AnalysisTanmay Saraykar, Manager - Social Media Analytics www.pharmarc.com
  2. 2. Patients’ conversations around hemophilia occur on leading social networking platforms such as Twitter and Facebook Conversations Areas of analysis • Twitter chats overview – Chats with #hemophilia Twitter • Insights from Twitter – Patient conversations, categories of 1 comments, examples, and social essence • French group/English groups – Patient concerns/engagement opportunities 2 Facebook • Availability and quality of care • Hemophilic parents/mothers, children, elderly patients • Hemophilia-related patient videos on YouTube 3 YouTube • Content overview • Patients’ challenges • What are patients thinking? Summary and • How do they manage themselves? 4 findings • Unmet needs and opportunities© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 2
  3. 3. Activities on Twitter – Conversations among patients of hemophilia US/UK© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 3
  4. 4. Hemophilia patients on Twitter tweet using a hashtag #hemophilia, or “hemophilia”/“haemophilia” Twitter hashtag Definition: Words or phrases prefixed with a # sign, used as text indicators to organize around idea, tweet about certain subjects, or have group posts around topics Popular Twitter hashtag for hemophilia : #hemophilia Duration: August 21, 2011 to September 7, 2011 Total no. of tweets using #hemophilia, hemophilia and haemophilia – 566 Average daily tweets – 28 Total tweeting accounts – 225 Most active accounts - @NHF_Hemophilia @marktkenny @HemoHijinks Top 10 % accounts are the most influential© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 4
  5. 5. No. of average daily tweets around #hemophilia is 28; monitoring tweets for a couple of months will give us above 1,700 tweets, i.e. substantial data for analysis Pattern of daily tweets using #hemophilia, hemophilia and haemophilia (Total # 566 tweets) 80 76 70 60 62 60 60 50 44 42 40 33 31 30 25 21 23 22 20 17 14 13 10 10 6 4 2 1 0 2-Sep-11 6-Sep-11 1-Sep-11 3-Sep-11 4-Sep-11 5-Sep-11 7-Sep-11 8-Sep-11 21-Aug-11 25-Aug-11 29-Aug-11 20-Aug-11 22-Aug-11 23-Aug-11 24-Aug-11 26-Aug-11 27-Aug-11 28-Aug-11 30-Aug-11 31-Aug-11© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 5
  6. 6. Patient tweets around hemophilia (using #hemophilia) can be categorized into various buckets such as awareness, events, news, social sharing, etc. Hemophilia Disease aspect Patient/Social Fundraising Junk Support 7% 1. Hemophilia 20% 5% Hemophila disease, Patient/Social Support Research and – (27) Treatment 2. Fundraising – (39) 7% 3. Hemophilia disease, Research and Treatment – (40) 4. Expression/Empathy/ Expression/ Empathy/Social Social Sharing – (42) Sharing 5. Knowledge/Tips 7% sharing/Questions – (46) Significant 6. Hemophilia RelatedNews/Related Events – (51) Knowledge/Tips Articles sharing/Que. 7. Awareness – (100) 19% 8% 8. Significant News/ Related Articles – (104) 9. Junk – (113) Hemophilia Related Events 9% Awareness 18%© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 6
  7. 7. Summary of various categories of tweets around # hemophilia Patient/Social Support Fundraising Disease Research Treatment  Mutual interaction among  Fund raising programs  Need for diagnostic the patients to share their techniques which reduce experiences for managing  Hemophilia walk recurrent check-ups to the disease condition  Hemophilia manage the disease Foundation golf tour  Depression and mood  Entertainment houses  Difficulties in managing older change can be restricted by and production hemophilic patients’ social involvement only houses’ performance conditions for funds  Being a hemophilic there is  Halloween fundraiser  Professionals need to be nothing for which one carnival updated with the latest should feel humiliated  Beauty for charity for developments in the medical hemophilic patients aspects of this disease  Helps in fighting the disease with motivation  Various shopping  Need for research in context complexes offering their to the use of pain killers  Motivational boost up for 10% sale to be donated to which can allow blood to clot caregivers and patients hemophilic foundations simultaneously© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 7
  8. 8. Summary of various categories of tweets around # hemophilia Expression/Empathy/Sharing Knowledge/Tips/Questions Hemophilia Related Events  Guidelines for  Tips for living healthy with  Adventurous trips by school/college going hemophilia, such as various teams for support of hemophilic patients Exercising tips, Yoga, Hemophilic foundations Nutritional tips, etc.  Stay connected due to  Organizing hemophilic impact of hemophilia on  Expressing opinions - Use dinner (CME) for healthcare families of port for infusion have professionals great risk of infection  Are they staring at my  Organizing annual NHF hemophilic bruises, at my  Application of ice along with meeting, conferences, needle marks – Getting infusion helps a lot symposium, social media used to stares roundtable conferences  Pregnancy related  Will my son grow up to be guidelines – Pushing  Workshop in association the only sibling? stages of labor, Birth plans with pharmaceutical firms for baby who may have hemophilia, medication, etc.© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 8
  9. 9. Summary of various categories of tweets around # hemophilia Awareness More on Awareness News/Articles  Helping parents to teach  Discussion about  Tiered pricing of hemophilia their kids about pros and alternative therapies like medication cons of disease from a very meditation for pain and early age stress relief, exercises,  Story of hemophilic patients hypnosis, etc. who fought the disease  Making parents understand bravely and manage the condition  Adoption experiences to avoid events such as  Article by NHF around why kids missing school due to  Appearances of patients in logging factor infusion is bleeding disorders, etc. documentaries and videos important for patients of hemophilia  Guiding patients to have  Joining campaigns for inventory of medication to hemophilic patients  Help regarding insurance avoid problems during natural calamities  Taking care of dental issues along with hemophilia© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 9
  10. 10. Social essence can be established from Twitter conversations for hemophilic patients Managing kids with Issues related Keeping stock of hemophilia is a to diagnosis hemophilia drugs, daunting task, and treatment ordering on time, Living with hemophilia is overprotectiveness of hemophilia maintaining costly, painful, causes due to lack of injection schedule exhausting, and psychological stress awareness consumes a lot of disheartening, due to and mental time multifaceted limitations discomfort Social stigma Hemophilic associated with patients dream hemophilia is of leading a demotivating, normal life e.g. people which is Significant financial stare at bruises challenging for problems are associated with them managing hemophilia, since treatment costs are Will there be a astronomical and insurance I am a day when a has cap, as well as in many hemophilic single shot will cases, it is hard to find parent, will my treat kids also have hemophilia for hemophilia? long?© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 10
  11. 11. Activities on Facebook – Conversations among patients of hemophiliaFrance/US/UK© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 11
  12. 12. Qualitative analysis of patients’ comments on the French Facebook group “Association Française des Hemophiles” reveals patient concerns and opportunities Facebook conversations – Monitored for August 2011 and September 2011 Total – 160 comments Total active members – 391© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 12
  13. 13. Patients’ conversations on hemophilia-related French Facebook group reveal concerns which are different for different stakeholders. E.g. paramedics and helpers Patient concerns about availability of care Online Campaigns/Engagement Opportunities 1. Many patients complain of incompetence and 1. Make trained paramedics available for urgent lack of awareness about hemophilia in the help for hemophilic patients medical staff 2. Take steps to improve the communication 2. The above leads to mistakes that may between patients and paramedic staff, so that severely affect hemophilic patients, and one there is a better understanding, and situation such case was reported in the discussions may be managed better. Paramedics should listen to them. 3. Hemophilic patients usually tend to be knowledgeable about the disease and due to 3. Offer information about good quality hospitals lack of awareness in paramedics/medical staff on the go through web apps, smart phones, about hemophilia, opinion-conflicts may arise iPad apps, helplines, Google maps, etc. 4. One of the major concerns for patients is 4. Work with some physicians and make patients unequal geographic distribution of quality go to them; get the other physicians trained by treatment of hemophilia treatment centers, as expert physicians well as the consistency in quality of first-aid or treatment available for hemophilic patients 5. Build a partnership with physicians and make them travel across France to train other physicians© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 13
  14. 14. Patients’ conversations on hemophilia-related French Facebook group reveal concerns which are different for different stakeholders. E.g. carrier mothers Concerns of defective gene carrying mothers Online Campaigns/Engagement Opportunities 1. Defective gene carrying mothers feel guilty of 1. Spreading awareness about probability of the imparting the disease to their children, and children of hemophilic mothers not necessarily they have substantial reservations about expressing hemophilia getting pregnant and having a biological child 2. Organizing a web-based training tutorial/ 2. They experience psychological stress and program for handling complications during mental discomfort thinking about pregnancy, pregnancy and this may sometimes lead to decisions against getting pregnant and considering other 3. Creating an online campaign spreading options such as adoption awareness about availability of treatment and that even if the children have the disease, they 3. One of the concerns for hemophilic parents or can lead a normal life to-be-parents about their children is high cost of treatment and lifestyle challenges 4. Creating online discussions and communities associated with raising hemophilic children for psychological support and awareness about hemophilia© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 14
  15. 15. Patients’ conversations on hemophilia-related French Facebook group reveal concerns which are different for different stakeholders. E.g. hemophilic children and teachers Concerns of hemophilic children Online Campaigns/Engagement Opportunities 1. Hemophilic children may be asked to wear 1. Spreading awareness in parents about helmets and bands for avoiding injury during managing preventive care for hemophilic play which may adversely affect their self children and training them for better esteem communication with children 2. Parents often tend to be over-protective and 2. Creating awareness about treating the children feel suppressed, since they are hemophilic children with care and same as prohibited from playing with other children or others to avoid social stigma participate in outdoor activities 3. Organizing a training program for teachers for 3. The need for over-protection is aggravated first aid/primary care of hemophilic children if due to lack of trained professionals and their they are injured availability at the time of injury 4. Online campaign targeted at schools for 4. At schools, teachers tend to treat hemophilic emphasizing need for an emergency response children differently since they wish to avoid system from the schools mishaps out of the fear that if something goes wrong, they may be held responsible and 5. An online webinar for teachers informing and dragged into legal battles. explaining them about the agreements existing between schools, hospitals and parents so 5. In general, teachers seem to be unaware of that they don’t feel legally threatened the requirements of hemophilic children and take a conservative stance© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 15
  16. 16. Patients’ conversations on hemophilia-related French Facebook group reveal concerns which are different for different stakeholders. E.g. elderly hemophilic patients Concerns of elderly hemophilic patients Online Campaigns/Engagement Opportunities 1. Elderly hemophilic patients show eagerness to 1. Appoint elderly hemophilic patients as senior share their experiences, offer guidance and patient advocates and organize webinars and tips about managing the disease and lifestyle Twitter chats promoting interaction between them and encouraging social sharing 2. They emphasize the need to be active and healthy in spite of over-protectiveness of 2. Enhance the positive brand image by parents towards hemophilic kids sponsoring hemophilia related events, thus establishing trust (Our analysis of English 3. Specific to France, there are obstacles to Facebook group shows that Baxter is actively remaining active – many a times, remaining engaging patients suffering from hemophilia active and playing sports needs joining and establishing a positive brand image) clubs/gymnasiums which needs medical certification, and that may be difficult to obtain 3. Corporate sponsorship of sports clubs or for hemophilic kids health centers which have instructors or paramedics trained in treating or first aid of 4. Besides general motivation, elder hemophilic hemophilia patients are willing to offer professional guidance, and tips for managing at the work place© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 16
  17. 17. Activities on YouTube – Hemophilia patient videos - Content overview andchallenges© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 17
  18. 18. Hemophilia related patient/caretaker videos on YouTube reveal challenges faced by them in managing hemophilia YouTube videos – Content overview 1. Disease-related medical information 2. Knowledge sharing around managing the disease 3. Physician interview about treatment around managing hemophilia 4. Expressing emotional issues, social sharing Challenges mentioned by patients 1. Astronomical costs of treatment 2. Difficulty in getting insurance coverage or policy extension 3. Managing hemophilic kids a) Frequent complaints of pain and injury b) Difficult to hold back from activity and sports c) Social stigma in kids due to accessories and over-protectiveness 4. Leading a normal, worry-free life is impossible© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 18
  19. 19. Summary and findings from analysis – What are patients thinking? How do theymanage themselves? Unmet needs?© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 19
  20. 20. Conversations of hemophilic patients on leading social networks can be categorized into three major areas of concern Disease aspect Cost/financial aspect Emotional aspect  Frequent injections cause  Unusually high cost of  Limited recreational options inconvenience medication, high insurance  Psychological pressure of  Time consuming medical premium inheriting disease in procedures and check ups  Difficulties in getting offspring  Over-protectiveness of insurance  Frustration, emotional parents towards kids  Insurance payment cap stress, mental discomfort  Substantial efforts in  Logistics cost of preventing by watching hemophilic preventing injuries injuries kids  Effect of medication doesn’t  Opportunity cost (time  Difficulty in starting a last investment) relationship  Keeping inventory, ordering  Mobility in travel  High expectation of support medicines, maintaining from family and society schedules is a hassle  Lack of technical  Lack of awareness among knowledge about the physicians disease© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 20
  21. 21. Categorized examples of the “thoughts” of hemophilia patients around the three areas: Disease, Cost Burden and Emotional Issues Frequent I get limited time to Isn’t there a drug injections cause do other activities, I that lasts longer, ! inconvenience, have to be careful so that I get and medical and my options of pricked less procedures and recreation are frequently, and check ups are anyway limited don’t spend time time consuming in check-ups? Is there a digital My injections are I have to maintain a application using running out, I have scheduled of dosage, which I can ! to maintain plan things in advance create a inventory, keep and go to the schedule, set stock, order them pharmacy to buy reminders and in time medication save time in organizing?© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 21
  22. 22. Categorized examples of the “thoughts” of hemophilia patients around the three areas: Disease, Cost Burden and Emotional Issues Are there any My hemophilic I have limited income cheaper son’s medication and getting insurance ! alternative and treatment are is challenging? How therapies? When expensive and his do I mange my will the drugs get insurance has a finances? cheaper? Can I cap get new insurance? I am defective Should I adopt a gene carrying child? What is the Is there a website chance that my child ! mother, if I get or a portal that will pregnant, will my will not have offer this child have hemophilia? If he/she information hemophilia? What does, can they lead a comprehensively? are my options? normal life?© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 22
  23. 23. Patients of hemophilia have specific ways of managing the disease, i.e. prevention and treatment. Prevention includes various activities Managing hemophilia before injury Preventing Trauma/Injury Strengthening/Exercises Social Sharing  Avoiding dangerous and  Muscle strengthening  Joining patient discussion, physically extensive exercises to enhance sharing knowledge and tips, outdoor ventures such as resistance to bleed and participating in hemophilia sports, hiking and trekking, abrasion related events rough terrains, etc.  Strengthening immune  Organizing special camps  Avoiding cuts, bruises, system and including for patients of hemophilia dental bleeds, etc. supporting nutrients in the and hemophilic children  Hemophilic children are diet made to wear helmets, bands, other accessories© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 23
  24. 24. Patients of hemophilia have specific ways of managing the disease i.e. prevention and treatment. Treatment too, includes various activities Chronic management and after injury First aid – after injury Chronic management Pain management 1. In case of bleeds, they use 1. Based on availability of IV 1. Alternative therapies for first aid, resting, bandage port, factor replacements preventing bleedings such application, etc. are injected on demand at as consuming flax seed oil homes, or injected (mechanism unknown), 2. Access professional help prophylactically at interval etc. and rush to a hemophilia prefixed by their healthcare treatment center nearby professional 2. Taking pain killers and NSAIDs, but there’s 3. Immediately after a bleed, 2. Recombinant factor confusion around bleeding they consume cold yogurts consumption to manage related side effects of or cold drinks to minimize bleeding these drugs the blood loss until aid is received 3. Administering 3. Managing pain due to antifibrinolytic (e.g. Solulin) bleeding using hypnosis, drugs, desmopressin nasal counseling, etc. sprays, etc.© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 24
  25. 25. Various unmet needs can be identified from social media conversations of hemophilic patients such as needs relating to route of administration, drug efficacy, and cost of treatment 1. Frequent injections cause inconvenience due to high frequency, and present logistical challenges 2. Are a costly and “difficult-to-sustain” option ROA – 3. May have side effects such as bruises, infection and pain at Injections injection site 4. Difficult to administer to kids 5. Oral medication would be great 1. Effect of the drugs doesn’t last long 2. Frequency of administration is high Drug 3. High frequency leads to higher costs, lower compliance and Unmet inconvenience Needs efficacy 4. Causes psychological stress while administering injections frequently to kids which induces pain in them 5. Need longer lasting drugs 1. Treatment is expensive and often consumes substantial financial resources since insurance coverage is difficult to obtain Cost of 2. Insurance coverage often has a cap and this leads to fear of treatment exhausting aid, and mental discomfort 3. Consumes time and leaves lesser options for recreation, earning, and quality of life suffers 4. Need cheaper drugs© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 25
  26. 26. Various unmet needs can be identified from social media conversations of hemophilic patients such as needs relating to hemophilia treatment infrastructure Lack of awareness Lack of proper Lack of Professional Help awareness about Lack of immediate the various professional help, lack of aspects of disease, trained medical specifically professionals with detailed managing kids with knowledge of hemophilia hemophilia disease and treatment Lack of emergency response system Difficulty in locating a HTC in case of emergency© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 26
  27. 27. Online and offline opportunities for engaging hemophilia patient communities Workshops / Sponsorship Digital Engagement 1. Sponsoring, training Paramedics/ • Developing an iPad paramedics for treating Healthcare application that keeps patients of hemophilia Professionals schedule of injections, helps in optimizing inventory, and ordering medications Event Sponsorship • Organizing a Video/Webinar 1. Sponsoring events such as for parents of hemophilic knowledge sharing sessions children on how to manage and camps specially for Hemophilic them hemophilic children patients – Digital • Creating a Google Maps 2. Organizing workshops engagement based application that comes generating awareness to handy in locating Hemophilia manage emergency, Treatment Centers in case of hemophilic kids and emergency (PharmARC can burnouts of caregivers develop this application.) Parents of Hemophilic 3. Sponsor some hemophilic • Encouraging online children/ families to attend annual discussions and patient Children with events such as National participation using social hemophilia Hemophilia summit and get media initiatives, promotions, them to blog and awareness campaigns© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 27
  28. 28. Social media monitoring and analysis also reveals activities of companies and patient sentiments around them Hemophilic patients mention Baxter in their conversations  Baxter seems to be quiet popular among Hemophilic patient community and foundations  This may be due to their sponsorship for various events for patient community like camps, hemophilia walks, workshops, etc.  Participating and actively engaging hemophilia patient community online and offline enhances the bonding between the brand and patients, builds trust and helps in establishing a positive brand image© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 28
  29. 29. Gaining more insights from patient conversations will need long-term and continuous monitoring of various social networks around hemophilia, for generating qualitative and quantitative analysis  Twitter – Continuous monitoring of Twitter feeds around hemophilia related hashtags such as #hemophilia  Facebook – Monitoring global Hemophilia related groups on Facebook  YouTube – Monitoring patient generated videos for content and comments  Blogs and Forums – Monitoring leading blogs on hemophilia for content and patient responses, monitoring discussion topics in forums  Longitudinal tracking – Identifying Key Social Advocates (KSAs) from patient communities, tracking their activities online over a long period of time  News – Research and publication  Updates every 2 months© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 29
  30. 30. For further information on this document, please contact: Tanmay Saraykar Manager, Social Media Analytics +91 7829909766 tanmay.saraykar@pharmarc.com Corporate Headquarters Europe USA PharmARC Analytic Solutions Pvt. Ltd. PharmARC Consulting Services GmbH PharmARC Inc. Mercury 2B Block, 6th Floor Blumenrain 16 100 Overlook Center Prestige Technology Park 4051 Basel 2nd Floor, Princeton, NJ 08540 Sarjapur – Marathahalli Outer Ring Road Switzerland USA Bangalore 560 103, India T +91 (80) 4123 8900 T +41 (61) 261 8900 T +1 (609) 450 1880 F +91 (80) 4123 8999 F +41 (61) 261 8901 F +1 (609) 895 2666©© PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. PharmARC Analytic Solutions Pvt. Ltd., 2011. All Rights Reserved. Slide 30
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